An integrative model of shared decision making in medical encounters

Patient Education and Counseling

Volumn 60, Issue 3, 2006, Pages 301-312

  Makoul, Gregory ^a   Clayman, Marla L ^a  

^a NORTHWESTERN UNIVERSITY   (United States)

Author keywords

Physician patient relationship; Shared decision making

Indexed keywords

CITATION ANALYSIS; CODING; CONFERENCE PAPER; DECISION MAKING; HUMAN; PRIORITY JOURNAL; RESEARCH; SELF CONCEPT; SHARED DECISION MAKING; SYSTEMATIC REVIEW; TEACHING;

COMMUNICATION; COOPERATIVE BEHAVIOR; DECISION MAKING; HUMANS; INFORMED CONSENT; MODELS, PSYCHOLOGICAL; NEGOTIATING; OUTCOME ASSESSMENT (HEALTH CARE); PATERNALISM; PATIENT EDUCATION; PATIENT PARTICIPATION; PATIENT-CENTERED CARE; PHYSICIAN'S ROLE; PHYSICIAN-PATIENT RELATIONS; PROBLEM SOLVING; RISK ASSESSMENT; SELF EFFICACY; SICK ROLE; TRUST;

EID: 33344461833     PISSN: 07383991     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pec.2005.06.010     Document Type: Conference Paper

References (199)

1. C.A. Charles, T. Whelan, A. Gafni, A. Willan, and S. Farrell Shared treatment decision making: what does it mean to physicians? J Clin Oncol 21 2003 932 936
2. L.A. Jansen Deliberative decision making and the treatment of pain J Palliat Med 4 2001 23 30
3. H. Thornton, A. Edwards, and G. Elwyn Evolving the multiple roles of 'patients' in health-care research: reflections after involvement in a trial of shared decision-making Health Expect 6 2003 189 197
4. C. Charles, A. Gafni, and T. Whelan Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango) Soc Sci Med 44 1997 681 692
5. G. Elwyn, A. Edwards, S. Mowle, M. Wensing, C. Wilkinson, P. Kinnersley, and R. Grol Measuring the involvement of patients in shared decision-making: a systematic review of instruments Patient Educ Couns 43 2001 5 22
6. G. Elwyn, A. Edwards, R. Gwyn, and R. Grol Towards a feasible model for shared decision making: focus group study with general practice registrars BMJ 319 1999 753 756
7. C. Charles, A. Gafni, and T. Whelan Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model Soc Sci Med 49 1999 651 661
8. C. Charles, T. Whelan, and A. Gafni What do we mean by partnership in making decisions about treatment? BMJ 319 1999 780 782
9. C.H. Braddock rIII, K.A. Edwards, N.M. Hasenberg, T.L. Laidley, and W. Levinson Informed decision making in outpatient practice: time to get back to basics JAMA 282 1999 2313 2320
10. S.G. Taylor, J.M. Pickens, and E.A. Geden Interactional styles of nurse practitioners and physicians regarding patient decision making Nurs Res 38 1989 50 55
11. J.L. Jordan, S.J. Ellis, and R. Chambers Defining shared decision making and concordance: are they one and the same? Postgrad Med J 78 2002 383 384
12. C.M. Ruland, and S. Bakken Developing, implementing, and evaluating decision support systems for shared decision making in patient care: a conceptual model and case illustration J Biomed Inform 35 2002 313 321
13. S. Ford, T. Schofield, and T. Hope What are the ingredients for a successful evidence-based patient choice consultation? A qualitative study Soc Sci Med 56 2003 589 602
14. C. Stubblefield, and S. Mutha Provider-patient roles in chronic disease management J Allied Health 31 2002 87 92
15. W. Godolphin The role of risk communication in shared decision making BMJ 327 2003 692 693
16. C. Teutsch Patient-doctor communication Med Clin North Am 87 2003 1115 1145
17. C.C. Butler, P. Kinnersley, H. Prout, S. Rollnick, A. Edwards, and G. Elwyn Antibiotics and shared decision-making in primary care J Antimicrob Chemother 48 2001 435 440
18. F.A. Stevenson, C.A. Barry, N. Britten, N. Barber, and C.P. Bradley Doctor-patient communication about drugs: the evidence for shared decision making Soc Sci Med 50 2000 829 840
19. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. Making Health Care Decisions. The Ethical and Legal Implications of Informed Consent in the Patient-Practitioner Relationship. Washington, 1982.
20. S.N. Whitney, A.L. McGuire, and L.B. McCollough A typology of shared decision making, informed consent, and simple consent Ann Intern Med 140 2004 54 59
21. J. Hamann, S. Leucht, and W. Kissling Shared decision making in psychiatry Acta Psychiatr Scand 107 2003 403 409
22. D.H. Smith, and L.S. Pettegrew Mutual persuasion as a model for doctor-patient communication Theor Med 7 1986 127 146
23. D.L. Frosch, and R.M. Kaplan Shared decision making in clinical medicine: past research and future directions Am J Prev Med 17 1999 285 294
24. W.G. Bartholome A revolution in understanding: how ethics has transformed health care decision making QRB Qual Rev Bull 18 1992 6 11
25. S.H. Woolf The logic and limits of shared decision making J Urol 166 2001 244 245
26. R.B. Deber Shared decision making in the real world J Gen Intern Med 11 1996 377 378
27. A. Towle, and W. Godolphin Framework for teaching and learning informed shared decision making BMJ 319 1999 766 771
28. G. Elwyn, A. Edwards, P. Kinnersley, and R. Grol Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices Br J Gen Pract 50 2000 892 899
29. D.J. Cegala, L. McClure, T.M. Marinelli, and D.M. Post The effects of communication skills training on patients' participation during medical interviews Patient Educ Couns 41 2000 209 222
30. J. Donovan Patient decision making: the missing ingredient in compliance research Int J Technol Assess Health Care 11 1995 443 455
31. A. Edwards, and G. Elwyn The potential benefits of decision aids in clinical medicine JAMA 282 1999 779 780
32. A. Edwards, and G. Elwyn Understanding risk and lessons for clinical risk communication about treatment preferences Qual Health Care 10 Suppl. 1 2001 i9 i13
33. M. Holmes-Rovner, J. Kroll, D.R. Rovner, N. Schmitt, M. Rothert, G. Padonu, and G. Talarczyk Patient decision support intervention: increased consistency with decision analytic models Med Care 37 1999 270 284
34. S.H. Kaplan, S. Greenfield, B. Gandek, W.H. Rogers, and J.E. Ware Jr. Characteristics of physicians with participatory decision-making styles Ann Intern Med 124 1996 497 504
35. M.A. Stewart Effective physician-patient communication and health outcomes: a review CMAJ 152 1995 1423 1433
36. A.M. Stiggelbout, and G.M. Kiebert A role for the sick role. Patient preferences regarding information and participation in clinical decision-making CMAJ 157 1997 383 389
37. R.M. Kaplan Shared medical decision-making: a new paradigm for behavioral medicine - 1997 presidential address Ann Behav Med 21 1999 3 11
38. H. Bauchner Shared decision making in pediatrics Arch Dis Child 84 2001 246
39. C.L. Bennett, D.A. Buchner, and M. Ullman Approaches to prostate cancer by managed care organizations Urology 50 1997 79 86
40. S. Benowitz Shared decision-making still evolving in cancer screening J Natl Cancer Inst 93 2001 672 673
41. J.L. Bernat Informed consent Muscle Nerve 24 2001 614 621
42. T.J. Brady The patient's role in rheumatology care Curr Opin Rheumatol 10 1998 146 151
43. D.W. Brock The ideal of shared decision making between physicians and patients Kennedy Inst Ethic J 1991 28 47
44. R.F. Brown, P.N. Butow, M. Henman, S.M. Dunn, F. Boyle, and M.H. Tattersall Responding to the active and passive patient: flexibility is the key Health Expect 5 2002 236 245
45. W. Burke, C. Beeker, J.M. Kraft, and L. Pinsky Engaging women's interest in colorectal cancer screening: a public health strategy J Womens Health Gend Based Med 9 2000 363 371
46. W. Burke, L. Acheson, J. Botkin, K. Bridges, A. Davis, J. Evans, J. Frias, J. Hanson, N. Kahn, R. Kahn, D. Lanier, L.E. Pinsky, N. Press, M.A. Lloyd-Puryear, E. Rich, N. Stevens, E. Thomson, S. Wartman, and M. Wilson Genetics in primary care: a USA faculty development initiative Community Genet 5 2002 138 146
47. M.O. Carrere, N. Moumjid-Ferdjaoui, M. Charavel, and A. Bremond Eliciting patients' preferences for adjuvant chemotherapy in breast cancer: development and validation of a bedside decision-making instrument in a French Regional Cancer Centre Health Expect 3 2000 97 113
48. M. Charavel, A. Bremond, N. Moumjid-Ferdjaoui, H. Mignotte, and M.O. Carrere Shared decision-making in question Psychooncology 10 2001 93 102
49. J.J. Chin Doctor-patient relationship: from medical paternalism to enhanced autonomy Singapore Med J 43 2002 152 155
50. H. Cohen, and N. Britten Who decides about prostate cancer treatment? A qualitative study Fam Pract 20 2003 724 729
51. A. Coulter Assembling the evidence: patient-focused outcomes research Health Libr Rev 11 1994 263 268
52. A. Coulter Partnerships with patients: the pros and cons of shared clinical decision-making J Health Serv Res Policy 2 1997 112 121
53. A. Coulter Whatever happened to shared decision-making? Health Expect 5 2002 185 186
54. A. Coulter Patient information and shared decision-making in cancer care Br J Cancer 89 Suppl. 1 2003 S15 S16
55. J. Daley, and L. Forrow Ethical issues Prim Care 19 1992 203 216
56. P. Davey, C. Pagliari, and A. Hayes The patient's role in the spread and control of bacterial resistance to antibiotics Clin Microbiol Infect 8 Suppl. 2 2002 43 68
57. R.B. Deber Physicians in health care management. 8. The patient-physician partnership: decision making, problem solving and the desire to participate CMAJ 151 1994 423 427
58. A. Edwards, R. Evans, and G. Elwyn Manufactured but not imported: new directions for research in shared decision making support and skills Patient Educ Couns 50 2003 33 38
59. A. Edwards, G. Elwyn, K. Hood, M. Robling, C. Atwell, M. Holmes-Rovner, P. Kinnersley, H. Houston, and I. Russell The development of COMRADE - a patient-based outcome measure to evaluate the effectiveness of risk communication and treatment decision making in consultations Patient Educ Couns 50 2003 311 322
60. A. Edwards, G. Elwyn, C. Smith, S. Williams, and H. Thornton Consumers' views of quality in the consultation and their relevance to 'shared decision-making' approaches Health Expect 4 2001 151 161
61. L. Elit, C. Charles, I. Gold, A. Gafni, S. Farrell, S. Tedford, D. Dal Bello, and T. Whelan Women's perceptions about treatment decision making for ovarian cancer Gynecol Oncol 88 2003 89 95
62. G. Elwyn, A. Edwards, and N. Britten "Doing prescribing": how might clinicians work differently for better, safer care Qual Saf Health Care 12 Suppl. 1 2003 i33 i36
63. G. Elwyn, A. Edwards, M. Eccles, and D. Rovner Decision analysis in patient care Lancet 358 2001 571 574
64. G. Elwyn, A. Edwards, and P. Kinnersley Shared decision-making in primary care: the neglected second half of the consultation Br J Gen Pract 49 1999 477 482
65. G. Elwyn, A. Edwards, M. Wensing, R. Hibbs, C. Wilkinson, and R. Grol Shared decision making observed in clinical practice: visual displays of communication sequence and patterns J Eval Clin Pract 7 2001 211 221
66. G. Elwyn, A. Edwards, M. Wensing, K. Hood, C. Atwell, and R. Grol Shared decision making: developing the OPTION scale for measuring patient involvement Qual Saf Health Care 12 2003 93 99
67. G. Elwyn, J. Gray, and A. Clarke Shared decision making and non-directiveness in genetic counselling J Med Genet 37 2000 135 138
68. G. Elwyn, R. Gwyn, A. Edwards, and R. Grol Is 'shared decision-making' feasible in consultations for upper respiratory tract infections? Assessing the influence of antibiotic expectations using discourse analysis Health Expect 2 1999 105 117
69. J. Emery Is informed choice in genetic testing a different breed of informed decision-making? A discussion paper Health Expect 4 2001 81 86
70. M.H. Farrell, M.A. Murphy, and C.E. Schneider How underlying patient beliefs can affect physician-patient communication about prostate-specific antigen testing Eff Clin Pract 5 2002 120 129
71. M.V. Fenton Development of the scale of humanistic nursing behaviors Nurs Res 36 1987 82 87
72. W.S. Fenton Shared decision making: a model for the physician-patient relationship in the 21st century? Acta Psychiatr Scand 107 2003 401 402
73. E. Fillion How is medical decision-making shared? The case of haemophilia patients and doctors: the aftermath of the infected blood affair in France Health Expect 6 2003 228 241
74. D.L. Frosch, R.M. Kaplan, and V. Felitti The evaluation of two methods to facilitate shared decision making for men considering the prostate-specific antigen test J Gen Intern Med 16 2001 391 398
75. J. Gafaranga, and N. Britten "Fire away": the opening sequence in general practice consultations Fam Pract 20 2003 242 247
76. M. Gattellari, P.N. Butow, and M.H. Tattersall Sharing decisions in cancer care Soc Sci Med 52 2001 1865 1878
77. W. Godolphin, A. Towle, and R. McKendry Evaluation of the quality of patient information to support informed shared decision-making Health Expect 4 2001 235 242
78. A.B. Goldring, S.E. Taylor, M.E. Kemeny, and P.A. Anton Impact of health beliefs, quality of life, and the physician-patient relationship on the treatment intentions of inflammatory bowel disease patients Health Psychol 21 2002 219 228
79. L.G. Gomella, P.C. Albertsen, M.C. Benson, J.D. Forman, and M.S. Soloway The use of video-based patient education for shared decision-making in the treatment of prostate cancer Semin Urol Oncol 18 2000 182 187
80. E.P. Gramlich, and B.E. Waitzfelder Interactive video assists in clinical decision making Methods Inf Med 37 1998 201 205
81. T. Greenhalgh Commentary: competencies for informed shared decision making BMJ 319 1999 770
82. P. Guimond, H. Bunn, A.M. O'Connor, M.J. Jacobsen, V.K. Tait, E.R. Drake, I.D. Graham, D. Stacey, and T. Elmslie Validation of a tool to assess health practitioners' decision support and communication skills Patient Educ Couns 50 2003 235 245
83. A.D. Gurmankin, J. Baron, J.C. Hershey, and P.A. Ubel The role of physicians' recommendations in medical treatment decisions Med Decis Making 22 2002 262 271
84. R. Gwyn, and G. Elwyn When is a shared decision not (quite) a shared decision? Negotiating preferences in a general practice encounter Soc Sci Med 49 1999 437 447
85. R. Gwyn, G. Elwyn, A. Edwards, and A. Mooney The problematic of decision-sharing: deconstructing 'cholesterol' in a clinical encounter Health Expect 6 2003 242 254
86. M.R. Handley, and M.E. Stuart The use of prostate specific antigen for prostate cancer screening: a managed care perspective J Urol 152 1994 1689 1692
87. J.M. Healey Futility, shared decision making, and the doctor-patient relationship Conn Med 56 1992 166
88. J.H. Hibbard Engaging health care consumers to improve the quality of care Med Care 41 2003 61 70
89. M. Holmes-Rovner, D. Valade, C. Orlowski, C. Draus, B. Nabozny-Valerio, and S. Keiser Implementing shared decision-making in routine practice: barriers and opportunities Health Expect 3 2000 182 191
90. P.L. Hudak, J.P. Clark, G.A. Hawker, P.C. Coyte, N.N. Mahomed, H.J. Kreder, and J.G. Wright "You're perfect for the procedure! Why don't you want it?" Elderly arthritis patients' unwillingness to consider total joint arthroplasty surgery: a qualitative study Med Decis Making 22 2002 272 278
91. E.F. Juniper The impact of patient compliance on effective asthma management Curr Opin Pulm Med 9 Suppl. 1 2003 S8 S10
92. R.M. Kaplan The significance of quality of life in health care Qual Life Res 12 2003 3 16
93. J.H. Karlawish Shared decision making in critical care: a clinical reality and an ethical necessity Am J Crit Care 5 1996 391 396
94. J.F. Kasper, and F.J. Fowler Jr. Responding to the challenge. A status report on shared decision-making programs HMO Pract 7 1993 176 181
95. J.F. Kasper, A.G. Mulley Jr., and J.E. Wennberg Developing shared decision-making programs to improve the quality of health care QRB Qual Rev Bull 18 1992 183 190
96. C.W. Keefe, M.E. Thompson, and M.M. Noel Medical students, clinical preventive services, and shared decision-making Acad Med 77 2002 1160 1161
97. I.H. Kerridge, S.A. Pearson, I.E. Rolfe, and M. Lowe Decision making in CPR: attitudes of hospital patients and healthcare professionals Med J Aust 169 1998 128 131
98. S. Kessler Psychological aspects of genetic counselling. XIV. Nondirectiveness and counseling skills Genet Test 5 2001 187 191
99. S.P. Kim, S.J. Knight, C. Tomori, K.M. Colella, R.A. Schoor, L. Shih, T.M. Kuzel, R.B. Nadler, and C.L. Bennett Health literacy and shared decision making for prostate cancer patients with low socioeconomic status Cancer Invest 19 2001 684 691
100. M. Koehle, R. Loyd-Smith, D. McKenzie, and J. Taunton Asthma and recreational SCUBA diving: a systematic review Sports Med 33 2003 109 116
101. J. Leland Advance directives and establishing the goals of care Prim Care 28 2001 349 363
102. A. Lelie Decision-making in nephrology: shared decision making? Patient Educ Couns 39 2000 81 89
103. L.A. Lenert, and D.J. Cher Use of meta-analytic results to facilitate shared decision making J Am Med Inform Assoc 6 1999 412 419
104. S.T. Liaw, C. Pearce, and B. Jackson Anticoagulant therapy: will computer use improve outcomes? Aust Fam Physician 30 2001 964 968
105. R.S. Loewy Honouring the age-old commitment to "the patient's good": the promise-and peril-of hospice Wien Med Wochenschr 153 2003 392 397
106. D.C. Lowance Withholding and withdrawal of dialysis in the elderly Semin Dial 15 2002 88 90
107. J.D. Lurie, and J.N. Weinstein Shared decision-making and the orthopaedic workforce Clin Orthop 2001 68 75
108. U. Malm, B. Ivarsson, P. Allebeck, and I.R. Falloon Integrated care in schizophrenia: a 2-year randomized controlled study of two community-based treatment programs Acta Psychiatr Scand 107 2003 415 423
109. F.A. McAlister Atrial fibrillation, shared decision making, and the prevention of stroke Stroke 33 2002 238 242
110. G.J. McHugo, and R.E. Drake Finding and evaluating the evidence: a critical step in evidence-based medicine Psychiatr Clin North Am 26 2003 821 831
111. R.E. McKeown, B.M. Reininger, M. Martin, and R.A. Hoppmann Shared decision making: views of first-year residents and clinic patients Acad Med 77 2002 438 445
112. P.A. Miller, S. Forbes, and D.K. Boyle End-of-life care in the intensive care unit: a challenge for nurses Am J Crit Care 10 2001 230 237
113. C. Mohr, J. Milgrom, M. Griffiths, and K. Nomikoudis Breaking the bad news: dilemmas in shared decision-making in medical practice. Aust Psychol 34 1999 45 48
114. A.A. Montgomery, and T. Fahey How do patients' treatment preferences compare with those of clinicians? Qual Health Care 10 Suppl. 1 2001 i39 i43
115. M.W. Morgan, R.B. Deber, H.A. Llewellyn-Thomas, P. Gladstone, R.J. Cusimano, K. O'Rourke, G. Tomlinson, and A.S. Detsky Randomized, controlled trial of an interactive videodisc decision aid for patients with ischemic heart disease J Gen Intern Med 15 2000 685 693
116. A.H. Moss Shared decision-making in dialysis: the new RPA/ASN guideline on appropriate initiation and withdrawal of treatment Am J Kidney Dis 37 2001 1081 1091
117. N. Moumjid, A. Bremond, and M.O. Carrere From information to shared decision-making in medicine Health Expect 6 2003 187 188
118. R.E. Myers, and E.J. Kunkel Preparatory education for informed decision-making in prostate cancer early detection and treatment Semin Urol Oncol 18 2000 172 177
119. M. Parascandola, J. Hawkins, and M. Danis Patient autonomy and the challenge of clinical uncertainty Kennedy Inst Ethic J 12 2002 245 264
120. G.B. Piercy, R. Deber, J. Trachtenberg, E.W. Ramsey, R.W. Norman, S.L. Goldenberg, J.C. Nickel, M. Elhilali, J.P. Perrault, N. Kraetschmer, and N. Sharpe Impact of a shared decision-making program on patients with benign prostatic hyperplasia Urology 53 1999 913 920
121. M. Pignone, D. Bucholtz, and R. Harris Patient preferences for colon cancer screening J Gen Intern Med 14 1999 432 437
122. P.A. Plumeri Informed consent and the gastrointestinal endoscopist Gastrointest Endosc 31 1985 218 221
123. M.N. Prout Breast cancer risk reduction: what do we know and where should we go? Medscape Womens Health 5 2000 E4
124. A. Robinson, and R. Thomson Variability in patient preferences for participating in medical decision making: implication for the use of decision support tools Qual Health Care 10 Suppl. 1 2001 i34 i38
125. R. Rockefeller Informed shared decision making: is this the future of health care? Health Forum J 42 1999 54 56
126. M.L. Rothert, and A.M. O'Connor Health decisions and decision support for women Ann Rev Nurs Res 19 2001 307 324
127. G.L. Rubin, M.S. Frommer, N.C. Vincent, P.A. Phillips, and S.R. Leeder Getting new evidence into medicine Med J Aust 172 2000 180 183
128. C.M. Ruland Handheld technology to improve patient care: evaluating a support system for preference-based care planning at the bedside J Am Med Inform Assoc 9 2002 192 201
129. C.M. Ruland, and S. Bakken Representing patient preference-related concepts for inclusion in electronic health records J Biomed Inform 34 2001 415 422
130. C.M. Ruland, T. White, M. Stevens, G. Fanciullo, and S.M. Khilani Effects of a computerized system to support shared decision making in symptom management of cancer patients: preliminary results J Am Med Inform Assoc 10 2003 573 579
131. C.H. Rushton, and J.J. Glover Involving parents in decisions to forego life-sustaining treatment for critically ill infants and children AACN Clin Issues Crit Care Nurs 1 1990 206 214
132. T. Schofield, G. Elwyn, A. Edwards, and A. Visser Shared decision making Patient Educ Couns 50 2003 229 230
133. M. Sculpher, A. Gafni, and I. Watt Shared treatment decision making in a collectively funded health care system: possible conflicts and some potential solutions Soc Sci Med 54 2002 1369 1377
134. A. So, L. Goldenberg, and M.E. Gleave Prostate specific antigen: an updated review Can J Urol 10 2003 2040 2050
135. P.F. Stalmeier, I.J. Unic, L.C. Verhoef, and W.A. van Daal Evaluation of a shared decision making program for women suspected to have a genetic predisposition to breast cancer: preliminary results Med Decis Making 19 1999 230 241
136. B. Steinhart Patient autonomy: evolution of the doctor-patient relationship Haemophilia 8 2002 441 446
137. K. Steven Shared decision-making Br J Gen Pract 51 2001 61 62
138. F.A. Stevenson General practitioners' views on shared decision making: a qualitative analysis Patient Educ Couns 50 2003 291 293
139. A.M. Stiggelbout, and J.C. de Haes Patient preference for cancer therapy: an overview of measurement approaches J Clin Oncol 19 2001 220 230
140. A. Stutts, and J. Schloemann Life-sustaining support: ethical, cultural, and spiritual conflicts. Part I. Family support - a neonatal case study Neonat Netw 21 2002 23 29
141. K.E. Sullivan, P.C. Hebert, J. Logan, A.M. O'Connor, and P.D. McNeely What do physicians tell patients with end-stage COPD about intubation and mechanical ventilation? Chest 109 1996 258 264
142. A. Towle Shifting the culture of continuing medical education: what needs to happen and why is it so difficult? J Contin Educ Health Prof 20 2000 208 218
143. L. Vandevusse Decision making in analyses of women's birth stories Birth 26 1999 43 50
144. R.J. Volk, A.R. Cass, and S.J. Spann A randomized controlled trial of shared decision making for prostate cancer screening Arch Fam Med 8 1999 333 340
145. R.M. Walker Ethical issues in end-of-life care Cancer Control 6 1999 162 167
146. J.T. Wei, and R.G. Uzzo Shared decision-making strategies for early prostate cancer Semin Urol Oncol 20 2002 74 78
147. J.E. Wennberg, E.S. Fisher, and J.S. Skinner Geography and the debate over medicare reform Health Affair 2002 96 114 Supp Web Exclusives
148. M.P. Weinstock Shared decision-making makes medical paternalism obsolete. So long, Marcus Welby Volunt Leader 39 1998 11
149. M. Wensing, G. Elwyn, A. Edwards, E. Vingerhoets, and R. Grol Deconstructing patient centred communication and uncovering shared decision making: an observational study BMC Med Inform Decis Mak 2 2002 2
150. T. Whelan, M. Levine, A. Gafni, K. Sanders, A. Willan, D. Mirsky, D. Schnider, D. McCready, S. Reid, A. Kobylecky, and K. Reed Mastectomy or lumpectomy? Helping women make informed choices J Clin Oncol 17 1999 1727 1735
151. T.J. Whelan, M.N. Levine, A. Gafni, H. Lukka, E.A. Mohide, M. Patel, and D.L. Streiner Breast irradiation postlumpectomy: development and evaluation of a decision instrument J Clin Oncol 13 1995 847 853
152. T. Whelan, A. Gafni, C. Charles, and M. Levine Lessons learned from the decision board: a unique and evolving decision aid Health Expect 3 2000 69 76
153. S.N. Whitney A new model of medical decisions: exploring the limits of shared decision making Med Decis Making 23 2003 275 280
154. C.R. Wilkinson, and M. Williams Strengthening patient-provider relationships Lippincotts Case Manag 7 2002 86 99
155. C.E. Wills, and M. Holmes-Rovner Patient comprehension of information for shared treatment decision making: state of the art and future directions Patient Educ Couns 50 2003 285 290
156. T.J. Wilt, and M.R. Partin Prostate cancer intervention. Involving the patient in early detection and treatment Postgrad Med 114 2003 43 49
157. S.H. Woolf Shared decision-making: the case for letting patients decide which choice is best J Fam Pract 45 1997 205 208
158. J.C. Yen, C. Neville, and P.R. Fortin Discordance between patients and their physicians in the assessment of lupus disease activity: relevance for clinical trials Lupus 8 1999 660 670
159. C.H. Braddock III, S.D. Fihn, W. Levinson, A.R. Jonsen, and R.A. Pearlman How doctors and patients discuss routine clinical decisions. Informed decision making in the outpatient setting J Gen Intern Med 12 1997 339 345
160. D.W. Brock, and S.A. Wartman When competent patients make irrational choices N Engl J Med 322 1990 1595 1599
161. D.S. Brody, S.M. Miller, C.E. Lerman, D.G. Smith, and G.C. Caputo Patient perception of involvement in medical care: relationship to illness attitudes and outcomes J Gen Intern Med 4 1989 506 511
162. A. Coulter, V. Entwistle, and D. Gilbert Sharing decisions with patients: is the information good enough? BMJ 318 1999 318 322
163. R.B. Deber Physicians in health care management. 7. The patient-physician partnership: changing roles and the desire for information CMAJ 151 1994 171 176
164. E.J. Emanuel, and L.L. Emanuel Four models of the physician-patient relationship JAMA 267 1992 2221 2226
165. V.J.S. Entwistle, and I. Watt Evaluating interventions to promote patient involvement in decision-making: by what criteria should effectiveness be judged? J Health Serv Res Policy 3 1998 100 107
166. L. Forrow, S.A. Wartman, and D.W. Brock Science, ethics, and the making of clinical decisions. Implications for risk factor intervention JAMA 259 1988 3161 3167
167. M.N. Levine, A. Gafni, B. Markham, and D. MacFarlane A bedside decision instrument to elicit a patient's preference concerning adjuvant chemotherapy for breast cancer Ann Intern Med 117 1992 53 58
168. S. Molenaar, M.A. Sprangers, F.C. Postma-Schuit, E.J. Rutgers, J. Noorlander, J. Hendriks, and H.C. de Haes Feasibility and effects of decision aids Med Decis Making 20 2000 112 127
169. A.M. Rees Communication in the physician-patient relationship Bull Med Libr Assoc 81 1993 1 10
170. C. Sebban, G. Browman, A. Gafni, G. Norman, M. Levine, D. Assouline, and D. Fiere Design and validation of a bedside decision instrument to elicit a patient's preference concerning allogenic bone marrow transplantation in chronic myeloid leukemia Am J Hematol 48 1995 221 227
171. R.A. Smith, A.C. von Eschenbach, R. Wender, B. Levin, T. Byers, D. Rothenberger, D. Brooks, W. Creasman, C. Cohen, C. Runowicz, D. Saslow, V. Cokkinides, and H. Eyre American Cancer Society guidelines for the early detection of cancer: update of early detection guidelines for prostate, colorectal, and endometrial cancers. Also: update 2001 - testing for early lung cancer detection CA Cancer J Clin 51 2001 38 75
172. J.E. Wennberg Outcomes research, cost containment, and fear of health care rationing N Eng J Med 323 1990 1202 1204
173. A. Towle Physician and patient communication skills: competencies for informed shared decision making 1997 University of British Columbia Vancouver, Canada
174. A. Bandura Self-efficacy: toward a unifying theory of behavioral change Psychol Rev 84 1977 191 215
175. A. Bandura A social foundation of thought and action. A social cognitive theory 1986 Prentice Hall Englewood Cliffs, NJ
176. A. Bandura Reflections on self efficacy Adv Behav Res Ther 1 1978 237 269
177. A. Bandura Self-efficacy mechanisms in human agency Am Psychol 37 1982 122 147
178. A. Bandura Self-efficacy conception of anxiety Anxiety Res 1988 1
179. J.A. Gazmararian, M.V. Williams, J. Peel, and D.W. Baker Health literacy and knowledge of chronic disease Patient Educ Couns 51 2003 267 275
180. M.S. Wolf, T.C. Davis, J.T. Cross, E. Marin, K. Green, and C.L. Bennett Health literacy and patient knowledge in a Southern US HIV clinic Int J STD AIDS 15 2004 747 752
181. K. Lewin A dynamic theory of personality 1935 McGraw-Hill New York
182. G. Makoul, and M.E. Roloff The role of efficacy and outcome expectations in the decision to withold relational complaints Commun Res 25 1998 5 29
183. T. Bodenheimer, K. Lorig, H. Holman, and K. Grumbach Patient self-management of chronic disease in primary care JAMA 288 2002 2469 2475
184. K. Lorig, R.L. Chastain, E. Ung, S. Shoor, and H.R. Holman Development and evaluation of a scale to measure perceived self-efficacy in people with arthritis Arthritis Rheum 32 1989 37 44
185. K.R. Lorig, D.S. Sobel, A.L. Stewart, B.W. Brown Jr., A. Bandura, P. Ritter, V.M. Gonzalez, D.D. Laurent, and H.R. Holman Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial Med Care 37 1999 5 14
186. J. Airlie, G.A. Baker, S.J. Smith, and C.A. Young Measuring the impact of multiple sclerosis on psychosocial functioning: the development of a new self-efficacy scale Clin Rehabil 15 2001 259 265
187. S. Hewlett, Z. Cockshott, J. Kirwan, J. Barrett, J. Stamp, and I. Haslock Development and validation of a self-efficacy scale for use in British patients with rheumatoid arthritis (RASE) Rheumatology (Oxford) 40 2001 1221 1230
188. G. Ogedegbe, C.A. Mancuso, J.P. Allegrante, and M.E. Charlson Development and evaluation of a medication adherence self-efficacy scale in hypertensive African-American patients J Clin Epidemiol 56 2003 520 529
189. Y.K. Scherer, and S. Bruce Knowledge, attitudes, and self-efficacy and compliance with medical regimen, number of emergency department visits, and hospitalizations in adults with asthma Heart Lung 30 2001 250 257
190. H. Brus, M. van de Laar, E. Taal, J. Rasker, and O. Wiegman Determinants of compliance with medication in patients with rheumatoid arthritis: the importance of self-efficacy expectations Patient Educ Couns 36 1999 57 64
191. B.H. Marcus, V.C. Selby, R.S. Niaura, and J.S. Rossi Self-efficacy and the stages of exercise behavior change Res Q Exerc Sport 63 1992 60 66
192. A.D. Forsyth, and M.P. Carey Measuring self-efficacy in the context of HIV risk reduction: research challenges and recommendations Health Psychol 17 1998 559 568
193. J.F. Etter, M.M. Bergman, J.P. Humair, and T.V. Perneger Development and validation of a scale measuring self-efficacy of current and former smokers Addiction 95 2000 901 913
194. G. Makoul Evidence based patient choice: theory vs. practice J Gen Intern Med 18S 2003 211
195. S. Greenfield, S. Kaplan, and J.E. Ware Jr. Expanding patient involvement in care. Effects on patient outcomes Ann Intern Med 102 1985 520 528
196. S. Greenfield, S.H. Kaplan, J.E. Ware Jr., E.M. Yano, and H.J. Frank Patients' participation in medical care: effects on blood sugar control and quality of life in diabetes J Gen Intern Med 3 1988 448 457
197. S.H. Kaplan, S. Greenfield, and J.E. Ware Jr. Assessing the effects of physician-patient interactions on the outcomes of chronic disease Med Care 27 1989 S110 S127
198. D. Tuckett, M. Boulton, C. Olson, and A. Williams Meetings between experts: an approach to sharing ideas in medical consultations. 1985 Tavistock Publications Ltd. New York
199. G. Makoul, P. Arntson, and T. Schofield Health promotion in primary care: physician-patient communication and decision making about prescription medications Soc Sci Med 41 1995 1241 1254