A family's beliefs about cancer, dying, and death in the end of life

Journal of Family Nursing

Volumn 13, Issue 2, 2007, Pages 226-252

  James, Inger ^a   Andershed, Birgitta ^a   Ternestedt, Britt Marie ^a,b  

^a ÖREBRO UNIVERSITY   (Sweden)

^b Ersta University College   (Sweden)

Author keywords

Beliefs; Cancer; Case study; End of life; Families and life shortening illness; Family

Indexed keywords

ADULT; AGED; ARTICLE; ATTITUDE TO DEATH; DECISION MAKING; FAMILY; FEMALE; GASTROINTESTINAL TUMOR; HUMAN; INTERVIEW; MIDDLE AGED; PSYCHOLOGICAL ASPECT; SWEDEN; TERMINAL CARE;

ADULT; AGED; ATTITUDE TO DEATH; DECISION MAKING; FAMILY; FEMALE; GASTROINTESTINAL NEOPLASMS; HUMANS; INTERVIEWS; MIDDLE AGED; SWEDEN; TERMINAL CARE;

EID: 34250183081     PISSN: 10748407     EISSN: 1552549X     Source Type: Journal    
DOI: 10.1177/1074840707300849     Document Type: Article

References (58)

1. Adelbratt, S., & Strang, P. (2000). Death anxiety in brain tumour patients and their spouses. Palliative Medicine, 14, 499-507.
2. Andershed, B. (2006). Relatives in the end of life care - Part 1: A systematic review of the literature the five last years, January 1999-February 2004. Journal of Clinical Nursing, 15, 1158-1169.
3. Andershed, B., & Ternestedt, B. (2000). Being a close relative of a dying person: Development of the concepts involvement in the light and in the dark. Cancer Nursing, 23, 151-159.
4. Arman, M., & Rehnsfeldt, A. (2002). Living with breast cancer - A challenge to expansive and creative forces. European Journal of Cancer Care, 11, 290-296.
5. Benzein, E., Norberg, A., & Saveman, B. (2001). The meaning of the lived experience of hope in patients with cancer in palliative home care. Palliative Medicine, 15, 117-126.
6. Clavarino, A.M., Najman, J.M., & Beadle, G. (2003). The impact of will to live and belief in curability on the subjective well-being of patients with advanced cancer. Mortality, 8, 4-19.
7. Connor, S.R. (1994). Denial, acceptance and other myths. In I. B. Corless., B. B. Germino, & M. Pittman (Eds.), Dying, death and bereavement: Theoretical perspectives and other ways of knowing (pp. 157-169). Boston: Jones and Bartlett.
8. Creswell, J.W. (1998). Qualitative inquiry and research design: Choosing among five traditions. London: Sage.
9. Dahlberg, K., Drew, N., & Nyström, M. (2001). Reflective lifeworld research. Lund, Sweden: Studentlitteratur.
10. Duhamel, F., & Dupuis, F. (2003). Families in palliative care: Exploring family and health care professionals' beliefs. International Journal of Palliative Nursing, 9, 113-119.
11. Franke-Wikberg, S., & Hult, A. (1986). Långsiktiga effekter av högre utbildning: De rätta föreställningarna om förberedelse för yrkesliv [Long-range effects of higher education. The right beliefs about preparations for working life]. In T. Kroksmark & F. Marton (Eds.), Individernas förutsättningar för utbildning och utbildningens effekter på individerna: Ett symposium tillägnat Kjell Härnqvist (pp. 179-190). Gothenburg, Sweden: Institutionen för pedagogik Göteborgs universitet.
12. Franklin, L-L., Ternestedt, B-M., & Nordenfelt, L. (2006). Views on dignity of elderly nursing home residents. Nursing Ethics, 13, 130-146.
13. Gaydos, L.H. (2005). Understanding personal narratives: An approach to practice. Journal of Advanced Nursing, 49, 254-259.
14. Gibson, C.A., Pessin, H., McLain, C.S., Shah, A.D., & Breitbart, W. (2004). The unmet need: Addressing spirituality and meaning through culturally sensitive communication and intervention. In R. J. Moore & D. Spiegel (Eds.), Cancer, culture and communication (pp. 281-298). New York: Kluwer Academic/Plenum Publishers.
15. Glaser, B.G., & Strauss, A.L. (1965). Awareness of dying. New York: Aldine.
16. Goetz, J.P., & LeCompte, M.D. (1984). Ethnography and qualitative design in educational research. Orlando, FL: Academic Press.
17. Granum, V. (2001). Studentenes forestillinger om sykepleie som fag og funksjon [Students' perceptions about nursing as a profession and as occupation]. Doctoral dissertation, Acta Universitatis Gothoburgensis, Gothenburg, Sweden.
18. Gravdal, T. (1998). Mental forestillnings aktivitet med tanke på idrettslig prestasjonsutvikling: En begrepsanalyse av 30 internasjonale forskningsartikler [Mental activity of beliefs with focus on development of performance capacity: A concept analyses of 30 international research articles]. Oslo, Norway: Norges idrettshøgskole.
19. Grbich, C., Parker, D., & Maddocks, I. (2001). The emotions and coping strategies of caregivers of family members with a terminal cancer. Journal of Palliative Care, 17, 30-36.
20. Hardwig, J., Hentoff, N., Callahan, D., Churchill, L., Cohn, F., & Lynn, J. (2000). Is there a duty to die: And other essays in bioethics. New York: Routledge.
21. Hudson, P. (2003). The experience of research participation for family caregivers of palliative care cancer patients. International Journal of Palliative Nursing, 9, 120-123.
22. Konishi, E., & Davis, A.J. (2001). The right-to-die and the duty-to-die: Perceptions of nurses in the West and in Japan. International Nursing Review, 48, 17-28.
23. Kuuppelomäki, M. (2000). Attitudes of cancer patients, their family members and health professionals toward active euthanasia. European Journal of Cancer Care, 9, 16 - 21.
24. Lawton, J. (1998). Contemporary hospice care: The sequestration of the unbounded body and dirty dying. Sociology of Health & Illness, 20, 121-143.
25. Lawton, J. (2000). The dying process: Patients' experiences of palliative care. New York: Routledge.
26. Mayeroff, M. (1990). On caring. New York: Harper Perennial.
27. McClement, S.E., Degner, L.F., & Harlos, M.S. (2003). Family beliefs regarding the nutritional care of a terminally ill relative: A qualitative study. Journal of Palliative Medicine, 6, 737-748.
28. Merriam, S.B. (1988). Case study research in education: A qualitative approach. San Francisco: Jossey-Bass.
29. Merriam, S.B. (1998). Qualitative research and case study applications in education. San Francisco: Jossey-Bass.
30. Milberg, A., Strang, P., & Jakobsson, M. (2004). Next of kin's experience of powerlessness and helplessness in palliative home care. Support Care Cancer, 12, 120-128.
31. Mok, E., Chan, F., Chan, V., & Yeung, E. (2003). Family experience caring for terminally ill patients with cancer in Hong Kong. Cancer Nursing, 26, 267-275.
32. Oldham, L., & Kristjanson, L.J. (2004). Development of a pain management programme for family carers of advanced cancer patients. International Journal of Palliative Nursing, 10, 91-99.
33. Öhlén, J., Andershed, B., Berg, C., Frid, I., Palm, C-A., Ternestedt, B-M., et al. (2007). Relatives in end of life care - Part 2: A theory for enabling safety. Journal of Clinical Nursing, 16, 382-390.
34. Olin Lauritzen, S. (2001). Vardagliga föreställningar om hälsa och sjukdom [Daily beliefs about health and illness]. In R. Qvarsell & U. Torell (Eds.), Humanistisk hälsoforskning: En forskningsöversikt (pp. 87-127). Lund, Sweden: Studentlitteratur.
35. Proot, I.M., Abu-Saad, H.H., Crebolder, H.F.J.M., Goldsteen, M., Luker, K.A., & Widdershoven. G. A. M. (2003). Vulnerability of family caregivers in terminal palliative care at home: Balancing between burden and capacity. Scandinavian Journal of Caring Sciences, 17, 113-121.
36. Qvarnström, U. (1978). Patients' reactions to impending death: A clinical study. Doctoral dissertation, University of Stockholm, Stockholm, Sweden.
37. Richer, M-C., & Ezer, H. (2000). Understanding beliefs and meanings in the experience of cancer: A concept analysis. Journal of Advanced Nursing, 32, 1108-1116.
38. Salander, P. (2000). Using beliefs and magical thinking to fight cancer distress: A case study. Psycho-Oncology, 9, 40-43.
39. Salander, P. (2003). Den kreativa illusionen: Om Cancersjukdom och anhöriga - om utsatthet och bemötande [The creative illusion: About cancer and next of kin - About vulnerability and treatment]. Lund, Sweden: Studentlitteratur.
40. Salander, P., Bergenheim, T., & Henriksson, R. (1996). The creation of protection and hope in patients with malignant brain tumors. Social Science & Medicine, 42, 985-996.
41. Salander, P., & Spetz, A. (2002). How do patients and spouses deal with the serious facts of malignant glioma? Palliative Medicine, 16, 305-313.
42. Scott, G. (2001). A study of family carers of people with a life-threatening illness 2: Implications of the needs assessment. International Journal of Palliative Nursing, 7, 323-330.
43. Scott, G., Whyler, N., & Grant, G. (2001). A study of family carers of people with a life-threatening illness 1. International Journal of Palliative Nursing, 7, 290-297.
44. Seale, C. (1995). Heroic death. Sociology, 29, 597-613.
45. Severson, K.T. (1997). Dying cancer patients: Choices at the end of life. Journal of Pain and Symptom Management, 14, 94-98.
46. Sinding, C. (2003). Because you know there's an end to it: Caring for a relative or friend with advanced breast cancer. Palliative and Supportive Care, 1, 153-163.
47. Skott, C. (2002). Expressive metaphors in cancer narratives. Cancer Nursing, 25, 230-235.
48. Stake, R.E. (1995). The art of case study research. Thousand Oaks, CA: Sage.
49. Tapp, D.M. (2000). The ethics of relational stance in family nursing: Resisting the view of nurse as expert. Journal of Family Nursing, 6, 69-91.
50. Tegern, G. (1994). Frisk och sjuk: Vardagliga föreställningar om hälsan och dess motsatser [Healthy and ill: Daily beliefs about healthy and theirs opposite]. Doctoral dissertation, Linköping University, Linköping, Sweden.
51. Thulesius, H., Håkansson, A., & Petersson, K. (2003). Balancing: A basic process in end-of-life care. Qualitative Health Research, 13, 1353-1377.
52. Tschudin, V. (1997). Nursing as a moral art. In D. Marks-Maran & P. Rose (Eds.), Reconstructing nursing: Beyond art and science (pp. 64-90). London: Ballière Tindall.
53. Walshe, C.E., Caress, A.L., Crew-Graham, C., & Todd, C.J. (2004). Case studies: A research strategy appropriate for palliative care? Palliative Medicine, 18, 677-684.
54. Walter, F.M., & Emery, J. (2006). Perceptions of family history across common diseases: A qualitative study in primary care. Family Practice, 23, 472-480.
55. Wennman-Larsen, A., & Tishelman, C. (2002). Advanced home care for cancer patients at the end of life: A qualitative study of hopes and expectations of family caregivers. Scandinavian Journal of Caring Sciences, 16, 240-247.
56. Witkowski, Å., & Carlsson, M.E. (2004). Support group programme for relatives of terminally ill cancer patients. Support Care Cancer, 12, 168-175.
57. Wright, L.M., Watson, W.L., & Bell, J., M. (1996). Beliefs: The heart of healing in families and illness. New York: Basic Books.
58. Yates, P., & Stetz, K.M. (1999). Families' awareness of and response to dying. Oncology Nursing Forum, 26, 113-120.