Factors Influencing Agreement in Symptom Ratings By Lung Cancer Patients and Their Significant Others

Journal of Pain and Symptom Management

Volumn 33, Issue 2, 2007, Pages 146-155

  Wennman Larsen, Agneta ^a   Tishelman, Carol ^a   Wengström, Yvonne ^a   Gustavsson, Petter ^a  

^a KAROLINSKA INSTITUTE   (Sweden)

Author keywords

assessment; family caregivers; lung cancer; palliative care; proxy; quality of life; Significant others; symptom

Indexed keywords

ADULT; AGED; ARTICLE; CAREGIVER; CONTROLLED STUDY; CUSTODY; DYADIC ADJUSTMENT SCALE; FEMALE; HUMAN; LUNG CANCER; MAJOR CLINICAL STUDY; MALE; PALLIATIVE THERAPY; QUALITY OF LIFE; SELF ESTEEM; SELF REPORT;

CAREGIVERS; HUMANS; LUNG NEOPLASMS; NURSING ASSESSMENT; ONCOLOGIC NURSING; PALLIATIVE CARE;

EID: 33846828473     PISSN: 08853924     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2006.07.019     Document Type: Article

References (35)

1. The National Board of Health and Welfare, Center for epidemiology. Cancer incidence in Sweden 2003. Official Statistics of Sweden, Stockholm, 2004.
2. Regional Oncologic Center, Stockholm-Gotland. Regional clinical practice guidelines for lung cancer 2000 in the Stockholm-Gotland region (Vårdprogram 2000, Lungcancer: Diagnostik, behandling och uppföljning i Stockholm-Gotlandsregionen). Stockholm, 2000.
3. Regional Oncologic Center, Stockholm-Gotland. Lung cancer-data report (Lungcancer-datasammanställning) 2003, Stockholm-Gotland region 1995-1999. Stockholm, 2004.
4. Fürst C.-J. Focus report: palliative oncological care in medical program work (Fokusrapport-Palliativ onkologisk vård, in Medicinskt programarbete) (2005), Stockholm County Council (Stockholms läns landsting), Stockholm
5. Valdimarsdottir U., Lind S., Fürst C.-J., and Adolfsson J. Survey of palliative units in Stockholm County (Kartläggning av Palliativa Vårdenheter i Stockholms län) (2005), Regional Oncologic Center Stockholm-Gotland, Stockholm
6. Degner L.F., and Sloan J.A. Symptom distress in newly diagnosed ambulatory cancer patients and as a predictor of survival in lung cancer. J Pain Symptom Manage 10 6 (1995) 423-431
7. Cooley M.E. Symptoms in adults with lung cancer. A systematic research review. J Pain Symptom Manage 19 2 (2000) 137-153
8. Sprangers M.A., and Aaronson N.K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease: a review. J Clin Epidemiol 45 7 (1992) 743-760
9. Lampic C., and Sjoden P.O. Patient and staff perceptions of cancer patients' psychological concerns and needs. Acta Oncol 39 1 (2000) 9-22
10. Lobchuk M.M., and Degner L.F. Patients with cancer and next-of-kin response comparability on physical and psychological symptom well-being: trends and measurement issues. Cancer Nurs 25 5 (2002) 358-374
11. Sneeuw K.C., Sprangers M.A., and Aaronson N.K. The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease. J Clin Epidemiol 55 11 (2002) 1130-1143
12. Tang S.T., and McCorkle R. Use of family proxies in quality of life research for cancer patients at the end of life: a literature review. Cancer Invest 20 7-8 (2002) 1086-1104
13. von Essen L. Proxy ratings of patient quality of life-factors related to patient-proxy agreement. Acta Oncol 43 3 (2004) 229-234
14. McPherson C.J., and Addington-Hall J.M. Judging the quality of care at the end of life: can proxies provide reliable information?. Soc Sci Med 56 1 (2003) 95-109
15. Kurtz M.E., Kurtz J.C., Given C.C., and Given B. Concordance of cancer patient and caregiver symptom reports. Cancer Pract 4 4 (1996) 185-190
16. Sneeuw K.C., Aaronson N.K., Sprangers M.A., et al. Comparison of patient and proxy EORTC QLQ-C30 ratings in assessing the quality of life of cancer patients. J Clin Epidemiol 51 7 (1998) 617-631
17. Sneeuw K.C., Aaronson N.K., Sprangers M.A., et al. Evaluating the quality of life of cancer patients: assessments by patients, significant others, physicians and nurses. Br J Cancer 81 1 (1999) 87-94
18. Yang P., Allen M.S., Aubry M.C., et al. Clinical features of 5,628 primary lung cancer patients: experience at Mayo Clinic from 1997 to 2003. Chest 128 1 (2005) 452-462
19. Koyi H., Hillerdal G., and Branden E. A prospective study of a total material of lung cancer from a county in Sweden 1997-1999: gender, symptoms, type, stage, and smoking habits. Lung Cancer 36 1 (2002) 9-14
20. Mountain C.F. Revisions in the international system for staging lung cancer. Chest 111 6 (1997) 1710-1717
21. Oncologic Center. National clinical practice guidelines for lung cancer 2001 (Lung cancer Nationellt Vårdprogram 2001) (2001), Regional Oncologic Center, Uppsala
22. Tishelman C., Degner L.F., Rudman A., et al. Symptoms in patients with lung carcinoma-distinguishing distress from intensity. Cancer 104 9 (2005) 2013-2021
23. Aaronson N.K., Ahmedzai S., Bergman B., et al. The QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology. J Natl Cancer Inst 85 5 (1993) 365-376
24. Bergman B., Aaronson N.K., Ahmedzai S., et al. The EORTC QLQ-LC13: a modular supplement to the EORTC core quality of life questionnaire (QLQ-C30) for use in lung cancer clinical trials. Eur J Cancer 30 (1994) 635-642
25. Given C.W., Given B., Stommel M., et al. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Res Nurs Health 15 4 (1992) 271-283
26. Nijboer C., Triemstra M., Tempelaar R., et al. Measuring both negative and positive reactions to giving care to cancer patients: psychometric qualities of the caregiver reaction assessment (CRA). Soc Sci Med 48 9 (1999) 1259-1269
27. Persson C, Wennman-Larsen A, Gustavsson J. Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale (CRA). Submitted for publication. Stockholm, 2006.
28. Montazeri A., Milroy R., Hole D., et al. Quality of life in lung cancer patients: as an important prognostic factor. Lung Cancer 31 2-3 (2001) 233-240
29. Helsing M., Bergman B., Tahning L., and Hero U. Quality of life and survival in patients with advanced non-small cell lung cancer receiving supportive care plus chemotherapy with carboplatin and etoposide or supportive care only. A multicentre randomised phase III trial. Joint lung cancer study group. Eur J Cancer 34 7 (1998) 1036-1044
30. McGraw K.O., and Wong S.P. Forming inferences about some intraclass correlation coefficients. Psychol Methods 1 1 (1996) 30-46
31. Cicchetti D.V. The precision of reliability and validity estimates re-visited: distinguishing between clinical and statistical significance of sample size requirements. J Clin Exp Neuropsychol 23 5 (2001) 695-700
32. Cohen J., Cohen P., West S., and Aiken L. Applied multiple regression/correlation analysis for the behavioral sciences (2003), Lawrence Erlbaum Associates, Mahwah, NJ
33. Douglass L.G. Reciprocal support in the context of cancer: perspectives of the patient and spouse. Oncol Nurs Forum 24 9 (1997) 1529-1536
34. Rothman M.L., Hedrick S.C., Bulcroft K.A., et al. The validity of proxy-generated scores as measures of patient health status. Med Care 29 2 (1991) 115-124
35. Kurtz M.E., Kurtz J.C., Stommel M., et al. Predictors of depressive symptomatology of geriatric patients with lung cancer-a longitudinal analysis. Psychooncology 11 1 (2002) 12-22