Hearing what older consumers say about participation in their care

International Journal of Nursing Practice

Volumn 13, Issue 1, 2007, Pages 61-68

  Penney, Wendy ^a   Wellard, Sally J ^b  

^a DEAKIN UNIVERSITY   (Australia)

^b UNIVERSITY OF BALLARAT   (Australia)

Author keywords

Care of older people; Consumer participation; Critical ethnography; Self medication

Indexed keywords

AGED; ARTICLE; AUSTRALIA; CULTURAL ANTHROPOLOGY; DRUG SELF ADMINISTRATION; FEMALE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; INTERVIEW; MALE; PATIENT PARTICIPATION;

AGED; ANTHROPOLOGY, CULTURAL; AUSTRALIA; COMMUNICATION; FEMALE; HUMANS; INTERVIEWS; MALE; PATIENT PARTICIPATION; PROFESSIONAL-PATIENT RELATIONS; SELF ADMINISTRATION;

EID: 34047106878     PISSN: 13227114     EISSN: 1440172X     Source Type: Journal    
DOI: 10.1111/j.1440-172X.2006.00608.x     Document Type: Article

References (53)

1. The Australian Council of Healthcare Standards (ACHS). The Australian Council of Health Care Standards EQilP Standards. NSW: ACHS, June 2002.
2. Maxwell J, Rosell J, Forest P. Giving citizens a say in say in health care policy. Journal of Clinical Nursing 2003; 326: 1031-1033.
3. Salter B. Patient and doctors: Reformulating the UK health policy community. Social Science and Medicine 2003; 57: 927-936.
4. Little M, Jordens C, Paul K et al. Discourse in different voice: Reconciling N = 1 and N = many. Social Science and Medicine 2002; 55: 1079-1087.
5. Maslin-Prothero S. Developing user involvement in research. Journal of Clinical Nursing 2003; 12: 412-421.
6. Allen D. I'll tell you what suits me best if you don't mind: Lay participation in health care. Nursing Inquiry 2000; 7: 182-190.
7. Brearly S. Patient Participation: The Literature. London: Scutari Press, 1990.
8. Enehaug I. Patient participation requires a change of attitude in health care. International Journal of Care Quality Assurance 2000; 13: 178-181.
9. Irvine R. Fabricating health consumers in health policy. In: Henderson S, Peterson A (eds). Consuming Health. London: Routledge, 2002; 31-47.
10. Entwistle V. Participation: If we want to make progress we must speak clearly. Health Expectations 1999; 2: 1-2.
11. Henderson S. The phenomenon of patient participation in their nursing care--a grounded theory study (PhD Thesis). Perth, WA, Australia: Curtin University of Technology, 1998.
12. Lammers J, Happell B. Consumer participation in mental health services: Looking for a consumer perspective. Journal of Psychiatric and Mental Health Nursing 2003; 10: 385-392.
13. Wellard S, Lillibridge J, Beanland C, Lewis M. Consumer participation in acute care settings: An Australian experience. International Journal of Nursing Practice 2003; 9: 255-260.
14. Johnson A. An outline of consumer participation in health. Collegian 2001; 8: 25-27.
15. O'Connor A. Consumer participation decision support in the new millennium: Where should our research take us? Canadian Journal of Nursing Research 1997; 29: 7-12.
16. Enwistle V, Sheldon A, Watt I. Supporting consumer involvement in decision making: What constitutes quality in consumer health information? International Journal of Quality in Health Care 1996; 8: 425-437.
17. Van Der Weyden M. Political rhetoric and reality. Medical Journal of Australia 2003; 179: 329.
18. Duckett S, Jackson T. Do the elderly cost more? Case mix funding in acute settings. In: Nay R, Garratt S (eds). Nursing Older People Issues and Innovations. Sydney: Maclennan and Petty, 1999; 3-17.
19. Henderson S. Power imbalance between nurses and patients: A potential inhibitor of partnerships in care. Journal of Clinical Nursing 2003; 12: 501-508.
20. Commonwealth Department of Education, Science and Training. Our Duty of Care. Canberra: Commonwealth of Australia, 2002.
21. Van Der Weyden M. Australian healthcare reform: In need of political courage and champions. Medical Journal of Australia 2003; 179: 280-281.
22. Illiffe J. Our health services need reform. Australian Nurses Journal of 2003; 11: 1.
23. Ashworth P, Longmate A, Morrison P. Patient participation: Its meaning and significance in the context of caring. Journal of Advanced Nursing 1992; 17: 1430-1439.
24. Henderson S. Influences on patient participation and decision making in care. Professional Nurse 2002; 17: 521-525.
25. Jewell S. Elderly patients' participation in discharge decision making. British Journal of Nursing 1996; 5: 1065-1071.
26. Kirk S, Glendinning C. Trends in community care and patient participation: Implications for roles of informal carers and community nurses in the United Kingdom. Journal of Advanced Nursing 1998; 28: 370-381.
27. Cahill J. Patient participation a concept analysis. Journal of Advanced Nursing 1996; 24: 561-571.
28. Jewell S. Patient participation: What does it mean to nurses? Journal of Advanced Nursing 1994; 19: 433-438.
29. Sainio C, Sirkka L, Eriksson E. Cancer patients views and experiences of participating in care and decision making. Nursing Ethics 2001; 8: 97-113.
30. Paterson B. Myth of empowerment in chronic illness. Journal of Advanced Nursing 2001; 34: 574.
31. Suhonen R, Valimaki M, Katajisto J. Individualised care in a Finnish health care organisation. Journal of Clinical Nursing 2000; 9: 218-227.
32. Cahill J. Patient participation: A review of the literature. Journal of Clinical Nursing 1998; 7: 119-129.
33. Henderson S. Knowing the patient and the impact on patient participation: A grounded theory study. International Journal of Nursing Practice 1997; 3: 111-118.
34. Carspeken P. Critical Ethnography in Education Research: A Theoretical and Practical Guide. New York: Routledge, 1996.
35. Tham G. Ethnography. In: Schnieder Z, Elliott D, LoBiondo-Wood G, Haber J (eds). Nursing Research Methods Critical Appraisal and Utilisation, 2nd edn. Sydney, Australia: Elsevier Science, 2003; 179-192.
36. Emerson R, Fretz R, Shaw L. Participant observation and field notes. In: Atkinson P, Coffey A, Delamont S, Lofland J, Lofland L (eds). Handbook of Ethnography. London: Sage, 2001; 352-368.
37. Geertz C. Thick description: Toward an interpretive theory of culture. In: Geertz C (ed.). The Interpretation of Culture. New York: Basic Books, 1973; 3-30.
38. Brownlea A. Participation: Myths realities and prognosis. Social Science Medicine 1987; 25: 605-614.
39. Curley M. Mutuality--An expression of nursing. Journal of Paediatric Nursing 1997; 12: 208-213.
40. Laitmen P, Isola A. Promoting participation of informal caregivers in the hospital care of the elderly patient: Informal caregivers perceptions. Journal of Advanced Nursing 1996; 23: 942-947.
41. Williams S. Caring in patient focused care: The relationship of patient perceptions of holistic nurse caring to their levels of anxiety. Holistic Nursing Practice 1997; 11: 61-68.
42. Paterson B. Practioner's actions inhibited patient participation in self care decision making. Evidence Based Nursing 2002; 5: 62.
43. Irurita V. From Person to Patient: Nursing Care from the Patients Perspective. Perth, WA, Australia: Department of Nursing Research Sir Charles Gardner Hospital, May 1993.
44. Keatings D, Bellchambers H, Bujak E, Cholowski K, Conway J, Neal P. Project to Support Nurses to Involve Consumers in Their Care. Melbourne: Australian Nurses Federation, 2001.
45. Waters K, Easton N. Individualised care: Is it possible to plan and carry out?. Journal of Advanced Nursing 1999; 29: 79-88.
46. Manias E, Beanland C, Riley R, Baker L. Selfadministration of medication in hospital: patients' perspectives. Journal of Advanced Nursing. 2004; 46(2): 194-203.
47. Deeks PA, Byatt K. Are patients who self-administer their medicines in hospital more satisfied with their care? Journal of Advanced Nursing 2000; 31(2): 395-400.
48. Allen D. I'll tell you what suits me best if you don't mind: lay participation in health care. Nursing Inquiry 2000; 7: 182-190.
49. Brown R, Butow P, Henman M, Dunn S, Boyle F, Tattersall M. Responding to the active and passive patient: flexibility is the key. Health Expectations 2002; 5: 236-245.
50. Sahlberg E, Ternestedt B, Johansson J. Patient participation in decision making at the end of life as seen by a close relative. Nursing Ethics 2000; 7(4): 296-313.
51. Towle A, Godolphin W, Greenhalgh T, Gambrill J. Framework for teaching and learning informed shared decision making. British Medical Journal 1999; 319(7212): 766.
52. Ahmann E. Supporting families' savvy use of the Internet for health research. Pediatric Nursing 2000; 26(4): 419-423.
53. Croghan E. Assessing motivation and readiness to alter lifestyle behaviour. Nursing Standard 2005; 19(31): 50-52.