Ethnicity reporting practices for empirical research in three autism-related journals

Journal of Autism and Developmental Disorders

Volumn 44, Issue 7, 2014, Pages 1507-1519

  Pierce, Nigel P ^a,b   O'Reilly, Mark F ^b   Sorrells, Audrey M ^b   Fragale, Christina L ^b   White, Pamela J ^b   Aguilar, Jeannie M ^b   Cole, Heather A ^b  

^a UNIVERSITY OF NORTH CAROLINA   (United States)

^b UNIVERSITY OF TEXAS AT AUSTIN   (United States)

Author keywords

Autism spectrum disorder; Demographics; Ethnicity; Race; Reporting practices

Indexed keywords

ARTICLE; AUTISM; CODING; DESCRIPTIVE RESEARCH; EDUCATION; EMPIRICAL RESEARCH; ETHNICITY; FAMILY; HEALTH CARE; HUMAN; INFORMATION; PRIORITY JOURNAL; PUBLICATION; CHILD; ETHNIC GROUP; ETHNOLOGY; FEMALE; MALE; METHODOLOGY;

AUTISTIC DISORDER; CHILD; EMPIRICAL RESEARCH; ETHNIC GROUPS; FEMALE; HUMANS; MALE; RESEARCH DESIGN;

EID: 84903732093     PISSN: 01623257     EISSN: 15733432     Source Type: Journal    
DOI: 10.1007/s10803-014-2041-x     Document Type: Article

References (81)

1. Abedi, J., Hofstetter, C., & Lord, C. (2004). Assessment accommodations for English language learners: Implications for policy-based empirical research. Review of Educational Research, 74, 1-28. doi:10.3102/00346543074001001. (Pubitemid 38651978)
2. American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders (4th ed.). Washington, DC: Author.
3. Artiles, A. J., Rueda, R., Salazar, J., & Higareda, I. (2005). Within-group diversity in minority disproportionate representation: English language learners in urban school districts. Exceptional Children, 71, 283-300. (Pubitemid 40322716)
4. Artiles, A. J., Trent, S. C., & Kuan, L. (1997). Learning disabilities empirical research on ethnic minority students: An analysis of 22 years of studies published in selected refereed journals. Learning Disabilities Research & Practice, 12(2), 82-91.
5. Beatson, J. E., & Prelock, P. A. (2002). The Vermont Rural Autism Project: Sharing experiences, shifting attitudes. Focus on Autism and Other Developmental Disabilities, 17, 48-54. doi:10.1177/108835760201700106.
6. Begeer, S., El Bouk, S., Boussaid, W., Terwogt, M., & Koot, H. M. (2009). Underdiagnosis and referral bias of autism in ethnic minorities. Journal of Autism and Developmental Disorders, 39, 142-148. doi:10.1007/s10803-008- 0611-5.
7. Bieberich, A. A., & Morgan, S. B. (2004). Self-regulation and affective expression during play in children with autism or Down syndrome: A short-term longitudinal Study. Journal of Autism and Developmental Disorders, 34(4), 439-448. doi:10.1023/B:JADD.0000037420.16169.28. (Pubitemid 39127719)
8. Bornman, J., Sevcik, R. A., Romski, M.,&Pae, H. (2010). Successfully translating language and culture when adapting assessment measures. Journal of Policy and Practice in Intellectual Disabilities, 7(2), 111-118. doi:10.1111/j.1741-1130.2010.00254.x.
9. Bos, C., & Fletcher, T. (1997). Sociocultural considerations in learning disabilities inclusion research: Knowledge gaps and future directions. Learning Disabilities Research and Practice, 12(2), 92-99.
10. Bryson, S. A., Corrigan, S. K., Mcdonald, T. P., & Holmes, C. (2008). Characteristics of children with autism spectrum disorders who received services through community mental health centers. Autism, 12, 65-82. doi:10.1177/1362361307085214.
11. Callahan, K., Henson, R. K., & Cowan, A. K. (2008). Social validation of evidence-based practices in autism by parents, teachers, and administrators. Journal of Autism and Developmental Disorders, 38(4), 678-692. doi:10.1007/s10803-007-0434-9. (Pubitemid 351421882)
12. Centers for Disease Control and Prevention. (2012). Prevalence of autism spectrum disorders: Autism and developmental disabilities monitoring network, 14 sites, United States, 2008. Morbidity and Mortality Weekly Report, 61(3), 1-19.
13. Chiang, H. (2008). Expressive communication of children with autism: The use of challenging behaviour. Journal of Intellectual Disability Research, 52, 966-972. doi:10.1111/j.1365-2788.2008.01042.
14. Cohen, I. L., & Tsiouris, J. A. (2006). Maternal recurrent mood disorders and high-functioning autism. Journal of Autism and Developmental Disorders, 36, 1077-1088. doi:10.1007/s10803-006-0145-7. (Pubitemid 46020360)
15. Croen, L. A., Grether, J. K., Hoogstrate, J., & Selvin, S. (2002a). The changing prevalence of autism in California. Journal of Autism and Developmental Disorders, 32(3), 207-215. doi:10.1023/A:1015453830880. (Pubitemid 37486717)
16. Croen, L. A., Grether, J. K., & Selvin, S. (2002b). Descriptive epidemiology of autism in a California population: Who is at risk? Journal of Autism and Developmental Disorders, 32(3), 217-224. doi:10.1023/A:1015405914950. (Pubitemid 37486718)
17. Davis, N., & Carter, A. S. (2008). Parenting stress in mothers and fathers of toddlers with autism spectrum disorders: Associations with child characteristics. Journal of Autism and Developmental Disorders, 38(7), 1278-1291. doi:10.1007/s10803-007-0512-z.
18. Dyches, T., Wilder, L., Sudweeks, R., Obiakor, F., & Algozzine, B. (2004). Multicultural issues in autism. Journal of Autism and Developmental Disorders, 34, 211-222. (Pubitemid 39023474)
19. Estrem, T. L., & Zhang, S. (2010). Prevalence and disproportionality of autism spectrum disorders among English language learners in Minnesota. Multiple Voices for Ethnically Diverse Exceptional Learners, 12(2), 5-20.
20. Fisch, G. S., Simensen, R. J., & Schroer, R. J. (2002). Longitudinal changes in cognitive and adaptive behavior scores in children and adolescents with the Fragile X mutation or autism. Journal of Autism and Developmental Disorders, 32(2), 107-114. doi:10.1023/A:1014888505185. (Pubitemid 37486726)
21. Gadow, K. D., DeVincent, C., & Schneider, J. (2008). Predictors of psychiatric symptoms in children with an autism spectrum disorder. Journal of Autism and Developmental Disorders, 38(9), 1710-1720. doi:10.1007/s10803-008- 0556-8.
22. Ganz, J. B., & Simpson, R. L. (2004). Effects on communicative requesting and speech development of the picture exchange communication system in children with characteristics of autism. Journal of Autism and Developmental Disorders, 34(4), 395-409. doi:10.1023/B:JADD.0000037416.59095.d7. (Pubitemid 39127715)
23. Hampton, E. O., Whitney, D., & Schwartz, I. S. (2002). Weaving assessment information into intervention ideas: Planning communication interventions for young children with disabilities. Assessment for Effective Intervention, 27(4), 49-59. doi:10.1177/073724770202700406.
24. Hilton, C., Fitzgerald, R., Jackson, K., Maxim, R., Bosworth, C., Shattuck, P., et al. (2010). Brief report: Under-representation of African Americans in autism genetic research: A rationale for inclusion of subjects representing diverse family structures. Journal of Autism and Developmental Disorders, 40, 633-639. doi:10.1007/s10803-009-0905-2.
25. Hoffman, C. D., Sweeney, D. P., Gilliam, J. E., & Lopez-Wagner, M. C. (2006). Sleep problems in children with autism and in typically developing children. Focus on Autism and Other Developmental Disabilities, 21(3), 146-152. doi:10.1177/10883576060210030301.
26. Hoffman, C. D., Sweeney, D. P., Lopez-Wagner, M. C., Hodge, D., Nam, C. Y., & Botts, B. H. (2008). Children with autism: Sleep problems and mothers' stress. Focus on Autism and Other Developmental Disabilities, 23(3), 155-165. doi:10.1177/1088357608316271.
27. Horowitz, C. R., Brenner, B. L., Lachapelle, S., Amara, D. A., & Arniella, G. (2009). Effective recruitment of minority populations through community-led strategies. American Journal of Preventive Medicine, 37(6, Suppl 1), S195-S200. doi:10.1016/j.amepre.2009.08.006.
28. Ibanez, L. V., Messinger, D. S., Newell, L., Lambert, B., & Sheskin, M. (2008). Visual disengagement in the infant siblings of children with an autism spectrum disorder (ASD). Autism, 12, 473-485. doi:10.1177/ 1362361308094504.
29. Jarquin, V. G., Wiggins, L. D., Schieve, L. A., & Van Naarden-Braun, K. (2011). Racial disparities in community identification of autism spectrum disorders over time; Metropolitan Atlanta, Georgia, 2000-2006. Journal of Developmental and Behavioral Pediatrics, 32, 179-187. doi:10.1097/DBP. 0b013e31820b4260.
30. Jegatheesan, B., Miller, P. J., & Fowler, S. A. (2010). Autism from a religious perspective: A study of parental beliefs in South Asian Muslim immigrant families. Focus on Autism and Other Developmental Disabilities, 25, 98-109. doi:10.1177/1088357610361344.
31. Kalb, L. G., Law, J. K., Landa, R., & Law, P. A. (2010). Onset patterns prior to 36 months in autism spectrum disorders. Journal of Autism and Developmental Disorders, 40, 1389-1402. doi:10.1007/s10803-010-0998-7.
32. Kao, B., Lobato, D., Grullon, E., Cheas, L., Plante, W., Seifer, R., et al. (2011). Recruiting Latino and non-Latino families in pediatric research: Considerations from a study on childhood disability. Journal of Pediatric Psychology, 36, 1093-1101. doi:10.1093/jpepsy/jsr030.
33. Kistner, J., & Robbins, F. (1986). Characteristics of methods of subject selection and description in research on autism. Journal of Autism and Developmental Disorders, 16, 77-82. doi:10.1007/BF01531580. (Pubitemid 16131578)
34. Klingner, J. K., Sorrells, A. M., & Barrera, M. T. (2007). Considerations when implementing response to intervention models with culturally and linguistically diverse students. In D. Haager, S. Vaughn, & J. Klingner (Eds.), Evidence-based reading practices for response to intervention (pp. 223-244). Baltimore, MD: Brookes.
35. Lin, S. S., & Kelsey, J. L. (2000). Use of race and ethnicity in epidemiologic research: Concepts, methodological issues, and suggestions for research. Epidemiologic Review, 22, 187-202. (Pubitemid 32116091)
36. Liptak, G. S., Benzoni, L. B., Mruzek, D. W., Nolan, K. W., Thingvoll, M. A., Wade, C. M., et al. (2008). Disparities in diagnosis and access to health services for children with autism: Data from the National Survey of Children's Health. Journal of Developmental and Behavioral Pediatrics, 29(3), 152-160. doi:10.1097/DBP.0b013e318165c7a0.
37. Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: Data from U.S. national samples. Journal of Autism and Developmental Disorders, 36(7), 871-879. doi:10.1007/s10803-006-0119-9. (Pubitemid 44440106)
38. Machalicek, W., O'Reilly, M., Beretvas, N., Sigafoos, J., Lancioni, G., Sorrells, A., et al. (2008). A review of school-based instructional interventions for students with autism spectrum disorders. Research in Autism Spectrum Disorders, 2, 395-416. (Pubitemid 351832994)
39. Mandell, D. S. (2008). Psychiatric hospitalization among children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 38(6), 1059-1065. doi:10.1007/s10803-007-0481-2.
40. Mandell, D., Listerud, J., Levy, S., & Pinto-Martin, J. (2002). Race differences in the age at diagnosis among Medicaid-eligible children with autism. Journal of the American Academy of Child and Adolescent Psychiatry, 41, 1447-1453. (Pubitemid 44698521)
41. Mandell, D. S., Wiggins, L. D., Yeargin-Allsopp, M., Carpenter, L., Daniels, J., Thomas, K. C., et al. (2009). Racial/ethnic disparities in the identification of children with autism spectrum disorders. American Journal of Public Health, 99, 493-498. doi:10.2105/AJPH.2007.131243.
42. McCray, A., & García, S. B. (2002). The stories we must tell: Developing a research agenda for multicultural and bilingual special education. International Journal of Qualitative Studies in Education, 15, 599-612. doi:10.1080/0951839022000014330.
43. Morrier, M. J., Hess, K. L., & Heflin, L. (2008). Ethnic disproportionality in students with autism spectrum disorders. Multicultural Education, 16, 31-38.
44. Morris, R., Lyon, G. R., Alexander, D., Gray, D. B., Kavanagh, J., Rourke, B. P., et al. (1994). Editorial: Proposed guidelines and criteria for describing samples of persons with learning disabilities. Learning Disability Quarterly, 17(2), 106-109. doi:10.2307/1511180.
45. Murray, M. M., Ackerman-Spain, K., Williams, E. U., & Ryley, A. T. (2011). Knowledge is power: Empowering the autism community through parent-professional training. The School Community Journal, 21, 19-36.
46. Nissenbaum, M. S., Tollefson, N., & Reese, R. (2002). The interpretive conference: Sharing a diagnosis of autism with families. Focus on Autism and Other Developmental Disabilities, 17, 30-43. doi:10.1177/ 108835760201700103.
47. Overton, S., & Rausch, J. L. (2002). Peer relationships as support for children with disabilities: An analysis of mothers' goals and indicators for friendship. Focus on Autism and Other Developmental Disabilities, 17, 11-29. doi:10.1177/108835760201700102.
48. Ozonoff, S., Macari, S., Young, G. S., Goldring, S., Thompson, M., & Rogers, S. J. (2008). Atypical object exploration at 12 months of age is associated with autism in a prospective sample. Autism, 12, 457-472. doi:10.1177/1362361308096402.
49. Parette, P., Chuang, S. L., & Huer, M. (2004). First-generation Chinese American families' attitudes regarding disabilities and educational interventions. Focus on Autism and Other Developmental Disabilities, 19(2), 114-123. doi:10.1177/10883576040190020701.
50. Pugach, M. C. (2001). The stories we choose to tell: Fulfilling the promise of qualitative research for special education. Exceptional Children, 67, 439-453.
51. Raad, J., Bellinger, S., McCormick, E., Roberts, M., & Steele, R. (2008). Brief report: Reporting practices of methodological information in four journals of pediatric and child psychology. Journal of Pediatric Psychology, 33, 688-693. (Pubitemid 351957521)
52. Reed, D., Sorrells, A., Cole, H., & Takawawa, N. (2013). The ecological and population validity of reading interventions for adolescents: Can effectiveness be generalized? Learning Disabilities Quarterly, 36, 131-144.
53. Rivers, J., & Stoneman, Z. (2008). Child temperaments, differential parenting, and the sibling relationships of children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 38(9), 1740-1750. doi:10.1007/s10803-008-0560-z.
54. Rodriguez, D. (2009). Culturally and linguistically diverse students with autism. Childhood Education, 85, 313.
55. Rosenberg, R. E., Mandell, D. S., Farmer, J. E., Law, J., Marvin, A. R., & Law, P. A. (2010). Psychotropic medication use among children with autism spectrum disorders enrolled in a national registry, 2007-2008. Journal of Autism and Developmental Disorders, 40(3), 342-351. doi:10.1007/s10803-009-0878-1.
56. Ruble, L. A., McGrew, J., Dalrymple, N., & Jung, L. (2010). Examining the quality of IEPs for young children with autism. Journal of Autism and Developmental Disorders, 40, 1459-1470. doi:10.1007/s10803-010-1003-1.
57. Sansosti, F. J., Lavik, K. B., & Sansosti, J. M. (2012). Family experiences through the autism diagnostic process. Focus on Autism and Other Developmental Disabilities, 27(2), 81-92. doi:10.1177/1088357612446860.
58. Shanawani, H. H., Dame, L. L., Schwartz, D. A., & Cook-Deegan, R. R. (2006). Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity. Journal of Medical Ethics: Journal of the Institute of Medical Ethics, 32, 724-728. doi:10.1136/jme.2005.014456. (Pubitemid 46001989)
59. Shin, M., & Sorrells, A. M. (2012). How first-grade Korean English learners respond to scientifically-validated instruction in reading comprehension. Journal of Bilingual Education and Instruction, 14(1), 7-27.
60. Sifers, S., Puddy, R., Warren, J., & Roberts, M. (2002). Reporting of demographics, methodology, and ethical procedures in journals in pediatric and child psychology. Journal of Pediatric Psychology, 27(1), 19-25. (Pubitemid 34019644)
61. Simpson, R. L., & Sasso, G. M. (1992). Full inclusion of students with autism in general education settings: Values versus science. Focus on Autistic Behavior, 7(3), 1-13.
62. Skiba, R., Simmons, A., Ritter, S., Kohler, K., Henderson, M., & Wu, T. (2006). The context of minority disproportionality: Practitioner perspectives on special education referral. Teachers College Record, 108, 1424-1459. doi:10.1111/j.1467-9620.2006.00699.x. (Pubitemid 43936878)
63. Smith, L. E., Hong, J., Seltzer, M., Greenberg, J. S., Almeida, D. M., & Bishop, S. L. (2010). Daily experiences among mothers of adolescents and adults with autism spectrum disorder. Journal of Autism and Developmental Disorders, 40(2), 167-178. doi:10.1007/s10803-009-0844-y.
64. Smith, T., McAdam, D., & Napolitano, D. (2007). Autism and applied behavior analysis. In P. Sturmey & A. Fitzer (Eds.), Autism spectrum disorders: Applied behavior analysis, evidence, and practice (pp. 1-29). Austin, TX: Pro-ed.
65. Smith, L. E., Seltzer, M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876-889. doi:10.1007/s10803-007-0461-6. (Pubitemid 351601317)
66. Stahmer, A. C., & Mandell, D. S. (2007). State infant/toddler program policies for eligibility and services provision for young children with autism. Administration and Policy in Mental Health and Mental Health Services Research, 34(1), 29-37. doi:10.1007/s10488-006-0060-4.
67. Stone, W. L., Coonrod, E. E., Turner, L. M., & Pozdol, S. L. (2004). Psychometric properties of the STAT for early autism screening. Journal of Autism and Developmental Disorders, 34(6), 691-701. doi:10.1007/s10803-004-5289- 8. (Pubitemid 40036954)
68. Sullivan, A. L., & Artiles, A. J. (2011). Theorizing racial inequity in special education: Applying structural inequity theory to disproportionality. Urban Education, 46, 1526-1552. doi:10.1177/0042085911416014.
69. Symes, W., & Humphrey, N. (2011). School factors that facilitate or hinder the ability of teaching assistants to effectively support pupils with autism spectrum disorders (ASDs) in mainstream secondary schools. Journal of Research in Special Educational Needs, 11(3), 153-161.
70. Tek, S., & Landa, R. J. (2012). Differences in autism symptoms between minority and non-minority toddlers. Journal of Autism and Developmental Disorders, 42, 1967-1973. doi:10.1007/s10803-012-1445-8.
71. Trembath, D., Balandin, S., & Rossi, C. (2005). Cross-cultural practice and autism. Journal of Intellectual and Developmental Disability, 30, 240-242. doi:10.1080/13668250500349458. (Pubitemid 43108926)
72. Twyman, J. S., & Sota, M. (2008). Identifying research-based practices for response to intervention: Scientifically based instruction. Journal of Evidence-Based Practices for Schools, 9(2), 86-101.
73. Vasquez, E., Lopez, A., Straub, C., Powell, S., McKinney, T., Walker, Z., et al. (2011). Empirical research on ethnic minority students: 1995-2009. Learning Disabilities Research & Practice, 26(2), 84-93. doi:10.1111/j.1540-5826.2011.00328.x.
74. Volker, M. A., Lopata, C., Smerbeck, A. M., Knoll, V. A., Thomeer, M. L., Toomey, J. A., et al. (2010). BASC-2 PRS profiles for students with high-functioning autism spectrum disorders. Journal of Autism and Developmental Disorders, 40(2), 188-199. doi:10.1007/s10803-009-0849-6.
75. Volkmar, F. R., Wiesner, L. A., & Westphal, A. (2006). Healthcare issues for children on the autism spectrum. Current Opinion in Psychiatry, 19, 361-366. doi:10.1097/01.yco.0000228754.64743.66. (Pubitemid 44317860)
76. Wachtel, K., & Carter, A. S. (2008). Reaction to diagnosis and parenting styles among mothers of young children with ASDs. Autism, 12, 575-594. doi:10.1177/1362361308094505.
77. Wallis, K., & Pinto-Martin, J. (2008). The challenge of screening for autism spectrum disorder in a culturally diverse society. Acta Paediatrica, 97, 539-540. doi:10.1111/j.1651-2227.2008.00720. (Pubitemid 351490427)
78. Weiss, M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115-130. doi:10.1177/1362361302006001009.
79. Wetherby, A. M., Brosnan-Maddox, S., Peace, V., & Newton, L. (2008). Validation of the infant-toddler checklist as a broadband screener for autism spectrum disorders from 9 to 24 months of age. Autism, 12, 487-511. doi:10.1177/1362361308094501.
80. Wilder, L. K., Dyches, T., Obiakor, F. E., & Algozzine, B. (2004). Multicultural perspectives on teaching students with autism. Focus on Autism & Other Developmental Disabilities, 19(2), 105-113.
81. Wing, L. (1988). The continuum of autistic characteristics. In E. Schopler & G. Mesibov (Eds.), Diagnosis and assessment in autism (pp. 91-110). New York, NY: Plenum.