The personal experience of parenting a child with Juvenile Huntington's Disease: Perceptions across Europe

European Journal of Human Genetics

Volumn 21, Issue 10, 2013, Pages 1042-1048

  Eatough, Virginia ^a   Santini, Helen ^b   Eiser, Christine ^c   Goller, Marie Louise ^d   Krysa, Wioletta ^e   De Nicola, 'Annunziata' ^f   Paduanello, Matteo ^g   Petrollini, Martina ^h   Rakowicz, Maria ^e   Squitieri, Ferdinando ^f   Tibben, Aad ⁱ   Lee Weille, Katie ^j   Landwehrmeyer, Bernhard ^k   Quarrell, Oliver ^l   Smith, Jonathan A ^a  

^a UNIVERSITY OF LONDON   (United Kingdom)

^b Huntington's Disease Association   (United Kingdom)

^c UNIVERSITY OF SHEFFIELD   (United Kingdom)

^d UPPSALA UNIVERSITY HOSPITAL   (Sweden)

^e INSTITUTE OF PSYCHIATRY AND NEUROLOGY   (Poland)

^f IRCCS NEUROMED   (Italy)

^g UNIVERSITY OF PADOVA   (Italy)

^h Istituto Leonarda Vaccari   (Italy)

ⁱ LEIDEN UNIVERSITY MEDICAL CENTER   (Netherlands)

^j UNIVERSITY OF APPLIED SCIENCES LEIDEN   (Netherlands)

^k UNIVERSITY HOSPITAL ULM   (Germany)

^l SHEFFIELD CHILDREN S HOSPITAL   (United Kingdom)

more..

Author keywords

Juvenile Huntington's disease; parent; qualitative

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; ATTITUDE TO HEALTH; CAREGIVER; CHILD; CHILD PARENT RELATION; CLINICAL ARTICLE; FEMALE; HUMAN; HUNTINGTON CHOREA; ITALY; MALE; METHODOLOGY; NETHERLANDS; PERSONAL EXPERIENCE; POLAND; PRIMARY MEDICAL CARE; PRIORITY JOURNAL; QUALITATIVE ANALYSIS; SCHOOL CHILD; SEMI STRUCTURED INTERVIEW; SWEDEN; UNITED KINGDOM;

ADOLESCENT; ADULT; CHILD; EUROPE; FEMALE; HUMANS; HUNTINGTON DISEASE; MALE; PARENTS;

EID: 84884587033     PISSN: 10184813     EISSN: 14765438     Source Type: Journal    
DOI: 10.1038/ejhg.2013.15     Document Type: Article

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