Indivo: A personally controlled health record for health information exchange and communication

BMC Medical Informatics and Decision Making

Volumn 7, Issue , 2007, Pages

  Mandl, Kenneth D ^a,b   Simons, William W ^a   Crawford, William C R ^a,b   Abbett, Jonathan M ^a  

^a MASSACHUSETTS INSTITUTE OF TECHNOLOGY   (United States)

^b HARVARD MEDICAL SCHOOL   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; HEALTH CARE PERSONNEL; HEALTH SERVICE; HOSPITAL CARE; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL INFORMATION; MEDICAL INFORMATION SYSTEM; MEDICAL RECORD; PUBLIC HEALTH; COMPUTER INTERFACE; COMPUTER PROGRAM; COMPUTER SECURITY; DATA BASE; INTERNET; PATIENT RIGHT; STANDARD;

COMPUTER SECURITY; DATABASE MANAGEMENT SYSTEMS; HUMANS; INTERNET; MEDICAL RECORDS SYSTEMS, COMPUTERIZED; PATIENT ACCESS TO RECORDS; SOFTWARE; USER-COMPUTER INTERFACE;

EID: 35748966386     PISSN: None     EISSN: 14726947     Source Type: Journal    
DOI: 10.1186/1472-6947-7-25     Document Type: Article

References (30)

1. Public standards and patients' control: how to keep electronic medical records accessible but private. KD Mandl P Szolovits IS Kohane, Bmj 2001 322 7281 283 287 11157533 10.1136/bmj.322.7281.283
2. Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. PC Tang JS Ash DW Bates JM Overhage DZ Sands, J Am Med Inform Assoc 2006 13 2 121 126 16357345 10.1197/jamia.M2025
3. A consensus action agenda for achieving the national health information infrastructure. WA Yasnoff BL Humphreys JM Overhage DE Detmer PF Brennan RW Morris B Middleton DW Bates JP Fanning, J Am Med Inform Assoc 2004 11 4 332 338 15187075 10.1197/jamia.M1616
4. Patient-centered design. The potential of user-centered design in personal health records. M Morales Rodriguez G Casper PF Brennan, J Ahima 2007 78 4 44 46 17455846
5. Indivo. http://www.indivohealth.org
6. The PING personally controlled electronic medical record system: technical architecture. WW Simons KD Mandl IS Kohane, J Am Med Inform Assoc 2005 12 1 47 54 15492031 10.1197/jamia.M1592
7. Encryption Characteristics of Two USB-based Personal Health Record Devices. A Wright DF Sittig, J Am Med Inform Assoc 2007 14 4 397 399 10.1197/jamia.M2352 17460132
8. NLM's Next Generation Internet (NGI) Awards. http://www.nlm.nih.gov/ research/ngiinit.html
9. Healthcare Information Technology Standards Panel. http://www.ansi.org/ standards_activities/standards_boards_panels/hisb/hitsp.aspx?menui d=3
10. Wireless technology infrastructures for authentication of patients: PKI that rings. U Sax I Kohane KD Mandl, J Am Med Inform Assoc 2005 12 3 263 268 15684133 10.1197/jamia.M1681
11. Who uses the patient internet portal? The PatientSite experience. SN Weingart D Rind Z Tofias DZ Sands, J Am Med Inform Assoc 2006 13 1 91 95 16221943 10.1197/jamia.M1833
12. The personal internetworked notary and guardian. A Riva KD Mandl DH Oh DJ Nigrin A Butte P Szolovits IS Kohane, Int J Med Inform 2001 62 1 27 40 10.1016/S1386-5056(00)00136-2 11340004
13. Health care IT collaboration in Massachusetts: the experience of creating regional connectivity. J Halamka M Aranow C Ascenzo D Bates G Debor J Glaser A Goroll J Stowe M Tripathi G Vineyard, J Am Med Inform Assoc 2005 12 6 596 601 16049225 10.1197/jamia.M1866
14. Summary of the NHIN Prototype Architecture Contracts: A Report for the Office of the National Coordinator for Health IT. http://www.hhs.gov/healthit/ healthnetwork/resources/summary_report_on_nhin_Prototype_architectures.pdf
15. A proposed legal framework for addressing privacy for patient controlled health records in pediatrics. F Bourgeois P Taylor K Mandl, AMIA Annu Symp Proc 2007 861
16. Health@Home: the work of health information management in the household (HIMH): implications for consumer health informatics (CHI) innovations. A Moen PF Brennan, J Am Med Inform Assoc 2005 12 6 648 656 16049230 10.1197/jamia.M1758
17. Proposal for fulfilling strategic objectives of the U.S. Roadmap for national action on clinical decision support through a service-oriented architecture leveraging HL7 services. K Kawamoto DF Lobach, J Am Med Inform Assoc 2007 14 2 146 155 10.1197/jamia.M2298 17213489
18. Service-oriented architecture in medical software: promises and perils. PM Nadkarni RA Miller, J Am Med Inform Assoc 2007 14 244 246 10.1197/jamia.M2349 17213485
19. A context-sensitive approach to anonymizing spatial surveillance data: impact on outbreak detection. CA Cassa SJ Grannis JM Overhage KD Mandl, J Am Med Inform Assoc 2006 13 2 160 165 16357353 10.1197/jamia.M1920
20. Guaranteeing anonymity when sharing medical data, the Datafly System. L Sweeney, Proc AMIA Annu Fall Symp 1997 51 55 9357587
21. Privacy and Medical-Records Research. J Norsigian S Whelan P Billings B Woodward T Brase L Sweeney LJ Melton, N Engl J Med 1998 338 15 1076 1078 10.1056/NEJM199804093381519 9537884
22. GenePING: secure, scalable management of personal genomic data. B Adida IS Kohane, BMC Genomics 2006 7 93 16638151 10.1186/1471-2164-7-93
23. Health-information altruists - a potentially critical resource. IS Kohane RB Altman, N Engl J Med 2005 353 19 2074 2077 10.1056/NEJMsb051220 16282184
24. Patients should have to opt out of national electronic care records: AGAINST. JD Halamka, Bmj 2006 333 7557 41 42 16821279
25. Healthconnect: clinical grade patient-physician communication. KD Mandl IS Kohane, Proc AMIA Symp 1999 849 853 10566480
26. Medicine. Reestablishing the researcher-patient compact. IS Kohane KD Mandl PL Taylor IA Holm DJ Nigrin LM Kunkel, Science 2007 316 5826 836 837 10.1126/science.1135489 17495156
27. GNU Lesser General Public License. http://www.gnu.org/licenses/lgpl.html
28. Towards a Norwegian implementation of electronic personal health records. http://ftp.informatik.rwth-aachen.de/Publications/CEUR-WS/Vol-219/paper05.pdf
29. MyOscar: Personal Controlled Health Record. http://myoscar.org/history
30. The Connecting for Health Common Framework: Resources for implementing private and secure health information exchange. http://www.connectingforhealth. org/commonframework/