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Volumn 38, Issue 1, 2012, Pages 6-20

Parents' experiences of caring for a child with a cleft lip and/or palate: A review of the literature

Author keywords

Cleft lip; Cleft palate; Parents' experiences; Parents' perceptions

Indexed keywords

ADAPTIVE BEHAVIOR; ATTITUDE TO HEALTH; CHILD; CHILD HEALTH CARE; CHILD PARENT RELATION; CLEFT LIP; CLEFT PALATE; EMOTION; HEALTH CARE DELIVERY; HUMAN; NURSING; ORGANIZATION AND MANAGEMENT; PARENT; PSYCHOLOGICAL ASPECT; REVIEW;

EID: 84155164976     PISSN: 03051862     EISSN: 13652214     Source Type: Journal    
DOI: 10.1111/j.1365-2214.2011.01244.x     Document Type: Review
Times cited : (135)

References (139)
  • 1
  • 2
    • 0019638370 scopus 로고
    • The social construction of illness experience: families with a chronically ill child
    • Anderson, J. (1981) The social construction of illness experience: families with a chronically ill child. Journal of Advanced Nursing, 6, 427-434.
    • (1981) Journal of Advanced Nursing , vol.6 , pp. 427-434
    • Anderson, J.1
  • 3
    • 0031929241 scopus 로고    scopus 로고
    • Cleft lip with or without cleft palate: effect of family history on reproductive planning, surgical timing and parental stress
    • Journal
    • Andrews-Casal, M., Johnston, D., Fletcher, J., Mulliken, J. B., Stal, S. & Hecht, J. T. (1998) Cleft lip with or without cleft palate: effect of family history on reproductive planning, surgical timing and parental stress. Cleft Palate Craniofacial Journal, 35, 52-57.
    • (1998) Cleft Palate Craniofacial , vol.35 , pp. 52-57
    • Andrews-Casal, M.1    Johnston, D.2    Fletcher, J.3    Mulliken, J.B.4    Stal, S.5    Hecht, J.T.6
  • 4
    • 84155166447 scopus 로고    scopus 로고
    • Not quite perfect! Diagnosis of a minor congenital abnormality during examination of the newborn
    • Bainbridge, L. (2009) Not quite perfect! Diagnosis of a minor congenital abnormality during examination of the newborn. Infant, 5, 28-31.
    • (2009) Infant , vol.5 , pp. 28-31
    • Bainbridge, L.1
  • 5
    • 65949085143 scopus 로고    scopus 로고
    • Coping strategies and social support in the family impact of cleft lip and palate and parents' adjustment and psychological distress
    • Baker, S. R., Owens, J., Stern, M. & Willmot, D. (2009) Coping strategies and social support in the family impact of cleft lip and palate and parents' adjustment and psychological distress. The Cleft Palate-Craniofacial Journal, 46, 229-236.
    • (2009) The Cleft Palate-Craniofacial Journal , vol.46 , pp. 229-236
    • Baker, S.R.1    Owens, J.2    Stern, M.3    Willmot, D.4
  • 6
    • 0024710024 scopus 로고
    • Effects of craniofacial deformity in infancy on the quality of mother-infant interactions
    • Barden, R. C., Ford, M. E., Jensen, A. G., Rogers-Salyer, M. & Salyer, K. E. (1989) Effects of craniofacial deformity in infancy on the quality of mother-infant interactions. Child Development, 60, 819-824.
    • (1989) Child Development , vol.60 , pp. 819-824
    • Barden, R.C.1    Ford, M.E.2    Jensen, A.G.3    Rogers-Salyer, M.4    Salyer, K.E.5
  • 8
    • 46249119469 scopus 로고    scopus 로고
    • A different type of appointment: the experiences of parents who have children with intellectual disabilities
    • Barr, O. & McConkey, R. (2007) A different type of appointment: the experiences of parents who have children with intellectual disabilities. Journal of Research in Nursing, 12, 637-652.
    • (2007) Journal of Research in Nursing , vol.12 , pp. 637-652
    • Barr, O.1    McConkey, R.2
  • 9
    • 34548261305 scopus 로고    scopus 로고
    • The costs of key worker support for disabled children and their families
    • Beecham, J., Sloper, P., Greco, V. & Webb, R. (2007) The costs of key worker support for disabled children and their families. Child: Care, Health and Development, 33, 611-618.
    • (2007) Child: Care, Health and Development , vol.33 , pp. 611-618
    • Beecham, J.1    Sloper, P.2    Greco, V.3    Webb, R.4
  • 11
    • 0025998131 scopus 로고
    • Social support networks among families of children with craniofacial anomalies
    • Benson, B. A., Gross, A. M., Messer, S. C., Kellum, G. & Passmore, L. A. (1991) Social support networks among families of children with craniofacial anomalies. Health Psychology, 10, 252-258.
    • (1991) Health Psychology , vol.10 , pp. 252-258
    • Benson, B.A.1    Gross, A.M.2    Messer, S.C.3    Kellum, G.4    Passmore, L.A.5
  • 12
    • 0028009641 scopus 로고
    • Resources and strategies: how parents cope with the care of a disabled child
    • Beresford, B. A. (1994) Resources and strategies: how parents cope with the care of a disabled child. Journal of Child Psychology and Psychiatry, 35, 171-209.
    • (1994) Journal of Child Psychology and Psychiatry , vol.35 , pp. 171-209
    • Beresford, B.A.1
  • 13
    • 67650173315 scopus 로고    scopus 로고
    • Coping with a cleft: psychosocial adjustment of adolescents with a cleft lip and palate and their parents
    • Berger, Z. E. & Dalton, L. J. (2009) Coping with a cleft: psychosocial adjustment of adolescents with a cleft lip and palate and their parents. The Cleft Palate-Craniofacial Journal, 46, 435-443.
    • (2009) The Cleft Palate-Craniofacial Journal , vol.46 , pp. 435-443
    • Berger, Z.E.1    Dalton, L.J.2
  • 14
    • 69949183480 scopus 로고    scopus 로고
    • When my child was born: cross-cultural reactions to the birth of a child with cleft lip and/or palate
    • Black, J. D., Girotto, J. A., Chapman, K. & Oppenheimer, A. J. (2009) When my child was born: cross-cultural reactions to the birth of a child with cleft lip and/or palate. The Cleft Palate-Craniofacial Journal, 46, 545-548.
    • (2009) The Cleft Palate-Craniofacial Journal , vol.46 , pp. 545-548
    • Black, J.D.1    Girotto, J.A.2    Chapman, K.3    Oppenheimer, A.J.4
  • 16
    • 0028470442 scopus 로고
    • Early parental adjustment to visible congenital disfigurement
    • Bradbury, E. T. & Hewison, J. (1994) Early parental adjustment to visible congenital disfigurement. Child: Care, Health and Development, 20, 251-266.
    • (1994) Child: Care, Health and Development , vol.20 , pp. 251-266
    • Bradbury, E.T.1    Hewison, J.2
  • 17
    • 0033168308 scopus 로고    scopus 로고
    • Process measures and patient/parent evaluation of surgical management of spinal deformities in patients with progressive flaccid neuromuscular scoliosis (Duchenne's muscular dystrophy and spinal muscular atrophy)
    • Bridwell, K. H., Baldus, C., Iffrig, T., Lenke, L. & Blanke, K. (1999) Process measures and patient/parent evaluation of surgical management of spinal deformities in patients with progressive flaccid neuromuscular scoliosis (Duchenne's muscular dystrophy and spinal muscular atrophy). Spine, 24, 1300-1309.
    • (1999) Spine , vol.24 , pp. 1300-1309
    • Bridwell, K.H.1    Baldus, C.2    Iffrig, T.3    Lenke, L.4    Blanke, K.5
  • 18
    • 11244275696 scopus 로고    scopus 로고
    • What matters to the parents? A qualitative study of parents' experiences with life-death decisions concerning their premature infants
    • Brinchmann, B. S., Forde, R. & Nortvedt, P. (2002) What matters to the parents? A qualitative study of parents' experiences with life-death decisions concerning their premature infants. Nursing Ethics, 9, 388-404.
    • (2002) Nursing Ethics , vol.9 , pp. 388-404
    • Brinchmann, B.S.1    Forde, R.2    Nortvedt, P.3
  • 19
    • 0034999914 scopus 로고    scopus 로고
    • Using psychosocial assessment and therapeutic strategies to enhance well-being
    • Broder, H. (2001) Using psychosocial assessment and therapeutic strategies to enhance well-being. The Cleft Palate-Craniofacial Journal, 38, 248-254.
    • (2001) The Cleft Palate-Craniofacial Journal , vol.38 , pp. 248-254
    • Broder, H.1
  • 20
    • 0022253748 scopus 로고
    • Effectiveness of genetic counseling for families with craniofacial anomalies
    • Broder, H. & Trier, W. C. (1985) Effectiveness of genetic counseling for families with craniofacial anomalies. The Cleft Palate Journal, 22, 157-162.
    • (1985) The Cleft Palate Journal , vol.22 , pp. 157-162
    • Broder, H.1    Trier, W.C.2
  • 21
    • 0026488484 scopus 로고
    • Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech
    • Broder, H. L., Smith, F. B. & Strauss, R. P. (1992) Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech. The Cleft Palate-Craniofacial Journal, 29, 262-267.
    • (1992) The Cleft Palate-Craniofacial Journal , vol.29 , pp. 262-267
    • Broder, H.L.1    Smith, F.B.2    Strauss, R.P.3
  • 23
    • 0043133545 scopus 로고    scopus 로고
    • Parental evaluation of informing interviews for cleft lip and/or palate
    • Byrnes, A. L., Berk, N. W., Cooper, M. E. & Marazita, M. L. (2003) Parental evaluation of informing interviews for cleft lip and/or palate. Pediatrics, 112, 308-313.
    • (2003) Pediatrics , vol.112 , pp. 308-313
    • Byrnes, A.L.1    Berk, N.W.2    Cooper, M.E.3    Marazita, M.L.4
  • 24
    • 70350158652 scopus 로고    scopus 로고
    • Parents' views of 4D ultrasound scans following diagnosis of cleft condition
    • Cadogan, J., Marsh, C. & Winter, R. (2009) Parents' views of 4D ultrasound scans following diagnosis of cleft condition. British Journal of Midwifery, 17, 374-380.
    • (2009) British Journal of Midwifery , vol.17 , pp. 374-380
    • Cadogan, J.1    Marsh, C.2    Winter, R.3
  • 25
    • 0030077597 scopus 로고    scopus 로고
    • The use of qualitative methods in the study of parents' experiences of care on a children's surgical ward
    • Callery, P. & Luker, K. (1996) The use of qualitative methods in the study of parents' experiences of care on a children's surgical ward. Journal of Advanced Nursing, 23, 338-345.
    • (1996) Journal of Advanced Nursing , vol.23 , pp. 338-345
    • Callery, P.1    Luker, K.2
  • 26
    • 0028873704 scopus 로고
    • The role of maternal factors in the adaptation of children with craniofacial disfigurement
    • Campis, L., DeMaso, D. R. & Twente, A. W. (1995) The role of maternal factors in the adaptation of children with craniofacial disfigurement. Cleft Palate Craniofacial Journal, 32, 55-61.
    • (1995) Cleft Palate Craniofacial Journal , vol.32 , pp. 55-61
    • Campis, L.1    DeMaso, D.R.2    Twente, A.W.3
  • 28
    • 33644923866 scopus 로고    scopus 로고
    • Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home
    • Carnevale, F. A., Alexander, E., Davis, M., Rennick, J. & Troini, R. (2006) Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Pediatrics, 117, 48-60.
    • (2006) Pediatrics , vol.117 , pp. 48-60
    • Carnevale, F.A.1    Alexander, E.2    Davis, M.3    Rennick, J.4    Troini, R.5
  • 30
    • 0034385958 scopus 로고    scopus 로고
    • Refocusing on the parent: what are the social issues of concern for the parents of disabled children?
    • Case, S. (2000) Refocusing on the parent: what are the social issues of concern for the parents of disabled children? Disability & Society, 15, 271-292.
    • (2000) Disability & Society , vol.15 , pp. 271-292
    • Case, S.1
  • 32
    • 84155166443 scopus 로고    scopus 로고
    • Cleft Lip and Palate Association. Review of current treatment for young children with cleft lip and palate. Available at: (accessed from September 2006).
    • Cleft Lip and Palate Association (1996) Review of current treatment for young children with cleft lip and palate. Available at: (accessed from September 2006).
    • (1996)
  • 33
    • 84155166444 scopus 로고    scopus 로고
    • Cleft Lip and Palate Association. Regionalisation of cleft lip and palate services: has it worked? A report on users' perspectives of cleft care. Available at: (accessed from June 2008).
    • Cleft Lip and Palate Association (2007) Regionalisation of cleft lip and palate services: has it worked? A report on users' perspectives of cleft care. Available at: (accessed from June 2008).
    • (2007)
  • 34
    • 0003693250 scopus 로고    scopus 로고
    • Clinical Standards Advisory Group. The Stationery Office, London, UK
    • Clinical Standards Advisory Group (1998) Cleft Lip and/or Palate. Report of a CSAG Committee. The Stationery Office, London, UK.
    • (1998) Cleft Lip and/or Palate. Report of a CSAG Committee
  • 35
    • 67650378336 scopus 로고    scopus 로고
    • A feminist critique of attachment theory and evolutionary psychology
    • (eds M. B. Ballou & L. S. Brown). Guildford Press, New York, NY, USA
    • Contratto, S. (2002) A feminist critique of attachment theory and evolutionary psychology. In: Rethinking Mental Health and Disorder: Feminist Perspectives (eds M. B. Ballou & L. S. Brown), pp. 29-47. Guildford Press, New York, NY, USA.
    • (2002) Rethinking Mental Health and Disorder: Feminist Perspectives , pp. 29-47
    • Contratto, S.1
  • 36
    • 0031085486 scopus 로고    scopus 로고
    • Chronic illness: the importance of support for families caring for a child with cystic fibrosis
    • Coyne, I. (1997) Chronic illness: the importance of support for families caring for a child with cystic fibrosis. Journal of Clinical Nursing, 6, 121-129.
    • (1997) Journal of Clinical Nursing , vol.6 , pp. 121-129
    • Coyne, I.1
  • 37
    • 34250819311 scopus 로고    scopus 로고
    • Challenging the philosophy of partnership with parents: a grounded theory study
    • Coyne, I. & Cowley, S. (2007) Challenging the philosophy of partnership with parents: a grounded theory study. International Journal of Nursing Studies, 44, 893-904.
    • (2007) International Journal of Nursing Studies , vol.44 , pp. 893-904
    • Coyne, I.1    Cowley, S.2
  • 38
    • 84155169819 scopus 로고    scopus 로고
    • Critical Appraisal Skills Programme (CASP). Solutions for Public Health, NHS, UK. Available at: (accessed from March 2011).
    • Critical Appraisal Skills Programme (CASP). (2007) Solutions for Public Health, NHS, UK. Available at: (accessed from March 2011).
    • (2007)
  • 39
    • 0034094568 scopus 로고    scopus 로고
    • The impact of antenatal diagnosis on the effectiveness and timing of counselling for cleft lip and palate
    • Davalbhakta, A. & Hall, P. N. (2000) The impact of antenatal diagnosis on the effectiveness and timing of counselling for cleft lip and palate. British Journal of Plastic Surgery, 53, 298-301.
    • (2000) British Journal of Plastic Surgery , vol.53 , pp. 298-301
    • Davalbhakta, A.1    Hall, P.N.2
  • 40
    • 0037243129 scopus 로고    scopus 로고
    • Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child
    • Davies, R., Davis, B. & Sibert, J. (2003) Parents' stories of sensitive and insensitive care by paediatricians in the time leading up to and including diagnostic disclosure of a life-limiting condition in their child. Child: Care, Health and Development, 29, 77-82.
    • (2003) Child: Care, Health and Development , vol.29 , pp. 77-82
    • Davies, R.1    Davis, B.2    Sibert, J.3
  • 41
    • 0016839224 scopus 로고
    • The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model
    • Drotar, D., Baskiewicz, A., Irving, B., Kennell, J. & Klaus, M. (1975) The adaptation of parents to the birth of an infant with a congenital malformation: a hypothetical model. Pediatrics, 56, 710-717.
    • (1975) Pediatrics , vol.56 , pp. 710-717
    • Drotar, D.1    Baskiewicz, A.2    Irving, B.3    Kennell, J.4    Klaus, M.5
  • 43
    • 0035012227 scopus 로고    scopus 로고
    • Unique outcomes and positive contributions associated with facial difference: expanding research and practice
    • Eisermann, W. (2001) Unique outcomes and positive contributions associated with facial difference: expanding research and practice. The Cleft Palate-Craniofacial Journal, 38, 236-244.
    • (2001) The Cleft Palate-Craniofacial Journal , vol.38 , pp. 236-244
    • Eisermann, W.1
  • 44
    • 84986928081 scopus 로고
    • Information needs and decision making preferences of children with cancer
    • Ellis, R. & Leventhal, B. (1993) Information needs and decision making preferences of children with cancer. Psycho-Oncology, 2, 277-284.
    • (1993) Psycho-Oncology , vol.2 , pp. 277-284
    • Ellis, R.1    Leventhal, B.2
  • 45
    • 0030886958 scopus 로고    scopus 로고
    • Face-to-face interaction between infants with orofacial clefts and their mothers
    • Endriga, M. C. & Speltz, M. L. (1997) Face-to-face interaction between infants with orofacial clefts and their mothers. Journal of Pediatric Psychology, 22, 439-453.
    • (1997) Journal of Pediatric Psychology , vol.22 , pp. 439-453
    • Endriga, M.C.1    Speltz, M.L.2
  • 46
    • 2342635293 scopus 로고    scopus 로고
    • Health care delivery: perspectives of young people with chronic illness and their parents
    • Farrant, B. & Watson, P. (2004) Health care delivery: perspectives of young people with chronic illness and their parents. Journal of Paediatrics and Child Health, 40, 175-179.
    • (2004) Journal of Paediatrics and Child Health , vol.40 , pp. 175-179
    • Farrant, B.1    Watson, P.2
  • 48
    • 48549111857 scopus 로고
    • Early interactions between infants with cranio-facial anomalies and their mothers
    • Field, T. M. & Vega-Lahr, N. (1984) Early interactions between infants with cranio-facial anomalies and their mothers. Infant Behavior & Development, 7, 527-530.
    • (1984) Infant Behavior & Development , vol.7 , pp. 527-530
    • Field, T.M.1    Vega-Lahr, N.2
  • 50
    • 34247149788 scopus 로고    scopus 로고
    • Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs when the newborn child is severely disabled
    • Graungaard, A. H. & Skov, L. (2006) Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs when the newborn child is severely disabled. Child: Care, Health and Development, 33, 296-307.
    • (2006) Child: Care, Health and Development , vol.33 , pp. 296-307
    • Graungaard, A.H.1    Skov, L.2
  • 51
    • 84155166445 scopus 로고    scopus 로고
    • Working paper. Assessing satisfaction: insights from a multi-methods study. Real Life Methods, Sociology, University of Manchester, Manchester, UK
    • Green, J., Statham, H. & Solomou, W. (2008) Working paper. Assessing satisfaction: insights from a multi-methods study. Real Life Methods, Sociology, University of Manchester, Manchester, UK.
    • (2008)
    • Green, J.1    Statham, H.2    Solomou, W.3
  • 53
    • 0004590482 scopus 로고
    • Challenging motherhood: mothers and their deaf children
    • (eds A. Phoenix, A. Woollett & E. Lloyd). SAGE Publications, London, UK; Thousand Oaks, CA, USA; New Delhi, India
    • Gregory, S. (1994) Challenging motherhood: mothers and their deaf children. In: Motherhood: Meanings, Practices and Ideologies. London (eds A. Phoenix, A. Woollett & E. Lloyd), pp. 123-142. SAGE Publications, London, UK; Thousand Oaks, CA, USA; New Delhi, India.
    • (1994) Motherhood: Meanings, Practices and Ideologies. London , pp. 123-142
    • Gregory, S.1
  • 54
    • 0030666072 scopus 로고    scopus 로고
    • Adjustment and coping by parents of children with cancer: a review of the literature
    • Grootenhuis, M. A. & Last, B. F. (1997) Adjustment and coping by parents of children with cancer: a review of the literature. Support Care Cancer, 5, 466-484.
    • (1997) Support Care Cancer , vol.5 , pp. 466-484
    • Grootenhuis, M.A.1    Last, B.F.2
  • 55
    • 1842630508 scopus 로고    scopus 로고
    • Decision-making during hospitalization: parents' and children's involvement
    • Hallstrom, I. & Elander, G. (2004) Decision-making during hospitalization: parents' and children's involvement. Journal of Clinical Nursing, 13, 367-375.
    • (2004) Journal of Clinical Nursing , vol.13 , pp. 367-375
    • Hallstrom, I.1    Elander, G.2
  • 56
    • 34547418230 scopus 로고    scopus 로고
    • Families' needs when a child is long-term ill: a literature review with reference to nursing research
    • Hallstrom, I. & Elander, G. (2007) Families' needs when a child is long-term ill: a literature review with reference to nursing research. International Journal of Nursing Practice, 13, 193-200.
    • (2007) International Journal of Nursing Practice , vol.13 , pp. 193-200
    • Hallstrom, I.1    Elander, G.2
  • 57
    • 84992889596 scopus 로고    scopus 로고
    • An observational study of the level at which parents participate in decisions during their child's hospitalization
    • Hallstrom, I., Runeson, I. & Elander, G. (2002) An observational study of the level at which parents participate in decisions during their child's hospitalization. Nursing Ethics, 9, 202-214.
    • (2002) Nursing Ethics , vol.9 , pp. 202-214
    • Hallstrom, I.1    Runeson, I.2    Elander, G.3
  • 58
  • 59
    • 0035070731 scopus 로고    scopus 로고
    • Patient satisfaction with cleft lip and palate services in a regional centre
    • Jeffery, S. L. & Boorman, J. G. (2001) Patient satisfaction with cleft lip and palate services in a regional centre. British Journal of Plastic Surgery, 54, 189-191.
    • (2001) British Journal of Plastic Surgery , vol.54 , pp. 189-191
    • Jeffery, S.L.1    Boorman, J.G.2
  • 60
    • 3242694147 scopus 로고    scopus 로고
    • Parents' experiences of having a child with cleft lip and palate
    • Johansson, B. & Ringsberg, K. C. (2004) Parents' experiences of having a child with cleft lip and palate. Journal of Advanced Nursing, 47, 165-173.
    • (2004) Journal of Advanced Nursing , vol.47 , pp. 165-173
    • Johansson, B.1    Ringsberg, K.C.2
  • 62
    • 85055489434 scopus 로고    scopus 로고
    • Psychological and behavioral aspects of clefting
    • (eds J. E. Losee & R. E. Kirschner). McGraw Hill, New York, NY, USA
    • Kapp-Simon, K. A. & Gaither, R. (2009) Psychological and behavioral aspects of clefting. In: Comprehensive Cleft Care (eds J. E. Losee & R. E. Kirschner), pp. 1001-1010. McGraw Hill, New York, NY, USA.
    • (2009) Comprehensive Cleft Care , pp. 1001-1010
    • Kapp-Simon, K.A.1    Gaither, R.2
  • 63
    • 0035380707 scopus 로고    scopus 로고
    • Between joy and sorrow: being a parent of a child with a developmental disability
    • Kearney, P. M. & Griffen, T. (2001) Between joy and sorrow: being a parent of a child with a developmental disability. Journal of Advanced Nursing, 34, 582-592.
    • (2001) Journal of Advanced Nursing , vol.34 , pp. 582-592
    • Kearney, P.M.1    Griffen, T.2
  • 64
    • 0030635797 scopus 로고    scopus 로고
    • Evaluating family-centered service using a measure of parents' perceptions
    • King, G., Rosenbaum, P. L. & King, S. (1997) Evaluating family-centered service using a measure of parents' perceptions. Child: Care, Health and Development, 23, 47-62.
    • (1997) Child: Care, Health and Development , vol.23 , pp. 47-62
    • King, G.1    Rosenbaum, P.L.2    King, S.3
  • 65
    • 33745967996 scopus 로고    scopus 로고
    • A qualitative investigation of changes in the belief systems of families of children with autism or down syndrome
    • King, G. A., Zwaigenbaum, L., King, S., Baxter, D., Rosenbaum, P. & Bates, A. (2006) A qualitative investigation of changes in the belief systems of families of children with autism or down syndrome. Child: Care, Health and Development, 32, 353-369.
    • (2006) Child: Care, Health and Development , vol.32 , pp. 353-369
    • King, G.A.1    Zwaigenbaum, L.2    King, S.3    Baxter, D.4    Rosenbaum, P.5    Bates, A.6
  • 66
    • 23944469011 scopus 로고    scopus 로고
    • Parent or nurse? The experience of being the parent of a technology-dependent child
    • Kirk, S., Glendinning, C. & Callery, P. (2005) Parent or nurse? The experience of being the parent of a technology-dependent child. Journal of Advanced Nursing, 51, 456-464.
    • (2005) Journal of Advanced Nursing , vol.51 , pp. 456-464
    • Kirk, S.1    Glendinning, C.2    Callery, P.3
  • 69
    • 56849084066 scopus 로고    scopus 로고
    • Views of treatment decision making from adolescents with chronic illnesses and their parents: a pilot study
    • Knopf, J. M., Hornung, R. W., Slap, G. B., DeVellis, R. F. & Britto, M. T. (2008) Views of treatment decision making from adolescents with chronic illnesses and their parents: a pilot study. Health Expectations, 11, 343-354.
    • (2008) Health Expectations , vol.11 , pp. 343-354
    • Knopf, J.M.1    Hornung, R.W.2    Slap, G.B.3    DeVellis, R.F.4    Britto, M.T.5
  • 70
    • 36248953990 scopus 로고    scopus 로고
    • An analysis of quality of life in 130 families having small children with cleft lip/palate using the impact on family scale
    • Kramer, F. J., Baethge, C., Sinikovic, B. & Schliephake, H. (2007) An analysis of quality of life in 130 families having small children with cleft lip/palate using the impact on family scale. International Journal of Oral and Maxillofacial Surgery, 36, 1146-1152.
    • (2007) International Journal of Oral and Maxillofacial Surgery , vol.36 , pp. 1146-1152
    • Kramer, F.J.1    Baethge, C.2    Sinikovic, B.3    Schliephake, H.4
  • 71
    • 0027295805 scopus 로고
    • Effect of parental factors on social skills of preschool children with craniofacial anomalies
    • Krueckeberg, S. M. & Kapp-Simon, K. A. (1993) Effect of parental factors on social skills of preschool children with craniofacial anomalies. The Cleft Palate-Craniofacial Journal, 30, 490-496.
    • (1993) The Cleft Palate-Craniofacial Journal , vol.30 , pp. 490-496
    • Krueckeberg, S.M.1    Kapp-Simon, K.A.2
  • 72
    • 33847077233 scopus 로고    scopus 로고
    • Unexpected diagnosis of fetal abnormality: women's encounters with caregivers
    • Lalor, J. G., Devane, D. & Begley, C. M. (2007) Unexpected diagnosis of fetal abnormality: women's encounters with caregivers. Birth, 34, 80-88.
    • (2007) Birth , vol.34 , pp. 80-88
    • Lalor, J.G.1    Devane, D.2    Begley, C.M.3
  • 73
    • 0031929453 scopus 로고    scopus 로고
    • Growing up with a facial hemangioma: parent and child coping and adaptation
    • Lane Tanner, J., Dechert, M. P. & Frieden, I. J. (1998) Growing up with a facial hemangioma: parent and child coping and adaptation. Pediatrics, 101, 446-452.
    • (1998) Pediatrics , vol.101 , pp. 446-452
    • Lane Tanner, J.1    Dechert, M.P.2    Frieden, I.J.3
  • 74
    • 0031851182 scopus 로고    scopus 로고
    • Reframing the meaning of disability to families: the embrace of paradox
    • Larson, E. (1998) Reframing the meaning of disability to families: the embrace of paradox. Social Science & Medicine, 47, 865-875.
    • (1998) Social Science & Medicine , vol.47 , pp. 865-875
    • Larson, E.1
  • 75
    • 34147171435 scopus 로고    scopus 로고
    • Family photographs: expressions of parents raising children with disabilities
    • Lassetter, J. H., Mandleco, B. L. & Olsen Roper, S. (2007) Family photographs: expressions of parents raising children with disabilities. Qualitative Health Research, 17, 456-467.
    • (2007) Qualitative Health Research , vol.17 , pp. 456-467
    • Lassetter, J.H.1    Mandleco, B.L.2    Olsen Roper, S.3
  • 76
    • 0031534401 scopus 로고    scopus 로고
    • Notions of child health: mothers' accounts of health in their young babies
    • Lauritzen, S. O. (1997) Notions of child health: mothers' accounts of health in their young babies. Sociology of Health & Illness, 19, 436-456.
    • (1997) Sociology of Health & Illness , vol.19 , pp. 436-456
    • Lauritzen, S.O.1
  • 78
    • 34047222158 scopus 로고    scopus 로고
    • Factors influencing satisfaction and well-being among parents of congenital heart disease children: development of a conceptual model based on the literature review
    • Lawoko, S. (2007) Factors influencing satisfaction and well-being among parents of congenital heart disease children: development of a conceptual model based on the literature review. Scandinavian Journal of Caring Sciences, 21, 106-117.
    • (2007) Scandinavian Journal of Caring Sciences , vol.21 , pp. 106-117
    • Lawoko, S.1
  • 80
    • 39749113192 scopus 로고    scopus 로고
    • A comparison of preoperative anxiety in female patients with mothers of children undergoing surgery
    • MacLaren, J. & Kain, Z. N. (2008) A comparison of preoperative anxiety in female patients with mothers of children undergoing surgery. International Anesthesia Research Society, 106, 810-813.
    • (2008) International Anesthesia Research Society , vol.106 , pp. 810-813
    • MacLaren, J.1    Kain, Z.N.2
  • 81
    • 0029633019 scopus 로고
    • Helping parents cope
    • Martin, V. (1995) Helping parents cope. Nursing Times, 91, 38-40.
    • (1995) Nursing Times , vol.91 , pp. 38-40
    • Martin, V.1
  • 82
    • 57849123651 scopus 로고    scopus 로고
    • Prenatal cleft lip and palate parent programme - phase 1
    • Martin, V. (2005) Prenatal cleft lip and palate parent programme - phase 1. British Journal of Midwifery, 13, 90-95.
    • (2005) British Journal of Midwifery , vol.13 , pp. 90-95
    • Martin, V.1
  • 83
    • 0028248387 scopus 로고
    • Implications of a model of stress and coping for services to families of young disabled children
    • McConachie, H. (1994) Implications of a model of stress and coping for services to families of young disabled children. Child: Care, Health and Development, 20, 37-46.
    • (1994) Child: Care, Health and Development , vol.20 , pp. 37-46
    • McConachie, H.1
  • 84
    • 0001783833 scopus 로고
    • Family coping with health crisis: the resiliency model of family stress, adjustment and adaptation
    • (eds C. Danielson, B. Hamel-Bissell & P. Winstead-Fry). Mosby, St Louis, MO, USA
    • McCubbin, M. A. & McCubbin, H. I. (1993) Family coping with health crisis: the resiliency model of family stress, adjustment and adaptation. In: Families, Health and Illness (eds C. Danielson, B. Hamel-Bissell & P. Winstead-Fry), pp. 153-177. Mosby, St Louis, MO, USA.
    • (1993) Families, Health and Illness , pp. 153-177
    • McCubbin, M.A.1    McCubbin, H.I.2
  • 85
    • 84937342482 scopus 로고    scopus 로고
    • Quality in services for disabled children and their families: what can theory, policy and research on children's and parents' views tell us?
    • Mitchell, W. & Sloper, P. (2001) Quality in services for disabled children and their families: what can theory, policy and research on children's and parents' views tell us? Children & Society, 15, 237-252.
    • (2001) Children & Society , vol.15 , pp. 237-252
    • Mitchell, W.1    Sloper, P.2
  • 86
    • 0036491575 scopus 로고    scopus 로고
    • Information that informs rather than alienates families with disabled children: developing a model of good practice
    • Mitchell, W. & Sloper, P. (2002) Information that informs rather than alienates families with disabled children: developing a model of good practice. Health & Social Care in the Community, 10, 74-81.
    • (2002) Health & Social Care in the Community , vol.10 , pp. 74-81
    • Mitchell, W.1    Sloper, P.2
  • 87
    • 0008548526 scopus 로고
    • International initiatives in support of families with a member with learning disabilities
    • (eds P. Mittler & H. Mittler). Lisieux Hall, Chorley, UK
    • Mittler, H. (1994) International initiatives in support of families with a member with learning disabilities. In: Innovations in Family Support for People with Learning Disabilities (eds P. Mittler & H. Mittler), pp. 15-31. Lisieux Hall, Chorley, UK.
    • (1994) Innovations in Family Support for People with Learning Disabilities , pp. 15-31
    • Mittler, H.1
  • 88
    • 0242670655 scopus 로고    scopus 로고
    • Epidemiology of oral clefts: an international perspective
    • (ed. D. F. Wyszynski). Oxford University Press, New York, NY, USA
    • Mossey, P. A. & Little, J. (2002) Epidemiology of oral clefts: an international perspective. In: Cleft Lip and Palate: From Origin to Treatment (ed. D. F. Wyszynski), pp. 127-158. Oxford University Press, New York, NY, USA.
    • (2002) Cleft Lip and Palate: From Origin to Treatment , pp. 127-158
    • Mossey, P.A.1    Little, J.2
  • 89
    • 38349127019 scopus 로고    scopus 로고
    • The effect of cleft lip and palate and the timing of lip repair on mother-infant interactions and infant development
    • the Cleft Lip and Palate Study Team
    • Murray, L., Hentges, F., Hill, J., Karpf, J., Mistry, B., Kreutz, M., Woodall, P., Moss, T., Goodacre, T. & the Cleft Lip and Palate Study Team (2008) The effect of cleft lip and palate and the timing of lip repair on mother-infant interactions and infant development. Journal of Child Psychology and Psychiatry, 49, 115-123.
    • (2008) Journal of Child Psychology and Psychiatry , vol.49 , pp. 115-123
    • Murray, L.1    Hentges, F.2    Hill, J.3    Karpf, J.4    Mistry, B.5    Kreutz, M.6    Woodall, P.7    Moss, T.8    Goodacre, T.9
  • 90
    • 0036548883 scopus 로고    scopus 로고
    • A metasynthesis: mothering other-than-normal children
    • Nelson, A. M. (2002) A metasynthesis: mothering other-than-normal children. Qualitative Health Research, 12, 515-530.
    • (2002) Qualitative Health Research , vol.12 , pp. 515-530
    • Nelson, A.M.1
  • 91
    • 65949099935 scopus 로고    scopus 로고
    • Qualitative approaches in craniofacial research
    • Nelson, P. A. (2009) Qualitative approaches in craniofacial research. The Cleft Palate-Craniofacial Journal, 46, 245-251.
    • (2009) The Cleft Palate-Craniofacial Journal , vol.46 , pp. 245-251
    • Nelson, P.A.1
  • 92
    • 67650166059 scopus 로고    scopus 로고
    • Causal attributions in parents of babies with a cleft lip and/or palate and their associations with psychological well-being
    • Nelson, J., O'Leary, C. & Weinman, J. (2009) Causal attributions in parents of babies with a cleft lip and/or palate and their associations with psychological well-being. Cleft Palate-Craniofacial Journal, 46, 425-434.
    • (2009) Cleft Palate-Craniofacial Journal , vol.46 , pp. 425-434
    • Nelson, J.1    O'Leary, C.2    Weinman, J.3
  • 93
    • 0026095911 scopus 로고
    • Questionnaire survey of attitudes and concerns of patients with cleft lip and palate and their parents
    • Noar, J. H. (1991) Questionnaire survey of attitudes and concerns of patients with cleft lip and palate and their parents. The Cleft Palate-Craniofacial Journal, 28, 279-284.
    • (1991) The Cleft Palate-Craniofacial Journal , vol.28 , pp. 279-284
    • Noar, J.H.1
  • 94
    • 34248377237 scopus 로고    scopus 로고
    • Assessment of patients' level of satisfaction with cleft treatment using the cleft evaluation profile
    • Noor, S. N. F. M. & Musa, S. (2007) Assessment of patients' level of satisfaction with cleft treatment using the cleft evaluation profile. The Cleft Palate-Craniofacial Journal, 44, 292-303.
    • (2007) The Cleft Palate-Craniofacial Journal , vol.44 , pp. 292-303
    • Noor, S.N.F.M.1    Musa, S.2
  • 95
  • 96
    • 0000070872 scopus 로고    scopus 로고
    • Neonatal feeding of infants born with cleft lip and/or palate: parental perceptions of their experiences in South Wales
    • Oliver, R. G. & Jones, G. (1997) Neonatal feeding of infants born with cleft lip and/or palate: parental perceptions of their experiences in South Wales. The Cleft Palate-Craniofacial Journal, 34, 527-530.
    • (1997) The Cleft Palate-Craniofacial Journal , vol.34 , pp. 527-530
    • Oliver, R.G.1    Jones, G.2
  • 97
    • 0000795906 scopus 로고
    • Chronic sorrow: a response to having a mentally defective child
    • Olshansky, S. (1962) Chronic sorrow: a response to having a mentally defective child. Social Casework, 43, 190-193.
    • (1962) Social Casework , vol.43 , pp. 190-193
    • Olshansky, S.1
  • 98
    • 57849158375 scopus 로고    scopus 로고
    • Parents' experiences of feeding a baby with cleft lip and palate
    • Owens, J. (2008) Parents' experiences of feeding a baby with cleft lip and palate. British Journal of Midwifery, 16, 778-784.
    • (2008) British Journal of Midwifery , vol.16 , pp. 778-784
    • Owens, J.1
  • 99
    • 0027408509 scopus 로고
    • Parents' attitudes toward family involvement in cleft palate treatment
    • Pannbacker, M. & Scheuerle, J. (1993) Parents' attitudes toward family involvement in cleft palate treatment. The Cleft Palate-Craniofacial Journal, 30, 87-89.
    • (1993) The Cleft Palate-Craniofacial Journal , vol.30 , pp. 87-89
    • Pannbacker, M.1    Scheuerle, J.2
  • 100
    • 0342305942 scopus 로고    scopus 로고
    • The experience of being visibly different. Introduction to Section One
    • (eds R. Lansdown, N. Rumsey, E. Bradbury, T. Carr & J. Partridge). Butterworth Heinemann, Oxford, UK
    • Partridge, J. (1997) The experience of being visibly different. Introduction to Section One. In: Visibly Different. Coping with Disfigurement (eds R. Lansdown, N. Rumsey, E. Bradbury, T. Carr & J. Partridge), pp. 3-9. Butterworth Heinemann, Oxford, UK.
    • (1997) Visibly Different. Coping with Disfigurement , pp. 3-9
    • Partridge, J.1
  • 101
    • 0033426788 scopus 로고    scopus 로고
    • Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability
    • Pelchat, D., Bisson, J., Ricard, N., Perreault, M. & Bouchard, J.-M. (1999) Longitudinal effects of an early family intervention programme on the adaptation of parents of children with a disability. International Journal of Nursing Studies, 36, 465-477.
    • (1999) International Journal of Nursing Studies , vol.36 , pp. 465-477
    • Pelchat, D.1    Bisson, J.2    Ricard, N.3    Perreault, M.4    Bouchard, J.-M.5
  • 103
    • 0036782416 scopus 로고    scopus 로고
    • Participation in home therapy programs for children with cerebral palsy: a compelling challenge
    • Piggot, J., Paterson, J. & Hocking, C. (2002) Participation in home therapy programs for children with cerebral palsy: a compelling challenge. Qualitative Health Research, 12, 1112-1129.
    • (2002) Qualitative Health Research , vol.12 , pp. 1112-1129
    • Piggot, J.1    Paterson, J.2    Hocking, C.3
  • 104
    • 0032057031 scopus 로고    scopus 로고
    • Rationale and standards for the systematic review of qualitative literature in health services research
    • Popay, J., Rogers, A. & Williams, G. (1998) Rationale and standards for the systematic review of qualitative literature in health services research. Qualitative Health Research, 8, 341-351.
    • (1998) Qualitative Health Research , vol.8 , pp. 341-351
    • Popay, J.1    Rogers, A.2    Williams, G.3
  • 105
    • 25144519244 scopus 로고    scopus 로고
    • Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies
    • Pope, A., Tillman, K. & Snyder, H. T. (2005) Parenting stress in infancy and psychosocial adjustment in toddlerhood: a longitudinal study of children with craniofacial anomalies. The Cleft Palate-Craniofacial Journal, 42, 556-559.
    • (2005) The Cleft Palate-Craniofacial Journal , vol.42 , pp. 556-559
    • Pope, A.1    Tillman, K.2    Snyder, H.T.3
  • 106
    • 0037099594 scopus 로고    scopus 로고
    • Patient and parental perception of adolescent idiopathic scoliosis before and after surgery in comparison with surface and radiographic measurements
    • Pratt, R., Burwell, G., Cole, A. & Webb, J. (2002) Patient and parental perception of adolescent idiopathic scoliosis before and after surgery in comparison with surface and radiographic measurements. Spine, 27, 1543-1550.
    • (2002) Spine , vol.27 , pp. 1543-1550
    • Pratt, R.1    Burwell, G.2    Cole, A.3    Webb, J.4
  • 107
    • 0032609020 scopus 로고    scopus 로고
    • Preferences for participation in treatment decision making and information needs of parents of children with cancer: a pilot study
    • Pyke-Grimm, K. A., Degner, L. F., Small, A. & Mueller, B. (1999) Preferences for participation in treatment decision making and information needs of parents of children with cancer: a pilot study. Journal of Pediatric Oncology Nursing, 16, 13-24.
    • (1999) Journal of Pediatric Oncology Nursing , vol.16 , pp. 13-24
    • Pyke-Grimm, K.A.1    Degner, L.F.2    Small, A.3    Mueller, B.4
  • 108
    • 0023113932 scopus 로고
    • First diagnosis of severe handicap: a study of parental reactions
    • Quine, L. & Pahl, J. (1987) First diagnosis of severe handicap: a study of parental reactions. Developmental Medicine and Child Neurology, 29, 232-242.
    • (1987) Developmental Medicine and Child Neurology , vol.29 , pp. 232-242
    • Quine, L.1    Pahl, J.2
  • 109
    • 34848878129 scopus 로고    scopus 로고
    • The social and political conditions that shape special-needs parenting
    • Ray, L. D. (2003) The social and political conditions that shape special-needs parenting. Journal of Family Nursing, 9, 281-304.
    • (2003) Journal of Family Nursing , vol.9 , pp. 281-304
    • Ray, L.D.1
  • 110
    • 23844517799 scopus 로고    scopus 로고
    • Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed
    • Rehm, R. S. & Bradley, J. F. (2005) Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed. Qualitative Health Research, 15, 807-820.
    • (2005) Qualitative Health Research , vol.15 , pp. 807-820
    • Rehm, R.S.1    Bradley, J.F.2
  • 111
    • 10344246147 scopus 로고    scopus 로고
    • Prenatal diagnosis of facial clefts: evaluation of a specialised counselling
    • Rey-Bellet, C. & Hohlfeld, J. (2004) Prenatal diagnosis of facial clefts: evaluation of a specialised counselling. Swiss Medical Weekly, 134, 640-644.
    • (2004) Swiss Medical Weekly , vol.134 , pp. 640-644
    • Rey-Bellet, C.1    Hohlfeld, J.2
  • 112
    • 0742287326 scopus 로고    scopus 로고
    • Comparison of SRS questionnaire results submitted by both parents and patients in the operative treatment of idiopathic scoliosis
    • Rinella, A., Lenke, L., Peelle, M., Edwards, C., Bridwell, K. H. & Sides, B. (2004) Comparison of SRS questionnaire results submitted by both parents and patients in the operative treatment of idiopathic scoliosis. Spine, 29, 303-310.
    • (2004) Spine , vol.29 , pp. 303-310
    • Rinella, A.1    Lenke, L.2    Peelle, M.3    Edwards, C.4    Bridwell, K.H.5    Sides, B.6
  • 113
    • 33748749158 scopus 로고    scopus 로고
    • Facilitating family resilience with childhood illness and disability
    • Rolland, J. S. & Walsh, F. (2006) Facilitating family resilience with childhood illness and disability. Current Opinion in Pediatrics, 18, 527-538.
    • (2006) Current Opinion in Pediatrics , vol.18 , pp. 527-538
    • Rolland, J.S.1    Walsh, F.2
  • 116
    • 34347271933 scopus 로고    scopus 로고
    • Perspectives of parent-child interaction in Filipino mothers of very young children with and without disabilities
    • Santos, R. M. & McCollum, J. A. (2007) Perspectives of parent-child interaction in Filipino mothers of very young children with and without disabilities. Journal of Early Intervention, 29, 243-261.
    • (2007) Journal of Early Intervention , vol.29 , pp. 243-261
    • Santos, R.M.1    McCollum, J.A.2
  • 117
    • 33750505412 scopus 로고    scopus 로고
    • Introduction: inside qualitative research
    • (eds C. Seale, G. Gobo, J. F. Gubrium & D. Silverman). SAGE Publications, London, UK
    • Seale, C., Gobo, G., Gubrium, J. F. & Silverman, D. (2004) Introduction: inside qualitative research. In Qualitative Research Practice (eds C. Seale, G. Gobo, J. F. Gubrium & D. Silverman), pp. 1-12. SAGE Publications, London, UK.
    • (2004) Qualitative Research Practice , pp. 1-12
    • Seale, C.1    Gobo, G.2    Gubrium, J.F.3    Silverman, D.4
  • 118
    • 12344289211 scopus 로고    scopus 로고
    • The Eurocleft study: intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 4: relationship among treatment outcome, patient/parent satisfaction and the burden of care
    • Semb, G., Brattstrom, V., Molsted, K., Prahl-Andersen, B., Zuurbier, P., Rumsey, N. & Shaw, W. C. (2005) The Eurocleft study: intercenter study of treatment outcome in patients with complete cleft lip and palate. Part 4: relationship among treatment outcome, patient/parent satisfaction and the burden of care. The Cleft Palate-Craniofacial Journal, 42, 83-92.
    • (2005) The Cleft Palate-Craniofacial Journal , vol.42 , pp. 83-92
    • Semb, G.1    Brattstrom, V.2    Molsted, K.3    Prahl-Andersen, B.4    Zuurbier, P.5    Rumsey, N.6    Shaw, W.C.7
  • 119
    • 0033035934 scopus 로고    scopus 로고
    • A longitudinal comparison of the psychological impact on mothers of neonatal and 3 month repair of cleft lip
    • Slade, P., Emerson, D. J. M. & Freedlander, E. (1999) A longitudinal comparison of the psychological impact on mothers of neonatal and 3 month repair of cleft lip. British Journal of Plastic Surgery, 52, 1-5.
    • (1999) British Journal of Plastic Surgery , vol.52 , pp. 1-5
    • Slade, P.1    Emerson, D.J.M.2    Freedlander, E.3
  • 120
    • 0033091044 scopus 로고    scopus 로고
    • Models of service support for parents of disabled children. What do we know? What do we need to know?
    • Sloper, P. (1999) Models of service support for parents of disabled children. What do we know? What do we need to know? Child: Care, Health and Development, 25, 85-99.
    • (1999) Child: Care, Health and Development , vol.25 , pp. 85-99
    • Sloper, P.1
  • 121
    • 33748869087 scopus 로고    scopus 로고
    • Parents' and patients' perceptions of postoperative appearance in adolescent idiopathic scoliosis
    • Smith, P. L., Donaldson, S., Hedden, D., Alman, B., Howard, A., Stephens, D. & Wright, J. G. (2006) Parents' and patients' perceptions of postoperative appearance in adolescent idiopathic scoliosis. Spine, 31, 2367-2374.
    • (2006) Spine , vol.31 , pp. 2367-2374
    • Smith, P.L.1    Donaldson, S.2    Hedden, D.3    Alman, B.4    Howard, A.5    Stephens, D.6    Wright, J.G.7
  • 122
    • 14644387613 scopus 로고    scopus 로고
    • Parents' perceptions of pediatric day surgery risks: unforeseeable complications or avoidable mistakes?
    • Sobo, E. (2005) Parents' perceptions of pediatric day surgery risks: unforeseeable complications or avoidable mistakes? Social Science & Medicine, 60, 2341-2350.
    • (2005) Social Science & Medicine , vol.60 , pp. 2341-2350
    • Sobo, E.1
  • 124
    • 0025007194 scopus 로고
    • Effects of craniofacial birth defects on maternal functioning postinfancy
    • Speltz, M. L., Armsden, G. C. & Clarren, S. S. (1990) Effects of craniofacial birth defects on maternal functioning postinfancy. Journal of Pediatric Psychology, 15, 177-196.
    • (1990) Journal of Pediatric Psychology , vol.15 , pp. 177-196
    • Speltz, M.L.1    Armsden, G.C.2    Clarren, S.S.3
  • 125
    • 0027275746 scopus 로고
    • Psychological functioning of children with craniofacial anomalies and their mothers: follow-up from late infancy to school entry
    • Speltz, M. L., Morton, K., Goodell, E. W. & Clarren, S. K. (1993) Psychological functioning of children with craniofacial anomalies and their mothers: follow-up from late infancy to school entry. The Cleft Palate-Craniofacial Journal, 30, 482-489.
    • (1993) The Cleft Palate-Craniofacial Journal , vol.30 , pp. 482-489
    • Speltz, M.L.1    Morton, K.2    Goodell, E.W.3    Clarren, S.K.4
  • 127
    • 0031064210 scopus 로고    scopus 로고
    • Early predictors of attachment in infants with cleft lip and/or palate
    • Speltz, M. L., Endriga, M. C., Fisher, P. A. & Mason, C. A. (1997) Early predictors of attachment in infants with cleft lip and/or palate. Child Development, 68, 12-25.
    • (1997) Child Development , vol.68 , pp. 12-25
    • Speltz, M.L.1    Endriga, M.C.2    Fisher, P.A.3    Mason, C.A.4
  • 128
    • 0023791730 scopus 로고
    • Perceptions of appearance and speech by adolescent patients with cleft lip and palate and by their parents
    • Strauss, R. P., Broder, H. L. & Helms, R. W. (1988) Perceptions of appearance and speech by adolescent patients with cleft lip and palate and by their parents. The Cleft Palate Journal, 25, 335-342.
    • (1988) The Cleft Palate Journal , vol.25 , pp. 335-342
    • Strauss, R.P.1    Broder, H.L.2    Helms, R.W.3
  • 129
    • 0029047131 scopus 로고
    • Physicians and the communication of 'bad news': parent experiences of being informed of their child's cleft lip and/or palate
    • Strauss, R. P., Sharp, M. C., Lorch, S. C. & Kachalia, B. (1995) Physicians and the communication of 'bad news': parent experiences of being informed of their child's cleft lip and/or palate. Pediatrics, 96, 82-89.
    • (1995) Pediatrics , vol.96 , pp. 82-89
    • Strauss, R.P.1    Sharp, M.C.2    Lorch, S.C.3    Kachalia, B.4
  • 132
    • 0038147053 scopus 로고    scopus 로고
    • Living with a child with a severe orofacial handicap: experiences from the perspectives of parents
    • Trulsson, U. & Klingberg, G. (2003) Living with a child with a severe orofacial handicap: experiences from the perspectives of parents. European Journal of Oral Sciences, 111, 19-25.
    • (2003) European Journal of Oral Sciences , vol.111 , pp. 19-25
    • Trulsson, U.1    Klingberg, G.2
  • 133
    • 0023757209 scopus 로고
    • A study to assess the effectiveness of a professional and lay support service for parents of new-born cleft babies
    • Turner, M. M. & Milward, T. M. (1988) A study to assess the effectiveness of a professional and lay support service for parents of new-born cleft babies. British Journal of Plastic Surgery, 41, 614-618.
    • (1988) British Journal of Plastic Surgery , vol.41 , pp. 614-618
    • Turner, M.M.1    Milward, T.M.2
  • 135
    • 33847034135 scopus 로고    scopus 로고
    • Newborns with an impairment: discourses of hospital staff
    • Vehkakoski, T. M. (2007) Newborns with an impairment: discourses of hospital staff. Qualitative Health Research, 17, 288-299.
    • (2007) Qualitative Health Research , vol.17 , pp. 288-299
    • Vehkakoski, T.M.1
  • 136
    • 0000716418 scopus 로고
    • Appraisal, coping and adjustment in adolescents with a physical disorder
    • (eds J. L. Wallander & L. J. Siegel). Guildford Press, New York, NY, USA
    • Wallander, J. L. & Varni, J. W. (1995) Appraisal, coping and adjustment in adolescents with a physical disorder. In: Adolescent Health Problems: Behavioural Perspectives (eds J. L. Wallander & L. J. Siegel), pp. 209-231. Guildford Press, New York, NY, USA.
    • (1995) Adolescent Health Problems: Behavioural Perspectives , pp. 209-231
    • Wallander, J.L.1    Varni, J.W.2
  • 137
    • 0036582610 scopus 로고    scopus 로고
    • Exploring multi-agency working in services to disabled children with complex healthcare needs and their families
    • Watson, D., Townsley, R. & Abbott, D. (2002) Exploring multi-agency working in services to disabled children with complex healthcare needs and their families. Journal of Clinical Nursing, 11, 367-375.
    • (2002) Journal of Clinical Nursing , vol.11 , pp. 367-375
    • Watson, D.1    Townsley, R.2    Abbott, D.3
  • 138
    • 0035031748 scopus 로고    scopus 로고
    • Cleft lip and palate care in the United Kingdom - the Clinical Standards Advisory Group (CSAG) Study. Part 2: dentofacial outcomes and patient satisfaction
    • Williams, A., Bearn, D., Mildinhall, S., Murphy, T., Sell, D., Shaw, W. C., Murray, J. J. & Sandy, J. R. (2001) Cleft lip and palate care in the United Kingdom - the Clinical Standards Advisory Group (CSAG) Study. Part 2: dentofacial outcomes and patient satisfaction. The Cleft Palate-Craniofacial Journal, 38, 24-29.
    • (2001) The Cleft Palate-Craniofacial Journal , vol.38 , pp. 24-29
    • Williams, A.1    Bearn, D.2    Mildinhall, S.3    Murphy, T.4    Sell, D.5    Shaw, W.C.6    Murray, J.J.7    Sandy, J.R.8


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