Core features of a parent-controlled pediatric medical home record

Studies in Health Technology and Informatics

Volumn 129, Issue , 2007, Pages 997-1001

  Rocha, Roberto A ^a,b   Romeo, Alfred N ^c,d   Norlin, Chuck ^b,c  

^a RemedyMD Inc   (United States)

^b UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

^c Utah Collaborative Medical Home Project   (United States)

^d UTAH DEPARTMENT OF HEALTH   (United States)

Author keywords

children with special health care needs; consumer informatics; pediatrics; Personal Health Record

Indexed keywords

HEALTH CARE;

CHILDREN WITH SPECIAL HEALTH CARE NEEDS; CORE FEATURES; HEALTH CARE PROVIDERS; INFORMATICS; PERSONAL HEALTH RECORD;

PEDIATRICS;

EID: 79960022718     PISSN: 09269630     EISSN: 18798365     Source Type: Book Series    
DOI: None     Document Type: Conference Paper

References (23)

1. van Dyck, P. C., Kogan, M. D., McPherson, M. G., Weissman, G. R., & Newacheck, P. W. (2004). Prevalence and characteristics of children with special health care needs. Arch Pediatr Adolesc Med, 158(9), 884-890
2. McPherson, M., Arango, P., Fox, H., Lauver, C., McManus, M., Newacheck, P. W., et al. (1998). A new definition of children with special health care needs. Pediatrics, 102(1 Pt 1), 137-140
3. Newacheck, P. W., & Halfon, N. (1998). Prevalence and impact of disabling chronic conditions in childhood. Am J Public Health, 88(4), 610-617
4. Newacheck, P. W., Stein, R. E., Bauman, L., & Hung, Y. Y. (2003). Disparities in the prevalence of disability between black and white children. Arch Pediatr Adolesc Med, 157(3), 244-8
5. Chernoff, R. G., Ireys, H. T., DeVet, K. A., & Kim, Y. J. (2002). A randomized, controlled trial of a communitybased support program for families of children with chronic illness: pediatric outcomes. Arch Pediatr Adolesc Med, 156(6), 533-539
6. Farmer, J. E., Clark, M. J., Sherman, A., Marien, W. E., & Selva, T. J. (2005). Comprehensive primary care for children with special health care needs in rural areas. Pediatrics, 116(3), 649-656
7. Liptak, G. S., Burns, C. M., Davidson, P. W., & McAnarney, E. R. (1998). Effects of providing comprehensive ambulatory services to children with chronic conditions. Arch Pediatr Adolesc Med, 152(10), 1003-1008
8. Palfrey, J. S., Sofis, L. A., Davidson, E. J., Liu, J., Freeman, L., & Ganz, M. L. (2004). The Pediatric Alliance for Coordinated Care: evaluation of a medical home model. Pediatrics, 113(5 Suppl), 1507-1516
9. American Academy of Pediatrics (2002). The medical home. Pediatrics, 111, 184-186
10. Ziring, P., Brazdziunas, D., Cooley, W., Kastner, T., Kummer, M., Gonzalez de Pijem, L., et al. (1999). Care coordination: integrating health and related systems of care for children with special health care needs. Pediatrics, 104(4 Pt 1), 978-981
11. Sia, C., Tonniges, T. F., Osterhus, E., & Taba, S. (2004). History of the medical home concept. Pediatrics, 113(5 Suppl), 1473-1478
12. Walton, S., Bedford, H., & Dezateux, C. (2006). Use of personal child health records in the UK: findings from the millennium cohort study. BMJ, 332(7536), 269-270
13. Menachemi, N., Ettel, D. L., Brooks, R. G., & Simpson, L. (2006). Charting the use of electronic health records and other information technologies among child health providers. BMC Pediatr, 6, 21
14. The Value of Personal Health Records-A Joint Position Statement for Consumers of Health Care. (2006). Retrieved Dec 1, 2006, from http://www. amia. org/inside/releases/ 2006/ahima-amiaphrstatement. pdf
15. Kim, M., & Johnson, K. (2002). Personal health records: evaluation of functionality and utility. J Am Med Inform Assoc, 9(2), 171-180
16. Simons, W., Mandl, K., & Kohane, I. (2005). The PING personally controlled electronic medical record system. J Am Med Inform Assoc, 12(1), 47-54
17. Tang, P., Ash, J., Bates, D., Overhage, J., & Sands, D. (2006). Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J Am Med Inform Assoc, 13(2), 121-126
18. Hampshire, A. J., Blair, M. E., Crown, N. S., Avery, A. J., & Williams, E. I. (2004). Variation in how mothers, health visitors and general practitioners use the personal child health record. Child Care Health Dev, 30(4), 307-316
19. Kessels, R. P. (2003). Patients' memory for medical information. J R Soc Med, 96(5), 219-222
20. Liddell, C., Rae, G., Brown, T. R., Johnston, D., Coates, V., & Mallett, J. (2004). Giving patients an audiotape of their GP consultation: a randomised controlled trial. Br J Gen Pract, 54(506), 667-672
21. Farmer, J. E., Marien, W. E., Clark, M. J., Sherman, A., & Selva, T. J. (2004). Primary care supports for children with chronic health conditions: identifying and predicting unmet family needs. J Pediatr Psychol, 29(5), 355-367
22. Perrin, E. C., Lewkowicz, C., & Young, M. H. (2000). Shared vision: concordance among fathers, mothers, and pediatricians about unmet needs of children with chronic health conditions. Pediatrics, 105(1 Pt 3), 277-285
23. Fiol, G. D., Rocha, R., & Cimino, J. J. (2006). Infobutton Standard API Proposal. Retrieved Dec 1, 2006, from http:// www. hl7. org/Library/ Committees/dss/infobutton%2 Dproposal%2D2006%2D01%2D04%2Ezip