Enacted Goal Attention in Family Conversations about End-of-life Health Decisions

Communication Monographs

Volumn 81, Issue 3, 2014, Pages 261-284

  Scott, Allison M ^a   Caughlin, John P ^b  

^a UNIVERSITY OF KENTUCKY   (United States)

^b UNIVERSITY OF ILLINOIS AT URBANA CHAMPAIGN   (United States)

Author keywords

Decision making; End of Life; Family; Goals; Health

Indexed keywords

EID: 84904431455     PISSN: 03637751     EISSN: 14795787     Source Type: Journal    
DOI: 10.1080/03637751.2014.925568     Document Type: Article

References (77)

1. Abarshi, E., Echteld, M., Donker, G., Van den Block, L., Onwuteaka-Philipsen, B., & Deliens, L. (2011). Discussing end-of-life issues in the last months of life: A nationwide study among general practitioners. Journal of Palliative Medicine, 14, 323-330. doi:10.1089/jpm.2010.0312
2. Ahrens, T., Yancey, V., & Kollef, M. (2003). Improving family communication at the end of life: Implications for length of stay in the intensive care unit and resource use. American Journal of Critical Care, 12, 317-324.
3. Babcock, C. W., & Robinson, L. E. (2011). A novel approach to hospital palliative care: An expanded role for counselors. Journal of Palliative Medicine, 14, 493-500. doi:10.1089/jpm.2010.0432
4. Bakeman, R., & Gottman, J. M. (1997). Observing interaction: An introduction to sequential analysis (2nd ed.). New York, NY: Cambridge University Press.
5. Barrio-Cantalejo, I., Molina-Ruiz, A., Simón-Lorda, P., Cámara-Medina, C., López, I. T., del Águila, M. M. R., Bailón-Gómez, R. M. (2009). Advance directives and proxies' predictions about patients' treatment preferences. Nursing Ethics, 16, 93-109. doi:10.1177/0969733008097995
6. Batson, C. D., Fultz, J., & Schoenrade, P. A. (1987). Distress and empathy: Two qualitatively distinct vicarious emotions with different motivational consequences. Journal of Personality, 55, 19-39. doi:10.1111/j.1467-6494.1987.tb00426.x
7. Beach, W. A. (2003). Managing optimism. In P. Glenn, C. D. LeBaron, & J. Mandelbaum (Eds.), Studies in language and social interaction: In honor of Robert Hopper (pp. 175-194). Mahwah, NJ: Lawrence Erlbaum Associates.
8. Beland, D. K., & Froman, R. D. (1995). Preliminary validation of a measure of life support preferences. Image: The Journal of Nursing Scholarship, 27, 307-310. doi:10.1111/j.1547-5069.1995.tb00893.x
9. Berger, C. R. (2005). Interpersonal communication: Theoretical perspectives, future prospects. Journal of Communication, 55, 415-447. doi:10.1111/j.1460-2466.2005.tb02680.x
10. Black, B. S., Fogarty, L. A., Phillips, H., Finucane, T., Loreck, D. J., Baker, A., Rabins, P. V. (2009). Surrogate decision makers' understanding of dementia patients' prior wishes for end-of-life care. Journal of Aging and Health, 21, 627-650. doi:10.1177/0898264309333316
11. Bollen, K., & Lennox, R. (1991). Conventional wisdom on measurement: A structural equation perspective. Psychological Bulletin, 110, 305-314. doi:10.1037/0033-2909.110.2.305
12. Bonin-Scaon, S., Sastre, M. T. M., Chasseigne, G., Sorum, P. C., & Mullet, E. (2009). End-of-life preferences: A theory-driven inventory. The International Journal of Aging and Human Development, 68(1), 1-26. doi:10.2190/AG.68.1.a
13. Boquet, J. R., Oliver, D. P., Wittenberg-Lyles, E., Doorenbos, A. Z., & Demiris, G. (2011). Taking care of a dying grandparent: Case studies of grandchildren in the hospice caregiver role. American Journal of Hospice and Palliative Medicine, 28, 564-568. doi:10.1177/1049909111405644
14. Caughlin, J. P. (2010). A multiple goals theory perspective of personal relationships: Conceptual integration and program overview. Journal of Social and Personal Relationships, 27, 824-848. doi:10.1177/0265407510373262
15. Caughlin, J. P., & Malis, R. S. (2004). Demand/withdraw communication between parents and adolescents: Connections with self-esteem and substance use. Journal of Social and Personal Relationships, 21, 125-148. doi:10.1177/0265407504039843
16. Caughlin, J. P., Mikucki-Enyart, S. L., Middleton, A. V., Stone, A. M., & Brown, L. E. (2011). Being open without talking about it: A rhetorical/normative approach to understanding topic avoidance in families after a lung cancer diagnosis. Communication Monographs, 78, 409-436. doi:10.1080/03637751.2011.618141
17. Caughlin, J. P., Scott, A. M., Miller, L. E., & Hefner, V. (2009). Putative secrets: When information is supposedly a secret. Journal of Social and Personal Relationships, 26, 713-743. doi:10.1177/0265407509347928
18. Clark, R. A., & Delia, J. G. (1979). Topoi and rhetorical competence. Quarterly Journal of Speech, 65, 187-206. doi:10.1080/00335637909383470
19. Considine, J. M., & Miller, K. (2010). The dialectics of care: Communicative choices at the end of life. Health Communication, 25, 165-174. doi:10.1080/10410230903544951
20. DeFanti, T. R. (2010). Changing the cultural view and coverage of end-of-life care. American Journal of Hospice and Palliative Medicine, 27, 365-368. doi:10.1177/1049909110361732
21. Detering, K. M., Hancock, A. D., Reade, M. C., & Silvester, W. (2010). The impact of advance care planning on end of life care in elderly patients: Randomised controlled trial. British Medical Journal, 340, c1345. doi:10.1136/bmj.c1345
22. Ditto, P. H., Danks, J. H., Smucker, W. D., Bookwala, J., Coppola, K. M., Dresser, R., Zyzanski, S. (2001). Advance directives as acts of communication: A randomized controlled trial. Archives of Internal Medicine, 161, 421-430. doi:10.1001/archinte.161.3.421
23. Fleiss, J. L. (1981). Statistical methods for rates and proportions (2nd ed.). New York, NY: Wiley.
24. Frijda, N. H., Kuipers, P., & ter Schure, E. (1989). Relations among emotion, appraisal, and emotional action readiness. Journal of Personality and Social Psychology, 57, 212-228. doi:10.1037/0022-3514.57.2.212
25. Gauthier, D. M., & Froman, R. D. (2001). Preferences for care near the end of life: Scale development and validation. Research in Nursing and Health, 24, 298-306. doi:10.1002/nur.1031
26. Giles, H., Makoni, S., & Dailey, R. M. (2005). Intergenerational communication beliefs across the lifespan: Comparative data from Ghana and South Africa. Journal of Cross-Cultural Gerontology, 20, 191-211. doi:10.1007/s10823-006-9003-5
27. Goldsmith, D. J. (2004). Communicating social support. New York, NY: Cambridge University Press.
28. Goldsmith, D. J., & Domann, K. (2013). The meanings of "open communication" among couples coping with a cardiac event. Journal of Communication, 63, 266-286. doi:10.1111/jcom.12021
29. Harwood, J. (2000). Communicative predictors of solidarity in the grandparent-grandchild relationship. Journal of Social and Personal Relationships, 17, 743-766. doi:10.1177/0265407500176003
30. Hayes, A. F. (2006). A primer on multilevel modeling. Human Communication Research, 32, 385-410. doi:10.1111/j.1468-2958.2006.00281.x
31. Hecht, M. L. (1978). The conceptualization and measurement of interpersonal communication satisfaction. Human Communication Research, 4, 253-264. doi:10.1111/j.1468-2958.1978.tb00614.x
32. Hines, S. C., Glover, J. J., Babrow, A. S., Holley, J. L., Badzek, L. A., & Moss, A. H. (2001). Improving advance care planning by accommodating family preferences. Journal of Palliative Medicine, 4, 481-489. doi:10.1089/109662101753381629
33. Jackson, V. A., Mack, J., Matsuyama, R., Lakoma, M. D., Sullivan, A. M., Arnold, R. M., Block, S. D. (2008). A qualitative study of oncologists' approaches to end-of-life care. Journal of Palliative Medicine, 11, 893-906. doi:10.1089/jpm.2007.2480
34. Keeley, M. P. (2007). "Turning toward death together": The functions of messages during final conversations in close relationships. Journal of Social and Personal Relationships, 24, 225-253. doi:10.1177/0265407507075412
35. Keeley, M., & Baldwin, P. (2012). Final conversations, phase 2: Children and everyday communication. Journal of Loss and Trauma, 17, 376-387. doi:10.1002/pon.3107
36. Kenny, D. A., Kashy, D. A., & Cook, W. L. (2006). Analysis of dyadic data. New York, NY: Guilford.
37. Kirchhoff, K. T., Hammes, B. J., & Kehl, K. A., Briggs, L. A., & Brown, R. L. (2010). Effect of a disease-specific planning intervention on surrogate understanding of patient goals for future medical treatment. Journal of the American Geriatrics Society, 58, 1233-1240. doi:10.1111/j.1532-5415.2010.02760.x
38. Kramer, B. J., Kavanaugh, M., Trentham-Dietz, A., Walsh, M., & Yonker, J. A. (2010). Predictors of family conflict at the end of life: The experience of spouses and adult children of persons with lung cancer. The Gerontologist, 50, 215-225. doi:10.1093/geront/gnp121
39. Lamba, S., Murphy, P., McVicker, S., Smith, J. H., & Mosenthal, A. C. (2012). Changing end-of-life care practice for liver transplant service patients: Structured palliative care intervention in the surgical intensive care unit. Journal of Pain and Symptom Management, 44, 508-519. doi:10.1016/j/jpainsymman.2011.10.018
40. La Tourette, T. R., & Meeks, S. (2000). Perceptions of patronizing speech by older women in nursing homes and in the community: Impact of cognitive ability and place of residence. Journal of Language and Social Psychology, 19, 463-473. doi:10.1177/0261927X00019004004
41. Lautrette, A., Darmon, M., Megarbane, B., Joly, L. M., Chevret, S., Adrie, C., Azoulay, E. (2007). A communication strategy and brochure for relatives of patients dying in the ICU. New England Journal of Medicine, 356, 469-478. doi:10.1056/NEJMoa063446
42. Levin, T. T., Moreno, B., Silvester, W., & Kissane, D. W. (2010). End-of-life communication in the intensive care unit. General Hospital Psychiatry, 32, 433-442. doi:10.1016/j.genhosppsych.2010.04.007
43. Libbus, K. M., & Russell, C. (1995). Congruence of decisions between patients and their potential surrogates about life-sustaining therapies. Image: Journal of Nursing Scholarship, 2, 135-140. doi:10.1111/j.1547-5069.1995.tb00837.x
44. Martin, M. M., Weber, K., Anderson, C. M., & Burant, P. A. (2004). Destructive communication in stepfamilies. In J. P. Morgan (Ed.), Focus on aggression research (pp. 41-52). Hauppauge, NY: Nova Science.
45. McLaren, R. M., & Solomon, D. H. (2008). Appraisals and distancing responses to hurtful messages. Communication Research, 35, 339-357. doi:10.1177/0093650208315961
46. McLaughlin, M. L. (1984). Conversation: How talk is organized. Beverly Hills, CA: Sage.
47. McLean, L. M., & Jones, J. M. (2007). A review of distress and its management in couples facing end-of-life cancer. Psycho-Oncology, 16, 603-616. doi:10.1002/pon.1196
48. Meeker, M. A., & Jezewski, M. A. (2005). Family decision-making at the end of life. Palliative Supportive Care, 3, 131-142. doi:10.1017/S1478951505050212
49. Mills, R. S. L., Nazar, J., & Farrell, H. M. (2002). Child and parent perceptions of hurtful messages. Journal of Social and Personal Relationships, 19, 731-754. doi:10.1177/0265407502196001
50. Moorman, S. M. (2011a). Older adults' preferences for independent or delegated end-of-life medical decision making. Journal of Aging and Health, 23, 135-157. doi:10.1177/0898264310385114
51. Moorman, S. M. (2011b). The importance of feeling understood in marital conversations about end-of-life health care. Journal of Social and Personal Relationships, 28, 100-116. doi:10.1177/0265407510386137
52. Moorman, S. M., Hauser, R. M., & Carr, D. (2009). Do older adults know their spouses' end-of-life treatment preferences? Research on Aging, 31, 463-491. doi:10.1177/0164027509333683
53. Myers, S. A., & Bryant, L. E. (2008). The use of behavioral indicators of sibling commitment among emerging adults. Journal of Family Communication, 8, 101-125. doi:10.1080/15267430701857364
54. Norris, K., Merriman, M. P., Curtis, J. R., Asp, C., Tuholske, L., & Byock, I. R. (2007). Next of kin perspectives on the experience of end-of-life care in a community setting. Journal of Palliative Medicine, 10, 1101-1115. doi:10.1089/jpm.2006.2546
55. O'Keefe, B. J., & Shepherd, G. J. (1987). The pursuit of multiple objectives in face-to-face persuasive interactions: Effects of construct differentiation on message organization. Communication Monographs, 54, 396-419. doi:10.1080/03637758709390241
56. Parks, S. M., Winter, L., Santana, A. J., Parker, B., Diamond, J. J., Rose, M., & Myers, R. E. (2011). Family factors in end-of-life decision-making: Family conflict and proxy relationship. Journal of Palliative Medicine, 14, 179-184. doi:10.1089/jpm.2010.0353
57. Pew Research Center for the People and the Press. (2006, January 5). Strong public support for right to die: More Americans discussing-and planning-end-of-life treatment. Retrieved from http://people-press.org/reports/display.php3?ReportID=266
58. Raudenbush, S. W., & Bryk, A. S. (2002). Hierarchical linear models: Applications and data analysis methods (2nd ed.). Thousand Oaks, CA: Sage.
59. Scott, A. M., & Caughlin, J. P. (2012). Managing multiple goals in family discourse about end-of-life health decisions. Research on Aging, 34, 670-691. doi:10.1177/0164027512446942
60. Shalowitz, D. I., Garrett-Mayer, E., & Wendler, D. (2006). The accuracy of surrogate decision makers. Archives of Internal Medicine, 166, 493-497. doi:10.1001/archinte.166.5.493
61. Siminoff, L. A., Rose, J. H., Zhang, A., & Zyzanski, S. J. (2006). Measuring discord in treatment decision-making: Progress toward development of a cancer communication and decision-making assessment tool. Psycho-Oncology, 15, 528-540. doi:10.1002/pon.989
62. Spitze, G., & Gallant, M. P. (2004). "The bitter with the sweet": Older adults' strategies for handling ambivalence in relations with their adult children. Research on Aging, 26, 387-412. doi:10.1177/0164027504264677
63. SUPPORT Principal Investigators. (1995). A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). Journal of the American Medical Association, 274, 1591-1598. doi:10.1001/jama.1995.03530200027032
64. Thompson, T. (2011). Hope and the act of informed dialogue: A delicate balance at end of life. Journal of Language and Social Psychology, 30, 177-192. doi:10.1177/0261927X10397150
65. Tilden, V. P., Tolle, S. W., Nelson, C. A., & Fields, J. (2001). Family decision-making to withdraw life-sustaining treatments from hospitalized patients. Nursing Research, 50, 105-115. doi:10.1097/00006199-200103000-00006
66. Vangelisti, A. L., & Young, S. L. (2000). When words hurt: The effects of perceived intentionality on interpersonal relationships. Journal of Social and Personal Relationships, 17, 393-424. doi:10.1177/0265407500173005
67. Vangelisti, A. L., Young, S. L., Carpenter-Theune, K. E., & Alexander, A. L. (2005). Why does it hurt? The perceived causes of hurt feelings. Communication Research, 32, 443-477. doi:10.1177/0093650205277319
68. Weiner, J. S., & Roth, J. (2006). Avoiding iatrogenic harm to patient and family while discussing goals of care near the end of life. Journal of Palliative Medicine, 9, 451-463. doi:10.1089/jpm.2006.9.451
69. Wiegand, D. L. M., Deatrick, J. A., & Knafl, K. (2008). Family management styles related to withdrawal of life-sustaining therapy from adults who are acutely ill or injured. Journal of Family Nursing, 14, 16-32. doi:10.1177/1074840707313338
70. Williams, A., & Giles, H. (1996). Intergenerational conversations: Young adults' retrospective accounts. Human Communication Research, 23, 220-250. doi:10.1111/j.1468-2958.1996.tb00393.x
71. Williams, A., & Harwood, J. (2004). Intergenerational communication: Intergroup, accommodation, and family perspectives. In J. F. Nussbaum & J. Coupland (Eds.), Handbook of communication and aging research (2nd ed., pp. 115-137). Mahwah, NJ: Lawrence Erlbaum Associates.
72. Wilson, S. R., & Feng, H. (2007). Interaction goals and message production: Conceptual and methodological developments. In D. R. Roskos-Ewoldsen & J. L. Monahan (Eds.), Communication and social cognition: Theories and methods (pp. 71-95). Mahwah, NJ: Lawrence Erlbaum Associates.
73. Winter, L., & Parks, S. M. (2012). The reluctance to burden others as a value in end-of-life decision making: A source of inaccuracy in substituted judgment. Journal of Health Psychology, 17, 179-188. doi:10.1177/1359105311414956
74. Wittenberg-Lyles, E. (2005). Information sharing in interdisciplinary team meetings: An evaluation of hospice goals. Qualitative Health Research, 15, 1377-1391. doi:10.1177/1049732305282857
75. Wittenberg-Lyles, E., Goldsmith, J., & Ragan, S. (2011). The shift to early palliative care: A typology of illness journeys and the role of nursing. Clinical Journal of Oncology Nursing, 15, 304-310. doi:10.1188/11.CJON.304-310
76. Yang, S., & Rosenblatt, P. C. (2007). Couple rage and emotional distancing when a partner is dying. Journal of Loss and Trauma, 12, 305-320. doi:10.1080/15325020601138799
77. Zietlow, P. H., & Sillars, A. L. (1988). Life-stage differences in communication during marital conflicts. Journal of Social and Personal Relationships, 5, 223-245. doi:10.1177/026540758800500206