The antecedents, forms and consequences of patient involvement: A narrative review of the literature

International Journal of Nursing Studies

Volumn 53, Issue , 2016, Pages 351-378

  Snyder, Hannah ^a   Engström, Jon ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

Author keywords

Narrative review; Patient empowerment; Patient involvement; Patient participation; Self management; Shared decision making

Indexed keywords

CINAHL; CONSENSUS DEVELOPMENT; DECISION MAKING; EMPIRICAL RESEARCH; EMPIRICISM; EMPOWERMENT; HUMAN; HUMAN EXPERIMENT; MEDLINE; MODEL; NARRATIVE; PATIENT EDUCATION; PATIENT PARTICIPATION; PSYCINFO; STAFF TRAINING; SYSTEMATIC REVIEW; THEMATIC ANALYSIS; SELF CARE; THEORETICAL MODEL;

DECISION MAKING; MODELS, THEORETICAL; PATIENT EDUCATION AS TOPIC; PATIENT PARTICIPATION; SELF CARE;

EID: 84955367275     PISSN: 00207489     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.ijnurstu.2015.09.008     Document Type: Review

References (255)

1. Abbott J. Ways of coping with cystic fibrosis: implications for treatment adherence. Disabil. Rehabil. 2001, 23:315-324.
2. Adams R.J., Smith B.J., Ruffin R.E. Impact of the physician's participatory style in asthma outcomes and patient satisfaction. Ann. Allergy. Asthma. Immunol. 2001, 86:263-271. 10.1016/S1081-1206(10)63296-6.
3. Aikens J.E., Trivedi R., Aron D.C., Piette J.D. Integrating support persons into diabetes telemonitoring to improve self-management and medication adherence. J. Gen. Intern. Med. 2015, 30:319-326. 10.1007/s11606-014-3101-9.
4. Alexander I. Emancipatory actions displayed by multi-ethnic women: regaining control of my health care. J. Am. Acad. Nurse Pract. 2010, 22:602-611. 10.1111/j.1745-7599.2010.00554.x.
5. Anderson R.M., Funnell M.M. Patient empowerment: reflections on the challenge of fostering the adoption of a new paradigm. Patient Educ. Couns. 2005, 57:153-157.
6. Anderson R.M., Funnell M.M., Butler P.M., Arnold M.S., Fitzgerald J.T., Feste C.C. Patient empowerment: results of a randomized controlled trial. Diabetes Care 1995, 18:943-949. 10.2337/diacare.18.7.943.
7. An G.-J., Kim M.-J. Powerlessness, social support, and glycemic control in Korean adults with type 2 diabetes. Contemp. Nurse. 2012, 42:272-279. 10.5172/conu.2012.42.2.272.
8. Arnetz J., Almin I., Bergström K., Franzén Y., Nilsson H. Active patient involvement in the establishment of physical therapy goals: effects on treatment outcome and quality of care. Adv. Physiother. 2004, 6:50-69.
9. Arnetz J., Winblad U., Höglund A., Lindahl B., Spångberg K., Wallentin L., Wang Y., Ager J., Arnetz B. Is patient involvement during hospitalization for acute myocardial infarction associated with post-discharge treatment outcome? An exploratory study. Health Expect. 2010, 13:298-311. 10.1111/j.1369-7625.2009.00588.x.
10. Arnstein S.R. A ladder of citizen participation. J. Am. Inst. Plann. 1969, 35:216-224. 10.1080/01944366908977225.
11. Aujoulat I., d'Hoore W., Deccache A. Patient empowerment in theory and practice: polysemy or cacophony?. Patient Educ. Couns. 2007, 66:13-20. 10.1016/j.pec.2006.09.008.
12. Baars J.E., Markus T., Kuipers E.J., van der Woude C.J. Patients' preferences regarding shared decision-making in the treatment of inflammatory bowel disease: results from a patient-empowerment study. Digestion 2010, 81:113-119. 10.1159/000253862.
13. Baumeister R.F., Leary M.R. Writing narrative literature reviews. Rev. Gen. Psychol. 1997, 1:311-320. 10.1037/1089-2680.1.3.311.
14. Bergelin E., Lundgren S.M. Patients experiences of seeing their obesity in CT images allow for an active self-care: a qualitative study'. Scand. J. Caring Sci. 2014, 28:122-129. 10.1111/scs.12029.
15. Berger S., Braehler E., Ernst J. The health professional-patient-relationship in conventional versus complementary and alternative medicine. A qualitative study comparing the perceived use of medical shared decision-making between two different approaches of medicine. Patient Educ. Couns. 2012, 88:129-137.
16. Bodenheimer T., Lorig K., Holman H., Grumbach K. Patient self-management of chronic disease in primary care. J. Am. Med. Assoc. 2002, 288:2469-2475.
17. Bodenheimer T., Wagner E.H., Grumbach K. Improving primary care for patients with chronic illness. JAMA 2002, 288:1775-1779.
18. Borders T.F., Xu K.T., Heavner J., Kruse G. Patient involvement in medical decision-making and pain among elders: physician or patient-driven?. BMC Health Serv. Res. 2005, 5:4. 10.1186/1472-6963-5-4.
19. Borello-France D., Burgio K.L., Goode P.S., Ye W., Weidner A.C., Lukacz E.S., Jelovsek J.-E., Bradley C.S., Schaffer J., Hsu Y., others Adherence to behavioral interventions for stress incontinence: rates, barriers, and predictors. Phys. Ther. 2013, 93:757-773.
20. Bosworth H.B., Olsen M.K., Grubber J.M., Powers B.J., Oddone E.Z. Racial differences in two self-management hypertension interventions. Am. J. Med. 2011, 124:468e1-468e8. 10.1016/j.amjmed.2010.11.024.
21. Boyne J.J., Vrijhoef H.J., Spreeuwenberg M., De Weerd G., Kragten J., Gorgels A.P., TEHAF investigators Effects of tailored telemonitoring on heart failure patients' knowledge, self-care, self-efficacy and adherence: a randomized controlled trial. Eur. J. Cardiovasc. Nurs. 2014, 13:243-252.
22. Braddock C.H., Edwards K.A., Hasenberg N.M., Laidley T.L., Levinson W. Informed decision making in outpatient practice: time to get back to basics. JAMA 1999, 282:2313-2320. 10.1001/jama.282.24.2313.
23. Brämberg E.B., Dahlborg-Lyckhage E., Määttä S. Lack of individualized perspective: a qualitative study of diabetes care for immigrants in Sweden: lack of individualized care. Nurs. Health Sci. 2012, 14:244-249. 10.1111/j.1442-2018.2012.00684.x.
24. Braun V., Clarke V. Using thematic analysis in psychology. Qual. Res. Psychol. 2006, 3:77-101. 10.1191/1478088706qp063oa.
25. Brennan P.F. Health informatics and community health: support for patients as collaborators in care. Methods Inf. Med. 1999, 38:274-278.
26. Briggs L.A., Kirchhoff K.T., Hammes B.J., Song M.-K., Colvin E.R. Patient-centered advance care planning in special patient populations: a pilot study. J. Prof. Nurs. 2004, 20:47-58.
27. Bruni R.A., Laupacis A., Levinson W., Martin D.K. Public involvement in the priority setting activities of a wait time management initiative: a qualitative case study. BMC Health Serv. Res. 2007, 7:186. 10.1186/1472-6963-7-186.
28. Bulsara C., Ward A., Joske D. Haematological cancer patients: achieving a sense of empowerment by use of strategies to control illness. J. Clin. Nurs. 2004, 13:251-258.
29. Burke J.A., Earley M., Dixon L.D., Wilke A., Puczynski S. Patients with diabetes speak: exploring the implications of patients' perspectives for their diabetes appointments. Health Commun. 2006, 19:103-114. 10.1207/s15327027hc1902_2.
30. Bylund C.L., Gueguen J.A., Sabee C.M., Imes R.S., Li Y., Sanford A.A. Provider-patient dialogue about Internet health information: an exploration of strategies to improve the provider-patient relationship. Patient Educ. Couns. 2007, 66:346-352.
31. Campbell M., Martin M. Reducing health inequalities in Scotland: the involvement of people with learning disabilities as national health service reviewers. Br. J. Learn. Disabil. 2010, 38:49-58. 10.1111/j.1468-3156.2009.00562.x.
32. Carey M., Anderson A., Sanson-Fisher R., Lynagh M., Paul C., Tzelepis F. How well are we meeting haematological cancer survivors' preferences for involvement in treatment decision making?. Patient Educ. Couns. 2012, 88:87-92.
33. Carlsen B., Aakvik A. Patient involvement in clinical decision making: the effect of GP attitude on patient satisfaction. Health Expect. 2006, 9:148-157.
34. Carlsson C., Nilbert M., Nilsson K. Patients' involvement in improving cancer care: experiences in three years of collaboration between members of patient associations and health care professionals. Patient Educ. Couns. 2006, 61:65-71.
35. Carman K.L., Dardess P., Maurer M., Sofaer S., Adams K., Bechtel C., Sweeney J. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. (Millwood) 2013, 32:223-231. 10.1377/hlthaff.2012.1133.
36. Chang A.K., Fritschi C., Kim M.J. Nurse-led empowerment strategies for hypertensive patients with metabolic syndrome. Contemp. Nurse 2012, 42:118-128.
37. Charles C., Gafni A., Whelan T. Self-reported use of shared decision-making among breast cancer specialists and perceived barriers and facilitators to implementing this approach. Health Expect. 2004, 7:338-348.
38. Chlebowy D.O., Hood S., LaJoie A.S. Gender differences in diabetes self-management among African American adults. West. J. Nurs. Res. 2013, 10.1177/0193945912473370.
39. Choi J.Y., Cho Chung H.-I. Effect of an individualised education programme on asthma control, inhaler use skill, asthma knowledge and health-related quality of life among poorly compliant Korean adult patients with asthma: effect of an individualised education programme on asthma control. J. Clin. Nurs. 2011, 20:119-126. 10.1111/j.1365-2702.2010.03420.x.
40. Chunchu K., Mauksch L., Charles C., Ross V., Pauwels J. A patient centered care plan in the EHR: improving collaboration and engagement. Fam. Syst. Health 2012, 199-209. 10.1037/a0029100.
41. Collins A.E., Niles B.L., Mori D.L., Silberbogen A.K., Seligowski A.V. A telephone-based intervention to promote diabetes management in veterans with posttraumatic stress symptoms. Prof. Psychol. Res. Pract. 2014, 45:20-26. 10.1037/a0032604.
42. Corless I.B., Wantland D., Kirksey K.M., Nicholas P.K., Human S., Arudo J., Rosa M., Cuca Y., Willard S., Hamilton M.J., Portillo C., Sefcik E., Robinson L., Bain C., Moezzi S., Maryland M., Huang E., Holzemer W.L. Exploring the contribution of general self-efficacy to the use of self-care symptom management strategies by people living with HIV infection. AIDS Patient Care STDs 2012, 26:335-343. 10.1089/apc.2011.0404.
43. Cossette S., Frasure-Smith N., Vadeboncoeur A., McCusker J., Guertin M.-C. The impact of an emergency department nursing intervention on continuity of care, self-care capacities and psychological symptoms: secondary outcomes of a randomized controlled trial. Int. J. Nurs. Stud. 2015, 52:666-676. 10.1016/j.ijnurstu.2014.12.007.
44. Costantini L., Beanlands H., McCay E., Cattran D., Hladunewich M., Francis D. The self-management experience of people with mild to moderate chronic kidney disease. Nephrol. Nurs. J. 2008, 35:147-155.
45. Cottam H., Leadbeater C. Red Paper 01 Health: Co-Creating Services 2004, Des. Counc.
46. Courtney R., Ballard E., Fauver S., Gariota M., Holland L. The partnership model. Public Health Nurs. 1996, 13:177-186. 10.1111/j.1525-1446.1996.tb00238.x.
47. Coventry P.A., Fisher L., Kenning C., Bee P., Bower P. Capacity, responsibility, and motivation: a critical qualitative evaluation of patient and practitioner views about barriers to self-management in people with multimorbidity. BMC Health Serv. Res. 2014, 14:536. 10.1186/s12913-014-0536-y.
48. Dabbs A.D., Dew M.A., Myers B., Begey A., Hawkins R., Ren D., Dunbar-Jacob J., Oconnell E., McCurry K.R. Evaluation of a hand-held, computer-based intervention to promote early self-care behaviors after lung transplant. Clin. Transplant. 2009, 23:537-545. 10.1111/j.1399-0012.2009.00992.x.
49. Dale J., Sandhu H., Lall R., Glucksman E. The patient, the doctor and the emergency department: a cross-sectional study of patient-centredness in 1990 and 2005. Patient Educ. Couns. 2008, 72:320-329.
50. Dalton C., Farrell R., De Souza A., Wujanto E., McKenna-Slade A., Thompson S., Liu C., Greenwood R. Patient inclusion in goal setting during early inpatient rehabilitation after acquired brain injury. Clin. Rehabil. 2012, 26:165-173.
51. Dash D., Sebastian T.M., Aggarwal M., Tripathi M. Impact of health education on drug adherence and self-care in people with epilepsy with low education. Epilepsy Behav. 2015, 44:213-217. 10.1016/j.yebeh.2014.12.030.
52. Davies E., Cleary P.D. Hearing the patient's voice? Factors affecting the use of patient survey data in quality improvement. Qual. Saf. Health Care 2005, 14:428-432. 10.1136/qshc.2004.012955.
53. Davison B.J. Empowerment of men newly diagnosed with prostate cancer. Cancer Nurs. 1997, 20:187.
54. Davison B.J., Breckon E. Factors influencing treatment decision making and information preferences of prostate cancer patients on active surveillance. Patient Educ. Couns. 2012, 87:369-374. 10.1016/j.pec.2011.11.009.
55. Demarco R., Johnsen C. Taking action in communities: women living with HIV/AIDS lead the way. J. Community Health Nurs. 2003, 20:51.
56. de Vries McClintock H.F., Morales K.H., Small D.S., Bogner H.R. A brief adherence intervention that improved glycemic control: mediation by patterns of adherence. J. Behav. Med. 2015, 38:39-47. 10.1007/s10865-014-9576-3.
57. Dhukaram A.V., Baber C. Modelling elderly cardiac patients decision making using Cognitive Work Analysis: identifying requirements for patient decision aids. Int. J. Med. Inf. 2015, 84:430-443. 10.1016/j.ijmedinf.2015.01.001.
58. Dickman K., Pintz C., Gold K., Kivlahan C. Behavior changes in patients with diabetes and hypertension after experiencing shared medical appointments. J. Am. Acad. Nurse Pract. 2012, 24:43-51. 10.1111/j.1745-7599.2011.00660.x.
59. DiMatteo M.R., Sherbourne C.D., Hays R.D., Ordway L., Kravitz R.L., McGlynn E.A., Kaplan S., Rogers W.H. Physicians' characteristics influence patients' adherence to medical treatment: results from the Medical Outcomes Study. Health Psychol. 1993, 12:93-102.
60. Dolce M.C. The internet as a source of health information: experiences of cancer survivors and caregivers with healthcare providers. Oncol. Nurs. Forum 2011, 38:353-359.
61. Eldh A.C., Ekman I., Ehnfors M. Considering patient non-participation in health care. Health Expect. 2008, 11:263-271. 10.1111/j.1369-7625.2008.00488.x.
62. Eldh A., Ehnfors M., Ekman I. The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure. Eur. J. Cardiovasc. Nurs. 2006, 5:45-53. 10.1016/j.ejcnurse.2005.06.002.
63. Elwyn G., Crowe S., Fenton M., Firkins L., Versnel J., Walker S., Cook I., Holgate S., Higgins B., Gelder C. Identifying and prioritizing uncertainties: patient and clinician engagement in the identification of research questions. J. Eval. Clin. Pract. 2010, 16:627-631.
64. Elwyn G., Lloyd A., Joseph-Williams N., Cording E., Thomson R., Durand M.-A., Edwards A. Option grids: shared decision making made easier. Patient Educ. Couns. 2013, 90:207-212. 10.1016/j.pec.2012.06.036.
65. Entwistle V.A., Watt I.S., Gilhooly K., Bugge C., Haites N., Walker A.E. Assessing patients' participation and quality of decision-making: insights from a study of routine practice in diverse settings. Patient Educ. Couns. 2004, 55:105-113.
66. Epstein R.M., Street R.L. The values and value of patient-centered care. Ann. Fam. Med. 2011, 9:100-103. 10.1370/afm.1239.
67. European Commission Eurobarometer Qualitative Study: Patient Involvement, Eurobarometer Qualitative Study 2012.
68. Falk S., Wahn A.-K., Lidell E. Keeping the maintenance of daily life in spite of chronic heart failure. A qualitative study. Eur. J. Cardiovasc. Nurs. 2007, 6:192-199.
69. Federman A.D., Wolf M.S., Sofianou A., Martynenko M., O'Connor R., Halm E.A., Leventhal H., Wisnivesky J.P. Self-management behaviors in older adults with asthma: associations with health literacy. J. Am. Geriatr. Soc. 2014, 62:872-879. 10.1111/jgs.12797.
70. Fihn S.D., Bucher J.B., McDonell M., Diehr P., Rumsfeld J.S., Doak M., Dougherty C., Gerrity M., Heidenreich P., Larsen G. Collaborative care intervention for stable ischemic heart disease. Arch. Intern. Med. 2011, 171:1471.
71. Fitzmaurice D.A. Self management of oral anticoagulation: randomised trial. BMJ 2005, 331:1057. 10.1136/bmj.38618.580903.AE.
72. Forbat L., Cayless S., Knighting K., Cornwell J., Kearney N. Engaging patients in health care: an empirical study of the role of engagement on attitudes and action. Patient Educ. Couns. 2009, 74:84-90.
73. Fossum B., Arborelius E. Patient-centred communication: videotaped consultations. Patient Educ. Couns. 2004, 54:163-169.
74. Fox N.J., Ward K.J., O'Rourke A.J. The expert patient: empowerment or medical dominance? The case of weight loss, pharmaceutical drugs and the Internet. Soc. Sci. Med. 2005, 60:1299-1309. 10.1016/j.socscimed.2004.07.005.
75. Fröjd C., Swenne C.L., Rubertsson C., Gunningberg L., Wadensten B. Patient information and participation still in need of improvement: evaluation of patients' perceptions of quality of care. J. Nurs. Manag. 2011, 19:226-236.
76. Funnell M.M., Anderson R.M., Arnold M.S., Barr P.A., Donnelly M., Johnson P.D., Taylor-Moon D., White N.H. Empowerment: an idea whose time has come in diabetes education. Diabetes Educ. 1991, 17:37-41. 10.1177/014572179101700108.
77. Furber S., Butler L., Phongsavan P., Mark A., Bauman A. Randomised controlled trial of a pedometer-based telephone intervention to increase physical activity among cardiac patients not attending cardiac rehabilitation. Patient Educ. Couns. 2010, 80:212-218. 10.1016/j.pec.2009.11.012.
78. Furuya R.K., Arantes E.C., Dessotte C.A.M., Ciol M.A., Hoffman J.M., Schmidt A., Dantas R.A.S., Rossi L.A. A randomized controlled trial of an educational programme to improve self-care in Brazilian patients following percutaneous coronary intervention. J. Adv. Nurs. 2015, 71:895-908. 10.1111/jan.12568.
79. The Handbook of Innovation and Services: A Multi-disciplinary Perspective. 2011, Edward Elgar Publishing. F. Gallouj, F. Djellal (Eds.).
80. Gagliardi A.R., Lemieux-Charles L., Brown A.D., Sullivan T., Goel V. Barriers to patient involvement in health service planning and evaluation: an exploratory study. Patient Educ. Couns. 2008, 70:234-241.
81. Gallefoss F., Bakke P.S. Impact of patient education and self-management on morbidity in asthmatics and patients with chronic obstructive pulmonary disease. Respir. Med. 2000, 94:279-287. 10.1053/rmed.1999.0749.
82. Gambling T., Long A.F. The realisation of patient-centred care during a 3-year proactive telephone counselling self-care intervention for diabetes. Patient Educ. Couns. 2010, 80:219-226. 10.1016/j.pec.2009.11.007.
83. Geller G., Bernhardt B.A., Carrese J., Rushton C.H., Kolodner K. What do clinicians derive from partnering with their patients? A reliable and valid measure of personal meaning in patient care. Patient Educ. Couns. 2008, 72:293-300.
84. Gerrish K., Naisby A., Ismail M. Experiences of the diagnosis and management of tuberculosis: a focused ethnography of Somali patients and healthcare professionals in the UK. J. Adv. Nurs. 2013, 69:2285-2294. 10.1111/jan.12112.
85. Gibson A., Britten N., Lynch J. Theoretical directions for an emancipatory concept of patient and public involvement. Health 2012, 16:531-547. 10.1177/1363459312438563.
86. Godbold N.J. Tensions in compliance for renal patients - how renal discussion groups conceive knowledge and safe care. Health Sociol. Rev. 2013, 22:52-64. 10.5172/hesr.2013.22.1.52.
87. Gold S., Abelson J., Charles C. From rhetoric to reality: including patient voices in supportive cancer care planning. Health Expect. 2005, 8:195-209.
88. Gonzalez J.S., Safren S.A., Delahanty L.M., Cagliero E., Wexler D.J., Meigs J.B., Grant R.W. Symptoms of depression prospectively predict poorer self-care in patients with Type 2 diabetes. Diabet. Med. 2008, 25:1102-1107. (Original article). 10.1111/j.1464-5491.2008.02535.x.
89. Gorter K.J., Tuytel G.J., de Leeuw R.R., Bensing J.M., Rutten G.E.H.M. Opinions of patients with type 2 diabetes about responsibility, setting targets and willingness to take medication. A cross-sectional survey. Patient Educ. Couns. 2011, 84:56-61. 10.1016/j.pec.2010.06.019.
90. Gotsman I., Zwas D., Zemora Z., Jabara R., Admon D., Lotan C., Keren A. Clinical outcome of patients with chronic heart failure followed in a specialized heart failure center. Isr. Med. Assoc. J. 2011, 13:468-473.
91. Grady K.L., de Leon C.F.M., Kozak A.T., Cursio J.F., Richardson D., Avery E., Calvin J.E., Powell L.H. Does self-management counseling in patients with heart failure improve quality of life? Findings from the Heart Failure Adherence and Retention Trial (HART). Qual. Life Res. 2014, 23:31-38. 10.1007/s11136-013-0432-7.
92. Grantham G., McMillan V., Dunn S., Gassner L., Woodcock P. Patient self-medication - a change in hospital practice. J. Clin. Nurs. 2006, 15:962-970. 10.1111/j.1365-2702.2006.01398.x.
93. Greco M., Carter M., Powell R., Sweeney K., Jolliffe J., Stead J. Impact of patient involvement in general practice. Educ. Prim. Care 2006, 17:486-496.
94. Greenhalgh T. Patient and public involvement in chronic illness: beyond the expert patient. BMJ 2009, 338:b49. 10.1136/bmj.b49.
95. Greenhalgh T., Humphrey C., Woodard F. User Involvement in Health Care 2010, John Wiley & Sons.
96. Greenhalgh T., Robb N., Scambler G. Communicative and strategic action in interpreted consultations in primary health care: a Habermasian perspective. Soc. Sci. Med. 2006, 63:1170-1187. 10.1016/j.socscimed.2006.03.033.
97. Gregor F.M. Nurses' informal teaching practices: their nature and impact on the production of patient care. Int. J. Nurs. Stud. 2001, 38:461-470.
98. Grindley E.J., Zizzi S.J., Nasypany A.M. Use of protection motivation theory, affect, and barriers to understand and predict adherence to outpatient rehabilitation. Phys. Ther. 2008, 88:1529-1540.
99. Gustafsson S., Vikman I., Axelsson K., Sävenstedt S. Self-care for minor illness. Prim. Health Care Res. Dev. 2015, 16:71-78. 10.1017/S1463423613000522.
100. Gutteridge R., Dobbins K. Service user and carer involvement in learning and teaching: a faculty of health staff perspective. Nurse Educ. Today 2010, 30:509-514.
101. Hacihasanoğlu R., Goözuöm S. The effect of patient education and home monitoring on medication compliance, hypertension management, healthy lifestyle behaviours and BMI in a primary health care setting. J. Clin. Nurs. 2011, 20:692-705. 10.1111/j.1365-2702.2010.03534.x.
102. Haidet P., Kroll T.L., Sharf B.F. The complexity of patient participation: lessons learned from patients' illness narratives. Patient Educ. Couns. 2006, 62:323-329.
103. Haltiwanger E.P., Brutus H. A culturally sensitive diabetes peer support for older Mexican-Americans: diabetes peer support for older Mexican-Americans. Occup. Ther. Int. 2012, 19:67-75. 10.1002/oti.320.
104. Harwood M., Weatherall M., Talemaitoga A., Barber P.A., Gommans J., Taylor W., McPherson K., McNaughton H. Taking charge after stroke: promoting self-directed rehabilitation to improve quality of life - a randomized controlled trial. Clin. Rehabil. 2012, 26:493-501. 10.1177/0269215511426017.
105. Hawley S.T., Lantz P.M., Janz N.K., Salem B., Morrow M., Schwartz K., Liu L., Katz S.J. Factors associated with patient involvement in surgical treatment decision making for breast cancer. Patient Educ. Couns. 2007, 65:387-395. 10.1016/j.pec.2006.09.010.
106. Heinen M., Borm G., van der Vleuten C., Evers A., Oostendorp R., van Achterberg T. The Lively Legs self-management programme increased physical activity and reduced wound days in leg ulcer patients: results from a randomized controlled trial. Int. J. Nurs. Stud. 2012, 49:151-161. 10.1016/j.ijnurstu.2011.09.005.
107. Hibbard J.H., Mahoney E.R., Stock R., Tusler M. Do increases in patient activation result in improved self-management behaviors?. Health Serv. Res. 2007, 42:1443-1463. 10.1111/j.1475-6773.2006.00669.x.
108. Hickey G., Kipping C. Exploring the concept of user involvement in mental health through a participation continuum. J. Clin. Nurs. 1998, 7:83-88. 10.1046/j.1365-2702.1998.00122.x.
109. Hill L., Mueller M.-R., Roussos S., Hovell M., Fontanesi J., Hill J., Sales N. Opportunities for the use of decision aids in primary care. Fam. Med. 2009, 41:350-355.
110. Hillyer G.C., Hershman D.L., Kushi L.H., Lamerato L., Ambrosone C.B., Bovbjerg D.H., Mandelblatt J.S., Rana S., Neugut A.I. A survey of breast cancer physicians regarding patient involvement in breast cancer treatment decisions 2012, The Breast.
111. Honkanen E.O., Rauta V.M. What happened in Finland to increase home hemodialysis?. Hemodial. Int. 2008, 12:S11-S15. 10.1111/j.1542-4758.2008.00289.x.
112. Hood M.M., Nackers L.M., Kleinman B., Corsica J., Katterman S.N. Dietary self-monitoring in patients with obstructive sleep apnea. Behav. Med. 2014, 40:154-158. 10.1080/08964289.2013.842534.
113. Hunt C.W., Sanderson B.K., Ellison K.J. Support for diabetes using technology: a pilot study to improve self-management. Medsurg Nurs. 2014, 23:231.
114. Jahng K.H., Martin L.R., Golin C.E., DiMatteo M.R. Preferences for medical collaboration: patient-physician congruence and patient outcomes. Patient Educ. Couns. 2005, 57:308-314. 10.1016/j.pec.2004.08.006.
115. Jakobsson L., Holmberg L. Quality from the patient's perspective - a one-year trial. Int. J. Health Care Qual. Assur. 2012, 25:2.
116. Johnston B.M., Milligan S., Foster C., Kearney N. Self-care and end of life care - patients' and carers' experience a qualitative study utilising serial triangulated interviews. Support. Care Cancer 2012, 20:1619-1627.
117. Jones A. Creating history: documents and patient participation in nurse-patient interviews. Sociol. Health Illn. 2009, 31:907-923.
118. Kalichman S.C., Kalichman M.O., Cherry C., Swetzes C., Amaral C.M., White D., Jones M., Grebler T., Eaton L. Brief behavioral self-regulation counseling for HIV treatment adherence delivered by cell phone: an initial test of concept trial. AIDS Patient Care STDs 2011, 25:303-310. 10.1089/apc.2010.0367.
119. Kannampallil T.G., Waicekauskas K., Morrow D.G., Kopren K.M., Fu W.-T. External tools for collaborative medication scheduling. Cogn. Technol. Work 2013, 15:121-131. 10.1007/s10111-011-0190-7.
120. Kaplan S.H., Greenfield S. Characteristics of physicians with participatory decision... Ann. Intern. Med. 1996, 124:497.
121. Kasper J., Hoffmann F., Heesen C., Köpke S., Geiger F. Completing the third person's perspective on patients' involvement in medical decision-making: approaching the full picture. Z. Für Evidenz Fortbild. Qual. Im Gesundheitswesen 2012, 106:275-283. 10.1016/j.zefq.2012.04.005.
122. Keating N.L., Guadagnoli E., Landrum M.B., Borbas C., Weeks J.C. Treatment decision making in early-stage breast cancer: should surgeons match patients' desired level of involvement?. J. Clin. Oncol. 2002, 20:1473-1479. 10.1200/JCO.20.6.1473.
123. Kennedy A., Rogers A., Bowen R., Lee V., Blakeman T., Gardner C., Morris R., Protheroe J., Chew-Graham C. Implementing, embedding and integrating self-management support tools for people with long-term conditions in primary care nursing: a qualitative study. Int. J. Nurs. Stud. 2014, 51:1103-1113. 10.1016/j.ijnurstu.2013.11.008.
124. Kidd L., Hubbard G., O'Carroll R., Kearney N. Perceived control and involvement in self care in patients with colorectal cancer. J. Clin. Nurs. 2009, 18:2292-2300. 10.1111/j.1365-2702.2009.02802.x.
125. Kielmann T., Huby G., Powell A., Sheikh A., Price D., Williams S., Pinnock H. From awareness to involvement? A qualitative study of respiratory patients' awareness of health service change. Health Expect. 2011, 14:321-333. 10.1111/j.1369-7625.2010.00631.x.
126. King E.B., Schlundt D.G., Pichert J.W., Kinzer C.K., Backer B.A. Improving the skills of health professionals in engaging patients in diabetes-related problem solving. J. Contin. Educ. Health Prof. 2002, 22:94.
127. King E., Schlundt D., Pichert J., Kinzer C., Backer B. Improving the skills of health professionals in engaging patients in diabetes-related problem solving. J. Contin. Educ. Health Prof. 2002, 22:94-102.
128. King V.J., Davis M.M., Gorman P.N., Rugge J.B., Fagnan L.J. Perceptions of shared decision making and decision aids among rural primary care clinicians. Med. Decis. Making 2012, 32:636-644. 10.1177/0272989X11431961.
129. Kit Yee A.-Y., Moon G., Robertson T., DiCarlo L., Epstein M., Weis S., Reves R., Engel G. Early clinical experience with networked system for promoting patient self-management. Am. J. Manag. Care 2011, 17:e277-e287.
130. Körner M., Ehrhardt H., Steger A.-K., Bengel J. Interprofessional SDM train-the-trainer program "Fit for SDM": provider satisfaction and impact on participation. Patient Educ. Couns. 2012.
131. Kovar P.A., Allegrante J.P., MacKenzie C.R., Peterson M.G.E., Gutin B., Charlson M.E. Supervised fitness walking in patients with osteoarthritis of the knee: a randomized controlled trial. Ann. Intern. Med. 1992, 116:529-534. 10.7326/0003-4819-116-7-529.
132. Kremer H., Ironson G., Schneiderman N., Hautzinger M. "It's my body": does patient involvement in decision making reduce decisional conflict?. Med. Decis. Making 2007, 27:522-532.
133. Krumholz H.M., Amatruda J., Smith G.L., Mattera J.A., Roumanis S.A., Radford M.J., Crombie P., Vaccarino V. Randomized trial of an education and support intervention to prevent readmission of patients with heart failure. J. Am. Coll. Cardiol. 2002, 39:83-89. 10.1016/S0735-1097(01)01699-0.
134. Lam L.W., Lee D.T.F., Shiu A.T.Y. The dynamic process of adherence to a renal therapeutic regimen: perspectives of patients undergoing continuous ambulatory peritoneal dialysis. Int. J. Nurs. Stud. 2014, 51:908-916. 10.1016/j.ijnurstu.2013.10.012.
135. Lam L.W., Twinn S.F., Chan S.W.C. Self-reported adherence to a therapeutic regimen among patients undergoing continuous ambulatory peritoneal dialysis. J. Adv. Nurs. 2010, 66:763-773. 10.1111/j.1365-2648.2009.05235.x.
136. Larsson I., Liljedahl K., Gard G. Physiotherapists' experience of client participation in physiotherapy interventions: a phenomenographic study. Adv. Physiother. 2010, 12:217-223. 10.3109/14038196.2010.497543.
137. Larsson I., Sahlsten M., Sjöström B., Lindencrona C., Plos K. Patient participation in nursing care from a patient perspective: a Grounded Theory study. Scand. J. Caring Sci. 2007, 21:313-320.
138. Lau Y., Chow A., Chan S., Wang W. Fear of intimacy with helping professionals and its impact on elderly Chinese. Geriatr. Gerontol. Int. 2014, 14:474-480. 10.1111/ggi.12121.
139. Lawn S., Delany T., Sweet L., Battersby M.C., Skinner T. Control in chronic condition self-care management: how it occurs in the health worker-client relationship and implications for client empowerment. J. Adv. Nurs. 2014, 70:383-394. 10.1111/jan.12203.
140. Leske S., Strodl E., Hou X.-Y. Patient-practitioner relationships desired by overweight/obese adults. Patient Educ. Couns. 2012.
141. Li H., Jiang Y., Lin C.-C. Factors associated with self-management by people undergoing hemodialysis: a descriptive study. Int. J. Nurs. Stud. 2014, 51:208-216. 10.1016/j.ijnurstu.2013.05.012.
142. Lindström I., Gaston-Johansson F., Danielson E. Documentation of patients' participation in care at the end of life. Nurs. Ethics 2006, 13:394-403. 10.1191/0969733006ne883oa.
143. Lingerfelt K.L., Thornton K. An educational project for patients on hemodialysis to promote self-management behaviors of end stage renal disease. Nephrol. Nurs. J. 2011, 38:483-489.
144. Longtin Y., Sax H., Leape L.L., Sheridan S.E., Donaldson L., Pittet D. Patient participation: current knowledge and applicability to patient safety. Mayo Clin. Proc. 2010, 85:53-62. 10.4065/mcp.2009.0248.
145. Lorig K.R., Ritter P.L., Dost A., Plant K., Laurent D.D., Mcneil I. The expert patients programme online, a 1-year study of an Internet-based self-management programme for people with long-term conditions. Chronic Illn. 2008, 4:247-256. 10.1177/1742395308098886.
146. Lorig K.R., Ritter P., Stewart A.L., Sobel D.S., Byron William Brown J., Bandura A., Gonzalez V.M., Laurent D.D., Holman H.R. Chronic disease self-management program: 2-year health status and health care utilization outcomes. Med. Care 2001, 39:1217-1223. 10.2307/3767514.
147. Lu J.-F., Chi M.-J., Chen C.-M. Advocacy of home telehealth care among consumers with chronic conditions. J. Clin. Nurs. 2014, 23:811-819. 10.1111/jocn.12156.
148. Lundberg P.C., Thrakul S. Type 2 diabetes: how do Thai Buddhist people with diabetes practise self-management?. J. Adv. Nurs. 2012, 68:550-558. 10.1111/j.1365-2648.2011.05756.x.
149. Lunnela J., Kääriäinen M., Kyngäs H. The views of compliant glaucoma patients on counselling and social support: views of Compliant glaucoma patients. Scand. J. Caring Sci. 2010, 24:490-498. 10.1111/j.1471-6712.2009.00739.x.
150. Lyles C.R., Harris L.T., Le T., Flowers J., Tufano J., Britt D., Hoath J., Hirsch I.B., Goldberg H.I., Ralston J.D. Qualitative evaluation of a mobile phone and web-based collaborative care intervention for patients with type 2 diabetes. Diabetes Technol. Ther. 2011, 13:563-569.
151. Madigan C.D., Jolly K., Lewis A.L., Aveyard P., Daley A.J. A randomised controlled trial of the effectiveness of self-weighing as a weight loss intervention. Int. J. Behav. Nutr. Phys. Act. 2014, 11:125.
152. Mahmud A.J., Olander E., Wallenberg L., Haglund B.J.A. Health promoting settings in primary health care - "hä lsotorg": an implementation analysis. BMC Public Health 2010, 10:707-715. 10.1186/1471-2458-10-707.
153. Makoul G., Clayman M.L. An integrative model of shared decision making in medical encounters. Patient Educ. Couns. 2006, 60:301-312.
154. Maljanian R., Grey N., Staff I., Conroy L. Intensive telephone follow-up to a hospital-based disease management model for patients with diabetes mellitus. Dis. Manag. 2005, 8:15-25.
155. Manias E., Williams A. Managing pain in chronic kidney disease: patient participation in decision-making. J. Adv. Nurs. 2008, 61:201-210. 10.1111/j.1365-2648.2007.04488.x.
156. Marincowitz G.J.O. How to use participatory action research in primary care. Fam. Pract. 2003, 20:595-600.
157. Marsden J., Bradburn J., Consumers' Advisory Group for Clinical Trials, Lynda Jackson Macmillan Centre Patient and clinician collaboration in the design of a national randomized breast cancer trial. Health Expect. 2004, 7:6-17.
158. Martin Ginis K.A., Bray S.R. Application of the limited strength model of self-regulation to understanding exercise effort, planning and adherence. Psychol. Health 2010, 25:1147-1160. 10.1080/08870440903111696.
159. Martin L.R., DiMatteo M.R., Lepper H.S. Facilitation of patient involvement in care: development and validation of a scale. Behav. Med. 2001, 27(3):111-120.
160. Mays N., Pope C., Popay J. Systematically reviewing qualitative and quantitative evidence to inform management and policy-making in the health field. J. Health Serv. Res. Policy 2005, 10:6-20. 10.1258/1355819054308576.
161. McColl-Kennedy J.R., Vargo S.L., Dagger T.S., Sweeney J.C., Kasteren Y.v Health care customer value cocreation practice styles. J. Serv. Res. 2012, 15:370-389. 10.1177/1094670512442806.
162. McInnes E., Chaboyer W., Murray E., Allen T., Jones P. The role of patients in pressure injury prevention: a survey of acute care patients. BMC Nurs. 2014, 13:41.
163. McKinstry B. Do patients wish to be involved in decision making in the consultation? A cross sectional survey with video vignettes. BMJ 2000, 321:867-871. 10.1136/bmj.321.7265.867.
164. Mead H., Andres E., Katch H., Siegel B., Regenstein M. Gender differences in psychosocial issues affecting low-income, underserved patients' ability to manage cardiovascular disease. Womens Health Issues 2010, 20:308-315. 10.1016/j.whi.2010.05.006.
165. Millard L., Hallett C., Luker K. Nurse-patient interaction and decision-making in care: patient involvement in community nursing. J. Adv. Nurs. 2006, 55:142-150.
166. Mockford C., Staniszewska S., Griffiths F., Herron-Marx S. The impact of patient and public involvement on UK NHS health care: a systematic review. Int. J. Qual. Health Care 2012, 24:28-38. 10.1093/intqhc/mzr066.
167. Moira S., Belle Brown J., Freeman T. Patient-centered Medicine: Transforming the Clinical Method 2003, Radcliffe Publishing.
168. Molassiotis A., Morris K., Trueman I. The importance of the patient-clinician relationship in adherence to antiretroviral medication. Int. J. Nurs. Pract. 2007, 13:370-376. 10.1111/j.1440-172X.2007.00652.x.
169. Moran J., Bekker H., Latchford G. Everyday use of patient-centred, motivational techniques in routine consultations between doctors and patients with diabetes. Patient Educ. Couns. 2008, 73:224-231. 10.1016/j.pec.2008.07.006.
170. Morecroft C., Cantrill J., Tully M.P. Individual patient's preferences for hypertension management: a Q-methodological approach. Patient Educ. Couns. 2006, 61:354-362.
171. Morrow D.G., Conner-Garcia T., Graumlich J.F., Wolf M.S., McKeever S., Madison A., Davis K., Wilson E.A.H., Liao V., Chin C.-L., Kaiser D. An EMR-based tool to support collaborative planning for medication use among adults with diabetes: design of a multi-site randomized control trial. Contemp. Clin. Trials 2012, 33:1023-1032. 10.1016/j.cct.2012.05.010.
172. Murray E., Pollack L., White M., Lo B. Clinical decision-making: patients' preferences and experiences. Patient Educ. Couns. 2007, 65:189-196.
173. Murray E., Pollack L., White M., Lo B. Clinical decision-making: physicians' preferences and experiences. BMC Fam. Pract. 2007, 8:10.
174. Naik A.D., Kallen M.A., Walder A., Street R.L. Improving hypertension control in diabetes mellitus: the effects of collaborative and proactive health communication. Circulation 2008, 117:1361-1368. 10.1161/CIRCULATIONAHA.107.724005.
175. Naik A.D., Schulman-Green D., McCorkle R., Bradley E.H., Bogardus S.T. Will older persons and their clinicians use a shared decision-making instrument?. J. Gen. Intern. Med. 2005, 20:640-643.
176. Nelson E.C., Batalden P.B., Huber T.p., Mohr J.J., Godfrey M.M., Headrick L.A., Wasson J.H. Microsystems in health care: Part 1. Learning from high performing front-line clinical units. Jt. Comm. J. Qual. Patient Saf. 2002, 28:472-493.
177. Nelson E.C., Godfrey M.M., Batalden P.B., Berry S.A., Bothe A.E., McKinley K.E., Melin C.N., Muething S.E., Moore L.G., Wasson J.H., Nolan T.W. Clinical microsystems, Part 1. The building blocks of health systems. Jt. Comm. J. Qual. Patient Saf. 2008, 34:367-378.
178. Nelson P., Cox H., Furze G., Lewin R.J.P., Morton V., Norris H., Patel N., Elton P., Carty R. Participants' experiences of care during a randomized controlled trial comparing a lay-facilitated angina management programme with usual care: a qualitative study using focus groups. J. Adv. Nurs. 2013, 69:840-850. 10.1111/j.1365-2648.2012.06069.x.
179. Nicklett E.J., Liang J. Diabetes-related support, regimen adherence, and health decline among older adults. J. Gerontol. B: Psychol. Sci. Soc. Sci. 2010, 65B:390-399. 10.1093/geronb/gbp050.
180. Nielsen L.S., Angus J.E., Lapum J., Dale C., Kramer-Kile M., Abramson B., Marzolini S., Oh P., Price J., Clark A. "I can't just follow any particular textbook": immigrants in cardiac rehabilitation. J. Adv. Nurs. 2012, 68:2719-2729.
181. Nishita C., Cardazone G., Uehara D.L., Tom T. Empowered diabetes management life coaching and pharmacist counseling for employed adults with diabetes. Health Educ. Behav. 2012, 10.1177/1090198112465088.
182. Nordgren L. Value creation in health care services - developing service productivity: experiences from Sweden. Int. J. Public Sector Manag. 2009, 22:114-127. 10.1108/09513550910934529.
183. Nordgren L. The performativity of the service management discourse: "Value creating customers" in health care. J. Health Organ. Manag. 2008, 22:510-528. 10.1108/14777260810898723.
184. Nwasuruba C., Khan M., Egede L.E. Racial/ethnic differences in multiple self-care behaviors in adults with diabetes. J. Gen. Intern. Med. 2007, 22:115-120. 10.1007/s11606-007-0120-9.
185. O'Brien M.A., Whelan T.J., Charles C., Ellis P.M., Gafni A., Lovrics P., Hasler A., Dimitry S. Women's perceptions of their treatment decision-making about breast cancer treatment. Patient Educ. Couns. 2008, 73:431-436.
186. Orizio G., Schulz P., Gasparotti C., Caimi L., Gelatti U. The world of e-patients: a content analysis of online social networks focusing on diseases. Telemed. E-Health 2010, 16:1060-1066.
187. Paquay L., Verstraete S., Wouters R., Buntinx F., Vanderwee K., Defloor T., Van Gansbeke H. Implementation of a guideline for pressure ulcer prevention in home care: pretest-post-test study. J. Clin. Nurs. 2010, 19:1803-1811. 10.1111/j.1365-2702.2009.03170.x.
188. Park L.G., Howie-Esquivel J., Chung M.L., Dracup K. A text messaging intervention to promote medication adherence for patients with coronary heart disease: a randomized controlled trial. Patient Educ. Couns. 2014, 94:261-268. 10.1016/j.pec.2013.10.027.
189. Park Y.-H., Chang H., Kim J., Kwak J.S. Patient-tailored self-management intervention for older adults with hypertension in a nursing home. J. Clin. Nurs. 2013, 22:710-722. 10.1111/j.1365-2702.2012.04236.x.
190. Primožič S., Tavčar R., Avbelj M., Dernovšek M.Z., Oblak M.R. Specific cognitive abilities are associated with diabetes self-management behavior among patients with type 2 diabetes. Diabetes Res. Clin. Pract. 2012, 95:48-54. 10.1016/j.diabres.2011.09.004.
191. Protheroe J., Blakeman T., Bower P., Chew-Graham C., Kennedy A. An intervention to promote patient participation and self-management in long term conditions: development and feasibility testing. BMC Health Serv. Res. 2010, 10:206.
192. Raats C.J.I., van Veenendaal H., Versluijs M.M., Burgers J.S. A generic tool for development of decision aids based on clinical practice guidelines. Patient Educ. Couns. 2008, 73:413-417. 10.1016/j.pec.2008.07.038.
193. Ramfelt E., Lützén K. Parents with cancer: their approaches to participation in treatment plan decisions. Nurs. Ethics 2005, 12:143-155. 10.1191/0969733005ne771oa.
194. Robinson J.H., Callister L.C., Berry J.A., Dearing K.A. Patient-centered care and adherence: definitions and applications to improve outcomes. J. Am. Acad. Nurse Pract. 2008, 20:600-607. 10.1111/j.1745-7599.2008.00360.x.
195. Robinson L., Newton J.L., Jones D., Dawson P. Promoting self-management and adherence with strength and balance training for older people with long-term conditions: a mixed-methods study. J. Eval. Clin. Pract. 2014, 20:318-326. 10.1111/jep.12128.
196. Roblin D.W. The potential of cellular technology to mediate social networks for support of chronic disease self-management. J. Health Commun. 2011, 16:59-76.
197. Rothschild S.K., Martin M.A., Swider S.M., Tumialán Lynas C.M., Janssen I., Avery E.F., Powell L.H. Mexican American trial of community health workers: a randomized controlled trial of a community health worker intervention for Mexican Americans with type 2 diabetes mellitus. Am. J. Public Health 2014, 104:1540-1548.
198. Rotman-Pikielny P., Rabin B., Amoyal S., Mushkat Y., Zissin R., Levy Y. Participation of family members in ward rounds: attitude of medical staff, patients and relatives. Patient Educ. Couns. 2007, 65:166-170.
199. Saba G.W., Wong S.T., Schillinger D., Fernandez A., Somkin C.P., Wilson C.C., Grumbach K. Shared decision making and the experience of partnership in primary care. Ann. Fam. Med. 2006, 4:54-62.
200. Sacristán J.A. Patient-centered medicine and patient-oriented research: improving health outcomes for individual patients. BMC Med. Inform. Decis. Mak. 2013, 13:6. 10.1186/1472-6947-13-6.
201. Sahlsten M.J.M., Larsson I.E., Sjöström B., Lindencrona C.S.C., Plos K.A.E. Patient participation in nursing care: towards a concept clarification from a nurse perspective. J. Clin. Nurs. 2007, 16:630-637. 10.1111/j.1365-2702.2006.01660.x.
202. Sahlsten M.J.M., Larsson I.E., Sjöström B., Plos K.A.E. Nurse strategies for optimising patient participation in nursing care. Scand. J. Caring Sci. 2009, 23:490-497. 10.1111/j.1471-6712.2008.00649.x.
203. Salmon P., Hall G.M. Patient empowerment and control: a psychological discourse in the service of medicine. Soc. Sci. Med. 2003, 57:1969-1980. 10.1016/S0277-9536(03)00063-7.
204. Schneider A., Körner T., Mehring M., Wensing M., Elwyn G., Szecsenyi J. Impact of age, health locus of control and psychological co-morbidity on patients' preferences for shared decision making in general practice. Patient Educ. Couns. 2006, 61:292-298.
205. Schoenberg N.E., Bardach S.H., Manchikanti K.N., Goodenow A.C. Appalachian residents' experiences with and management of multiple morbidity. Qual. Health Res. 2011, 21:601-611. 10.1177/1049732310395779.
206. Scholl I., Kriston L., Dirmaier J., Buchholz A., Härter M. Development and psychometric properties of the Shared Decision Making Questionnaire - physician version (SDM-Q-Doc). Patient Educ. Couns. 2012.
207. Schulman-Green D.J., Naik A.D., Bradley E.H., McCorkle R., Bogardus S.T. Goal setting as a shared decision making strategy among clinicians and their older patients. Patient Educ. Couns. 2006, 63:145-151.
208. Schwappach D., Hochreutener M., Wernli M. Oncology nurses' perceptions about involving patients in the prevention of chemotherapy administration errors. Oncol. Nurs. Forum 2010, 37:E84-E91. 10.1188/10.ONF.E84-E91.
209. Shah R.B., Desai S.V., Gajjar B.M., Shah A.M. Factors responsible for noncompliance to drug therapy in the elderly and the impact of patient education on improving compliance. Drugs Ther. Perspect. 2013, 29:360-366. 10.1007/s40267-013-0075-3.
210. Sharoni S.K.A., Wu S.-F.V. Self-efficacy and self-care behavior of Malaysian patients with type 2 diabetes: a cross sectional survey. Nurs. Health Sci. 2012, 14:38-45. 10.1111/j.1442-2018.2011.00658.x.
211. Simonet D. The new public management theory and the reform of European health care systems: an international comparative perspective. Int. J. Public Admin. 2011, 34:815-826. 10.1080/01900692.2011.603401.
212. Singh S., Butow P., Charles M., Tattersall M. Shared decision making in oncology: assessing oncologist behaviour in consultations in which adjuvant therapy is considered after primary surgical treatment. Health Expect. 2010, 13:244-257. 10.1111/j.1369-7625.2009.00587.x.
213. Skinner T.C., Bruce D.G., Davis T.M.E., Davis W.A. Personality traits, self-care behaviours and glycaemic control in Type 2 diabetes: the Fremantle Diabetes Study Phase II. Diabet. Med. 2014, 31:487-492. 10.1111/dme.12339.
214. Smithson W.H., Hukins D., Buelow J.M., Allgar V., Dickson J. Adherence to medicines and self-management of epilepsy: a community-based study. Epilepsy Behav. 2013, 26:109-113. 10.1016/j.yebeh.2012.10.021.
215. Smith V.A., DeVellis B.M., Kalet A., Roberts J.C., DeVellis R.F. Encouraging patient adherence: primary care physicians' use of verbal compliance-gaining strategies in medical interviews. Patient Educ. Couns. 2005, 57:62-76.
216. Sniehotta F.F., Scholz U., Schwarzer R., Fuhrmann B., Kiwus U., Völler H. Long-term effects of two psychological interventions on physical exercise and self-regulation following coronary rehabilitation. Int. J. Behav. Med. 2005, 12:244-255.
217. Soto N.I., Bazyler L.R., O'Toole M.L., Brownson C.A., Pezzullo J.C. Starting a diabetes self-management program in a free clinic. Diabetes Educ. 2007, 33:166S-171S.
218. Steurer-Stey C., Storch M., Benz S., Hobi B., Steffen-Bürgi B., Steurer J., Puhan M.A. Motivational training improves self-efficacy but not short-term adherence with asthma self-management: a randomized controlled trial. Prim. Health Care Res. Dev. 2015, 16:32-41. 10.1017/S1463423613000480.
219. Stevenson F.A. General practitioners' views on shared decision making: a qualitative analysis. Patient Educ. Couns. 2003, 50:291-293.
220. Stock S., Drabik A., Buscher G., Graf C., Ullrich W., Gerber A., Lauterbach K.W., Lungen M. German diabetes management programs improve quality of care and curb costs. Health Aff. (Millwood) 2010, 29:2197-2205. 10.1377/hlthaff.2009.0799.
221. Street R.L., Gordon H.S. The clinical context and patient participation in post-diagnostic consultations. Patient Educ. Couns. 2006, 64:217-224.
222. Street R.L., Gordon H.S., Ward M.M., Krupat E., Kravitz R.L. Patient participation in medical consultations: why some patients are more involved than others. Med. Care 2005, 43:960-969.
223. Szymczyk I., Wojtyna E., Lukas W., Kepa J., Pawlikowska T. How does gender influence the recognition of cardiovascular risk and adherence to self-care recommendations? A study in polish primary care. BMC Fam. Pract. 2013, 14:165.
224. Tawalbeh L.I., Ahmad M.M. The effect of cardiac education on knowledge and adherence to healthy lifestyle. Clin. Nurs. Res. 2014, 23:245-258.
225. Theroux R. Women's decision making during the menopausal transition. J. Am. Acad. Nurse Pract. 2010, 22:612-621.
226. Thomas J., Harden A. Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med. Res. Methodol. 2008, 8:45. 10.1186/1471-2288-8-45.
227. Timmermans L.M., van der Maazen R.W.M., van Spaendonck K.P.M., Leer J.W.H., Kraaimaat F.W. Enhancing patient participation by training radiation oncologists. Patient Educ. Couns. 2006, 63:55-63.
228. Trief P.M., Izquierdo R., Eimicke J.P., Teresi J.A., Goland R., Palmas W., Shea S., Weinstock R.S. Adherence to diabetes self care for White, African-American and Hispanic American telemedicine participants: 5 year results from the IDEATel project. Ethn. Health 2013, 18:83-96. 10.1080/13557858.2012.700915.
229. Tritter J.Q., McCallum A. The snakes and ladders of user involvement: moving beyond Arnstein. Health Policy 2006, 76:156-168. 10.1016/j.healthpol.2005.05.008.
230. Tsuchiya M., Horn S., Ingham R. Information provision and problem-solving processes in Japanese breast cancer survivors with lymphoedema symptoms: Japanese BC survivors with lymphoedema symptoms. Scand. J. Caring Sci. 2012, 26:53-60. 10.1111/j.1471-6712.2011.00903.x.
231. Turk M.W., Elci O.U., Wang J., Sereika S.M., Ewing L.J., Acharya S.D., Glanz K., Burke L.E. Self-monitoring as a mediator of weight loss in the SMART randomized clinical trial. Int. J. Behav. Med. 2013, 20:556-561. 10.1007/s12529-012-9259-9.
232. Turton P., Cooke H. Meeting the needs of people with cancer for support and self-management. Complement. Ther. Nurs. Midwifery 2000, 6:130-137.
233. Tveiten S., Knutsen I. Empowering dialogues - the patients' perspective. Scand. J. Caring Sci. 2011, 25:333-340. 10.1111/j.1471-6712.2010.00831.x.
234. Valinsky L., Mishali M., Endevelt R., Preiss R., Dopelt K., Heymann A.D. Reducing resistance to treatment, through group intervention, improves clinical measurements in patients with type 2 diabetes. BMC Endocr. Disord. 2013, 13:61.
235. van Campen C., Sixma H.J., Kerssens J.J., Peters L., Rasker J.J. Assessing patients' priorities and perceptions of the quality of health care: the development of the QUOTE-Rheumatic-Patients instrument. Br. J. Rheumatol. 1998, 37:362-368.
236. van der Weijden T., Boivin A., Burgers J., Schünemann H.J., Elwyn G. Clinical practice guidelines and patient decision aids. An inevitable relationship. J. Clin. Epidemiol. 2012, 65:584-589. 10.1016/j.jclinepi.2011.10.007.
237. van Dijk S., Scharloo M., Kaptein A.A., Thong M.S.Y., Boeschoten E.W., Grootendorst D.C., Krediet R.T., Dekker F.W., for the NECOSAD Study Group Patients' representations of their end-stage renal disease: relation with mortality. Nephrol. Dial. Transplant. 2009, 24:3183-3185. 10.1093/ndt/gfp184.
238. Van Hecke A., Grypdonck M., Beele H., Vanderwee K., Defloor T. Adherence to leg ulcer lifestyle advice: qualitative and quantitative outcomes associated with a nurse-led intervention: adherence to leg ulcer lifestyle advice. J. Clin. Nurs. 2011, 20:429-443. 10.1111/j.1365-2702.2010.03546.x.
239. Vervloet M., van Dijk L., de Bakker D.H., Souverein P.C., Santen-Reestman J., van Vlijmen B., van Aarle M.C.W., van der Hoek L.S., Bouvy M.L. Short- and long-term effects of real-time medication monitoring with short message service (SMS) reminders for missed doses on the refill adherence of people with Type 2 diabetes: evidence from a randomized controlled trial. Diabet. Med. 2014, 31:821-828. 10.1111/dme.12439.
240. Vetter-Smith M., LeMaster J., Olsberg J., Kruse R., Day T., Mehr D. Providing diabetes self-management support in rural primary care clinics with nurse partners. West. J. Nurs. Res. 2012, 34:1023-1042. 10.1177/0193945911436106.
241. Vitacca M., Rossin M., Assoni G., Baratti D., Zanardini M., Ruocco G., Quinto T., Bernasconi A., Scalvini S., Colombo F. Tele-assistance respiratory card: feasibility of self-reporting in patients with severe COPD. Telemed. E-Health 2012, 19:99-103. 10.1089/tmj.2012.0089.
242. Walker R.J., Gebregziabher M., Martin-Harris B., Egede L.E. Independent effects of socioeconomic and psychological social determinants of health on self-care and outcomes in Type 2 diabetes. Gen. Hosp. Psychiatry 2014, 36:662-668. 10.1016/j.genhosppsych.2014.06.011.
243. Walker R.J., Smalls B.L., Hernandez-Tejada M.A., Campbell J.A., Davis K.S., Egede L.E. Effect of diabetes fatalism on medication adherence and self-care behaviors in adults with diabetes. Gen. Hosp. Psychiatry 2012, 34:598-603. 10.1016/j.genhosppsych.2012.07.005.
244. Wang C., Abbott L. Development of a community-based diabetes and hypertension preventive program. Public Health Nurs. 1998, 15:406-414.
245. Waterworth S., Luker K. Reluctant collaborators: do patients want to be involved in decisions concerning care?. J. Adv. Nurs. 1990, 15:971-976. 10.1111/j.1365-2648.1990.tb01953.x.
246. Watson D.B., Thomson R.G., Murtagh M.J. Professional centred shared decision making: patient decision aids in practice in primary care. BMC Health Serv. Res. 2008, 8:5.
247. Wielawski I.M. A piece of my mind. Engaging to no avail. JAMA 2014, 312:2097-2098. 10.1001/jama.2014.12935.
248. Williams A., Manias E. Exploring motivation and confidence in taking prescribed medicines in coexisting diseases: a qualitative study. J. Clin. Nurs. 2014, 23:471-481. 10.1111/jocn.12171.
249. Williams B., Warren S., McKim R., Janzen W. Caller self-care decisions following teletriage advice. J. Clin. Nurs. 2012, 21:1041-1050. 10.1111/j.1365-2702.2011.03986.x.
250. Wills C.E., Holmes-Rovner M. Patient comprehension of information for shared treatment decision making: state of the art and future directions. Patient Educ. Couns. 2003, 50:285-290.
251. Wilson P.M., Kendall S., Brooks F. Nurses' responses to expert patients: the rhetoric and reality of self-management in long-term conditions: a grounded theory study. Int. J. Nurs. Stud. 2006, 43:803-818. 10.1016/j.ijnurstu.2005.10.011.
252. Wittmann-Price R.A., Fisher K.M. Patient decision aids: tools for patients and professionals. Am. J. Nurs. 2009, 109:60-63.
253. Wright D., Corner J., Hopkinson J., Foster C. Listening to the views of people affected by cancer about cancer research: an example of participatory research in setting the cancer research agenda. Health Expect. 2006, 9:3-12. 10.1111/j.1369-7625.2006.00353.x.
254. Wunderlich T., Cooper G., Divine G., Flocke S., Oja-Tebbe N., Stange K., Lafata J.E. Inconsistencies in patient perceptions and observer ratings of shared decision making: the case of colorectal cancer screening. Patient Educ. Couns. 2010, 80:358-363. 10.1016/j.pec.2010.06.034.
255. Wu S.-F.V., Tung H.-H., Liang S.-Y., Lee M.-C., Yu N.-C. Differences in the perceptions of self-care, health education barriers and educational needs between diabetes patients and nurses. Contemp. Nurse 2014, 46:187-196. 10.5172/conu.2014.46.2.187.