-
1
-
-
79551606008
-
Reconsidering the Value of Consent in Biobank Research
-
Allen, J., and B. McNamara. 2009. “Reconsidering the Value of Consent in Biobank Research.” Bioeth 25 (3): 155–66.
-
(2009)
Bioeth
, vol.25
, Issue.3
, pp. 155-166
-
-
Allen, J.1
McNamara, B.2
-
4
-
-
85098053990
-
-
Accessed February 25, 2011
-
Biobank UK. 2007. “Further Information Leaflet.” Accessed February 25, 2011. http://www. ukbiobank.ac.uk/docs/urtherinfoleaflet241007.pdf.
-
(2007)
Further Information Leaflet
-
-
Biobank, U.K.1
-
6
-
-
27844459570
-
The Cult of Consent: Fixation and Fallacy
-
Brownsword, R. 2004. “The Cult of Consent: Fixation and Fallacy.” KCLJ 15: 223–51.
-
(2004)
KCLJ
, vol.15
, pp. 223-251
-
-
Brownsword, R.1
-
7
-
-
84911053744
-
Rights, Responsibility and Stewardship: Beyond Consent
-
edited by H. Widdows and C. Mullen, Cambridge: Cambridge University Press
-
Brownsword, R. 2009. “Rights, Responsibility and Stewardship: Beyond Consent.” In The Governance of Genetic Information: Who Decides?, edited by H. Widdows and C. Mullen, 99–125. Cambridge: Cambridge University Press.
-
(2009)
The Governance of Genetic Information: Who Decides?
, pp. 99-125
-
-
Brownsword, R.1
-
8
-
-
51349133577
-
Alternative Consent Models for Biobanks: The New Spanish Law on Biomedical Research
-
Casado Da Rocha, A., and Seoane, J. A. 2008. “Alternative Consent Models for Biobanks: The New Spanish Law on Biomedical Research.” Bioethics 22 (8): 440–47.
-
(2008)
Bioethics
, vol.22
, Issue.8
, pp. 440-447
-
-
Casado Da Rocha, A.1
Seoane, J.A.2
-
10
-
-
85098053755
-
-
Accessed February 25, 2011
-
Declaration of Helsinki. 2008. “Section 24.” Accessed February 25, 2011. http://www.wma.net/en/30publications/10policies/b3/index.html.
-
(2008)
Section 24
-
-
-
14
-
-
85098052817
-
-
Statement on Benefit Sharing.” Accessed March 1, 2011
-
HUGO (Human Genome Organisation) Ethics Committee. 2000. “Statement on Benefit Sharing.” Accessed March 1, 2011. http://mbrdb.nibio.go.jp/kiban01/downloadEN/HUGO/Statement_ on_Benefit_Sharing.htm
-
(2000)
Genome Organisation) Ethics Committee
-
-
-
15
-
-
21744444956
-
Building on Relationships of Trust in Biobank Research
-
Hansson, M. G. 2005. “Building on Relationships of Trust in Biobank Research.” Journal of Medical Ethics 31: 415–18.
-
(2005)
Journal of Medical Ethics
, vol.31
, pp. 415-418
-
-
Hansson, M.G.1
-
16
-
-
0001999169
-
Autonomy and a Right Not to Know
-
edited by R. Chadwick et al, Aldershot: Ashgate
-
Husted, J. 1997. “Autonomy and a Right Not to Know.” In The Right to Know and the Right Not to Know, edited by R. Chadwick et al, 55–68. Aldershot: Ashgate.
-
(1997)
The Right to Know and the Right Not to Know
, pp. 55-68
-
-
Husted, J.1
-
18
-
-
0037739394
-
-
Knoppers, B. M. (Ed.), The Hague: Kluwer Law International
-
Knoppers, B. M. (Ed.). 1997. Human DNA: Law and Policy. The Hague: Kluwer Law International.
-
(1997)
Human DNA: Law and Policy
-
-
-
19
-
-
0001775966
-
Who Should Have Access to Genetic Information
-
edited by J. Burley, Oxford: Oxford University Press
-
Knoppers, B. M. 1999. “Who Should Have Access to Genetic Information.” In The Genetic Revolution and Human Rights, edited by J. Burley, 54–60. Oxford: Oxford University Press.
-
(1999)
The Genetic Revolution and Human Rights
, pp. 54-60
-
-
Knoppers, B.M.1
-
20
-
-
10644282182
-
Human Genetic Research: Emerging Trends in Ethics
-
Knoppers, B. M., and R. Chadwick. 2005. “Human Genetic Research: Emerging Trends in Ethics.” Nature 6: 75–79.
-
(2005)
Nature
, vol.6
, pp. 75-79
-
-
Knoppers, B.M.1
Chadwick, R.2
-
22
-
-
84937345949
-
Informed Consent after the Human Genome Project
-
Mitchell, G. R., and K. Happe. 2001. “Informed Consent after the Human Genome Project.” Rhetoric and Public Affairs 4 (3): 375–406.
-
(2001)
Rhetoric and Public Affairs
, vol.4
, Issue.3
, pp. 375-406
-
-
Mitchell, G.R.1
Happe, K.2
-
23
-
-
80855128325
-
-
Accessed February 25, 2011
-
Nuremberg Code. 1949. “Directives for Human Experimentation.” Accessed February 25, 2011. http://ohsr.od.nih.gov/guidelines/nuremberg.html
-
(1949)
Directives for Human Experimentation
-
-
-
25
-
-
0035382860
-
Confidentiality in Genetic Testing
-
Parker, M 2001. “Confidentiality in Genetic Testing.” The American Journal of Bioethics 1 (3): 21–22.
-
(2001)
The American Journal of Bioethics
, vol.1
, Issue.3
, pp. 21-22
-
-
Parker, M.1
-
26
-
-
3242732814
-
Genetic Information: A Joint Account?
-
Parker, M., and A. M. Lucassen. 2004. “Genetic Information: A Joint Account?” British Medical Journal 329: 165–67.
-
(2004)
British Medical Journal
, vol.329
, pp. 165-167
-
-
Parker, M.1
Lucassen, A.M.2
-
27
-
-
85098057570
-
-
R. v. Brown and other appeals. 1993. 2 All ER 75
-
R. v. Brown and other appeals. 1993. 2 All ER 75.
-
-
-
-
30
-
-
84859578946
-
-
Accessed February 25, 2011
-
UK Biobank. 2007. Ethics and Governance Framework. Accessed February 25, 2011. http://www. ukbiobank.ac.uk/docs/20071011_EGF_Version_3_1_0October_2007withTOR.pdf
-
(2007)
Ethics and Governance Framework
-
-
-
31
-
-
33847379756
-
Conceptualising the Self in the Genetic Era
-
Widdows, H. 2007a. “Conceptualising the Self in the Genetic Era.” Health Care Analysis 15: 5–12.
-
(2007)
Health Care Analysis
, vol.15
, pp. 5-12
-
-
Widdows, H.1
-
32
-
-
84900750059
-
Reconceptualising Genetics: Challenges to Traditional Medical Ethics
-
edited by C. Lenk, N. Hoppe, and R. Andomo, Aldershot: Ashgate
-
Widdows, H 2007b. “Reconceptualising Genetics: Challenges to Traditional Medical Ethics.” In Ethics and Law of Intellectual Property: Current Problems in Politics, Science and Technology, edited by C. Lenk, N. Hoppe, and R. Andomo, 159–74. Aldershot: Ashgate.
-
(2007)
Ethics and Law of Intellectual Property: Current Problems in Politics, Science and Technology
, pp. 159-174
-
-
Widdows, H.1
-
33
-
-
79952972446
-
Constructing Communal Models of Governance
-
edited by H. Widdows and C. Mullen, Cambridge: Cambridge University Press
-
Widdows, H 2009a. “Constructing Communal Models of Governance.” In The Governance of Genetic Information: Who Decides? edited by H. Widdows and C. Mullen, 75–98. Cambridge: Cambridge University Press.
-
(2009)
The Governance of Genetic Information: Who Decides?
, pp. 75-98
-
-
Widdows, H.1
-
34
-
-
70449622970
-
Between the Individual and the Community: The Impact of Genetics on Ethical Models
-
Widdows, H 2009b. “Between the Individual and the Community: The Impact of Genetics on Ethical Models.” New Genetics and Society 28 (2): 173–88.
-
(2009)
New Genetics and Society
, vol.28
, Issue.2
, pp. 173-188
-
-
Widdows, H.1
-
35
-
-
0141810894
-
Governing Population Genomics
-
Winickoff, D. E 2003. “Governing Population Genomics.” Jurimetrics 43: 187–228.
-
(2003)
Jurimetrics
, vol.43
, pp. 187-228
-
-
Winickoff, D.E.1
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