Governance for Personal Health Records

Journal of the American Medical Informatics Association

Volumn 16, Issue 1, 2009, Pages 14-17

  Reti, Shane R ^a,b   Feldman, Henry J ^a   Safran, Charles ^a,c  

^a BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

^b UNIVERSITY OF AUCKLAND   (New Zealand)

^c CDC   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

AMBULATORY CARE; ARTICLE; DECISION MAKING; GOVERNMENT; HEALTH CARE; HEALTH CARE POLICY; HEALTH CARE QUALITY; HEALTH INSURANCE; HOSPITAL CARE; INFORMATION PROCESSING; MEDICAL RECORD; PATIENT CARE; STRUCTURED INTERVIEW;

AMBULATORY CARE INFORMATION SYSTEMS; DATA COLLECTION; HOSPITAL INFORMATION SYSTEMS; HUMANS; INTERVIEWS AS TOPIC; MEDICAL RECORDS; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PATIENT ACCESS TO RECORDS;

EID: 57149125012     PISSN: 10675027     EISSN: None     Source Type: Journal    
DOI: 10.1197/jamia.M2854     Document Type: Article

References (28)

1. Risse G.B., and Warner J.H. Reconstructing clinical activities: patient records in medical history. Soc Hist Med. 5 (1992) 183-205
2. Payne T.H., and Graham G. Managing the life cycle of electronic clinical documents. JAMIA 13 (2006) 438-445
3. Safran C., Sands D.Z., and Rind D.M. Online medical records: A decade of experience. Methods Inf Med. 38 (1999) 308-312
4. NHS Connecting for Health. Personal health records and sharing patient information 2006. http://www.connectingforhealth.nhs.uk/newsroom/worldview/protti7 accessed Nov 18, 2007
5. Tang P.C., Ash J.S., Bates D.W., Overhage J.M., and Sands D.Z. Personal health records: definitions, benefits and strategies for overcoming barriers to adoption. JAMIA 13 (2006) 12-16
6. Slack W.V. Patient power: a patientoriented value system. In: Jacquez J. (Ed). Computer diagnosis and diagnostic methods: proceedings of the second conference on the diagnostic process (1972), Charles C Thomas, Illinois 1
7. Slack W.V. A 67year old man who emails his physician. J Am Med Assoc 292 (2004) 225-561
8. Ross S.E., and Lin C. The effects of promoting patient access to medical records: a review. JAMIA 10 (2003) 129-138
9. Markle Foundation. Connecting for health in the information age: the personal health working group final report. New York. 2003. Sec III. Why: Making the case for the personal health record. p.14. http://www.connectingforhealth.org/resources/final_phwg_report1.pdf accessed Dec 1, 2008
10. Pagliari C., Detmer D., and Singleton P. Potential of electronic personal health records. BMJ 335 (2007) 33033
11. Boehm E.W., and Forrester Research Inc. PHRs: from evolution to revolution (2007) 18 Cambridge
12. Halamka J., Aranow M., Ascenzo C., et al. Health care IT collaboration in Massachusetts: the experience of creating regional connectivity. JAMIA 12 (2005) 596-601
13. MidSouth eHealth Alliance. MSeHA executive board biographies. http://www.midsoutheha.org/about.php accessed Sep 8, 2008
14. Taconic Health Information Network and Community, and Board Of Directors. http://www.thincrhio.org/boardmembers.html accessed Sep 8, 2008
15. Massachusetts Health Data Consortium. About us. http://www.mahealthdata.org/consortium/leadership/ accessed September 2008
16. Indiana Health Information Exchange Board. http://www.ihie.com/board.htm accessed Sep 8, 2008
17. BronxRHIO. Governance. http://www.bronxrhio.org/about/governance.php accessed Sep 8 2008
18. Bernadt M., Gunning L., and Quenstedt M. Patient's access to their own psychiatric records. BMJ 303 (1991) 967
19. Halamka J.D., Mandl K.D., and Tang P.C. Early experiences with personal health records. JAMIA 15 (2008) 17
20. Islam M., and United States Agency for International Development. Health systems assessment approach: a how to manual. Bethesda (2007). http://www.phrplus.org/Pubs/Tool021_fin.pdf Chapter 6, Governance module: p. 6.16.26. Available at: http://www.phrplus.org/Pubs/Tool021_fin.pdf; accessed Nov 19, 2007
21. American Medical Informatics Association. About informatics (2007). http://www.amia.org/informatics/ accessed Dec 1, 2007
22. Cronin C. Personal health records: an overview of what is available to the public. Washington. AARP, 2006. 18. 200611. http://assets.aarp.org/rgcenter/health/2006_11_phr.pdf accessed Oct 10, 2007
23. Epstein M.F. Beth Israel Deaconess Medical Center annual operating plan 2006. Boston. 2006. Objective Three. www.home.caregroup.org/opplans/AOP06_Results.pdf accessed Jan 7, 2008
24. Brigham and Women's Hospital. Brigham and Womens Hospital Annual Report 2006. Boston. 2006. BWH Statistics. www.brighamandwomens.org/publicaffairs/06annual%20report.pdf accessed Jan 7, 2008
25. American Hospital Association. Forward momentum: hospital use of health information technology. Washington. 2005. p. 13. http://www.hospitalconnect.com/ahapolicyforum/resources/content/FINALNonEmbITSurvey105.pdf accessed Jan 7, 2008
26. U.S. Dept of Health and Human Sciences. AHIC workgroup. Consumer empowerment workgroup.28.12.2007. http://www.hhs.gov/healthit/ahic/consumer/ accessed Dec 3, 2007
27. Slack W.V. A brief treatise on the academic committee. MD Comput 7 (1990) 282-284
28. United States Code of federal regulations. Part 46 protection of human subjects. Section 46.107 IRB membership. Title 45 public welfare (2005). http://ohsr.od.nih.gov/guidelines/45cfr46.html accessed Jan 21, 2008