Genetics education in the nursing profession: Literature review

Journal of Advanced Nursing

Volumn 54, Issue 2, 2006, Pages 228-237

  Burke, Sarah ^a   Kirk, Maggie ^b  

^a UNIVERSITY OF BIRMINGHAM   (United Kingdom)

^b UNIVERSITY OF GLAMORGAN   (United Kingdom)

Author keywords

Curriculum development; Genetics; Literature review; Nurse education

Indexed keywords

ARTICLE; CLINICAL COMPETENCE; CURRICULUM; EDUCATION; GENETICS; HUMAN; LEARNING; METHODOLOGY; NURSING EDUCATION;

CLINICAL COMPETENCE; CURRICULUM; EDUCATION, NURSING; EDUCATION, NURSING, CONTINUING; GENETICS; HUMANS; LEARNING;

EID: 33645158080     PISSN: 03092402     EISSN: 13652648     Source Type: Journal    
DOI: 10.1111/j.1365-2648.2006.03805.x     Document Type: Article

References (77)

1. Anderson G.W. (1996) The evolution and status of genetics education in nursing in the United States 1983-1995. Image: Journal of Nursing Scholarship 28(2), 101-106.
2. Association of Genetics Nurses and Counsellors (AGNC) Education Working Group (2002) Education in Genetics for Health Professionals not Working in Specialist Genetic Units, Reports for the Genetics Policy Unit, Department of Health. AGNC, Birmingham.
3. Augustine G., Hodgkiss S., Tonks A. & Francis A. (2005) Antenatal Screening in the West Midlands, Third Report. Haemoglobinopathy Screening: regional report to the NHS Sickle Cell and Thalassaemia Screening Programme Subgroup. Perinatal Institute, Birmingham.
4. Bankhead C., Emery J., Qureshi N., Campbell H., Austoker J. & Watson E. (2001) New developments in genetics - knowledge, attitudes and information needs of practice nurses. Family Practice 18, 475-486.
5. Bennett C., Haydon J., Metcalfe A. & Farndon P. (2004) What do midwives think about genetics? The implications for genetics education of midwives' views on the importance of genetics andtheir rating of their own competence. Journal of Medical Genetics 41(S1), S86.
6. Bernhardt B.A., Geller G., Doksum T., Larson S.M., Roter D. & Holtzman N.A. (1998) Prenatal genetic testing: content of discussions between obstetric providers and pregnant women. Obstetrics and Gynecology 91, 648-655.
7. Bramwell R. & Carter D. (2001) An exploration of midwives' and obstetricians' knowledge of genetic screening in pregnancy and their perception of appropriate counselling. Midwifery 17(2), 133-141.
8. Burke S., Bedward J., Thomas H. & Farndon P. (2005) Genetic Education for Non-Genetics SpRs: A Needs Analysis. University of Birmingham, Birmingham.
9. Burton H. (2003) Addressing Genetics, Delivering Health: A Strategy for Advancing the Dissemination and Application of Genetics Knowledge throughout our Health Professions. Public Health Genetics Unit, Cambridge.
10. Burton H. & Shuttleworth A. (2003) Genetics education for midwives. RCM Midwives Journal 6(4), 162-164.
11. Burton H. & Stewart A. (2003) From Mendel to the Human Genome Project: the implications for nurse education. Nurse Education Today 23(5), 380-385.
12. Calzone K.A., Jenkins J. & Masny A. (2002) Core competencies in cancer genetics for advanced practice oncology nurses. Oncology Nursing Forum 29(9), 1327-1333.
13. Challen K., Harris H., Julian-Reynier C., ten Kate L.P., Kristoffersson U., Nippert I., Schmidtke J., Benjamin C., Harris R. & GenEd Research Group (2005) Genetic education and nongenetic health professionals. Education providers and curricula in Europe: Genetics in Medicine 7(5), 302-310.
14. Chorley W. & MacDermot K. (1997) Who should talk to patients with cancer about genetics? British Medical Journal 314, 441 (Letters).
15. Clancy J., McVicar A. & Bird D. (2000) Getting it right? An exploration of issues relating to the biological sciences in nurse education and nursing practice. Journal of Advanced Nursing 32(6), 1522.
16. Department of Health (2003) Our Inheritance, our Future. Realising the Potential of Genetics in the NHS. HMSO, London.
17. Dyson S.M., Fielder A.V. & Kirkham M.J. (1996) Midwives' and senior student midwives' knowledge of haemaglobinopathies in England. Midwifery 12(1), 23-30.
18. Emery J., Watson E., Rose P. & Andermann A. (1999) A systematic review of the literature exploring the role of primary care in genetic services. Family Practice 16(4), 426-445.
19. Foundation for Blood Research (2005) Practice-Based Genetics Curriculum for Nurse Educators. Retrieved from http:// www.fbr.org on 14 April 2005.
20. Gaff C., Aittomaki K. & Williamson R. (2001) Oncology nurse training in cancer genetics. Journal of Medical Genetics 38, 691-695.
21. Gill C. (2004) Review of Resources Currently Available to Support Haemoglobinopathy Screening Programmes in England. NHS Sickle Cell and Thalassaemia Screening Programme, London.
22. Gill C. & Cryer A. (2004) East Midlands: Review of Current Haemoglobinopathy Screening Programmes and Services. Kettering: Regional Antenatal Screening Co-ordinator, East Midlands.
23. Grant S.S. (2000) Prenatal genetic screening. Online Journal of Issues in Nursing 5(3), 3.
24. Harcombe J. & Fairgrieve S. (2004) National Training Needs Analysis for Antenatal Screening Services across England. Report to the UK National Screening Committee by the Regional Antenatal Screening Teams. National Screening Committee, Kettering.
25. Hayflick S.J. & Eiff M.P. (2002) Will the learners be learned? Genetics in Medicine 4(2), 43-44.
26. Hetteberg C. & Prows C.A. (2004) A checklist to assist in the integration of genetics into nursing curricula. Nursing Outlook 52(2), 85-88.
27. Horner S.D., Abel E., Taylor K. & Sands D. (2004) Using theory to guide the diffusion of genetics content in nursing curricula. Nursing Outlook 52(2), 80-84.
28. Howlett-Shipley R. & Appleby L. (2004) South West Region; Care Pathways for Antenatal and Neonatal Haemoglobinopathy Screening. NHS Sickle Cell and Thalassaemia Screening Programme, London.
29. International Council of Nurses (2005) Genetics and Nursing. Nursing Matters Fact Sheet. Retrieved from http://www.icn.ch/ matters.htm on 27 April 2005.
30. International Society of Nurses in Genetics (ISONG) (1998) Statement on the Scope and Standards of Genetics Clinical Nursing Practice. American Nurses Association, Washington.
31. International Society of Nurses in Genetics (ISONG) (2000) Informed Decision-Making and Consent: The Role of Nursing. Retrieved from http://www.isong.org on 15 April 2005.
32. International Society of Nurses in Genetics (ISONG) (2002) Genetic Counseling for Vulnerable Populations: the Role of Nursing. Retrieved from http://www.isong.org on 15 April 2005.
33. International Society of Nurses in Genetics (ISONG) (2003) Access to Genomic Healthcare: The Role of the Nurse. Retrieved from http:// www.isong.org on 15 April 2005.
34. International Society of Nurses in Genetics (ISONG) (2005) Educational Resources. Retrieved from http://www.isong.org on 14 April 2005.
35. Jenkins J.F. (2000) An historical perspective on genetic care. Online Journal of Issues in Nursing 5(3), 2.
36. Jenkins J.F., Dimond E. & Steinberg S. (2001 a) Preparing for the future through genetics nursing education. Journal of Nursing Scholarship 33(2), 191-195.
37. Jenkins J.F., Prows C., Dimond E., Monsen R. & Williams J. (2001b) Recommendations for educating nurses in genetics. Journal of Professional Nursing 17(6), 283-290.
38. Julian-Reynier C., Harris H., ten Kate L., Kristoffersson U., Nippert I., Schmidtke J., Benjamin C., Challen K. & Harris R. (2005) Nongenetic Health Professionals' Confidence in Caring for Individuals and Families with Genetic Conditions: Preliminary Data from the European GenEd study. Healthcare, genetics and education, European Symposium of Genetic Education for Non-Genetic Health Professionals. Published Proceedings. GenEd Research Group, Manchester.
39. Kennedy S.J., Blough R.A., Kenner C.A. & Walker M.E. (1998) An assessment of two training interventions designed to increase the knowledge of obstetrical nurses and nurse-midwives about the maternal serum triple screen. Prenatal Diagnosis 18(7), 713-720.
40. Khalid L., Price S.M. & Barrow M. (1994) The attitudes of midwives to maternal serum screening for Down's syndrome. Public Health 108(2), 131-136.
41. Kirk M. (1999a) Preparing for the future; the status of genetics education in diploma-level training courses for nurses in the UK. Nurse Education Today 19(2), 107-115.
42. Kirk M. (1999b) Nurse Education and the New Genetics: Preparing the Practitioners of the Future. A report of an Expert Advisory Panel. University of Glamorgan, Pontypridd.
43. Kirk M. (2000) Genetics, ethics and education: considering the issues for nurses and midwives. Nursing Ethics 7(3), 215-226.
44. Kirk M. (2004a) Nursing research and genetics: a priority for 21st century Europe? In Published proceedings 8th Encuentro de Investigation en Enfermeria. Editors: Unidad de coordinatión y desarrollo de la Investigación en Enfermeria, Sevilla, pp. 165-167. ISBN 84-688-8934-2.
45. Kirk M. (2004b) Nursing through the genetics lens: convergent thinking on education and professional development. Nurse Education Today 24, 1-3 (Guest Editorial).
46. Kirk M., McDonald K., Longley M. & Anstey S. (2003) Fit for Practice in the Genetics Era: A Competence-Based Education Framework for Nurses, Midwives and Health Visitors. University of Glamorgan, Pontypridd.
47. Lea D.H. (2000) A new world view of genetics service models. Online Journal of Issues in Nursing 5(3), 5.
48. Lea D.H. (2002) Position statement: integrating genetics competencies into baccalaureate and advanced nursing education. Nursing Outlook 50(4), 167-168.
49. Lea D.H. (2003) Look back to move forward: how genetics changes daily practice. Nursing Management 34(11), 19-25.
50. Lea D.H. & Monsen R.B. (2003) Preparing nurses for a 21st Century role in genomics-based health care. Nursing Education Perspective 24(2), 75-79.
51. Lea D.H. &Thomas-Lawson M. (2001) Bringing genetics into the classroom: a practice-based approach. Nursing and Health Care Perspectives 22(3), 146-151.
52. Lea D.H. & Tinley S.T. (1998) Genetics in the OR: implications for perioperative nursing practice. AORN Journal 67(6), 1175-1178.
53. Lea D.H., Feetham S.L. & Monsen R.B. (2002) Genomic-based health care in nursing: a bi-directional approach to bringing genetics into nursing's body of knowledge. Journal of Professional Nursing 18(3), 120-129.
54. Lessick M. &Anderson L. (2000) Genetic discoveries: challenges for nurses who care for children and their families. Journal of the Society of Pediatric Nurses 5(1), 47-51.
55. Lloyd-Puryear M.A. &Forsman I. (2002) Newborn screening and genetic testing. Journal of Obstetric, Gynecologic, and Neonatal Nursing 31, 200-207.
56. MacDonald D.J. (1997) The oncology nurse's role in cancer risk assessment and counseling. Seminars in Oncology Nursing 13(2), 123-128.
57. Maclean D.E. (1976) Recent advances in human genetics - implications for nursing education curriculum. Journal of Advanced Nursing 1, 303-310.
58. Marteau T.M., Kidd S.J. &Shaw R.W. (1992) Presenting a routine screening test in antenatal care: practice observed. Public Health 106(2), 131-141.
59. McGregor S. (2005) Integrating the New Genetics into Health Education Practice: Exploring the Challenges for Midwives, Nurses and Health Visitors in Primary Care. Unpublished MPhil Thesis, University of Glamorgan, Pontypridd.
60. Metcalfe A. & Burton H. (2003) Postregistration genetics education provision for nurses, midwives and health visitors in the UK. Journal of Advanced Nursing 44(4), 350-359.
61. Monsen R.B., Anderson G., New F., Ledbetter S., Frazier L.G., Smith M.E. & Wilson M. (2000) Nursing education and genetics: miles to go before we sleep. Nursing and Health Care Perspectives 21(1), 34-37.
62. National Coalition for Health Professional Education in Genetics (NCHPEG) (2001) Core Competencies in Genetics Essential for all Healthcare Professionals. Retrieved from http://www.nchpeg.org on 11 April 2005.
63. National Coalition for Health Professional Education in Genetics (NCHPEG) (2004) Principles of Genetics for Health Professionals. Retrieved from http://www.nchpeg.org on 11 April 2005.
64. National Genetics Education and Development Centre (NGEDC) (2005) Nursing Professions. Retrieved from http://www.genetics education.nhs.uk on 14 April 2005.
65. NHS Sickle Cell and Thalassaemia Screening Programme (2004) Information for Midwives. NHS Sickle Cell and Thalassaemia Screening Programme, London.
66. Nicol M.J. (2002) The teaching of genetics in New Zealand undergraduate nursing programmes. Nurse Education Today 22(5), 401-408.
67. PEGASUS (2005) PEGASUS: Professional Education for Genetic Assessment and Screening. Retrieved from http://www.pegasus.nhs.uk on 12 April 2005.
68. Prows C.A., Hetteberg C., Johnson N., Latta K., Lovell A., Saal H.M. & Warren N.S. (2003) Outcomes of a genetics educationprogram for nursing faculty. Nursing Education Perspectives 24(2), 81-85.
69. Rieger P.T. & Tinley S.T. (2000) Cancer genetics and nursing practice: what every gastroenterology nurse needs to know. Gastroenterology Nursing 23(1), 28-39.
70. Sedgwick J. & Streetly A. (2001) A Survey of Haemoglobinopathy Screening Policy and Practice in England. NHS Haemoglobinopathy Screening Programme, London.
71. Skirton H. & Patch C. (2000) The new genetics and nursing: what does it have to do with me? Nursing Standard 14(19), 42-46.
72. Smith D.K., Shaw R.W., Slack J. & Marteau T.M. (1995) Training obstetricians and midwives to present screening tests: evaluation of two brief interventions. Prenatal Diagnosis 15(4), 317-324.
73. Swank C.O., Christianson C.A., Prows C.A., West E.B. & Steinberg W. (2001) Effectiveness of a genetics self-instructional module for nurses involved in egg donor screening. Journal of Obstetric, Gynecologic, and Neonatal Nursing 30(6), 617.
74. Watson E.K., Shickle D., Qureshi N., Emery J. & Austoker J. (1999) The 'new genetics' and primary care: GPs' views on their role and their educational needs. Family Practice 16, 420-425.
75. Whitelaw S. (2003) Ehlers-Danlos syndrome, classical type: case management. Pediatric Nursing 29(6), 423-426.
76. Zamerowski S.T. (2000) A model for integrating genetics into nursing education. Nursing and Health Care Perspectives 21(6), 298-304.
77. Zawacki K.L. & Phillips M. (2002) Cancer genetics and women's health. Journal of Obstetric, Gynecologic, and Neonatal Nursing 31, 208-216.