Do older adults know their spouses' end-of-life treatment preferences?

Research on Aging

Volumn 31, Issue 4, 2009, Pages 463-491

  Moorman, Sara M ^a   Hauser, Robert M ^a   Carr, Deborah ^b  

^a UNIVERSITY OF WISCONSIN MADISON   (United States)

^b RUTGERS UNIVERSITY   (United States)

Author keywords

Assumed similarity; Death and dying; Medical decision making; Projection bias; Structural equation modeling

Indexed keywords

EID: 68849084783     PISSN: 01640275     EISSN: 15527573     Source Type: Journal    
DOI: 10.1177/0164027509333683     Document Type: Article

References (71)

1. American Medical Directors Association. 2003. White Paper on Surrogate Decision-Making and Advance Care Planning in Long-Term Care. Columbia, MD: American Medical Directors Association.
2. Bailey, Phoebe E. and Julie D. Henry. 2008. Growing Less Empathic With Age: Disinhibition of the Self-Perspective. Journals of Gerontology 63B:P219-26.
3. Bar-Tal, Yoram, Sivia Barnoy, and Bracha Zisser. 2005. Whose Informational Needs Are Considered? A Comparison Between Cancer Patients and Their Spouses' Perceptions of Their Own and Their Partners' Knowledge and Informational Needs. Social Science and Medicine 60:1459-65.
4. Beier, Margaret E. and Phillip L. Ackerman. 2003. Determinants of Health Knowledge: An Investigation of Age, Gender, Abilities, Personality, and Interests. Journal of Personality and Social Psychology 84:439-48.
5. Bielby, William T., Robert M. Hauser, and David L. Featherman. 1977. Response Errors of Black and Nonblack Males in Models of the Intergenerational Transmission of Socioeconomic Status. American Journal of Sociology 82:1242-88.
6. Bookwala, Jamila, Kristen M. Coppola, Angela Fagerlin, Peter H. Ditto, Joseph H. Danks, and William D. Smucker. 2001. Gender Differences in Older Adults' Preferences for Life-Sustaining Medical Treatment and End-of-Life Values. Death Studies 25:127-49.
7. Brody, Howard. 1997. The Physician-Patient Relationship. Pp. 75-101 in Medical Ethics, 2nd ed., edited by Robert M. Veatch. Boston: Jones & Bartlett.
8. Burke, Peter J. 1980. The Self: Measurement Implications from a Symbolic Interactionist Perspective. Social Psychology Quarterly 43:18-29.
9. Carr, Deborah and Dmitry Khodyakov. 2007a. End-of-Life Health Care Planning Among Young-Old Adults: An Assessment of Psychosocial Influences. Journals of Gerontology 62B:S135-41.
10. Carr, Deborah and Dmitry Khodyakov. 2007b. Health Care Proxies in Later Life: Whom Do Older Adults Choose and Why? Journal of Health and Social Behavior 48:180-94.
11. Covinsky, Kenneth E., Jon D. Fuller, Kristine Yaffe, C. Bree Johnston, Mary B. Hamel, Joanne Lynn, Joan M. Teno, and Russell S. Phillips. 2000. Communication and Decision-Making in Seriously Ill Patients: Findings of the SUPPORT Project. Journal of the American Geriatrics Society 48:S187-93.
12. Cronbach, Lee J. 1955. Processes Affecting Scores on 'Understanding Others' and 'Assumed Similarity.' Psychological Bulletin 52:177-93.
13. Ditto, Peter H., Joseph H. Danks, William D. Smucker, Jamila Bookwala, Kristen M. Coppola, Rebecca Dresser, Angela Fagerlin, R. Mitchell Gready, Renate M. Houts, Lisa K. Lockhart, and Stephen Zyzanski. 2001. Advance Directives as Acts of Communication: A Randomized Controlled Trial. Archives of Internal Medicine 161:421-30.
14. Ditto, Peter H., Nikki A. Hawkins, and David A. Pizarro. 2005. Imagining the End-of-Life: On the Psychology of Advance Medical Decision Making. Motivation and Emotion 29:475-96.
15. Ditto, Peter H., Jill A. Jacobson, William D. Smucker, Joseph H. Danks, and Angela Fagerlin. 2006. Context Changes Choices: A Prospective Study of the Effects of Hospitalization on Life-Sustaining Treatment Preferences. Medical Decision Making 26:313-22.
16. Ditto, Peter H., William D. Smucker, Joseph H. Danks, Jill A. Jacobson, Renate M. Houts, Angela Fagerlin, Kristen M. Coppola, and R. Mitchell Gready. 2003. Stability of Older Adults' Preferences for Life-Sustaining Medical Treatment. Health Psychology 22:605-15.
17. Fagerlin, Angela, Peter H. Ditto, Joseph H. Danks, Renate M. Houts, and William D. Smucker. 2001. Projection in Surrogate Decisions About Life-Sustaining Medical Treatments. Health Psychology 20:166-75.
18. Fried, Terri R., Peter H. van Ness, Amy L. Byers, Virginia R. Towle, John R. O'Leary, and Joel A. Dubin. 2007. Changes in Preferences for Life-Sustaining Treatment Among Older Persons With Advanced Illness. Journal of General Internal Medicine 22:495-501.
19. Gilbert, Daniel T. and Jane E. J. Ebert. 2002. Decisions and Revisions: The Affective Forecasting of Changeable Outcomes. Journal of Personality and Social Psychology 82:503-14.
20. Gorina, Yelena, Donna Hoyert, Harold Lentzner, and Margie Goulding. 2006. Trends in Causes of Death Among Older Persons in the United States. Hyattsville, MD: National Center for Health Statistics.
21. Green, Carla A. and Clyde R. Pope. 1999. Gender, Psychosocial Factors and the Use of Medical Services: A Longitudinal Analysis. Social Science and Medicine 48:1363-72.
22. Hauser, Robert M. 2005. Survey Response in the Long Run: The Wisconsin Longitudinal Study. Field Methods 17:3-29.
23. Hawkins, Nikki A., Peter H. Ditto, Joseph H. Danks, and William D. Smucker. 2005. Micromanaging Death: Process Preferences, Values, and Goals in End-of-Life Medical Decision Making. The Gerontologist 45:107-17.
24. Heider, Fritz. 1958. The Psychology of Interpersonal Relations. New York: Wiley.
25. Hoch, Stephen J. 1987. Perceived Consensus and Predictive Accuracy: The Pros and Cons of Projection. Journal of Personality and Social Psychology 53:221-34.
26. Holmes, David S. 1968. Dimensions of Projection. Psychological Bulletin 69:248-68.
27. Hopp, Faith P. 2000. Preferences for Surrogate Decision-Makers, Informal Communication, and Advance Directives Among Community Dwelling Elders: Results From a National Study. The Gerontologist 40:449-57.
28. Johnston, Sarah C., Mark P. Pfeifer, and Robert McNutt. 1995. The Discussion About Advance Directives: Patient and Physician Opinions About When and How it Should be Conducted. Archives of Internal Medicine 155:1025-30.
29. Jöreskog, Karl G. and Dag Sörbom. 1996. LISREL 8 User's Reference Guide. Chicago: Scientific Software International.
30. Kehl, Karen A. 2006. Moving Toward Peace: An Analysis of the Concept of a Good Death. American Journal of Hospice and Palliative Medicine 23:277-86.
31. Kenny, David A. and Linda K. Acitelli. 2001. Accuracy and Bias in the Perception of the Partner in a Close Relationship. Journal of Personality and Social Psychology 80:439-48.
32. Kressel, Laura M. and Gretchen B. Chapman. 2007. The Default Effect in End-of-Life Medical Treatment Preferences. Medical Decision Making 27:299-310.
33. Krueger, Joachim and Russell W. Clement. 1994. The Truly False Consensus Effect: An Ineradicable and Egocentric Bias in Social Perception. Journal of Personality and Social Psychology 67:596-610.
34. Krueger, Joachim and Russell W. Clement. 1997. Estimates of Social Consensus by Majorities and Minorities: The Case of Social Projection. Personality and Social Psychology Review 1:299-313.
35. Kübler-Ross, Elisabeth. 1969. On Death and Dying. New York: Macmillan.
36. Layson, Rita T., Harold M. Adelman, Paul M. Wallach, Mark P. Pfeifer, Sarah C. Johnston, and Robert A. McNutt. 1994. Discussions About the Use of Life-Sustaining Treatments: A Literature Review of Physicians' and Patients' Attitudes and Practices. Journal of Clinical Ethics 5:195-203.
37. Leventhal, Howard, Elaine A. Leventhal, and Linda Cameron. 2001. Representations, Procedures, and Affect in Illness Self-Regulation: A Perceptual-Cognitive Model. Pp. 19-48 in Handbook of Health Psychology, edited by A. S. Baum, T. A. Revenson, and J. E. Singer. Mahwah, NJ: Lawrence Erlbaum.
38. Libbus, M. Kay, and Cynthia Russell. 1995. Congruence of Decisions Between Patients and Their Potential Surrogates About Life-Sustaining Therapies. Image: Journal of Nursing Scholarship 27:135-40.
39. Ligneau-Hervé, Catherine and Etienne Mullet. 2005. Perspective-Taking Judgments Among Young Adults, Middle Aged, and Elderly People. Journal of Experimental Psychology: Applied 11:53-60.
40. Löckenhoff, Corinna E. and Laura L. Carstensen. 2004. Socioemotional Selectivity Theory, Aging, and Health: The Increasingly Delicate Balance Between Regulating Emotions and Making Tough Choices. Journal of Personality 72:1395-1424.
41. Loehlin, John C. 2004. Latent Variable Models. 4th ed. Mahwah, NJ: Lawrence Erlbaum.
42. Loewenstein, George. 2005. Projection Bias in Medical Decision Making. Medical Decision Making 25:96-105.
43. Loewenstein, George, Ted O'Donoghue, and Matthew Rabin. 2003. Projection Bias in Predicting Future Utility. Quarterly Journal of Economics 118:1209-48.
44. Long, Edgar C. J. 1993. Perspective-Taking Differences Between High- and Low-Adjustment Marriages: Implications for Those in Intervention. American Journal of Family Therapy 21:248-59.
45. Moorman, Sara M. 2008. The Multiple Faces of Autonomy in Older Adults' Medical Decision-Making. Paper presented at the annual meeting of the Gerontological Society of America, National Harbor, MD.
46. Moorman, Sara M. and Deborah Carr. 2008. Spouses' Effectiveness as End-of-Life Health Care Surrogates: Accuracy, Uncertainty, and Errors of Overtreatment or Undertreatment. The Gerontologist 48 (6): 811-19.
47. Novack, Dennis H., Robin Plumer, Raymond L. Smith, Herbert Ochitill, Gary R. Morrow, and John M. Bennett. 1979. Changes in Physicians' Attitudes Toward Telling the Cancer Patient. Journal of the American Medical Association 241:897-900.
48. Oken, Donald. 1961. What to Tell Cancer Patients: A Study of Medical Attitudes. Journal of the American Medical Association 175:1120-28.
49. Patient Self-Determination Act of 1990, 42 U.S.C.A. § 1395.
50. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. 1983. Deciding to Forego Life-Sustaining Treatment: Ethical, Medical, and Legal Issues in Treatment Decisions. Washington, DC: U.S. Government Printing Office.
51. President's Council on Bioethics. 2005. Taking Care: Ethical Caregiving in Our Aging Society. Washington, DC: U.S. Government Printing Office.
52. Prigerson, Holly G., Selby C. Jacobs, Elizabeth H. Bradley, and Stanislav V. Kasl. 2003. In Search of a Good Death: A Good Death Is an Oxymoron Without Consideration of Mental Health. British Medical Journal 327:222.
53. Principe-Rodriguez, Karem, William Rodriguez-Cintron, Alfonso Torres-Palacios, and Jesus Casal-Hidalgo. 1999. Substituted Judgment: Should Life-Support Decisions Be Made by a Surrogate? Puerto Rico Health Sciences Journal 18:405-409.
54. Pruchno, Rachel A., Edward P. Lemay, Jr., Lucy Feild, and Normal G. Levinsky. 2005. Spouse as Health Care Proxy for Dialysis Patients: Whose Preferences Matter? The Gerontologist 45:812-19.
55. Pruchno, Rachel A., Edward P. Lemay, Jr., Lucy Feild, and Normal G. Levinsky. 2006. Predictors of Patient Treatment Preferences and Spouse Substituted Judgments: The Case of Dialysis Continuation. Medical Decision Making 26:112-21.
56. Raftery, Adrian E. 1995. Bayesian Model Selection in Social Research. Sociological Methodology 25:111-63.
57. Seckler, Allison B., Diane E. Meier, Michael Mulvihill, and Barbara E. Cammer Paris. 1991. Substituted Judgment: How Accurate Are Proxy Predictions? Annals of Internal Medicine 115:92-98.
58. Sewell, William H. and Robert M. Hauser. 1975. Education, Occupation, and Earnings: Achievement in the Early Career. New York: Academic Press.
59. Shalowitz, David I., Elizabeth Garrett-Mayer E., and David Wendler. 2006. The Accuracy of Surrogate Decision-Makers: A Systematic Review. Archives of Internal Medicine 166:493-97.
60. Snyder, Lois and Cathy Leffler. 2005. American College of Physicians Ethics Manual: Fifth Edition. Annals of Internal Medicine 142:560-82.
61. Song, Mi-Kyung, Karin T. Kirchhoff, Jeffrey Douglas, Sandra Ward, and Bernard J. Hammes. 2005. A Randomized, Controlled Trial to Improve Advance Care Planning Among Patients Undergoing Cardiac Surgery. Medical Care 43:1049-62.
62. Suhl, Jeremiah, Pamela Simons, Terry Reedy, and Thomas Garrick. 1994. Myth of Substituted Judgment: Surrogate Decision Making Regarding Life Support Is Unreliable. Archives of Internal Medicine 154:90-96.
63. Sulmasy, Daniel P., Peter B. Terry, Carol C. Weisman, Deborah J. Miller, Rebecca Y. Stallings, Margaret A. Vettese, and Karen B. Haller. 1998. The Accuracy of Substituted Judgments in Patients With Terminal Diagnoses. Annals of Internal Medicine 128:621-29.
64. Terry, Peter B., Margaret Vettese, John Song, Jane Forman, Karen B. Haller, Deborah J. Miller, Rebecca Stalling, and Daniel P. Sulmasy. 1999. End-of-Life Decision Making: When Patients and Surrogates Disagree. Journal of Clinical Ethics 10:286-93.
65. U.S. Census Bureau. 2003. Educational Attainment of the Population 15 Years and Over, by Marital Status, Age, Sex, Race, and Hispanic Origin: 2003. Washington, DC: U.S. Government Printing Office.
66. U.S. Census Bureau. 2004. Educational Attainment of the Population 15 Years and Over, by Single Years of Age, Sex, Race, and Hispanic Origin. Washington, DC: U.S. Government Printing Office.
67. VanBoven, Leaf and George Loewenstein. 2003. Social Projection of Transient Visceral Feelings. Personality and Social Psychology Bulletin 29:1159-68.
68. Vig, Elizabeth K., Janelle S. Taylor, Helene Starks, Elizabeth K. Hopley, and Kelly Fryer-Edwards. 2006. Beyond Substituted Judgment: How Surrogates Navigate End-of-Life Decision-Making. Journal of the American Geriatrics Society 54:1688-93.
69. Voogt, Elsbeth, Agnes van der Heide, Judith A. C. Rietjens, Anna F. van Leeuwen, Adriaan P. Visser, Carin C. D. van der Rijt, and Paul J. van der Maas. 2005. Attitudes of Patients With Incurable Cancer Toward Medical Treatment in the Last Phase of Life. Journal of Clinical Oncology 23:2012-19.
70. Wilson, Timothy D. and Daniel T. Gilbert. 2003. Affective Forecasting. Pp. 345-411 in Advances in Experimental Social Psychology, Vol. 35, edited by Mark Zanna. New York: Elsevier.
71. Zettel-Watson, Laura, Peter H. Ditto, Joseph H. Danks, and William D. Smucker. 2008. Actual and Perceived Gender Differences in the Accuracy of Surrogate Decisions About Life-Sustaining Medical Treatment Among Older Spouses. Death Studies 32:273-90.