History and trends of "personal health record" research in PubMed

Healthcare Informatics Research

Volumn 17, Issue 1, 2011, Pages 3-17

  Kim, Jeongeun ^a,b   Jung, Hongju ^a,c   Bates, David W ^b,d,e  

^a Seoul National University   (South Korea)

^b BRIGHAM AND WOMEN S HOSPITAL   (United States)

^c Seoul National University Hospital   (South Korea)

^d HARVARD MEDICAL SCHOOL   (United States)

^e PARTNERS HEALTHCARE   (United States)

Author keywords

Electronic health records; Electronic medical records; Medical subject headings; Personal health record; PubMed; Review

Indexed keywords

EID: 84872576269     PISSN: 20933681     EISSN: 2093369X     Source Type: Journal    
DOI: 10.4258/hir.2011.17.1.3     Document Type: Review

References (231)

1. Jones DA, Shipman JP, Plaut DA, Selden CR. Characteristics of personal health records: findings of the medical library association/national library of medicine joint electronic personal health record task force. J Med Libr Assoc 2010; 98: 243-249.
2. Certification Commission for Healthcare Information Technology. Recommendations of the PHR advisory task force: certification of PHRs. Chicago: Certification Commission for Healthcare Information Technology; c2008 [cited at 27 Aug 2009]. Available from: http://hitanalyst.files.wordpress.com/2008/07/cchitphratf.pdf.
3. OptumHealth creates lifetime PHR. Dis Manag Advis 2008; 14: 5-6, 1.
4. Readers' perspective. The government-initiated program to reach consensus on the definition and use of the terms EMR, EHR, PHR, RHIO and HIE is a waste of time and resources. Health Data Manag 2008; 16(2): 12.
5. New-age PHR comes with decision-support, multiple opportunities for DM. Dis Manag Advis 2006; 12: 140-142, 133.
6. VA's web-based personal health record can be a model for others. Internet Healthc Strateg 2005; 7(4): 8-10.
7. The SWACH Foundation of India. Safe Mother 1994; (14):9.
8. AHIMA e-HIM Personal Health Record Work Group. Practice brief: the role of the personal health record in the EHR. J AHIMA 2005; 76: 64A-64D.
9. Acheson ED. Personal record linkage. Methods Inf Med Suppl 1969; 4: 233-244.
10. Ackerman MJ. The EMR, PHR, and you. J Med Pract Manage 2008; 23: 348-349.
11. Ackerman MJ. The personal health record. J Med Pract Manage 2007; 23: 84-85.
12. Adida B, Kohane IS. GenePING: secure, scalable management of personal genomic data. BMC Genomics 2006; 7: 93.
13. Ahmadi M, Jeddi FR, Gohari MR, Sadoughi F. A review of the personal health records in selected countries and Iran. J Med Syst 2010 May 29 [Epub]. DOI: 10. 1007/s10916-010-9482-3.
14. Allaert FA, Quantin C. Patients' empowerment of their personal health record requires strong traceability to guarantee patients health care security. Stud Health Technol Inform 2010; 155: 43-47.
15. Anderson HJ. Testing the PHR options. Health Data Manag 2008; 16(9): 59-60.
16. Angst W. Privacy safeguards in PHR adoption. Health Manag Technol 2008; 29: 39-40.
17. Ayana M, Pound P, Lampe F, Ebrahim S. Improving stroke patients' care: a patient held record is not enough. BMC Health Serv Res 2001; 1: 1.
18. Ayana M, Pound P, Ebrahim S. The views of therapists on the use of a patient-held record in the care of stroke patients. Clin Rehabil 1998; 12: 328-337.
19. Ball MJ, Costin MY, Lehmann C. The personal health record: consumers banking on their health. Stud Health Technol Inform 2008; 134: 35-46.
20. Ball MJ, Smith C, Bakalar RS. Personal health records: empowering consumers. J Healthc Inf Manag 2007; 21: 76-86.
21. Ball MJ, Gold J. Banking on health: personal records and information exchange. J Healthc Inf Manag 2006; 20: 71-83.
22. Barber H. Self screening by the elderly using a new personal health record. Health Visit 1988; 61: 73-74.
23. Billault B, Degoulet P, Devries C, Plouin PF, Chatellier G, Menard J. Use of a standardized personal medical record by patients with hypertension: a randomized controlled prospective trial. MD Comput 1995; 12: 31-35.
24. Blair A, Davies E, Nebauer M, Pirozzo S, Saba S, Turner C. Why immunise. Care giver understanding of childhood immunisation. Collegian 1997; 4: 10-17.
25. Bodily NJ, Carlston DA, Rocha RA. Personal health records: key features within existing applications. AMIA Annu Symp Proc 2007: 875.
26. Bonacina S, Pinciroli F. An ontology-based tool for the correspondences between specialist and consumer medical lexicons for the geriatrics domain. Stud Health Technol Inform 2010; 156: 128-137.
27. Bonander J, Gates S. Public health in an era of personal health records: opportunities for innovation and new partnerships. J Med Internet Res 2010; 12: e33.
28. Botts NE, Horan TA. Electronic personal health records and systems to improve care for vulnerable populations. AMIA Annu Symp Proc 2007: 880.
29. Brennan PF, Casper G, Downs S, Aulahk V. Project HealthDesign: enhancing action through information. Stud Health Technol Inform 2009; 146: 214-218.
30. Brennan PF, Downs S, Casper G, Kenron D. Project Health Design: stimulating the next generation of personal health records. AMIA Annu Symp Proc 2007: 70-74.
31. Burrington-Brown J. Defining the personal health record. AHIMA releases definition, attributes of consumer health record. J AHIMA 2005; 76: 24-25.
32. Buettner K, Fadem SZ. The internet as a tool for the renal community. Adv Chronic Kidney Dis 2008; 15: 73-82.
33. Burrington-Brown J. The PHR effect. J AHIMA 2005; 76: 58-59.
34. Butcher L. Introducing the CHR, more like a PHR than an EMR. Manag Care 2007; 16: 58-59.
35. Cerda-Calafat I, Continente-Gonzalo M, Garcia-Lopez C, Guanyabens-Calvet J. Personal health folder. Med Clin (Barc) 2010; 134 Suppl 1: 63-66.
36. Charters K. Challenges of electronic medical record extracts for a personal health record. Stud Health Technol Inform 2009; 146: 197-201.
37. Charters KG, Nazi K. Personal health record evaluation: my HealtheVet and RE-AIM. AMIA Annu Symp Proc 2007: 899.
38. Chira P, Nugent L, Miller K, Park T, Donahue S, Soni A, Nugent D, Sandborg C. Living profiles: design of a health media platform for teens with special healthcare needs. J Biomed Inform 2010; 43(5 Suppl): S9-S12.
39. Chumbler NR, Haggstrom DA, Saleem J. Implementation of health information technology in veterans health administration to support transformational change: telehealth and personal health records. Med Care 2010 Apr 23 [Epub]. DOI: 10. 1097/MLR. 0b013e3181d558f9.
40. Chung J, Pankey E, Norris RJ. Agile informatics: application of agile project management to the development of a personal health application. AMIA Annu Symp Proc 2007: 914.
41. Conn J. Breach umbrella. Rule would require PHR vendors to notify customers. Mod Healthc 2009; 39(16): 10.
42. Conn J. PHR framework moves ahead. Markle Foundation collaboration offers guidelines. Mod Healthc 2008; 38(26): 14.
43. Conn J, DerGurahian J. Big names, numbers for HIMSS. Google also announces major PHR collaboration. Mod Healthc 2008; 38(9): 18.
44. Conn J. McKesson deal gives docs new PHR purveyor. Even with acquisition, RelayHealth exec vows vendor neutrality: others dubious. Mod Healthc 2006; 36(25): 54.
45. Cornbleet MA, Campbell P, Murray S, Stevenson M, Bond S; Joint Working Party of the Scottish Partnership Agency for Palliative and Cancer Care and National Council for Hospice and Specialist Palliative Care Services. Patient-held records in cancer and palliative care: a randomized, prospective trialt. Palliat Med 2002; 16: 205-212.
46. Council on clinical information technology. Policy statement: using personal health records to improve the quality of health care for children. Pediatrics 2009; 124: 403-409.
47. Cudney S, Weinert C, Kinion E. Forging partnerships between rural women with chronic conditions and their health care providers. J Holist Nurs 2011; 29: 53-60.
48. Cushman R, Froomkin AM, Cava A, Abril P, Goodman KW. Ethical, legal and social issues for personal health records and applications. J Biomed Inform 2010; 43(5 Suppl): S51-S55.
49. Dawson JR. Employer sponsored personal health record (PHR) systems. AMIA Annu Symp Proc 2007: 925.
50. Denton IC. Will patients use electronic personal health records? Responses from a real-life experience. J Healthc Inf Manag 2001; 15: 251-259.
51. Detmer D, Bloomrosen M, Raymond B, Tang P. Integrated personal health records: transformative tools for consumer-centric care. BMC Med Inform Decis Mak 2008; 8: 45.
52. Dixon BE, Miller T, Overhage JM. Assessing HIE stakeholder readiness for consumer access: lessons learned from the NHIN trial implementations. J Healthc Inf Manag 2009; 23: 20-25.
53. Dullabh P, Burke-Bebee S. Emerging approaches to PHR design, development and use. AMIA Annu Symp Proc 2008: 937.
54. Ertmer A, Uckert F. User acceptance of and satisfaction with a personal electronic health record. Stud Health Technol Inform 2005; 116: 861-866.
55. Eveillard P. The electronic personal health record: the spirit of the law of March 4, 2002. Rev Prat 2004; 54: 1861-1864.
56. Feather J, Misselbrook CA, Zipchen P, Matthews VL. Evaluation of a personal health record given to newborns in Saskatoon. Can J Public Health 1987; 78: 350-351.
57. Ferson MJ. Immunisation state and its documentation in hospital patients. Arch Dis Child 1990; 65: 763-767.
58. Fonda SJ, Kedziora RJ, Vigersky RA, Bursell SE. Evolution of a web-based, prototype personal health application for diabetes self-management. J Biomed Inform 2010; 43(5 Suppl): S17-S21.
59. Fonda SJ, Kedziora RJ, Vigersky RA, Bursell SE. Combining iGoogle and personal health records to create a prototype personal health application for diabetes selfmanagement. Telemed J E Health 2010; 16: 480-489.
60. Fuji KT, Galt KA, Serocca AB. Personal health record use by patients as perceived by ambulatory care physicians in Nebraska and South Dakota: a cross-sectional study. Perspect Health Inf Manag 2008; 5: 15.
61. Galloway G. Getting personal. The personal health record is a key element in attaining the complete patient medical record. Healthc Inform 2006; 23: 45-46.
62. Gawthorn EC. Personal health records (PHR). Aust Fam Physician 1983; 12: 466-468.
63. Gerard MN, Cohen M, Greer-Smith R. Personal touch: personal health records for consumers of healthcare. J Healthc Inf Manag 2009; 23: 26-30.
64. Glaser J. Tipping point. The arrival of connected health. J Healthc Inf Manag 2008; 22: 21-23.
65. Goth G. A game changer? As Google and microsoft put their PHR plays into action, CIOs formulate their next moves. Healthc Inform 2008; 25: 52-54.
66. Grant RW, Wald JS, Schnipper JL, Gandhi TK, Poon EG, Orav EJ, Williams DH, Volk LA, Middleton B. Practicelinked online personal health records for type 2 diabetes mellitus: a randomized controlled trial. Arch Intern Med 2008; 168: 1776-1782.
67. Greene J. The personal health record: a key to improving health care for seniors. AHIP Cover 2007; 48: 46-55.
68. Greenhalgh T, Hinder S, Stramer K, Bratan T, Russell J. Adoption, non-adoption, and abandonment of a personal electronic health record: case study of Health-Space. BMJ 2010; 341: c5814.
69. Grossman JM, Zayas-Caban T, Kemper N. Information gap: can health insurer personal health records meet patients' and physicians' needs? Health Aff (Millwood) 2009; 28: 377-389.
70. Gysels M, Richardson A, Higginson IJ. Does the patientheld record improve continuity and related outcomes in cancer care: a systematic review. Health Expect 2007; 10: 75-91.
71. Halamka JD, Mandl KD, Tang PC. Early experiences with personal health records. J Am Med Inform Assoc 2008; 15: 1-7.
72. Hammond WE. The making and adoption of health data standards. Health Aff (Millwood) 2005; 24: 1205-1213.
73. Heinze O, Brandner A, Bergh B. Establishing a personal electronic health record in the Rhine-Neckar region. Stud Health Technol Inform 2009; 150: 119.
74. Henson JW, Jung LK. Neurology on the internet. Neurol Clin 2010; 28: 385-393.
75. Hess R, Bryce CL, Paone S, Fischer G, McTigue KM, Olshansky E, Zickmund S, Fitzgerald K, Siminerio L. Exploring challenges and potentials of personal health records in diabetes self-management: implementation and initial assessment. Telemed J E Health 2007; 13: 509-517.
76. Heubusch K. IT standards for PHRs. Are PHRs ready for standards? Are standards ready for PHRs? J AHIMA 2008; 79: 31-36.
77. Heubusch K. Piecing together the PHR. J AHIMA 2007; 78: 28-32.
78. Hicks J. Advocating for the PHR: educator's work sets stage for the future. J AHIMA 2005; 76: 88.
79. Hicks JE. A personal view of the personal health record. HIM professional sees the personal and professional benefits of PHRs. J AHIMA 2009; 80: 80.
80. Hoerbst A, Kohl CD, Knaup P, Ammenwerth E. Attitudes and behaviors related to the introduction of electronic health records among Austrian and German citizens. Int J Med Inform 2010; 79: 81-89.
81. Horan TA, Botts NE, Burkhard RJ. A multidimensional view of personal health systems for underserved populations. J Med Internet Res 2010; 12: e32.
82. Hufnagel SP. Interoperability. Mil Med 2009; 174(5 Suppl): 43-50.
83. Iakovidis I. Towards personal health record: current situation, obstacles and trends in implementation of electronic healthcare record in Europe. Int J Med Inform 1998; 52: 105-115.
84. Iakovidis I. From electronic medical record to personal health record. Stud Health Technol Inform 1997; 43 Pt B: 915-922.
85. Jacobs EB. The HIM role in the PHR. Patient-centered care through patient-centered information. J AHIMA 2007; 78: 38.
86. Jeffs D, Nossar V, Bailey F, Smith W, Chey T. Retention and use of personal health records: a population-based study. J Paediatr Child Health 1994; 30: 248-252.
87. Jeffs D, Harris M. The personal health record. Making it work better for general practitioners. Aust Fam Physician 1993; 22: 1417-1427.
88. Johnson F. Personal health record. Med J Aust 1988; 148: 544.
89. Johnston D, Kaelber D, Pan EC, Bu D, Shah S, Hook JM, Middleton B. A framework and approach for assessing the value of personal health records (PHRs). AMIA Annu Symp Proc 2007: 374-378.
90. Jones DA, Shipman JP, Plaut DA, Selden CR. Characteristics of personal health records: findings of the Medical Library Association/National Library of Medicine Joint Electronic Personal Health Record Task Force. J Med Libr Assoc 2010; 98: 243-249.
91. Jones R, McConville J, Mason D, Macpherson L, Naven L, McEwen J. Attitudes towards, and utility of, an integrated medical-dental patient-held record in primary care. Br J Gen Pract 1999; 49: 368-373.
92. Kaelber D, Pan EC. The value of personal health record (PHR) systems. AMIA Annu Symp Proc 2008: 343-347.
93. Kaelber DC, Jha AK, Johnston D, Middleton B, Bates DW. A research agenda for personal health records (PHRs). J Am Med Inform Assoc 2008; 15: 729-736.
94. Kahn JS, Hilton JF, Van Nunnery T, Leasure S, Bryant KM, Hare CB, Thom DH. Personal health records in a public hospital: experience at the HIV/AIDS clinic at San Francisco general hospital. J Am Med Inform Assoc 2010; 17: 224-228.
95. Kahn JS, Aulakh V, Bosworth A. What it takes: characteristics of the ideal personal health record. Health Aff (Millwood) 2009; 28: 369-376.
96. Kalik IV, Markevich SS. Card file for personal record keeping. Vrach Delo 1983; 11: 121-122.
97. Karp R. Dilemma faced by every admissions committee when considering the application of a reasonably acceptable minority candidate who has no personal record of deprivation. Clin Pediatr (Phila) 2000; 39: 315-316.
98. Kim E, Mayani A, Modi S, Kim Y, Soh C. Evaluation of patient-centered electronic health record to overcome digital divide. Conf Proc IEEE Eng Med Biol Soc 2005; 2: 1091-1094.
99. Kim EH, Stolyar A, Lober WB, Herbaugh AL, Shinstrom SE, Zierler BK, Soh CB, Kim Y. Challenges to using an electronic personal health record by a lowincome elderly population. J Med Internet Res 2009; 11: e44.
100. Kim EH, Stolyar A, Lober WB, Herbaugh AL, Shinstrom SE, Zierler BK, Soh CB, Kim Y. Usage patterns of a personal health record by elderly and disabled users. AMIA Annu Symp Proc 2007: 409-413.
101. Kim EH, Wang M, Lau C, Kim Y. Application and evaluation of personal health information management system. Conf Proc IEEE Eng Med Biol Soc 2004; 5: 3159-3162.
102. Kim MI, Johnson KB. Personal health records: evaluation of functionality and utility. J Am Med Inform Assoc 2002; 9: 171-180.
103. Kimmel Z, Greenes RA, Liederman E. Personal health records. J Med Pract Manage 2005; 21: 147-152.
104. Ko H, Turner T, Jones C, Hill C. Patient-held medical records for patients with chronic disease: a systematic review. Qual Saf Health Care 2010; 19: e41.
105. Krohn R. The consumer-centric personal health recordit's time. J Healthc Inf Manag 2007; 21: 20-23.
106. Kupchunas WR. Personal health record: new opportunity for patient education. Orthop Nurs 2007; 26: 185-191.
107. Kunzi J, Koster P, Petkovic M. Emergency access to protected health records. Stud Health Technol Inform 2009; 150: 705-709.
108. Lafky DB, Horan TA. Health status and prospective PHR Use. AMIA Annu Symp Proc 2008: 1016.
109. Lahteenmaki J, Leppanen J, Kaijanranta H. Interoperability of personal health records. Conf Proc IEEE Eng Med Biol Soc 2009; 2009: 1726-1729.
110. Lecouturier J, Crack L, Mannix K, Hall RH, Bond S. Evaluation of a patient-held record for patients with cancer. Eur J Cancer Care (Engl) 2002; 11: 114-121.
111. Lee M, Delaney C, Moorhead S. Building a personal health record from a nursing perspective. Int J Med Inform 2007; 76 Suppl 2: S308-S316.
112. Lee M, Delaney C, Moorhead S. Building a personal health record from nursing perspective. Stud Health Technol Inform 2006; 122: 25-29.
113. Leonard KJ, Casselman M, Wiljer D. Who will demand access to their personal health record? A focus on the users of health services and what they want. Healthc Q 2008; 11: 92-96.
114. Liaw ST, Radford AJ, Maddocks I. The impact of a computer generated patient held health record. Aust Fam Physician 1998; 27 Suppl 1: S39-S43.
115. Liaw ST. Patient and general practitioner perceptions of patient-held health records. Fam Pract 1993; 10: 406-415.
116. Liaw T, Lawrence M, Rendell J. The effect of a computergenerated patient-held medical record summary and/or a written personal health record on patients' attitudes, knowledge and behaviour concerning health promotion. Fam Pract 1996; 13: 289-293.
117. Lober WB, Zierler B, Herbaugh A, Shinstrom SE, Stolyar A, Kim EH, Kim Y. Barriers to the use of a personal health record by an elderly population. AMIA Annu Symp Proc 2006: 514-518.
118. Lu SC. CCR exchange: building a patient-driven webbased healthcare community around an emerging personal health record standard. Stud Health Technol Inform 2007; 127: 58-64.
119. Luo G, Thomas SB, Tang C. Automatic home medical product recommendation. J Med Syst 2010 Apr 21 [Epub]. DOI: 10. 1007/s10916-010-9483-2.
120. Luo G. Navigation interface for recommending home medical products. J Med Syst 2010 Jun 9 [Epub]. DOI: 10. 1007/s10916-010-9537-5.
121. Maloney FL, Wright A. USB-based personal health records: an analysis of features and functionality. Int J Med Inform 2010; 79: 97-111.
122. Mandl KD, Simons WW, Crawford WC, Abbett JM. Indivo: a personally controlled health record for health information exchange and communication. BMC Med Inform Decis Mak 2007; 7: 25.
123. Martinez D, Ferriol P, Tous X, Cabrer M, Prats M. Virtual health platform for medical tourism purposes. Stud Health Technol Inform 2008; 137: 269-274.
124. Massoudi BL, Olmsted MG, Zhang Y, Carpenter RA, Barlow CE, Huber R. A web-based intervention to support increased physical activity among at-risk adults. J Biomed Inform 2010; 43(5 Suppl): S41-S45.
125. McCartney PR. The electronic personal health record. MCN Am J Matern Child Nurs 2008; 33: 390.
126. McInnes DK, Gifford AL, Kazis LE, Wagner TH. Disparities in health-related internet use by US veterans: results from a national survey. Inform Prim Care 2010; 18: 59-68.
127. McKinney M. CMS and the defense department pilot projects could jump-start PHR use. Consumers say they want a digital record of their health, but so far few have one. Hosp Health Netw 2009; 83: 9.
128. Middleton B. The clinical decision support consortium. Stud Health Technol Inform 2009; 150: 26-30.
129. Miller H, Vandenbosch B, Ivanov D, Black P. Determinants of personal health record use: a large population study at cleveland clinic. J Healthc Inf Manag 2007; 21: 44-48.
130. Mon DT. PHR and EHR: what's the difference? Records differ in span and legality. J AHIMA 2005; 76: 60-61.
131. Morgan L Jr. Planning for a PHR world. Med Econ 2008; 85: 18-22.
132. Mytilinaiou E, Koufi V, Malamateniou F, Vassilacopoulos G. A context-aware approach to process-based PHR system security. Stud Health Technol Inform 2010; 156: 201-213.
133. Muller ML, Uckert F, Burkle T, Prokosch HU. Crossinstitutional data exchange using the clinical document architecture (CDA). Int J Med Inform 2005; 74: 245-256.
134. Nazi KM. Veterans' voices: use of the American Customer Satisfaction Index (ACSI) survey to identify my HealtheVet personal health record users' characteristics, needs, and preferences. J Am Med Inform Assoc 2010; 17: 203-211.
135. Nazi KM, Hogan TP, Wagner TH, McInnes DK, Smith BM, Haggstrom D, Chumbler NR, Gifford AL, Charters KG, Saleem JJ, Weingardt KR, Fischetti LF, Weaver FM. Embracing a health services research perspective on personal health records: lessons learned from the VA My HealtheVet system. J Gen Intern Med 2010; 25 Suppl 1: 62-67.
136. Nazi KM, Woods SS. My Heal the Vet PHR: a description of users and patient portal use. AMIA Annu Symp Proc 2008: 1182.
137. Nelson R. The personal health record. Am J Nurs 2007; 107: 27-28.
138. Newell SA, Sanson-Fisher RW, Girgis A, Davey HM. Can personal health record booklets improve cancer screening behaviors? Am J Prev Med 2002; 22: 15-22.
139. O'Flaherty S, Jandera E, Llewellyn J, Wall M. Personal health records: an evaluation. Arch Dis Child 1987; 62: 1152-1155.
140. Oftedahl G, Marshall M. The future of personal health records: a summary of a roundtable discussion. Minn Med 2010; 93: 50-52.
141. Okawa T. A personal health record for young female students. Josanpu Zasshi 1973; 27: 36-40.
142. Patel VN, Dhopeshwarkar RV, Edwards A, Barron Y, Sparenborg J, Kaushal R. Consumer support for health information exchange and personal health records: a regional health information organization survey. J Med Syst 2010 Jul 29 [Epub]. DOI: 10. 1007/s10916-010-9566-0.
143. Pedley CE. A personal record of dentistry. J Dent Assoc S Afr 1984; 39: 11-20.
144. Poon EG, Wald J, Schnipper JL, Grant R, Gandhi TK, Volk LA, Bloom A, Williams DH, Gardner K, Epstein M, Nelson L, Businger A, Li Q, Bates DW, Middleton B. Empowering patients to improve the quality of their care: design and implementation of a shared health maintenance module in a US integrated healthcare delivery network. Stud Health Technol Inform 2007; 129(Pt 2): 1002-1006.
145. Popkin J, Kushniruk A, Borycki E, Guarin D, Mozley L, Kilarski N, Robson L, Creed W. The eFOSTr PROJECT: design, implementation and evaluation of a web-based personal Health Record to support health professionals and families of children undergoing transplants. Stud Health Technol Inform 2009; 143: 358-363.
146. Popovich ML, Aramini JJ, Garcia M. Immunizations: the first step in a personal health record to empower patients. Stud Health Technol Inform 2008; 137: 286-295.
147. Pringle S, Lippitt A. Interoperability of electronic health records and personal health records: key interoperability issues associated with information exchange. J Healthc Inf Manag 2009; 23: 31-37.
148. Pringle SL. Trusting PHRs. The standards that protect the security and confidentiality of PHR-stored PHI. J AHIMA 2010; 81: 40-41.
149. Reinke T. Rise of the PHR. Manag Care 2007; 16: 40-42.
150. Reti SR, Feldman HJ, Ross SE, Safran C. Improving personal health records for patient-centered care. J Am Med Inform Assoc 2010; 17: 192-195.
151. Reti SR, Feldman HJ, Safran C. Governance for personal health records. J Am Med Inform Assoc 2009; 16: 14-17.
152. Rhodes HB. The PHR quandary. Despite the benefits, issues of technology and trust slow adoption. J AHIMA 2007; 78: 66-69.
153. Roblin DW, Houston TK 2nd, Allison JJ, Joski PJ, Becker ER. Disparities in use of a personal health record in a managed care organization. J Am Med Inform Assoc 2009; 16: 683-689.
154. Rocha RA, Romeo AN, Norlin C. Core features of a parent-controlled pediatric medical home record. Stud Health Technol Inform 2007; 129(Pt 2): 997-1001.
155. Rode D. PHR debates: the personal record gets political, but there is danger in rushing legislation. J AHIMA 2008; 79: 18-20.
156. Rubel P, Fayn J, Nollo G, Assanelli D, Li B, Restier L, Adami S, Arod S, Atoui H, Ohlsson M, Simon-Chautemps L, Telisson D, Malossi C, Ziliani GL, Galassi A, Edenbrandt L, Chevalier P. Toward personal eHealth in cardiology. Results from the EPI-MEDICS telemedicine project. J Electrocardiol 2005; 38(4 Suppl): 100-106.
157. Rybynok VO, Kyriacou PA, Binnersley J, Woodcock A. MyCare card development: portable GUI framework for the personal electronic health record device. IEEE Trans Inf Technol Biomed 2011; 15: 66-73.
158. Samoocha D, Bruinvels DJ, Anema JR, Steenbeek R, van der Beek AJ. Empowerment of disability benefit claimants through an interactive website: design of a randomized controlled trial. BMC Med Inform Decis Mak 2009; 9: 23.
159. Scharfetter C. I cannot live like you. Personal record of vulnerability and schizophrenic psychosis. Praxis (Bern 1994) 2001; 90: 1259-1265.
160. Scherger JE. Future vision: is family medicine ready for patient-directed care? Fam Med 2009; 41: 285-288.
161. Schoevers MA, van den Muijsenbergh ME, Lagro-Janssen AL. Patient-held records for undocumented immigrants: a blind spot. A systematic review of patientheld records. Ethn Health 2009; 14: 497-508.
162. Schuerenberg BK. Ramping up the PHR assembly line. Health Data Manag 2008; 16: 52-54.
163. Sensmeier J, Casey Halley E. Connecting humans and health through health information exchange. Stud Health Technol Inform 2009; 146: 756-757.
164. Sensmeier JE. The journey toward a personal health record. Nurs Manage 2010; 41: 47-50.
165. Shah S, Kaelber DC, Vincent A, Pan EC, Johnston D, Middleton B. A cost model for personal health records (PHRs). AMIA Annu Symp Proc 2008: 657-661.
166. Simborg DW. The limits of free speech: the PHR problem. J Am Med Inform Assoc 2009; 16: 282-283.
167. Slagle JM, Gordon JS, Harris CE, Davison CL, Culpepper DK, Scott P, Johnson KB. MyMediHealth - designing a next generation system for child-centered medication management. J Biomed Inform 2010; 43(5 Suppl): S27-S31.
168. Slezak L. Marketing forum: pocket-size personal health record. J Am Med Rec Assoc 1982; 53: 44-46.
169. Smith SP, Barefield AC. Patients meet technology: the newest in patient-centered care initiatives. Health Care Manag (Frederick) 2007; 26: 354-362.
170. Smolij K, Dun K. Patient health information management: searching for the right model. Perspect Health Inf Manag 2006; 3: 10.
171. Spencer NJ, Coe C. Validation of the warwick child health and morbidity profile in routine child health surveillance. Child Care Health Dev 2000; 26: 323-336.
172. Sprague L. Personal health records: the people's choice? NHPF Issue Brief 2006: 1-13.
173. Srinivasan A. Keeping online personal records private: security and privacy considerations for Web-based PHR systems. J AHIMA 2006; 77: 62-63, 68.
174. Steward DA, Hofler RA, Thaldorf C, Milov DE. A method for understanding some consequences of bringing patient-generated data into health care delivery. Med Decis Making 2010; 30: E1-E13.
175. Stolyar A, Lober WB, Drozd DR, Sibley J. Feasibility of data exchange with a Patient-centered Health Record. AMIA Annu Symp Proc 2005: 1123.
176. Sujansky WV, Faus SA, Stone E, Brennan PF. A method to implement fine-grained access control for personal health records through standard relational database queries. J Biomed Inform 2010; 43(5 Suppl): S46-S50.
177. Sumner W 2nd, Schootman M, Asaro P, Yan Y, Hagen MD. Using county-level public health data to prioritize medical education topics. J Contin Educ Health Prof 2008; 28: 197-204.
178. Tang PC, Black W, Young CY. Proposed criteria for reimbursing eVisits: content analysis of secure patient messages in a personal health record system. AMIA Annu Symp Proc 2006: 764-768.
179. Tang PC, Ash JS, Bates DW, Overhage JM, Sands DZ. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc 2006; 13: 121-126.
180. Tang PC, Lansky D. The missing link: bridging the patient-provider health information gap. Health Aff (Millwood) 2005; 24: 1290-1295.
181. Taylor. Saskatchewan adventure: a personal record. IV. Signed, sealed and delivered. Can Med Assoc J 1974; 110: 1102-1103.
182. Taylor L. Saskatchewan adventure: a personal record. 3. Drafting the saskatoon agreement. Can Med Assoc J 1974; 110: 978-983.
183. Taylor L. Saskatchewan adventure: a personal record. Part II, making contact. Can Med Assoc J 1974; 110: 829-836.
184. Taylor L. Saskatchewan adventure: a personal record. I. Background to the story. Can Med Assoc J 1974; 110: 720-727.
185. Tobacman JK, Nolan P. Utilization of a personal health record in a general medicine clinic. J Gen Intern Med 1996; 11: 370-372.
186. Tran DT, Zhang X, Stolyar A, Lober WB. Patient-centered design for a personal health record system. AMIA Annu Symp Proc 2005: 1140.
187. Tuil WS, Verhaak CM, De Vries Robbe PF, Kremer JA. IVF patients show three types of online behaviour. Hum Reprod 2008; 23: 2501-2505.
188. Tuil WS, van Selm M, Verhaak CM, de Vries Robbe PF, Kremer JA. Dynamics of internet usage during the stages of in vitro fertilization. Fertil Steril 2009; 91: 953-956.
189. Tuil WS, Verhaak CM, Braat DD, de Vries Robbe PF, Kremer JA. Empowering patients undergoing in vitro fertilization by providing internet access to medical data. Fertil Steril 2007; 88: 361-368.
190. Tulu B, Horan TA. The electronic disability record: purpose, parameters, and model use case. J Am Med Inform Assoc 2009; 16: 7-13.
191. Uchibori C. Personal record of the government-operated public health nursing activities at gunma prefecture. 8. The era of post-war confusion. Hokenfu Zasshi 1983; 39: 38-39.
192. Uckert F, Ataian M, Gorz M, Prokosch HU. Functions of an electronic health record. Int J Comput Dent 2002; 5: 125-132.
193. Ueckert F, Goerz M, Ataian M, Tessmann S, Prokosch HU. Empowerment of patients and communication with health care professionals through an electronic health record. Int J Med Inform 2003; 70: 99-108.
194. Ueckert FK, Prokosch HU. Implementing security and access control mechanisms for an electronic healthcare record. Proc AMIA Symp 2002: 825-829.
195. Van Deursen T, Koster P, Petkovic M. Reliable personal health records. Stud Health Technol Inform 2008; 136: 484-489.
196. Vaz I. Personal health record for school children with multiple needs. Child Care Health Dev 1995; 21: 191-197.
197. Vesely R. The search is on. Data privacy remains a top concern as google seeks more users partners for its new personal health-record platform. Mod Healthc 2008; 38(39): 24-26.
198. Vincelet C, Tabone MD, Berthier M, Bonnefoi MC, Chevallier B, Lemaire JP, Dommergues JP; Groupe de Pediatrie Generale de la Societe Francaise de Pediatrie. How are personal child health records completed? A multicentric evaluation study. Arch Pediatr 2003; 10: 403-409.
199. Vincent A, Kaelber DC, Pan E, Shah S, Johnston D, Middleton B. A patient-centric taxonomy for personal health records (PHRs). AMIA Annu Symp Proc 2008: 763-767.
200. Vishwanath A. Using frames to influence consumer willingness to pay for the patient health record: a randomized experiment. Health Commun 2009; 24: 473-482.
201. Volkmer RE, Gouldstone MA, Ninnes CP. Parental perception of the use and usefulness of a parent-held child health record. J Paediatr Child Health 1993; 29: 150-153.
202. Wagner PJ, Howard SM, Bentley DR, Seol YH, Sodomka P. Incorporating patient perspectives into the personal health record: implications for care and caring. Perspect Health Inf Manag 2010; 7: 1e.
203. Wald JS, Grant RW, Schnipper JL, Gandhi TK, Poon EG, Businger AC, Orav EJ, Williams DH, Volk LA, Middleton B. Survey analysis of patient experience using a practice-linked PHR for type 2 diabetes mellitus. AMIA Annu Symp Proc 2009; 2009: 678-682.
204. Wang M, Lau C, Matsen FA 3rd, Kim Y. Personal health information management system and its application in referral management. IEEE Trans Inf Technol Biomed 2004; 8: 287-297.
205. Wangberg SC, Bergmo TS, Johnsen JA. Adherence in internet-based interventions. Patient Prefer Adherence 2008; 2: 57-65.
206. Weinert C, Cudney S, Kinion E. Development of my health companion to enhance self-care management of chronic health conditions in rural dwellers. Public Health Nurs 2010; 27: 263-269.
207. Weitzman ER, Kaci L, Mandl KD. Sharing medical data for health research: the early personal health record experience. J Med Internet Res 2010; 12: e14.
208. White P, Singleton A, Jones R. Copying referral letters to patients: the views of patients, patient representatives and doctors. Patient Educ Couns 2004; 55: 94-98.
209. Wiler JL, Gentle C, Halfpenny JM, Heins A, Mehrotra A, Mikhail MG, Fite D. Optimizing emergency department front-end operations. Ann Emerg Med 2010; 55: 142-160. e1.
210. Wiljer D, Leonard KJ, Urowitz S, Apatu E, Massey C, Quartey NK, Catton P. The anxious wait: assessing the impact of patient accessible EHRs for breast cancer patients. BMC Med Inform Decis Mak 2010; 10: 46.
211. Wiljer D, Urowitz S, Apatu E, Leonard K, Quartey NK, Catton P. Understanding the support needs of patients accessing test results online. PHRs offer great promise, but support issues must be addressed to ensure appropriate access. J Healthc Inf Manag 2010; 24: 57-63.
212. Williams BT, Imrey H, Williams RG. The lifespan personal health record. Med Decis Making 1991; 11(4 Suppl): S74-S76.
213. Win KT, Susilo W, Mu Y. Personal health record systems and their security protection. J Med Syst 2006; 30: 309-315.
214. Witry MJ, Doucette WR, Daly JM, Levy BT, Chrischilles EA. Family physician perceptions of personal health records. Perspect Health Inf Manag 2010; 7: 1d.
215. Wolter J. Health record banking. An emerging PHR model. J AHIMA 2007; 78: 82-83.
216. Wolter J, Friedman B. Health records for the people. Touting the benefits of the consumer-based personal health record. J AHIMA 2005; 76: 28-32.
217. Wright A, Poon EG, Wald J, Schnipper JL, Grant R, Gandhi TK, Volk LA, Bloom A, Williams DH, Gardner K, Epstein M, Nelson L, Businger A, Li Q, Bates DW, Middleton B. Effectiveness of health maintenance reminders provided directly to patients. AMIA Annu Symp Proc 2008: 1183.
218. Wright A, Sittig DF. Encryption characteristics of two USB-based personal health record devices. J Am Med Inform Assoc 2007; 14: 397-399.
219. Wu YH, Li YZ, Li YC. Between personal health record website and portable medical health record: an online data transformation interface. Stud Health Technol Inform 2009; 146: 728.
220. Wuerdeman L, Volk L, Pizziferri L, Tsurikova R, Harris C, Feygin R, Epstein M, Meyers K, Wald JS, Lansky D, Bates DW. How accurate is information that patients contribute to their electronic health record? AMIA Annu Symp Proc 2005: 834-838.
221. Wunsch G. Maternal and child health in the third world. Problems of data collection. Popul Famille 1982; 53: 19-33.
222. Wynia M, Dunn K. Dreams and nightmares: practical and ethical issues for patients and physicians using personal health records. J Law Med Ethics 2010; 38: 64-73.
223. Yaqub E, Barroso A. Distributed guidelines (DiG): a software framework for extending automated health decision support to the general population. Perspect Health Inf Manag 2010; 7: 1b.
224. Yasnoff WA, Humphreys BL, Overhage JM, Detmer DE, Brennan PF, Morris RW, Middleton B, Bates DW, Fanning JP. A consensus action agenda for achieving the national health information infrastructure. J Am Med Inform Assoc 2004; 11: 332-338.
225. Young S, Fasher M. An observational study of the NSW parent-held record in a GP setting. Aust Fam Physician 1994; 23: 704-705, 708-712.
226. Zender A. Passing along the PHR lesson. J AHIMA 2007; 78: 100.
227. Zeng K, Bodenreider O, Nelson SJ. Design and implementation of a personal medication record-My Medication List. AMIA Annu Symp Proc 2008: 844-848.
228. Zeng-Treitler Q, Kim H, Goryachev S, Keselman A, Slaughter L, Smith CA. Text characteristics of clinical reports and their implications for the readability of personal health records. Stud Health Technol Inform 2007; 129(Pt 2): 1117-1121.
229. Zigmond J. CMS announces PHR project. IT expert wonders about overshadowing EHR plan. Mod Healthc 2008; 38(33): 8-9.
230. van Empel IW, Hermens RP, Akkermans RP, Hollander KW, Nelen WL, Kremer JA. Organizational determinants of patient-centered fertility care: a multilevel analysis. Fertil Steril 2011; 95: 513-519.
231. Osterlund CS, Dosa NP, Arnott Smith C. Mother knows best: medical record management for patients with spina bifida during the transition from pediatric to adult care. AMIA Annu Symp Proc 2005: 580-584.