Patients' involvement in improving cancer care: Experiences in three years of collaboration between members of patient associations and health care professionals

Patient Education and Counseling

Volumn 61, Issue 1, 2006, Pages 65-71

  Carlsson, Christina ^a,b   Nilbert, Mef ^a   Nilsson, Kerstin ^c  

^a LUND UNIVERSITY HOSPITAL   (Sweden)

^b HALMSTAD HOSPITAL   (Sweden)

^c UNIVERSITY OF SKÖVDE   (Sweden)

Author keywords

Cancer; Collaboration; Consumer involvement; Health care professionals; Patient association

Indexed keywords

ARTICLE; CANCER; CANCER PATIENT; CONTROLLED STUDY; DOCTOR PATIENT RELATION; HEALTH CARE ORGANIZATION; HEALTH CARE SYSTEM; HEALTH PRACTITIONER; HUMAN; INFORMATION PROCESSING; MAJOR CLINICAL STUDY; PATIENT ATTITUDE; PATIENT CARE; PATIENT PARTICIPATION; PRIORITY JOURNAL;

COOPERATIVE BEHAVIOR; HUMANS; NEOPLASMS; PATIENT PARTICIPATION; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONS; SWEDEN;

EID: 33644922059     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2005.02.008     Document Type: Article

References (34)

1. V.A. Entwistle, M.J. Renfrew, S. Yearley, J. Forrester, and T. Lamont Lay perspectives: advantages for health research Br Med J 316 1998 463 466
2. S. Oliver, R. Milne, J. Bradburn, P. Buchanan, L. Kerridge, T. Walley, and J. Gabbay Involving consumers in a needs-led research programme: a pilot project Health Expect 4 2001 18 28
3. H. Thornton Patient perspective on involvement in cancer research in the UK Eur J Cancer Care 3 2002 205 209
4. D. O'Hair Research traditions in provider-consumer interaction: implications for cancer care Patient Educ Couns 1 2003 5 8
5. T. Stevens, D. Wilde, J. Hunt, and S. Ahmedzai Overcoming the challenges to consumers' involvement in cancer research Health Expect 6 2003 81 88
6. P. Dolan, R. Cookson, and B. Ferguson Effect of discussion and deliberation on the public's views of priority setting in health care: focus group study Br Med J 318 1999 916 919
7. M. Kelson Consumer caollaboration, patient-defined outcomes and the preparation of Cochrane Reviews Health Expect 2 1999 129 135
8. P. Rosen, and I. Karlberg Opinions of Swedish citizens, health care politicians, administrators and doctors on rationing and health care financing Health Expect 2 2002 148 155
9. J. Wilson Acknowledging the expertise of patients and their organizations Br Med J 319 1999 771 774
10. S. Pichard, M. Marshall, A. Roger, R. Sheaff, D. Phil, B. Sibbald, S. Campbell, S. Halliwell, and M. Roland Users' involvement in clinical governance Health Expect 3 2002 187 189
11. P. Skoglund, D. Isacson, and K. Kjellgren Analgesic medication - communication at pharmacies Patient Educ Couns 2 2003 144 161
12. A.D. Weisman Coping with cancer 1979 McGraw-Hill New York
13. J. Johnson, and J. Klein I can cope. Staying healthy with cancer 1988 DCI Publishing Minnesota
14. J. Holland, and J. Rowland Handbook of psychooncology Psychological care of the patient with cancer 1998 Oxford University Press Oxford
15. R.S. Lazarus Psychological stress and coping process 1996 MacGraw Hill Toronto
16. B.A. Mattews, F. Baker, and R.L. Spillers Oncology and patient request for support services Support Care Cancer 10 2004 731 738
17. C. Lampic, and P.O. Sjöden Patients' and staff perceptions of cancer patients' psychological concerns and needs Acta Oncol 39 2000 9 21
18. M. Sprangers, and N. Aaronson The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review J Clin Epidemiol 45 1992 743 760
19. J.R. Jacobs, R. Banthia, G.R. Sadler, J.W. Varni, V.L. Malcarne, H.L. Greenbergs, J. Schmidt, and P.A. Johnstone Problems associated with prostate cancer: differences of opinions among health care providers, patients and spouses J Cancer Educ 17 2002 33 36
20. C. Mortimer, R. MacDonald, D. Martin, I. McMillan, J. Ravey, and W. Steedman A focus group of health care professionals' views on phantom sensation, phantom pain and the need for patient information Patient Educ Couns 54 2004 221 226
21. The National Swedish Board of Health and Welfare, The patient's rights [in Swedish], SOU 1997:154. Available from http://www.sos.se [Retrieved May 2004].
22. Database: Pion (Patient Information Online). Available from www.pion.net/pion/pion4.exe [Retrieved May 2004].
23. C. Carlsson, D. Killander, M. Omne-Pontén, and U.B. Satterlund Larsson Voluntary associations for cancer patients in Sweden: supportive activities Support Care Cancer 9 2001 581 590
24. F. Wijkström, and T. Lundström The voluntary sector. Organisations in civil society 2002 Sober Förlag Stockholm [in Swedish]
25. U. Sätterlund Larsson Being involved. Patient participation in health care (diss) vol. 36 1989 Linköping Studies in Arts and Science Linköping
26. T.J. Deblanco Quality of care through patient's eyes Br Med J 31 1996 832 833
27. M. Karlsson, E. Jeppsson Grassman, and H. Hansson Self-help groups in welfare state. Treatment program or voluntary action Non-Profit Manag Leadership 2 2002 155 167
28. P.A. Field, and J.M. Morse Nursing research: the application of qualitative approaches 1992 Chapman and Hall New York
29. D. Silverman Interpreting qualitative data. Methods for analyzing talks, text and interaction 1993 Sage London
30. D.L. Morgan Pearls, pith and provocation. Qualitative content analysis: a guide to paths not taken Qual Health Res 3 1993 112 121
31. Weber RP Basic content analysis (Sage University Papers Series on Quantitative Applications in the Social Sciences Series No. 07-049) 2nd ed. 1990 Newbury Park CA
32. The Swedish statute book (SFS), Health and sick care legislation, revised version 2004:176. Available from http://www.notisum.se [Retrieved May 2004].
33. H. Sandberg Being allowed to breath and able to meet. Preconditions for goal-orientation in open child and youth psychiatric care (diss) Uppsala studies in education 1995 Almqvist & Wiksell International Stockholm [in Swedish]
34. S. Creighton, C. Minto, L. Mei Liao, J. Andersen, and M. Simmonds Meseting between experts: evaluation of the first UK forum for lay and professionals experts in intersex Patient Educ Couns 54 2004 153 157