Patients' perceptions of participation in nursing care on medical wards

Scandinavian Journal of Caring Sciences

Volumn 30, Issue 2, 2016, Pages 260-270

  Tobiano, Georgia ^a   Bucknall, Tracey ^b,c   Marshall, Andrea ^a   Guinane, Jessica ^b   Chaboyer, Wendy ^a,d  

^a GRIFFITH UNIVERSITY   (Australia)

^b DEAKIN UNIVERSITY   (Australia)

^c ALFRED HEALTH   (Australia)

^d GOLD COAST UNIVERSITY HOSPITAL   (Australia)

Author keywords

Consumer participation; Nurse patient relations; Nursing care; Patient engagement; Patient involvement; Patient participation; Patient centred care; Person centred care

Indexed keywords

CLINICAL ARTICLE; CLINICAL TRIAL; CONSUMER; CONTENT ANALYSIS; CONTROLLED CLINICAL TRIAL; EMPOWERMENT; FEMALE; GENDER; HOSPITAL; HUMAN; HUMAN TISSUE; INTELLIGENCE; INTERVIEW; MALE; MONITORING; MOTIVATION; MULTICENTER STUDY; NURSE PATIENT RELATIONSHIP; NURSING CARE; PATIENT PARTICIPATION; PATIENT SAFETY; PERCEPTION; SAMPLING; ADULT; AGED; MEDICAL ERROR; MIDDLE AGED; PATIENT; PREVENTION AND CONTROL; PSYCHOLOGY;

ADULT; AGED; FEMALE; HUMANS; MALE; MEDICAL ERRORS; MIDDLE AGED; NURSING CARE; PATIENTS;

EID: 84970028841     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/scs.12237     Document Type: Article

References (89)

1. de Vries EN, Ramrattan MA, Smorenburg SM, Gouma DJ, Boermeester MA. The incidence and nature of in-hospital adverse events: a systematic review. Qual Saf Health Care 2008; 17: 216-23.
2. Brady AM, Redmond R, Curtis E, Fleming S, Keenan P, Malone AM, Sheerin F. Adverse events in health care: a literature review. J Nurs Manag 2009; 17: 155-64.
3. Schwappach DLB, Frank O, Koppenberg J, Müller B, Wasserfallen J. Patients' and healthcare workers' perceptions of a patient safety advisory. Int J Qual Health Care 2011; 23: 713-20.
4. Waterman AD, Gallagher TH, Garbutt J, Waterman BM, Fraser V, Burroughs TE. Brief report: hospitalized patients' attitudes about and participation in error prevention. J Gen Intern Med 2006; 21: 367-70.
5. Kovacs Burns K, Bellows M, Eigenseher C, Gallivan J. 'Practical' resources to support patient and family engagement in healthcare decisions: a scoping review. BMC Health Serv Res 2014; 14: 175-90.
6. Koutantji M, Davis R, Vincent C, Coulter A. The patient's role in patient safety: engaging patients, their representatives, and health professionals. Clin Risk 2005; 11: 99-104.
7. Ekman I, Swedberg K, Taft C, Lindseth A, Norberg A, Brink E, Carlsson J, Dahlin-Ivanoff S, Johansson IL, Kjellgren K, Lidén E, Öhlén J, Olsson LE, Rosén H, Rydmark M, Sunnerhagen KS. Person-centered care-ready for prime time. Eur J Cardiovasc Nurs 2011; 10: 248-51.
8. Hughes JC, Bamford C, May C. Types of centredness in health care: themes and concepts. Med Health Care Philos 2008; 11: 455-63.
9. Morgan S, Yoder LH. A concept analysis of person-centered care. J Holist Nurs 2012; 30: 6-15.
10. Kitson A, Marshall A, Bassett K, Zeitz K. What are the core elements of patient-centred care? A narrative review and synthesis of the literature from health policy, medicine and nursing. J Adv Nurs 2013; 69: 4-15.
11. Barello S, Graffigna G, Vegni E, Bosio AC. The challenges of conceptualizing patient engagement in health care: a lexicographic literature review. J Particip Med 2014; 6: e9.
12. Gallivan J, Kovacs Burns K, Bellows M, Eigenseher C. The many faces of patient engagement. J Particip Med 2012; 4: e32.
13. Sahlsten MJM, Larsson IE, Sjöström B, Plos KAE. An analysis of the concept of patient participation. Nurs Forum 2008; 43: 2-11.
14. Tobiano G, Marshall A, Bucknall T, Chaboyer W. Patient participation in nursing care on medical wards: an integrative review. Int J Nurs Stud 2015. http://dx.doi.org/10.1016/j.ijnurstu.2015.02.010.
15. Eldh AC, Luhr K, Ehnfors M. The development and initial validation of a clinical tool for patients' preferences on patient participation - the 4Ps. Health Expect 2014. doi: 10.1111/hex.12221.
16. Poochikian-Sarkissian S, Sidani S, Ferguson-Pare M, Doran D. Examining the relationship between patient-centred care and outcomes. Can J Neurosci Nurs 2010; 32: 14-21.
17. Schwappach DLB, Frank O, Buschmann U, Babst R. Effects of an educational patient safety campaign on patients' safety behaviours and adverse events. J Eval Clin Pract 2013; 19: 285-91.
18. Weingart SN, Zhu J, Chiappetta L, Stuver SO, Schneider EC, Epstein AM, David-Kasdan JA, Annas CL, Fowler FJ, Weissman JS. Hospitalized patients' participation and its impact on quality of care and patient safety. Int J Qual Health Care 2011; 23: 269-77.
19. McMurray A, Chaboyer W, Wallis M, Johnson J, Gehrke T. Patients' perspectives of bedside nursing handover. Collegian 2011; 18: 19-26.
20. Eldh AC, Ekman I, Ehnfors M. A comparison of the concept of patient participation and patients' descriptions as related to healthcare definitions. Int J Nurs Terminol Classif 2010; 21: 21-32.
21. Larsson IE, Sahlsten MJM, Sjöström B, Lindencrona CSC, Plos KAE. Patient participation in nursing care from a patient perspective: a grounded theory study. Scand J Caring Sci 2007; 21: 313-20.
22. Longtin Y, Sax H, Leape LL, Sheridan SE, Donaldson L, Pittet D. Patient participation: current knowledge and applicability to patient safety. Mayo Clin Proc 2010; 85: 53-62.
23. Arnetz JE, Almin I, Bergstrom K, Franzen Y, Nilsson H. Active patient involvement in the establishment of physical therapy goals: effects on treatment outcome and quality of care. Adv Physiother 2004; 6: 50-69.
24. Rachmani R, Levi Z, Slavachevski I, Avin M, Ravid M. Teaching patients to monitor their risk factors retards the progression of vascular complications in high-risk patients with type 2 diabetes mellitus-a randomized prospective study. Diabet Med 2002; 19: 385-92.
25. Luxford K, Safran DG, Delbanco T. Promoting patient-centred care: a qualitative study of facilitators and barriers in healthcare organizations with a reputation for improving the patient experience. Int J Qual Health Care 2011; 23: 510-5.
26. Eldh AC, Ekman I, Ehnfors M. Conditions for patient participation and non-participation in health care. Nurs Ethics 2006; 13: 503-14.
27. Larsson IE, Sahlsten MJM, Segesten K, Plos KAE. Patients' perceptions of barriers for participation in nursing care. Scand J Caring Sci 2011; 25: 575-82.
28. Davis RE, Jacklin R, Sevdalis N, Vincent CA. Patient involvement in patient safety: what factors influence patient participation and engagement? Health Expect 2007; 10: 259-67.
29. Aasen EM, Kvangarsnes M, Heggen K. Perceptions of patient participation amongst elderly patients with end-stage renal disease in a dialysis unit. Scand J Caring Sci 2012; 26: 61-9.
30. Höglund AT, Winblad U, Arnetz B, Arnetz JE. Patient participation during hospitalization for myocardial infarction: perceptions among patients and personnel. Scand J Caring Sci 2010; 24: 482-9.
31. Rathert C, Huddleston N, Pak Y. Acute care patients discuss the patient role in patient safety. Health Care Manage Rev 2011; 36: 134-44.
32. World Health Organisation. Declaration of Alma-Ata. 1978, http://www.who.int/publications/almaata_declaration_en.pdf. (last accessed 12 March 2014)
33. International Alliance of Patients' Organizations. Patient-centred healthcare indicators review. 2012, www.patientsorganizations.org/indicatorsreview. (Last accessed September 27, 2014).
34. Australian Comission on Safety and Quality in Health Care (ACSQHC). Patient-centred Care: Improving Quality and Safety Through Partnerships with Patients and Consumers. 2011, ACSQHC, Sydney, Australia
35. Peat M, Entwistle V, Hall J, Birks Y, Golder S. Scoping review and approach to appraisal of interventions intended to involve patients in patient safety. J Health Serv Res Policy 2010; 15: 17-25.
36. Miles MB, Huberman AM, Saldaña J. Qualitative Data Analysis: A Methods Sourcebook. 2014, SAGE, Thousand Oaks, CA.
37. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today 2004; 24: 105-12.
38. Lincoln YS, Guba EG. Naturalistic Inquiry. 1985, Sage, Newbury Park, CA.
39. Fiveash B, Nay R. Being active supports client control over health care. Contemp Nurse 2004; 17: 192-204.
40. Schoot T, Proot I, ter Meulen R, Witte L. Recognition of client values as a basis for tailored care: the view of Dutch expert patients and family caregivers. Scand J Caring Sci 2005; 19: 169-76.
41. Nygårdh A, Malm D, Wikby K, Ahlström G. The experience of empowerment in the patient-staff encounter: the patient's perspective. J Clin Nurs 2012; 21: 897-904.
42. Rise MB, Solbjør M, Lara MC, Westerlund H, Grimstad H, Steinsbekk A. Same description, different values. How service users and providers define patient and public involvement in health care. Health Expect 2013; 16: 266-76.
43. Sainio C, Lauri S, Eriksson E. Cancer patients' views and experiences of participation in care and decision making. Nurs Ethics 2001; 8: 97-113.
44. Jeffs L, Beswick S, Acott A, Simpson E, Cardoso R, Campbell H, Irwin T. Patients' views on bedside nursing handover: creating a space to connect. J Nurs Care Qual 2014; 29: 149-54.
45. Sahlström M, Partanen P, Turunen H. Safety as experienced by patients themselves: a Finnish survey of the most recent period of care. Res Nurs Health 2014; 37: 194-203.
46. Davis RE, Koutantji M, Vincent CA. How willing are patients to question healthcare staff on issues related to the quality and safety of their healthcare? An exploratory study. Qual Saf Health Care 2008; 17: 90-6.
47. Eldh AC, Ehnfors M, Ekman I. Considering patient non-participation in health care. Health Expect 2008; 11: 263-71.
48. Tobiano G, Chaboyer W, McMurray A. Family members' perceptions of the nursing bedside handover. J Clin Nurs 2013; 22: 192-200.
49. Chaboyer W, Blake S. Information sharing, knowledge transfer and patient safety. Nurs Crit Care 2008; 13: 121-3.
50. Eldh AC, Ehnfors M, Ekman I. The phenomena of participation and non-participation in health care-experiences of patients attending a nurse-led clinic for chronic heart failure. Eur J Cardiovasc Nurs 2004; 3: 239-46.
51. St John W, Keleher H. Community Nursing Practice: Theory, Skills and Issues. 2007, Allen & Unwin, Crows Nest, NSW.
52. Larsson IE, Sahlsten MJM, Segesten K, Plos KAE. Patients' perceptions of nurses' behaviour that influence patient participation in nursing care: a critical incident study. Nurs Res Pract 2011; 2011: 1-8.
53. Eldh A, Ehnfors M, Ekman I. The meaning of patient participation for patients and nurses at a nurse-led clinic for chronic heart failure. Eur J Cardiovasc Nurs 2006; 5: 45.
54. Tariq Saleem JA, Carlström E, Ekman I, Jarneborn A, Olsson L. Experiences of person-centred care - patients' perceptions: qualitative study. BMC Nurs 2014; 13: e1-e9.
55. Bolster D, Manias E. Person-centred interactions between nurses and patients during medication activities in an acute hospital setting: qualitative observation and interview study. Int J Nurs Stud 2010; 47: 154-65.
56. Schwappach D. "Against the silence": development and first results of a patient survey to assess experiences of safety-related events in hospital. BMC Health Serv Res 2008; 8: 59-67.
57. Schwappach D, Wernli M. Am I (un)safe here? Chemotherapy patients' perspectives towards engaging in their safety. Qual Saf Health Care 2010; 19: e9.
58. Entwistle VA, McCaughan D, Watt IS, Birks Y, Hall J, Peat M, Williams B, Wright J. Speaking up about safety concerns: multi-setting qualitative study of patients' views and experiences. Qual Saf Health Care 2010; 19: 1-7.
59. Schwappach D, Wernli M. Predictors of chemotherapy patients' intentions to engage in medical error prevention. Oncologist 2010; 15: 903-12.
60. Penney W, Wellard SJ. Hearing what older consumers say about participation in their care. Int J Nurs Pract 2007; 13: 61-8.
61. Soleimani M, Rafii F, Seyedfatemi N. Participation of patients with chronic illness in nursing care: an Iranian perspective. Nurs Health Sci 2010; 12: 345-51.
62. Huby G, Stewart J, Tierney A, Rogers W. Planning older people's discharge from acute hospital care: linking risk management and patient participation in decision-making. Health Risk Soc 2004; 6: 115-32.
63. Joseph-Williams N, Elwyn G, Edwards A. Knowledge is not power for patients: a systematic review and thematic synthesis of patient-reported barriers and facilitators to shared decision making. Patient Educ Couns 2014; 94: 291-309.
64. Henderson S. Power imbalance between nurses and patients: a potential inhibitor of partnership in care. J Clin Nurs 2003; 12: 501-8.
65. Shattell M. Nurse bait: strategies hospitalized patients use to entice nurses within the context of the interpersonal relationship. Issues Ment Health Nurs 2005; 26: 205-23.
66. Hallström I, Elander G. Needs During Hospitalization: definitions and descriptions made by patients. Nurs Ethics 2001; 8: 409-18.
67. Barrere CC. Discourse analysis of nurse-patient communication in a hospital setting: implications for staff development. J Nurses Staff Dev 2007; 23: 114-22.
68. Latimer S, Chaboyer W, Gillespie B. Patient participation in pressure injury prevention: giving patient's a voice. Scand J Caring Sci 2013; 28: 648-56.
69. Wellard S, Lillibridge J, Beanland C, Lewis M. Consumer participation in acute care settings: an Australian experience. Int J Nurs Pract 2003; 9: 255-60.
70. Iedema R, Allen S, Britton K, Gallagher TH. What do patients and relatives know about problems and failures in care? BMJ Qual Saf 2011; 21: 198-205.
71. Casey D. Findings from non-participant observational data concerning health promoting nursing practice in the acute hospital setting focusing on generalist nurses. J Clin Nurs 2007; 16: 580-92.
72. Florin J, Ehrenberg A, Ehnfors M. Patient participation in clinical decision-making in nursing: a comparative study of nurses' and patients' perceptions. J Clin Nurs 2006; 15: 1498-508.
73. Foss C. Elders and patient participation revisited - a discourse analytic approach to older persons' reflections on patient participation. J Clin Nurs 2011; 20: 2014-22.
74. Scott J, Dawson P, Jones D. Do older patients' perceptions of safety highlight barriers that could make their care safer during organisational care transfers? BMJ Qual Saf 2011; 21: 112-7.
75. Schwappach DLB, Frank O, Hochreutener M. 'New perspectives on well-known issues': patients' experiences and perceptions of safety in Swiss hospitals. Z Evid Fortbild Qual Gesundhwes 2011; 105: 542-8. [In English].
76. Davis RE, Anderson O, Vincent C, Miles K, Sevdalis N. Predictors of hospitalized patients' intentions to prevent healthcare harm: a cross sectional survey. Int J Nulrs Stud 2012; 49: 407-15.
77. Strandberg G, Norberg A, Jansson L. An exemplar of a positive perspective of being dependent on care. Sch Inq Nurs Pract 2000; 14: 327-46.
78. Strandberg G, Norberg A, Jansson L. Being overwhelmed by the feeling of having a home and family. One aspect of the meaning of being dependent on care: a study of one patient and two of his nurses. J Adv Nurs 2001; 35: 717-27.
79. Tutton EMM. Patient participation on a ward for frail older people. J Adv Nurs 2005; 50: 143-52.
80. Strandberg G, Norberg A, Jansson L. Meaning of dependency on care as narrated by 10 patients. Res Theory Nurs Pract 2003; 17: 65-84.
81. Leplege A, Gzil F, Cammelli M, Lefeve C, Pachoud B, Ville I. Person-centredness: conceptual and historical perspectives. Disabil Rehabil 2007; 29: 1555-65.
82. Ajzen I. The theory of planned behavior. Organ Behav Hum Decis Process 1991; 50: 179-211.
83. Ajzen I. Perceived behavioral control, self-efficacy, locus of control, and the theory of planned behavior. J Appl Soc Psychol 2002; 32: 665-83.
84. Vaismoradi M, Jordan S, Kangasniemi M. Patient participation in patient safety and nursing input - a systematic review. J Clin Nurs 2015; 24: 627-39.
85. Shippee ND, Shah ND, May CR, Mair FS, Montori VM. Cumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice. J Clin Epidemiol 2012; 65: 1041-51.
86. Mayer DK. How do we encourage patient engagement? Clin J Oncol Nurs 2014; 18: 487-8.
87. Pelletier LR, Stichler JF. Action brief: patient engagement and activation: a health reform imperative and improvement opportunity for nursing. Nurs Outlook 2013; 61: 51-4.
88. Aujoulat I, d'Hoore W, Deccache A. Patient empowerment in theory and practice: polysemy or cacophony? Patient Educ Couns 2007; 66: 13-20.
89. McCormack B, McCance TV. Development of a framework for person-centred nursing. J Adv Nurs 2006; 56: 472-9.