Peer support for parents of children with chronic disabling conditions: A systematic review of quantitative and qualitative studies

Developmental Medicine and Child Neurology

Volumn 55, Issue 7, 2013, Pages 602-609

  Shilling, Val ^a   Morris, Christopher ^a   Thompson Coon, Jo ^a   Ukoumunne, Obioha ^a   Rogers, Morwenna ^a   Logan, Stuart ^a  

^a UNIVERSITY OF EXETER MEDICAL SCHOOL   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

CHILDHOOD DISEASE; DISABILITY; EXPERIENCE; FAMILY; HUMAN; LANGUAGE; LEARNING; MENTAL HEALTH; PARENT; PEER GROUP; PILOT STUDY; PRIORITY JOURNAL; QUALITATIVE RESEARCH; QUANTITATIVE STUDY; REVIEW; SOCIAL STATUS; SYSTEMATIC REVIEW; THEMATIC ANALYSIS; WELLBEING; ADULT; CHILD; DISABLED PERSON; PSYCHOLOGICAL ASPECT; SOCIAL SUPPORT;

ADULT; CHILD; DISABLED PERSONS; HUMANS; PARENTS; PEER GROUP; QUALITATIVE RESEARCH; SOCIAL SUPPORT;

EID: 84881527401     PISSN: 00121622     EISSN: 14698749     Source Type: Journal    
DOI: 10.1111/dmcn.12091     Document Type: Review

References (45)

1. Brehaut JC, Garner RE, Miller AR, et al. Changes over time in the health of caregivers of children with health problems: growth-curve findings from a 10-year Canadian population-based study. Am J Public Health 2011; 101: 2308-16.
2. Brehaut JC, Kohen DE, Garner RE, et al. Health among caregivers of children with health problems: findings from a Canadian population-based study. Am J Public Health 2009; 99: 1254-62.
3. American Academy of Pediatrics. Committee on early childhood and adoption, and dependent care. The pediatrician's role in family support and family support programs. Pediatrics 2011; 128: e1680-4.
4. HM Government. Support Groups for Parents of Disabled Children. http://www.direct.gov.uk/en/CaringForSomeone/CaringForADisabledChild/DG_10026501 (accessed 1 August 2012).
5. NHS Choices. Parent Support Groups. http://www.nhs.uk/carersdirect/guide/parent-carers/pages/parentsupportgroups.aspx (accessed 1 August 2012).
6. Department of Health. Social Action for Health and Well-Being: Building Co-operative Communities. Department of Health Strategic Vision for Volunteering. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_130503 (accessed 1 August 2012).
7. Hoey LM, Ieropoli SC, White VM, Jefford M. Systematic review of peer-support programs for people with cancer. Patient Educ Couns 2008; 70: 315-37.
8. Repper J, Carter T. A review of the literature on peer support in mental health services. J Ment Health 2011; 20: 392-411.
9. Charlesworth G, Shepstone L, Wilson E, et al. Befriending carers of people with dementia: randomised controlled trial. BMJ 2008; 336: 1295-7.
10. Jolly K, Ingram L, Khan KS, Deeks JJ, Freemantle N, MacArthur C. Systematic review of peer support for breastfeeding continuation: metaregression analysis of the effect of setting, intensity, and timing. BMJ 2012; 344: d8287.
11. Scope. Face 2 Face - the one-to-one befriending service for parents of disabled children. http://www.scope.org.uk/face2face (accessed 1 August 2012).
12. Staley K. Exploring Impact: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: INVOLVE, 2009.
13. Kreis J, Puhan MA, Schunemann HJ, Dickersin K. Consumer involvement in systematic reviews of comparative effectiveness research. Health Expect 2012; [Epub ahead of print].
14. Dixon-Woods M, Cavers D, Agarwal S, et al. Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups. BMC Med Res Methodol 2006; 6: 35.
15. Popay J, Roberts H, Sowden A, et al. Guidance on the Conduct of Narrative Synthesis in Systematic Reviews. ESRC Methods Programme, Lancaster, UK: Institute of Health Research, Lancaster University, 2006.
16. Ainbinder JG, Blanchard LW, Singer GHS, et al. A qualitative study of parent to parent support for parents of children with special needs. J Pediatr Psychol 1998; 23: 99-109.
17. Bull L. The use of support groups by parents of children with dyslexia. Early Child Dev Care 2003; 173: 341-7.
18. Kerr SM, McIntosh JB. Coping when a child has a disability: exploring the impact of parent-to-parent support. Child Care Health Dev 2000; 26: 309-21.
19. Kingsnorth S, Gall C, Beayni S, Rigby P. Parents as transition experts? Qualitative findings from a pilot parent-led peer support group. Child Care Health Dev 2011; 37: 833-40.
20. Law M, King S, Stewart D, King G. The perceived effects of parent-led support groups for parents of children with disabilities. Phys Occup Ther Pediatr 2001; 21: 29-48.
21. Lo L. Perceived benefits experienced in support groups for Chinese families of children with disabilities. Early Child Dev Care 2010; 180: 405-15.
22. Nicholas DB, Keilty K. An evaluation of dyadic peer support for caregiving parents of children with chronic lung disease requiring technology assistance. Soc Work Health Care 2007; 44: 245-59.
23. Solomon M, Pistrang N, Barker C. The benefits of mutual support groups for parents of children with disabilities. Am J Community Psychol 2001; 29: 113-32.
24. Rearick EM, Sullivan-Bolyai S, Bova C, Knafl KA. Parents of children newly diagnosed with type 1 diabetes experiences with social support and family management. Diabetes Educ 2011; 37: 508-18.
25. Sullivan-Bolyai S, Lee MM. Parent mentor perspectives on providing social support to empower parents. Diabetes Educ 2011; 37: 35-43.
26. Sullivan-Bolyai S, Bova C, Lee M, Gruppuso PA. Mentoring fathers of children newly diagnosed with T1DM. MCN Am J Matern Child Nurs 2011; 36: 224-31.
27. Sullivan-Bolyai S, Bova C, Leung K, Trudeau A, Lee M, Gruppuso P. Social Support to Empower Parents (STEP): an intervention for parents of young children newly diagnosed with type 1 diabetes. Diabetes Educ 2010; 36: 88-97.
28. Ireys HT, Chernoff R, DeVet KA, Kim Y. Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Arch Pediatr Adolesc Med 2001; 155: 771-7.
29. Ireys HT, Sills EM, Kolodner KB, Walsh BB. A social support intervention for parents of children with juvenile rheumatoid arthritis: results of a randomized trial. J Pediatr Psychol 1996; 21: 633-41.
30. Sullivan-Bolyai S, Grey M, Deatrick J, Gruppuso P, Giraitis P, Tamborlane W. Helping other mothers effectively work at raising young children with type 1 diabetes. Diabetes Educ 2004; 30: 476-84.
31. Singer GHS, Marquis J, Powers LK, et al. A multi-site evaluation of parent to parent programs for parents of children with disabilities. J Early Interv 1999; 22: 217-29.
32. Silver EJ, Ireys HT, Bauman LJ, Stein REK. Psychological outcomes of a support intervention in mothers of children with ongoing health conditions: the parent-to-parent network. J Community Psychol 1997; 25: 249-64.
33. Haslam SA, Jetten J, Postmes T, Haslam C. Social identity, health and well-being: an emerging agenda for applied psychology. Appl Psychol 2009; 58: 1-23.
34. Solomon P. Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatr Rehabil J 2004; 27: 392-401.
35. Salzer MS, Shear SL. Identifying consumer-provider benefits in evaluations of consumer-delivered services. Psychiatr Rehabil J 2002; 25: 281-8.
36. King G, Stewart D, King S, Law M. Organizational characteristics and issues affecting the longevity of self-help groups for parents of children with special needs. Qual Health Res 2000; 10: 225-41.
37. Santelli B, Turnbull A, Sergeant J, Lerner EP, Marquis JG. Parent to parent programs: parent preferences for supports. Infants Young Child 1996; 9: 53-62.
38. Santelli B, Turnbull AP, Marquis JG, Lerner EP. Parent to parent programs: a unique form of mutual support. Infants Young Child 1995; 8: 48-57.
39. Smith K, Gabard D, Dale D, Drucker A. Parental opinions about attending parent support groups. Child Health Care 1994; 23: 127-36.
40. Shapiro J. Stress, depression, and support group participation in mothers of developmentally delayed children. Fam Relat 1989; 38: 169-73.
41. Raina P, O'Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics 2005; 115: e626-36.
42. Manuel J, Naughton MJ, Balkrishnan R, Paterson Smith B, Koman LA. Stress and adaptation in mothers of children with cerebral palsy. J Pediatr Psychol 2003; 28: 197-201.
43. Preyde M, Ardal F. Effectiveness of a parent "buddy" program for mothers of very preterm infants in a neonatal intensive care unit. CMAJ 2003; 168: 969-73.
44. Roman LA, Lindsay JK, Boger RP, et al. Parent-to-parent support initiated in the neonatal intensive care unit. Res Nurs Health 1995; 18: 385-94.
45. Doull M, O'Connor A, Welch V, Tugwell P, Wells GA. Peer support strategies for improving the health and well-being of individuals with chronic diseases (Protocol). Cochrane Database Syst Rev 2008; 3: CD005352.