Quality in services for disabled children and their families: What can theory, policy and research on children’s and parents’ views tell us?

Children and Society

Volumn 15, Issue 4, 2001, Pages 237-252

  Mitchell, Wendy ^a   Sloper, Patricia ^a  

^a UNIVERSITY OF YORK   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84937342482     PISSN: 09510605     EISSN: 10990860     Source Type: Journal    
DOI: 10.1002/chi.658     Document Type: Article

References (53)

1. Arnstein S. 1971. Eight rungs on the ladder of citizen participation. In Citizen Participation: Effecting Community Change, Cahn SE, Passett BA. Praeger Publications: New York.
2. Baine S, Rosenbaum P, King S. 1995. Chronic childhood illnesses: what aspects of caregiving do parents value? Child: care, health and development 21: 291–304.
3. Beresford B. 1995. Expert Opinions - A National Survey of Parents Caring for a Severely Disabled Child. Policy Press: Bristol.
4. Beresford B. 1997. Personal Accounts: Involving Disabled Children in Research. The Stationery Office: London.
5. Beresford B, Sloper P. 1999. The Information Needs of Chronically Ill or Physically Disabled Children and Adolescents. Social Policy Research Unit, University of York.
6. th July. 1–3. 1986. British Institute of Mental Handicap: London.
7. Bhavnani K. 1988. Empowerment and social research: some comments. Text 8 (1-2): 41–50.
8. Bradley V. 1990. Conceptual issues in quality assurance. In Quality Assurance for Individuals with Developmental Disabilities, Bradley V, Bersani M (eds). Baltimore: Brookes; 3–15.
9. Chamba R, Ahmad W, Hirst M, Lawton D, Beresford B. 1999. On the Edge - Minority Ethnic Families Caring for a Severely Disabled Child. The Policy Press: Bristol.
10. Children Act. 1989. HMSO: London.
11. Dale N. 1996. Working with Families of Children with Special Needs - Partnerships and Practice. Routledge: London.
12. Department of Health. 1989. Caring For People – Community Care in the Next Decade and Beyond. cm.849. HMSO: London.
13. Department of Health. 1990. Community Care in the Next Decade and Beyond: Policy - Guidance. HMSO: London.
14. Department of Health. 1998a. Modernising Social Services, Promoting Independence, Improving Protection, Raising Standards. cm.4169. Stationery Office: London.
15. Department of Health. 1998b. A First Class Service: Quality in the New NHS. Stationery Office: London.
16. Department of Health. 1999a. Caring about Carers: A National Strategy for Carers, Stationery Office: London.
17. Department of Health. 1999b. The Government’s Objectives for Children’s Social Services (Quality Protects). Stationery Office: London.
18. Dix T, Gilbert T. 1995. Informed choice: from theory to practice. In Learning Disabilities - Practice Issues in Health Settings, Todd M, Gilbert T (eds). Routledge: London; 87–109.
19. Donabedian A. 1980. Exploration in Quality Assessment and Monitoring, Volume 1. The Definition of Quality and Approaches to its Assessment. Health Administration Press, Michigan, Ann Arbor.
20. Donabedian A. 1986. Criteria and standards for quality assessment and monitoring. Quality Review Bulletin, 12: 99–108.
21. Donabedian A. 1988. The quality of care. How can it be assessed? Journal of the American Medical Association, 260: 1743–1748.
22. Doorbar P. 1995. Hear Us! Children’s Views about Health Services. Portsmouth and South East Hampshire Health Commission.
23. Elliott E, Watson A, Tanner S. 1996. Time to put the Children First: Children’s and Young People’s Views of Health Care in Salford and Trafford. Research Report No.7, Public Health Research and Resource Centre, University of Salford.
24. Franklin B. 1995. The case for children’s rights: A progress report. In The Handbook of Children’s Rights - Comparative Policy and Practice, Franklin B (ed). Routledge: London; 3–22.
25. Herman S, Marcenko M, Hazel K. 1996. Parents’ perspectives on quality in family support programs. The Journal of Mental Health Administration, 23: 156–169.
26. Kagan S. 1994. Defining and achieving quality in family support. In Putting Families First: America’s Family Support Movement and the Challenge of Change, Kagan S, Weissbourd B (eds). Jossey-Bass Publishers: San Fransisco; 375–400.
27. Kennedy M. 1990. What quality assurance means to me. In Quality Assurance for Individuals with Developmental Disabilities, Bradley V, Bersani M (eds). Brookes: Baltimore; 35–45.
28. Kerruish A. 1995. Quality for people - learning from service users about quality. In Evaluating Quality in Services for Disabled and Older People, Pilling D, Watson G (eds). Jessica Kingsley: London; 158–163.
29. Lansdown G. 1995. Taking Part - Children’s Participation in Decision Making. Institute For Public Policy Research: London.
30. Lehr S, Lehr R. 1990. Getting what you want - expectations of families. In Quality Assurance for Individuals with Developmental Disabilities, Bradley V, Bersani M (eds). Brookes: Baltimore; 61–75.
31. Lightfoot J, Wright S, Sloper P. 1998. Service Support for Children with a Chronic Illness or Physical Disability attending Mainstream Schools. Social Policy Research Unit: University of York.
32. Marchant R, Jones M, Julyan A, Giles A. 1999a. “Listening on all Channels” Consulting with Disabled Children and Young People. Triangle Consultancy Training Services for Children: East Sussex County Council.
33. Marchant R, Jones M, Martyn M. 1999b. “Tomorrow I Go” What you told us about Dorset Road. Young People’s Views about a Residential Respite Care Service. Triangle Consultancy Training Services for Children: East Sussex County Council.
34. Marquis R, Jackson R. 2000. Quality of life and quality of service relationships: experiences of people with disabilities. Disability and Society, 15: 411–425.
35. Mitchell W, Sloper P. 2000. User-Friendly Information for Families with Disabled Children: A Guide to Good Practice. Joseph Rowntree Foundation. York Publishing Services: York.
36. Morris J. 1998. Still Missing? Volume 1, The Experience of Disabled Children and Young People Living Away from their Families. The Who Cares? Trust supported by the Joseph Rowntree Foundation: London.
37. Morrow V, Richards M. 1996. The ethics of social research with children: An overview. Children & Society, 10: 90–105.
38. National Health Service and Community Care Act. 1990. HMSO: London.
39. Nocon A, Qureshi H. 1996. Outcomes of Community Care for Users and Carers. Open University Press: Buckingham.
40. Noyes J. 1999. Voices and Choices - Young People who use Assisted Ventilation: their Health, Social Care and Education. Stationery Office: London.
41. O’Brien J. 1990. Developing high quality services for people with developmental disabilities. In Quality Assurance for Individuals with Developmental Disabilities, Bradley V, Bersani M (eds). Baltimore: Brookes; 17–31.
42. Orlowska D. 1995. Parental participation in issues concerning their sons and daughters with learning disabilities. Disability and Society, 10: 437–456.
43. Osborne S. 1992. The quality dimension. Evaluating quality in service and quality of life in human services. British Journal of Social Work, 22: 437–453.
44. Pfeffer N, Coote A. 1991. Is Quality Good for You? A Review of Quality Assurance in Welfare Services. Social Policy Papers No.5, London Institute for Public Policy Research.
45. Riddell S, Brown S. 1994. Special educational needs provision in the United Kingdom - the policy context. In. Special Educational Needs Policy in the 1990’s, Riddell S, Brown S (eds). Routledge: London; 1–28.
46. Rebien C. 1996. Participatory evaluation of development assistance. Evaluation, 2: 151–171.
47. Roberts K, Lawton D. 1999. Single Point of Access Information Sources for Families with Severely Disabled Children. Social Policy Research Unit, University of York.
48. Robinson C, Weston C, Minkes J. 1994. Assessing Quality in Services to Disabled Children under the Children Act 1989. Final Report to the Department of Health, Norah Fry Research Centre, University of Bristol.
49. Russell P. 1998. Having A Say! Disabled Children and Effective Partnerships in Decision Making, Section 1 - The Report. Council For Disabled Children: London.
50. United Nations. 1989. United Nations Convention on the Rights of the Child. Children’s Rights Development Unit: London.
51. Ward L. 1997. Seen and Heard: Involving Disabled Children and Young People in Research and Development Projects. York Publishing Services: York.
52. Warr B, Kelly D. 1992. What is meant by quality in social care? In Quality Counts. Achieving Quality in Social Care Services, Kelly D, Warr B (eds). Whiting and Birch Ltd: London; 1–13.
53. Wolfensberger W. 1972. The Principle of Normalisation in Human Services. National Institute on Mental Retardation: Toronto.