Predictors of Coping in Parents of Children With an Intellectual Disability: Comparison Between Lebanese Mothers and Fathers

Journal of Pediatric Nursing

Volumn 25, Issue 1, 2010, Pages 46-56

  Azar, Mathilde ^a   Badr, Lina Kurdahi ^b  

^a French Section   (Lebanon)

^b AZUSA PACIFIC UNIVERSITY   (United States)

Author keywords

Children with intellectual disability; Coping; Lebanon; Parenting

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; ATTITUDE TO HEALTH; CHI SQUARE DISTRIBUTION; CHILD; COMPARATIVE STUDY; COST OF ILLNESS; CROSS-SECTIONAL STUDY; EDUCATION; ETHNOLOGY; FATHER; HANDICAPPED CHILD; HUMAN; LEBANON; MENTAL PATIENT; MENTAL STRESS; MIDDLE AGED; MOTHER; NONPARAMETRIC TEST; NURSING METHODOLOGY RESEARCH; PRESCHOOL CHILD; PROSPECTIVE STUDY; PSYCHOLOGICAL ASPECT; REGRESSION ANALYSIS; SOCIAL SUPPORT; STATISTICS;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE TO HEALTH; CHI-SQUARE DISTRIBUTION; CHILD; CHILD, PRESCHOOL; COST OF ILLNESS; CROSS-SECTIONAL STUDIES; DISABLED CHILDREN; FATHERS; HUMANS; LEBANON; MENTALLY DISABLED PERSONS; MIDDLE AGED; MOTHERS; NURSING METHODOLOGY RESEARCH; PROSPECTIVE STUDIES; REGRESSION ANALYSIS; SOCIAL SUPPORT; STATISTICS, NONPARAMETRIC; STRESS, PSYCHOLOGICAL;

EID: 73149095417     PISSN: 08825963     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.pedn.2008.11.001     Document Type: Article

References (90)

1. Abbeduto L., Seltzer M.M., Shattuck P., Krauss M.W., Orsmond G., and Murphy M.M. Psychological well-being and coping in mothers of youths with autism, Down syndrome, or fragile X syndrome. American Journal of Mental Retardation 109 (2004) 237-254
2. Abidin R.R. Parenting Stress Index. 3rd ed. (1995), Psychological Assessment Resources, Inc, Odessa, FL Professional manual
3. American Association on Mental Retardation. Mental retardation. Definition, classification and systems of supports. 9th ed. (1993), the Association, Washington, DC
4. Azar M., and Kurdahi Badr L. The adaptation of mothers of children with intellectual disability in Lebanon. Journal of Transcultural Nursing 17 (2006) 375-380
5. Bailey D.B.J., Blasco P.M., and Simeonsson R.J. Needs expressed by mothers and fathers of young children with disabilities. American Journal on Mental Retardation 97 (1992) 1-10
6. Blacher J., and Baker B.L. Positive impact of intellectual disability on families. American Journal on Mental Retardation 112 (2007) 330-348
7. Bright J.A., Hayward P., and Clements J. Dealing with chronic stress: Coping strategies, self-esteem and service use in mothers of handicapped children. Journal of Mental Health 6 1 (1997) 67-75
8. Brotanek, J. M., Seeley, C. E., Flores, G. (2008). The importance of cultural competency in general pediatrics. Current opinions in Pediatrics, 20(6), 711-718.
9. Canary, H. E. (2008). Creating supportive connections: A decade of research on support for families of children with disabilities. Health Communication, 23(5), 413-426.
10. Carter C., Meckes L., Pritchard L., Swensen S., Wittman P.L., and Velde B. The friendship club: An after-school program for children with Asperger syndrome. Family and Community Health 27 (2004) 143-150
11. Chang M.Y., and Hsu L.L. The perceptions of Taiwanese families who have children with learning disability. Journal of Clinical Nursing 16 (2007) 2349-2356
12. Chao-Hsing Y. Gender differences of parental distress in children with cancer. Advanced Nursing 38 (2002) 598-606
13. Chavira V., López S.R., Blacher J., and Shapiro J. Latina mothers' attributions, emotions, and reactions to the problem behaviors of their children with developmental disabilities. Journal of Child Psychology and Psychiatry 41 (2000) 245-252
14. Cohen M.S. Families coping with childhood chronic illness: A research review. Families, Systems, and Health 17 (1999) 149-164
15. Cohen S., Gottlieb B.H., and Underwood L.G. Social relationships and health. In: Cohen S., Gottlieb B.H., and Underwood L.G. (Eds). Social support measurement and intervention (2000), Oxford University Press, Oxford 3-25
16. Dellve L., Samuelsson L., Tallborn A., Fasth A., and Hallberg L.R. Stress and well-being among parents of children with rare diseases: A prospective intervention study. Advanced Nursing 53 (2006, Feb) 392-402
17. Dodgson J., Garwick A., Blozis S., Patterson J., Bennett F., and Blum R. Uncertainty in childhood chronic conditions and family distress of young children. Journal of Family Nursing 6 (2000) 252-266
18. Dunst C.J., Trivette C.M., and Cross A.H. Mediating influence of social support: Personal, family, and child outcomes. American Journal on Mental Deficiency 90 (1986) 403-417
19. Dunst C.J., Trivette C.M., and Deal A.G. Supporting and Strengthening Families: Volume 2-Methods, Strategies and Practices (1994), Brookline, Cambridge, MA
20. Duvdevany I., and Abboud S. Stress, social support and well-being of Arab mothers of children with intellectual disability who are served by welfare services in northern Israel. Journal of Rehabilitation Research 47 (2003) 264-272
21. Duvdevany I., and Keren N. Thought, consideration and future planning for out-of-home placement among parental caregivers of dependent adult children with psychiatric disabilities. International Journal of Rehabilitation Research 25 3 (2002) 207-213
22. Dyson L.L. Fathers and mothers of school-age children with developmental disability: Parental stress, family functioning, and social support. American Journal on Mental Retardation 102 (1997) 267-279
23. Eiser C. When the child's illness is life threatening: Impact on the parents. Pediatric Nursing 28 (1993) 453-463
24. Elliot Brown K.A., and Barbarin Q.A. Gender differences in parenting a child with cancer. Social Work in Health Care 22 (1996) 53-71
25. Emerson E. Mothers of children and adolescents with intellectual disability: Social and economic situation, mental health status, and the self-assessed social and psychological impact of the child's difficulties. Journal of Intellectual Disability Research 47 Pt 4-5 (2004) 385-399
26. Emerson E., and Hatton C. Self-reported well-being of women and men with intellectual disabilities in England. American Journal on Mental Retardation 113 (2008) 143-155
27. Flaherty F.M., and Glidden L.M. Positive adjustment in parents rearing children with Down syndrome. Early Education and Development 11 (2000) 407-422
28. Forde H., Lane H., McCloskey D., McManus V., and Tirney E. Family support-an evaluation of an in-home support service. Journal of Psychiatric and Mental Health Nursing 11 (2004) 698-704
29. Freidrich W.N., and Freidrich W.L. Psychosocial assets of parents of handicapped and nonhandicapped children. American Journal on Mental Deficiency 85 (1981) 551-553
30. Friedrich W.N., Wilturner L.T., and Cohen D.S. Coping resources and parenting mentally retarded children. American Journal on Mental Deficiency 90 (1985) 130-139
31. Frey K.S., Greenberg M.T., and Fewell R.R. Stress and coping among parents of handicapped children: A multidimensional approach. American Journal on Mental Retardation 98 (1989) 207-218
32. Gartner A., Lipsky D.K., and Turnbull A.P. Supporting families with a child with a disability: An international outlook (1991), Paul H Brookes, Baltimore
33. Hall S. An exploration of parental perception of the nature and level of support needed to care for their child with special needs. Journal of Advanced Nursing 24 (1996) 512-521
34. Heaman D.J. Perceived stressors and coping of parents who have children with developmental disabilities: A comparison of mothers with fathers. Journal of Pediatric Nursing 10 (1995) 311-320
35. Hovey J.K. Differences in parenting needs of fathers of children with chronic conditions related to family income. J Child Health Care 10 1 (2006) 43-54
36. Jarbrink K., Fombonne E., and Knapp M. Measuring the parental services and cost impacts of children with autism spectrum disorder: A pilot study. Journal of Autism and Developmental Disorder 33 (2003) 395-402
37. Kandel I., and Merrick J. The child with a disability: Parental acceptance, management and coping. Scientific World Journal 12 (2007) 1799-1809
38. Kandel J., Morad M., Vardi G., Press J., and Merrick J. The Arab community in Israel coping with intellectual and developmental disability. Scientific World Journal 4 (2004) 324-332
39. Katz S. When the child's illness is life threatening: Impact on the parents. Pediatric Nursing 28 (2002) 453-463
40. Kazak A.E. Evidence-based interventions for survivors of child hood cancer and their families. J Pediatric Psychology 30 1 (2005) 29-39
41. Keller D., and Honig A.S. Maternal and paternal stress in families with school-aged children with disabilities. American Journal of Orthopsychiatry 74 (2004) 337-348
42. Khamis V. Psychological distress among parents of children with mental retardation in the United Arab Emirates. Social Science & Medicine 64 (2007) 850-857
43. King G.A., King S.M., and Rosenbaum P.L. How mothers and fathers view professional caregiving for children with disabilities. Developmental Medicine and Child Neurology 38 (1996) 397-407
44. Koller H., Richardson S.A., and Katz M. Families of children with mental retardation: Comprehensive view from an epidemiologic perspective. American Journal on Mental Retardation 97 (1992) 315-332
45. Krauss M.W. Child-related and parenting stress: Similarities and differences between mothers and fathers of children with disabilities. Am Journal of Mental Retardation 97 4 (1993) 393-404
46. Kuster P.A., Badr L.K., Chang B.L., Wuerker A.K., and Benjamin A.E. Factors influencing health promoting activities of mothers caring for ventilator-assisted children. Journal of Pediatric Nursing 19 (2004) 276-287
47. Lahner J.M., and Hayslip B.H. Gender differences in parental reactions to the birth of a premature low birth weight infant. Journal of Prenatal and Perinatal Psychology and Health 18 (2003) 71-88
48. Lardieri L.A., Blacher J., and Swanson H.L. Sibling relationships and parent stress in families of children with and without learning disabilities. Learning Disability Quarterly 23 (2000) 105-116
49. Lazarus R.S., and Falkman S. Stress, appraisal and coping (1984), Springer Publishing co. Ltd, New York
50. Lebanon. The Columbia gazetteer of the world online (2005), Columbia University Press, New York. http://www.columbiagazetteer.org/. Accessed: October 3, 2008
51. Little L. Differences in stress and coping for mothers and fathers of children with Asperger's syndrome and nonverbal learning disorders. Pediatric Nursing 28 (2002) 565-570
52. Lloyd T., and Hastings R.P. Psychological variables as correlates of adjustment in mothers of children with intellectual disabilities: Cross-sectional and longitudinal relationships. Journal of Intellectual Disability Research 52 (2008) 37-48
53. Lynch E.W., and Hanson M.J. Developing cross-cultural competence. 3rd ed. (2004), Brookes, Baltimore
54. Markus H.R., and Kitayama S. Culture and the self: Implications for cognition, emotion, and motivation. Psychological Review 98 (1991) 224-253
55. McConkey R., Truesdale-Kennedy M., Chang M.Y., Jarrah S., and Shukri R. The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. International Journal of Nursing Studies 45 (2008) 65-74
56. McCubbin H.I., McCubbin M.A., Nevin R., and Cauble E. Coping Health Inventory for Parents (CHIP). In: McCubbin H.I., Thompson A.I., and McCubbin M.A. (Eds). Family assessment: Resiliency, coping and adaptation: Inventory for research and practice (1981), University of Wisconsin System, Madison 407-453
57. McCubbin H.I., Patterson J., and Glynn T. Social Support Index (SSI). In: McCubbin H.I., Thompson A.I., and McCubbin M.A. (Eds). Family assessment: Resiliency, coping and adaptation: Inventory for research and practice (1982), University of Wisconsin System, Madison 357-389
58. McCubbin H.I., and Patterson J.M. Systematic assessment of family stress, resources, and coping. Tools for research, education and clinical intervention. Family stress, coping and health project (1981), University of Wisconsin, Madison, WI
59. Montes G., and Halterman J.S. Psychological functioning and coping among mothers of children with autism: A population-based study. Pediatrics 119 (2007) 1040-1046
60. Mu P.F. Paternal reactions to a child with epilepsy: uncertainty, coping strategies, and depression. Journal of Advanced Nursing 49 (2005) 367-376
61. O'Brien M.E. Living in a house of cards: Family experiences with long-term childhood technology dependence. Journal of Pediatric Nursing 16 (2001) 13-22
62. Oelofsen N., and Richardson P. Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability 31 (2006) 1-12
63. Olsson M.B., and Hwang C.P. Depression and mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research 45 (2001) 535-543
64. Patterson J.M., and Garwick A.W. Levels of meanings in family stress theory. Family Process 33 (1994) 287-303
65. Patterson J.M., and McCubbin H.I. Chronic illness: Family stress and coping. In: Figley C.R., and McCubbin H.I. (Eds). Stress and the family (Vol. 1): Coping with catastrophe (1983), Brunner, New York
66. Pelchat D., Lefebvre H., and Levert M.J. Gender differences and similarities in the experience of parenting a child with a health problem: Current state of knowledge. Journal of Child Health Care 11 (2007) 112-131
67. Pelchat D., Lefebvre H., and Perreault M. Differences and similarities between mothers and fathers experiences of parenting a child with a disability. Journal of Child Health Care 7 (2003) 231-247
68. Raina P., O'Donnell M., Rosenbaum P., Brehaut J., Walter S.D., Russell D., et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 115 (2005) e626-e636
69. Romanos, A. (2000). The mentally retarded in Lebanon. Ministry of Social Affairs and the UNFPA in Lebanon.
70. Saloviita T., Italinna M., and Leinonen E. Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: A double ABCX model. Journal of Intellectual Disability Research 47 (2003) 300-312
71. Schalock R.L., Luckasson R.A., Shogren K.A., Borthwick-Duffy S., Bradley V., Buntinx W.H., et al. The renaming of mental retardation: Understanding the change to the term intellectual disability. Intellectual Developmental Disabilities 45 (2007) 116-124
72. Seeman T.E. Social ties and health: The benefits of social integration. Annals of Epidemiology 6 (1996) 442-451
73. Sen E., and Yurtsever S. Difficulties experienced by families with disabled children (2007)
74. Shin J., Nhan N.V., Crittenden K.S., Hong M., Flory H.T.D., and Ladinsky J. Parenting stress of mothers and fathers of young children with cognitive delays in Vietnam. Journal of Intellectual Disability Research 50 (2006) 748-760
75. Shin J.Y. Social support for families of children. Journal for Specialists in Pediatric Nursing 12 (2002) 238-252
76. Sivberg B. Family system and coping behaviors: A comparison of parents of children with autistic spectrum disorders and parents with non-autistic children. Autism 6 (2002) 397-409
77. Sloper P., Knussen S., Turner S., and Cuningham C.C. Factors related to stress and satisfaction with life in families of children with Down syndrome. Journal of Child Psychology and Psychiatry 32 (1999) 655-676
78. Smith T.B., Oliver M.N., and Innocenti M.S. Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry 71 (2001) 257-261
79. Stoneman Z. Mental retardation and family adaptation. In: William W.E., and MacLean Jr. (Eds). Ellis' Handbook of mental deficiency, psychological theory and research (1997), Lawrence Erlbaum Associates, Publishers, New Jersey 405-438
80. Taanila A., Syrjala L., Kokkonen J., and Jarvelin M.R. Coping of parents with physically and/or intellectually disabled children. Child-Care, Health & Development 28 (2001) 73-86
81. Tak Y.R., and McCubbin M. Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. Journal of Advanced Nursing 39 (2002) 190-198
82. Taylor S.E., Welch W.T., Kim H.S., and Sherman D.K. Cultural differences in the impact of social support on psychological and biological stress responses. Psychological Science 18 (2007) 831-837
83. Trute B., Hiebert-Murphy D., and Levine K. Parental appraisal of the family impact of childhood developmental disability: Times of sadness and times of joy. Journal of Intellectual Developmental Disabilities 32 (2007) 1-9
84. Twoy R., Connolly P.M., and Novak J. Coping strategies used by parents of children with autism. Journal of the American Academy of Nurse Practitioners 19 (2007) 251-260
85. UNICEF. The state of the world's children 2002 (2002), Leadership, New York
86. Valentine D.P., McDermott S., and Anderson D. Mothers of adults with mental retardation: Is race a factor in perceptions of burdens and gratifications?. Families in Society 79 (1998) 577-584
87. Weiss S.J. Stressors experienced by family caregivers of children with pervasive developmental disorders. Child Psychiatry and Human Development 21 (1991) 203-216
88. Yeh C.H. Gender differences in the use of coping strategies among Taiwanese parents whose children have cancer. Cancer Nursing 27 (2004) 100-107
89. Zahr L., and Hattar-Pollara M. Nursing care of Arab children: Consideration of cultural factors. Journal of Pediatric Nursing 13 (1998) 1-7
90. Zahr L., Khoury M., and Saoud N. Chronic illness in Lebanese preschoolers: Impact of illness and child temperament on the family. American Journal of Orthopsychiatry 64 (1995) 396-403