-
1
-
-
84923134265
-
-
(accessed 27 March 2012)
-
23andme. www. 23andme. com (accessed 27 March 2012)
-
-
-
-
3
-
-
79551606008
-
Reconsidering the value of consent in biobank research
-
Allen, J. and McNamara, B. 2011. 'Reconsidering the value of consent in biobank research', Bioethics 25: 155-66
-
(2011)
Bioethics
, vol.25
, pp. 155-166
-
-
Allen, J.1
McNamara, B.2
-
4
-
-
33748683775
-
Should desperate volunteers be included in randomised controlled trials?
-
Allmark, P. and Mason, S. 2006. 'Should desperate volunteers be included in randomised controlled trials?', Journal of Medical Ethics 32: 548-53
-
(2006)
Journal of Medical Ethics
, vol.32
, pp. 548-553
-
-
Allmark, P.1
Mason, S.2
-
6
-
-
22544446342
-
Personal identifiability in the Icelandic Health Sector Database
-
(accessed 27 March 2012)
-
Árnason E. 2002. 'Personal identifiability in the Icelandic Health Sector Database', The Journal of Information, Law and Technology. www2. warwick. ac. uk/fac/soc/law/elj/jilt/2002_2/arnason/ (accessed 27 March 2012)
-
(2002)
The Journal of Information, Law and Technology
-
-
Árnason, E.1
-
7
-
-
6844239539
-
Preimplantation genetic diagnosis of inherited cancer: Familial adenomatous polyposis coli
-
Ao, A., Wells, D., Handyside, A. H., Winston, R. M. L. and Delhanty, J. D. A. 1998. 'Preimplantation genetic diagnosis of inherited cancer: familial adenomatous polyposis coli', Journal of Assisted Reproduction and Genetics 15: 140-44
-
(1998)
Journal of Assisted Reproduction and Genetics
, vol.15
, pp. 140-144
-
-
Ao, A.1
Wells, D.2
Handyside, A.H.3
Winston, R.M.L.4
Delhanty, J.D.A.5
-
8
-
-
34250350521
-
Should genetic information be disclosed to insurers? No
-
Ashcroft, R. 2007. 'Should genetic information be disclosed to insurers? No.', British Medical Journal 334: 1197
-
(2007)
British Medical Journal
, vol.334
, pp. 1197
-
-
Ashcroft, R.1
-
9
-
-
80855141868
-
Privacy, consent, and governance
-
Dierickx, K. and Pascal Borry, P. (eds.), Antwerpen/Oxford: Intersentia
-
Austin, L. M. and Lemmens, T. 2009. 'Privacy, consent, and governance', in Dierickx, K. and Pascal Borry, P. (eds.), New Challenges for Biobanks: Ethics, Law and Governance. Antwerpen/Oxford: Intersentia, pp. 111-22
-
(2009)
New Challenges for Biobanks: Ethics, Law and Governance
, pp. 111-122
-
-
Austin, L.M.1
Lemmens, T.2
-
10
-
-
77649142054
-
Principlism, medical individualism, and health promotion in resource-poor countries: Can autonomy-based bioethics promote social justice and population health?
-
(accessed 27 March 2012)
-
Azétsop, J. and Rennie, S. 2010. 'Principlism, medical individualism, and health promotion in resource-poor countries: can autonomy-based bioethics promote social justice and population health?', Philosophy, Ethics, and Humanities in Medicine 5: 1. www. peh-med. com/content/5/1/1 (accessed 27 March 2012)
-
(2010)
Philosophy, Ethics, and Humanities in Medicine
, vol.5
, pp. 1
-
-
Azétsop, J.1
Rennie, S.2
-
11
-
-
5044248766
-
The Human Genome Diversity Project: "Peoples", "populations" and the cultural politics of identification
-
Barker, J. 2004. 'The Human Genome Diversity Project: "Peoples", "populations" and the cultural politics of identification', Cultural Studies 18: 571-606
-
(2004)
Cultural Studies
, vol.18
, pp. 571-606
-
-
Barker, J.1
-
12
-
-
0037387870
-
A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students
-
Barlow-Stewart, K., Burnett, L., Proos, A., Howell, V., Huq, F., Lazarus, R. and Aizenberg, H. 2003. 'A genetic screening programme for Tay-Sachs disease and cystic fibrosis for Australian Jewish high school students', Journal of Medical Genetics 40: e45
-
(2003)
Journal of Medical Genetics
, vol.40
-
-
Barlow-Stewart, K.1
Burnett, L.2
Proos, A.3
Howell, V.4
Huq, F.5
Lazarus, R.6
Aizenberg, H.7
-
13
-
-
0347033305
-
Climate dangers and atoll countries
-
Barnett, J. and Adger, N. W. 2003. 'Climate dangers and atoll countries', Climatic Change 61: 321-37
-
(2003)
Climatic Change
, vol.61
, pp. 321-337
-
-
Barnett, J.1
Adger, N.W.2
-
14
-
-
0035383473
-
Family covenants and confidentiality within families
-
Bartels, D. M. 2001. 'Family covenants and confidentiality within families', The American Journal of Bioethics 1: 15-16
-
(2001)
The American Journal of Bioethics
, vol.1
, pp. 15-16
-
-
Bartels, D.M.1
-
15
-
-
72449180269
-
-
(accessed 27 March 2012)
-
BBC report 2009. 'Rise in measles "very worrying"'. http: //news. bbc. co. uk/1/hi/ health/7872541. stm (accessed 27 March 2012)
-
(2009)
Rise in measles "very worrying"
-
-
BBC report1
-
17
-
-
0029377244
-
Principlism and its alleged competitors
-
Beauchamp, T. L. 1995. 'Principlism and its alleged competitors', Kennedy Institute of Ethics Journal 5 (3), 181-98
-
(1995)
Kennedy Institute of Ethics Journal
, vol.5
, Issue.3
, pp. 181-198
-
-
Beauchamp, T.L.1
-
19
-
-
1842364677
-
-
The Belmont Report: Ethical Principles and Guidelines for the protection of human subjects of research (accessed 27 March 2012)
-
The Belmont Report: Ethical Principles and Guidelines for the protection of human subjects of research 1979. National Institutes of Health. http: //ohsr. od. nih. gov/guidelines/belmont. html#ethical (accessed 27 March 2012)
-
(1979)
National Institutes of Health
-
-
-
20
-
-
36549010091
-
The Ethical challenges of direct to consumer testing
-
Berg, C. and Fryer-Edwards, K. 2008. 'The Ethical challenges of direct to consumer testing', Journal of Business Ethics 77: 17-31
-
(2008)
Journal of Business Ethics
, vol.77
, pp. 17-31
-
-
Berg, C.1
Fryer-Edwards, K.2
-
21
-
-
34548606831
-
Finding criminals through DNA of their relatives
-
online, (accessed 27 March 2012)
-
Bieber, F. R., Brenner, C. H. and Lazer, D. 2006. 'Finding criminals through DNA of their relatives', Science online. http: //harvardextension. files. wordpress. com/2010/11/bieber-science. pdf (accessed 27 March 2012)
-
(2006)
Science
-
-
Bieber, F.R.1
Brenner, C.H.2
Lazer, D.3
-
23
-
-
84923123952
-
-
(accessed 27 March 2012)
-
BMA 2007b. 'Mental Capacity Act tool kit'. www. bma. org. uk/images/Mental CapacityToolKit%20July2008_tcm41-175571. pdf (accessed 27 March 2012)
-
(2007)
Mental Capacity Act tool kit
-
-
BMA1
-
24
-
-
59549101446
-
Charitable trusts and human research genetic databases: The way forward
-
Boggio, A. 2005. 'Charitable trusts and human research genetic databases: the way forward', Genomics Society and Policy 1: 41-9
-
(2005)
Genomics Society and Policy
, vol.1
, pp. 41-49
-
-
Boggio, A.1
-
26
-
-
82955163274
-
The right not to know: The case of psychiatric disorders
-
Bortolotti, L. and Widdows, H. 2011. 'The right not to know: the case of psychiatric disorders', Journal of Medical Ethics 37: 673-6
-
(2011)
Journal of Medical Ethics
, vol.37
, pp. 673-676
-
-
Bortolotti, L.1
Widdows, H.2
-
27
-
-
65849329049
-
My station and its duties
-
Oxford University Press
-
Bradley, F. H. 1927. 'My station and its duties' in Ethical Studies. Oxford University Press, pp. 160-213
-
(1927)
Ethical Studies
, pp. 160-213
-
-
Bradley, F.H.1
-
32
-
-
85017000648
-
Biobanks, national identity and imagined communities: The case of UK Biobank
-
Busby, H. and Martin, P. 2006. 'Biobanks, national identity and imagined communities: the case of UK Biobank', Science as Culture 15: 237-51
-
(2006)
Science as Culture
, vol.15
, pp. 237-251
-
-
Busby, H.1
Martin, P.2
-
33
-
-
0142010658
-
Principlism and communitarianism
-
Callahan, D. 2003. 'Principlism and communitarianism', Journal of Medical Ethics 29: 287-91
-
(2003)
Journal of Medical Ethics
, vol.29
, pp. 287-291
-
-
Callahan, D.1
-
34
-
-
7644232196
-
The social and ethical issues of post-genomic human biobanks
-
Cambon-Thomsen, A. 2004. 'The social and ethical issues of post-genomic human biobanks', Nature Reviews Genetics 5: 866-73
-
(2004)
Nature Reviews Genetics
, vol.5
, pp. 866-873
-
-
Cambon-Thomsen, A.1
-
35
-
-
33845354052
-
Trends in ethical and legal frameworks for the use of human biobanks
-
Cambon-Thomsen, A., Rial-Sebbag, E., and Knoppers, B. M. 2007. 'Trends in ethical and legal frameworks for the use of human biobanks', European Respiratory Journal 30, 2: 373-82
-
(2007)
European Respiratory Journal
, vol.30
, Issue.2
, pp. 373-382
-
-
Cambon-Thomsen, A.1
Rial-Sebbag, E.2
Knoppers, B.M.3
-
38
-
-
72949101557
-
Climate change and the future: Time, wealth and risk
-
Caney, S. 2009. 'Climate change and the future: time, wealth and risk', Journal of Social Philosophy 40: 163-86
-
(2009)
Journal of Social Philosophy
, vol.40
, pp. 163-186
-
-
Caney, S.1
-
40
-
-
53049109052
-
Meeting the challenge of antibiotic resistance
-
Cars, O., Diaz Högberg, L., Murray, M., Nordberg, O., Sivaraman, S., Stålsby, C., Lundborg, A., So, A. D. and Tomson, G. 2008. 'Meeting the challenge of antibiotic resistance', British Medical Journal 337: 1438
-
(2008)
British Medical Journal
, vol.337
, pp. 1438
-
-
Cars, O.1
Diaz Högberg, L.2
Murray, M.3
Nordberg, O.4
Sivaraman, S.5
Stålsby, C.6
Lundborg, A.7
So, A.D.8
Tomson, G.9
-
41
-
-
84923134263
-
-
(accessed 27March 2012)
-
CARTaGENE. www. cartagene. qc. ca/index. php?lang=english (accessed 27March 2012)
-
-
-
CARTaGENE1
-
42
-
-
84937294620
-
The independent value of freedom
-
Carter, I. 1995. 'The independent value of freedom', Ethics 105: 819-45
-
(1995)
Ethics
, vol.105
, pp. 819-845
-
-
Carter, I.1
-
43
-
-
51349133577
-
Alternative consent models for biobanks: The new Spanish law on biomedical research
-
Casado Da Rocha, A. and Seoane, J. A. 2008. 'Alternative consent models for biobanks: the new Spanish law on biomedical research', Bioethics 22: 440-47
-
(2008)
Bioethics
, vol.22
, pp. 440-447
-
-
Casado Da Rocha, A.1
Seoane, J.A.2
-
44
-
-
66749192419
-
My sister's keeper?: Genomic research and the identifiability of siblings
-
(accessed 27 March 2012)
-
Cassa, C., Schmidt, B. and Kohane, I. 2008. 'My sister's keeper?: genomic research and the identifiability of siblings', BMC medical genomics. www. biomedcentral. com/1755-8794/1/32 (accessed 27 March 2012)
-
(2008)
BMC medical genomics
-
-
Cassa, C.1
Schmidt, B.2
Kohane, I.3
-
45
-
-
0038785587
-
Limiting factors impacting on voluntary first person informed consent in the Philippines
-
Castillio, F. A. 2002. 'Limiting factors impacting on voluntary first person informed consent in the Philippines', Developing World Bioethics 2 (1): 21-7
-
(2002)
Developing World Bioethics
, vol.2
, Issue.1
, pp. 21-27
-
-
Castillio, F.A.1
-
47
-
-
47149093366
-
Challenging a well established consent norm?: One time consent for biobank research
-
Caulfield, T., Brown, R. B. and Meslin, E. M. 2007. 'Challenging a well established consent norm?: one time consent for biobank research', Journal of International Biotechnology Law 4: 69-74
-
(2007)
Journal of International Biotechnology Law
, vol.4
, pp. 69-74
-
-
Caulfield, T.1
Brown, R.B.2
Meslin, E.M.3
-
48
-
-
41849095185
-
Research ethics recommendations for whole-genome research: Consensus statement
-
(accessed 27 March 2012)
-
Caulfield, T., McGuire, A. L., Cho, M., Buchanan, J. A. and Burgess, M. M. 2008. 'Research ethics recommendations for whole-genome research: consensus statement', PLoS Biology 6: e73. www. plosbiology. org/article/info% 3Adoi%2F10. 1371%2Fjournal. pbio. 0060073 (accessed 27 March 2012)
-
(2008)
PLoS Biology
, vol.6
-
-
Caulfield, T.1
McGuire, A.L.2
Cho, M.3
Buchanan, J.A.4
Burgess, M.M.5
-
50
-
-
84923134260
-
-
(version), (accessed 28 March)
-
CBD (Convention on Biological Diversity) 1992 (version). www. cbd. int/doc/ legal/cbd-en. pdf (accessed 28 March)
-
(1992)
-
-
CBD (Convention on Biological Diversity)1
-
54
-
-
85145112057
-
The right to know and the right not to know-ten years on
-
Rehmann-Sutter, C. and Müller, H. (eds.), Aldershot: Ashgate
-
Chadwick, R. 2009. 'The right to know and the right not to know-ten years on' in Rehmann-Sutter, C. and Müller, H. (eds.), Disclosure Dilemmas: Ethics of Genetic Prognosis After the 'Right to Know/Not to Know' Debate. Aldershot: Ashgate, pp. 9-19
-
(2009)
Disclosure Dilemmas: Ethics of Genetic Prognosis After the 'Right to Know/Not to Know' Debate
, pp. 9-19
-
-
Chadwick, R.1
-
55
-
-
0035318620
-
Solidarity and equity: New ethical frameworks for genetic databases
-
Chadwick, R. and Berg, K. 2001. 'Solidarity and equity: new ethical frameworks for genetic databases', Nature Reviews Genetics 2: 318-21
-
(2001)
Nature Reviews Genetics
, vol.2
, pp. 318-321
-
-
Chadwick, R.1
Berg, K.2
-
57
-
-
0037216727
-
Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients
-
Claes, E., Evers-Kiebooms, G., Boogaerts, A., Decruyenaere, M., Denayer, L. and Eric Legius, E. 2003. 'Communication with close and distant relatives in the context of genetic testing for hereditary breast and ovarian cancer in cancer patients', American Journal of Medical Genetics 116: 11-19
-
(2003)
American Journal of Medical Genetics
, vol.116
, pp. 11-19
-
-
Claes, E.1
Evers-Kiebooms, G.2
Boogaerts, A.3
Decruyenaere, M.4
Denayer, L.5
Eric Legius, E.6
-
58
-
-
0029593384
-
Identification of bodies from the scene of a mass disaster using DNA amplification of short tandem repeat (STR) loci
-
Clayton, T. M., Whitaker, J. P. and Maguire, C. N. 1995. 'Identification of bodies from the scene of a mass disaster using DNA amplification of short tandem repeat (STR) loci', Forensic Science International 76: 7-15
-
(1995)
Forensic Science International
, vol.76
, pp. 7-15
-
-
Clayton, T.M.1
Whitaker, J.P.2
Maguire, C.N.3
-
61
-
-
80855125005
-
Lost property? Legal compensation for destroyed sperm: A reflection and comparison drawing on UK and French perspectives
-
Cordell, S., Widdows, H., Bellivier, F. and Noiville, C. 2011. 'Lost property? Legal compensation for destroyed sperm: a reflection and comparison drawing on UK and French perspectives', Journal of Medical Ethics 37: 747-51
-
(2011)
Journal of Medical Ethics
, vol.37
, pp. 747-751
-
-
Cordell, S.1
Widdows, H.2
Bellivier, F.3
Noiville, C.4
-
62
-
-
15044342044
-
Pharmacogenetics, ethical issues: Review of the Nuffield Council on Bioethics Report
-
Corrigan, O. P. 2004. 'Pharmacogenetics, ethical issues: review of the Nuffield Council on Bioethics Report', Journal of Medical Ethics, 31: 144-8
-
(2004)
Journal of Medical Ethics
, vol.31
, pp. 144-148
-
-
Corrigan, O.P.1
-
64
-
-
51149088120
-
Whole-genome data not anonymous, challenging assumptions
-
Couzin, J. 2008. 'Whole-genome data not anonymous, challenging assumptions', Science 321: 1278
-
(2008)
Science
, vol.321
, pp. 1278
-
-
Couzin, J.1
-
65
-
-
77955155561
-
Identifiability, genomics and UK Data Protection law
-
Curren, L., Boddington, P., Gowans, H., Hawkins, N., Kanellopoulou, N., Kaye, J. and Melham, K. 2010. 'Identifiability, genomics and UK Data Protection law', European Journal of Health Law 17: 329-44
-
(2010)
European Journal of Health Law
, vol.17
, pp. 329-344
-
-
Curren, L.1
Boddington, P.2
Gowans, H.3
Hawkins, N.4
Kanellopoulou, N.5
Kaye, J.6
Melham, K.7
-
66
-
-
5444242007
-
Genetic research & communal narratives
-
(accessed 27March 2012)
-
Davis, D. S. 2004. 'Genetic research & communal narratives', The Hastings Center Report: 40-49. www. thehastingscenter. org/pdf/publications/hcr_jul_aug_ 2004_article1. pdf (accessed 27March 2012)
-
(2004)
The Hastings Center Report
, pp. 40-49
-
-
Davis, D.S.1
-
67
-
-
0032922146
-
Impact of therapeutic research on informed consent and the ethics of clinical trials: A medical oncology perspective
-
Daugherty, C. 1999. 'Impact of therapeutic research on informed consent and the ethics of clinical trials: a medical oncology perspective', Journal of Clinical Oncology 17: 1601-17
-
(1999)
Journal of Clinical Oncology
, vol.17
, pp. 1601-1617
-
-
Daugherty, C.1
-
68
-
-
84923134255
-
-
(accessed 27 March 2012)
-
deCODEme. www. decodeme. com (accessed 27 March 2012)
-
-
-
-
71
-
-
0037642105
-
Commodification of human tissue: Implications for feminist and development ethics
-
Dickenson, D. 2002. 'Commodification of human tissue: Implications for feminist and development ethics', Developing World Bioethics 2: 55-63.
-
(2002)
Developing World Bioethics
, vol.2
, pp. 55-63
-
-
Dickenson, D.1
-
72
-
-
9144245706
-
Consent, commodification & benefit sharing in genetic research
-
Dickenson, D. 2004. 'Consent, commodification & benefit sharing in genetic research', Developing World Bioethics 4: 109-24
-
(2004)
Developing World Bioethics
, vol.4
, pp. 109-124
-
-
Dickenson, D.1
-
73
-
-
84857075509
-
Philosophical assumptions and presumptions about trafficking for prostitution
-
van den Anker, C. and Doomernick, J. (eds.), London: Palgrave
-
Dickenson, D. 2006. 'Philosophical assumptions and presumptions about trafficking for prostitution' in van den Anker, C. and Doomernick, J. (eds.) Trafficking and Women's Rights. London: Palgrave, pp. 43-53
-
(2006)
Trafficking and Women's Rights
, pp. 43-53
-
-
Dickenson, D.1
-
82
-
-
84923128033
-
-
(eds.), Farnham: Ashgate
-
Elger, B., Biller-Andorno, N., Mauron, A. and Capron, A. M. (eds.) 2008. Guidelines on Biobanks: Emerging Consensus and Unresolved Controversies in Ethical Issues in Governing Biobanks: Global Perspectives. Farnham: Ashgate
-
(2008)
Guidelines on Biobanks: Emerging Consensus and Unresolved Controversies in Ethical Issues in Governing Biobanks: Global Perspectives
-
-
Elger, B.1
Biller-Andorno, N.2
Mauron, A.3
Capron, A.M.4
-
83
-
-
33745596413
-
Consent and anonymization in research involving biobanks: Differing terms and norms present serious barriers to an international framework
-
Elger, B. and Caplan, A. L. 2006. 'Consent and anonymization in research involving biobanks: Differing terms and norms present serious barriers to an international framework', EMBO Reports 7: 661-6
-
(2006)
EMBO Reports
, vol.7
, pp. 661-666
-
-
Elger, B.1
Caplan, A.L.2
-
84
-
-
0032516615
-
Physicians wary of scheme to pool Icelanders' genetic data
-
Enserink, M. 1998. 'Physicians wary of scheme to pool Icelanders' genetic data', Science 281: 890-91
-
(1998)
Science
, vol.281
, pp. 890-891
-
-
Enserink, M.1
-
85
-
-
27244459748
-
Potential harms, anonymization, and the right to withdraw consent to biobank research
-
Eriksson, S. and Helgesson, G. 2005. 'Potential harms, anonymization, and the right to withdraw consent to biobank research', European Journal of Human Genetics 13: 1071-6
-
(2005)
European Journal of Human Genetics
, vol.13
, pp. 1071-1076
-
-
Eriksson, S.1
Helgesson, G.2
-
87
-
-
84923134253
-
-
(accessed 27 March 2012)
-
Estonian Genome Project. www. genomics. ee/files/menu/egp. pdf (accessed 27 March 2012)
-
-
-
Estonian Genome Project1
-
88
-
-
0034277858
-
A sociological account of the growth of principlism
-
Evans, J. H. 2000. A sociological account of the growth of principlism. Hastings Center Report, 30 (5): 31-8
-
(2000)
Hastings Center Report
, vol.30
, Issue.5
, pp. 31-38
-
-
Evans, J.H.1
-
90
-
-
0030590749
-
Resistance to HIV-1 infection among persistently seronegative prostitutes in Nairobi, Kenya
-
Fowke, K. R., Nagelkerke, N. J., Kimani, J., Simonsen, J. N., Anzala, A. O., Bwayo, J. J., MacDonald, K. S., Ngugi, E. N. and Plummer, F. A. 1996. 'Resistance to HIV-1 infection among persistently seronegative prostitutes in Nairobi, Kenya', Lancet 348: 1347-51
-
(1996)
Lancet
, vol.348
, pp. 1347-1351
-
-
Fowke, K.R.1
Nagelkerke, N.J.2
Kimani, J.3
Simonsen, J.N.4
Anzala, A.O.5
Bwayo, J.J.6
McDonald, K.S.7
Ngugi, E.N.8
Plummer, F.A.9
-
91
-
-
1642495086
-
Freedom of the will and the concept of a person
-
Christman, J. (ed.), New York, NY: Oxford University Press
-
Frankfurt, H. 1989. 'Freedom of the will and the concept of a person' in Christman, J. (ed.), The Inner Citadel: Essays on Individual Autonomy. New York, NY: Oxford University Press
-
(1989)
The Inner Citadel: Essays on Individual Autonomy
-
-
Frankfurt, H.1
-
92
-
-
77952294318
-
Meeting the governance challenges of next-generation
-
Fullerton, S. M., Anderson, N. R., Guzauskas, G., Freeman, D. and Fryer-Edwards, K. 2010. 'Meeting the governance challenges of next-generation', Biorepository Research Science Translational Medicine 2: 15
-
(2010)
Biorepository Research Science Translational Medicine
, vol.2
, pp. 15
-
-
Fullerton, S.M.1
Anderson, N.R.2
Guzauskas, G.3
Freeman, D.4
Fryer-Edwards, K.5
-
93
-
-
84923184844
-
-
Elger, Biller-Andorno, Mauron and Capron (eds.)
-
Ganguli-Mitra, A. 2008. 'Benefit sharing and remuneration' in Elger, Biller-Andorno, Mauron and Capron (eds.), pp. 121-30
-
(2008)
Benefit sharing and remuneration
, pp. 121-130
-
-
Ganguli-Mitra, A.1
-
94
-
-
84875806023
-
-
(accessed 27 March 2012)
-
Generation Scotland. www. generationscotland. org/ (accessed 27 March 2012)
-
Generation Scotland
-
-
-
96
-
-
37349033561
-
Are UK genetic databases governed adequately? A comparative legal analysis
-
Gibbons, S. 2007. 'Are UK genetic databases governed adequately? A comparative legal analysis', Legal Studies, 27: 312-42
-
(2007)
Legal Studies
, vol.27
, pp. 312-342
-
-
Gibbons, S.1
-
97
-
-
34248382480
-
Governing genetic databases: Challenges facing research regulation and practice
-
Gibbons, S., Kaye, J., Smart, A., Heeney, C. and Parker, M. 2007. 'Governing genetic databases: Challenges facing research regulation and practice', Journal of Law and Society 34: 163-89
-
(2007)
Journal of Law and Society
, vol.34
, pp. 163-189
-
-
Gibbons, S.1
Kaye, J.2
Smart, A.3
Heeney, C.4
Parker, M.5
-
98
-
-
0004108381
-
-
Cambridge, MA: Harvard University Press
-
Gilligan, C. 1982. in a Different Voice. Cambridge, MA: Harvard University Press
-
(1982)
A Different Voice
-
-
Gilligan, C.1
-
100
-
-
0142074351
-
Ethics needs principles-four can encompass the rest-and respect for autonomy should be first among equals
-
Gilligan, C. 2003. 'Ethics needs principles-four can encompass the rest-and respect for autonomy should be first among equals', Journal of Medical Ethics 13: 307-12
-
(2003)
Journal of Medical Ethics
, vol.13
, pp. 307-312
-
-
Gilligan, C.1
-
101
-
-
0035575568
-
Personalized medicine: Revolutionizing drug discovery and patient care
-
Ginsburg, G. S. and McCarthy, J. J. 2001. 'Personalized medicine: revolutionizing drug discovery and patient care', Trends in Biotechnology 19: 491-6
-
(2001)
Trends in Biotechnology
, vol.19
, pp. 491-496
-
-
Ginsburg, G.S.1
McCarthy, J.J.2
-
104
-
-
66349111754
-
Historical emissions and free riding
-
Gosseries, A. 2004. 'Historical emissions and free riding', Ethical Perspectives 11: 36-60
-
(2004)
Ethical Perspectives
, vol.11
, pp. 36-60
-
-
Gosseries, A.1
-
105
-
-
0012991481
-
Human biological samples and the laws of property
-
Weir, R. F. (ed.), University of Iowa Press
-
Gottlieb, K. 1988. 'Human biological samples and the laws of property' in Weir, R. F. (ed.), Stored tissue samples. University of Iowa Press, pp. 182-97
-
(1988)
Stored tissue samples
, pp. 182-197
-
-
Gottlieb, K.1
-
107
-
-
0037009917
-
Economic and health consequences of selling a kidney
-
Goyal, M., Mehta, R. L., Schneiderman, L. J. and Sehgal, R. A. 2002. 'Economic and health consequences of selling a kidney', Journal of the American Medical Association 288: 1589-93
-
(2002)
Journal of the American Medical Association
, vol.288
, pp. 1589-1593
-
-
Goyal, M.1
Mehta, R.L.2
Schneiderman, L.J.3
Sehgal, R.A.4
-
109
-
-
1842620311
-
Iceland's plan for genomics research: Facts and implications
-
Greely, H. T. 2000. 'Iceland's plan for genomics research: facts and implications', Jurimetrics 40: 153-91
-
(2000)
Jurimetrics
, vol.40
, pp. 153-191
-
-
Greely, H.T.1
-
110
-
-
0035679044
-
Informed consent and other ethical issues in human population genetics
-
Greely, H. T. 2001. 'Informed consent and other ethical issues in human population genetics', Annual Review of Genetics 35: 785-800
-
(2001)
Annual Review of Genetics
, vol.35
, pp. 785-800
-
-
Greely, H.T.1
-
111
-
-
38449089111
-
The uneasy ethical and legal underpinnings of large-scale genomic biobanks
-
Greely, H. T. 2007. 'The uneasy ethical and legal underpinnings of large-scale genomic biobanks', Annual Review of Genomics, Human Genetics 8: 344-64
-
(2007)
Annual Review of Genomics, Human Genetics
, vol.8
, pp. 344-364
-
-
Greely, H.T.1
-
112
-
-
56049112782
-
Genomic anonymity: Have we already lost?
-
Greenbaum, D., Du, J. and Gerstein, M. 2008. 'Genomic anonymity: have we already lost?', The American Journal of Bioethics 8: 71-81
-
(2008)
The American Journal of Bioethics
, vol.8
, pp. 71-81
-
-
Greenbaum, D.1
Du, J.2
Gerstein, M.3
-
113
-
-
38149050660
-
Carrier screening in individuals of Ashkenazi Jewish descent
-
Gross, S. J., Pletcher, B. A. and Monaghan, K. G. 2008. 'Carrier screening in individuals of Ashkenazi Jewish descent', Genetics in Medicine 10: 54-6.
-
(2008)
Genetics in Medicine
, vol.10
, pp. 54-56
-
-
Gross, S.J.1
Pletcher, B.A.2
Monaghan, K.G.3
-
114
-
-
84900197525
-
Establishment of the Swiss Pediatric Oncology Group Tumor Bank
-
Grotzer, M. A., Shalaby, T., Poledna, T. and the Swiss Pediatric Oncology Group (SPOG) 2003. 'Establishment of the Swiss Pediatric Oncology Group Tumor Bank', SIAK SPOG 180-84
-
(2003)
SIAK SPOG
, pp. 180-184
-
-
Grotzer, M.A.1
Shalaby, T.2
Poledna, T.3
The Swiss Pediatric Oncology Group (SPOG)4
-
116
-
-
80055008544
-
-
(accessed 27 March 2012)
-
GSK (GlaxoSmithKline). 2010. 'Corporate responsibility report'. www. gsk. com/ responsibility/cr-report-2010/access-to-medicines/flexible-pricing/least-deve loped-countries. htm (accessed 27 March 2012)
-
(2010)
Corporate responsibility report
-
-
GSK (GlaxoSmithKline)1
-
117
-
-
0033854681
-
Ethical-legal problems of DNA databases in criminal investigation
-
Guillén, M., Victoria Lareu, M., Pestoni, C., Salas, A. and Carracedo, A. 2000. 'Ethical-legal problems of DNA databases in criminal investigation', Journal of Medical Ethics 26: 266-71
-
(2000)
Journal of Medical Ethics
, vol.26
, pp. 266-271
-
-
Guillén, M.1
Victoria Lareu, M.2
Pestoni, C.3
Salas, A.4
Carracedo, A.5
-
118
-
-
0034659688
-
The Icelandic Healthcare Database and informed consent
-
Gulcher, J. R. and Steffanson, K. 2000. 'The Icelandic Healthcare Database and informed consent', New England Journal of Medicine 342: 1827-30
-
(2000)
New England Journal of Medicine
, vol.342
, pp. 1827-1830
-
-
Gulcher, J.R.1
Steffanson, K.2
-
120
-
-
0001992170
-
Three normative models of democracy
-
Habermas, J. 1994. 'Three normative models of democracy', Constellations 1: 1-10.
-
(1994)
Constellations
, vol.1
, pp. 1-10
-
-
Habermas, J.1
-
121
-
-
33845426499
-
Tackling community concerns about commercialisation and genetic research: A modest interdisciplinary proposal
-
Haddow, G., Laurie, G., Cunningham-Burley, S. and Hunter, K. G. 2007. 'Tackling community concerns about commercialisation and genetic research: A modest interdisciplinary proposal', Social Science & Medicine 64: 272-82
-
(2007)
Social Science & Medicine
, vol.64
, pp. 272-282
-
-
Haddow, G.1
Laurie, G.2
Cunningham-Burley, S.3
Hunter, K.G.4
-
122
-
-
0033181470
-
Doing the right thing: Genetic risk and responsibility
-
Hallowell, N. 1999. 'Doing the right thing: genetic risk and responsibility', Sociology of Health & Illness 21: 597-621
-
(1999)
Sociology of Health & Illness
, vol.21
, pp. 597-621
-
-
Hallowell, N.1
-
124
-
-
21744444956
-
Building on relationships of trust in biobank research
-
Hansson, M. G. 2005. 'Building on relationships of trust in biobank research', Journal of Medical Ethics 35: 415-18
-
(2005)
Journal of Medical Ethics
, vol.35
, pp. 415-418
-
-
Hansson, M.G.1
-
125
-
-
33344475590
-
Should donors be allowed to give broad consent to future biobank research?
-
Hansson, M. G., Dillner, J., Bartram, C. R., Carlson, J. A., Helgesson, G. 2006. 'Should donors be allowed to give broad consent to future biobank research?', Lancet Oncology 7: 266-9
-
(2006)
Lancet Oncology
, vol.7
, pp. 266-269
-
-
Hansson, M.G.1
Dillner, J.2
Bartram, C.R.3
Carlson, J.A.4
Helgesson, G.5
-
127
-
-
85011514343
-
Yearworth vs North Bristol NHS Trust: Property, principles, precedents and paradigms
-
Harmon, S. H. E. and Laurie, G. T. 2010. 'Yearworth vs North Bristol NHS Trust: property, principles, precedents and paradigms', Cambridge Law Journal 69: 476-93
-
(2010)
Cambridge Law Journal
, vol.69
, pp. 476-493
-
-
Harmon, S.H.E.1
Laurie, G.T.2
-
129
-
-
79957618656
-
Direct to consumer genetic testing
-
Hauskeller, C. 2011. 'Direct to consumer genetic testing', British Medical Journal 342: 2317
-
(2011)
British Medical Journal
, vol.342
, pp. 2317
-
-
Hauskeller, C.1
-
130
-
-
84923134250
-
-
Official website, (accessed 27 March 2012)
-
Havasupai Tribe. Official website. www. havasupai-nsn. gov/index. html (accessed 27 March 2012)
-
-
-
Havasupai Tribe1
-
131
-
-
67349132836
-
Data sharing in genomics-re-shaping scientific practice
-
Hawkins, N., de Vries, J. and Boddington, P. 2009. 'Data sharing in genomics-re-shaping scientific practice', Nature Reviews Genetics 10: 331-5
-
(2009)
Nature Reviews Genetics
, vol.10
, pp. 331-335
-
-
Hawkins, N.1
de Vries, J.2
Boddington, P.3
-
132
-
-
0035673104
-
Genetic information, rights, and autonomy
-
Häyry, M. and Takala, T. 2001. 'Genetic information, rights, and autonomy', Theoretical Medicine 22: 403-14
-
(2001)
Theoretical Medicine
, vol.22
, pp. 403-414
-
-
Häyry, M.1
Takala, T.2
-
135
-
-
60149102137
-
Broadening consent-and diluting ethics?
-
Hofmann, B. 2009. 'Broadening consent-and diluting ethics?', Journal of Medical Ethics 35: 125-9
-
(2009)
Journal of Medical Ethics
, vol.35
, pp. 125-129
-
-
Hofmann, B.1
-
136
-
-
52949089274
-
The current landscape for direct-toconsumer genetic testing: Legal, ethical, and policy issues
-
Hogarth, S., Javitt, G. and Melzer, D. 2008. 'The current landscape for direct-toconsumer genetic testing: legal, ethical, and policy issues', Annual Review of Genomics and Human Genetics 9: 161-82
-
(2008)
Annual Review of Genomics and Human Genetics
, vol.9
, pp. 161-182
-
-
Hogarth, S.1
Javitt, G.2
Melzer, D.3
-
139
-
-
34250376147
-
Should genetic information be disclosed to insurers? Yes
-
Holm, S. 2007. 'Should genetic information be disclosed to insurers? Yes', British Medical Journal 334: 1196
-
(2007)
British Medical Journal
, vol.334
, pp. 1196
-
-
Holm, S.1
-
140
-
-
80855139728
-
Withdrawing from research-a rethink in the context of research biobanks
-
Holm, S. 2011. 'Withdrawing from research-a rethink in the context of research biobanks', HealthCare Analysis 19: 207-19
-
(2011)
HealthCare Analysis
, vol.19
, pp. 207-219
-
-
Holm, S.1
-
141
-
-
50849101381
-
Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays
-
(accessed 27March 2012)
-
Homer, N., Szelinger, S., Redman, M., Duggan, D., Tembe, W., Muehling, J., Pearson, J. V., Stephan, D. A., Nelson, S. F. and Craig, D. W. 2008. 'Resolving individuals contributing trace amounts of DNA to highly complex mixtures using high-density SNP genotyping microarrays', PLoS Genetics 4. www. plosgenetics. org/article/info%3Adoi%2F10. 1371%2Fjournal. pgen. 1000 167#references (accessed 27March 2012)
-
(2008)
PLoS Genetics
, pp. 4
-
-
Homer, N.1
Szelinger, S.2
Redman, M.3
Duggan, D.4
Tembe, W.5
Muehling, J.6
Pearson, J.V.7
Stephan, D.A.8
Nelson, S.F.9
Craig, D.W.10
-
142
-
-
77955960025
-
-
(accessed 28 March 2012)
-
HTA (Human Tissue Authority). 2009. Code of Practice 1 Consent. www. hta. gov. uk/legislationpoliciesandcodesofpractice/codesofpractice/code1consent. cfm (accessed 28 March 2012)
-
(2009)
Code of Practice 1 Consent
-
-
HTA (Human Tissue Authority)1
-
143
-
-
0011026327
-
Statement on the principle conduct of genetics research
-
HUGO. 1996. 'Statement on the principle conduct of genetics research', Eubios Journal of Asian and International Bioethics 6: 59-60
-
(1996)
Eubios Journal of Asian and International Bioethics
, vol.6
, pp. 59-60
-
-
HUGO1
-
145
-
-
79952927761
-
Involving publics in biobank governance: Moving beyond existing approaches
-
Widdows, H. and Mullen, C. (eds.) 2009, Cambridge University Press
-
Hunter, K. G. and Laurie, G. 2009. 'Involving publics in biobank governance: moving beyond existing approaches' in Widdows, H. and Mullen, C. (eds.) 2009. The Governance of Genetic Information: Who Decides? Cambridge University Press
-
(2009)
The Governance of Genetic Information: Who Decides?
-
-
Hunter, K.G.1
Laurie, G.2
-
148
-
-
0001999169
-
Autonomy and a right not to know
-
Chadwick R., Levitt, M. and Shickle D. (eds.), Aldershot: Ashgate
-
Husted, J. 1997. 'Autonomy and a right not to know' in Chadwick R., Levitt, M. and Shickle D. (eds.) The Right to Know and the Right Not to Know. Aldershot: Ashgate pp. 55-68
-
(1997)
The Right to Know and the Right Not to Know
, pp. 55-68
-
-
Husted, J.1
-
150
-
-
0003466858
-
-
G. A. res. 2200A (XXI), 21 U. N. GAOR Supp. (No. 16) at 52, U. N. Doc. A/6316 (1966), 999 U. N. T. S. 171, entered into force 23 March, (accessed 27 March 2012)
-
International Covenant on Civil and Political Rights, G. A. res. 2200A (XXI), 21 U. N. GAOR Supp. (No. 16) at 52, U. N. Doc. A/6316 (1966), 999 U. N. T. S. 171, entered into force 23 March 1976. www1. umn. edu/humanrts/instree/ b3ccpr. htm (accessed 27 March 2012)
-
(1976)
International Covenant on Civil and Political Rights
-
-
-
152
-
-
1342306219
-
Paid transplants in India: The grim reality
-
Jha, V. 2004. 'Paid transplants in India: the grim reality', Nephrology Dialysis Transplantation 9: 541-3
-
(2004)
Nephrology Dialysis Transplantation
, vol.9
, pp. 541-543
-
-
Jha, V.1
-
153
-
-
0032920109
-
Human rights, group rights and peoples rights
-
Jones, P. 1999a. 'Human rights, group rights and peoples rights', Human Rights Quarterly, 21: 80-107
-
(1999)
Human Rights Quarterly
, vol.21
, pp. 80-107
-
-
Jones, P.1
-
155
-
-
0036518208
-
Reproductive options for individuals at risk for transmission of a genetic disorder
-
Jones, S. L. and Fallon, L. 2002. 'Reproductive options for individuals at risk for transmission of a genetic disorder', Journal of Obstetric, Gynecologic, & Neonatal Nursing 31: 193-9
-
(2002)
Journal of Obstetric, Gynecologic, & Neonatal Nursing
, vol.31
, pp. 193-199
-
-
Jones, S.L.1
Fallon, L.2
-
156
-
-
0032087285
-
Groups as gatekeepers to genomic research: Conceptually confusing, morally hazardous, and practically useless
-
Juengst, E. T. 1998. 'Groups as gatekeepers to genomic research: conceptually confusing, morally hazardous, and practically useless', Kennedy Institute of Ethics Journal 8: 183-200
-
(1998)
Kennedy Institute of Ethics Journal
, vol.8
, pp. 183-200
-
-
Juengst, E.T.1
-
157
-
-
84923134247
-
Community engagement in genetic research: The "slow code" of research ethics?
-
Knoppers, B. M. (ed.), Boston, MA: Brill
-
Juengst, E. T. 2003. 'Community engagement in genetic research: the "slow code" of research ethics?' in Knoppers, B. M. (ed.) Population and Genetics: Socio-Legal Perspectives. Boston, MA: Brill
-
(2003)
Population and Genetics: Socio-Legal Perspectives
-
-
Juengst, E.T.1
-
158
-
-
84923134246
-
Genetic diagnostic, pedigree and screening research
-
Emanuel, E., Grady, C., Lie, R., Miller, F. and Wendler, D. (eds.)., Oxford University Press
-
Juengst, E. and Goldenberg, A. 2008. 'Genetic diagnostic, pedigree and screening research' in Emanuel, E., Grady, C., Lie, R., Miller, F. and Wendler, D. (eds.). The Oxford Textbook on The Ethics of Clinical Research. Oxford University Press, pp. 298-315
-
(2008)
The Oxford Textbook on The Ethics of Clinical Research
, pp. 298-315
-
-
Juengst, E.1
Goldenberg, A.2
-
159
-
-
31344467157
-
Do we need a uniform regulatory system for biobanks across Europe?
-
Kaye, J. 2006. 'Do we need a uniform regulatory system for biobanks across Europe?' European Journal of Human Genetics 14: 245-8
-
(2006)
European Journal of Human Genetics
, vol.14
, pp. 245-248
-
-
Kaye, J.1
-
160
-
-
58149327181
-
The regulation of direct-to-consumer genetic tests
-
Kaye, J. 2008. 'The regulation of direct-to-consumer genetic tests', Human Molecular Genetics 17: 180-83
-
(2008)
Human Molecular Genetics
, vol.17
, pp. 180-183
-
-
Kaye, J.1
-
161
-
-
80053307605
-
From single biobanks to international networks: Developing e-governance
-
(accessed 27 March 2012)
-
Kaye, J. 2011. 'From single biobanks to international networks: developing e-governance', Human Genetics 130: 377-82. www. ncbi. nlm. nih. gov/pmc/articles/PMC3155 683/pdf/439_2011_Article_1063. pdf (accessed 27 March 2012)
-
(2011)
Human Genetics
, vol.130
, pp. 377-382
-
-
Kaye, J.1
-
162
-
-
77949653046
-
Ethical implications of the use of whole genome methods in medical research
-
Kaye, J., Boddington, P., de Vries, J., Hawkins, N. and Melham, K. 2010. 'Ethical implications of the use of whole genome methods in medical research', European Journal of Human Genetics 18: 398-403
-
(2010)
European Journal of Human Genetics
, vol.18
, pp. 398-403
-
-
Kaye, J.1
Boddington, P.2
de Vries, J.3
Hawkins, N.4
Melham, K.5
-
163
-
-
67349132836
-
Data Sharing in genomics-re-shaping scientific practice
-
(accessed 28 March)
-
Kaye, J., Heeney, C., Hawkins, J. and Boddington, P. 2009. 'Data Sharing in genomics-re-shaping scientific practice', National Review of Genetics 10 (5): 331-5. www. ncbi. nlm. nih. gov/pmc/articles/PMC2672783/pdf/ukmss-4610. pdf (accessed 28 March)
-
(2009)
National Review of Genetics
, vol.10
, Issue.5
, pp. 331-335
-
-
Kaye, J.1
Heeney, C.2
Hawkins, J.3
Boddington, P.4
-
164
-
-
0034605757
-
Safeguards for research using large scale DNA collections
-
Kaye, J. and Martin, P. 2000. 'Safeguards for research using large scale DNA collections', British Medical Journal 321: 1146-9
-
(2000)
British Medical Journal
, vol.321
, pp. 1146-1149
-
-
Kaye, J.1
Martin, P.2
-
165
-
-
34249950821
-
Decision-making about reproductive choices among individuals at-risk for Huntington's Disease
-
Knome, (accessed 27 March 2012)
-
Klitzman, R., Thorne, D., Williamson, J., Chung, W. and Marder, K. 2007. 'Decision-making about reproductive choices among individuals at-risk for Huntington's Disease', Journal of Genetic Counselling 16: 347-62 Knome. www. knome. com/ (accessed 27 March 2012)
-
(2007)
Journal of Genetic Counselling
, vol.16
, pp. 347-362
-
-
Klitzman, R.1
Thorne, D.2
Williamson, J.3
Chung, W.4
Marder, K.5
-
167
-
-
0001775966
-
Who should have access to genetic information
-
Burley J. (ed.), Oxford University Press
-
Knoppers, B. M. 1999. 'Who should have access to genetic information' in Burley J. (ed.) The Genetic Revolution and Human Rights. Oxford University Press
-
(1999)
The Genetic Revolution and Human Rights
-
-
Knoppers, B.M.1
-
168
-
-
77953122922
-
Consent to "personal" genomics and privacy
-
Knoppers, B. M. 2010. 'Consent to "personal" genomics and privacy', EMBO Report 11: 416-19
-
(2010)
EMBO Report
, vol.11
, pp. 416-419
-
-
Knoppers, B.M.1
-
169
-
-
10644282182
-
Human genetic research: Emerging trends in ethics
-
Knoppers, B. M. and Chadwick, R. 2005. 'Human genetic research: emerging trends in ethics', Nature 6: 75-9
-
(2005)
Nature
, vol.6
, pp. 75-79
-
-
Knoppers, B.M.1
Chadwick, R.2
-
172
-
-
3543113762
-
Ethics and vaccination
-
Krants, I., Sachs, L. and Nilstun, T. 2004. 'Ethics and vaccination', Scandinavian Journal of Public Health 32: 172-8
-
(2004)
Scandinavian Journal of Public Health
, vol.32
, pp. 172-178
-
-
Krants, I.1
Sachs, L.2
Nilstun, T.3
-
173
-
-
84954854006
-
Liberalism and communitarianism
-
Kymlicka, W. 1988. 'Liberalism and communitarianism', Canadian Journal of Philosophy 18: 181-204
-
(1988)
Canadian Journal of Philosophy
, vol.18
, pp. 181-204
-
-
Kymlicka, W.1
-
174
-
-
0032707829
-
New era of personalized medicine: Targeting drugs for each unique genetic profile
-
Langreth, R. and Waldholz, M. 1999. 'New era of personalized medicine: targeting drugs for each unique genetic profile', The Oncologist 4: 426-7
-
(1999)
The Oncologist
, vol.4
, pp. 426-427
-
-
Langreth, R.1
Waldholz, M.2
-
175
-
-
0029831202
-
Genetic discrimination: Perspectives of consumers
-
Lapham, E. V., Kozma, C., and Weiss, J. O. 1996. 'Genetic discrimination: perspectives of consumers', Science, 274: 621-4
-
(1996)
Science
, vol.274
, pp. 621-624
-
-
Lapham, E.V.1
Kozma, C.2
Weiss, J.O.3
-
177
-
-
84862703964
-
Benefit sharing and public trust in genetic research
-
Arnason, G., Nordal, S., Arnason, V. (eds.), Reykjavik: University of Iceland Press
-
Laurie, G. and Hunter, K. 2004. 'Benefit sharing and public trust in genetic research' in Arnason, G., Nordal, S., Arnason, V. (eds.) Blood and Data: Ethical Legal and Social Aspects of Human Genetic Databases. Reykjavik: University of Iceland Press, pp. 323-31
-
(2004)
Blood and Data: Ethical Legal and Social Aspects of Human Genetic Databases
, pp. 323-331
-
-
Laurie, G.1
Hunter, K.2
-
178
-
-
79951802866
-
Managing access to biobanks: How can we reconcile individual privacy and public interests in genetic research?
-
Laurie, G., Mallia, P., Frenkel, D. A., Krajewska, A., Moniz, H., Nordal, S., Pitz, C. and Sandor, J. 2010. 'Managing access to biobanks: how can we reconcile individual privacy and public interests in genetic research?', Medical Law International 10: 315-37
-
(2010)
Medical Law International
, vol.10
, pp. 315-337
-
-
Laurie, G.1
Mallia, P.2
Frenkel, D.A.3
Krajewska, A.4
Moniz, H.5
Nordal, S.6
Pitz, C.7
Sandor, J.8
-
179
-
-
80855130661
-
Respect for autonomy: Its demands and limits in biobanking
-
Law, I. 2011. 'Respect for autonomy: Its demands and limits in biobanking', HealthCare Analysis 19: 259-68
-
(2011)
HealthCare Analysis
, vol.19
, pp. 259-268
-
-
Law, I.1
-
180
-
-
33644691856
-
Icelandic decision of the Supreme Court on the protection of privacy with regard to the processing of health sector databases. Attorney at Law vs The State of Iceland
-
Law Review. 2004. 'Icelandic decision of the Supreme Court on the protection of privacy with regard to the processing of health sector databases. Attorney at Law vs The State of Iceland', Law and the Human Genomic Review 21: 127-38
-
(2004)
Law and the Human Genomic Review
, vol.21
, pp. 127-138
-
-
Review, L.1
-
181
-
-
77955660006
-
Public and biobank participant attitudes toward genetic research participation and data sharing
-
Lemke, A. A., Wolf, W. A., Hebert-Beirne, J. and Smith, M. E. 2010. 'Public and biobank participant attitudes toward genetic research participation and data sharing', Public Health Genomics 13: 368-77
-
(2010)
Public Health Genomics
, vol.13
, pp. 368-377
-
-
Lemke, A.A.1
Wolf, W.A.2
Hebert-Beirne, J.3
Smith, M.E.4
-
182
-
-
42549161987
-
Direct to consumer genetic testing: Knowing me, knowing you
-
Lenzer, J. and Brownlee, S. 2008. 'Direct to consumer genetic testing: knowing me, knowing you', British Medical Journal 336: 858-60
-
(2008)
British Medical Journal
, vol.336
, pp. 858-860
-
-
Lenzer, J.1
Brownlee, S.2
-
183
-
-
80855139727
-
Relating to participants: How close do biobanks and donors really want to be?
-
Levitt, M. 2011. 'Relating to participants: how close do biobanks and donors really want to be?', Health Care Analysis 19: 220-30
-
(2011)
Health Care Analysis
, vol.19
, pp. 220-230
-
-
Levitt, M.1
-
184
-
-
84923134245
-
-
(Sweden), (accessed 27 March 2012)
-
LifeGene (Sweden). http: //lifegene. ki. se/ (accessed 27 March 2012)
-
-
-
-
185
-
-
3042849144
-
Genomic research and human subject privacy
-
Lin, Z., Owen, A. B. and Altman, R. B. 2004. 'Genomic research and human subject privacy', Science 305: 183
-
(2004)
Science
, vol.305
, pp. 183
-
-
Lin, Z.1
Owen, A.B.2
Altman, R.B.3
-
187
-
-
0012196345
-
The legal status of genetic material
-
Knoppers, B. M. (ed.), The Hague: Kluwer Law International
-
Litman, M. M. 1997. 'The legal status of genetic material' in Knoppers, B. M. (ed.) Human DNA: Law and Policy. The Hague: Kluwer Law International, pp. 17-20
-
(1997)
Human DNA: Law and Policy
, pp. 17-20
-
-
Litman, M.M.1
-
189
-
-
34547779363
-
Identifiability in genomic research
-
Lowrance, W. W. and Collins, F. S. 2007. 'Identifiability in genomic research', Science 317: 600-602
-
(2007)
Science
, vol.317
, pp. 600-602
-
-
Lowrance, W.W.1
Collins, F.S.2
-
190
-
-
42349088372
-
From genetic privacy to open consent
-
Lunshof, J. E., Chadwick, R., Vorhaus, D. B. and Church, G. M. 2008. 'From genetic privacy to open consent', Nature Reviews Genetics 9: 406-11
-
(2008)
Nature Reviews Genetics
, vol.9
, pp. 406-411
-
-
Lunshof, J.E.1
Chadwick, R.2
Vorhaus, D.B.3
Church, G.M.4
-
191
-
-
84992791462
-
"Appropriate consent" and the use of human material for research purposes: The competent adult
-
McHale, J. 2006. '"Appropriate consent" and the use of human material for research purposes: the competent adult', Clinical Ethics 1: 195-9
-
(2006)
Clinical Ethics
, vol.1
, pp. 195-199
-
-
McHale, J.1
-
192
-
-
80855139687
-
Accountability, governance and biobanks: The ethics and governance committee as guardian or as toothless tiger
-
McHale, J. 2011. 'Accountability, governance and biobanks: the ethics and governance committee as guardian or as toothless tiger', HealthCare Analysis 19: 207-19
-
(2011)
HealthCare Analysis
, vol.19
, pp. 207-219
-
-
McHale, J.1
-
199
-
-
56049097903
-
Identifiability of DNA data: The need for consistent federal policy
-
McGuire, A. L. 2008. 'Identifiability of DNA data: the need for consistent federal policy', American Journal of Bioethics 8: 75-6
-
(2008)
American Journal of Bioethics
, vol.8
, pp. 75-76
-
-
McGuire, A.L.1
-
200
-
-
33646000796
-
No longer de-identified
-
McGuire, A. L. andGibbs, R. A. 2006. 'No longer de-identified', Science 312: 370-1
-
(2006)
Science
, vol.312
, pp. 370-371
-
-
McGuire, A.L.1
Gibbs, R.A.2
-
203
-
-
34547933798
-
Property rights and benefit sharing for DNA donors?
-
Marchant, G. E. 2005. 'Property rights and benefit sharing for DNA donors?', Jurimetrics 45: 153-78
-
(2005)
Jurimetrics
, vol.45
, pp. 153-178
-
-
Marchant, G.E.1
-
204
-
-
0034634240
-
Families sue hospital scientist for control of Canavan gene
-
Marshall, E. 2000. 'Families sue hospital scientist for control of Canavan gene', Science 290: 1062
-
(2000)
Science
, vol.290
, pp. 1062
-
-
Marshall, E.1
-
205
-
-
4344624925
-
Patient advocate named co-inventor on patent for the PXE Disease gene
-
Marshall, E. 2004. 'Patient advocate named co-inventor on patent for the PXE Disease gene', Science 27: 1226
-
(2004)
Science
, vol.27
, pp. 1226
-
-
Marshall, E.1
-
206
-
-
0004022084
-
-
C. J. Arthur (ed.), London: Lawrence and Wishart
-
Marx, K. and Engels, F. 1999. The German Ideology, C. J. Arthur (ed.), London: Lawrence and Wishart
-
(1999)
The German Ideology
-
-
Marx, K.1
Engels, F.2
-
207
-
-
33344475444
-
Alternative consent approaches for biobank research
-
Maschke, K. J. 2006. 'Alternative consent approaches for biobank research', Lancet Oncology 7: 193-4
-
(2006)
Lancet Oncology
, vol.7
, pp. 193-194
-
-
Maschke, K.J.1
-
208
-
-
34548162686
-
Why we should develop a regulated system of kidney sales: A call for action!
-
Matas, A. J. 2006. 'Why we should develop a regulated system of kidney sales: a call for action!' Clinical Journal of the American Society of Nephrology 1: 1129-32
-
(2006)
Clinical Journal of the American Society of Nephrology
, vol.1
, pp. 1129-1132
-
-
Matas, A.J.1
-
209
-
-
0034477191
-
Traditional knowledge of indigenous and local communities: International debate and policy initiatives
-
Mauro, F. and Hardison, P. 2000. 'Traditional knowledge of indigenous and local communities: International debate and policy initiatives', Ecological Applications 10: 1263-9
-
(2000)
Ecological Applications
, vol.10
, pp. 1263-1269
-
-
Mauro, F.1
Hardison, P.2
-
210
-
-
84923192966
-
-
Elger, Biller-Andorno, Mauron and Capron (eds.)
-
Mauron, A. 2008. 'Introduction: biobanks, genomics, and research-a nightmare for public policy makers?' in Elger, Biller-Andorno, Mauron and Capron (eds.), pp. 1-9
-
(2008)
Introduction: Biobanks, genomics, and research-a nightmare for public policy makers?
, pp. 1-9
-
-
Mauron, A.1
-
211
-
-
0004001507
-
-
[1859], Oxford University Press
-
Mill, J. S. 2008 [1859]. On Liberty. Oxford University Press
-
(2008)
Liberty
-
-
Mill, J.S.1
-
213
-
-
84937345949
-
Informed consent after the human genome project
-
Mitchell, G. R. and Happe, K. 2001. 'Informed consent after the human genome project', Rhetoric and Public Affairs 4: 375-406
-
(2001)
Rhetoric and Public Affairs
, vol.4
, pp. 375-406
-
-
Mitchell, G.R.1
Happe, K.2
-
214
-
-
0029798775
-
Twenty-Year outcome analysis of genetic screening programs for Tay-Sachs and 3-Thalassemia disease carriers in high schools
-
Mitchell, J. J., Capua, A., Clow, C. and Scriver, C. R. 1996. 'Twenty-Year outcome analysis of genetic screening programs for Tay-Sachs and 3-Thalassemia disease carriers in high schools', American Journal of Human Genetics 59: 793-8
-
(1996)
American Journal of Human Genetics
, vol.59
, pp. 793-798
-
-
Mitchell, J.J.1
Capua, A.2
Clow, C.3
Scriver, C.R.4
-
221
-
-
0013206929
-
-
[1957], Conradi, P. (ed.)
-
Murdoch, I. 1997 [1957]. 'Metaphysics and ethics' in Conradi, P. (ed.), pp. 59-75
-
(1997)
Metaphysics and ethics
, pp. 59-75
-
-
Murdoch, I.1
-
226
-
-
84923212953
-
-
(accessed 27 March 2012)
-
Navigenics. www. navigenics. com (accessed 27 March 2012)
-
Navigenics
-
-
-
230
-
-
84923134154
-
-
(accessed 27 March 2012)
-
NewGene. www. newgene. org. uk/ (accessed 27 March 2012)
-
-
-
-
232
-
-
84923134152
-
-
(accessed 27 March 2012)
-
NHS Patients' Rights (UK Citizens' Advice Website). www. adviceguide. org. uk/ index/your_family/health_index_ew/nhs_patients_rights. htm#the_nhs_con stitution_for_england (accessed 27 March 2012)
-
-
-
NHS Patients' Rights (UK Citizens' Advice Website)1
-
234
-
-
0037921904
-
-
(accessed 27 March 2012)
-
Nuremberg Code. 1949. http: //ohsr. od. nih. gov/guidelines/nuremberg. html (accessed 27 March 2012)
-
(1949)
Nuremberg Code
-
-
-
235
-
-
0039283440
-
Virtue ethics: A misleading category
-
Nussbaum, M. C. 1999. 'Virtue ethics: a misleading category', Journal of Ethics 3: 163-201
-
(1999)
Journal of Ethics
, vol.3
, pp. 163-201
-
-
Nussbaum, M.C.1
-
236
-
-
0040032811
-
Varieties of virtue ethics
-
Oakley, J. 1996. 'Varieties of virtue ethics', Ratio 9: 128-52
-
(1996)
Ratio
, vol.9
, pp. 128-152
-
-
Oakley, J.1
-
239
-
-
33845472926
-
Preimplantation genetic diagnosis for cancer syndromes: A new challenge for preventive medicine
-
Offit, K., Sagi, M. and Hurley, K. 2006. 'Preimplantation genetic diagnosis for cancer syndromes: a new challenge for preventive medicine', The Journal of the American Medical Association 296: 2727-30
-
(2006)
The Journal of the American Medical Association
, vol.296
, pp. 2727-2730
-
-
Offit, K.1
Sagi, M.2
Hurley, K.3
-
241
-
-
0141432110
-
Mistresses of their own destiny: Group rights, gender and realistic rights of exit
-
Okin, S. M. 2002. 'Mistresses of their own destiny: group rights, gender and realistic rights of exit', Ethics 112: 205-30
-
(2002)
Ethics
, vol.112
, pp. 205-230
-
-
Okin, S.M.1
-
245
-
-
0347418276
-
The charitable trust as a model for genomic biobanks
-
Otten, J., Wyle, J. R. and Phelps, G. D. 2004. 'The charitable trust as a model for genomic biobanks', New England Journal of Medicine 350: 85-6
-
(2004)
New England Journal of Medicine
, vol.350
, pp. 85-86
-
-
Otten, J.1
Wyle, J.R.2
Phelps, G.D.3
-
247
-
-
0035382860
-
Confidentiality in genetic testing
-
Parker, M. 2001. 'Confidentiality in genetic testing', American Journal of Bioethics 1: 21-2
-
(2001)
American Journal of Bioethics
, vol.1
, pp. 21-22
-
-
Parker, M.1
-
250
-
-
17844362437
-
Securing our genetic health: Engendering trust in UK Biobank
-
Petersen, A. 2005. 'Securing our genetic health: engendering trust in UK Biobank', Sociology of Health & Illness 27: 271-92
-
(2005)
Sociology of Health & Illness
, vol.27
, pp. 271-292
-
-
Petersen, A.1
-
251
-
-
84923134150
-
-
Project SAS6-CT-2003-510239. Summary abstract, (accessed 27 March 2012)
-
PropEur (Property Regulation in European Science, Ethics and Law). Project SAS6-CT-2003-510239. Summary abstract. ftp: //ftp. cordis. europa. eu/pub/ science-society/docs/overview_society_contracts. pdf (accessed 27 March 2012)
-
-
-
PropEur (Property Regulation in European Science, Ethics and Law),1
-
252
-
-
0028020402
-
Desired fertility and the impact of population policies
-
Pritchett, L. H. 1994. 'Desired fertility and the impact of population policies', Population and Development Review 20: 1-55
-
(1994)
Population and Development Review
, vol.20
, pp. 1-55
-
-
Pritchett, L.H.1
-
254
-
-
84923134149
-
-
(accessed 27 March 2012)
-
PXE International. www. pxe. org/what-pxe (accessed 27 March 2012)
-
-
-
PXE International1
-
255
-
-
0032572382
-
The case for allowing kidney sales
-
[for the International Forum for Transplant Ethics]
-
Radcliffe-Richards, J., Daar, A. S., Guttmann, R. D., Hoffenberg, R., Kennedy, I., Lock, M., Seils, R. A. and Tilney, N. 1998 [for the International Forum for Transplant Ethics]. 'The case for allowing kidney sales', Lancet 351: 1950-52
-
(1998)
Lancet
, vol.351
, pp. 1950-1952
-
-
Radcliffe-Richards, J.1
Daar, A.S.2
Guttmann, R.D.3
Hoffenberg, R.4
Kennedy, I.5
Lock, M.6
Seils, R.A.7
Tilney, N.8
-
257
-
-
0036885128
-
Titmuss and the gift relationship: Altruism revisited
-
Rapport, F. and Maggs, C. 2002. 'Titmuss and the gift relationship: altruism revisited', Journal of Advanced Nursing 40: 495-503
-
(2002)
Journal of Advanced Nursing
, vol.40
, pp. 495-503
-
-
Rapport, F.1
Maggs, C.2
-
260
-
-
0012194530
-
Caveat Venditor: Protecting privacy and ownership interests in DNA
-
Knoppers, B. M., Laberge, C. and Hirtle, M. (eds.), The Hague: Kluwer Law International
-
Roche, P. 1997. 'Caveat Venditor: protecting privacy and ownership interests in DNA' in Knoppers, B. M., Laberge, C. and Hirtle, M. (eds.), Human DNA: Law and Policy. The Hague: Kluwer Law International, pp. 33-43
-
(1997)
Human DNA: Law and Policy
, pp. 33-43
-
-
Roche, P.1
-
261
-
-
84929291623
-
Foreword
-
Burns, W. C. G., Hari, M. and Osofsky, M. (eds.), Cambridge University Press
-
Roderick, P. E. 2009. 'Foreword' in Burns, W. C. G., Hari, M. and Osofsky, M. (eds.), Adjudicating Climate Change: State, National, and International Approaches. Cambridge University Press
-
(2009)
Adjudicating Climate Change: State, National, and International Approaches
-
-
Roderick, P.E.1
-
262
-
-
0037009952
-
Ethical and social consequences of selling a kidney
-
Rothman, D. J. 2002. 'Ethical and social consequences of selling a kidney', Journal of the American Medical Association 288: 1640-4
-
(2002)
Journal of the American Medical Association
, vol.288
, pp. 1640-1644
-
-
Rothman, D.J.1
-
264
-
-
77956396767
-
Is deidentification sufficient to protect health privacy in research?
-
Rothstein, M. A. 2010. 'Is deidentification sufficient to protect health privacy in research?', American Journal of Bioethics 10: 3-11
-
(2010)
American Journal of Bioethics
, vol.10
, pp. 3-11
-
-
Rothstein, M.A.1
-
266
-
-
84970771869
-
The procedural republic and the unencumbered self
-
Sandel, M. J. 1984. 'The procedural republic and the unencumbered self', Political Theory 12: 81-96
-
(1984)
Political Theory
, vol.12
, pp. 81-96
-
-
Sandel, M.J.1
-
269
-
-
0038127133
-
Is the sale of body parts wrong?
-
Savulescu, J. 2003. 'Is the sale of body parts wrong?', Journal of Medical Ethics 29: 138-9
-
(2003)
Journal of Medical Ethics
, vol.29
, pp. 138-139
-
-
Savulescu, J.1
-
270
-
-
0344881495
-
Relationships and responsibilities
-
Scheffler, S. 1997. 'Relationships and responsibilities', Philosophy and Public Affairs 26: 189-209
-
(1997)
Philosophy and Public Affairs
, vol.26
, pp. 189-209
-
-
Scheffler, S.1
-
271
-
-
0038243944
-
Keeping an eye on the global traffic in human organs
-
Scheper-Hughes, N. 2003. 'Keeping an eye on the global traffic in human organs', The Lancet 361: 1645-8
-
(2003)
The Lancet
, vol.361
, pp. 1645-1648
-
-
Scheper-Hughes, N.1
-
272
-
-
84863995291
-
How anonymous is "anonymous"? Some suggestions towards a coherent universal coding system for genetic samples
-
(accessed 23 July 2012)
-
Schmidt, H. and Callier, S. 2012. 'How anonymous is "anonymous"? Some suggestions towards a coherent universal coding system for genetic samples', Journal of Medical Ethics. http: //jme. bmj. com/content/early/2012/02/15/ medethics-2011-100181. full. pdf+html (accessed 23 July 2012)
-
(2012)
Journal of Medical Ethics
-
-
Schmidt, H.1
Callier, S.2
-
273
-
-
0032455054
-
State of the art: Cryopreservation of gametes in young cancer patients
-
Schover, L. R., Agarwal, A., and Thomas, A. J. Jr. 1998. 'State of the art: cryopreservation of gametes in young cancer patients', Journal of Pediatric Hematology/Oncology 20: 426-8
-
(1998)
Journal of Pediatric Hematology/Oncology
, vol.20
, pp. 426-428
-
-
Schover, L.R.1
Agarwal, A.2
Thomas, A.J.3
-
274
-
-
33748360484
-
Research with groups: Group rights, group consent, and collaborative research: Commentary on protecting the Navajo People through tribal regulation of research
-
Schrag, B. 2006. 'Research with groups: group rights, group consent, and collaborative research: commentary on protecting the Navajo People through tribal regulation of research', Science and Engineering Ethics 12: 511-21
-
(2006)
Science and Engineering Ethics
, vol.12
, pp. 511-521
-
-
Schrag, B.1
-
276
-
-
4644265447
-
Moral standards for research in developing countries: From "reasonable availability" to "fair benefits"
-
(accessed 27March 2012)
-
Setouhy, M. E., Agbenyega, T., Anto, F., Clerk, C. A., Koram, K. A., English, M., Juma, R., Molyneux, C., Peshu, N., Kumwenda, N., Mfutso-Bengu, J., Molyneux, M., Taylor, T., Aissata Diarra, D., Maiga, S., Sylla, M., Youssouf, D., Olufunke Falade, C., Gbadegesin, S., Lie, R., Mugusi, F., Ngassapa, D., Ecuru, J., Talisuna, A., Emanuel, E., Grady, C., Higgs, E., Plowe, C., Sugarman, J. and Wendler, J. 2004. 'Moral standards for research in developing countries: from "reasonable availability" to "fair benefits"', The Hastings Center Report 34: 17-27. www. jstor. org/stable/3528416 (accessed 27March 2012)
-
(2004)
The Hastings Center Report
, vol.34
, pp. 17-27
-
-
Setouhy, M.E.1
Agbenyega, T.2
Anto, F.3
Clerk, C.A.4
Koram, K.A.5
English, M.6
Juma, R.7
Molyneux, C.8
Peshu, N.9
Kumwenda, N.10
Mfutso-Bengu, J.11
Molyneux, M.12
Taylor, T.13
Aissata Diarra, D.14
Maiga, S.15
Sylla, M.16
Youssouf, D.17
Olufunke Falade, C.18
Gbadegesin, S.19
Lie, R.20
Mugusi, F.21
Ngassapa, D.22
Ecuru, J.23
Talisuna, A.24
Emanuel, E.25
Grady, C.26
Higgs, E.27
Plowe, C.28
Sugarman, J.29
Wendler, J.30
more..
-
278
-
-
18644385020
-
Population genetic studies: Is there an emerging legal obligation to share benefits?
-
Sheremeta, L. 2003. 'Population genetic studies: Is there an emerging legal obligation to share benefits?', Health Law Review 12: 36-8
-
(2003)
Health Law Review
, vol.12
, pp. 36-38
-
-
Sheremeta, L.1
-
279
-
-
16644401011
-
Beyond the rhetoric: Population genetics and benefit-sharing
-
(accessed 27 March 2012)
-
Sheremeta, L. and Knoppers, B. M. 2003. 'Beyond the rhetoric: population genetics and benefit-sharing', Health Law Journal 89. http: //heinonline. org/ HOL/LandingPage?collection=journals&handle=hein. journals/hthlj11&div=7 &id=&page= (accessed 27 March 2012)
-
(2003)
Health Law Journal
, pp. 89
-
-
Sheremeta, L.1
Knoppers, B.M.2
-
284
-
-
14844342690
-
In the beginning was the gene: The hegemony of genetic thinking in contemporary culture
-
Silva, V. 2005. 'In the beginning was the gene: The hegemony of genetic thinking in contemporary culture', Communication Theory 15: 100-123
-
(2005)
Communication Theory
, vol.15
, pp. 100-123
-
-
Silva, V.1
-
285
-
-
33646069297
-
Benefit-sharing: An inquiry regarding the meaning and limits of the concept in human genetic research
-
Simm, K. 2005. 'Benefit-sharing: an inquiry regarding the meaning and limits of the concept in human genetic research', Genomics, Society and Policy 1: 29-40
-
(2005)
Genomics, Society and Policy
, vol.1
, pp. 29-40
-
-
Simm, K.1
-
286
-
-
0003706759
-
-
New Brunswick, NJ: Transaction Publishers
-
Simon, J. L. 1990. Population Matters. New Brunswick, NJ: Transaction Publishers
-
(1990)
Population Matters
-
-
Simon, J.L.1
-
287
-
-
33644831867
-
Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context
-
Skolbekken, J. A., Ursin, L. Ø., Solberg, B., Christensen, E., and Borgunn, Y. 2005. 'Not worth the paper it's written on? Informed consent and biobank research in a Norwegian context', Critical Public Health, 15: 335-47
-
(2005)
Critical Public Health
, vol.15
, pp. 335-347
-
-
Skolbekken, J.A.1
Ursin, L.Ø.2
Solberg, B.3
Christensen, E.4
Borgunn, Y.5
-
290
-
-
3342938227
-
Tailored medicine: Whom will it fit? The ethics of patient and disease stratification
-
Smart, A., Martin, P. and Parker, M. 2004. 'Tailored medicine: whom will it fit? The ethics of patient and disease stratification', Bioethics, 18: 322-43
-
(2004)
Bioethics
, vol.18
, pp. 322-343
-
-
Smart, A.1
Martin, P.2
Parker, M.3
-
291
-
-
0030892816
-
Preimplantation diagnosis and other reproductive options: Attitudes of male and female carriers of recessive disorders
-
Snowdon, C. and Green, J. M. 1997. 'Preimplantation diagnosis and other reproductive options: Attitudes of male and female carriers of recessive disorders', Human Reproduction 12: 341-50
-
(1997)
Human Reproduction
, vol.12
, pp. 341-350
-
-
Snowdon, C.1
Green, J.M.2
-
292
-
-
84923134136
-
We're not in it for the money-lay people's moral intuitions on commercial use of "their" biobank medicine
-
Online First, 26 October 2011
-
Steinsbekk, S. K., Ursin, L. Ø., Skolbekken, J. A. and Solberg, B. 2011 'We're not in it for the money-lay people's moral intuitions on commercial use of "their" biobank medicine', Health Care and Philosophy, Online First, 26 October 2011
-
(2011)
Health Care and Philosophy
-
-
Steinsbekk, S.K.1
Ursin, L.Ø.2
Skolbekken, J.A.3
Solberg, B.4
-
293
-
-
15044345330
-
Autonomy in medical ethics after O'Neill
-
Stirrat, G. M. and Gill, R. J. 2005. 'Autonomy in medical ethics after O'Neill', Journal of Medical Ethics 31: 127-30
-
(2005)
Journal of Medical Ethics
, vol.31
, pp. 127-130
-
-
Stirrat, G.M.1
Gill, R.J.2
-
294
-
-
60949402792
-
Contemporary virtue ethics
-
Stohr, K. 2006. 'Contemporary virtue ethics', Philosophy Compass 1: 22-7
-
(2006)
Philosophy Compass
, vol.1
, pp. 22-27
-
-
Stohr, K.1
-
295
-
-
0042208845
-
The invisible vulnerable: The economically and educationally disadvantaged subjects of clinical research
-
Stone, T. H. 2003. 'The invisible vulnerable: the economically and educationally disadvantaged subjects of clinical research', Journal of Law, Medicine, & Ethics 31: 149-53
-
(2003)
Journal of Law, Medicine, & Ethics
, vol.31
, pp. 149-153
-
-
Stone, T.H.1
-
296
-
-
0028954025
-
Anticipated uptake and impact of genetic testing in hereditary breast and ovarian cancer families
-
Struewing, J. P., Lerman, C., Kase, R. G., Giambarresi, T. R. and Tucker, M. A. 1995. 'Anticipated uptake and impact of genetic testing in hereditary breast and ovarian cancer families', Cancer, Epidemiology, Biomarkers and Prevention 4: 169-73
-
(1995)
Cancer, Epidemiology, Biomarkers and Prevention
, vol.4
, pp. 169-173
-
-
Struewing, J.P.1
Lerman, C.2
Kase, R.G.3
Giambarresi, T.R.4
Tucker, M.A.5
-
298
-
-
0003656652
-
-
Cambridge, MA: Harvard University Press
-
Taylor, C. 1989. Sources of the Self. Cambridge, MA: Harvard University Press
-
(1989)
Sources of the Self
-
-
Taylor, C.1
-
299
-
-
84923134135
-
-
(accessed 27 March 2012)
-
TEMPE. http: //ec. europa. eu/research/biosociety/pdf/qlg6_1999_00353_finalre port. pdf (accessed 27 March 2012)
-
-
-
TEMPE1
-
300
-
-
33847155139
-
Informed consent in clinical medicine
-
Terry, P. B. 2007. 'Informed consent in clinical medicine', Chest 131: 563-8
-
(2007)
Chest
, vol.131
, pp. 563-568
-
-
Terry, P.B.1
-
301
-
-
84923134134
-
-
Tiss. EU (Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union-an Evidence-Based Impact Analysis) (accessed 27March 2012)
-
Tiss. EU (Evaluation of Legislation and Related Guidelines on the Procurement, Storage and Transfer of Human Tissues and Cells in the European Union-an Evidence-Based Impact Analysis). www. tisseu. uni-hannover. de/index. php? option=com_content&task=view&id=11&Itemid=17 (accessed 27March 2012)
-
-
-
-
303
-
-
0034840605
-
Towards a feminist global bioethics: Addressing women's health concerns worldwide
-
Tong, R. 2001. 'Towards a feminist global bioethics: addressing women's health concerns worldwide', Health Care Analysis 9: 229-46
-
(2001)
Health Care Analysis
, vol.9
, pp. 229-246
-
-
Tong, R.1
-
304
-
-
85028068871
-
Medicine and society: Personhood and autonomy in multicultural health care settings
-
Tsai, D. 2008. 'Medicine and society: personhood and autonomy in multicultural health care settings', American Medical Association Journal of Ethics 10: 171-6
-
(2008)
American Medical Association Journal of Ethics
, vol.10
, pp. 171-176
-
-
Tsai, D.1
-
305
-
-
2442506800
-
Governing UK Biobank: The importance of ensuring public trust
-
Tutton, R., Kaye, J. and Hoeyer, K. 2004. 'Governing UK Biobank: the importance of ensuring public trust', Trends in Biotechnology 22: 284-5
-
(2004)
Trends in Biotechnology
, vol.22
, pp. 284-285
-
-
Tutton, R.1
Kaye, J.2
Hoeyer, K.3
-
306
-
-
84923134133
-
-
(accessed 27 March 2012)
-
UK10K. www. uk10k. org/ (accessed 27 March 2012)
-
-
-
-
307
-
-
85041796566
-
-
(a), (accessed 27 March 2012)
-
UK Biobank (a). 'About UK Biobank'. www. ukbiobank. ac. uk/about-biobank-uk/ (accessed 27 March 2012)
-
About UK Biobank
-
-
-
308
-
-
84923134131
-
-
(b), (accessed 27 March 2012)
-
UK Biobank (b). 'Manchester first for UK Biobank'. www. ukbiobank. ac. uk/wpcontent/ uploads/2011/07/UK-Biobank-gets-underway-March-2007. pdf (accessed 27 March 2012)
-
Manchester first for UK Biobank
-
-
-
309
-
-
84923194627
-
-
(c), (accessed 27 March 2012)
-
UK Biobank (c). 'Long-term follow-up of health'. www. ukbiobank. ac. uk/2011/ 11/following-health (accessed 27 March 2012)
-
Long-term follow-up of health
-
-
-
310
-
-
84923206321
-
-
(accessed 27 March 2012)
-
'Report and Financial Statements 30 September 2011'. www. ukbiobank. ac. uk/wp-content/uploads/2011/12/UK-Biobank-Limited-Signed-2011-Report-and-Financial-Statements. pdf (accessed 27 March 2012)
-
Report and Financial Statements 30 September 2011
-
-
-
312
-
-
84923134130
-
-
(f), (accessed 27 March 2012)
-
UK Biobank (f). www. ukbiobank. ac. uk/ (accessed 27 March 2012)
-
-
-
-
318
-
-
33645229263
-
-
(accessed 27 March 2012)
-
UNESCO Declaration on Bioethics and Human Rights. 2005. www. unesco. org/ new/en/social-and-human-sciences/themes/bioethics/bioethics-and-humanrights/ (accessed 27 March 2012)
-
(2005)
UNESCO Declaration on Bioethics and Human Rights
-
-
-
320
-
-
7644233870
-
-
(accessed 27 March 2012)
-
UNESCO International Declaration on Human Genetic Data, 2003. www. unesco. org/new/en/social-and-human-sciences/themes/bioethics/human-genetic-data/ (accessed 27 March 2012)
-
(2003)
UNESCO International Declaration on Human Genetic Data
-
-
-
321
-
-
84923134127
-
Protecting dignitary interests of biobank research participants: Lessons from Havasupai Tribe v. Arizona Board of Regents
-
Forthcoming
-
Van Assche, K., Gutwirth, S., Sterckx, S. Forthcoming. 'Protecting dignitary interests of biobank research participants: lessons from Havasupai Tribe v. Arizona Board of Regents', Studies in Ethics, Law and Technology
-
Studies in Ethics, Law and Technology
-
-
Van Assche, K.1
Gutwirth, S.2
Sterckx, S.3
-
324
-
-
3342875407
-
Integrating pharmacogenetics into society: In search of a model
-
Webster, A., Martin, P., Lewis, G. and Smart, A. 2004. 'Integrating pharmacogenetics into society: In search of a model', Nature 5: 663-9
-
(2004)
Nature
, vol.5
, pp. 663-669
-
-
Webster, A.1
Martin, P.2
Lewis, G.3
Smart, A.4
-
325
-
-
84923134126
-
-
(accessed October 2011; currently not accessible)
-
Western Australia DNA Bank (WADB). www. wadb. org. au/ (accessed October 2011; currently not accessible)
-
-
-
Western Australia DNA Bank (WADB)1
-
328
-
-
0034682726
-
Protecting communities in biomedical research
-
Weijer, C. and Emanuel, E. J. 2000. 'Protecting communities in biomedical research', Science 289: 1142-4
-
(2000)
Science
, vol.289
, pp. 1142-1144
-
-
Weijer, C.1
Emanuel, E.J.2
-
330
-
-
33847379756
-
The self in the genetic era
-
Widdows, H. 2007. 'The self in the genetic era', Health Care Analysis 15: 5-12
-
(2007)
Health Care Analysis
, vol.15
, pp. 5-12
-
-
Widdows, H.1
-
331
-
-
70449622970
-
Between the individual and the community: The impact of genetics on ethical models
-
Widdows, H. 2009a. 'Between the individual and the community: The impact of genetics on ethical models', New Genetics and Society 28: 173-88
-
(2009)
New Genetics and Society
, vol.28
, pp. 173-188
-
-
Widdows, H.1
-
333
-
-
59449110617
-
Persons and their parts: New reproductive technologies and risks of commodification
-
Widdows, H. 2009c. 'Persons and their parts: new reproductive technologies and risks of commodification', Health Care Analysis 17: 36-46
-
(2009)
Health Care Analysis
, vol.17
, pp. 36-46
-
-
Widdows, H.1
-
334
-
-
77956004541
-
Border disputes across bodies: Exploitation in trafficking for prostitution and egg sale for stem cell research
-
Widdows, H. 2009d. 'Border disputes across bodies: exploitation in trafficking for prostitution and egg sale for stem cell research', International Journal of the Feminist Association of Bioethics 2: 5-24
-
(2009)
International Journal of the Feminist Association of Bioethics
, vol.2
, pp. 5-24
-
-
Widdows, H.1
-
335
-
-
78650373640
-
Localised past, globalised future: Towards an effective bioethical framework using examples from population genetics and medical tourism
-
Widdows, H. 2011a. 'Localised past, globalised future: towards an effective bioethical framework using examples from population genetics and medical tourism', Bioethics 25: 83-91
-
(2011)
Bioethics
, vol.25
, pp. 83-91
-
-
Widdows, H.1
-
337
-
-
84949794076
-
Global ethics: An overview
-
Chadwick, R. (ed.), (2nd edn). San Diego, CA: Academic Press
-
Widdows, H. 2012. 'Global ethics: an overview' in Chadwick, R. (ed.) Encyclopaedia of Applied Ethics (2nd edn). San Diego, CA: Academic Press, pp. 514-22
-
(2012)
Encyclopaedia of Applied Ethics
, pp. 514-522
-
-
Widdows, H.1
-
338
-
-
84923134123
-
Rejecting the choice paradigm: Rethinking the ethical framework in prostitution and egg sale debates
-
Forthcoming, Phillips, A., Madhok, S. and Wilson, K, London: Palgrave
-
Forthcoming. 'Rejecting the choice paradigm: rethinking the ethical framework in prostitution and egg sale debates' in Phillips, A., Madhok, S. and Wilson, K. Gender, Agency and Coercion. London: Palgrave
-
Gender, Agency and Coercion
-
-
-
339
-
-
84890532191
-
Reconsidering consent and biobanking
-
Lenk, C. and Hoppe, N. (eds.)
-
Widdows, H. and Bullock, E. 2011. 'Reconsidering consent and biobanking' in Lenk, C. and Hoppe, N. (eds.), Biobanks and Tissue Research. The Public, the Patient and the Regulation, pp. 111-25
-
(2011)
Biobanks and Tissue Research. The Public, the Patient and the Regulation
, pp. 111-125
-
-
Widdows, H.1
Bullock, E.2
-
341
-
-
79952969799
-
Why communities and their goods matter: Illustrated with the example of biobanks
-
Widdows, H. and Cordell, S. 2011a. 'Why communities and their goods matter: illustrated with the example of biobanks', Public Health Ethics 4: 14-25
-
(2011)
Public Health Ethics
, vol.4
, pp. 14-25
-
-
Widdows, H.1
Cordell, S.2
-
342
-
-
80855148163
-
The ethics of biobanking: Key issues and controversies
-
Widdows, H. and Cordell, S. 2011b. 'The ethics of biobanking: key issues and controversies', Health Care Analysis 19: 207-19
-
(2011)
Health Care Analysis
, vol.19
, pp. 207-219
-
-
Widdows, H.1
Cordell, S.2
-
343
-
-
84900586643
-
An investigation of the conception, management and regulation of tangible and intangible property in human tissue: The PropEur Project
-
Stienmann, M., Sykora, P. and Wiesing, U. (eds.), Aldershot: Ashgate
-
Widdows, H. and Mullen, C. 2009. 'An investigation of the conception, management and regulation of tangible and intangible property in human tissue: the PropEur Project' in Stienmann, M., Sykora, P. and Wiesing, U. (eds.) Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue. Aldershot: Ashgate, pp. 169-79
-
(2009)
Altruism Reconsidered: Exploring New Approaches to Property in Human Tissue
, pp. 169-179
-
-
Widdows, H.1
Mullen, C.2
-
344
-
-
0031241981
-
Inducement in research
-
Wilkinson, M. and Moore, M. 1997. 'Inducement in research', Bioethics 11: 373-89
-
(1997)
Bioethics
, vol.11
, pp. 373-389
-
-
Wilkinson, M.1
Moore, M.2
-
347
-
-
0035088598
-
Biosamples, genomics and human rights context and content of Iceland's Biobanks Act
-
Winickoff, D. E. 2001. 'Biosamples, genomics and human rights context and content of Iceland's Biobanks Act', Journal of Biolaw and Business 4: 11-17
-
(2001)
Journal of Biolaw and Business
, vol.4
, pp. 11-17
-
-
Winickoff, D.E.1
-
348
-
-
0141810894
-
Governing population genomics: Law, bioethics, and biopolitics in three case studies
-
Winickoff, D. E. 2003. 'Governing population genomics: law, bioethics, and biopolitics in three case studies', Jurimetrics 43: 187-228
-
(2003)
Jurimetrics
, vol.43
, pp. 187-228
-
-
Winickoff, D.E.1
-
349
-
-
34547950328
-
Partnership in U. K. Biobank: A third way for genomic property?
-
Winickoff, D. E. 2007. 'Partnership in U. K. Biobank: a third way for genomic property?', The Journal of Law, Medicine & Ethics 35: 440-56
-
(2007)
The Journal of Law, Medicine & Ethics
, vol.35
, pp. 440-456
-
-
Winickoff, D.E.1
-
350
-
-
32044457939
-
Towards a social contract for genomics: Property and the public in the "Biotrust" model
-
Winickoff, D. E. and Neumann, L. 2005. 'Towards a social contract for genomics: property and the public in the "Biotrust" model', Genomics, Society and Policy 1: 8-21
-
(2005)
Genomics, Society and Policy
, vol.1
, pp. 8-21
-
-
Winickoff, D.E.1
Neumann, L.2
|