Patient-held medical records for patients with chronic disease: A systematic review

Quality and Safety in Health Care

Volumn 19, Issue 5, 2010, Pages

  Ko, Henry ^a   Turner, Tari ^a   Jones, Christine ^b   Hill, Caron ^b  

^a Southern Health   (Australia)

^b Acute Ambulatory Services Southern Health   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

CHRONIC DISEASE; HUMAN; MEDICAL RECORD; PATIENT PARTICIPATION; PATIENT RIGHT; REVIEW;

CHRONIC DISEASE; HUMANS; MEDICAL RECORDS; PATIENT ACCESS TO RECORDS; PATIENT PARTICIPATION;

EID: 78249269133     PISSN: 14753898     EISSN: 14753901     Source Type: Journal    
DOI: 10.1136/qshc.2009.037531     Document Type: Review

References (23)

1. Gysels M, Richardson A, Higginson IJ. Does the patient-held record improve continuity and related outcomes in cancer care: a systematic review.Health Expect 2007;10:75-91.
2. Saffin K. Parent-held records of child development.Nurs Times 1991;87: 54-5.
3. Cohen S, Gitterman B, Baron A, et al. Improving adherence with preventive pediatric care guidelines through the use of a parent-held child health record [abstract].AHSR FHSR Annu Meet Abstr Book 1994; 11:113.
4. Grovdal L, Grimsmo A, Nilsen TIL. Parent-held child health records do not improve care: a randomized controlled trial in Norway.Scand J Prim Health Care 2006;24:186-90.
5. Dickey LL, Petitti D. Assessment of a patient-held minirecord for adult health maintenance.J Fam Pract 1990;31:431-8.
6. Dickey LL, Petitti D. A patient-held minirecord to promote adult preventive care.J Fam Pract 1992;34:457-63.
7. Briss P, Rodewald L, Hinman A, et al. The task force on community preventive services: reviews of evidence regarding interventions to improve vaccination coverage in children, adolescents, and adults.Am J Prev Med 2000;18:97-140.
8. Dijkstra RF, Braspenning JCC, Huijsmans Z, et al. Grol RPTM: introduction of diabetes passports involving both patients and professionals to improve hospital outpatient diabetes care.Diabetes Res Clin Pract 2005;68:126-4.
9. Dijkstra RF, Niessen LW, Braspenning JCC, et al. Patient-centred and professional- directed implementation strategies for diabetes guidelines: A cluster-randomized trial-based cost-effectiveness analysis.Diabetic Medicine 2006;23:164-70.
10. Dijkstra R, Braspenning J, Grol R. Implementing diabetes passports to focus practice reorganization on improving diabetes care.Int J Qual Health Care 2008;20:72-7.
11. Simmons D, Gamble GD, Foote S, et al. The New Zealand diabetes passport study: a randomized controlled trial of the impact of a diabetes passport on risk factors for diabetes-related complications.Diabetic Medicine 2004;21:214-17
12. Cornbleet MA, Campbell P, Murray S, et al. Patient-held records in cancer and palliative care: a randomized, prospective trial.Palliat Med 2002;16:205-12
13. Drury M, Yudkin P, Harcourt J, et al. Patients with cancer holding their own records: a randomised controlled trial.Br J Gen Pract 2000;50:105-10
14. Lecouturier J, Crack L, Mannix K, et al. Evaluation of a patient-held record for patients with cancer.Eur J Cancer Care 2002;11:114-21
15. Williams JG, Cheung WY, Chetwynd N, et al. Pragmatic randomised trial to evaluate the use of patient held records for the continuing care of patients with cancer.Qual Health Care 2001;10:159-65.
16. Finlay IG, Wyatt P. Randomised cross-over study of patient-held records in oncology and palliative care.Lancet 1999;353:558-9.
17. van Wersch A, de Boer MF, de Jong P, et al. Continuity of information in cancer care: evaluation of a logbook.Patient Educ Couns 1997;31:223-36.
18. Lester H, Allan T, Wilson S, et al. A cluster randomised controlled trial of patient- held medical records for people with schizophrenia receiving shared care.Br J Gen Pract 2003;53:197-203.
19. Warner JP, King M, Blizard R, et al. Patient-held shared care records for individuals with mental illness: randomised controlled evaluation.Br J Med Psychol 2000;177:319-24.
20. Riemsma RP, Taal E, Brus HL, et al. Coordinated individual education with an arthritis passport for patients with rheumatoid arthritis.Arthritis Care Res 1997;10:238-49. (Pubitemid 27389134)
21. Ayana M, Pound P, Lampe F, et al. Improving stroke patients' care: a patient held record is not enough.BMC Health Serv Res 2001;1:1-6.
22. Latimer EJ, Crabb MR, Roberts JG, et al. The patient care travelling record in palliative care: effectiveness and efficiency.J Pain Symptom Manage 1998;16:41-51.
23. Giglio RJ, Papazian B. Acceptance and use of patient-carried health records.Med Care 1986;24:1084-92.