The snakes and ladders of user involvement: Moving beyond Arnstein

Health Policy

Volumn 76, Issue 2, 2006, Pages 156-168

  Tritter, Jonathan Quetzal ^a   McCallum, Alison ^b  

^a UNIVERSITY OF WARWICK   (United Kingdom)

^b NATIONAL PUBLIC HEALTH INSTITUTE   (Finland)

Author keywords

Citizen engagement; Expert patient; Health service reform; Patient empowerment; Patient participation; User involvement

Indexed keywords

CANADA; CITIZENSHIP; FINLAND; HEALTH CARE ORGANIZATION; HEALTH CARE PERSONNEL; HEALTH PRACTITIONER; HEALTH SERVICE; HUMAN; KNOWLEDGE; NETHERLANDS; REVIEW; SWEDEN; TAX; UNITED KINGDOM; VOLUNTARY WORKER;

EID: 33644701044     PISSN: 01688510     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.healthpol.2005.05.008     Document Type: Article

References (87)

1. S. Vallgårda, A. Krasnick, and K. Vrangbæk Denmark: healthcare systems in transition 2001 European Observatory on Healthcare Systems Copenhagen p. 100
2. P. Vos Health and healthcare in The Netherlands 2002 Elsevier gezonheidszorg Maarssen
3. S. Arnstein A ladder of citizen participation Journal of the American Institute of Planners 35 1969 216 224
4. H. Blaauwbroek Patient organizations and patients' rights E. Van Rooij L. Kodener T. Rijsemus G. Schrijvers Health and healthcare in The Netherlands 2002 Elsevier gezonheidszorg Maarssen 323 337
5. Department of Health. The NHS Plan (Cm 4818-I). London:Department of Health; 2000.
6. J. Abelson, and P-G. Forest Towards more meaningful, informed and effective public consultation 2004 Canadian Health Services Research Foundation Ottawa
7. C. Fooks Rhetoric, fallacy or dream? Examining the accountability of Canadian healthcare to citizens 2004 Canadian Policy Research Networks Ottawa
8. D. Wilcox The guide to effective participation 1994 Joseph Rowntree Foundation London
9. D. Burns, R. Hamilton, and P. Hogget The politics of decentralisation 1994 MacMillan Basingstoke
10. S. Sutton, and S. Kemp Children as partners in neighbourhood placemaking: Lessons from intergenerational design charrettes Journal of Environmental Psychology 22 1-2 2002 171 189
11. R. Hart Children's participation 1992 UNICEF International Child Development Centre Florence
12. G. Choguill A ladder of community participation for underdeveloped countries Habitat International 20 3 1996 431 444
13. M. Barnes Public expectations: From paternalism to partnership, changing relationships in health and health services 1999 Nuffield Trust/University of Cambridge London, Judge Institute for Management Studies
14. Bond G. Psychiatric rehabilitation outcome. in: Publication Committee of IAPSRS (ed.) An Introduction to psychiatric rehabilitation (490-494). Columbia:MD;International Association of Psychosocial Rehabilitation Services; 1994.
15. C. Charles, and S. DeMaio Lay participation in health care decision making: A conceptual framework Journal of Health Politics, Policy and Law 18 4 1993 881 903
16. C. Lupton, S. Peckham, and P. Taylor Managing public involvement in health care purchasing 1998 Open University Press Buckingham
17. D. Pilgrim, and L. Waldron User involvemetn in mental health service development: How far can it go? Journal of Mental Health 7 1 1998 95 104
18. C. Bruch The New 'Public': The globalization of public participation 2002 Environmental Law Institute Washington
19. K. Donelan, R. Schoen, C. Davis, and K. Binns The cost of health system change: public discontent in five nations Health Affairs 18 3 1999 206 216
20. B. Sang, and C. Dabbs Will CPPIH be democratically diverse? British Journal of Healthcare Management 9 3 2003
21. Barnet Community Health Council. Annual Report 1999/2000. Barnet:Barnet CHC; 2001.
22. Department of Health. Local Voices. London:NHS Management Executive; 1992.
23. Department of Health. The Patient's Charter. London:Department of Health; 1991.
24. Department of Health. The Patient's Charter and You. Leeds:Department of Health; 1995.
25. J. Tritter The citizen's charter: opportunities for users' perspectives The Political Quarterly 654 1994 397 414
26. Department of Health. The Expert Patient. Leeds:Department of Health; 2001.
27. Department of Health. Building on the Best: Choice, Responsiveness and Equity in the NHS (Cm 6079). London:HMSO; 2003.
28. Department of Health. NHS Improvement Plan. Leeds:Department of Health; 2004.
29. W. Ray Policy and program analysis using administrative databases Annals of Internal Medicine 127 8 1997 712 718
30. N. North, and S. Werko Widening the debate? Consultation and participation in local healthcare planning in the English and Swedish health services International Journal of Health Services 32 4 2002 781 798
31. Department of Health. Patient and Public Involvement in the New NHS. Leeds:Department of Health; 1999.
32. Williams M. Why doesn't the government respond to the participating public? 2002. Vanguard Online (www.vanguardonline.f9.co.uk/030101.doc accessed on 8.11.04).
33. Goode S. Researching a hard-to-access and vulnerable population: some considerations on researching drug and alcohol-using mothers. Sociological Research Online, 5(1);2000. (www.socresonline.org.uk/5/1/goode.html accessed on 8.11.04).
34. M. Poland, M. Dombrowski, J. Ager, and R. Sokol Punishing pregnant drug users: enhancing the flight from care Drug Alcohol Depend 31 3 1993 199 203
35. B. Schulze, and M. Angermeyer Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals Social Science and Medicine 56 2 2003 299 312
36. R. Klein The first wave of NHS foundation trusts British Medical Journal 328 7452 2004 1332
37. M. Heikkilä, and I. Julkunen Obstacles to increased user involvement in social services 2003 STAKES Helsinki
38. C. Campbell, and C. McLean Ethnic identities, social capital and health inequalities: factors shaping African-Caribbean participation in local community networks in the UK Social Science and Medicine 55 4 2002 643 657
39. Williams M. Discursive democracy and new labour: five ways in which decision-makers manage citizen agendas in public participation initiatives, Sociological Research Online 9(3);2004. (www.socresonline.or.uk/9/3/williams. html, accessed on 8.11.04).
40. D. Osborne, and T. Gaebler Reinventing government 1992 Addison-Wesley New York
41. EUROPA Communiques de Presse Rapid. Verdict of the Court of Justice on reimbursement of hospital treatments costs incurred in the single market (IP/01/995); 2001. (www.europa.eu.int/rapid/pressReleasesAction.do?reference=IP/ 01/995&format=HTML&aged=1&Language=EN, accessed on 8.11.04).
42. European Union. Charter of Fundamental Rights of the European Union, 2000 O.J. (C 364)1; 2000.
43. House of Commons Social Services Committee. Griffiths NHS Management Inquiry Report. London:HMSO; 1984.
44. Department of Health. Working for patients (Cm 555). London:HMSO; 1989.
45. M. Marinker Sense and sensibility in healthcare 1996 BMJ Publishing Group London
46. London Patient Choice Project (www.londonchoice.nhs.uk, accessed on 28.12.04).
47. D. Longley Health care constitutions 1996 Cavendish Publishing London
48. S. Croft, and P. Beresford User involvement, citizenship and social policy Critical Social Policy 9 26 1993 5 18
49. S. Croft, and P. Beresford Whose empowerment? Equalising the competing discourses in community care R. Jack Empowerment in community care 1995 Chapman Hall London 59 73
50. G. Feldberg, and R. Vipond The virus of consumerism D. Drache T. Sullivan Health reform: public success private failure 1999 Routledge London 448 464
51. M. Ignatieff The myth of citizenship R. Beiner Theorizing citizenship 1995 SUNY Press Albany
52. S. Kerrison, and A. Pollock Absent voices in the reform of UK nursing home regulation Health and Social Care in the Community 9 2001 490 494
53. P. Ovaskainen, P. Rautava, A. Ojanlatva, J. Pakkila, and R. Paivarinta Analysis of primary healthcare utilisation in south-western Finland: A tool for management Health Policy 66 3 2003 229 238
54. I. Vohlonen, R. Ihalainen, R. Saltman, T. Karhunen, J. Palmunen, and J. Kinnunen Improving health security: a pilot study from Finland linking disability and health expenditures Health Policy 67 2 2004 119 127
55. J. Tritter, N. Daykin, S. Evans, and M. Sanidas Improving cancer services through patient involvement 2003 Radcliffe Medical Press Oxford
56. D. James, and M. Willitts Board membership. House of unrepresentatives Health Service Journal 110 5732 2000 32 33
57. J. Wallcraft, J. Read, and A. Sweeney On our own terms 2003 Sainsbury Centre for Mental Health London
58. R. Quigley, S. Cavanagh, D. Harrison, and L. Taylor Clarifying health impact assessment, integrated impact assessment and health needs assessment 2004 Health Development Agency London
59. L. Gilson Trust and the development of healthcare as a social institution Social Science and Medicine 56 7 2003 1453 1468
60. G. Mooney Responding to the Health Reform Committee. SPHERe Debating Paper 2003 Curtin University Perth
61. L. Walker, and L. Gilson 'We are bitter but we are satisfied': Nurses as street-level bureaucrats in South Africa Social Science and Medicine 59 6 2004 1251 1261
62. G. Chanan Searching for Solid Foundations Community Involvement and Urban Policy 2003 Community Development Foundation London
63. Navruzov Y, Rose A, Shelley W. Role of Partnership in Modern Local Government, Eighth Annual Conference of the Network of Institutes and Schools of Public Administration in Central and Eastern Europe, Budapest; 2000.
64. L. Spencer, G. Elam, and R. Turner It is our money anyway 2000 DETR Rotherham
65. J. Tritter, N. Daykin, M. Sanidas, V. Barley, S. Evans, and J. McNeill Divided Care and the Third Way: User involvement in statutory and voluntary sector cancer services Sociology of Health and Illness 25 5 2003 429 456
66. de Tocqueville A. Democracy in America. vol. 1,. Reeve H. (trans.), Madison:University of Virginia.
67. R. Rajani, and A. Petren Raising awareness for child rights A. Petren J. Himes Child rights 2000 Radda Barnen and UNICEF Stockholm
68. L. Garnett, B. Rooney, R. Leek, and A. Booth Asking the experts - a guide to involving people in shaping health and social care services 2001 Community Care Needs Assessment Project Hull
69. S. Bryan, T. Roberts, C. Heginbotham, and A. McCallum QALY-maximisation and public preferences: results from a general population survey Health Economics 11 8 2002 679 693
70. R. Crisp, T. Hope, and D. Ebbs The Asbury draft policy on ethical use of resources British Medical Journal 312 7045 1996 1528 1531
71. D. Pickersgill, and T. Stanton Making sense of the NHS complaints and disciplinary procedures 1997 Radcliffe Medical Press Oxford
72. Bradford District NHS Trust, Patient Advice and Liaison Service. (www.bdct.nhs.uk/nursing/pals.htm#update, accessed 18.5.05).
73. Bastian H. The power of sharing knowledge: Consumer participation in the Cochrane Collaboration. reprinted in Informed Health Online; 1994: (www.informedhealthonline.org/item.aspx?tabid=37 accessed on 8.11.04).
74. R. Johanson, C. Rigby, M. Newburn, M. Stewart, and P. Jones Suggestions in maternal and child health for the National Technology Assessment Programme: a consideration of consumer and professional priorities Journal of the Royal Society of Health 122 1 2002 50 54
75. NHS Research and Development Forum Research Governance Working Group. Examples of Good Practice: Peer Review; 2003: (www.rdforum.nhs.uk/workgroups/ governance.htm accessed on 8.11.04).
76. S. Greenfield, P. Anderson, P. Gill, R. Loudon, J. Skelton, and N. Ross Community voices: views on the training of future doctors in Birmingham, UK Patient Education and Counseling 45 1 2001 43 50
77. Involve Strategic Plan 2003-2006: Creating the Expert Resource. Involve: Eastleigh Hampshire; 2003: (www.invo.org.uk/pdfs/INVOLVE STRATEGIC PLAN 2003.pdf accessed on 19.5.05).
78. J. Jordan, T. Dowswell, S. Harrison, R. Lilford, and M. Mort Health needs assessment: Whose priorities? Listening to users and the public British Medical Journal 316 7145 1998 1668 1670
79. P. Dolan, R. Cookson, and B. Ferguson Effect of discussion and deliberation on the public's views of priority setting in healthcare: focus group study British Medical Journal 318 7188 1999 916 919
80. A. Coulter The autonomous patient 2002 Nuffield Trust London
81. J. Muir Gray The resourceful patient 2002 Rosetta Press Oxford
82. J. Shaw, and M. Baker 'Expert patient' - dream or nightmare? British Medical Journal 328 2004 723 724
83. Donaldson L. Launch of Expert Patient's Report; 2001: (http://www.ohn.gov.uk/ohn/people/expert.htm accessed 8.11.04).
84. L. Prior Belief, knowledge and expertise: The emergence of the lay expert in medical sociology Sociology of Health and Illness 25 Silver Anniversary 2003 41 57
85. M. Dresher The mathematics of games of strategy: theory and applications 1981 Dover New York
86. J. Tudor-Hart The inverse care law Lancet I 1971 405 412
87. Tudor-Hart J. The National Health Service as a precursor for future society. Occasional Paper. Cardiff:Welsh Public Health Association; 2003.