Sharing decisions in cancer care

Social Science and Medicine

Volumn 52, Issue 12, 2001, Pages 1865-1878

  Gattellari, Melina ^a   Butow, Phyllis N ^a,b   Tattersall, Martin H N ^a  

^a UNIVERSITY OF SYDNEY   (Australia)

^b ROYAL NORTH SHORE HOSPITAL   (Australia)

Author keywords

Australia; Cancer; Decision making; Doctor patient communication

Indexed keywords

ADULT; ANXIETY; ARTICLE; CANCER; CANCER PATIENT; CLINICAL TRIAL; CONSULTATION; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; DECISION MAKING; DOCTOR PATIENT RELATION; EMOTION; HUMAN; MAJOR CLINICAL STUDY; MULTIVARIATE ANALYSIS; PATIENT INFORMATION; PATIENT SATISFACTION; PROGNOSIS; RANDOMIZED CONTROLLED TRIAL;

ADAPTATION, PSYCHOLOGICAL; ADULT; ANXIETY; CHI-SQUARE DISTRIBUTION; COMMUNICATION; DECISION MAKING; EMPATHY; HUMANS; INFORMATION SERVICES; LINEAR MODELS; MENTAL RECALL; NEOPLASMS; NEW SOUTH WALES; PATIENT PARTICIPATION; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; PROSPECTIVE STUDIES; ROLE;

EID: 0035019148     PISSN: 02779536     EISSN: None     Source Type: Journal    
DOI: 10.1016/S0277-9536(00)00303-8     Document Type: Article

References (58)

1. AHCPR. (1995). Using clinical practice guidelines to evaluate the quality of care. US Department of Health and Human Services, Public Health Service. Agency for Health Care Policy and Research, AHCPR Publ No 95-0045.
2. Ashcroft, J. J., Leinster, S. J., & Slade, P. D. (1986). Mastectomy vs breast conservation: Psychological effects of patient choice of treatment. In: M. Watson, & S. Greer (Eds.), Psychological issues in malignant disease (pp. 55-71). Oxford: Pergamon Press.
3. Balint J. Regaining the initiative. Forging a new model of the patient-physician relationship Journal of the American Medical Association. 275:1996;887-891.
4. Barry M.J., Cherkin D.C., Chang Y., Fowler F.J. Jr., Skates S. A randomized trial of a multimedia shared decision-making program for men facing a treatment decision for benign prostatic hyperplasia. Disease Management and Clinical Outcomes. 1:1997;5-14.
5. Beaver K., Luker K.A., Owens R.G., Leinster S.J., Degner L.F. Treatment decision making in women newly diagnosed with breast cancer. Cancer Nursing. 19:1996;8-19.
6. Bilodeau B.A., Degner L.F. Inforamtion needs, sources of information, and decisional roles in women with breast cancer. Oncology Nursing Forum. 23:1996, 691-696.
7. Butow P.N., Dunn S.M., Tattersall M.H.N., Jones Q.J. Patient participation in the cancer consultation. Evaluation of a question prompt sheet Annals of Oncology. 5:1994;199-204.
8. Butow P.N., Maclean M., Dunn S.M., Tattersall M.H.N., Boyer M.J. The dynamics of change. Cancer patients’ preferences for information, involvement and support Annals of Oncology. 8:1997;857-863.
9. Cassileth B.R., Zupkis R.V., Sutton Smith K., March V. Information and participation preferences among cancer patients. Annuals of Internal Medine. 92:1980;832-836.
10. Charles C., DeMaio S. Lay participation in health care decision making. A conceptual framework Journal of Health Politics Policy, and Law. 18:1993;881-904.
11. Charles C., Gafni A., Whelan T. Shared decision making in the medical encounter. What does it mean? (Or it takes at least two to tango). Social Science and Medicine. 44:1997;681-692.
12. Chassin M.R. Explaining geographic variations. Medical Care. 31(suppl.):1993;YS37-44.
13. Climent J. US Senate passes patients’ bill of rights (news). British Medical Journal. 319:1999;209.
14. Cohen F., Lazarus R.S. Coping with the stress of illness. Stone G.F., Cohen Adler F. Health Psychology. 1979;217-224 Jossey-Bass, San Francisco.
15. Conill C., Verger E., Salamero M. Performance status assessment in cancer patients. Cancer. 65:1990;1864-1866.
16. Degner L.F., Sloan J.A. Decision making during serious illness. What role do patients really want to play? Journal of Clinical Epidemiology. 45:1992;941-950.
17. Degner L.F., Kristjanson L.J., Bowman D., Sloan J.A., Carriere K.C., O’Neil J., Bilodeau B., Watson P. Information needs and decisional preferences in women with breast cancer. Journal of the American Medical Association. 277:1997;1485-1492.
18. Degner L.F., Sloan J.A., Venkatesh P. The control preferences scale. Canadian Journal of Nursing Research. 29:1997;21-43.
19. Department of Health. The Patient’s Charter and You -a Charter for England. www.doh.gov.uk/pcharter/patienth.htm.
20. Emmanuel E.J., Emanuel L.L. Four models of the physician-patient relationship. Journal of American Medical Association. 267:1992;2221-2389.
21. Fallowfield L.J., Hall A., Maguire P., Baum M. Psychological outcomes of different treatment policies in women with early breast cancer outside a clinical trial. British Medical Journal. 301:1990;575-580.
22. Fallowfield L.J., Hall A., Maguire P., Baum M., A’Hern R.P. Psychological effects of being offered choice of surgery for breast cancer. British Medical Journal. 309:1994;448.
23. Fallowfield L.J., Hall A., Macguire P., Baum M., A’Hern R.P. A question of choice. Results of a prospective 3 year follow-up study of women with breast cancer The Breast. 3:1994;202-208.
24. Fallowfield L. Offering choice of surgical treatment to women with breast cancer. Patient Education and Counseling. 30:1997;209-214.
25. Feste C., Anderson R.M. Empowerment. From philosophy to practice Patient Education and Counseling. 26:1995;139-144.
26. Ford S., Fallowfield L., Lewis S. Doctor-patient interactions in oncology. Social Science & Medicine. 42:1996;1511-1519.
27. Gafni A., Charles C., Whelan T. The physician-patient encounter. The physician as a perfect agent for the patient versus the informed treatment decision making model Social Science and Medicine. 47:1998;347-354.
28. Gattellari M., Butow P.N., Tattersall M.H. Informed consent. What did the doctor say? [letter; comment] Lancet. 353:1999;1713.
29. Gattellari M., Butow P.N., Tattersall M.H.N., Dunn S.M., MacLeod C.A. Misunderstanding in cancer patients. Why shoot the messenger? Annals of Oncology. 10:1999;39-46.
30. General Accounting Office. (1991). Practice guidelines: the experience of medical specialty societies (pp. 91-11). Washington DC: GAO/PEMD.
31. Greenfield S., Kaplan S., Ware J.E. Expanding patient involvement in care. Annals of Internal Medicine. 102:1985;520-528.
32. Guadagnoli E., Ward P. Patient participation in decision making. Social Science and Medicine. 47:1998;329-339.
33. Harvey, R. (1991). Making it better: Strategies for improving the effectiveness and quality of health services in Australia. National Health Strategy. Background paper. No 8. Canberra: AGPS.
34. Hennekens, C.H., & Buring, J.E. (1987). In: S.L. Mayrent (Ed.), Epidemiology in medicine, Boston: Little Brown and Company.
35. Hosmer D.W., Lemeshow S. Applied logistic regression. 1989;Wiley, Brisbane.
36. Kaplan S.H., Greenfield S., Gandek B., Rogers W.H., Ware J.E. Characteristics of physicians with participatory decision-making roles. Annals of Internal Medicine. 124:1996;487-504.
37. Kaplan, S.H., Greenfield, S., & Ware, J.E. (1989). Assessing the effects of physician-patient interactions on the outcomes of chronic disease. Medical Care, 27, S110-S127.
38. Korsch B.M., Gozzi E.K., Francis V. Gaps in doctor-patient communication. 1. Doctor-patient interaction and patient satisfaction. Pediatrics. 42(5):1968;855-871.
39. Levine M.N., Gafni A., Markham B., MacFarlane D. A bedside decision instrument to elicit a patient’s preferences concerning adjuvant chemotherapy for breast cancer. Annals of Internal Medicine. 117:1992;53-58.
40. Levy S.M., Hebermann R.B., Lee J.K., Lippmann M.E., d’Angelo T. Breast conservation vs mastectomy. Distress sequelae as a function of choice Journal of Clinical Oncology. 7:1989;367-375.
41. Ley P., Bradshaw B.W., Kincey J. A method for increasing patient recall of information presented to them. Psychological Medicine. 3:1973;217-220.
42. Lord R.S.A. Informed consent in Australia. Australian and New Zealand Journal of Surgery. 65:1995;224-228.
43. Marks G., Richardson J.L., Graham J.W. Role of health locus of control beliefs and expectations of treatment efficacy in adjustment of cancer. Journal of Personality and Social Psychology. 51:1986;443-450.
44. Marteau, T., Snowden, A., & Armstrong, D. (1998). Implementing research findings into practice: Beyond the information deficit model. In: A. Haines & A. Donald (Eds.), Getting research into practice, London: BMJ Publishing Group.
45. Morris J., Royle G.T. Choice of surgery for early breast cancer. Pre and postoperative levels of clinical anxiety and depression in patients and their husbands British Journal of Surgery. 74:1987;1017-1019.
46. Neufeld K., Degner L., Dick J. A nursing intervention to foster patient involvement in treatment decisions. Oncology Nursing Forum. 20:1993;631-635.
47. NHMRC. (1999). A guide to the development, implementation and evaluation of clinical practice guidelines. Canberra: Commonwealth of Australia, Australian Government Publishing Service.
48. O’Connor A.M. Effects of framing and level of probability on patients’ preferences for cancer chemotherapy. Journal of Clinical Epidemiology. 42:1989;119-126.
49. O’Connor A.M. Consumer/patient decision support in the new Millenium. Where should our research take us? Canadian Journal of Nursing Research. 29:1997;7-17.
50. O’Connor A.M., Llewellyn-Thomas H.A., Sawka C., Pinfold S.P., To T., Harrison D.E. Physicians’ opinions about decision aids for patients considering systematic adjuvant therapy for axillary-node negative breast cancer. Patient Education and Counseling. 30:1997;143-153.
51. Quill T.E., Brody H. Physician recommendations and patient autonomy. Finding a balance between power and patient choice Annals of Internal Medicine. 125:1996;763-769.
52. Rogers & Whitaker, 175 CLR 479, 490.
53. Roter D.L. Patient participation in the patient provider interaction. The effects of patient question asking on the quality of interaction, satisfaction, and compliance Health Education Monographs. 5:1977;281-315.
54. Spielberger, (1981). Manual for the stait-trait anxiety interview. Palo Alto, CA: Consulting Psychologists Press.
55. Strull W.M., Lo B., Charles G. Do patients want to participate in medical decision making? Journal of the American Medical Association. 252(21):1984;2990-2994.
56. Sutherland H.J., Llewellyn-Thomas H.A., Lockwood G.A., Tritchler D.L., Till J.E. Cancer patients. Their desire for information and participation in treatment decisions Journal of the Royal Society of Medicine. 82:1989;260-263.
57. Ubel P.A., Loewenstein G. The role of decision analysis in informed consent. Choosing between intuition and systematicity Social Science & Medicine. 44:1997;647-656.
58. World Medical Assembly (1964, 1996). The Declaration of Helsinki. British Medical Journal, 313, 1448-1449.