Widening participation in technology design: A review of the involvement of children with special educational needs and disabilities

International Journal of Child-Computer Interaction

Volumn 3-4, Issue , 2015, Pages 23-40

  Benton, Laura ^a   Johnson, Hilary ^b  

^a UNIVERSITY COLLEGE LONDON   (United Kingdom)

^b University of Bath   (United Kingdom)

Author keywords

Children; Disabilities; Participatory design; Special educational needs; Technology design process

Indexed keywords

EID: 84937909479     PISSN: 22128689     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijcci.2015.07.001     Document Type: Review

References (80)

1. Dept. for Education & Dept for Health 2014. Special educational needs and disability code of practice: 0 to 25 years. Retrieved from: . https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/342440/SEND_Code_of_Practice:approved_by_Parliament_29.07.14.pdf.
2. Hart R.A. Children's Participation: From Tokenism to Citizenship 1992, Unicef, Florence.
3. UNICEF. Convention on the rights of the child, 2008. Retrieved from: . http://www.unicef.org/crc/.
4. Franklin A., Sloper P. Supporting the participation of disabled and young people in decision-making. Child. Soc. 2009, 23(1):3-15.
5. Al-Wabil A., Meldah E., Al-Suwaidan A., AlZahrani A. Designing educational games for children with specific learning difficulties: Insights from involving children and practioners. Fifth International Multi-Conference on Computing in the Global Information Technology 2010, 195-198. IEEE.
6. M. Allsop, R. Holt, M. Levesley, B. Bhakta, Involving children in the design of healthcare equipment: an investigation into methodology, in: Proceedings of INCLUDE 2009, 2009.
7. Benton L., Johnson H., Ashwin E., Brosnan M., Grawemeyer B. Developing IDEAS: Supporting children with autism within a participatory design team. Proceedings of the 2012 Annual Conference on Human Factors in Computing Systems 2012, 2599-2608. ACM Press, Austin, Texas, USA.
8. Benton L., Johnson H. Structured approaches to participatory design for children: can targeting the needs of children with autism provide benefits for a broader child population ?. Instr. Sci. 2013, 42(1):47-65. 10.1007/s11251-013-9297-y.
9. Benton L., Vasalou A., Khaled R., Johnson H., Gooch D. Diversity for design: A Framework for involving neurodiverse children in the technology design process. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2014, 3747-3756. ACM.
10. De Faria Borges L.C.L., Filgueiras L.V.L., Maciel C., Pereira V.C. The life cycle of a customized communication device for a child with cerebral palsy: contributions toward the PD4CAT method. J. Braz. Comput. Soc. 2014, 20(1):1-23.
11. Brederode B., Markopoulos P., Gielen M., Vermeeren A., der Ridden H. pOwerball: The design of a novel mixed-reality game for children with mixed abilities. Proceedings of the 4th International Conference for Interaction Design and Children 2005, ACM Press, Boulder, USA.
12. A. Culén, M. van der Velden, A. Karpova, Challenges in designing learning apps for and with vulnerable children, in: Proceedings of CHI 2013 Workshop on Designing for and with Vulnerable People, 2013.
13. Durrant A., Hook J., Mcnaney R., Williams K., Smith T., Kipling M., Olivier P. Design to support interpersonal communication in the special educational needs classroom. Proceedings of the 12th International Conference on Interaction Design and Children-IDC'13 2013, 46-55. ACM.
14. Foss E., Guha M.L., Papadatos P., Clegg T., Yip J., Walsh G. Cooperative inquiry extended: Creating technology with middle school students with learning differences. J. Spec. Educ. Technol. 2013, 28(3).
15. Frauenberger C., Good J., Keay-Bright W. Phenomenology, a framework for participatory design. Proceedings of the 11th Biennial Participatory Design Conference 2010, 187-190. ACM.
16. Frauenberger C., Good J., Keay-Bright W. Designing technology for children with special needs-Bridging perspectives through participatory design. CoDes.: Int. J. CoCreat. Des. Arts 2011, 7(1):1-28.
17. Frauenberger C., Good J., Alcorn A. Challenges, opportunities and future perspectives in including children with disabilities in the design of interactive technology. Proceedings of 11th International Conference on Interaction Design and Children 2012, 367-370. ACM, Bremen, Germany.
18. Frauenberger C., Good J., Alcorn A., Pain H. Supporting the design contributions of children with autism spectrum conditions. Proceedings of the 11th International Conference on Interaction Design and Children 2012, 134-143. ACM Press, Bremen, Germany.
19. Frauenberger C., Good J., Alcorn A., Pain H. Conversing through and about technologies: Design critique as an opportunity to engage children with autism and broaden research(er) perspectives. Int. J. Child-Comput. Interact. 2013, 1(2):38-49.
20. Gibson L., Gregor P., Milne S. Case study: Designing with difficult children. Proceedings of the 1st International Conference for Interaction Design and Children 2002, Shaker Publishing, Eindhoven, The Netherlands.
21. Grawemeyer B., Johnson H., Brosnan M., Ashwin E., Benton L. Developing an embodied pedagogical agent with and for young people with autism spectrum disorder. Proceedings of the 11th International Conference on Intelligent Tutoring Systems 2012, 262-267. Springer-Verlag, Chania, Crete, Greece.
22. Guha M.L., Druin A., Fails J. Designing with and for children with special needs: An inclusionary model. Proceedings of the 7th International Conference for Interaction Design and Children 2008, 61-64. ACM Press, Chicago, USA.
23. Henderson V., Lee S., Brashear H., Hamilton H., Starner T., Hamilton S. Development of an American sign language game for deaf children. Proceedings of the 2005 Conference on Interaction Design and Children 2005, 70-79. ACM.
24. Hernandez H.A., Ye Z., Graham T.C.N., Fehlings D., Switzer L. Designing action-based exergames for children with cerebral palsy. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2013, 1261-1270. ACM.
25. Holone H., Herstad J. Three tensions in participatory design for inclusion. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems-CHI'13 2013, 2903-2906. ACM.
26. Hornof A.J. Design with children with severe motor impairments. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2009, ACM Press, Boston, USA.
27. Hourcade J.P., Bullock-Rest N.E., Hansen T.E. Multitouch tablet applications and activities to enhance the social skills of children with autism spectrum disorders. Pers. Ubiquitous Comput. 2012, 16(2):157-168.
28. Hussain S. Empowering marginalised children in developing countries through participatory design processes. CoDes.: Int. J. CoCreat. Des. Arts 2010, 6(2):99-117.
29. Iversen O.S., Kortbek K.J., Nielson K.R., Aagaard L. Stepstone: an interactive floor application for hearing impaired children with a cochlear implant. Proceedings of the 6th International Conference on Interaction Design and Children 2007, 117-124. ACM.
30. Keay-Bright W. Can computers create relaxation? Designing ReacTickles software with children on the autistic spectrum. CoDes.: Int. J. CoCreat. Des. Arts 2007, 3(2):97-110.
31. Keay-Bright W. The reactive colours project: Demonstrating participatory and collaborative design methods for the creation of software for autistic children. Des. Princ. Pract.: Int. J. 2007, 1(2):7-16.
32. Larsen H.S., Hedvall P.-O. Ideation and ability: when actions speak louder than words. Proceedings of the 12th Participatory Design Conference 2012, 37-40. ACM.
33. López-Mencía B., Pardo D., Hernández-Trapote A., Hernández L., Relaño J. A collaborative approach to the design and evaluation of an interactive learning tool for children with special educational needs. Proceedings of the 9th International Conference on Interaction Design and Children 2010, 226-229. ACM.
34. Madsen M., el Kaliouby R., Eckhardt M., Hoque M.E., Goodwin M.S., Picard R. Lessons from participatory design with adolescents on the autism spectrum. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2009, ACM Press, Boston, USA.
35. Malinverni L., MoraGuiard J., Padillo V., Mairena M.A., Hervás A., Pares N. Participatory design strategies to enhance the creative contribution of children with special needs. Proceedings of the 2014 Conference on Interaction Design and Children 2014, 85-94. ACM.
36. Mazzone E., Read J.C., Beale R. Design with and for disaffected teenagers. Proceedings of the 5th Nordic Conference on Human-Computer Interaction: Building Bridges 2008, 290-297. ACM, Lund, Sweden.
37. McElligott J., van Leeuwen L. Designing sound tools and toys for blind and visually impaired children. Proceedings of the 3rd International Conference for Interaction Design and Children 2004, 65-72. ACM Press, Maryland, USA.
38. Millen L., Cobb S., Patel H. Participatory design with children with autism. Proc. Disability, Virtual Reality and Associated Technologies 2010, 93-102. Viña del Mar/Valparaíso, Chile.
39. Millen L., Cobb S., Patel H. A method for involving children with autism in design. Proceedings of the 10th International Conference on Interaction Design and Children 2011, 185-188. ACM, Ann Arbor, USA.
40. Parsons S., Cobb S. Reflections on the role of the users: challenges in a multi-disciplinary context of learner-centred design for children on the autism spectrum. Int. J. Res. Method Educ. 2014, 1-21.
41. Piper A.M., O'Brien E., Morris M.R., Winograd T. SIDES: a cooperative tabletop computer game for social skills development. Proceedings of the 2006 20th Anniversary Conference on Computer Supported Cooperative Work 2006, ACM Press, Banff, Canada.
42. Potter L.E., Korte J., Nielsen S. Seek and sign: an early experience of the joys and challenges of software design with young deaf children. Proceedings of the 23rd Australian Computer-Human Interaction 2011, 257-260. ACM.
43. Rigby P., Ryan S., From W., Walczak E., Jutai J. A client-centred approach to developing assistive technology with children. Occup. Ther. Int. 2006, 3(1):67-79.
44. Ruland C.M., Starren J., Vatne T.M. Participatory design with children in the development of a support system for patient-centred care in pediatric oncology. J. Biomed. Inform. 2008, 41(4):624-635.
45. Sampath H., Agarwal R., Indurkhya B. Assistive technology for children with autism-Lessons for interaction design. Proceedings of the 11th Asia Pacific Conference on Computer Human Interaction 2013, 325-333. ACM.
46. Sánchez J., Flores H. Memory enhancement through audio. Proceedings of the 6th International ACM SIGACCESS Conference on Computers and Accessibility 2004, 24-31. ACM.
47. K. Slegers, P. Duysburgh, A. Jacobs, Research methods for involving hearing impaired children in IT innovation, in: Proceedings of the 6th Nordic Conference on Human-Computer Interaction: Extending Boundaries-NordiCHI'10, 2010, pp. 781-784.
48. Tarrin N., Petit G., Chêne D. Network force-feedback applications for hospitalized children in sterile room. Proceedings of the International Conference on Interaction Design and Children 2006, 157-160. ACM.
49. Van Rijn H., Stappers P.J. Expressions of ownership motivating users in a co-design process. Proceedings of the Tenth Anniversary Conference on Participatory Design 2008, 178-181. ACM, Indianapolis, IN, USA.
50. Wärnestål P., Svedberg P., Nygren J. Co-constructing child personas for health-promoting services with vulnerable children. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems-CHI'14 2014, 3767-3776. ACM.
51. Zarin R., Fallman D. Through the troll forest: Exploring tabletop interaction design for children with special cognitive needs. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems 2011, 3319-3322. ACM.
52. Anderberg P. Making both ends meet. Disabil. Stud. Q. 2005, 25(3).
53. Seelman K. Trends in rehabilitation and disability: Transition from a medical model to an integrative model. Disabil. World 2004, 22.
54. Mankoff J., Hayes G.R., Kasnitz D. Disability studies as a source of critical inquiry for the field of assistive technology. Proceedings of the 12th International ACM SIGACCESS Conference on Computers and Accessibility 2010, 3-10. ACM.
55. Armagno G. The role of HCI in the construction of disability. Proceedings of HCI Ethics 2012 2012, British Informatics Society Ltd.
56. Carroll J.M., Chin G., Rosson M.B., Neale D.C. The development of cooperation: five years of participatory design in the virtual school. Proceedings of the 3rd Conference on Designing Interactive Systems: Processes, Practices, Methods, and Techniques 2000, 239-251. ACM.
57. Rogers Y., Sharp H., Preece J. Interaction Design: Beyond Human-Computer Interaction 2011, Wiley, Chicester. third ed.
58. Schuler D., Namioka A. Participatory Design: Principles and Practices 1993, Lawrence Erlbaum Associates Inc., Mahwah, NJ.
59. Sanders E.B.-N., Stappers P.J. Co-creation and the new landscapes of design. CoDesign 2008, 4(1):5-18.
60. Scaife M., Rogers Y. Kids as informants: Telling us what we didn't know or confirming what we knew already. The Design of Children's Technology 1999, 27-50. Kaufmann, San Francisco. A. Druin (Ed.).
61. M. Scaife, Y. Rogers, F. Aldrich, M. Davies, Designing for or designing with? Informant design for interactive learning environments, in: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems-CHI'97, 1997, pp. 343-350. http://dx.doi.org/10.1145/258549.258789.
62. Read J.C., Fitton D., Horton M. Giving ideas an equal chance: inclusion and representation in participatory design with children. Proceedings of the 2014 Conference on Interaction Design and Children 2014, 105-114. ACM.
63. Dearden A., Rizvi H. Participatory IT design and participatory development: a comparative review. Proceedings of the Tenth Anniversary Conference on Participatory Design 2008, 81-91. ACM.
64. J. Vines, R. Clarke, P. Wright, O.S. Iversen, T.W. Leong, J. McCarthy, P. Olivier, Summary Report on CHI 2012 invited SIG: Participation and HCI: Why Involve People in Design? 2012. Retrieved from: . http://di.ncl.ac.uk/participation/chi2012/.
65. Druin A. The role of children in the design of new technology. Behav. Inf. Technol. 2002, 21(1):1-25.
66. Read J.C., Gregory P., MacFarlane S., McManus B., Gray P., Patel R. An investigation of participatory design with children-Informant, balanced and facilitated design. Proceedings of Interaction Design and Children 2002, Shaker Publishing, Eindhoven, Netherlands.
67. Benton L. Participatory design and autism: Supporting the participation, contribution and collaboration of children with ASD during the technology design process 2013, (Doctoral thesis), University of Bath.
68. Frauenberger C., Good J., Keay-Bright W., Pain H. Interpreting input from children: a designerly approach. Proceedings of the SIGCHI Conference on Human Factors in Computing Systems-CHI'12 2012, 2377-2386. ACM.
69. H. Van Rijn, Meaningful Encounters: Explorative Studies About Designers Learning from Children with Autism, TU Delft, 2012.
70. Guha M.L., Druin A., Fails J.A. Cooperative inquiry revisited: Reflections of the past and guidelines for the future of intergenerational co-design. Int. J. Child-Comput. Interact. 2013, 1(1):14-23.
71. Mazzone E., Iivari N., Tikkanen R., Read J.C., Beale R. Considering context, content, management, and engagement in design activities with children. Proceedings of the 9th International Conference on Interaction Design and Children 2010, ACM Press, Barcelona, Spain.
72. Guha M.L., Druin A., Chipman G., Fails J.A., Simms S., Farber A. Mixing ideas: a new technique for working with young children as design partners. Proceeding of the 2004 Conference on Interaction Design and Children Building A Community-IDC'04 2004, 35-42. ACM, New York, NY, USA.
73. Bossen C., Dindler C., Iversen O.S. User gains and PD aims: assessment from a participatory design project. Proceedings of the 11th Biennial Participatory Design Conference 2010, ACM Press, Sydney, Australia.
74. Bossen C., Dindler C., Iversen O.S. Impediments to user gains: experiences from a critical participatory design project. Proceedings of the 12th Participatory Design Conference 2012, ACM Press, Roskilde, Denmark.
75. M.L. Guha, A. Druin, J.A. Fails, Investigating the impact of design processes on children, in: Proceedings of the 9th International Conference on Interaction Design and Children, Barcelona, Spain, 2010, pp. 198-201.
76. Nesset V., Large A. Children in the information technology design process: A review of theories and their applications. Libr. Inf. Sci. Res. 2004, 26(2):140-161.
77. Good J., Robertson J. CARSS: A framework for learner-centred design with children. Int. J. Artif. Intell. Educ. 2006, 16(4):381-413. Retrieved from: http://dl.acm.org/citation.cfm?id=1435358.1435362.
78. Vink P., Imada A.S., Zink K.J. Defining stakeholder involvement in participatory design processes. Appl. Ergon. 2008, 39(4):519-526.
79. Frauenberger C., Good J., Fitzpatrick G., Iversen O.S. In pursuit of rigour and accountability in participatory design. Int. J. Hum.-Comput. Stud. 2015, 74:93-106.
80. Crotty M. The Foundations of Social Research: Meaning and Perspective in the Research Process 1998, Sage Publications, London.