Preimplantation diagnosis and other reproductive options: Attitudes of male and female carriers of recessive disorders

Human Reproduction

Volumn 12, Issue 2, 1997, Pages 341-350

  Snowdon, Claire ^a   Green, Josephine M ^b  

^a UNIVERSITY OF CAMBRIDGE   (United Kingdom)

^b UNIVERSITY OF LEEDS   (United Kingdom)

Author keywords

Adoption; Attitudes; Diagnosis; Gamete donation; Preimplantation; Prenatal diagnosis

Indexed keywords

ADOPTION; ADULT; ARTICLE; ARTIFICIAL INSEMINATION; DISEASE CARRIER; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; OOCYTE DONATION; PATIENT ATTITUDE; PREIMPLANTATION EMBRYO; PRENATAL DIAGNOSIS; QUESTIONNAIRE; RECESSIVE INHERITANCE; SEX DIFFERENCE;

EID: 0030892816     PISSN: 02681161     EISSN: None     Source Type: Journal    
DOI: 10.1093/humrep/12.2.341     Document Type: Article

References (40)

1. Alder, E.M., Bairn, D.T., Lees, M.M. et al. (1986) Attitudes of women of reproductive age to in vitro fertilisation and embryo research. J. Biosoc. Sci., 18, 155-167.
2. Atkinson, H.G. and Handyside, A. (1994) Preimplantation diagnosis. In Abramsky, L. and Chapple, J. (eds), Prenatal Diagnosis: the Human Side. Chapman and Hall, London.
3. Baluch, B., Fallone, A., Khan, J. et al. (1994) Gender differences and personality correlates in attitudes towards controversial aspects of human reproduction. J. Social Behaviour Personality, 9, 329-334.
4. Baram, D., Tourtelot, E., Muechler, E. et al. (1988) Psychosocial adjustment following unsuccessful in vitro fertilisation. J. Psychosom. Obstet Gynaecol., 9, 181-190.
5. Bielawska-Batorowicz, E. (1994) Artificial insemination by donor: an investigation of recipient couples' viewpoints. J. Reprod. Infant Psychol., 12, 123-126.
6. Black, R.B. (1989) A 1 and 6 month follow-up of prenatal diagnosis patients who lost pregnancies. Prenat. Diagn., 9, 795-804.
7. Blumberg, B.D., Golbus, M.S. and Hanson, K.H. (1975) The psychological sequelae of abortion performed for a genetic indication. Am. J. Obstet. Gynecol., 122, 799-808.
8. Crowe, C. (1990) Bearing the consequences - women experiencing IVF. In Scutt, J.A. (ed.), The Baby Machine: Reproductive Technology and the Commercialisation of Motherhood. Green Print, London
9. Daniels, K.R. (1994) Adoption and donor insemination: factors influencing couples' choices. Child Wel., 73, 5-14.
10. Donnai, P., Charles, N., and Harris, R. (1981) Attitudes of patients after 'genetic' termination of pregnancy. Br. Med. J., 282, 621-622.
11. Fletcher, J.F. (1988) The Ethics of Genetic Control: Ending Reproductive Roulette. Prometheus Books, Buffalo, New York.
12. Genuis, S.J., Chang, W.C. and Genuis, S.K. (1993) Public attitudes in Edmonton towards assisted reproductive technology. Can. Med. Assoc. J., 149, 153-161
13. Handyside, A.H. (1996) Opinion: common sense as applied to eugenics: response to Testart and Sèle. Hum. Reprod., 11, 707.
14. Handyside, A.M., Lesko, J.G., Tarin, J.J. et al. (1992) Birth of a normal girl after in vitro fertilization and preimplantation diagnostic testing for cystic fibrosis. N. Engl. J. Med., 327, 905-909.
15. Handyside, A.H. and Delahanty, J.D.A. (1993) Cleavage stage biopsy of human embryos and diagnosis of X-linked recessive disease. In Edwards R.G. (ed.), Preimplantation Diagnosis of Human Genetic Disease. Cambridge University Press, Cambridge, pp. 239-270.
16. Harper, J.C. (1996) Preimplantation diagnosis of inherited disease by embryo biopsy: an update of world figures. J. Assist. Reprod. Genet., 13, 90-95.
17. Hodges, E. (1996) Going to work on an egg. The Times Higher, March 15, pp. 15-17.
18. Kazem, R., Thompson, L.A., Hamilton, M.P. et al. (1995) Current attitudes towards egg donation among men and women. Hum. Reprod., 10, 1543-1548.
19. Laruelle, C. and Englert, Y. (1995) Psychological study of in-vitro fertilization-embryo transfer participants' attitudes towards the destiny of their supernumerary embryos. Fertil. Steril., 63, 1047-1050.
20. Leschot, N.J., Verjaal, M. and Treffers, P.E. (1982) Therapeutic abortion on genetic grounds. J. Psychosom. Obstet. Gynaecol., 1, 47-56.
21. Lloyd, J. and Laurence, K.M. (1985) Sequelae and support after termination of pregnancy for fetal malformation. Br. Med. J., 290, 907-909.
22. Lyall, H., Murray, E., Glasier, A. et al. (1995) Donated ovarian tissue in embryo research and assisted conception: the view of women of reproductive age. Hum. Reprod., 10, 1242-1245.
23. Macer, D.R. (1994) Perceptions of risks and benefits of in vitro fertilisation. genetic engineering and biotechnology. Soc. Sci. Med., 38, 23-33.
24. Mahlstedt, P.P., MacDuff, S. and Bernstein, J. (1987) Emotional factors and the in vitro fertilisation and embryo transfer process. J. In Vitro Fertilisation Embryo Transfer, 4, 232.
25. Miedzybrodzka, Z., Templeton, A., Dean, J. et al. (1993) Preimplantation diagnosis of chorion villus biopsy? Women's attitudes and preferences Hum. Reprod., 8, 2192-2196.
26. Newton, C.R., Hearn, M.T. and Yuzpe, A.A. (1990) Psychological assessment and follow-up after in vitro fertilisation: assessing the impact of failure Fertil. Steril., 54, 879-885.
27. Palomba, M.L., Monni, G., Lai, R. et al. (1994) Psychological implications and acceptability of preimplantation diagnosis. Hum. Reprod., 9, 360-362.
28. Pergament, E. (1991) Preimplantation diagnosis: a patient perspective Prenat. Diagn., 11, 493-500.
29. Raeburn, A. (1995) Commentary: Preimplantation diagnosis raises a philosophical dilemma. Br. Med. J., 31, 540.
30. Robertson, J.A. (1992) Ethical and legal issues in preimplantation genetic screening. Fertil. Steril., 57, 1-11.
31. Schulman, J.D. and Edwards, R.G. (1996) Opinion: preimplantation diagnosis is disease control, not eugenics. Hum. Reprod., 11, 463-464.
32. Shira, Y. (1993) Japanese attitudes towards assisted procreation. J. Law, Med. Ethics, 21, 43-53.
33. Snowden, R. and Snowden, E. (1984) The Gift of a Child. George Allen and Unwin, London.
34. Snowdon, C. and Green, J.M. (1994a) New Reproductive Technologies: Attitudes and Experiences of Carriers of Recessive Disorders. Internal publication, Centre for Family Research, University of Cambridge, Cambridge.
35. Snowdon, C. and Green, J.M. (1994b) Attitudes to genetic relationships of carrier couples assessing reproductive options. Paper presented at the Fourth European Meeting on Psychosocial Aspects of Genetics. Heidelberg, Germany, September 1994.
36. Sullivan, L. (1993) In the path of Daedalus: middle-class Australians' attitudes to embryo research. Br. J. Social., 44, 271-302.
37. Testart, J. and Sèle, M. (1995) Towards an efficient medical eugenics: is the desirable always the feasible? Hum. Reprod., 10, 3086-3090.
38. Williams, L. (1989) 'It's going to work for me.' Responses to failure of IVF. Birth, 15, 153-156.
39. Williams, L.S. (1989) No relief until the end: the physical and emotional costs of in vitro fertilisation. In Overall, C. (ed.), The Future of Human Reproduction. The Women's Press, Toronto.
40. Williams, L.S. (1992) Adoption actions and attitudes of couples seeking in vitro fertilisation: an exploratory study. J. Fam. Issues, 13, 99-113.