메뉴 건너뛰기




Volumn 158 A, Issue 8, 2012, Pages 1877-1884

Factors associated with perceived uncertainty among parents of children with undiagnosed medical conditions

Author keywords

Parents; Perceived control; Rare diseases; Uncertainty; Undiagnosed

Indexed keywords

ADAPTATION; ADOLESCENT; ADULT; AGED; ARTICLE; CHILD; CHILDHOOD DISEASE; COPING BEHAVIOR; DISEASE SEVERITY; FACTORIAL ANALYSIS; FEMALE; HEALTH SURVEY; HUMAN; LINEAR REGRESSION ANALYSIS; MALE; MULTIVARIATE ANALYSIS; PARENTAL ATTITUDE; PREDICTION; PRIORITY JOURNAL; RISK FACTOR;

EID: 84864121683     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.35425     Document Type: Article
Times cited : (58)

References (37)
  • 1
    • 0034466310 scopus 로고    scopus 로고
    • A prospective investigation of dispositional optimism as a predictor of health-related quality of life in head and neck cancer patients
    • Allison P, Guichard C, Gilain L. 2000. A prospective investigation of dispositional optimism as a predictor of health-related quality of life in head and neck cancer patients. Qual Life Res 9: 951-960.
    • (2000) Qual Life Res , vol.9 , pp. 951-960
    • Allison, P.1    Guichard, C.2    Gilain, L.3
  • 2
    • 79951950402 scopus 로고    scopus 로고
    • Health information seeking: A review of measures and methods
    • Anker AE, Reinhart AM, Feeley TH. 2011. Health information seeking: A review of measures and methods. Patient Educ Couns 82: 346-354.
    • (2011) Patient Educ Couns , vol.82 , pp. 346-354
    • Anker, A.E.1    Reinhart, A.M.2    Feeley, T.H.3
  • 4
    • 0032894724 scopus 로고    scopus 로고
    • Perceived personal control (PPC): A new concept in measuring outcome of genetic counseling
    • Berkenstadt M, Shiloh S, Barkai G, Katznelson MB-M, Goldman B. 1999. Perceived personal control (PPC): A new concept in measuring outcome of genetic counseling. Am J Med Genet 82: 53-59.
    • (1999) Am J Med Genet , vol.82 , pp. 53-59
    • Berkenstadt, M.1    Shiloh, S.2    Barkai, G.3    Katznelson, M.-M.4    Goldman, B.5
  • 5
    • 77955900433 scopus 로고    scopus 로고
    • A comparative study of uncertainty, optimism and anxiety in patients receiving their first implantable defibrillator for primary or secondary prevention of sudden cardiac death
    • Carroll SL, Arthur HM. 2010. A comparative study of uncertainty, optimism and anxiety in patients receiving their first implantable defibrillator for primary or secondary prevention of sudden cardiac death. Int J Nurs Stud 47: 836-845.
    • (2010) Int J Nurs Stud , vol.47 , pp. 836-845
    • Carroll, S.L.1    Arthur, H.M.2
  • 6
    • 0029905341 scopus 로고    scopus 로고
    • Coping effectiveness training for men living with HIV: Preliminary findings
    • Chesney M, Folkman S, Chambers D. 1996. Coping effectiveness training for men living with HIV: Preliminary findings. Int J STD AIDS 7: 75-82.
    • (1996) Int J STD AIDS , vol.7 , pp. 75-82
    • Chesney, M.1    Folkman, S.2    Chambers, D.3
  • 7
    • 0027688960 scopus 로고
    • A model of the family transition to living with childhood cancer
    • Clarke-Steffen L. 1993. A model of the family transition to living with childhood cancer. Cancer Pract 1: 285-292.
    • (1993) Cancer Pract , vol.1 , pp. 285-292
    • Clarke-Steffen, L.1
  • 8
    • 0027622313 scopus 로고
    • Diagnostic closure and the spread of uncertainty
    • Cohen MH. 1993. Diagnostic closure and the spread of uncertainty. Issues Compr Pediatr Nurs 16: 135-146.
    • (1993) Issues Compr Pediatr Nurs , vol.16 , pp. 135-146
    • Cohen, M.H.1
  • 9
    • 77957680405 scopus 로고    scopus 로고
    • Optimism, social support, and well-being in mothers of children with autism spectrum disorder
    • Ekas NV, Lickenbrock DM, Whitman TL. 2010. Optimism, social support, and well-being in mothers of children with autism spectrum disorder. J Autism Dev Disord 40: 1274-1284.
    • (2010) J Autism Dev Disord , vol.40 , pp. 1274-1284
    • Ekas, N.V.1    Lickenbrock, D.M.2    Whitman, T.L.3
  • 10
    • 34247149788 scopus 로고    scopus 로고
    • Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs, when the newborn child is severely disabled
    • Graungaard AH, Skov L. 2007. Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs, when the newborn child is severely disabled. Child Care Health Dev 33: 296-307.
    • (2007) Child Care Health Dev , vol.33 , pp. 296-307
    • Graungaard, A.H.1    Skov, L.2
  • 11
    • 0030742084 scopus 로고    scopus 로고
    • Predictors of parental emotional adjustment to childhood cancer
    • Grootenhuis M, Last B. 1997a. Predictors of parental emotional adjustment to childhood cancer. Psychooncology 6: 115-128.
    • (1997) Psychooncology , vol.6 , pp. 115-128
    • Grootenhuis, M.1    Last, B.2
  • 12
    • 0030765298 scopus 로고    scopus 로고
    • Parents' emotional reactions related to different prospects for the survival of their children with cancer
    • Grootenhuis MA, Last BF. 1997b. Parents' emotional reactions related to different prospects for the survival of their children with cancer. J Psychosoc Oncol 15: 43-62.
    • (1997) J Psychosoc Oncol , vol.15 , pp. 43-62
    • Grootenhuis, M.A.1    Last, B.F.2
  • 13
    • 85047687257 scopus 로고    scopus 로고
    • Varieties of uncertainty in health care: A conceptual taxonomy
    • Han PK, Klein WM, Arora NK. 2011. Varieties of uncertainty in health care: A conceptual taxonomy. Med Decis Making 31: 828-838.
    • (2011) Med Decis Making , vol.31 , pp. 828-838
    • Han, P.K.1    Klein, W.M.2    Arora, N.K.3
  • 14
    • 0031255526 scopus 로고    scopus 로고
    • Uncertainty in mothers' care for their ill children
    • Horner SD. 1997. Uncertainty in mothers' care for their ill children. J Adv Nurs 26: 658-663.
    • (1997) J Adv Nurs , vol.26 , pp. 658-663
    • Horner, S.D.1
  • 15
    • 0022416566 scopus 로고
    • Uncertainty and its relation to the psychological and social correlates of chronic illness in children
    • Jessop DJ, Stein REK. 1985. Uncertainty and its relation to the psychological and social correlates of chronic illness in children. Soc Sci Med 20: 993-999.
    • (1985) Soc Sci Med , vol.20 , pp. 993-999
    • Jessop, D.J.1    Stein, R.E.K.2
  • 17
    • 14044269480 scopus 로고    scopus 로고
    • Psychological benefit of diagnostic certainty for mothers of children with disabilities: Lessons from Down syndrome
    • Lenhard W, Breitenbach E, Ebert H, Schindelhauer-Deutscher HJ, Henn W. 2005. Psychological benefit of diagnostic certainty for mothers of children with disabilities: Lessons from Down syndrome. Am J Med Genet Part A 133A: 170-175.
    • (2005) Am J Med Genet Part A , vol.133 A , pp. 170-175
    • Lenhard, W.1    Breitenbach, E.2    Ebert, H.3    Schindelhauer-Deutscher, H.J.4    Henn, W.5
  • 18
    • 78650408570 scopus 로고    scopus 로고
    • Living without a diagnosis: The parental experience
    • Lewis C, Skirton H, Jones R. 2010. Living without a diagnosis: The parental experience. Genet Test Mol Biomarkers 14: 807-815.
    • (2010) Genet Test Mol Biomarkers , vol.14 , pp. 807-815
    • Lewis, C.1    Skirton, H.2    Jones, R.3
  • 19
    • 33751018539 scopus 로고    scopus 로고
    • Uncertainty and perceived personal control among parents of children with rare chromosome conditions: The role of genetic counseling
    • Lipinski SE, Lipinski MJ, Biesecker LG, Biesecker BB. 2006. Uncertainty and perceived personal control among parents of children with rare chromosome conditions: The role of genetic counseling. Am J Med Genet Part C Semin Med Genet 142C: 232-240.
    • (2006) Am J Med Genet Part C Semin Med Genet , vol.142 C , pp. 232-240
    • Lipinski, S.E.1    Lipinski, M.J.2    Biesecker, L.G.3    Biesecker, B.B.4
  • 20
    • 70449397325 scopus 로고    scopus 로고
    • Parental perceived value of a diagnosis for intellectual disability (ID): A qualitative comparison of families with and without a diagnosis for their child's ID
    • Makela NL, Birch PH, Friedman JM, Marra CA. 2009. Parental perceived value of a diagnosis for intellectual disability (ID): A qualitative comparison of families with and without a diagnosis for their child's ID. Am J Med Genet Part A 149A: 2393-2402.
    • (2009) Am J Med Genet Part A , vol.149 A , pp. 2393-2402
    • Makela, N.L.1    Birch, P.H.2    Friedman, J.M.3    Marra, C.A.4
  • 23
    • 0031027744 scopus 로고    scopus 로고
    • Genetic counselling: The psychological impact of meeting patients' expectations
    • Michie S, Marteau TM, Bobrow M. 1997. Genetic counselling: The psychological impact of meeting patients' expectations. J Med Genet 34: 237-241.
    • (1997) J Med Genet , vol.34 , pp. 237-241
    • Michie, S.1    Marteau, T.M.2    Bobrow, M.3
  • 24
    • 0020843292 scopus 로고
    • Parents' perception of uncertainty concerning their hospitalized child
    • Mishel MH. 1983. Parents' perception of uncertainty concerning their hospitalized child. Nurs Res 32: 324-330.
    • (1983) Nurs Res , vol.32 , pp. 324-330
    • Mishel, M.H.1
  • 26
    • 0004016598 scopus 로고    scopus 로고
    • Chapel Hill: The University of North Carolina at Chapel Hill.
    • Mishel MH. 1997. Uncertainty in illness scales manual. Chapel Hill: The University of North Carolina at Chapel Hill.
    • (1997) Uncertainty in illness scales manual
    • Mishel, M.H.1
  • 27
    • 40649112119 scopus 로고    scopus 로고
    • The well-being of mothers of adolescents with developmental disabilities in relation to medical care utilization and satisfaction with health care
    • Mitchell DB, Hauser-Cram P. 2008. The well-being of mothers of adolescents with developmental disabilities in relation to medical care utilization and satisfaction with health care. Res Dev Disabil 29: 97-112.
    • (2008) Res Dev Disabil , vol.29 , pp. 97-112
    • Mitchell, D.B.1    Hauser-Cram, P.2
  • 28
    • 76349107604 scopus 로고    scopus 로고
    • Parenting stress in US families: Implications for paediatric healthcare utilization
    • Raphael JL, Zhang Y, Liu H, Giardino AP. 2010. Parenting stress in US families: Implications for paediatric healthcare utilization. Child Care Health Dev 36: 216-224.
    • (2010) Child Care Health Dev , vol.36 , pp. 216-224
    • Raphael, J.L.1    Zhang, Y.2    Liu, H.3    Giardino, A.P.4
  • 29
    • 0035479331 scopus 로고    scopus 로고
    • Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes
    • Rosenthal ET, Biesecker LG, Biesecker BB. 2001. Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes. Am J Med Genet 103: 106-114.
    • (2001) Am J Med Genet , vol.103 , pp. 106-114
    • Rosenthal, E.T.1    Biesecker, L.G.2    Biesecker, B.B.3
  • 30
    • 0028725058 scopus 로고
    • Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self esteem) - A reevaluation of the life orientation test
    • Scheier MF, Carver CS, Bridges MW. 1994. Distinguishing optimism from neuroticism (and trait anxiety, self-mastery, and self esteem) - A reevaluation of the life orientation test. J Pers Soc Psychol 67: 1063-1078.
    • (1994) J Pers Soc Psychol , vol.67 , pp. 1063-1078
    • Scheier, M.F.1    Carver, C.S.2    Bridges, M.W.3
  • 31
    • 0024796213 scopus 로고
    • Dispositional optimism and recovery from coronary-artery bypass-surgery - the beneficial-effects on physical and psychological well-being
    • Scheier MF, Magovern GJ, Abbott RA, Matthews KA, Owens JF, Lefebvre RC, Carver CS. 1989. Dispositional optimism and recovery from coronary-artery bypass-surgery - the beneficial-effects on physical and psychological well-being. J Pers Soc Psychol 57: 1024-1040.
    • (1989) J Pers Soc Psychol , vol.57 , pp. 1024-1040
    • Scheier, M.F.1    Magovern, G.J.2    Abbott, R.A.3    Matthews, K.A.4    Owens, J.F.5    Lefebvre, R.C.6    Carver, C.S.7
  • 32
    • 0031173070 scopus 로고    scopus 로고
    • Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling
    • Shiloh S, Berkenstadt M, Meiran N, Bat-Miriam-Katznelson M, Goldman B. 1997. Mediating effects of perceived personal control in coping with a health threat: The case of genetic counseling. J Appl Soc Psychol 27: 1146-1174.
    • (1997) J Appl Soc Psychol , vol.27 , pp. 1146-1174
    • Shiloh, S.1    Berkenstadt, M.2    Meiran, N.3    Bat-Miriam-Katznelson, M.4    Goldman, B.5
  • 33
    • 0035516157 scopus 로고    scopus 로고
    • Locus of control and health behaviour revisited: A multivariate analysis of young adults from 18 countries
    • Steptoe A, Wardle J. 2001. Locus of control and health behaviour revisited: A multivariate analysis of young adults from 18 countries. Br J Psychol 92: 659-672.
    • (2001) Br J Psychol , vol.92 , pp. 659-672
    • Steptoe, A.1    Wardle, J.2
  • 34
    • 0034577254 scopus 로고    scopus 로고
    • Uncertainty in childhood illness: A synthesis of the parent and child literature
    • discussion 321-296.
    • Stewart JL, Mishel MH. 2000. Uncertainty in childhood illness: A synthesis of the parent and child literature. Sch Inq Nurs Pract 14: 299-319; discussion 321-296.
    • (2000) Sch Inq Nurs Pract , vol.14 , pp. 299-319
    • Stewart, J.L.1    Mishel, M.H.2
  • 36
    • 77649120769 scopus 로고    scopus 로고
    • Maternal adaptation to pediatric neurosurgical diagnosis: A growth curve analysis
    • Tifferet S, Elizur Y, Constantini S, Friedman O, Manor O. 2010. Maternal adaptation to pediatric neurosurgical diagnosis: A growth curve analysis. Psychol Health 25: 213-229.
    • (2010) Psychol Health , vol.25 , pp. 213-229
    • Tifferet, S.1    Elizur, Y.2    Constantini, S.3    Friedman, O.4    Manor, O.5
  • 37
    • 0030095846 scopus 로고    scopus 로고
    • The influence of illness severity and family resources on maternal uncertainty during critical pediatric hospitalization
    • Tomlinson PS, Kirschbaum M, Harbaugh B, Anderson KH. 1996. The influence of illness severity and family resources on maternal uncertainty during critical pediatric hospitalization. Am J Crit Care 5: 140-146.
    • (1996) Am J Crit Care , vol.5 , pp. 140-146
    • Tomlinson, P.S.1    Kirschbaum, M.2    Harbaugh, B.3    Anderson, K.H.4


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.