Evaluation of a patient-held record for patients with cancer

European Journal of Cancer Care

Volumn 11, Issue 2, 2002, Pages 114-121

  Lecouturier, J ^a   Crack, L ^b   Mannix, K ^b   Hall, R H ^c   Bond, S ^a  

^a NEWCASTLE UNIVERSITY   (United Kingdom)

^b Marie Curie Centre   (United Kingdom)

^c FREEMAN HOSPITAL   (United Kingdom)

Author keywords

Cancer; Patient satisfaction; Patient held records

Indexed keywords

ARTICLE; CLINICAL TRIAL; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; EVALUATION; HUMAN; MEDICAL RECORD; NEOPLASM; QUESTIONNAIRE; RANDOMIZED CONTROLLED TRIAL;

HUMANS; MEDICAL RECORDS; NEOPLASMS; QUESTIONNAIRES;

EID: 1842835820     PISSN: 09615423     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2354.2002.00301.x     Document Type: Article

References (25)

1. Atkinson P. (1995) Medical Talk and Medical Work, the Liturgy of the Clinic. Sage Publications, Newbury Park.
2. Ayana M., Pound P. & Ebrahim S. (1998) The views of therapists on the use of a patient held record in the care of stroke patients. Clinical Rehabilitation 12, 328-337.
3. Billault B., Degoulet P., Devries C. et al. (1995) Use of a standardized personal medical record by patients with hypertension: a randomized controlled prospective trial. MD Computing 12, 31-35.
4. Campbell M.K. & Grimshaw J. (1998) Cluster randomised trials: time for improvement. British Medical Journal 317, 1171-1172.
5. Davies A. (1999) Parent-held child health records: an evaluation of parental attitudes. British Journal of Community Nursing 4, 242-249.
6. Department of Health (1995) Expert Advisory Group on Cancer to the Chief Medical Officers of England and Wales: A Policy Framework for Commissioning Cancer Services. 'The Calman Report'. Department of Health, London.
7. Drury M., Harcourt J. & Minton M. (1996) The acceptability of patients with cancer holding their own shared-care record. Psycho-Oncology 5, 119-125.
8. Drury M., Yudkin P., Harcourt J. et al. (2000) Patients with cancer holding their own records: a randomised controlled trial. British Journal of General Practice 50, 105-110.
9. Elbourne D., Richardson M., Chalmers I. et al. (1987) The Newbury Maternity Care Study: a randomized controlled trial to assess a policy of women holding their own obstetric records. British Journal of Obstetrics and Gynaecology 94, 612-619.
10. Essex B., Doig R. & Renshaw J. (1990) Pilot study of records of shared care for people with mental illnesses. British Medical Journal 300, 1442-1446.
11. Finlay I.G. & Wyatt P. (1999) Randomised cross-over study of patient-held records in oncology and palliative care. The Lancet 353, 558-559.
12. Fisher B. & Britten N. (1993) Patient access to records: expectations of hospital doctors and experiences of cancer patients. British Journal of General Practice 43, 52-56.
13. Hayward K. (1998) Patient-held oncology records. Nursing Standard 12 (35), 44-46.
14. Kirkham M. (1997) Client-held notes: talisman or a truly shared resource? Modern Midwife 7 (3), 15-17.
15. Latimer E.J., Crabb M.R., Roberts J.G. et al. (1998) The patient care travelling record in palliative care: effectiveness and efficiency. Journal of Pain and Symptom Management 16 (1), 41-51.
16. Lecouturier J., Crack L., Mannix K. et al. (1999) Care to Communicate? Evaluating a Patient Held Record for Patients with Cancer. Centre for Health Services Research. University of Newcastle, Newcastle upon Tyne, Report 102.
17. Lovell A., Zander L., James C. et al. (1987) The St Thomas's Hospital maternity case notes study: a randomised controlled trial to assess the effects of giving expectant mothers their own maternity case notes. Paediatric and Perinatal Epidemiology 1, 57-66.
18. McCann C. (1998) Communication in cancer care: introducing patient-held records. International Journal of Palliative Nursing 4, 222-229.
19. Macfarlane A. (1992) Personal child health records held by parents. Archives of Disease in Childhood 67, 571-572.
20. Macfarlane A. & Saffin K. (1990) Do general practitioners and health visitors like 'parent held' child health records? British Journal of General Practice 40, 106-108.
21. Owen J. & Black C. (1996) Supportive and shared care. In: Cancer Care in the Community (ed. Hancock B.), pp. 117-129. Radcliffe Medical Press, Oxford.
22. Saffin K. & McFarlane A. (1991) How well are parent held records kept and completed? British Journal of General Practice 41, 249-251.
23. Teng S.T. (1993) Patient and general practitioner perceptions of patient-held health records. Family Practice 10, 406-415.
24. The National Cancer Alliance (1996) Patient-Centred Cancer Services? What Patients Say, 1st edn. The National Cancer Alliance, Oxford.
25. van Wersch A., de Boer M.F., van der Does E. et al. (1997) Continuity of information in cancer care: evaluation of a logbook. Patient Education and Counseling 31, 223-236.