End of life and dimensions of civil society: The Church of Sweden in a new geography of death

Mortality

Volumn 12, Issue 3, 2007, Pages 261-280

  Grassman, Eva Jeppsson ^a   Whitaker, Anna ^a  

^a LINKÖPING UNIVERSITY   (Sweden)

Author keywords

Civil society; End of life; Religion; Social capital; Spiritual care

Indexed keywords

EID: 34547577220     PISSN: 13576275     EISSN: 14699885     Source Type: Journal    
DOI: 10.1080/13576270701430635     Document Type: Article

References (68)

1. Ammerman, N. T. (1997) Congregation and community, Rutgers University Press, New Brunswick
2. Amnå, E. (2005) Civilsamhället. Några forskningsfrågor [Civil Society. Some Research Questions], Gidlunds och Riksbankens Jubileumsfond, Stockholm
3. Antman, P. (1993) Systemskifte [Shift of System], Carlssons, Stockholm
4. Bourdieu, P. (1980) Le capital social. Notes provisoires. Actes de la Recherche en Sciences Sociales, 31, pp. 2-3.
5. Bäckström, A., Beckman, N. Edgardh and Pettersson, P. (2004) Religious change in Northern Europe. The case of Sweden, Verbum, Stockholm
6. Clark, D. and Seymour, J. (1999) Reflections on palliative care, Open University Press, Buckingham
7. Cnaan, R. A., Boddie, C. S. and Yancey, G. I. (2003) Bowling alone but serving together: The congregational norm of community involvement. Religion as social capital, Baylor University Press, Waco
8. Cohen, J. L. and Arato, A. (1992) Civil society and political theory, MIT Press, Cambridge, MA
9. Coleman, J. S. (1994) Foundations in social theory, Belknap Press, Cambridge
10. De Hart, J. (2001) Religion and volunteering in the Netherlands. Social capital and participation in everyday life, Routledge, London and New York
11. Daaleman, T. P. and Vandecreek, L. (2000) Placing religion and spirituality in end-of-life care. Journal of the American Association, 284:19, pp. 2514-2517.
12. Dyson, J., Cobb, M. and Forman, D. (1997) The meaning of spirituality: A literature review. Journal of Advanced Nursing, 26:6, pp. 1183-1189.
13. Einhorn, S. (1999) Svårt sjuka patienters andliga behov försummas i vården [The spiritual needs of seriously ill patients are neglected in palliative care]. Läkartidningen, 96:19, pp. 2362-2366.
14. Field, J. (2003) Social capital, Routledge, London
15. Fine, B. (2001) Social capital versus social theory: Political economy and social sciences at the turn of the millennium, Routledge, London and New York
16. Forssell, E. (1999) Äldres död. Anhöriga och personal berättar [The Death of the Elderly. The Recounts of Families and Staff], Ersta Sköndal University College, Stockholm
17. Franklin, J. and Thomson, R. (2005) (Re)claiming the social. A conversation between feminist, late modern and social capital theorists. Feminist Theory, 6:2, pp. 161-172.
18. Fukuyama, F. (1995) Trust: The social virtues and the creation of prosperity, Free Press, New York
19. Gilleard, C. H. and Higgs, P. (2000) Cultures of ageing. Self citizen and the body, Pearson, Harlow
20. Governmental Bill (1997) 113. Nationell Handlingsplan för äldrepolitiken [National plan of action for the care of elderly people], Riksdagen, Stockholm
21. Gundelach, P. and Torpe, L. (1997) Social reflexivity and new types of citizen involvement in Denmark. Private groups and public life. Social participation, voluntary associations and political involvement, Routledge, London
22. Grönroos, C. (1992) Service management. Ledning, strategi och marknadsföring i servicekonkurrens, ISL förlag, Göteborg
23. Halpern, D. (2005) Social capital, Polity Press, Cambridge
24. Inglehart, R. (1997) Modernization and postmodernization. Cultural, economic, and political change in 43 societies, Princeton University Press, Princeton
25. Janoski, T. (1998) Citizenship and civil society, Cambridge University Press, Cambridge
26. Grassman, E. Jeppsson (2004) Makt, social capital och hjälpgivande. Om kvinnor och män i civilsamhälet [Power, social capital and caregiving. On women and men in civil society]. Genus och civilt samhälle [Gender and Civil society], Ersta Sköndal Högskola, Stockholm
27. Grassman, E. Jeppsson (2004) Welfare in Europe: New trends and old regimes. Welfare, church and gender in eight european countries, Diakonivetenskapliga Institutet, Uppsala
28. Grassman, E. Jeppsson (2001) Medmänniska och anhörig. En studie av informella hjälpinsatser [Fellow Being and Next of Kin. A Study of Informal Helpgiving], Ersta Sköndal University College, Stockholm
29. Grassman, E. Jeppsson (2001) Socialt arbete i församlingens hägn [Social Work in the Parish], Verbum, Stockholm
30. Grassman, E. Jeppsson and Svedberg, L. (2006) Civic participation in a Scandinavian Welfare State: Patterns in contemporary Sweden. The Swedish model revisited: The civil society perspective, Berhahn Books, New York
31. Grassman, E. Jeppsson and Whitaker, A. (2006) With or without faith. Spiritual care in the church of Sweden at a time of transition. Omega: Journal of Death and Dying, 53:1, pp. 153-172.
32. Kellehear, A. (2002) Spiritual care in palliative care: Whose job is it?. Spirituality and palliative care. Social and pastoral perspectives, Oxford University Press, Oxford
33. Kellehear, A. (2000) Spirituality and palliative care: A model of needs. Palliative Medicine, 14, pp. 149-155.
34. Kaut, K. (2002) Religion, spirituality, and existentialism near the end of life. Implications for assessment and application. American Behavioral Scientist, 46:2, pp. 220-234.
35. McGrath, P. (2003) Religiosity and the challenge of terminal illness. Death Studies, 27, pp. 881-899.
36. McGrath, P. (2004) Reflections on serious illness as spiritual journey by survivors of haematological malignancies. European Journal of Cancer Care, 13, pp. 227-237.
37. Mok, B. -H. (2004) Self-help group participation and empowerment in Hong Kong. Journal of Sociology and Social Welfare, 31:3, pp. 153-168.
38. NBHW (2004) God vård i livets slut. En kunskapsöversikt om vård och omsorg om äldre [Good End-of-life Care. Review of the Elderly Care], National Board of Health and Welfare, Stockholm
39. NBHW (2000) Äldreuppdraget. Slutrapport [The eldercare commission. Final report 2000:4], National Board of Health and Welfare, Stockholm
40. Olsson, L. -E., Svedberg, L. and Grassman, E. Jeppsson (2005) Medborgarnas insatser och engagemang i civilsamhället några grundläggande uppgifter från en ny befolkningsstudie [A Swedish National Survey of Volunteering and Informal Help and Care Giving 2005], Rapport till Justitiedepartementet, Stockholm
41. Pettersson, P. (2000) Kvalitet i livslånga tjänsterelationer [Quality in Life-long Service Relationships], Verbum, Stockholm
42. Prakash, S. and Selle, P. (2004) Investigating social capital. Comparative perspectives on civil society, participation and governance, Sage, New Delhi
43. Putnam, R. D. (1993) Making democracy work. Civic traditions in modern Italy, Princeton University Press, Princeton
44. Putnam, R. D. (1995) Bowling alone: America's declining social capital. Journal of Democracy, 6, pp. 65-78.
45. Putnam, R. D. (2000) Bowling alone: The collapse and revival of American community, Simon & Schuster, New York
46. Randall, F. and Downie, R. S. (1999) Palliative care ethics. A companion of all specialities, Oxford University Press, New York
47. Hermansson, A. Rinell (1990) Det sista året-omsorg och vård vid livets slut [The Last Year-Care at the End of Life], Uppsala Universitet, Uppsala
48. Saunders, C. and Kastenbaum, R. (1997) Hospice care on the international scene, Springer Publishing Co., New York
49. Schneider, J. (1999) Trusting that of God in everyone. Nonprofit and Voluntary Sector Quarterly, 29, pp. 269-295.
50. Siisiäinen, M. (2000) Two concepts of social capital: Bourdieu vs. Putnam. Paper presented at ISTR Fourth International Conference "The Third Sector: For what End and for Whom?" Trinity College Dublin University of Jyväskylä, pp. 5-8. University of Jyväskylä, Jyväskylä
51. SOU (2001) Döden angär oss alla. Värdig värd vid livets slut [Death Concerns Us All. Good Care at the End of Life], Fritzes, Stockholm
52. Stewart, A. L., Teno, J., Patrick, D. L. and Lynn, J. (1999) The concept of quality of life of dying persons in the context of health care. Journal of Pain and Symptom Management, 17:2, pp. 93-108.
53. Sundback, S. (2000) Medlemskapet i de lutherska kyrkorna i Norden [Membership in the Lutheran churches in the Nordic countries]. Folkkyrkor och religiös pluralism-den nordiska religiösa modellen [Folk Churches and Religious Pluralism-the Nordic Religious Model], Verbum, Stockholm
54. Ternestedt, B. -M. (1998) Livet pågår! Om vård av döende [Life Goes on! About Care of the Dying], Vårdförbundet, Stockholm
55. The Swedish Association of Local Authorities (1999) Närståendevård och samhällsansvar ett diskussionsmaterial [Care for Kin and Societal Responsibility], Kommentus, Stockholm
56. Trägårdh, L. (1999) Det civila samhället som analytiskt begrepp och politisk slogan [Civil society as concept and political slogan]. Civilsamhället [Civil Society], Fritzes, Stockholm
57. (2006) Comparative studies in civil society and its social implications, Berg, New York and Oxford
58. Turner, B. (2003) Social capital, inequality and health: The Durkheimian revival. Social Theory & Health, 1, pp. 1-3.
59. Walter, T. (1994) The revival of death, Routledge, London
60. Walter, T. (1996) Developments in spiritual care of the dying. Religion, 26, pp. 353-363.
61. Walter, T. (1999) A death in our street. Health & Place, 5, pp. 119-124.
62. Walter, T. (1999) On bereavement: The culture of grief, Open University Press, Buckingham
63. Walter, T. (2002) Spirituality in palliative care: Opportunity or burden?. Palliative Medicine, 16, pp. 133-139.
64. Whitaker, A. (2004) Livets sista boning. Anhörigskap, åldrande och död på sjukhem [The Final Home. Family Ties, Ageing and Death in a Nursing home], Stockholm University, Stockholm
65. Wikström, O. (2004) Själavården mellan språk och erfarenhet-religionspsykologiska perspektiv [Spiritual care between language and experience-a perspective of psychology of religion]. Mötet med den splittrade människan. Själavård i postmodern tid [Meeting the distracted man. Existential care in a post-modern era], Verbum, Stockholm
66. Wuthnow, R. (2003) Can religion revitalize civil society? An institutional perspective. Religion as social capital: Producing the common good, Baylor University Press, Waco
67. Yeung, A. B. (2004) Individually together. Volunteering in late modernity: Social work in the Finnish church, The Finnish Federation for Social Work and Health, Helsinki
68. Zetterberg, H. L. and Ljungberg, C. J. (1997) Värt land-den svenska socialstaten [Our country-the Swedish Social State], City University Press, Stockholm