메뉴 건너뛰기




Volumn 9, Issue 4, 2002, Pages 388-404

What matters to the parents? a qualitative study of parents' experiences with life-and-death decisions concerning their premature infants

Author keywords

critically ill premature infants; ethics of KE L gstrup; life and death; Norway; parents decision making

Indexed keywords

ADAPTIVE BEHAVIOR; ADULT; ARTICLE; ATTITUDE TO DEATH; ATTITUDE TO HEALTH; BEHAVIOR; CONFLICT; DEATH AND EUTHANASIA; DECISION MAKING; EMPIRICAL APPROACH; FEMALE; HUMAN; HUMAN RELATION; INTERPERSONAL COMMUNICATION; MALE; MEDICAL ETHICS; NEWBORN; NEWBORN INTENSIVE CARE; NORWAY; NURSING METHODOLOGY RESEARCH; NURSING STAFF; PARENT; PREMATURITY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE;

EID: 11244275696     PISSN: 09697330     EISSN: None     Source Type: Journal    
DOI: 10.1191/0969733002ne523oa     Document Type: Article
Times cited : (123)

References (41)
  • 2
    • 5944219801 scopus 로고    scopus 로고
    • We did what we could; he was such a ‘nice’ baby. How nurses and physicians make ethical decisions on a neonatal unit (in Norwegian)
    • Brinchmann BS. We did what we could; he was such a ‘nice’ baby. How nurses and physicians make ethical decisions on a neonatal unit (in Norwegian). Vård i Norden [Nurs Sci Res Nordic Countries] 1998; 18(2): 16-21.
    • (1998) Vård i Norden [Nurs Sci Res Nordic Countries] , vol.18 , Issue.2 , pp. 16-21
    • Brinchmann, B.S.1
  • 3
    • 5944247423 scopus 로고    scopus 로고
    • The ‘inquisitive one’ with the green book - field researcher and ‘grounded theorist’ on a neonatal unit (in Norwegian)
    • Brinchmann BS. The ‘inquisitive one’ with the green book - field researcher and ‘grounded theorist’ on a neonatal unit (in Norwegian). Vård i Norden [Nurs Sci Res Nordic Countries] 1998; 18(3): 20-25.
    • (1998) Vård i Norden [Nurs Sci Res Nordic Countries] , vol.18 , Issue.3 , pp. 20-25
    • Brinchmann, B.S.1
  • 4
    • 5944228524 scopus 로고    scopus 로고
    • Ethical decisions about neonates in Norway [Abstract]
    • Brinchmann BS. Ethical decisions about neonates in Norway [Abstract]. IMAGE J Nurs Schol 1999; 31(3): 276-277.
    • (1999) IMAGE J Nurs Schol , vol.31 , Issue.3 , pp. 276-277
    • Brinchmann, B.S.1
  • 5
    • 0033618761 scopus 로고    scopus 로고
    • Vitality as a criterion of the prognosis of premature infants? (in Norwegian)
    • Brinchmann BS. Vitality as a criterion of the prognosis of premature infants? (in Norwegian). Tidskr Nor Laegeforen [J Norwegian Med Assoc] 1999; 119: 2993-2995.
    • (1999) Tidskr Nor Laegeforen [J Norwegian Med Assoc] , vol.119 , pp. 2993-2995
    • Brinchmann, B.S.1
  • 6
    • 0034149748 scopus 로고    scopus 로고
    • They have to show that they can make it: vitality as a criterion for the prognosis of premature infants
    • Brinchmann BS. They have to show that they can make it: vitality as a criterion for the prognosis of premature infants. Nurs Ethics 2000; 7: 141-147.
    • (2000) Nurs Ethics , vol.7 , pp. 141-147
    • Brinchmann, B.S.1
  • 7
    • 0035238293 scopus 로고    scopus 로고
    • Ethical decision making in neonatal units. The normative significance of vitality
    • Brinchmann BS, Nortvedt P. Ethical decision making in neonatal units. The normative significance of vitality. Med Health Care Philos 2001; 4: 193-200.
    • (2001) Med Health Care Philos , vol.4 , pp. 193-200
    • Brinchmann, B.S.1    Nortvedt, P.2
  • 8
    • 0033090267 scopus 로고    scopus 로고
    • When the home becomes a prison: living with a severely disabled child
    • Brinchmann BS. When the home becomes a prison: living with a severely disabled child. Nurs Ethics 1999; 6: 137-143.
    • (1999) Nurs Ethics , vol.6 , pp. 137-143
    • Brinchmann, B.S.1
  • 11
    • 0032770428 scopus 로고    scopus 로고
    • Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal practice in Europe
    • Cuttini M, Rebagliato M, Bortoli P et al. Parental visiting, communication, and participation in ethical decisions: a comparison of neonatal practice in Europe. Arch Dis Child (Fetal Neonat Ed) 1999; 81: F84-F91.
    • (1999) Arch Dis Child (Fetal Neonat Ed) , vol.81 , pp. F84-F91
    • Cuttini, M.1    Rebagliato, M.2    Bortoli, P.3
  • 12
    • 0033629424 scopus 로고    scopus 로고
    • Women physicians’ narratives about being in ethically difficult care situations in paediatrics
    • S⊘rlie V, Lindseth A, Udén G, Norberg A. Women physicians’ narratives about being in ethically difficult care situations in paediatrics. Nurs Ethics 2000; 7: 47-62.
    • (2000) Nurs Ethics , vol.7 , pp. 47-62
    • S⊘rlie, V.1    Lindseth, A.2    Udén, G.3    Norberg, A.4
  • 13
    • 18244419161 scopus 로고    scopus 로고
    • Male physicians’ narratives about being in ethically difficult care situations in paediatrics
    • S⊘rlie V, F⊘rde R, Lindseth A, Norberg A. Male physicians’ narratives about being in ethically difficult care situations in paediatrics. Soc Sci Med 2001; 53: 657-667.
    • (2001) Soc Sci Med , vol.53 , pp. 657-667
    • S⊘rlie, V.1    F⊘rde, R.2    Lindseth, A.3    Norberg, A.4
  • 15
    • 0025439234 scopus 로고
    • The parents’ perspective: ethical decision-making in neonatal intensive care
    • Pinch WJ, Spielman ML. The parents’ perspective: ethical decision-making in neonatal intensive care. J Adv Nurs 1990; 15: 712-719.
    • (1990) J Adv Nurs , vol.15 , pp. 712-719
    • Pinch, W.J.1    Spielman, M.L.2
  • 16
    • 0027651976 scopus 로고
    • Parental perceptions of ethical post-NICU discharge
    • Pinch WJ, Spielman ML. Parental perceptions of ethical post-NICU discharge. West J Nurs Res 1993; 15: 422-440.
    • (1993) West J Nurs Res , vol.15 , pp. 422-440
    • Pinch, W.J.1    Spielman, M.L.2
  • 17
    • 2842606070 scopus 로고    scopus 로고
    • Ethics in the neonatal intensive care unit: parental perceptions at four years postdischarge
    • Pinch WJ, Spielman ML. Ethics in the neonatal intensive care unit: parental perceptions at four years postdischarge. ANS Adv Nurs Sci 1996; 19(1): 72-85.
    • (1996) ANS Adv Nurs Sci , vol.19 , Issue.1 , pp. 72-85
    • Pinch, W.J.1    Spielman, M.L.2
  • 18
    • 0030229579 scopus 로고    scopus 로고
    • Life support decisions for children: what do parents value?
    • Kirschbaum MS. Life support decisions for children: what do parents value? ANS Adv Nurs Sci 1996; 19(1): 51-71.
    • (1996) ANS Adv Nurs Sci , vol.19 , Issue.1 , pp. 51-71
    • Kirschbaum, M.S.1
  • 19
    • 0035072460 scopus 로고    scopus 로고
    • Deciding for imperilled newborns: medical authority or parental autonomy?
    • McHaffie HE, Laing IA, Parker M, McMillan J. Deciding for imperilled newborns: medical authority or parental autonomy? J Med Ethics 2001; 27: 104-109.
    • (2001) J Med Ethics , vol.27 , pp. 104-109
    • McHaffie, H.E.1    Laing, I.A.2    Parker, M.3    McMillan, J.4
  • 21
    • 0032580825 scopus 로고    scopus 로고
    • Ethical dilemmas associated with hypoplastic left-heart syndrome (in Norwegian)
    • F⊘rde R, Vandvik IH. Ethical dilemmas associated with hypoplastic left-heart syndrome (in Norwegian). Tidsskr Nor Laegeforen [J Norwegian Med Assoc] 1998; 118: 2649-2652.
    • (1998) Tidsskr Nor Laegeforen [J Norwegian Med Assoc] , vol.118 , pp. 2649-2652
    • F⊘rde, R.1    Vandvik, I.H.2
  • 22
    • 0033779266 scopus 로고    scopus 로고
    • Ethical issues in parental decision making. An interview study of mothers of children with hypoplastic left heart syndrome
    • Vandvik IH, F⊘rde R. Ethical issues in parental decision making. An interview study of mothers of children with hypoplastic left heart syndrome. Acta Paediatr 2000; 89: 1129-1133.
    • (2000) Acta Paediatr , vol.89 , pp. 1129-1133
    • Vandvik, I.H.1    F⊘rde, R.2
  • 23
    • 0042726568 scopus 로고    scopus 로고
    • The attitude among parents of extremely premature newborns regarding the treatment of their child (in Danish)
    • Munck SES, Skov L, Sylvest A et al. The attitude among parents of extremely premature newborns regarding the treatment of their child (in Danish). Ugeskr Laeger [J Dan Med Assoc] 1997; 159: 7488-7491.
    • (1997) Ugeskr Laeger [J Dan Med Assoc] , vol.159 , pp. 7488-7491
    • Munck, S.E.S.1    Skov, L.2    Sylvest, A.3
  • 24
    • 84992768915 scopus 로고    scopus 로고
    • Limits for the treatment of prematurely born infants (in Norwegian)
    • Consensus conference 1998 Nov 24-25 (Report no. 13 from the Committee for the Consensus Conference Programme.) Oslo: Norwegian Research Council
    • Norwegian Research Council. Limits for the treatment of prematurely born infants (in Norwegian). Consensus conference 1998 Nov 24-25 (Report no. 13 from the Committee for the Consensus Conference Programme.) Oslo: Norwegian Research Council, 1999.
    • (1999)
  • 25
    • 0035468518 scopus 로고    scopus 로고
    • Neonatal medicine in Norway
    • Brinchmann BS. Neonatal medicine in Norway. J Clin Ethics 2001; 12: 307-311.
    • (2001) J Clin Ethics , vol.12 , pp. 307-311
    • Brinchmann, B.S.1
  • 30
    • 0040272447 scopus 로고
    • Sampling issues and family research: recruitment and sampling strategies
    • In: Feetham SL, Meister, SB, Bell JM, Gillis, CL eds. Newbury Park, CA: SAGE
    • Moriarty HJ, Cotroneo M. Sampling issues and family research: recruitment and sampling strategies. In: Feetham SL, Meister, SB, Bell JM, Gillis, CL eds. The nursing of families. Newbury Park, CA: SAGE, 1993: 79-89.
    • (1993) The nursing of families , pp. 79-89
    • Moriarty, H.J.1    Cotroneo, M.2
  • 31
    • 0020107713 scopus 로고
    • Be honest but not cruel: staff/parent communication on a neonatal unit
    • Bogdan R, Brown MA, Foster SB. Be honest but not cruel: staff/parent communication on a neonatal unit. Hum Organ 1982; 41(1): 6-16.
    • (1982) Hum Organ , vol.41 , Issue.1 , pp. 6-16
    • Bogdan, R.1    Brown, M.A.2    Foster, S.B.3
  • 32
    • 0032419666 scopus 로고    scopus 로고
    • The rights and duties of parents in the neonatal unit: the limits of informed consent
    • Stenson B, McIntosh N. The rights and duties of parents in the neonatal unit: the limits of informed consent. Semin Neonatol 1998; 3: 291-296.
    • (1998) Semin Neonatol , vol.3 , pp. 291-296
    • Stenson, B.1    McIntosh, N.2
  • 33
    • 0031667552 scopus 로고    scopus 로고
    • Patients’ preferences for participation in clinical decision making: a review of published surveys
    • Benbassat J, Pilpel D, Tidhar M. Patients’ preferences for participation in clinical decision making: a review of published surveys. Behav Med 1998; 24(2): 81-88.
    • (1998) Behav Med , vol.24 , Issue.2 , pp. 81-88
    • Benbassat, J.1    Pilpel, D.2    Tidhar, M.3
  • 35
    • 0002115631 scopus 로고    scopus 로고
    • Notre Dame, IN: University Notre Dame Press
    • L⊘gstrup KE. The ethical demand. Notre Dame, IN: University Notre Dame Press, 1997.
    • (1997) The ethical demand
    • L⊘gstrup, K.E.1
  • 36
    • 0346883809 scopus 로고
    • vol. I. Milwaukee, WI: Marquette University Press
    • L⊘gstrup KE. Metaphysics, vol. I. Milwaukee, WI: Marquette University Press, 1995.
    • (1995) Metaphysics
    • L⊘gstrup, K.E.1
  • 37
    • 11244300334 scopus 로고    scopus 로고
    • The phenomenological ethics of KE L⊘gstrup - a resource for health care ethics and philosophy?
    • Holm S. The phenomenological ethics of KE L⊘gstrup - a resource for health care ethics and philosophy? Nurs Philos 2001; 2: 26-33.
    • (2001) Nurs Philos , vol.2 , pp. 26-33
    • Holm, S.1
  • 38
    • 0004077231 scopus 로고
    • Cambridge, MA: Basil Blackwell
    • Bauman Z. Postmodern ethics. Cambridge, MA: Basil Blackwell, 1993.
    • (1993) Postmodern ethics
    • Bauman, Z.1
  • 41
    • 11244307225 scopus 로고    scopus 로고
    • Critical response to: Holm’s paper. The phenomenological ethics of KE L⊘gstrup-a resource for health care ethics and philosophy?
    • Nortvedt P. Critical response to: Holm’s paper. The phenomenological ethics of KE L⊘gstrup-a resource for health care ethics and philosophy? Nurs Philos 2001; 2: 34-35.
    • (2001) Nurs Philos , vol.2 , pp. 34-35
    • Nortvedt, P.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.