Parental satisfaction with an early family intervention program

Journal of Perinatal and Neonatal Nursing

Volumn 18, Issue 2, 2004, Pages 128-144

  Pelchat, Diane ^a,b   Lefebvre, Hélène ^a,b   Proulx, Michèle ^a   Reidy, Mary ^a  

^a UNIVERSITÉ DE MONTRÉAL   (Canada)

^b Res Ctr of the Ctr H   (Canada)

Author keywords

Family intervention program; Nursing care; Qualitative methods; Satisfaction questionnaire

Indexed keywords

ARTICLE; CHILD CARE; CLEFT PALATE; COGNITION; CONTROLLED STUDY; CORRELATION ANALYSIS; DOWN SYNDROME; EMOTIONALITY; FAMILY PLANNING; FEASIBILITY STUDY; FEMALE; HEALTH CARE MANAGEMENT; HEALTH PROGRAM; HUMAN; INCOME; MALE; MARRIAGE; NEWBORN CARE; PARENTAL BEHAVIOR; PATIENT SATISFACTION; RATING SCALE; SOCIAL STATUS; SOCIAL SUPPORT; STATISTICAL SIGNIFICANCE; ADULT; CHILD PARENT RELATION; COHORT ANALYSIS; CONGENITAL MALFORMATION; EARLY CHILDHOOD INTERVENTION; FOLLOW UP; HANDICAPPED CHILD; HUMAN RELATION; INFANT; MENTAL STRESS; METHODOLOGY; NEWBORN; NEWBORN DISEASE; NURSE ATTITUDE; NURSING; PARENT; PRESCHOOL CHILD; QUESTIONNAIRE; SATISFACTION;

ABNORMALITIES; ADULT; CHILD, PRESCHOOL; COHORT STUDIES; DISABLED CHILDREN; EARLY INTERVENTION (EDUCATION); FEMALE; FOLLOW-UP STUDIES; HUMANS; INFANT; INFANT, NEWBORN; INFANT, NEWBORN, DISEASES; MALE; NURSE'S ROLE; PARENT-CHILD RELATIONS; PARENTS; PERSONAL SATISFACTION; PROFESSIONAL-FAMILY RELATIONS; QUESTIONNAIRES; SOCIAL SUPPORT; STRESS, PSYCHOLOGICAL;

EID: 3242793625     PISSN: 08932190     EISSN: None     Source Type: Journal    
DOI: 10.1097/00005237-200404000-00008     Document Type: Article

References (75)

1. Ministère de la Santé et des Services Sociaux. Les naissances prématurées ou de poids insuffisant et les anomalies congénitales ou génétiques. In : Gouvernement du Québec, ed. La politique de la santé et du bien-être. Objectif 7. Québec, Canada: Gouvernement du Québec; 1997:66-71.
2. Laframboise R. La génétique: un retour. Le bull de palatin. 1996;5(1):1-3.
3. Rogers PT, Roizen NJ. A life-cycle approach to management of Down syndrome. In: Capute AJ, Accardo PJ, eds. Developmental Disabilities in Infancy and Childhood. Baltimore: Paul H. Brookes; 1991:441-454.
4. Speltz ML, Greenberg MT, Endriga MC, Glabreath H. Developmental approach to the psychology of craniofacial anomalies. Cleft Palate Craniofac J. 1994;51:61-67.
5. Pelchat D, Bisson JM, Ricard N, Perreault M, Bouchard JM. The longitudinal effects of an early family intervention program on the adaptation of families of children with a disability. Int J Nurs Stud. 1999;36(6):465-477.
6. Bailey DB Jr, Simeonsson RJ. Home-based early intervention. In: Odom SL, Karnes MB, eds. Early Intervention for Infants and Children With Handicaps: An Empirical Base. Baltimore: Paul H Brookes; 1988:199-213.
7. Boss P. Family Stress Management. Newbury Park, Calif: Sage; 1988.
8. Carter B, McGoldrick M. The Changing Family Life Cycle: A Framework for Family Therapy. 2nd éd. Toronto: Allyn & Bacon; 1989.
9. Pelchat D. Programme d'intervention précoce auprès des parents d'un enfant atteint d'une déficience physique [PhD thesis]. Montreal: University of Montreal; 1989.
10. Pelchat D. Problématique familiale lors de la naissance d'un enfant atteint d'une déficience physique. Revue Canadienne de Santé Mentale Communautaire. 1992;9(2):45-59.
11. Pelchat D. Developing an early-stage intervention program to help families cope with the effects of the birth of a handicapped child. Fam Syst Med. 1994;11:407-424.
12. Beckman PJ. Comparison of mothers' and fathers' perceptions of the effect of young children with and without disabilities. Am J Ment Retard. 1991;95(5):585-595.
13. Goldberg S, Morris P, Simmons RJ, Fowler RS, Levison H. Chronic illness in infancy and parenting stress: a comparison of three groups of parents. J Pediatr Psychol. 1990;15(3):347-358.
14. Bristol MM, Gallagher JJ, Schopler E. Mothers and fathers of young developmentally disabled and nondisabled boys: adaptation and spousal support. Dev Psychol. 1988;24(3):441-451.
15. Kazak AE, Marvin RS. Differences, difficulties and adaptation: stress and social networks in families with a handicapped child. Fam Relat. 1984;33:67-77.
16. Breslau N, Staruch KS, Mortimer EA. Psychological distress in mothers of disabled children. Am J Dis Child. 1982;136:682-686.
17. Dallaire L. Enquête sur l'accueil à l'enfant handicapé (0-5 ans). Québec City, Québec, Canada: Conseil des Affaires sociales et de la Famille: 1984.
18. Fortier LM, Wanlass RL. Family crisis following the diagnosis of a handicapped child. Fam Relat. 1984;33:13-24.
19. Trout MD. Birth of a sick or handicapped infant: impact on the family. Child Welfare. 1983;62(4):337-348.
20. Love DH. The Mentally Retarded Child and His Family. Springfield, Ill: CC Thomas; 1973.
21. Carlson CE, Ricci J, Shade-Zeldow Y. Psychosocial aspects of disability in children. Pediatrician. 1990;17:213-221.
22. Pelchat-Borgeat D. La naissance d'un enfant porteur d'une malformation: L'expérience de la mère et de l'infirmière [master's thesis]. Montreal: University of Montreal; 1979.
23. Pelchat D, Lefebvre H, Perreault M. Differences and similarities between mothers' and fathers' experiences of parenting a child with a disability. J Child Health Care. 2003;7(4):231-247.
24. Saloviita T, Itälinna M, Leinonen E. Explaining the parental stress of fathers and mothers caring for a child with intellectual disability: a Double ABCX Model. J Intellect Disabil Res. 2003;47(4/5):300-312, 434.
25. Kazak AE. Families with disabled children: stress and social networks in three samples. J Abnorm Child Psychol. 1987;15(1):137-146.
26. Timko C, Stovel KV, Moos RH. Functioning among mothers and fathers with juvenile rheumatic disease: a longitudinal study. J Pediatr Psychol. 1992;17(6):705-724.
27. Sloper P, Turner S. Risk and resistance factors in the adaptation of parents of children with severe physical disability. J Child Psychol Psychiatry. 1993;34(2):167-188.
28. Goldberg S, Marcovitch S, MacGregor D, Lojkasek M. Family responses to developmentally delayed preschoolers: etiology and the father's role. Am J Ment Defic. 1986;90(6):610-617.
29. Krauss MW. Child-related and parenting stress: similarities and differences between mothers and fathers of children with disabilities. Am J Ment Retard. 1993;97(4):393-404.
30. Frey KS, Greenberg MT, Fewell RR. Stress and coping among parents of handicapped children: a multidimensional approach. Am J Ment Retard. 1989;94(3):240-249.
31. Frey KS, Fewell RR, Vadasy PF. Parental adjustment and changes in child outcome among families of young handicapped children. Top Early Child Spec Educ. 1989;8(4):38-57.
32. Crowley SL, Taylor MJ. Mothers and fathers perceptions of family functioning in families having a children with disabilities. Early Educ Dev. 1994;5(3):213-225.
33. Shonkoff JP, Hauser-Cram P, Krauss MW, Upshur CC. Development of infants with disabilities and their families: implications for theory and service delivery. Monogr Soc Res Child Dev. 1992;57:1-153.
34. Sameroff A, Seifer R, Barocas B, Zax M, Greenspan S. IQ scores of four-year-old children: social-environnemental risk factors. Pediatrics. 1987;79:343-350.
35. Floyd FJ, Saitzyk AR. Social class and parenting children with mild and moderate mental retardation. J Pediatr Psychol. 1992;17:607-631.
36. Pelchat D, Lefebvre H, Bouchard JM, Kalubi JC, Michallet B, Rousseau S. Processus de l'annonce de la déficience motrice cérébrale: expérience des parents, des professionnels et des médecins. Montreal: Faculty of nursing, University of Montreal; 2001. CQRS Project No. RS-3004.
37. Pelchat D, Lefebvre H, Bouchard JM. L'annonce de la déficience motrice cérébrale: une relation de confiance à construire entre les parents, les professionnels et les médecins. Paediatr Child Health. 2001;6 (6):365-374.
38. Hall JA, Dornan MC. Patient sociodemographic characteristics as predictors of satisfaction with medical care: a meta-analysis. Soc Sci Med. 1990;30(7):811-818.
39. Bouchard JM, Pelchat D, Boudreault P, Gratton-Lalonde M. Déficience, incapacités et handicaps: processus d'adaptation et qualité de vie de la famille. Montréal: Éditions Guérin Universitaires; 1994.
40. Jefferey SL, Boorman JG. Patient satisfaction with cleft lip and palate services in a regional centre. Br J Plast Surg. 2001;54(3):189-191.
41. Van Riper M. Family-provider relationship and well-being in families with preterm infants in the NICU. Heart Lung. 2001;30(1):74-84.
42. Pelchat D, Ricard N, Lefebvre H. L'adaptation des parents d'enfants atteints d'une déficience: effets d'un programme d'intervention familiale précoce. L'infirmière du Québec. 2001;9(2):15-24.
43. Pelchat D, Berthiaume M. Intervention précoce auprès de parents ayant une déficience: un lieu d'apprentissages pour les familles et les intervenants. Apprentissage et Socialisation. 1996;17(1/2):105-117.
44. Sandrine-Berthon B. Pourquoi parler d'éducation dans le champ de la médecine? In: Sandrine-Berthon B, ed. L'éducation du patient au secours de la médecine. Éducation et Formation. Paris, France: Presses Universitaires de France; 2000:7-40.
45. Bury JA. Éducation pour la santé: concept, enjeux, planification. Coll. Savoirs et Santé. Bruxelles, Belgique: De Boeck-Wesmael; 1988.
46. Pourtois JP, Desmet, H. L'éducation postmoderne. Paris, France: Presses Universitaires de France; 1999.
47. St-Arnaud Y. Relation d'aide et psychothérapie. Le changement personnel assisté. Montréal: Gaétan Morin Éditeur; 2001.
48. Pelchat D, Lefebvre H. Le PRIFAM: un programme fondé sur le partenariat. L'infirmière du Québec. 2001;9(2):26-29.
49. Pelchat D, Lefebvre H. Holistic Families Intervention Program: co-construction of the family resilience and well-being of the practitioner. J Adv Nurs. In press.
50. Lindemann E. Symptomatology and management of acute grief. Am J Psychiatry. 1944;101(2):141-148.
51. Caplan G. Principles of Preventive Psychiatry. New York: Basic Books; 1964.
52. Lazarus RS, Averill JR, Opton EM Jr. The psychology of coping: issues of research and assessment. In: Coelho GV, Hamburg DA, Adams JE, eds. Coping and Adaptation. New York: Basic Books; 1974:249-315.
53. Selvini-Palazzoli M, Boscolo L, Cecchin G, Prata G. Hypothesizing- circularity-neutrality: three guidelines for the conductor of the session. Fam Process. 1980;19(1):3-12.
54. Rosenkoetter SE, Stayton VD. Designing and implementing innovative, interdisciplinary practica. In: Winton PJ, Mc Collum JA, Catlett C, eds. Reforming Personnel Preparation in Early Intervention. Baltimore: Paul H Brookes; 1997:453-474.
55. Bouchard JM. Famille et savoirs à partager: des intentions à l'action. Apprentissage et Socialisation. 1999;9(2):47-57.
56. Hamburg DA, Adams JE. A perspective on coping behavior seeking and utilizing information in major transitions. Arch Gen Psychiatry. 1967;17:277-284.
57. Michaud C. Co-apprentissage des familles et des intervenantes à l'intérieur d'une intervention familiale précoce [PhD thesis]. Montreal: University of Montreal; 2000.
58. Dunst CJ, Trivette C, Deal A. Enabling and Empowering Families: Principles and Guidelines for practice. Cambridge: Brookline Books; 1988.
59. Miller AC, Gordon RM, Daniele RJ, Diller L. Stress, appraisal and coping in mothers of disabled and nondisabled children. J Pediatr Psychol. 1992;17(5):587-605.
60. Drotar D, Baskiewicz A, Irvin N, Kennell J, Klaus M. The adaptation of parents to the birth of an infant with congenital malformation: a hypothetical model. Pediatrics. 1975;56:710-717.
61. Klaus MH, Kennell JH. Maternal-Infant Bonding. The Impact of Early Separation or Loss on Family Development. St Louis: Mosby; 1976.
62. Mercer RT. Nursing Care for Parents at Risk. Thorofare, NJ: Charles B. Slack Inc; 1977.
63. Pain H. Coping with a child with disabilities from the parents' perspective: the function of information. Child Care Health Dev. 1999;25:299-312.
64. Goldberg S. Social competence in infancy: a model of parent-infant interaction. Merrill-Palmer Q. 1977;23:163-177.
65. Bouchard JM, Pelchat D. Renoncement à l'enfant désiré parfait et processus d'adaptation de la famille. Revue Frontières. 1997;9(3):50-53.
66. Quine L, Pahl J. First diagnosis of severe handicap: a study of parental reactions. Dev Med Child Neurol. 1987;29(2):232-242.
67. Brinkworth R. The unfinished child: early treatment and training for the infant with Down's syndrome. J R Soc Health. 1975;2:73.
68. Pugh G, Russell P. Shared Care: Support Services for Families With Handicapped Children. London: National Children's Bureau; 1977.
69. Svarstard B, Lipton HL. Informing parents about mental retardation: a study of professional communication and parent acceptance. Soc Sci Med. 1977;11:645-651.
70. Springer A, Steele MW. Effects of physicians' early parental counselling on rearing Down's syndrome children. Am J Ment Defic. 1980;85:1-5.
71. Faerstein LM. Stress and coping in families of learning disabled children: a literature review. J Learn Disabil. 1981;14:420-423.
72. Lamarche C. L'enfant inattendu. Montréal: Boréal Express; 1987.
73. Heaman DJ. Perceived stressors and coping strategies of parents who have children with developmental disabilities: a comparison of mothers with fathers. J Pediatr Nurs. 1995;10:311-320.
74. Hornby G. Effects on fathers of children with Down syndrome. J Child Fam Stud. 1995;4:239-255.
75. Speltz ML, Armsden GC, Clarren SS. Effects of craniofacial birth defects on maternal functioning postinfacy. J Pediatr Psychol. 1990;15:177-196.