The psychological impact of genital anomalies on the parents of affected children

Acta Paediatrica, International Journal of Paediatrics

Volumn 96, Issue 3, 2007, Pages 348-352

  Duguid, A ^a   Morrison, S ^a   Robertson, A ^a   Chalmers, J ^b   Youngson, G ^c   Ahmed, S F ^a,d  

^a ROYAL HOSPITAL FOR SICK CHILDREN   (United Kingdom)

^b Information and Statistics Division   (United Kingdom)

^c ROYAL ABERDEEN CHILDREN S HOSPITAL   (United Kingdom)

^d QMH Tower   (United Kingdom)

Author keywords

Coping; Genitalia; Hypospadias; Psychology; Stress; Undermasculinization

Indexed keywords

ARTICLE; CHILD; CHILD PARENT RELATION; COPING BEHAVIOR; CORRELATION ANALYSIS; GENITAL MALFORMATION; HEALTH SURVEY; HUMAN; INFANT; MEDICAL PROFESSION; NEWBORN; PARENTAL BEHAVIOR; PARENTAL STRESS; POSTOPERATIVE CARE; PRIORITY JOURNAL; PSYCHOLOGICAL ASPECT; QUANTITATIVE ANALYSIS; SCORING SYSTEM; SELF ESTEEM; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT;

ADAPTATION, PSYCHOLOGICAL; ADULT; GENITALIA; HUMANS; MALE; PARENTS; QUALITATIVE RESEARCH; STRESS, PSYCHOLOGICAL;

EID: 33947327405     PISSN: 08035253     EISSN: 16512227     Source Type: Journal    
DOI: 10.1111/j.1651-2227.2006.00112.x     Document Type: Article

References (21)

1. Ahmed SF, Dobbie R, Finlayson AR, Gilbert J, Youngson G, Chalmers J, et al. Prevalence of hypospadias and other genital anomalies among singleton births, 1988-1997, in Scotland. Arch Dis Child Fetal Neonatal Ed. 2004; 89: 149-51.
2. Ahmed SF, Morrison S, Hughes IA. Intersex and gender assignment; the third way? Arch Dis Child 2004; 89: 847-50.
3. Melton L. New perspectives on the management of intersex. Lancet 2001; 30(357): 2110.
4. Rangecroft L. Surgical management of ambiguous genitalia. Arch Dis Child 2003; 88: 799-801.
5. Daaboul J, Frader J. Ethics and the management of the patient with intersex: a middle way. J Pediatr Endocrinol Metab 2001; 14: 1575-83.
6. Dayner JE, Lee PA, Houk CP. Medical treatment of intersex: parental perspectives. J Urol 2004; 172: 1762-5.
7. Dawson G, Ashman SB, Carver LJ. The role of early experience in shaping behavioral and brain development and its implications for social policy. Dev Psychopathol 2000; 12: 695-712.
8. McCubbin H, McCubbin M, Patterson JM, Cauble AE, Wilson LR, Warwick W. Coping Health Inventory for Parents: an assessment of parental coping patterns in the care of the chronically ill child. J Marriage Fam 1983:359.
9. Abidin RR. Parenting stress index. Odessa, FL: Psychological Assessment Resources Inc. 1995.
10. Ahmed SF, Khwaja O, Hughes IA.The role of a clinical score in the assessment of ambiguous genitalia. BJU Int 2000; 85: 120-4.
11. Tak YR, McCubbin M. Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease. J Adv Nurs 2002; 39: 190-8.
12. Alderson J, Madill A, Balen A. Fear of devaluation: understanding the experience of intersexed women with androgen insensitivity syndrome. Br J Health Psychol 2004; 9: 81-100.
13. Glaser BG. Theoretical sensitivity: Advances in the methodology of grounded theory. Mill Valley, CA: Sociology Press, 1978.
14. Uzark K, Jones K. Parenting stress and children with heart disease. J Pediatr Health Care 2003; 17: 163-8.
15. Johnston C, Hessl D, Blasey C, Eliez S, Erba H, Dyer-Friedman J, et al. Factors associated with parenting stress in mothers of children with fragile X syndrome. J Dev Behav Pediatr 2003; 24: 267-75.
16. van den Borne HW, van Hooren RH, van Gestel M, Rienmeijer P, Fryns JP, Curfs LM. Psychosocial problems, coping strategies, and the need for information of parents of children with Prader-Willi syndrome and Angelman syndrome. Patient Educ Couns 1999; 38: 205-16.
17. Ahmed SF, Cheng A, Dovey L, Hawkins JR, Martin H, Rowland J, et al. Phenotypic features, androgen receptor binding, and mutational analysis in 278 clinical cases reported as androgen insensitivity syndrome. J Clin Endocrinol Metab 2000; 85: 658-65.
18. DeMaso DR, Campis LK, Wypij D, Bertram S, Lipshitz M, Freed M. The impact of maternal perceptions and medical severity on the adjustment of children with congenital heart disease. J Pediatr Psychol 1991; 16: 137-49.
19. Youngblut JM, Shiao SY. Characteristics of a child's critical illness and parents' reactions: preliminary report of a pilot study. Am J Crit Care 1992; 1: 80-4.
20. Hines M, Ahmed SF, Hughes IA. Psychological outcomes and gender-related development in complete androgen insensitivity syndrome. Arch Sex Behav 2003; 32: 93-101.
21. Madden SJ, Hastings RP, V'ant Hoff W. Psychological adjustment in children with end stage renal disease: the impact of maternal stress and coping. Child Care Health Dev 2002; 28: 323-30.