Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness

Palliative Medicine

Volumn 26, Issue 7, 2012, Pages 930-938

  Henriksson, Annette ^a   Andershed, Birgitta ^b,c   Benzein, Eva ^c,d   Årestedt, Kristofer ^e  

^a ÖREBRO UNIVERSITY   (Sweden)

^b Gjøvik University   (Norway)

^c Ersta Skondal University College   (Sweden)

^d LINNAEUS UNIVERSITY   (Sweden)

^e LINKÖPING UNIVERSITY   (Sweden)

Author keywords

Family caregivers; life threatening illness; psychometric evaluation

Indexed keywords

ADAPTATION; ADULT; ARTICLE; CAREGIVER; CLINICAL COMPETENCE; CLINICAL PRACTICE; CRITICALLY ILL PATIENT; CRONBACH ALPHA COEFFICIENT; FACTORIAL ANALYSIS; FAMILY ASSESSMENT; FEMALE; HUMAN; MAJOR CLINICAL STUDY; MALE; PALLIATIVE THERAPY; PSYCHOMETRY; RATING SCALE; RELIABILITY; REWARD; SWEDEN; VALIDITY;

ADAPTATION, PSYCHOLOGICAL; ADULT; AGED; CAREGIVERS; FAMILY; FEMALE; HUMANS; MALE; MIDDLE AGED; PSYCHIATRIC STATUS RATING SCALES; PSYCHOMETRICS; QUESTIONNAIRES; REWARD; SWEDEN;

EID: 84866691534     PISSN: 02692163     EISSN: 1477030X     Source Type: Journal    
DOI: 10.1177/0269216311419987     Document Type: Article

References (49)

1. Ewertzon M, Lutzen K, Svensson E, Andershed B. Family members' involvement in psychiatric care: experiences of the healthcare professionals' approach and feeling of alienation. J Psychiatr Ment Health Nurs. 2010 ; 17: 422-432
2. Weitzner MA, Moody LN, McMillan SC. Symptom management issues in hospice care. Am J Hosp Palliat Care. 1997 ; 14: 190-195
3. McLaughlin D, Hasson F, Kernohan WG, Waldron M, McLaughlin M, Cochrane B, et al. Living and coping with Parkinson's disease: perceptions of informal carers. Palliat Med. 2010 ; 25: 177-182
4. Andershed B. Relatives in end-of-life care-part 1: a systematic review of the literature the five last years, January 1999-February 2004. J Clin Nurs. 2006 ; 15: 1158-1169
5. Emanuel EJ, Fairclough DL, Slutsman J, Emanuel LL. Understanding economic and other burdens of terminal illness: the experience of patients and their caregivers. Ann Intern Med. 2000 ; 132: 451-459
6. Haley WE, LaMonde LA, Han B, Narramore S, Schonwetter R. Family caregiving in hospice: effects on psychological and health functioning among spousal caregivers of hospice patients with lung cancer or dementia. Hosp J. 2001 ; 15: 1-18
7. Hebert RS, Schulz R. Caregiving at the end of life. J Palliat Med. 2006 ; 9: 1174-1187
8. Milberg A, Strang P. Meaningfulness in palliative home care: an interview study of dying cancer patients' next of kin. Palliat Support Care. 2003 ; 1: 171-180
9. Milberg A, Strang P, Jakobsson M. Next of kin's experience of powerlessness and helplessness in palliative home care. Support Care Cancer. 2004 ; 12: 120-128
10. Carlander I, Sahlberg-Blom E, Hellstrom I, Ternestedt BM. The modified self: family caregivers' experiences of caring for a dying family member at home. J Clin Nurs. 2010 ; 20: 1097-1105
11. Archbold PG, Stewart BJ, Greenlick MR, Harvath T. Mutuality and preparedness as predictors of caregiver role strain. Res Nurs Health. 1990 ; 13: 375-384
12. Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliat Care. 2010 ; 9: 17
13. Andershed B, Ternestedt BM. Development of a theoretical framework describing relatives' involvement in palliative care. J Adv Nurs. 2001 ; 34: 554-562
14. Aoun SM, Kristjanson LJ, Currow DC, Hudson PL. Caregiving for the terminally ill: at what cost?. Palliat Med. 2005 ; 19: 551-555
15. Linderholm M, Friedrichsen M. A desire to be seen: family caregivers' experiences of their caring role in palliative home care. Cancer Nurs. 2010 ; 33: 28-36
16. Brazil K, Bainbridge D, Rodriguez C. The stress process in palliative cancer care: a qualitative study on informal caregiving and its implication for the delivery of care. Am J Hosp Palliat Care. 2010 ; 27: 111-116
17. Hudson PL, Trauer T, Graham S, Grande G, Ewing G, Payne S, et al. A systematic review of instruments related to family caregivers of palliative care patients. Palliat Med. 2010 ; 24: 656-668
18. Schumacher KL, Stewart BJ, Archbold PG, Caparro M, Mutale F, Agrawal S. Effects of caregiving demand, mutuality, and preparedness on family caregiver outcomes during cancer treatment. Oncol Nurs Forum. 2008 ; 35: 49-56
19. Hudson P. A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care. Palliat Support Care. 2003 ; 1: 353-365
20. Schumacher KL, Stewart BJ, Archbold PG. Conceptualization and measurement of doing family caregiving well. Image J Nurs Sch. 1998 ; 30: 63-69
21. Pearlin LI, Mullan JT, Semple SJ, Skaff MM. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist. 1990 ; 30: 583-594
22. Archbold GP, Stewart B Family caregiving inventory. Portland: Oregon Health Sciences University ; 1996:
23. Schumacher KL, Stewart BJ, Archbold PG. Mutuality and preparedness moderate the effects of caregiving demand on cancer family caregiver outcomes. Nurs Res. 2007 ; 56: 425-433
24. Kneeshaw MF, Considine RM, Jennings J. Mutuality and preparedness of family caregivers for elderly women after bypass surgery. Appl Nurs Res. 1999 ; 12: 128-135
25. Carter JH, Lyons KS, Stewart BJ, Archbold PG, Scobee R. Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early-stage Parkinson's disease. Mov Disord. 2010 ; 25: 716-722
26. te Boekhorst S, Pot AM, Depla M, Smit D, de Lange J, Eefsting J. Group living homes for older people with dementia: the effects on psychological distress of informal caregivers. Aging Ment Health. 2008 ; 12: 761-768
27. Shyu YI, Chen MC, Chen ST, Wang HP, Shao JH. A family caregiver-oriented discharge planning program for older stroke patients and their family caregivers. J Clin Nurs. 2008 ; 17: 2497-2508
28. Leutz W, Capitman J, Ruwe M, Ching VN, Flaherty-Robb M, McKenzie M, et al. Caregiver education and support: results of a multi-site pilot in an HMO. Home Health Care Serv Q. 2002 ; 21: 49-72
29. Hudson P, Thomas T, Quinn K, Cockayne M, Braithwaite M. Teaching family carers about home-based palliative care: final results from a group education program. J Pain Symptom Manage. 2009 ; 38: 299-308
30. Hudson PL, Aranda S, Hayman-White K. A psycho-educational intervention for family caregivers of patients receiving palliative care: a randomized controlled trial. J Pain Symptom Manage. 2005 ; 30: 329-341
31. Hudson P, Quinn K, Kristjanson L, Thomas T, Braithwaite M, Fisher J, et al. Evaluation of a psycho-educational group programme for family caregivers in home-based palliative care. Palliat Med. 2008 ; 22: 270-280
32. Hudson PL, Hayman-White K. Measuring the psychosocial characteristics of family caregivers of palliative care patients: psychometric properties of nine self-report instruments. J Pain Symptom Manage. 2006 ; 31: 215-228
33. Archbold PG, Stewart BJ, Miller LL, Harvath TA, Greenlick MR, Van Buren L, et al. The PREP system of nursing interventions: a pilot test with families caring for older members. Res Nurs Health. 1995 ; 18: 3-16
34. Beaton DE, Bombardier C, Guillemin F, Ferraz MB. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000 ; 25: 3186-3191
35. McHorney CA, Tarlov AR. Individual-patient monitoring in clinical practice: are available health status surveys adequate?. Qual Life Res. 1995 ; 4: 293-307
36. D'Agostino RB, Belanger A, D'Agostino RGJR. A suggestion for using powerful and informative tests of normality. Am Stat. 1990 ;: 316-321
37. Flora DB, Curran PJ. An empirical evaluation of alternative methods of estimation for confirmatory factor analysis with ordinal data. Psychol Methods. 2004 ; 9: 466-491
38. Schumacker RE, Lomax R A beginner's guide to structural equation modeling. New Yersey: Lawrence Erlbaum Associates, Inc. ; 2004:
39. Brown TA Confirmatory factor analyses for applied research. New York: The Guilford Press ; 2006:
40. Chronbach L. Coefficient alpha and the internal structure of tests. Psychometrika. 1951 ; 16: 297-334
41. Kristoff W. The statistical theory of stepped-up reliability coefficients when a test has been divided into several equivalent parts. Psychometrika. 1963 ; 28: 221-238
42. Yen M, Lo LH. Examining test-retest reliability: an intra-class correlation approach. Nurs Res. 2002 ; 51: 59-62
43. Gagne P, Hancock GR. Measurement model quality, sample size and solution propriety in confirmatory factor models. Multivariate Behavioral Research. 2006 ; 41: 65-83
44. Grande G, Ewing G. Death at home unlikely if informal carers prefer otherwise: implications for policy. Palliat Med. 2008 ; 22: 971-972
45. Ward-Griffin C, McKeever P. Relationships between nurses and family caregivers: partners in care?. ANS Adv Nurs Sci. 2000 ; 22: 89-103
46. Stajduhar K, Funk L, Toye C, Grande G, Aoun S, Todd C. Part 1: Home-based family caregiving at the end of life: a comprehensive review of published quantitative research (1998-2008). Palliat Med. 2010 ; 24: 573-593
47. Funk L, Stajduhar K, Toye C, Aoun S, Grande G, Todd C. Part 2: Home-based family caregiving at the end of life: a comprehensive review of published qualitative research (1998-2008). Palliat Med. 2010 ; 24: 594-607
48. Fayers PM, Machin D Quality of life: assessment, analysis and interpretation of patient-reported outcomes. Chichester: Wiley ; 2007:
49. Hinkle DE, Viersma W, Jurs SG Applied statistics for the behavioral sciences. 5th edn. Boston: MA Houghton Mifflin ; 2003: