Parents' experiences of having a child with cleft lip and palate

Journal of Advanced Nursing

Volumn 47, Issue 2, 2004, Pages 165-173

  Johansson, Barbro ^a   Ringsberg, Karin C ^b  

^a KAROLINSKA INSTITUTE   (Sweden)

^b NORDIC SCHOOL OF PUBLIC HEALTH   (Sweden)

Author keywords

Breast feeding; Cleft lip and palate; Congenital malformation; Nursing; Phenomenography

Indexed keywords

ADAPTATION; ADULT; ANXIETY; ARTICLE; CLEFT LIP; CLEFT PALATE; CONTROLLED STUDY; FAMILY; FEEDING; FEMALE; FRIEND; HUMAN; INTERVIEW; MALE; PARENT COUNSELING; PARENTAL BEHAVIOR; SOCIAL SUPPORT; SPEECH DISORDER; SWEDEN; UNIVERSITY HOSPITAL;

ADAPTATION, PSYCHOLOGICAL; ADULT; ATTITUDE OF HEALTH PERSONNEL; ATTITUDE TO HEALTH; CHILD, PRESCHOOL; CLEFT LIP; CLEFT PALATE; FEMALE; HUMANS; INFANT; INFANT, NEWBORN; MALE; PARENTS; PROFESSIONAL-FAMILY RELATIONS; SOCIAL SUPPORT; SWEDEN;

EID: 3242694147     PISSN: 03092402     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2004.03075.x     Document Type: Article

References (29)

1. Ajzen I. (1989) Attitude structure and behaviour. In Attitude Structure and Function (Pratkanis A.R., Breckler S.J. & Greenwald A.G., eds), Lawrence Erlbaum Associates Inc., Publishers, New Jersey, pp. 241-267.
2. Baumgarten M., Siemiatycki J. & Gibbs G.W. (1983) Validity of work histories obtained by interview for epidemiologic purposes. American Journal of Epidemiology 118(4), 583-591.
3. Brattström V. (1991) Craniofacial development in cleft and palate children related to different treatment regimes. Doctoral Dissertation, Karolinska Institutet, Stockholm.
4. Broder H.L., Smith F.B. & Strauss R.P. (1992) Habilitation of patients with clefts: parent and child ratings of satisfaction with appearance and speech. Cleft Palate-Craniofacial Journal 29(3), 262-267.
5. Coy K., Speltz M.L. & Jones K. (2002) Facial appearance and attachment in infants with orofacial clefts: a replication. Cleft Palate-Craniofacial Journal 39(1), 66-72.
6. Eliasson M.J., Hardin M.A. & Odin W.H. (1991) Factors that influence the ratings of facial appearance for children with cleft lip and palate. Cleft Palate-Craniofacial Journal 28(2), 190-194.
7. Heliövaara A. (1993) One-stage repair of isolated cleft palate. Doctoral Dissertation, University of Helsinki, Helsinki.
8. Hoekelman R.A., Adam H.M., Nelson N.M., Weitzman M.L. & Wilson M.H. (2001) Primary Paediatric Care. Mosby, London.
9. Hull D. & Johnston D.I. (1999) Essential Paediatrics. Churchill Livingstone, London.
10. Kalland M. (1995) Psychosocial aspects of cleft lip and palate. Implication for parental education. Doctoral Dissertation, University of Helsinki, Helsinki.
11. Lepp M. & Ringsberg K.C. (2002) Phenomenography a qualitative research approach. In Qualitative Methods in Public Health Research: Theoretical Foundation and Practical Examples (Hallberg L.M.R., ed.), Studentlitteratur, Lund, pp. 105-135.
12. Martin C.J. (1987) Monitoring maternity services by postal questionnaire. Congruity between mothers' reports and their obstetrics records. Statistics in Medicine 6, 613-627.
13. Marton F. (1986) Phenomenography - a research approach to investigate different understandings of reality. Journal of Thought 21(3), 28-49.
14. Milner A.D. & Hull D. (1998) Hospital Paediatrics. Churchill Livingstone, London.
15. Moss L. & Goldstein M. (1979) The Recall Method in Social Surveys. Institute of Education, University of London, London.
16. Nilsen A. (1992) Women's Ways of Careering. A Life-Course Approach to the Occupational Careers of Three Cohorts of Engineers and Teachers. Department of Sociology, University of Bergen, Bergen.
17. Oliver R.G. & Jones G. (1997) Neonatal feeding of infants born with cleft lip and/or palate parental perceptions of their experience in South Wales. Cleft Palate-Craniofacial Journal 34(6), 526-532.
18. Ostrom T.S. (1989) Independence of attitude theory and measurement. In Attitude Structure and Function (Pratikanis A.R., Breckler S.J. & Greenwald A.G., eds), Lawrence Erlbaum Associates Publishers, London, pp. 11-15.
19. Paterson J. & Zderad L. (1976). Humanistic Nursing. Wiley, New York.
20. Ringsberg K.C., Alexandersson K., Borg K. & Hensing G. (2001) The health-line-a method for collecting data on selfrated health over time. Scandinavian Journal of Public Health 29, 233-239.
21. Ringsberg K.C., Lepp M. & Finnström B. (2002) Experiences by patients with asthma-like symptoms as a problem-based learning health education programme. Family Practice 19, 290-293.
22. Robert E., Killeen B. & Harris J. (1996) The epidemiology of orofacial clefts. Some general epidemiological characteristics. Journal of Craniofacial Genetics Developmental Biology 16, 234-241.
23. Slade P., Bishop C.S. & Jowett A.R. (1995) Relationships between cleft severity and attractiveness of new-borns with unrepaired clefts. Cleft Palate-Craniofacial Journal 34(4), 318-322.
24. Stewart W.F., Tonascia J.A. & Matanoski G.M. (1987) The validity of questionnaire-reported work histories in live respondents. Journal of Occupational Medicine 29(10), 795-800.
25. Svensson L. (1997) Theoretical foundations of phenomenography. Higher Education Research and Development 16(2), 159-171.
26. Theorell T., Blomkvist V., Lindh G. & Evengård B. (1999) Critical life events, infections and symptoms during the year preceding chronic fatigue syndrome (CFS): an examination of CFS patients and subjects with non-specific life crisis. Psychosomatic Medicine 61, 304-310.
27. Tobiasen J.M. & Hiebert J.M. (1993) Combined effects of severity of cleft impairment and facial attractiveness on social perception: an experimental study. Cleft Palate-Craniofacial Journal 30(1), 82-86.
28. Torbjörnsson C.B., Michèlsen H. & Kilbom Å. (1999) Method for retrospective collection of work-related psychosocial risk factors for musculoskeletal disorders: reability and aggregation. Journal of Occupational Health and Psychology 4(3), 193-206.
29. Young J.L., O'Riordan M., Goldstein J.A. & Robin N.H. (2001) What information do parents of new-borns with cleft lip, palate, or both want to know? Cleft Palate-Craniofacial Journal 38(1), 55-58.