The expert patients programme online, a 1-year study of an Internet-based self-management programme for people with long-term conditions

Chronic Illness

Volumn 4, Issue 4, 2008, Pages 247-256

  Lorig, Kate R ^a   Ritter, Philip L ^a   Dost, Ayesha ^b   Plant, Kathryn ^a   Laurent, Diana D ^a   McNeil, Ian ^b  

^a STANFORD UNIVERSITY SCHOOL OF MEDICINE   (United States)

^b 7E58 Quarry House ^*  (United Kingdom)

Author keywords

Chronic disease; Patient education; Self management

Indexed keywords

ADULT; AEROBIC EXERCISE; AGED; ARTICLE; CHRONIC DISEASE; CLINICAL EFFECTIVENESS; CONTROLLED STUDY; DISABILITY; DISTRESS SYNDROME; DOCTOR PATIENT RELATION; DYSPNEA; EMERGENCY WARD; FATIGUE; FEMALE; HEALTH BEHAVIOR; HEALTH CARE SYSTEM; HEALTH CARE UTILIZATION; HEALTH PROGRAM; HEALTH STATUS; HOSPITALIZATION; HUMAN; INTERNET; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; ONLINE SYSTEM; OUTCOME ASSESSMENT; PAIN ASSESSMENT; PATIENT EDUCATION; PATIENT SATISFACTION; SELF CARE; SELF CONCEPT; STRESS MANAGEMENT; STRETCHING EXERCISE; UNITED KINGDOM;

ADOLESCENT; ADULT; AGED; CHRONIC DISEASE; ENGLAND; FEMALE; HEALTH BEHAVIOR; HUMANS; INTERNET; LONGITUDINAL STUDIES; MALE; MIDDLE AGED; PATIENT EDUCATION AS TOPIC; PATIENT SATISFACTION; SELF CARE; SELF EFFICACY; SOCIAL SUPPORT; TIME FACTORS; YOUNG ADULT;

EID: 58149117744     PISSN: 17423953     EISSN: 17459206     Source Type: Journal    
DOI: 10.1177/1742395308098886     Document Type: Article

References (35)

1. General Household Survey 2005, Crown copyright, Office for National Statistics. Available at: http://www.statistics.gov.uk/downloads/ theme_compendia/GHS05/health2005-final.xls
2. Departmental Report 2005, Departmental of Health, 2005. Available at: http://www.dh.gov.uk/publicationsAndStatistics/Publications/AnnualReports/ DHAnnualReportsArticle/fs/en?CONTENT_ID=4113725&chk=1krOlR (accessed 30 January 2008).
3. Self Care - A Real Choice; Self Care Support - A Practical Option ; Department of Health 2005. Available at: www.dh.gov.uk/selfcare
4. Lorig K., Sobel DS, Stewart AL, et al. Evidence suggesting that a chronic disease self-management program can improve health status while reducing hospitalization: a randomized trial. Med Care 1999 ; 37 (1). 5-14.
5. Lorig K., Ritter P., Stewart AL, et al. Chronic disease self-management program. 2-year health status and health care utilization outcomes. Med Care 2001 ; 39 (11). 1217-23.
6. Lorig KR, Ritter PL, González VM Hispanic chronic disease self-management. A randomized community-based outcome trial. Nurs Res 2003 ; 52 (6). 361-9.
7. Dongbo F., Hua F., McGowan P., et al. Implementation and quantitative evaluation of chronic disease self-management programme in Shanghai, China: randomized controlled trial. Bulletin World Health Org 2003 ; 81 (3). 174-82.
8. Swerissen H., Belfrage J., Weeks A., et al. A randomized control trial of a self-management program for people with a chronic illness from Vietnamese, Chinese, Italian and Greek backgrounds. Patient Educ Couns 2006 ; 64: 360-8.
9. Griffiths C., Motlib J., Azad A., et al. Randomised controlled trial of a lay-led self-management programme for Bangladeshi patients with chronic disease. British J Gen Practice 2005 ; 55: 831-7.
10. Goeppinger J., Armstrong B., Schwartz T., Ensley D., Brady TJ Self-management education for persons with arthritis managing comorbidity and eliminating health disparities. Arthritis Care and Research 2007 ; 57 (6). 1081-8.
11. Richardson G., Kennedy A., Reeves D., et al. Cost effectiveness of the Expert Patients Programme for patients with long term conditions. J Epidemiol Community Health 2007 ; 61 (3). 254-61.
12. Lorig KR, Ritter PL, Laurent DD, Plant K. Internet-based chronic disease self-management, a randomized trial. Medical Care 2006 ; 44 (11). 964-71.
13. Bandura A. Self-efficacy: the exercise of control, New York: W.H. Freeman, 1997.
14. Lorig KR, Ritter PL, Jaquez A. Outcomes of border health Spanish/English chronic disease self-management programs. Diabetes Educ 2005 ; 31 (3). 401-9.
15. Lorig K., Holman H., Sobel D., et al. Living a healthy life with chronic conditions., Boulder, Colorado: Bull Publishing, 2000.
16. Ritter P., González V., Laurent DD, et al. Measurement of pain using the Visual Numeric Scale. J Rheumatol 2006 ; 33 (3). 574-80.
17. Dixon J., Bird H. Reproducibility along a 10-cm vertical visual analogue scale. Ann Rheum Dis 1981 ; 40: 87-89.
18. Downie W., Leatham P., Rhind VM, et al. The visual analogue scale in the assessment of grip strength. Ann Rheum Dis 1978 ; 37: 382-4.
19. Downie W., Leatham P., Rhind VM, et al. Studies with pain rating scales. Ann Rheum Dis 1978 ; 37: 378-81.
20. Devins G., Binik Y., Hutchinson T., et al. The emotional impact of end-stage renal disease: importance of patients' perceptions of intrusiveness and control. Int J Psychiatry Med 1983 -4; 13: 327-43.
21. Devins G., Mandin H., Hons R., et al. Illness intrusiveness and quality of life in end-stage renal disease: comparison and stability across treatment modalities. Health Psychology 1990 ; 9: 117-42.
22. Stewart AL, Hays RD, Ware JE Health perceptions, energy/fatigue, and health distress measures. In: Stewart AL, Ware JE, eds. Measuring functioning and well being: the medical outcomes study approach, Durham, NC: Duke University Press, 1992: 143-72.
23. Idler EL, Angel RJ Self-rated health and mortality in the NHANES-I epidemiologic follow-up study. Am J Public Health 1990 ; 80 (4). 446-52.
24. Fries J., Spitz P., Kraines R., et al. Measurement of patient outcome in arthritis. Arthritis Rheum 1980 ; 23 (2). 137-45.
25. Lorig K., Stewart A., Ritter P., et al. Outcome measures for health education and other health care interventions., Thousand Oaks: Sage, 1996.
26. Ritter P., Lorig K., Stewart A., et al. Self-reports of health care utilization compared to provider records. J Clin Epidemiol 1994 ; 54: 136-41.
27. Fischer D., Stewart AL, Bloch DA, Lorig K., Laurent D., Holman H. Capturing the patient's view of change as a clinical outcome measure. JAMA 1999 ; 282 (12). 1157-62.
28. Eysenbach G., Powell J., Englesakis M., Rizo C., Stern A. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ 2004 ; 328: 1166.
29. Griffiths C., Foster G., Ramsay J., Eldridge S., Taylor S. How effective are expert patient (lay led) education programmes for chronic disease? BMJ 2007 ; 334 (7606). 1254-6.
30. Foster G., Taylor SJ, Eldridge SE, Ramsay J., Griffiths CJ Self-management education programmes by lay leaders for people with chronic conditions. Cochrane Database Syst Rev 2007 ; 4: CD005108.
31. National Statistics Online. 2001 Census. United Kingdom Government website at http://www.statistics.gov.uk/CCI/nugget.asp?ID=1307&Pos= 1&ColRank=1&Rank=208 (accessed 11 February 2008).
32. Lorig KR, Sobel DS, Ritter PL, Laurent D., Hobbs M. Effect of a self-management program on patients with chronic disease. Effective Clinical Practice 2001 ; 4: 256-62.
33. Netten A., Curtis L. Unit costs of health and social care 2002. Canterbury: University of Kent Personal Social Services Unit, 2002.
34. Curtis L., Netten A. Unit costs of health and social care 2004., Canterbury: University of Kent Personal Social Services Unit, 2004.
35. Gustafson DH, Brennan PF, Hawkins R. Investing in e-health: what it takes to sustain consumer health informatics, New York: Springer, 2007.