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1
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0001858680
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What would ideal care look like: Invited address
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Edited by Manning FJ, Barondess JA, Washington, DC: National Academy Press
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Holman H: What would ideal care look like: invited address. In Changing Health Care Systems and Rheumatic Disease. Edited by Manning FJ, Barondess JA, Washington, DC: National Academy Press; 1996:35-46.
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(1996)
Changing Health Care Systems and Rheumatic Disease
, pp. 35-46
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Holman, H.1
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2
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0028247416
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Chronic illness: Implications of a new paradigm for health care
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Pawlson G: Chronic illness: Implications of a new paradigm for health care. Journal on Quality Improvement 1994, 20:33-39.
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(1994)
Journal on Quality Improvement
, vol.20
, pp. 33-39
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Pawlson, G.1
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3
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0029432349
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Self-management of chronic illness: Implications for nursing
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Coates VE, Boore JRP: Self-management of chronic illness: implications for nursing. Int J Nurs Stud 1995, 32:628-640.
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(1995)
Int J Nurs Stud
, vol.32
, pp. 628-640
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Coates, V.E.1
Boore, J.R.P.2
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5
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7144233837
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Edited by Wegener ST, Belza BL, Gall EP. Atlanta: American College of Rheumatology
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Rapoff MA: In Adherence In Clinical Care in Rheumatic Disease. Edited by Wegener ST, Belza BL, Gall EP. Atlanta: American College of Rheumatology; 1996:137-140.
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(1996)
Adherence in Clinical Care in Rheumatic Disease
, pp. 137-140
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Rapoff, M.A.1
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6
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84988053655
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Compliance and quality of life: Confessions of a difficult patient
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Liang M: Compliance and quality of life: confessions of a difficult patient. Arthritis Care Res 1989, 2:S71-S74.
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(1989)
Arthritis Care Res
, vol.2
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Liang, M.1
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7
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0030208264
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Patient compliance: Recognition of factors involved and suggestions for promoting compliance with therapeutic regimens
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Cameron C: Patient compliance: recognition of factors involved and suggestions for promoting compliance with therapeutic regimens. Adv Nurs 1996, 24:244-250.
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(1996)
Adv Nurs
, vol.24
, pp. 244-250
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Cameron, C.1
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8
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0026877774
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Developing shared decision-making programs to improve the quality of health care
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Kasper JF, Mulley AG Jr, Wennberg JE: Developing shared decision-making programs to improve the quality of health care. Quality Review Bulletin 1992, 18:183-190.
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(1992)
Quality Review Bulletin
, vol.18
, pp. 183-190
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Kasper, J.F.1
Mulley Jr., A.G.2
Wennberg, J.E.3
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9
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84988233570
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Formal education and five-year mortality in rheumatoid arthritis: Mediation by helplessness scale scores
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Callahan LF, Cordray DS, Wells G, Pincus T: Formal education and five-year mortality in rheumatoid arthritis: mediation by helplessness scale scores. Arthritis Care Res 1996, 9:463-472. Previous work has documented a correlation between lower levels of formal education and mortality. The object of this study was to assess helplessness as a possible mediator of the association between formal education level and 5-year mortality in patients with rheumatoid arthritis. A cohort of 1416 patients from 16 different private practice settings was monitored for 5 years. Results indicated that higher mortality was associated significantly with low formal education, high age, poor scores for activities of daily living, and poor scores on a helplessness scale. When helplessness scale scores were included in a predictive model, years of formal education were no longer a significant predictor. The authors conclude that scores on the helplessness scale appear to mediate a component of the association between formal education level and 5-year mortality.
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(1996)
Arthritis Care Res
, vol.9
, pp. 463-472
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Callahan, L.F.1
Cordray, D.S.2
Wells, G.3
Pincus, T.4
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10
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84988273327
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A biopsychosocial model of disability in rheumatoid arthritis
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Schoenfeld-Smith K, Petroski GF, Hewett JE, Johnson JC, Wright GE, Smarr KL, Walker SE, Parker JC: A biopsychosocial model of disability in rheumatoid arthritis. Arthritis Care Res 1996, 9:368-375. The object of this study was to test and cross-validate a model to predict future psychological and physical disability in rheumatoid arthritis using disease activity, pain, and helplessness as predictive variables. Sixty-three men with rheumatoid arthritis were followed over a 6-month period with baseline, 3-month, and 6-month scores. Path analysis was used to examine the longitudinal relationship among the variables. Path analysis revealed that pain and helplessness were significant mediators between disease activity and future disability in rheumatoid arthritis. This model was supported into cross-validations. This study highlights the role of helplessness and pain as influential factors in the development of disability in rheumatoid arthritis.
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(1996)
Arthritis Care Res
, vol.9
, pp. 368-375
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Schoenfeld-Smith, K.1
Petroski, G.F.2
Hewett, J.E.3
Johnson, J.C.4
Wright, G.E.5
Smarr, K.L.6
Walker, S.E.7
Parker, J.C.8
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11
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0026917464
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The integration of theory with practice: A 12-year case study
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Lorig K, Gonzales V: The integration of theory with practice: a 12-year case study. Health Educ Q 1992, 19:355-368.
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(1992)
Health Educ Q
, vol.19
, pp. 355-368
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Lorig, K.1
Gonzales, V.2
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12
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0031036033
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The relationship of socioeconomic status, race, and modifiable risk factors to outcomes in patients with systemic lupus erythematosus
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Karlson EW, Daltroy LH, Lew RA, Wright EA, Partridge AJ, Fossel AH, Roberts WN, Stern SH, Straaton KV, Wacholtz MC, et al.: The relationship of socioeconomic status, race, and modifiable risk factors to outcomes In patients with systemic lupus erythematosus. Arthritis Rheum 1997, 40:47-56. This study investigated the relationship of selected demographic, clinical, and psychological factors to specific outcomes in systemic lupus erythematosus. Outcomes of interest included disease activity, damage, and health status. Results indicated that low self-efficacy for disease management was associated with greater disease activity, greater organ damage, worse physical function, and worse mental health status. Less social support and lower income at study visit were also associated with many of the outcomes. This study highlights the role of self-efficacy beliefs in a variety of health outcomes in systemic lupus erythematosus.
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(1997)
Arthritis Rheum
, vol.40
, pp. 47-56
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Karlson, E.W.1
Daltroy, L.H.2
Lew, R.A.3
Wright, E.A.4
Partridge, A.J.5
Fossel, A.H.6
Roberts, W.N.7
Stern, S.H.8
Straaton, K.V.9
Wacholtz, M.C.10
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13
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84988216163
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Self-efficacy for arthritis pain: Relationship to perception of thermal laboratory pain stimuli
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Keefe FJ, Lefebvre JC, Maixner W, Salley AN Jr, Caldwell DS: Self-efficacy for arthritis pain: relationship to perception of thermal laboratory pain stimuli. Arthritis Care Res 1997, 10:177-184. This article reports a laboratory study investigating the relationship between self-efficacy belief and pain tolerance. Forty patients with osteoarthritis participated in a single experimental session measuring thermal pain threshold and tolerance. Correlational analyses revealed that individuals with high self-efficacy scores had significantly higher pain thresholds, had higher pain tolerance, and reported thermal pain stimuli as less unpleasant than those with low self-efficacy scores. This study demonstrates a critical role for self-efficacy in pain tolerance and threshold.
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(1997)
Arthritis Care Res
, vol.10
, pp. 177-184
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Keefe, F.J.1
Lefebvre, J.C.2
Maixner, W.3
Salley Jr., A.N.4
Caldwell, D.S.5
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14
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0031205251
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Patient education: Essential to good health care for patients with chronic arthritis
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Holman HR, Lorig KR: Patient education: essential to good health care for patients with chronic arthritis. Arthritis Rheum 1997, 40:1371-1373.
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(1997)
Arthritis Rheum
, vol.40
, pp. 1371-1373
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Holman, H.R.1
Lorig, K.R.2
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15
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0031023489
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Shared decision making in the medical encounter: What does It mean? (or it takes at least two to tango)
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Charles C, Gafni A, Whelan T: Shared decision making in the medical encounter: what does It mean? (or it takes at least two to tango). Soc Sci Med 1997, 44:681-692.
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(1997)
Soc Sci Med
, vol.44
, pp. 681-692
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Charles, C.1
Gafni, A.2
Whelan, T.3
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16
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0030902761
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Information needs and decisional preferences in women with breast cancer
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Degner LF, Kristjanson LJ, Bowman D, Sloan JA, Carriere KC, O'Neil J. Bilodeau B, Watson P, Mueller B: Information needs and decisional preferences in women with breast cancer. JAMA 1997, 277:1485-1492.
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(1997)
JAMA
, vol.277
, pp. 1485-1492
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Degner, L.F.1
Kristjanson, L.J.2
Bowman, D.3
Sloan, J.A.4
Carriere, K.C.5
O'Neil, J.6
Bilodeau, B.7
Watson, P.8
Mueller, B.9
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17
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0030896745
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Patients' preferences for risk disclosure and role in decision making for invasive medical procedures
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Mazur DJ, Hickam DH: Patients' preferences for risk disclosure and role in decision making for invasive medical procedures. J Gen Intern Med 1997, 12:114-117.
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(1997)
J Gen Intern Med
, vol.12
, pp. 114-117
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Mazur, D.J.1
Hickam, D.H.2
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18
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0031158946
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Personalizing choices: Patients' experiences with making treatment decisions
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Kelly-Powell ML: Personalizing choices: patients' experiences with making treatment decisions. Res Nurs Health 1997, 20:219-227. The author interviewed 18 adults ages 26 to 81 with a diagnosis of heart disease, renal failure, or cancer to explore their decision-making processes regarding treatment options. The core variable identified was labeled Personalizing Choices. The author found that the choices respondents made were based on past family and personal events, current personal views of themselves and their relationships with significant others, and anticipations of the future. Respondents' perceptions of the effect of treatment on the course of their lives was more important in their decision making than were considerations of the medical effectiveness of treatment. This difference in focusing on the personal self as opposed to the treatment was striking and universal among these respondents.
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(1997)
Res Nurs Health
, vol.20
, pp. 219-227
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Kelly-Powell, M.L.1
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19
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84937292550
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What explains the association between socioeconomic status and health: Primarily access to medical care or mind-body variables?
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Pincus T, Callahan LF: What explains the association between socioeconomic status and health: primarily access to medical care or mind-body variables? Advances 1995, 11:4-36.
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(1995)
Advances
, vol.11
, pp. 4-36
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Pincus, T.1
Callahan, L.F.2
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20
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84988268317
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Education, self-care, and outcomes of rheumatic diseases: Further challenges to the "biomedical model" paradigm
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Callahan LF, Pincus T: Education, self-care, and outcomes of rheumatic diseases: further challenges to the "biomedical model" paradigm. Arthritis Care Res 1997, 10:283-288.
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(1997)
Arthritis Care Res
, vol.10
, pp. 283-288
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Callahan, L.F.1
Pincus, T.2
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21
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0029339398
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Guidelines for facilitating a patient empowerment program
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Arnold MS, Butler PM, Anderson RM, Funnell MM, Feste C: Guidelines for facilitating a patient empowerment program. Diabetes Educator 1995, 21:308-312.
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(1995)
Diabetes Educator
, vol.21
, pp. 308-312
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Arnold, M.S.1
Butler, P.M.2
Anderson, R.M.3
Funnell, M.M.4
Feste, C.5
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23
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0024499738
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The beneficial outcomes of the arthritis self-management course are not adequately explained by behavior change
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Lorig K, Seleznick M, Lubeck D, Ung E, Chastain RL, Holman HR: The beneficial outcomes of the arthritis self-management course are not adequately explained by behavior change. Arthritis Rheum 1989, 32:91-95.
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(1989)
Arthritis Rheum
, vol.32
, pp. 91-95
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Lorig, K.1
Seleznick, M.2
Lubeck, D.3
Ung, E.4
Chastain, R.L.5
Holman, H.R.6
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24
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0027526397
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Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs
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Long K, Mazonson PD, Holman HR: Evidence suggesting that health education for self-management in patients with chronic arthritis has sustained health benefits while reducing health care costs. Arthritis Rheum 1993, 36:439-446.
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(1993)
Arthritis Rheum
, vol.36
, pp. 439-446
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Long, K.1
Mazonson, P.D.2
Holman, H.R.3
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25
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0030961104
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Effects of self-care education on the health status of inner-city patients with osteoarthritis of the knee
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Mazzuca SA, Brandt KD, Katz BP, Chambers M, Byrd D, Hanna M: Effects of self-care education on the health status of inner-city patients with osteoarthritis of the knee. Arthritis Rheum 1997, 40:1466-1474. A total of 211 inner-city patients with knee osteoarthritis received either brief education or attention control. Experimental patients received individualized 30-to 60-minute educational interventions that emphasized nonpharmacologic management of joint pain and preservation of function. Brief telephone contacts 1 week and 4 weeks after intervention were used to monitor and reinforce self-care activities. Experimental group participants had significantly lower scores for disability and resting knee pain throughout the year of follow-up. The overall effects of the experimental intervention on walking knee pain, overall joint pain, and general health status were not significant. Authors concluded that this low-intensity intervention did result in a notable preservation of function and control of resting knee pain. The magnitude of effect compares well with more laborintensive interventions. Sustained preservation of function and consistent decrease in pain, however, may require more prolonged or proactive follow-up.
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(1997)
Arthritis Rheum
, vol.40
, pp. 1466-1474
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Mazzuca, S.A.1
Brandt, K.D.2
Katz, B.P.3
Chambers, M.4
Byrd, D.5
Hanna, M.6
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26
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0030844981
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Patient education in arthritis: Randomized controlled trial of a mail-delivered program
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Fries JF, Carmen C, McShane DJ: Patient education in arthritis: randomized controlled trial of a mail-delivered program. Rheumatol 1997, 24:1378-1383. The effectiveness of a computer-tailored, mail-delivered arthritis self-management program was evaluated in this study. Intervention consisted of health assessment questionnaires at 3-month intervals with computer-tailored recommendation letters and reports sent to each program participant. Data were gathered over a 6-month period. The experimental program participant showed positive changes for all variables with statistically significant changes for function, pain, global vitality, tender joint count, exercise times per week, personal self-efficacy, reduced physician visits, and decreased days sick or confined to home. When compared with the control group, there were statistically significant differences for disability, pain, global vitality, joint count, exercise times per week, self-efficacy score, and reduced physician visits. In general, these results persisted over 6 months.
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(1997)
Rheumatol
, vol.24
, pp. 1378-1383
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Fries, J.F.1
Carmen, C.2
McShane, D.J.3
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27
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84988255578
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Illness behavior in rheumatoid arthritis
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Sakalys JA: Illness behavior In rheumatoid arthritis. Arthritis Care Res 1997, 10:229-237. The author used quantitative and qualitative methods in this descriptive study of the illness behavior of 50 female patients with rheumatoid arthritis. Most respondents did not initially interpret their symptoms as illness. The majority of subjects responded to initial symptoms with no action or with self-treatment, such as modifying their foot wear or activities or using over-the-counter medications. Only four individuals saw physicians as an immediate response to initial symptoms. A mean of 2.4 physicians were consulted before diagnosis was achieved. The modal theme characterizing patient's response to diagnosis was a feeling of relief. Of the subjects, 74% spontaneously verbalized fear, even though this was not part of the interview schedule. This study replicated findings in other health conditions that indicate diagnosis was not reached easily or rapidly, initial symptoms were normalized, and diagnosis was followed by a sense of relief. Invalidation of initial symptoms by friends, family, and lay consultants was also frequent. This study demonstrated the critical role of symptom interpretation and causal attribution in patients' help-seeking behavior.
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(1997)
Arthritis Care Res
, vol.10
, pp. 229-237
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Sakalys, J.A.1
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29
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0023813190
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Patients' participation in medical care: Effects on blood sugar control and quality of life in diabetes. 1986
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Greenfield S, Kaplan SH, Ware JE Jr, Yano EM, Frank HJL: Patients' participation In medical care: effects on blood sugar control and quality of life in diabetes. 1986, J Gen Intern Med 1988, 3:448-457.
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(1988)
J Gen Intern Med
, vol.3
, pp. 448-457
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Greenfield, S.1
Kaplan, S.H.2
Ware Jr., J.E.3
Yano, E.M.4
Frank, H.J.L.5
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30
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0030070905
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Characteristics of physicians with participatory decision-making styles
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Kaplan SH, Greenfield S, Gandek B, Rogers WH, Ware JE Jr: Characteristics of physicians with participatory decision-making styles. Ann Intern Med 1996, 124:497-505.
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(1996)
Ann Intern Med
, vol.124
, pp. 497-505
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Kaplan, S.H.1
Greenfield, S.2
Gandek, B.3
Rogers, W.H.4
Ware Jr., J.E.5
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31
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84996105668
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Point patient control of treatment Is essential
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Brady TJ: Point patient control of treatment Is essential. Arthritis Care Res 1990, 3:163-166.
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(1990)
Arthritis Care Res
, vol.3
, pp. 163-166
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Brady, T.J.1
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32
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7144246639
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What would ideal care look like: Invited reaction
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Edited by Manning FJ, Barondess JA, Washington, DC: National Academy Press
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Brady T: What would ideal care look like: invited reaction. In Changing Health Care Systems and Rheumatic Disease. Edited by Manning FJ, Barondess JA, Washington, DC: National Academy Press; 1996:51-54.
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(1996)
Changing Health Care Systems and Rheumatic Disease
, pp. 51-54
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Brady, T.1
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