Palliative Care Research - A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012

Scandinavian Journal of Caring Sciences

Volumn 30, Issue 1, 2016, Pages 5-25

  Henoch, Ingela ^a,b   Carlander, Ida ^c,d   Holm, Maja ^c,d   James, Inger ^e   Kenne Sarenmalm, Elisabeth ^c,f   Lundh Hagelin, Carina ^d,g,h   Lind, Susanne ^c,d   Sandgren, Anna ^i,j   Öhlén, Joakim ^a,b,c  

^a UNIVERSITY OF GOTHENBURG   (Sweden)

^b UNIVERSITY OF GOTHENBURG   (Sweden)

^c ERSTA HOSPITAL   (Sweden)

^d KAROLINSKA INSTITUTE   (Sweden)

^e ÖREBRO UNIVERSITY   (Sweden)

^f SKARABORG HOSPITAL   (Sweden)

^g SOPHIAHEMMET UNIVERSITY COLLEGE   (Sweden)

^h Stockholms Sjukhem Foundation   (Sweden)

ⁱ JÖNKÖPING UNIVERSITY   (Sweden)

^j LINNAEUS UNIVERSITY   (Sweden)

more..

Author keywords

End of life care; Palliative care; Research designs; Research methods; Review; Sweden

Indexed keywords

ADOLESCENT; ADULT; AGED; CHILD; FEMALE; HISTORY; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; PALLIATIVE THERAPY; SWEDEN; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; AGED; AGED, 80 AND OVER; CHILD; FEMALE; HISTORY, 21ST CENTURY; HUMANS; MALE; MIDDLE AGED; PALLIATIVE CARE; RESEARCH DESIGN; SWEDEN; YOUNG ADULT;

EID: 84959147843     PISSN: 02839318     EISSN: 14716712     Source Type: Journal    
DOI: 10.1111/scs.12253     Document Type: Review

References (306)

1. Sepulveda C, Marlin A, Yoshida T, Ullrich A. Palliative Care: the World Health Organization's global perspective. J Pain Symptom Manage 2002; 24: 91-96.
2. Meier DE, Brawley OW. Palliative care and the quality of life. J Clin Oncol 2011; 29: 2750-2.
3. Evans CJ, Harding R, Higginson IJ. Morecare. 'Best practice' in developing and evaluating palliative and end-of-life care services: a meta-synthesis of research methods for the MORECare project. Palliat Med 2013; 27: 885-98.
4. Walshe C. Palliative care research: has it come of age? Palliat Med 2013; 27: 883-4.
5. Lunder U, Sauter S, Fürst CJ. Evidence-based palliative care: beliefs and evidence for changing practice. Palliat Med 2004; 18: 265-6.
6. Davis MP, Mitchell GK. Topics in research: structuring studies in palliative care. Curr Opin Support Palliat Care 2012; 6: 483-9.
7. Klepstad P, Kaasa S. The importance and pitfalls of correlational science in palliative care research. Curr Opin Support Palliat Care 2012; 6: 508-13.
8. Radbruch L, Payne S, de Lima L, Lohmann D. The Lisbon Challenge: acknowledging palliative care as a human right. J Palliat Med 2013; 16: 301-4.
9. OECD Factbook 2014: OECD Publishing.
10. WHO. Palliative Care for Older People: Better Practices. 2011, WHO, Copenhagen.
11. Ahmedzai SH, Costa A, Blengini C, Bosch A, Sanz-Ortiz J, Ventafridda V, Verhagen SC. A new international framework for palliative care. Eur J Cancer 2004; 40: 2192-200.
12. Epstein AS, Morrison RS. Palliative oncology: identity, progress, and the path ahead. Ann Oncol 2012; 23(Suppl. 3): 43-48.
13. EAPC (2010). European Association for Palliative Care, Definition of palliative care, http://www.eapcnet.eu/Corporate/AbouttheEAPC/Definitionandaims.aspx (last accessed 21 April 2015).
14. WHO. National Cancer Control Programmes. Policies and Behavioural Guidelines. 2002, http://www.who.int/cancer/media/en/408.pdf (last accessed 29 January 2009).
15. Aziz NM, Miller JL, Curtis JR. Palliative and end-of-life care research: embracing new opportunities. Nurs Outlook 2012; 60: 384-90.
16. Randall F, Downie RS. The Philosophy of Palliative Care: Critique and Reconstruction. 2006, Oxford University Press, Oxford.
17. McNamara B, Rosenwax LK, Holman CD. A method for defining and estimating the palliative care population. J Pain Symptom Manage 2006; 32: 5-12.
18. Molassiotis A, Jacobs C. An evaluation of the current state of cancer-related palliative and supportive care research in the UK. J Palliat Care Med 2012; 2: 112.
19. McIlfatrick SJ, Murphy T. Palliative care research on the island of Ireland over the last decade: a systematic review and thematic analysis of peer reviewed publications. BMC Palliat Care 2013; 12: 33.
20. National Board on Health and Welfare. Forskning som speglar vården i livets slutskede. Sammanställning av aktuell forskning [Research that Reflects Care in Palliative Care. Summary of Current Research]. 2007, National Board of Health and Welfare [Socialstyrelsen], Stockholm. http://www.socialstyrelsen.se/publikationer2007/2007-123-13 (last accessed 21 April 2015).
21. National Board on Health and Welfare. Vård i livets slutskede. Socialstyrelsens bedömning av utvecklingen i landsting och kommun [End of life care. National Board on Health and Welfare's Assessment of the Development in Counties and Municipalities]. 2006, National Board of Health and Welfare [Socialstyrelsen], Stockholm.
22. Regional Cancer Center in collaboration. Nationellt vårdprogram för palliativ vård 2012-2014. [National Clinical Guidelines for Palliative Care from 2012 to 2014.]. 2012, Regionala cancercentrum i samverkan. [Regional Cancer Center in collaboration], Stockholm, Gotland.
23. National Board on Health and Welfare. Nationellt kunskapsstöd för god palliativ vård i livets slutskede. Vägledning, rekommendationer och indikatorer. Stöd för styrning och ledning.[National knowledge support for good palliative care. Guidance, recommendations and indicators. Support for control and management]. 2013, National Board of Health and Welfare [Socialstyrelsen], Stockholm.
24. Centeno C, Lynch T, Doneo O, Rocofort J, Clark D. EAPC Atlas of palliative care in Europe 2013, Full edn. 2013, EAPC Press, Milan.
25. Bausewein C, Higginson IJ. Challenges in defining 'palliative care' for the purposes of clinical trials. Curr Opin Support Palliat Care 2012; 6: 471-82.
26. Hui D, Mori M, Parsons HA, Kim SH, Li Z, Damani S, et al. The lack of standard definitions in the supportive and palliative oncology literature. J Pain Symptom Manage 2012; 43: 582-92.
27. Van Mechelen W, Aertgeerts B, De Ceulaer K, Thoonsen B, Vermandere M, Warmenhoven F, et al. Defining the palliative care patient: a systematic review. Palliat Med 2013; 27: 197-208.
28. Groninger H. Regarding a definition of the palliative care patient. Palliat Med 2013; 27: 952-3.
29. Addington-Hall JM, Bruera E, Higginson IJ, Payne S, eds. Research Methods in Palliative Care. 2007, Oxford University Press, Oxford.
30. Andrew EV, Cohen J, Evans N, Menaca A, Harding R, Higginson I, et al. Social-cultural factors in end-of-life care in Belgium: a scoping of the research literature. Palliat Med 2013; 27: 131-43.
31. Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, et al. Early palliative care for patients with metastatic non-small-cell lung cancer. N Engl J Med 2010; 363: 733-42.
32. Temel JS, Greer JA, Admane S, Gallagher ER, Jackson VA, Lynch TJ, et al. Longitudinal perceptions of prognosis and goals of therapy in patients with metastatic non-small-cell lung cancer: results of a randomized study of early palliative care. J Clin Oncol 2011; 29: 2319-26.
33. Beck I, Jakobsson U, Edberg AK. Applying a palliative care approach in residential care: effects on nurse assistants' experiences of care provision and caring climate. Scand J Caring Sci 2014; 28: 830-41.
34. Brännström M, Boman K. Effects of person-centred and integrated chronic heart failure and palliative home care. PREFER: a randomized controlled study. Eur J Heart Fail 2014; 16: 1142-51.
35. Campbell M, Fitzpatrick R, Haines A, Kinmonth AL, Sandercock P, Spiegelhalter D, et al. Framework for design and evaluation of complex interventions to improve health. BMJ 2000; 321: 694-6.
36. Craig P, Dieppe P, Macintyre S, Michie S, Nazareth I, Petticrew M. Developing and evaluating complex interventions: the new Medical Research Council guidance. BMJ 2008; 337: a1655.
37. Fulford KWM. Ten principles of value-based medicine. In The Philosophy of Psychiatry: A Companion (Radden J ed.), 2004, Oxford University Press, New York, 205-36.
38. Wheeler JL, Greene A, Tieman JJ, Abernethy AP, Currow DC. Key characteristics of palliative care studies reported in the specialized literature. J Pain Symptom Manage 2012; 43: 987-92.
39. Lundström S, Axelsson B, Heedman PA, Fransson G, Fürst CJ. Developing a national quality register in end-of-life care: the Swedish experience. Palliat Med 2012; 26: 313-21.
40. Albers G, Harding R, Pasman HR, Onwuteaka-Philipsen BD, Hall S, Toscani F, et al. What is the methodological rigour of palliative care research in long-term care facilities in Europe? A systematic review Palliat Med 2012; 26: 722-33.
41. Connolly A, Sampson EL, Purandare N. End-of-life care for people with dementia from ethnic minority groups: a systematic review. J Am Geriatr Soc 2012; 60: 351-60.
42. Hinds PS, Menard JC, Jacobs SS. The child's voice in pediatric palliative and end-of-life care. Prog Palliat Care 2012; 20: 337-42.
43. Ågren Bolmsjö I, Nilstun T, Löfmark R. From cure to palliation: agreement, timing, and decision making within the staff. Am J Hosp Palliat Care 2007; 24: 366-70.
44. Ågren Bolmsjö I. End-of-life care for old people: a review of the literature. Am J Hosp Palliat Care 2008; 25: 328-38.
45. Ahlner-Elmqvist M, Björdal K, Jordhøy MS, Kaasa S, Jannert M. Characteristics and implications of attrition in health-related quality of life studies in palliative care. Palliat Med 2009; 23: 432-40.
46. Ahlner-Elmqvist M, Jordhoy MS, Björdal K, Jannert M, Kaasa S. Characteristics and quality of life of patients who choose home care at the end of life. J Pain Symptom Manage 2008; 36: 217-27.
47. Ahsberg E, Fahlström G. Changes in place of death among elderly in Sweden - A register study. Nordic J Nurs Res Clin Stud/Vård i Norden 2012; 32: 21-24.
48. Andersen PM, Borasio GD, Dengler R, Hardiman O, Kollewe K, Leigh PN, Pradat PF, Silani V, Tomik B, EALSC Working Group. Good practice in the management of amyotrophic lateral sclerosis: clinical guidelines. An evidence-based review with good practice points. EALSC Working Group. Amyotroph Lateral Scler 2007; 8: 195-213.
49. Andershed B, Harstäde CW. Next of kin's feelings of guilt and shame in end-of-life care. Contemp Nurse 2007; 27: 61-72.
50. Andersson M, Hallberg IR, Edberg A. Old people receiving municipal care, their experiences of what constitutes a good life in the last phase of life: a qualitative study. Int J Nurs Stud 2008; 45: 818-28.
51. Andersson M, Ekwall A, Hallberg RI, Edberg A. The experience of being next of kin to an older person in the last phase of life. Fourth European Nursing Congress. J Clin Nurs 2010; 19: 40-40.
52. Andersson R, Aho U, Nilsson BI, Peters GJ, Pastor-Anglada M, Rasch W, Sandvold ML. Gemcitabine chemoresistance in pancreatic cancer: molecular mechanisms and potential solutions. Scand J Gastroenterol 2009; 44: 782-6.
53. Arman M. Bearing witness: an existential position in caring. Contemp Nurse 2007; 27: 84-93.
54. Axelsson B, Stellborn P, Ström G. Analgesic effect of paracetamol on cancer related pain in concurrent strong opioid therapy. A prospective clinical study. Acta Oncol 2008; 47: 891-5.
55. Axelsson L, Randers I, Hagelin CL, Jacobson SH, Klang B. Thoughts on death and dying when living with haemodialysis approaching end of life. J Clin Nurs 2012; 21: 2149-59.
56. Axelsson L, Randers I, Jacobson SH, Klang B. Living with haemodialysis when nearing end of life. Scand J Caring Sci 2012; 26: 45-52.
57. Baba K, Fransson P, Lindh J. Use of a modified ESAS in cancer patients: a pilot study of patient and staff experiences. Int J Palliat Nurs 2007; 13: 610-6.
58. Beck I, Runeson I, Blomqvist K. To find inner peace: soft massage as an established and integrated part of palliative care. Int J Palliat Nurs 2009; 15: 541-5.
59. Beck I, Törnquist A, Edberg AK. Nurse assistants' experience of an intervention focused on a palliative care approach for older people in residential care. Int J Older People Nurs 2014; 9(2): 140-50.
60. Beck I, Törnquist A, Broström L, Edberg A. Having to focus on doing rather than being-Nurse assistants' experience of palliative care in municipal residential care settings. Int J Nurs Stud 2012; 49: 455-64.
61. Benkel I, Wijk H, Molander U. Family and friends provide most social support for the bereaved. Palliat Med 2009a; 23: 141-9.
62. Benkel I, Wijk H, Molander U. Managing grief and relationship roles influence which forms of social support the bereaved needs. Am J Hosp Palliat Care 2009b; 26: 241-5.
63. Benkel I, Wijk H, Molander U. Hospital staff opinions concerning loved ones' understanding of the patient's life-limiting disease and the loved ones' need for support. J Palliat Med 2012a; 15: 51-55.
64. Benkel I, Wijk H, Molander U. Loved ones obtain various information about the progression of the patient's cancer disease which is important for their understanding and preparation. Am J Hosp Palliat Care 2012b; 29: 64-69.
65. Benzein EG, Saveman BI. Health-promoting conversations about hope and suffering with couples in palliative care. Int J Palliat Nurs 2008; 14: 439-45.
66. Bergdahl E, Wikström BM, Andershed B. Esthetic abilities: a way to describe abilities of expert nurses in palliative home care. J Clin Nurs 2007; 16: 752-60.
67. Bergdahl E, Benzein E, Ternestedt B, Andershed B. Development of nurses' abilities to reflect on how to create good caring relationships with patients in palliative care: an action research approach. Nurs Inq 2011; 18: 111-22.
68. Bergquist H, Johnsson E, Nyman J, Rylander H, Hammerlid E, Friesland S, Ruth M. Combined stent insertion and single high-dose brachytherapy in patients with advanced esophageal cancer - results of a prospective safety study. Dis Esophagus 2012; 25: 410-5.
69. Bergquist H, Johnsson Å, Hammerlid E, Wenger U, Lundell L, Ruth M. Factors predicting survival in patients with advanced oesophageal cancer: a prospective multicentre evaluation. Aliment Pharmacol Ther 2008; 27: 385-95.
70. Bergquist H, Ruth M, Hammerlid E. Psychiatric morbidity among patients with cancer of the esophagus or the gastro-esophageal junction: a prospective, longitudinal evaluation. Dis Esophagus 2007; 20: 523-9.
71. Berterö C, Vanhanen M, Appelin G. Receiving a diagnosis of inoperable lung cancer: patients' perspectives of how it affects their life situation and quality of life. Acta Oncol 2008; 47: 862-9.
72. Blomberg K, Sahlberg-Blom E. Closeness and distance: a way of handling difficult situations in daily care. J Clin Nurs 2007; 16: 244-54.
73. Brännstrom M, Ekman I, Boman K, Strandberg G. Being a close relative of a person with severe, chronic heart failure in palliative advanced home care - a comfort but also a strain. Scand J Caring Sci 2007a; 21: 338-44.
74. Brännstrom M, Ekman I, Boman K, Strandberg G. Narratives of a man with severe chronic heart failure and his wife in palliative advanced home care over a 4.5-year period. Contemp Nurse 2007b; 27: 10-22.
75. Brännstrom M, Forssell A, Pettersson B. Physicians' experiences of palliative care for heart failure patients. Eur J Cardiovasc Nurs 2011; 10: 64-9.
76. Brännstrom M, Hägglund L, Fürst CJ, Boman K. Unequal care for dying patients in Sweden: a comparative registry study of deaths from heart disease and cancer. Eur J Cardiovasc Nurs 2012; 11: 454-9.
77. Bravell ME, Malmberg B, Berg S. End-of-life care in the oldest old. Palliat Support Care 2010; 8: 335-44.
78. Bremberg ER, Rotstein S, Eksborg S. Treatment modifications of antineoplastic drugs in an oncology day-care unit. Acta Oncol 2007; 46: 735-40.
79. Bremer A, Dahlberg K, Sandman L. Balancing between closeness and distance: emergency medical services personnel's experiences of caring for families at out-of-hospital cardiac arrest and sudden death. Prehosp Disaster Med 2012; 27: 42-52.
80. Broberger E, Tishelman C, von Essen L, Doukkali E, Sprangers MA. Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: at present, in retrospect and in comparison with EORTC-QLQ-C30+LC13. Qual Life Res 2007; 16: 1635-45.
81. Browall M, Melin-Johansson C, Strang S, Danielson E, Henoch I. Health care staff's opinions about existential issues among patients with cancer. Palliat Support Care 2010; 8: 59-68.
82. Brunnström HR, Englund EM. Cause of death in patients with dementia disorders. Eur J Neurol 2009; 16: 488-92.
83. Buiting HM, van Delden JJ, Rietjens JA, Onwuteaka-Philipsen BD, Bilsen J, Fischer S, van der Heide A. Forgoing Artificial Nutrition or Hydration in Patients Nearing Death in Six European Countries. J Pain Symptom Manage 2007; 34: 305.
84. Carlander I, Ternestedt BM, Sahlberg-Blom E, Hellström I, Sandberg J. Four aspects of self-image close to death at home. Int J Qual Stud Health Well-being 2011; 6(2): doi: 10.3402/qhw.v6i2.5931
85. Carlander I, Sahlberg-Blom E, Hellström I, Ternestedt B. The modified self: family caregivers' experiences of caring for a dying family member at home. J Clin Nurs 2011; 20: 1097-105.
86. Carlander I, Ternestedt B, Sahlberg-Blom E, Hellström I, Sandberg J. Being Me and Being Us in a Family Living Close to Death at Home. Qual Health Res 2011; 21: 683-95.
87. Carlsson J, Paul NW, Dann M, Neuzner J, Pfeiffer D. The deactivation of implantable cardioverter-defibrillators. Dtsch Arztebl Int 2012; 109: 535.
88. Carlsson ME. Fatigue in relatives of palliative patients. Palliat Support Care 2009; 7: 207-11.
89. Carlsson ME. The significance of fatigue in relatives of palliative patients. Palliat Support Care 2010; 8: 137-42.
90. Carlsson ME. Sleep disturbance in relatives of palliative patients cared for at home. Palliat Support Care 2012; 10: 165-70.
91. Carlsson ME, Nilsson IM. Bereaved spouses' adjustment after the patients' death in palliative care. Palliat Support Care 2007; 5: 397-404.
92. Cartwright C, Onwuteaka-Philipsen BD, Williams G, Faisst K, Mortier F, Nilstun T, Norup M, van der Heide A, Miccinesi G, Consortium Eureld. Physician discussions with terminally ill patients: a cross-national comparison. Palliat Med 2007; 21: 295-303.
93. Cohen J, Bilsen J, Addington-Hall J, Löfmark R, Miccinesi G, Kaasa S, Deliens L. Population-based study of dying in hospital in six European countries. Palliat Med 2008; 22: 702-10.
94. Cohen J, Bilsen J, Fischer S, Löfmark R, Norup M, Miccinesi G, Deliens L. End-of-life decision-making in Belgium, Denmark, Sweden and Switzerland: does place of death make a difference? J Epidemiol Community Health 2007; 61: 1062-8.
95. Cohen J, van Delden J, Mortier F, Löfmark R, Norup M, Cartwright C, Bilsen J. Influence of physicians' life stances on attitudes to end-of-life decisions and actual end-of-life decision-making in six countries. J Med Ethics 2008; 34: 247-53.
96. Cronfalk BS, Friedrichsen M, Milberg A, Strang P. A one-day education in soft tissue massage: experiences and opinions as evaluated by nursing staff in palliative care. Palliat Support Care 2008; 6: 141-8.
97. Cronfalk BS, Strang P, Ternestedt BM. Inner power, physical strength and existential well-being in daily life: relatives' experiences of receiving soft tissue massage in palliative home care. J Clin Nurs 2009; 18: 2225-33.
98. Cronfalk BS, Strang P, Ternestedt BM, Friedrichsen M. The existential experiences of receiving soft tissue massage in palliative home care-an intervention. Support Care Cancer 2009; 17: 1203-11.
99. Cronfalk BS, Ternestedt B, Strang P. Soft tissue massage: early intervention for relatives whose family members died in palliative cancer care. J Clin Nurs 2010; 19: 1040-8.
100. Cuttini M, Casotto V, de Vonderweid U, Garel M, Kollée LA, Saracci R, Group, EURONIC Study. Neonatal end-of-life decisions and bioethical perspectives. Early Hum Dev 2009; 10(Suppl.): S21-S25.
101. Dahlberg L, Lundkvist J, Lindman H. Health care costs for treatment of disseminated breast cancer. Eur J Cancer 2009; 45: 1987-91.
102. Dahlborg-Lyckhage E, Liden E. Competing discourses in palliative care. Support Care Cancer 2010; 18: 573-82.
103. Dahlin Y, Heiwe S. Patients' experiences of physical therapy within palliative cancer care. J Palliat Care 2009; 25: 12-20.
104. Dahlstrand H, Hauksdóttir A, Valdimarsdóttir U, Fürst CJ, Bergmark K, Steineck G. Disclosure of incurable illness to spouses: do they want to know? A Swedish population-based follow-up study [corrected] [published erratum appears in J CLIN ONCOL 2008 Sep 1;26(25):4229]. J Clin Oncol 2008; 26: 3372-9.
105. Dehlin L, Mårtensson L. Adolescents' experiences of a parent's serious illness and death. Palliat Support Care 2009; 7: 13-25.
106. Dwyer L, Andershed B, Nordenfelt L, Ternestedt B. Dignity as experienced by nursing home staff. Int J Older People Nurs 2009; 4: 185-93.
107. Dwyer LL, Hansebo G, Andershed B, Ternestedt BM. Nursing home residents' views on dying and death: nursing home employee's perspective. Int J Older People Nurs 2011; 6: 251-60.
108. Dwyer L, Nordenfelt L, Ternestedt B. Three nursing home residents speak about meaning at the end of life. Nursing Ethics 2008; 15: 97-109.
109. Edvardsson D. Therapeutic environments for older adults - Constituents and meanings. J Gerontol Nurs 2008; 34: 32-40.
110. Edvardsson D, Street A. Sense or no-sense: the nurse as embodied ethnographer. Int J Nurs Pract 2007; 13: 24-32.
111. Ek K, Sahlberg-Blom E, Andershed B, Ternestedt BM. Struggling to retain living space: patients' stories about living with advanced chronic obstructive pulmonary disease. J Adv Nurs 2011; 67: 1480-90.
112. Ek K, Ternestedt B. Living with chronic obstructive pulmonary disease at the end of life: a phenomenological study. J Adv Nurs 2008; 62: 470-8.
113. Ek K, Ternestedt B, Andershed B, Sahlberg-Blom E. Shifting life rhythms: couples' stories about living together when one spouse has advanced chronic obstructive pulmonary disease. J Palliat Care 2011; 27: 189-97.
114. Ekedahl MA, Wengström Y. Caritas, spirituality and religiosity in nurses' coping. Eur J Cancer Care (Engl) 2010; 19: 530-7.
115. Ekedahl M, Wengström Y. Nurses in cancer care-stress when encountering existential issues. Eur J Oncol Nurs 2007; 11: 228-37.
116. Ekwall E, Ternestedt BM, Sorbe B, Graneheim UH. Patients' perceptions of communication with the health care team during chemotherapy for the first recurrence of ovarian cancer. Eur J Oncol Nurs 2011; 15: 53-58.
117. Engström J, Bruno E, Holm B, Hellzén O. Palliative sedation at end of life - a systematic literature review. Eur J Oncol Nurs 2007; 11: 26-35.
118. Erichsen E, Danielsson EH, Friedrichsen M. A phenomenological study of nurses' understanding of honesty in palliative care. Nursing Ethics 2010; 17: 39-50.
119. Eriksson M, Andershed B. Care dependence: a struggle toward moments of respite. Clin Nurs Res 2008; 17: 220-36.
120. Erlandsson K, Säflund K, Wredling R, Rådestad I. Support after stillbirth and its effect on parental grief over time. J Soc Work End Life Palliat Care 2011; 7: 139-52.
121. Fang F, Valdimarsdottir U, Fürst CJ, Hultman C, Fall K, Sparen P, Ye WM. Suicide among patients with amyotrophic lateral sclerosis. Brain 2008; 131: 2729-33.
122. Fearon K, Strasser F, Anker SD, Bosaeus I, Bruera E, Fainsinger RL, Jatoi A, Loprinzi C, MacDonald N, Mantovani G, Davis M, Muscaritoli M, Ottery F, Radbruch L, Ravasco P, Walsh D, Wilcock A, Kaasa S, Baracos VE. Definition and classification of cancer cachexia: an international consensus. Lancet Oncol 2011; 12: 489-495.
123. Fisker T, Strandmark M. Experiences of surviving spouse of terminally ill spouse: a phenomenological study of an altruistic perspective. Scand J Caring Sci 2007; 21: 274-81.
124. Foukakis T, Lundell L, Gubanski M, Lind PA. Advances in the treatment of patients with gastric adenocarcinoma. Acta Oncol 2007; 46: 277-85.
125. Friberg F, Öhlén J. Reflective exploration of beekman's participant experience. Qual Health Res 2010; 20: 273-80.
126. Friberg F, Öhlén J. Searching for knowledge and understanding while living with impending death-a phenomenological case study. Int J Qual Stud Health Well-being 2007; 2: 217-26.
127. Frid I, Haljamäe H, Öhlén J, Bergbom I. Brain death: close relatives' use of imagery as a descriptor of experience. J Adv Nurs 2007; 58: 63-71.
128. Fridh I, Forsberg A, Bergbom I. End-of-life care in intensive care units: family routines and environmental factors. Scand J Caring Sci 2007; 21: 25-31.
129. Fridh I, Forsberg A, Bergbom I. Family presence and environmental factors at the time of a patient's death in an ICU. Acta Anaesthesiol Scand 2007; 51: 395-401.
130. Fridh I, Forsberg A, Bergbom I. Close relatives' experiences of caring and of the physical environment when a loved one dies in an ICU. Intensive Crit Care Nurs 2009; 25: 111-9.
131. Friedrichsen M, Lindholm A, Milberg A. Experiences of truth disclosure in terminally ill cancer patients in palliative home care. Palliat Support Care 2011; 9: 173-80.
132. Fürst CJ, Lindqvist O, Tishelman C. Towards a basic drug kit for the dying patient. Curr Opin Support Palliat Care 2012; 6: 386-90.
133. Gebru K, Ahsberg E, Willman A. Nursing and medical documentation on patients' cultural background. J Clin Nurs 2007; 16: 2056-65.
134. Grassman EJ, Whitaker A. End of life and dimensions of civil society: the Church of Sweden in a new geography of death. Mortality 2007; 12: 261-80.
135. Grassman EJ, Whitaker A. Divergent logics of spiritual care: end of life and the role of the Church of Sweden. J Relig Spiritual Aging 2009; 21: 344-60.
136. Grassman EJ, Pessi A, Whitaker A, Juntunen E. Spiritual care in the last phase of life: a comparison between the Church of Sweden and the Church of Finland. J Pastoral Care Counsel 2010; 64: 1-10.
137. Grimby A, Johansson AK. Does early bereavement counseling prevent ill health and untimely death? Am J Hosp Palliat Care 2007; 24: 475-8.
138. Gulde I, Oldervoll L, Martin C. Palliative cancer patients' experience of physical activity. J Palliat Care 2011; 27: 296-302.
139. Gunhardsson I, Svensson A, Berterö C. Documentation in palliative care: nursing documentation in a palliative care unit - a pilot study. Am J Hosp Palliat Care 2008; 25: 45-51.
140. Hagelin CL, Wengström Y, Ahsberg E, Fürst CJ. Fatigue dimensions in patients with advanced cancer in relation to time of survival and quality of life. Palliat Med 2009; 23: 171-8.
141. Hagelin CL, Wengström Y, Tishelman C, Fürst CJ. Nurses' experiences of clinical use of a quality of life instrument in palliative care. Contemp Nurse 2007; 27: 29-38.
142. Hagelin CL, Wengström Y, Fürst CJ. Patterns of fatigue related to advanced disease and radiotherapy in patients with cancer-a comparative cross-sectional study of fatigue intensity and characteristics. Support Care Cancer 2009; 17: 519-26.
143. Hagelin CL, Wengström Y, Runesdotter S, Fürst Cj. The psychometric properties of the Swedish Multidimensional Fatigue Inventory MFI-20 in four different populations. Acta Oncol 2007; 46: 97-104.
144. Hanratty B, Burstrom B, Walander A, Whitehead M. Inequality in the face of death? Public expenditure on health care for different socioeconomic groups in the last year of life. J Health Serv Res Policy 2007; 12: 90-4.
145. Harstäde CW, Roxberg A, Andershed B, Brunt D. Guilt and shame - a semantic concept analysis of two concepts related to palliative care. Scand J Caring Sci 2012; 26: 787-95.
146. Hasselblom S, Stenson M, Werlenius O, Sender M, Lewerin C, Hansson U, Nilsson-Ehle H, Andersson PO. Improved outcome for very elderly patients with diffuse large B-cell lymphoma in the immunochemotherapy era. Leuk Lymphoma 2012; 53: 394-9.
147. Hauksdóttir A, Steineck G, Fürst CJ, Valdimarsdóttir U. Long-term harm of low preparedness for a wife's death from cancer - a population-based study of widowers 4-5 years after the loss. Am J Epidemiol 2010; 172: 389-96.
148. Hauksdottir A, Valdimarsdottir U, Fürst CJ, Onelov E, Steineck G. Health care-related predictors of husbands' preparedness for the death of a wife to cancer-a population-based follow-up. Ann Oncol 2010; 21: 354-61.
149. Henoch I, Axelsson B, Bergman B. The Assessment of Quality of life at the End of Life (AQEL) questionnaire: a brief but comprehensive instrument for use in patients with cancer in palliative care. Qual Life Res 2010; 19: 739-50.
150. Henoch I, Bergman B, Gustafsson M, Gaston-Johansson F, Danielson E. The impact of symptoms, coping capacity, and social support on quality of life experience over time in patients with lung cancer. J Pain Symptom Manage 2007; 34: 370-9.
151. Henoch I, Bergman B, Gustafsson M, Gaston-Johansson F, Danielson E. Dyspnea experience in patients with lung cancer in palliative care. Eur J Oncol Nurs 2008; 12: 86-96.
152. Henriksson A, Andershed B. A support group programme for relatives during the late palliative phase. Int J Pall Nurs 2007; 13: 175-83.
153. Henriksson A, Andershed B, Benzein E, Årestedt K. Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness. Palliat Med 2012; 26: 930-8.
154. Henriksson A, Årestedt K, Benzein E, Ternestedt BM, Andershed B. Effects of a support group programme for patients with life-threatening illness during ongoing palliative care. Palliat Med 2013; 27: 257-64.
155. Henriksson A, Benzein E, Ternestedt BM, Andershed B. Meeting needs of family members of persons with life-threatening illness: a support group program during ongoing palliative care. Palliat Support Care 2011; 9: 263-71.
156. Hjelm E, Hartwig K, Berterö C. An inevitable journey by train. J Hosp Palliat Nurs 2007; 9: 206-11.
157. Hoff L, Hermerén G. Between uncertainty and certainty. J Clin Ethics 2011; 22: 139-50.
158. Holmberg L. "Words that made a difference": communication in bereavement. J Loss Trauma 2007; 12: 9-29.
159. Holmgren D, Strömvall-Larsson E, Lundberg PA, Eriksson BO, Wahlander H. Brain natriuretic peptide assessed at long-term follow-up before and after maximal exercise in surgically palliated patients with functionally univentricular hearts. Cardiol Young 2007; 17: 505-11.
160. Ihrmark C, Hansen EM, Eklund J, Stodberg R. "You are weeping for that which has been your delight": to experience and recover from grief. Omega (Westport) 2011; 64: 223-39.
161. Iranmanesh S, Axelsson K, Häggström T, Sävenstedt S. Caring for dying people: attitudes among iranian and swedish nursing students. Indian J Palliat Care 2010; 16: 147-53.
162. Iranmanesh S, Axelsson K, Sävenstedt S, Häggström T. Caring for Dying and Meeting Death: experiences of Iranian and Swedish Nurses. Indian J Palliat Care 2010; 16: 90-6.
163. Iranmanesh S, Häggström T, Axelsson K, Sävenstedt S. Swedish nurses' experiences of caring for dying people: a holistic approach. Holist Nurs Pract 2009; 23: 243-52.
164. Iranmanesh S, Ghazanfari Z, Sävenstedt S, Häggström T. Professional development: Iranian and Swedish nurses' experiences of caring for dying people. J Palliat Care 2011; 27: 202-9.
165. Ivarsson B, Larsson S, Johnsson P, Lührs C, Sjöberg T. From hope and expectation to unexpected death after cardiac surgery. Intensive Crit Care Nurs 2008; 24: 242-50.
166. Jakobsson E, Bergh I, Öhlén J. The turning point: identifying end-of-life care in everyday health care practice. Contemp Nurse 2007; 27: 107-18.
167. Jakobsson E, Bergh I, Öhlén J, Odén A, Gaston-Johansson F. Utilization of health-care services at the end-of-life. Health Policy 2007; 82: 276-87.
168. Jakobsson E, Gaston-Johansson F, Öhlén J, Bergh I. Clinical problems at the end of life in a Swedish population, including the role of advancing age and physical and cognitive function. Scand J Public Health 2008; 36: 177-82.
169. Jakobsson U, Karlsson S. Predicting mortality with the ADL-staircase in frail elderly. Phys Occup Ther Geriatr 2011; 29: 136-47.
170. James I, Andershed B, Ternestedt B. A family's beliefs about cancer, dying, and death in the end of life. J Fam Nurs 2007; 13: 226-52.
171. James I, Andershed B, Ternestedt B. The encounter between informal and professional care at the end of life. Qual Health Res 2009; 19: 258-71.
172. Johansson AK, Sundh V, Wijk H, Grimby A. Anticipatory grief among close relatives of persons with dementia in comparison with close relatives of patients with cancer. Am J Hosp Palliat Care 2013; 30: 29-34.
173. Johansson AK, Grimby A. Anticipatory Grief Among Close Relatives of Patients in Hospice and Palliative Wards. Am J Hosp Palliat Care 2012; 29: 134-8.
174. Johansson K, Lindahl B. Moving between rooms - moving between life and death: nurses' experiences of caring for terminally ill patients in hospitals. J Clin Nurs 2012; 21: 2034-43.
175. Jonasson JM, Hauksdottir A, Valdimarsdottir U, Fürst CJ, Onelov E, Steineck G. Unrelieved symptoms of female cancer patients during their last months of life and long-term psychological morbidity in their widowers: a nationwide population-based study. Eur J Cancer 2009; 45: 1839-45.
176. Jonasson J, Hauksdóttir A, Nemes S, Surkan PJ, Valdimarsdóttir U, Onelöv E, Steineck G. Couples' communication before the wife's death to cancer and the widower's feelings of guilt or regret after the loss - A population-based investigation. Eur J Cancer 2011; 47: 1564-70.
177. Jonsson A, Aus G, Berterö C. Men's experience of their life situation when diagnosed with advanced prostate cancer. Eur J Oncol Nurs 2009; 13: 268-73.
178. Kallstrom Karlsson IL, Ehnfors M, Ternestedt BM. Five nurses' experiences of hospice care in a long-term perspective. J Hosp Palliat Nurs 2008; 10: 224-32.
179. Karlsson C, Berggren I. Dignified end-of-life care in the patients' own homes. Nursing Ethics 2011; 18: 374-85.
180. Karlsson M, Milberg A, Strang P. Suffering and euthanasia: a qualitative study of dying cancer patients' perspectives. Support Care Cancer 2012; 20: 1065-71.
181. Karlsson M, Roxberg A, Da Silva AB, Berggren I. Community nurses' experiences of ethical dilemmas in palliative care: a Swedish study. Int J Pall Nurs 2010; 16: 224-31.
182. Karlsson M, Strang P, Milberg A. Attitudes toward euthanasia among Swedish medical students. Palliat Med 2007; 21: 615-22.
183. Karlsson M, Milberg A, Strang P. Dying cancer patients' own opinions on euthanasia: an expression of autonomy? A qualitative study Palliat Med 2012; 26: 34-42.
184. Kodeda K, Derwinger K, Gustavsson B, Nordgren S. Local recurrence of rectal cancer: a population-based cohort study of diagnosis, treatment and outcome. Colorectal Dis 2012; 14: e230-7.
185. Kreicbergs UC, Lannen P, Onelov E, Wolfe J. Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes. J Clin Oncol 2007; 25: 3307-12.
186. La Cour K, Josephsson S, Tishelman C, Nygård L. Experiences of engagement in creative activity at a palliative care facility. Palliat Support Care 2007; 5: 241-50.
187. La Cour K, Johannessen H, Josephsson S. Activity and meaning making in the everyday lives of people with advanced cancer. Palliat Support Care 2009; 7: 469-79.
188. Langegård U, Ahlberg K. Consolation in conjunction with incurable cancer. Oncol Nurs Forum 2009; 36: E99-106.
189. Larsson A, Wijk H. Patient experiences of pain and pain management at the end of life: a pilot study. Pain Manag Nurs 2007; 8: 12-16.
190. Liden E, Öhlén J, Hyden LC, Friberg F. Ways of talking about illness and prognosis in palliative cancer care consultations-two interactional frames. Support Care Cancer 2010; 18: 399-408.
191. Lind L, Karlsson D, Fridlund B. Digital pens and pain diaries in palliative home health care: professional caregivers' experiences. Med Inform Intern Med 2007; 32: 287-96.
192. Lind L, Karlsson D, Fridlund B. Patients' use of digital pens for pain assessment in advanced palliative home healthcare. Int J Med Inform 2008; 77: 129-36.
193. Lindblad A, Juth N, Fürst CJ, Lynöe N. Continuous deep sedation, physician-assisted suicide, and euthanasia in Huntington's disorder. Int J Pall Nurs 2010a; 16: 527-33.
194. Lindblad A, Juth N, Fürst CJ, Lynöe N. When enough is enough; terminating life-sustaining treatment at the patient's request: a survey of attitudes among Swedish physicians and the general public. J Med Ethics 2010b; 36: 284-9.
195. Lindblom A, Bäck-Pettersson S, Berggren I. A quality registers impact on community nurses' in end-of-life care - a grounded theory study. J Nurs Manage 2012; 20: 206-14.
196. Linder S, Boström L, Nilsson B. Pancreatic carcinoma incidence and survival in Sweden in 1980-2000: a population-based study of 16, 758 hospitalized patients with special reference to different therapies. Eur J Surg Oncol 2007; 33: 616-22.
197. Linderholm M, Friedrichsen M. A desire to be seen: family caregivers' experiences of their caring role in palliative home care. Cancer Nurs 2010; 33: 28-36.
198. Lindqvist O, Rasmussen BH, Widmark A. Experiences of symptoms in men with hormone refractory prostate cancer and skeletal metastases. Eur J Oncol Nurs 2008; 12: 283-90.
199. Lindqvist O, Rasmussen BH, Widmark A, Hydén L. Time and bodily changes in advanced prostate cancer: talk about time as death approaches. J Pain Symptom Manage 2008; 36: 648-56.
200. Lindqvist O, Tishelman C, Hagelin CL, Clark JB, Daud ML, Dickman A, enedetti FD, Galushko M, Lunder U, Lundquist G, Miccinesi G, Sauter SB, Fürst CJ, Rasmussen BH, Opcare. Complexity in non-pharmacological caregiving activities at the end of life: an international qualitative study. PLoS Med 2012; 9(2): e1001173.
201. Lindström I, Gaston-Johansson F, Danielson E. Patients' participation in end-of-life care: relations to different variables as documented in the patients' records. Palliat Support Care 2010; 8: 247-53.
202. Löfmark R, Nilstun T, Bolmsjö IA. From cure to palliation: concept, decision and acceptance. J Med Ethics 2007; 33: 685-8.
203. Löfmark R, Nilstun T, Cartwright C, Fischer S, van der Heide A, Mortier F, Norup M, Simonato L, Onwuteaka-Philipsen BD, Consortium, Eureld. Physicians' experiences with end-of-life decision-making: survey in 6 European countries and Australia. BMC Med 2008; 6: 4.
204. Lokk J. Parkinson's disease permanent care unit - a way of managing the chronic-palliative interface. J Multidiscip Healthc 2011; 4: 33-38.
205. Lokk J, Delbari A. Clinical aspects of palliative care in advanced Parkinson's disease. BMC Palliat Care 2012; 11(20). doi: 10.1186/1472-684X-11-20.
206. Lövgren M, Hamberg K, Tishelman C. Clock Time and Embodied Time Experienced by Patients With Inoperable Lung Cancer. Cancer Nurs 2010; 33: 55-63.
207. Lövgren M, Wilde-Larsson B, Hök J, Leveälahti H, Tishelman C. Push or pull? Relationships between lung cancer patients' perceptions of quality of care and use of complementary and alternative medicine. Eur J Oncol Nurs 2011; 15: 311-7.
208. Lunden K, Baigi A, Lidell E, Hildingh C. Coronary care unit nurses' outlook on death - their own thoughts as well as those of their patients: a pilot study. Nordic J Nurs Res Clin Stud/Vård i Norden 2007; 27: 9-12.
209. Lundholm K, Gunnebo L, Korner U, Iresjö BM, Engström C, Hyltander A, Bosaeus I. Effects by daily long term provision of ghrelin to unselected weight-losing cancer patients a randomized double-blind study. Cancer 2010; 116: 2044-52.
210. Lundholm K, Korner U, Gunnebo L, Sixt-Ammilon P, Fouladiun M, Daneryd P, Bosaeus I. Insulin treatment in cancer cachexia: effects on survival, metabolism, and physical functioning. Clin Cancer Res 2007; 13: 2699-706.
211. Lundquist G, Rasmussen BH, Axelsson B. Information of imminent death or not: does it make a difference? J Clin Oncol 2011; 29: 3927-31.
212. Lundström S. Is it reliable to use cellular phones for symptom assessment in palliative care? Report on a study in patients with advanced cancer. J Palliat Med 2009; 12: 1087.
213. Lundström S, Axelsson B, Heedman PA, Fransson G, Fürst CJ. Developing a national quality register in end-of-life care: the Swedish experience. Palliat Med 2012; 26: 313-21.
214. Lundström S, Fürst CJ, Friedrichsen M, Strang P. The existential impact of starting corticosteroid treatment as symptom control in advanced metastatic cancer. Palliat Med 2009; 23: 165-70.
215. Lundström S, Gyllenhammar E, Martinsson U, Strang P. Together we can: experiences from 7 years of cross-sectional studies in a Swedish palliative care clinical research network. Palliat Med 2010; 24: 261-6.
216. Lynöe N, Juth N, Helgesson G. How to reveal disguised paternalism. Med Health Care Philos 2010; 13: 59-65.
217. Malmström A, Grönberg BH, Marosi C, Stupp R, Frappaz D, Schultz H, Abacioglu U, Tavelin B, Lhermitte B, Hegi ME, Rosell J, Henriksson R, NCBTSG. Temozolomide versus standard 6-week radiotherapy versus hypofractionated radiotherapy in patients older than 60 years with glioblastoma: the Nordic randomised, phase 3 trial. Lancet Oncol 2012; 13: 916-26.
218. Malmström A, Hansen J, Malmberg L, Carlsson L, Svensson JH, Ahlgren J, Ahlin CJansson T, Westberg R. Gemcitabine and capecitabine in combination for advanced anthracycline and taxane pre-treated breast cancer patients: a phase II study. Acta Oncol 2010; 49: 35-41.
219. Martinsson L, Fürst CJ, Lundström S, Nathanaelsson L, Axelsson B. Registration in a quality register: a method to improve end-of-life care-a cross-sectional study. BMJ Open 2012; 2(4). doi: 10.1136/bmjopen-2012-001328.
220. Martinsson L, Heedman PA, Lundström S, Fransson G, Axelsson B. Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care. Acta Oncol 2011; 50: 642-7.
221. Meidell L, Rasmussen BH. Acupuncture as an optional treatment for hospice patients with xerostomia: an intervention study. Int J Palliat Nurs 2009; 15: 12-20.
222. Melin-Johansson C, Axelsson B, Danielson E. Caregivers' perceptions about terminally ill family members' quality of life. Eur J Cancer Care 2007; 16: 338-45.
223. Melin-Johansson C, Axelsson B, Gaston-Johansson F, Danielson E. Significant improvement in quality of life of patients with incurable cancer after designation to a palliative homecare team. Eur J Cancer Care 2010; 19: 243-50.
224. Melin-Johansson C, Ödling G, Axelsson B, Danielson E. The meaning of quality of life: narrations by patients with incurable cancer in palliative home care. Palliat Support Care 2008; 6: 231-8.
225. Melin-Johansson C, Henoch I, Strang S, Browall M. Living in the presence of death: an integrative literature review of relatives' important existential concerns when caring for a severely ill family member. Open Nurs J 2012; 6: 1.
226. Milberg A, Appelquist G, Hagelin E, Jakobsson M, Olsson EC, Olsson M, Friedrichsen M. "A rewarding conclusion of the relationship": staff members' perspectives on providing bereavement follow-up. Support Care Cancer 2011; 19: 37-48.
227. Milberg A, Olsson EC, Jakobsson M, Olsson M, Friedrichsen M. Family members' perceived needs for bereavement follow-up. J Pain Symptom Manage 2008; 35: 58-69.
228. Milberg A, Strang P. Protection against perceptions of powerlessness and helplessness during palliative care: the family members' perspective. Palliat Support Care 2011; 9: 251-62.
229. Milberg A, Wahlberg R, Jakobsson M, Olsson EC, Olsson M, Friedrichsen M. What is a 'secure base' when death is approaching? A study applying attachment theory to adult patients' and family members' experiences of palliative home care. Psycho-Oncology 2012; 21: 886-95.
230. Moller J, Björkenstam E, Ljung R, Yngwe MA. Widowhood and the risk of psychiatric care, psychotropic medication and all-cause mortality: a cohort study of 658, 022 elderly people in Sweden. Aging Ment Health 2011; 15: 259-66.
231. Munck B, Fridlund B, Mårtensson J. Next-of-kin caregivers in palliative home care - from control to loss of control. J Adv Nursing 2008; 64: 578-86.
232. Munck B, Fridlund B, Mårtensson J. District nurses' conceptions of medical technology in palliative homecare. J Nurs Manage 2011; 19: 845-54.
233. Munck B, Sandgren A, Fridlund B, Mårtensson J. Next-of-kin's conceptions of medical technology in palliative homecare. J Clin Nurs 2012a; 21: 1868-77.
234. Munck B, Sandgren A, Fridlund B, Mårtensson J. Patients' Understanding of Medical Technology in Palliative Home Care A Qualitative Analysis. J Hosp Palliat Nurs 2012b; 14: 191-8.
235. Nappa U, Lindqvist O, Axelsson B. Avoiding harmful palliative chemotherapy treatment in the end of life: development of a brief patient-completed questionnaire for routine assessment of performance status. J Support Oncol 2012; 10: 230-7.
236. Nappa U, Lindqvist O, Rasmussen BH, Axelsson B. Palliative chemotherapy during the last month of life. Ann Oncol 2011; 22: 2375-80.
237. Nicklasson M, Bergman B. Validity, reliability and clinical relevance of EORTC QLQ-C30 and LC13 in patients with chest malignancies in a palliative setting. Qual Life Res 2007; 16: 1019-28.
238. Nilsson S, Strang P, Aksnes AK, Franzen L, Olivier P, Pecking A, Bruland OS. A randomized, dose-response, multicenter phase II study of radium-223 chloride for the palliation of painful bone metastases in patients with castration-resistant prostate cancer. Eur J Cancer 2012; 48: 678-86.
239. Norrström B, Cannerfelt IB, Frid H, Roos K, Ramström H. Introduction of pharmaceutical expertise in a palliative care team in Sweden. Pharm World Sci 2010; 32: 829-34.
240. Öhlén J, Elofsson LC, Hydén LC, Friberg F. Exploration of communicative patterns of consultations in palliative cancer care. Eur J Oncol Nurs 2008; 12: 44-52.
241. Olofson J, Dellborg C, Sullivan M, Midgren B, Caro O, Bergman B. Qualify of life and palliation predict survival in patients with chronic alveolar hypoventilation and nocturnal ventilatory support. Qual Life Res 2009; 18: 273-80.
242. Olsson L, Östlund G, Strang P, Grassman EJ, Friedrichsen M. The glimmering embers: experiences of hope among cancer patients in palliative home care. Palliat Support Care 2011; 9: 43-54.
243. Olsson L, Östlund G, Strang P, Grassman EJ, Friedrichsen M. Maintaining hope when close to death: insight from cancer patients in palliative home care. Int J Pall Nurs 2010; 16: 607-12.
244. Olsson Ozanne AG, Strang S, Persson LI. Quality of life, anxiety and depression in ALS patients and their next of kin. J Clin Nurs 2011; 20: 283-91.
245. Olsson Ozanne A, Graneheim U, Persson L, Strang S. Factors that facilitate and hinder the manageability of living with amyotrophic lateral sclerosis in both patients and next of kin. J Clin Nurs 2012; 21: 1364-73.
246. Onelöv E, Steineck G, Nyberg U, Hauksdottir A, Kreicbergs U, Henningsohn L, Bergmark K, Valdimarsdottir U. Measuring anxiety and depression in the oncology setting using visual-digital scales. Acta Oncol 2007; 46: 810-6.
247. Orrevall Y, Tishelman C, Permert J, Cederholm T. Nutritional support and risk status among cancer patients in palliative home care services. Support Care Cancer 2009a; 17: 153-61.
248. Orrevall Y, Tishelman C, Permert J, Cederholm T. The use of artificial nutrition among cancer patients enrolled in palliative home care services. Palliat Med 2009b; 23: 556-64.
249. Österlind J, Hansebo G, Andersson J, Ternestedt BM, Hellström I. A discourse of silence: professional carers reasoning about death and dying in nursing homes. Age Soc 2011; 31: 529-44.
250. Österlind J, Hansebo G, Lindqvist R, Ternestedt BM. Moving on a roundabout at the end of life-What counts? Waiting times for transfer to sheltered accommodation for older people in Sweden. Health Policy 2009; 91: 183-8.
251. Österlind J, Hansebo G, Lantz G, Ternestedt B. Pathways in end-of-life care for older people: care managers' reasoning. Int J Pall Nurs 2008; 14: 420-5.
252. Östlund U, Brown H, Johnston B. Dignity conserving care at end-of-life: a narrative review. Eur J Oncol Nurs 2012; 16: 353-67.
253. Östlund U, Wennman-Larsen A, Persson C, Gustavsson P, Wengström Y. Mental health in significant others of patients dying from lung cancer. Psycho-Oncology 2010; 19: 29-37.
254. Pahor M, Rasmussen BH. How does culture show? A case study of an international and interprofessional course in palliative care. J Interprof Care 2009; 23: 474-85.
255. Pergert P, Ekblad S, Enskär K, Björk O. Bridging obstacles to transcultural caring relationships-tools discovered through interviews with staff in pediatric oncology care. Eur J Oncol Nurs 2008; 12: 35-43.
256. Persson C, Östlund U, Wennman-Larsen A, Wengström Y, Gustavsson P. Health-related quality of life in significant others of patients dying from lung cancer. Palliat Med 2008; 22: 239-47.
257. Persson C, Sundin K. Being in the situation of a significant other to a person with inoperable lung cancer. Cancer Nurs 2008; 31: 380-8.
258. Pettersson K, Carlsson G, Holmberg C, Sporrong SK. Cost identification of Nordic FLIRI, Nordic FLOX, XELIRI and XELOX in first-line treatment of advanced colorectal cancer in Sweden - A clinical practice model approach. Acta Oncol 2012; 51: 840-8.
259. Pusa S, Persson C, Sundin K. Significant others' lived experiences following a lung cancer trajectory - From diagnosis through and after the death of a family member. Eur J Oncol Nurs 2012; 16: 34-41.
260. Raijmakers N, Galushko M, Domeisen F, Beccaro M, Hagelin CL, Lindqvist O, Popa-Velea O, Romotzky V, Schuler S, Ellershaw J, Ostgathe C, Opcare. Quality indicators for care of cancer patients in their last days of life: literature update and experts' evaluation. J Palliat Med, 2012; 15: 308-16.
261. Raijmakers NJH, van Zuylen L, Costantini M, Caraceni A, Clark JB, De Simone G, Lundquist G, Voltz R, Ellershaw JE, van der Heide A, Opcare. Issues and needs in end-of-life decision making: an international modified Delphi study. Palliat Med, 2012; 26: 947-53.
262. Raijmakers NJH, van Zuylen L, Costantini M, Caraceni A, Clark J, Lundquist G, Voltz R, Ellershaw JE, van der Heide A, Opcare. Artificial nutrition and hydration in the last week of life in cancer patients. A systematic literature review of practices and effects. Ann Oncol, 2011; 22: 1478-86.
263. Rasmussen BH, Edvardsson D. The influence of environment in palliative care: supporting or hindering experiences of 'at-homeness'. Contemp Nurse 2007; 27: 119-31.
264. Reimers E. Primary mourners and next-of-kin - how grief practices reiterate and subvert heterosexual norms. J Gend Stud 2011; 20: 251-62.
265. Rejnö Å, Berg L, Danielson E. Ethical problems: in the face of sudden and unexpected death. Nurs Ethics 2012; 19: 642-53.
266. Rydé K, Friedrichsen M, Strang P. Crying: a force to balance emotions among cancer patients in palliative home care. Palliat Support Care 2007; 5: 51-9.
267. Rydé K, Strang P, Friedrichsen M. Crying in solitude or with someone for support and consolation - experiences from family members in palliative home care. Cancer Nurs 2008; 31: 345-53.
268. Sand L, Olsson M, Strang P. Coping Strategies in the Presence of One's Own Impending Death from Cancer. J Pain Symptom Manage 2009; 37: 13-22.
269. Sand L, Olsson M, Strang P. What are motives of family members who take responsibility in palliative cancer care? Mortality 2010; 15: 64-80.
270. Sand L, Strang P, Milberg A. Dying cancer patients' experiences of powerlessness and helplessness. Support Care Cancer 2008; 16: 853-62.
271. Sandgren A, Fridlund B, Nyberg P, Strang P, Petersson K, Thulesius H. Symptoms, care needs and diagnosis in palliative cancer patients in acute care hospitals: a 5-year follow-up survey. Acta Oncol 2010; 49: 460-6.
272. Sandgren A, Thulesius H, Petersson K, Fridlund B. Doing good care - a study of palliative home nursing care. Int J Qual Stud Health Well-being 2007; 2: 227-35.
273. Sandgren A. Deciphering unwritten rules. Grounded Theory Rev 2012; 11: 2.
274. Sandgren A, Thulesius H, Petersson K, Fridlund B. Living on Hold in Palliative Cancer Care. Grounded Theory Rev 2010; 9: 79-100.
275. Sarenmalm EK, Thoren-Jonsson AL, Gaston-Johansson F, Öhlén J. Making sense of living under the shadow of death: adjusting to a recurrent breast cancer illness. Qual Health Res 2009; 19: 1116-30.
276. Silén M, Svantesson M, Ahlström G. Nurses' conceptions of decision making concerning life-sustaining treatment. Nurs Ethics 2008; 15: 160-73.
277. Sjölander C, Hedberg B, Ahlström G. Striving to be prepared for the painful: management strategies following a family member's diagnosis of advanced cancer. BMC Nurs 2011; 10: 18.
278. Sjölander C, Ahlström G. The meaning and validation of social support networks for close family of persons with advanced cancer. BMC Nurs 2012; 11: 17-30.
279. Sjölander C, Berterö C. The significance of social support and social networks among newly diagnosed lung cancer patients in Sweden. Nurs Health Sci 2008; 10: 182-7.
280. Sjövall K, Gunnars B, Olsson H, Thomé B. Experiences of living with advanced colorectal cancer from two perspectives - Inside and outside. Eur J Oncol Nurs 2011; 15: 390-7.
281. Smith-Stoner M, Hall-Lord M-L, Hedelin B, Petzäll K. Nursing students' concerns about end of life in California, Norway, and Sweden. Int J Pall Nurs 2011; 17: 271-7.
282. Stajduhar K, Funk L, Jakobsson E, Öhlén J. A critical analysis of health promotion and 'empowerment' in the context of palliative family care-giving. Nursing Inq 2010; 17: 221-30.
283. Starlander J, Melin-Johansson C, Jonsson H, Axelsson B. Oral-parenteral conversion factor for morphine in palliative cancer care: a prospective randomized crossover pilot study. Pain Res Treat, 2011; 504034. doi: 10.1155/2011/504034.
284. Steinvall K, Johansson H, Berterö C. Balancing a changed life situation: the lived experience from next of kin to persons with inoperable lung cancer. Am J Hosp Palliat Care 2011; 28: 82-89.
285. Stomberg MW. Guest at hospice: time for consideration. Am J Hosp Palliat Care 2009; 26: 277-80.
286. Sundelöf M, Ringby D, Stockeld D, Granström L, Jonas E, Freedman J. Palliative treatment of malignant dysphagia with self-expanding metal stents: a 12-year experience. Scand J Gastroenterol 2007; 42: 11-16.
287. Svantesson M, Löfmark R, Thorsen H, Kallenberg K, Ahlström G. Learning a way through ethical problems: Swedish nurses' and doctors' experiences from one model of ethics rounds. J Med Ethics 2008; 34: 399-406.
288. Sviden GA, Fürst CJ, von Koch L, Borell L. Palliative day care-a study of well-being and health-related quality of life. Palliat Med 2009; 23: 441-7.
289. Udo C, Melin-Johansson C, Danielson E. Existential issues among health care staff in surgical cancer care - Discussions in supervision sessions. Eur J Oncol Nurs 2011; 15: 447-53.
290. Ulmert D, Kaboteh R, Fox JJ, Savage C, Evans MJ, Lilja H, Larson SM. A novel automated platform for quantifying the extent of skeletal tumour involvement in prostate cancer patients using the bone scan index. Eur Urol 2012; 62: 78-84.
291. Wadensten B, Condén E, Wahlund L, Murray K. How nursing home staff deal with residents who talk about death. Int J Older People Nurs 2007; 2: 241-9.
292. Valdimarsdottir U, Kreicbergs U, Hauksdottir A, Hunt H, Onelov E, Henter JL, Steineck G. Parents' intellectual and emotional awareness of their child's impending death to cancer: a population-based long-term follow-up study. Lancet Oncol 2007; 8: 706-14.
293. Wallengren C, Friberg F, Segesten K. Like a shadow - on becoming a stroke victim's relative. Scand J Caring Sci 2008; 22: 48-55.
294. Wallengren O, Bosaeus I, Lundholm K. Dietary energy density is associated with energy intake in palliative care cancer patients. Support Care Cancer 2012; 20: 2851-7.
295. Wallerstedt B, Andershed B. Caring for dying patients outside special palliative care settings: experiences from a nursing perspective. Scand J Caring Sci 2007; 21: 32-40.
296. Wallerstedt B, Benzein E, Andershed B. Sharing living and dying: a balancing act between vulnerability and a sense of security. Enrolled nurses' experiences of working in the sitting service for dying patients at home. Palliat Support Care 2011; 9: 295-303.
297. Wallerstedt B, Sahlberg-Blom E, Benzein E, Andershed B. Identification and documentation of persons being in palliative phase regardless of age, diagnosis and places of care, and their use of a sitting service at the end of life. Scand J Caring Sci 2012; 26: 561-8.
298. Vargens OMD, Berterö C. The phantom of death improving quality of life: you live until you die. Am J Hosp Palliat Care 2012; 29: 555-62.
299. Wasteson E, Brenne E, Higginson IJ, Hotopf M, Lloyd-Williams M, Kaasa S, Loge JH. Depression assessment and classification in palliative cancer patients: a systematic literature review. Palliat Med 2009; 23: 739-53.
300. Weiss RJ, Forsberg JA, Wedin R. Surgery of skeletal metastases in 306 patients with prostate cancer Indications, complications, and survival. Acta Orthop 2012; 83: 74-79.
301. Wennman-Larsen A, Tishelman C, Nengstrom Y, Gustavsson P. Factors influencing agreement in symptom ratings by lung cancer patients and their significant others. J Pain Symptom Manage 2007; 33: 146-55.
302. Wettergren L, Lindblad AK, Glimelius B, Ring L. Comparing two versions of the Schedule for Evaluation of Individual Quality of Life in patients with advanced cancer. Acta Oncol 2011; 50: 648-52.
303. Whitaker A. The body as existential midpoint - the aging and dying body of nursing home residents. J Aging Stud 2010; 24: 96-104.
304. Wijk H, Grimby A. Needs of elderly patients in palliative care. Am J Hosp Palliat Care 2008; 25: 106-11.
305. Voorhees J, Rietjens J, Onwuteaka-Philipsen B, Deliens L, Cartwright C, Faisst K, Norup M, Miccinesi G, van der Heide A. Discussing prognosis with terminally ill cancer patients and relatives: a survey of physicians' intentions in seven countries. Patient Educ Couns 2009; 77: 430-6.
306. Ylitalo N, Valdimarsdottir U, Onelov E, Dickman PW, Steineck G. Guilt after the loss of a husband to cancer: is there a relation with the health care provided? Acta Oncol 2008; 47: 870-8.