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Volumn 46, Issue 1-2, 2010, Pages 2-4

Call for a national plan for rare diseases

Author keywords

Disease burden; Orphan drugs; Rare diseases

Indexed keywords

AUSTRALIA; CHILD; CHILDHOOD DISEASE; FUNDING; HEALTH CARE AVAILABILITY; HEALTH CARE PLANNING; HEALTH PROGRAM; HUMAN; MEDICAL RESEARCH; ORGANIZATION; PRIORITY JOURNAL; RARE DISEASE; SHORT SURVEY;

EID: 76249098467     PISSN: 10344810     EISSN: 14401754     Source Type: Journal    
DOI: 10.1111/j.1440-1754.2009.01608.x     Document Type: Short Survey
Times cited : (48)

References (7)
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  • 3
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    • International conferences on rare diseases: Initiatives in commitment, continued patient care and connections
    • letter)
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    • Zurynski, Y.1    Reeve, K.2    Elliott, E.J.3
  • 4
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    • Impacts of national surveillance for uncommon conditions of childhood
    • French National Plan for Rare Diseases 2005-2008. Ensuring Equity in the Access to Diagnosis, Treatment and Provision of Care. Available from. [accessed 30 August 2007
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    • (2005) J. Paediatr. Child Health , vol.43 , pp. 724-731
  • 5
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    • Why rare diseases are an important medical and social issue
    • Schieppati A, Henter JI, Daina E, Aperia A. Why rare diseases are an important medical and social issue. Lancet 2008 371: 2039 2041.
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    • Schieppati, A.1    Henter, J.I.2    Daina, E.3    Aperia, A.4
  • 6
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    • Does orphan drug legislation really answer the needs of patients?
    • Haffner ME, Torrent-Farnell J, Maher PD. Does orphan drug legislation really answer the needs of patients? Lancet 2008 371: 2041 2044.
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    • Haffner, M.E.1    Torrent-Farnell, J.2    Maher, P.D.3
  • 7
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    • Orphan diseases: Which ones do we adopt?
    • Richards T. Orphan diseases: which ones do we adopt? BMJ 2008 337: 378.
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    • Richards, T.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.