The supportive care needs of parents with a child with a rare disease: Results of an online survey

BMC Family Practice

Volumn 17, Issue 1, 2016, Pages

  Pelentsov, Lemuel J ^a   Fielder, Andrea L ^a   Laws, Thomas A ^b   Esterman, Adrian J ^a,c  

^a UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

^b KEELE UNIVERSITY   (United Kingdom)

^c JAMES COOK UNIVERSITY   (Australia)

Author keywords

Disease burden; Health providers; Needs assessment; Online survey; Parents; Rare diseases; Supportive care

Indexed keywords

ADOLESCENT; ADULT; ANXIETY; AUSTRALIA; CLINICAL COMPETENCE; CONSUMER HEALTH INFORMATION; ECONOMICS; EMOTION; ETIOLOGY; FATHER; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE QUALITY; HUMAN; HUMAN RELATION; MALE; MIDDLE AGED; MOTHER; NEEDS ASSESSMENT; NEW ZEALAND; PATIENT SATISFACTION; PSYCHOLOGY; QUESTIONNAIRE; RARE DISEASE; REPRODUCIBILITY; SELF HELP; SOCIAL ISOLATION; SOCIAL SUPPORT; UNCERTAINTY; YOUNG ADULT;

ADOLESCENT; ADULT; ANXIETY; AUSTRALIA; CLINICAL COMPETENCE; CONSUMER HEALTH INFORMATION; EMOTIONS; FATHERS; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; MOTHERS; NEEDS ASSESSMENT; NEW ZEALAND; PATIENT SATISFACTION; QUALITY OF HEALTH CARE; RARE DISEASES; REPRODUCIBILITY OF RESULTS; SELF-HELP GROUPS; SOCIAL ISOLATION; SOCIAL SUPPORT; SURVEYS AND QUESTIONNAIRES; UNCERTAINTY; YOUNG ADULT;

EID: 84978763844     PISSN: None     EISSN: 14712296     Source Type: Journal    
DOI: 10.1186/s12875-016-0488-x     Document Type: Review

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