The supportive care needs of parents caring for a child with a rare disease: A scoping review

Disability and Health Journal

Volumn 8, Issue 4, 2015, Pages 475-491

  Pelentsov, Lemuel J ^a   Laws, Thomas A ^a   Esterman, Adrian J ^a,b  

^a UNIVERSITY OF SOUTH AUSTRALIA   (Australia)

^b JAMES COOK UNIVERSITY   (Australia)

Author keywords

Framework; Impact; Parents; Rare diseases; Supportive care needs

Indexed keywords

CEREBRAL PALSY; CHILDHOOD CANCER; CHRONIC DISEASE; CONCEPTUAL FRAMEWORK; ECTODERMAL DYSPLASIA; EMOTIONAL STRESS; EMPIRICAL RESEARCH; EPIDERMOLYSIS BULLOSA; EPILEPSY; FANCONI ANEMIA; GUILT; HEALTH CARE NEED; HUMAN; HUNTINGTON CHOREA; INFORMATION; PARENT; PATIENT CARE; PRIORITY JOURNAL; RARE DISEASE; RESPONSIBILITY; REVIEW; SEIZURE; SILVER RUSSELL SYNDROME; SOCIAL NEEDS; CAREGIVER; CHILD; HANDICAPPED CHILD; INFORMATION SEEKING; MENTAL STRESS; NEEDS ASSESSMENT; PSYCHOLOGY; SOCIAL SUPPORT;

CAREGIVERS; CHILD; DISABLED CHILDREN; HUMANS; INFORMATION SEEKING BEHAVIOR; NEEDS ASSESSMENT; PARENTS; RARE DISEASES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 84943815861     PISSN: 19366574     EISSN: 18767583     Source Type: Journal    
DOI: 10.1016/j.dhjo.2015.03.009     Document Type: Review

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