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Volumn 8, Issue , 2011, Pages 111-125

Reconsidering Consent and Biobanking

Author keywords

Epistemological Problem; Ethical Model; Governance Mechanism; Joint Account; Waiver Model

Indexed keywords


EID: 84890532191     PISSN: 18750044     EISSN: 18750036     Source Type: Book Series    
DOI: 10.1007/978-94-007-1673-5_8     Document Type: Chapter
Times cited : (6)

References (36)
  • 1
    • 79551606008 scopus 로고    scopus 로고
    • Reconsidering the Value of Consent in Biobank Research
    • Allen, J., and B. McNamara. 2009. “Reconsidering the Value of Consent in Biobank Research.” Bioeth 25 (3): 155–66.
    • (2009) Bioeth , vol.25 , Issue.3 , pp. 155-166
    • Allen, J.1    McNamara, B.2
  • 4
    • 85098053990 scopus 로고    scopus 로고
    • Accessed February 25, 2011
    • Biobank UK. 2007. “Further Information Leaflet.” Accessed February 25, 2011. http://www. ukbiobank.ac.uk/docs/urtherinfoleaflet241007.pdf.
    • (2007) Further Information Leaflet
    • Biobank, U.K.1
  • 5
    • 0035382861 scopus 로고    scopus 로고
    • Genetics and Confidentiality
    • Brock, D. W. 2001. “Genetics and Confidentiality.” The American Journal of Bioethics 1 (3): 34–35.
    • (2001) The American Journal of Bioethics , vol.1 , Issue.3 , pp. 34-35
    • Brock, D.W.1
  • 6
    • 27844459570 scopus 로고    scopus 로고
    • The Cult of Consent: Fixation and Fallacy
    • Brownsword, R. 2004. “The Cult of Consent: Fixation and Fallacy.” KCLJ 15: 223–51.
    • (2004) KCLJ , vol.15 , pp. 223-251
    • Brownsword, R.1
  • 7
    • 84911053744 scopus 로고    scopus 로고
    • Rights, Responsibility and Stewardship: Beyond Consent
    • edited by H. Widdows and C. Mullen, Cambridge: Cambridge University Press
    • Brownsword, R. 2009. “Rights, Responsibility and Stewardship: Beyond Consent.” In The Governance of Genetic Information: Who Decides?, edited by H. Widdows and C. Mullen, 99–125. Cambridge: Cambridge University Press.
    • (2009) The Governance of Genetic Information: Who Decides? , pp. 99-125
    • Brownsword, R.1
  • 8
    • 51349133577 scopus 로고    scopus 로고
    • Alternative Consent Models for Biobanks: The New Spanish Law on Biomedical Research
    • Casado Da Rocha, A., and Seoane, J. A. 2008. “Alternative Consent Models for Biobanks: The New Spanish Law on Biomedical Research.” Bioethics 22 (8): 440–47.
    • (2008) Bioethics , vol.22 , Issue.8 , pp. 440-447
    • Casado Da Rocha, A.1    Seoane, J.A.2
  • 10
    • 85098053755 scopus 로고    scopus 로고
    • Accessed February 25, 2011
    • Declaration of Helsinki. 2008. “Section 24.” Accessed February 25, 2011. http://www.wma.net/en/30publications/10policies/b3/index.html.
    • (2008) Section 24
  • 11
  • 14
    • 85098052817 scopus 로고    scopus 로고
    • Statement on Benefit Sharing.” Accessed March 1, 2011
    • HUGO (Human Genome Organisation) Ethics Committee. 2000. “Statement on Benefit Sharing.” Accessed March 1, 2011. http://mbrdb.nibio.go.jp/kiban01/downloadEN/HUGO/Statement_ on_Benefit_Sharing.htm
    • (2000) Genome Organisation) Ethics Committee
  • 15
    • 21744444956 scopus 로고    scopus 로고
    • Building on Relationships of Trust in Biobank Research
    • Hansson, M. G. 2005. “Building on Relationships of Trust in Biobank Research.” Journal of Medical Ethics 31: 415–18.
    • (2005) Journal of Medical Ethics , vol.31 , pp. 415-418
    • Hansson, M.G.1
  • 16
    • 0001999169 scopus 로고    scopus 로고
    • Autonomy and a Right Not to Know
    • edited by R. Chadwick et al, Aldershot: Ashgate
    • Husted, J. 1997. “Autonomy and a Right Not to Know.” In The Right to Know and the Right Not to Know, edited by R. Chadwick et al, 55–68. Aldershot: Ashgate.
    • (1997) The Right to Know and the Right Not to Know , pp. 55-68
    • Husted, J.1
  • 18
    • 0037739394 scopus 로고    scopus 로고
    • Knoppers, B. M. (Ed.), The Hague: Kluwer Law International
    • Knoppers, B. M. (Ed.). 1997. Human DNA: Law and Policy. The Hague: Kluwer Law International.
    • (1997) Human DNA: Law and Policy
  • 19
    • 0001775966 scopus 로고    scopus 로고
    • Who Should Have Access to Genetic Information
    • edited by J. Burley, Oxford: Oxford University Press
    • Knoppers, B. M. 1999. “Who Should Have Access to Genetic Information.” In The Genetic Revolution and Human Rights, edited by J. Burley, 54–60. Oxford: Oxford University Press.
    • (1999) The Genetic Revolution and Human Rights , pp. 54-60
    • Knoppers, B.M.1
  • 20
    • 10644282182 scopus 로고    scopus 로고
    • Human Genetic Research: Emerging Trends in Ethics
    • Knoppers, B. M., and R. Chadwick. 2005. “Human Genetic Research: Emerging Trends in Ethics.” Nature 6: 75–79.
    • (2005) Nature , vol.6 , pp. 75-79
    • Knoppers, B.M.1    Chadwick, R.2
  • 22
    • 84937345949 scopus 로고    scopus 로고
    • Informed Consent after the Human Genome Project
    • Mitchell, G. R., and K. Happe. 2001. “Informed Consent after the Human Genome Project.” Rhetoric and Public Affairs 4 (3): 375–406.
    • (2001) Rhetoric and Public Affairs , vol.4 , Issue.3 , pp. 375-406
    • Mitchell, G.R.1    Happe, K.2
  • 23
    • 80855128325 scopus 로고
    • Accessed February 25, 2011
    • Nuremberg Code. 1949. “Directives for Human Experimentation.” Accessed February 25, 2011. http://ohsr.od.nih.gov/guidelines/nuremberg.html
    • (1949) Directives for Human Experimentation
  • 25
    • 0035382860 scopus 로고    scopus 로고
    • Confidentiality in Genetic Testing
    • Parker, M 2001. “Confidentiality in Genetic Testing.” The American Journal of Bioethics 1 (3): 21–22.
    • (2001) The American Journal of Bioethics , vol.1 , Issue.3 , pp. 21-22
    • Parker, M.1
  • 26
    • 3242732814 scopus 로고    scopus 로고
    • Genetic Information: A Joint Account?
    • Parker, M., and A. M. Lucassen. 2004. “Genetic Information: A Joint Account?” British Medical Journal 329: 165–67.
    • (2004) British Medical Journal , vol.329 , pp. 165-167
    • Parker, M.1    Lucassen, A.M.2
  • 27
    • 85098057570 scopus 로고    scopus 로고
    • R. v. Brown and other appeals. 1993. 2 All ER 75
    • R. v. Brown and other appeals. 1993. 2 All ER 75.
  • 28
    • 17944366421 scopus 로고    scopus 로고
    • Expanding the Ethical Analysis of Biobanks
    • Rothstein, M. A. 2005. “Expanding the Ethical Analysis of Biobanks.” Journal of Law, Medicine and Ethics 33: 89–101.
    • (2005) Journal of Law, Medicine and Ethics , vol.33 , pp. 89-101
    • Rothstein, M.A.1
  • 30
    • 84859578946 scopus 로고    scopus 로고
    • Accessed February 25, 2011
    • UK Biobank. 2007. Ethics and Governance Framework. Accessed February 25, 2011. http://www. ukbiobank.ac.uk/docs/20071011_EGF_Version_3_1_0October_2007withTOR.pdf
    • (2007) Ethics and Governance Framework
  • 31
    • 33847379756 scopus 로고    scopus 로고
    • Conceptualising the Self in the Genetic Era
    • Widdows, H. 2007a. “Conceptualising the Self in the Genetic Era.” Health Care Analysis 15: 5–12.
    • (2007) Health Care Analysis , vol.15 , pp. 5-12
    • Widdows, H.1
  • 32
    • 84900750059 scopus 로고    scopus 로고
    • Reconceptualising Genetics: Challenges to Traditional Medical Ethics
    • edited by C. Lenk, N. Hoppe, and R. Andomo, Aldershot: Ashgate
    • Widdows, H 2007b. “Reconceptualising Genetics: Challenges to Traditional Medical Ethics.” In Ethics and Law of Intellectual Property: Current Problems in Politics, Science and Technology, edited by C. Lenk, N. Hoppe, and R. Andomo, 159–74. Aldershot: Ashgate.
    • (2007) Ethics and Law of Intellectual Property: Current Problems in Politics, Science and Technology , pp. 159-174
    • Widdows, H.1
  • 33
    • 79952972446 scopus 로고    scopus 로고
    • Constructing Communal Models of Governance
    • edited by H. Widdows and C. Mullen, Cambridge: Cambridge University Press
    • Widdows, H 2009a. “Constructing Communal Models of Governance.” In The Governance of Genetic Information: Who Decides? edited by H. Widdows and C. Mullen, 75–98. Cambridge: Cambridge University Press.
    • (2009) The Governance of Genetic Information: Who Decides? , pp. 75-98
    • Widdows, H.1
  • 34
    • 70449622970 scopus 로고    scopus 로고
    • Between the Individual and the Community: The Impact of Genetics on Ethical Models
    • Widdows, H 2009b. “Between the Individual and the Community: The Impact of Genetics on Ethical Models.” New Genetics and Society 28 (2): 173–88.
    • (2009) New Genetics and Society , vol.28 , Issue.2 , pp. 173-188
    • Widdows, H.1
  • 35
    • 0141810894 scopus 로고    scopus 로고
    • Governing Population Genomics
    • Winickoff, D. E 2003. “Governing Population Genomics.” Jurimetrics 43: 187–228.
    • (2003) Jurimetrics , vol.43 , pp. 187-228
    • Winickoff, D.E.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.