-
2
-
-
34548082286
-
Biobank governance: Trends and perspectives
-
Gottweis H, Zatloukal K. Biobank governance: trends and perspectives. Pathobiology 2007;74:206-11.
-
(2007)
Pathobiology
, vol.74
, pp. 206-211
-
-
Gottweis, H.1
Zatloukal, K.2
-
3
-
-
33845354052
-
Trends in ethical and legal frameworks for the use of human biobanks
-
Cambon-Thomsen A, Rial-Sebbag E, Knoppers BM. Trends in ethical and legal frameworks for the use of human biobanks. Eur Respir J 2007;30:373-82.
-
(2007)
Eur Respir J
, vol.30
, pp. 373-382
-
-
Cambon-Thomsen, A.1
Rial-Sebbag, E.2
Knoppers, B.M.3
-
4
-
-
60149104738
-
-
Inside Information Balancing interests in the use of personal genetic data, accessed 24 October 2008
-
Human GeneticsCommission (HGC). Inside Information Balancing interests in the use of personal genetic data. 2002. http://www.dh.gov.uk/en/ publicationsandstatistics/publications/publicationspolicyandguidance/dh-4009988 (accessed 24 October 2008).
-
(2002)
Human GeneticsCommission (HGC)
-
-
-
5
-
-
33344475590
-
Should donors be allowed to give broad consent to future biobank research?
-
Hansson MG, Dillner J, Bartram CR, et al. Should donors be allowed to give broad consent to future biobank research? Lancet Oncol 2006;7:266-9.
-
(2006)
Lancet Oncol
, vol.7
, pp. 266-269
-
-
Hansson, M.G.1
Dillner, J.2
Bartram, C.R.3
-
6
-
-
34948896417
-
Ethical framework for previously collected biobank samples
-
Helgesson G, Dillner J, Carlson J, et al. Ethical framework for previously collected biobank samples. Nat Biotechnol 2007;25:973-6.
-
(2007)
Nat Biotechnol
, vol.25
, pp. 973-976
-
-
Helgesson, G.1
Dillner, J.2
Carlson, J.3
-
7
-
-
84992791462
-
Appropriate consent' and the use of human material for research purposes: The competent adult
-
McHale JV. 'Appropriate consent' and the use of human material for research purposes: the competent adult. Clinical Ethics 2006;1:195-9.
-
(2006)
Clinical Ethics
, vol.1
, pp. 195-199
-
-
McHale, J.V.1
-
8
-
-
33847122440
-
Consent for childhood cancer tissue banking in the UK: The effect of the Human Tissue Act 2004
-
McHale J, Habiba M, Dixon-Woods M, et al. Consent for childhood cancer tissue banking in the UK: the effect of the Human Tissue Act 2004. Lancet Oncol 2007;8:283.
-
(2007)
Lancet Oncol
, vol.8
, pp. 283
-
-
McHale, J.1
Habiba, M.2
Dixon-Woods, M.3
-
9
-
-
38449089111
-
The uneasy ethical and legal underpinnings of large-scale genomic biobanks
-
Greely HT. The uneasy ethical and legal underpinnings of large-scale genomic biobanks. Annu Rev Genomics Hum Genet 2007;8:343-64.
-
(2007)
Annu Rev Genomics Hum Genet
, vol.8
, pp. 343-364
-
-
Greely, H.T.1
-
10
-
-
9644300904
-
Ethical issues in the collection, storage, and research use of human biological materials
-
Meslin EM, Quaid KA. Ethical issues in the collection, storage, and research use of human biological materials. J Lab Clin Med 2004;144:229-34.
-
(2004)
J Lab Clin Med
, vol.144
, pp. 229-234
-
-
Meslin, E.M.1
Quaid, K.A.2
-
11
-
-
33646000796
-
Genetics. No longer de-identified
-
McGuire AL, Gibbs RA. Genetics. No longer de-identified. Science 2006;312:370-1.
-
(2006)
Science
, vol.312
, pp. 370-371
-
-
McGuire, A.L.1
Gibbs, R.A.2
-
14
-
-
60149090480
-
-
accessed 22 October 2008
-
Eagles. Hotel California, 1976. http://www.6lyrics.com/music/ eagles/lyrics/hotel-california1.aspx (accessed 22 October 2008).
-
(1976)
Hotel California
-
-
Eagles1
-
15
-
-
41849095185
-
Research ethics recommendations for whole-genome research: Consensus statement
-
Caulfield T, McGuire AL, Cho M, et al. Research ethics recommendations for whole-genome research: consensus statement. PLoS Biol 2008;6:e73.
-
(2008)
PLoS Biol
, vol.6
-
-
Caulfield, T.1
McGuire, A.L.2
Cho, M.3
-
16
-
-
34347353296
-
Islet autoantibody development during follow-up of high-risk children from the general Norwegian population from three months of age: Design and early results from the MIDIA study
-
Stene LC, Witsø E, Torjesen PA, et al. Islet autoantibody development during follow-up of high-risk children from the general Norwegian population from three months of age: design and early results from the MIDIA study. J Autoimmun 2007;29:44-51.
-
(2007)
J Autoimmun
, vol.29
, pp. 44-51
-
-
Stene, L.C.1
Witsø, E.2
Torjesen, P.A.3
-
17
-
-
60149087031
-
-
Norwegian Institute of Public Health. Environmental causes of type 1 diabetes. 2008. http://www.fhi.no/eway/default.aspx?pid=238&trg=MainArea- 5811&MainArea-5811=5903:0:15,4269:1:0:0:::0:0 (accessed May 02 2008).
-
Norwegian Institute of Public Health. Environmental causes of type 1 diabetes. 2008. http://www.fhi.no/eway/default.aspx?pid=238&trg=MainArea- 5811&MainArea-5811=5903:0:15,4269:1:0:0:::0:0 (accessed May 02 2008).
-
-
-
-
18
-
-
60149103967
-
-
Norwegian Institute of Public Health, diabetes, accessed 21 October 2008
-
Norwegian Institute of Public Health. Informed consent for research project: Environmental causes of type 1 diabetes. http://www.fhi.no/ dav/E16BEBAF24.pdf (accessed 21 October 2008).
-
Informed consent for research project: Environmental causes of type
, vol.1
-
-
-
19
-
-
60149109863
-
-
Norwegian Institute of Public Health. Follow-up of children with diabetes risk genes in MIDIA. 2008. http://www.fhi.no/eway/default. aspx?pid=238&trg=Area-5954&MainArea-5811=5903:0:15,4269:1:0:0::: 0: 0&MainLeft-5903=5954:0:15,4269:1:0:0:::0:0&Area-5954=5825:68324: :1:5955: 1:::0:0 (accessed May 02 2008).
-
Norwegian Institute of Public Health. Follow-up of children with "diabetes risk genes" in MIDIA. 2008. http://www.fhi.no/eway/default. aspx?pid=238&trg=Area-5954&MainArea-5811=5903:0:15,4269:1:0:0:::0: 0&MainLeft-5903=5954:0:15,4269:1:0:0:::0:0&Area-5954=5825:68324::1:5955: 1:::0:0 (accessed May 02 2008).
-
-
-
-
22
-
-
60149092220
-
-
NBAC. Research Involving Human Biological Materials: Ethical Issues and Policy Guidance, I. Rockville, MD, USA: National Bioethics Advisory Commission, 1999.
-
NBAC. Research Involving Human Biological Materials: Ethical Issues and Policy Guidance, Vol I. Rockville, MD, USA: National Bioethics Advisory Commission, 1999.
-
-
-
-
23
-
-
38049090266
-
Ethics of research on human biological materials
-
Lwoff L. Ethics of research on human biological materials. Nat Biotechnol 2008;26:29-30.
-
(2008)
Nat Biotechnol
, vol.26
, pp. 29-30
-
-
Lwoff, L.1
-
24
-
-
33744953632
-
From hype to mothballs in four years: Troubles in the development of large-scale DNA biobanks in Europe
-
Rose H. From hype to mothballs in four years: troubles in the development of large-scale DNA biobanks in Europe. Community Genet 2006;9:184-9.
-
(2006)
Community Genet
, vol.9
, pp. 184-189
-
-
Rose, H.1
-
25
-
-
26944437969
-
Genetic epidemiology and public health: Hope, hype, and future prospects
-
Smith GD, Ebrahim S, Lewis S, et al. Genetic epidemiology and public health: hope, hype, and future prospects. Lancet 2005;22:1484-98.
-
(2005)
Lancet
, vol.22
, pp. 1484-1498
-
-
Smith, G.D.1
Ebrahim, S.2
Lewis, S.3
-
26
-
-
60149094225
-
-
The Norwegian Act on Health Research. Ot.prp. nr. 74 (2006-2007). Om lov om medisinsk og helsefaglig forskning (helseforskningsloven).
-
The Norwegian Act on Health Research. Ot.prp. nr. 74 (2006-2007). Om lov om medisinsk og helsefaglig forskning (helseforskningsloven).
-
-
-
-
27
-
-
0036889339
-
Does the Current Consent Process Minimize the Risks of Genetic Research?
-
Wendler D, Prasad K, Wilfond B. Does the Current Consent Process Minimize the Risks of Genetic Research? Am J Med Genet 2002;113:258-62.
-
(2002)
Am J Med Genet
, vol.113
, pp. 258-262
-
-
Wendler, D.1
Prasad, K.2
Wilfond, B.3
-
28
-
-
51349122508
-
Bypassing consent for research on biological material
-
Hofmann B. Bypassing consent for research on biological material. Nat Biotechnol 2008;26:979-80.
-
(2008)
Nat Biotechnol
, vol.26
, pp. 979-980
-
-
Hofmann, B.1
-
29
-
-
0001208826
-
Breaking the stalemate: A prospective regulating framework for unforeseen research uses of tissue samples and health information
-
Greely H. Breaking the stalemate: a prospective regulating framework for unforeseen research uses of tissue samples and health information. Wake Forest Law Rev 1999;34:737-66.
-
(1999)
Wake Forest Law Rev
, vol.34
, pp. 737-766
-
-
Greely, H.1
-
30
-
-
0347750518
-
DNA databanks and consent: A suggested policy option involving an authorization model
-
Caulfield T, Upshur RE, Daar A. DNA databanks and consent: a suggested policy option involving an authorization model. BMC Med Ethics 2003;4:E1.
-
(2003)
BMC Med Ethics
, vol.4
-
-
Caulfield, T.1
Upshur, R.E.2
Daar, A.3
-
31
-
-
60149099425
-
Coding and Consent
-
Árnason V. Coding and Consent. Bioethics 2004;18:39-61.
-
(2004)
Bioethics
, vol.18
, pp. 39-61
-
-
Árnason, V.1
-
32
-
-
78650477374
-
Consent to biobank research: One size fits all?
-
Solbakk JH, Holm S, Hofmann B, eds, Dordrecht: Springer Verlag: in press
-
Hofmann B, Solbakk JH, Holm S. Consent to biobank research: one size fits all? In: Solbakk JH, Holm S, Hofmann B, eds. The Ethics of research biobanking. Dordrecht: Springer Verlag: in press.
-
The Ethics of research biobanking
-
-
Hofmann, B.1
Solbakk, J.H.2
Holm, S.3
-
33
-
-
60149108361
-
Helgesson replies. Correspondence
-
Helgesson G. Helgesson replies. Correspondence. Nature Biotechnology 2008;26:980-1.
-
(2008)
Nature Biotechnology
, vol.26
, pp. 980-981
-
-
Helgesson, G.1
|