Outcomes in different residential settings for people with intellectual disability: A systematic review

American Journal on Intellectual and Developmental Disabilities

Volumn 114, Issue 3, 2009, Pages 193-222

  Kozma, Agnes ^a   Mansell, Jim ^a   Beadle Brown, Julie ^a  

^a UNIVERSITY OF KENT   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

PSYCHOTROPIC AGENT;

ADAPTIVE BEHAVIOR; DEINSTITUTIONALIZATION; DEMOGRAPHY; FAMILY RELATION; HUMAN; MENTAL PATIENT; METHODOLOGY; OUTCOME ASSESSMENT; PERSONAL AUTONOMY; PSYCHOLOGICAL ASPECT; QUALITY OF LIFE; REVIEW; SOCIAL SUPPORT; STATISTICS;

ADAPTATION, PSYCHOLOGICAL; DEINSTITUTIONALIZATION; FAMILY RELATIONS; HUMANS; MENTALLY DISABLED PERSONS; OUTCOME ASSESSMENT (HEALTH CARE); PERSONAL AUTONOMY; PSYCHOTROPIC DRUGS; QUALITY OF LIFE; RESIDENCE CHARACTERISTICS; SOCIAL SUPPORT;

EID: 67651085713     PISSN: 19447558     EISSN: None     Source Type: Journal    
DOI: 10.1352/1944-7558-114.3.193     Document Type: Review

References (104)

1. Ager, A., Myers, F., Kerr, P., Myles, S., & Green, A. (2001). Moving home: Social integration for adults with intellectual disabilities resettling into community provision. Journal of Applied Research in Intellectual Disabilities, 14, 392-400.
2. Ahmed, Z., Fraser, W., Kerr, M. P., Kiernan, C., Emerson, E., Robertson, J., et al. (2000). Reducing antipsychotic medication in people with a learning disability. British Journal of Psychiatry, 176, 42-46.
3. Baker, P. A. (2007). Individual and service factors affecting deinstitutionalization and community use of people with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 20, 105-109.
4. Beadle-Brown, J., Mansell, J., & Kozma, A. (2007). Deinstitutionalization in intellectual disabilities. Current Opinion in Psychiatry, 20, 437-442.
5. Bigby, C. (2004). But why are these questions being asked? A commentary on Emerson (2004). Journal of Intellectual and Developmental Disability, 29, 202-205. (Pubitemid 39280356)
6. Bigby, C., & Fyffe, C. (2006). Tensions between institutional closure and deinstitutionalisation: What can be learned from Victoria's institutional redevelopment? Disability & Society, 21, 567-581. (Pubitemid 44771300)
7. Bryan, F., Allan, T., & Russell, L. (2000). The move from a long-stay- learning disabilities hospital to community homes: A comparison of clients' nutritional status. Journal of Human Nutrition and Dietetics, 13, 265-270. (Pubitemid 30648995)
8. Chou, Y. C., Lin, L., Pu, C., Lee, W., & Chang, C. (2008). Outcomes and costs of residential services for adults with intellectual disabilities in Taiwan: A comparative evaluation. Journal of Applied Research in Intellectual Disabilities, 21, 114-125.
9. Conroy, J., & Adler, M. (1998). Mortality among Pennhurst class members, 1978 to 1989: A brief report. Mental Retardation, 36, 380-385. (Pubitemid 128459447)
10. Conroy, J., Spreat, S., Yuskauskas, A., & Elks, M. (2003). The Hissom closure outcomes study: A report on six years of movement to supported living. Mental Retardation, 41, 263-275.
11. Cummins, R., & Lau, A. (2004). Cluster housing and the freedom of choice: A response to Emerson 2004. Journal of Intellectual & Developmental Disability, 29, 198-201.
12. Emerson, E. (2001). Challenging behaviour: Analysis and intervention in people with severe learning disabilities (2nd ed.). Cambridge: Cambridge University Press.
13. Emerson, E. (2004a). Cluster housing and freedom of choice: A response to Cummins and Lau's and Bigby's commentaries. Journal of Intellectual & Developmental Disability, 29, 206-210.
14. Emerson, E. (2004b). Cluster housing for adults with intellectual disabilities. Journal of Intellectual & Developmental Disability, 29, 187-197.
15. Emerson, E., & Hatton, C. (1994). Moving out: Relocation from hospital to community. London: Her Majesty's Stationery Office.
16. Emerson, E., & McVilly, K. (2004). Friendship activities of adults with intellectual disabilities in supported accommodation in Northern England. Journal of Applied Research in Intellectual Disabilities, 17, 191-197. (Pubitemid 39234184)
17. Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2000a). Treatment and management of challenging behaviours in residential settings. Journal of Applied Research in Intellectual Disabilities, 13, 197-215.
18. Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2000b). Quality and costs of communitybased residential supports, village communities, and residential campuses in the United Kingdom. American Journal on Mental Retardation, 105, 81-102. (Pubitemid 30413395)
19. Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2001). Quality and costs of supported living residences and group homes in the United Kingdom. American Journal on Mental Retardation, 106, 401-415.
20. Emerson, E., Robertson, J., Gregory, N., Kessissoglou, S., Hatton, C., Hallam, A., et al. (2000). The quality and costs of communitybased residential supports and residential campuses for people with severe and complex disabilities. Journal of Intellectual & Developmental Disability, 25, 263-279. (Pubitemid 32003011)
21. Felce, D. (1998). The determinants of staff and resident activity in residential services for people with severe intellectual disability: Moving beyond size, building design, location and number of staff 1. Journal of Intellectual & Developmental Disability, 23, 103-119.
22. Felce, D., Lowe, K., Beecham, J., & Hallam, A. (2000). Exploring the relationships between costs and quality of services for adults with severe intellectual disabilities and the most severe challenging behaviours in Wales: A multivariate regression analysis. Journal of Intellectual & Developmental Disability, 25, 307-326.
23. Felce, D., Lowe, K., Perry, J., Baxter, H., Jones, E., Hallam, A., et al. (1998). Service support to people in Wales with severe intellectual disability and the most severe challenging behaviours: Processes, outcomes and costs. Journal of Intellectual Disability Research, 42, 390-408. (Pubitemid 28488440)
24. Forrester-Jones, R., Carpenter, J., Coolen-Schrijner, P., Cambridge, P., Tate, A., Beecham, J., et al. (2006). The social networks of people with intellectual disability living in the community 12 years after resettlement from long-stay hospitals. Journal of Applied Research in Intellectual Disabilities, 19, 285-295. (Pubitemid 44759571)
25. Freyhoff, G., Parker, C., Coue, M., & Greig, N. (Eds.). (2004). Included in society: Results and recommendations of the European research initiative on community-based residential alternatives to disabled people. Brussels: Inclusion Europe.
26. Fujiura, G., & Parish, S. (2007). Emerging policy challenges in intellectual disabilities. Mental Retardation and Developmental Disabilities Research Reviews, 13, 188-194. (Pubitemid 47092773)
27. Golding, L., Emerson, E., & Thornton, A. (2005). An evaluation of specialized communitybased residential supports for people with challenging behaviour. Journal of Intellectual Disabilities, 9, 145-154. (Pubitemid 40895253)
28. Gregory, N., Robertson, J., Kessissoglou, S., Emerson, E., & Hatton, C. (2001). Factors associated with expressed satisfaction among people with intellectual disability receiving residential supports. Journal of Intellectual Disability Research, 45, 279-291. (Pubitemid 32734354)
29. Hatton, C. (1998). Whose quality of life is it anyway? Some problems with the emerging quality of life consensus. Mental Retardation, 36, 104-115.
30. Heller, T. (2002). Residential settings and outcomes for individuals with intellectual disabilities. Current Opinion in Psychiatry, 15, 503-508.
31. Heller, T., Factor, A. R., Hsieh, K., & Hahn, J. E. (1998). Impact of age and transitions out of nursing homes for adults with developmental disabilities. American Journal on Mental Retardation, 103, 236-248. (Pubitemid 29393703)
32. Heller, T., Miller, A. B., & Factor, A. (1998). Environmental characteristics of nursing homes and community-based settings, and the well-being of adults with intellectual disability. Journal of Intellectual Disability Research, 42, 418-428. (Pubitemid 28488442)
33. Heller, T., Miller, A. B., & Factor, A. (1999). Autonomy in residential facilities and community functioning of adults with mental retardation. Mental Retardation, 37, 449-457.
34. Heller, T., Miller, A. B., & Hsieh, K. (2002). Eightyear follow-up of the impact of environmental characteristics on well-being of adults with developmental disabilities. Mental Retardation, 40, 366-378.
35. Howe, J., Horner, R. H., & Newton, J. S. (1998). Comparison of supported living and traditional residential services in the state of Oregon. Mental Retardation, 36, 1-11. (Pubitemid 128714681)
36. Hundert, J., Walton-Allen, N., Vasdev, S., Cope, K., & Summers, J. (2003). A comparison of staff-resident interactions with adults with developmental disabilities moving from institutional to community living. Journal on Developmental Disabilities, 10, 93-112.
37. Kearney, C. A., Bergan, K. P., & McKnight, T. J. (1998). Choice availability and persons with mental retardation: A longitudinal and regression analysis. Journal of Developmental and Physical Disabilities, 10, 291-305. (Pubitemid 128404468)
38. Kim, S. (2001). Behavioural outcomes of deinstitutionalisation for people with intellectual disability: A review of US studies conducted between 1980 and 1999. Journal of Intellectual & Developmental Disability, 26, 35-50.
39. Larson, S. A., & Lakin, K. C. (1991). Parent attitudes about residential placement before and after deinstitutionalization: A research synthesis. Journal of the Association for Persons with Severe Handicaps, 16, 25-38.
40. Lerman, P., Apgar, D. H., & Jordan, T. (2003). Deinstitutionalization and mortality: Findings of a controlled research design in New Jersey. Mental Retardation, 41, 225-236.
41. Lerman, P., Apgar, D. H., & Jordan, T. (2005). Longitudinal changes in adaptive behaviors of movers and stayers: Findings from a controlled research design. Mental Retardation, 43, 25-42. (Pubitemid 40269609)
42. Macleod, F. J., Morrison, F., Swanston, M., & Lindsay, W. (2002). Effects of relocation on the communication and challenging behaviours of four people with severe learning disabilities. British Journal of Learning Disabilities, 30, 32-37.
43. Mansell, J. (2006). Deinstitutionalisation and community living: Progress, problems and priorities. Journal of Intellectual and Developmental Disability, 31, 65-76.
44. Mansell, J., Beadle-Brown, J., & Clegg, S. (2004). The situation of large residential institutions in Europe. In G. Freyhoff, C. Parker, M. Coue, & N. Greig (Eds.), Included in society: Results and recommendations of the European Research Initiative on Community-Based Residential Alternatives to Disabled People. Brussels: Inclusion Europe.
45. Mansell, J., Beadle-Brown, J., MacDonald, S., & Ashman, B. (2003). Resident involvement in activity in small community homes for people with learning disabilities. Journal of Applied Research in Intellectual Disabilities, 16, 63-74. (Pubitemid 38422525)
46. Mansell, J., & Ericsson, K. (Eds.). (1996). Deinstitutionalization and community living. Intellectual disability services in Britain, Scandinavia and the USA. London: Chapman & Hall.
47. Mansell, J., Felce, D., Jenkins, J., de Kock, U., & Toogood, A. (1987). Developing staffed housing for people with mental handicaps. Tunbridge Wells, Kent, UK: Costello.
48. Mansell, J., Knapp, M., Beadle-Brown, J., & Beecham, J. (2007). Deinstitutionalisation and community living-Outcomes and costs: Report of a European study (Vol. 2: main report). Canterbury: Tizard Centre, University of Kent.
49. Matson, J., Bamburg, J., Mayville, E., Pinkston, J., Bielecki, J., Kuhn, D., et al. (2000). Psychopharmacology and mental retardation: A 10 year review (1990-1999). Research in Developmental Disabilities, 21, 263-296.
50. McConkey, R. (2000). Community care and resettlement. Current Opinion in Psychiatry, 13, 491-495.
51. McConkey, R. (2007). Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings. Journal of Intellectual Disability Research, 51, 207-217.
52. McConkey, R., McConaghie, J., Mezza, F., fie Wilson, J. (2003). Moving from long-stay hospitals: The views of Northern Irish patients and relatives. Journal of Intellectual Disabilities, 7, 78-93.
53. McConkey, R., Walsh-Gallagher, D., & Sinclair, M. (2005). Social inclusion of people with intellectual disabilities: The impact of place of residence. Irish Journal of Psychological Medicine, 22, 10-14. (Pubitemid 40380429)
54. McGillvray, J., & McCabe, M. P. (2005). The relationship between residence and the pharmacological management of challenging behavior in individuals with intellectual disability. Journal of Developmental and Physical Disabilities, 17, 311-325.
55. Miller, E., Cooper, S. A., Cook, A., & Petch, A. (2008). Outcomes important to people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 5, 150-158.
56. Myers, F., Agers, A., Kerr, P., & Myles, S. (1998). Outside looking in? Studies of the community integration of people with learning disabilities. Disability & Society, 13, 389-413. (Pubitemid 128541147)
57. Noonan Walsh, P., Emerson, E., Lobb, C., Hatton, C., Bradley, V., Schalock, R., et al. (2007). Supported accommodation services for people with intellectual disabilities: A review of models and instruments used to measure quality of life in different various settings. Dublin, Ireland: National Disability Authority.
58. Noonan Walsh, P., Linehan, C., Hillery, J., Durkan, J., Emerson, E., Hatton, C., et al. (2001). Family views of the quality of residential supports. Journal of Applied Research in Intellectual Disabilities, 14, 292-309. (Pubitemid 33681579)
59. Nøttestad, J., fie Linaker, O. (1999). Psychiatric health needs and services before and after complete deinstitutionalisation of people with intellectual disability. Journal of Intellectual Disability Research, 43, 523-530.
60. Nøttestad, J., & Linaker, O. (2002). Predictors for attacks on people after deinstitutionalization. Journal of Intellectual Disability Research, 46, 493-502.
61. Nøttestad, J., & Linaker, O. (2003). Psychotropic drug use among people with intellectual disability before and after deinstitutionalization. Journal of Intellectual Disability Research, 47, 464-471. (Pubitemid 37080688)
62. O'Brien, K. F., & Zaharia, E. S. (1998). Recent mortality patterns in California. Mental Retardation, 36, 408-411.
63. O'Brien, P. (2001). Perceptions of change, advantage and quality of life for people with intellectual disability who left a long stay institution to live in the community. Journal of Intellectual & Developmental Disability, 26, 67-82.
64. Perry, J., & Felce, D. (2005). Correlation between subjective and objective measures of outcome in staffed community housing. Journal of Intellectual Disability Research, 49, 278-287.
65. Read, S. (2004). Mortality of people with learning disability following relocation from long-stay hospital to social care. Journal of Intellectual Disabilities, 8, 299-314.
66. Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., & Hallam, A. (2000). Receipt of psychotropic medication by people with intellectual disability in residential settings. Journal of Intellectual Disability Research, 44, 666-676.
67. Robertson, J., Emerson, E., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., et al. (2001). Social networks of people with mental retardation in residential settings. Mental Retardation, 39, 201-214. (Pubitemid 33599018)
68. Robertson, J., Emerson, E., Gregory, N., Hatton, C., Turner, S., Kessissoglou, S., et al. (2000). Lifestyle related risk factors for poor health in residential settings for people with intellectual disabilities. Research in Developmental Disabilities, 21, 469-486.
69. Robertson, J., Emerson, E., Hatton, C., Gregory, N., Kessissoglou, S., Hallam, A., et al. (2001). Environmental opportunities and supports for exercising self-determination in community-based residential settings. Research in Developmental Disabilities, 22, 487-502. (Pubitemid 33051052)
70. Rothman, D. J., & Rothman, S. M. (2005). The Willowbrook wars. Bringing the mentally disabled into the community. Somerset, NJ: Transaction Publishers.
71. Saloviita, T. (2002). Challenging behaviour, and staff responses to it, in residential environments for people with intellectual disability in Finland. Journal of Intellectual & Developmental Disability, 27, 21-30.
72. Saloviita, T., & Aberg, M. (2000). Self-determination in hospital, community group homes, and apartments. British Journal of Developmental Disabilities, 46, 23-29. (Pubitemid 30050396)
73. Shavelle, R., & Strauss, D. (1999). Mortality of persons with developmental disabilities after transfer into community care: A 1996 update. American Journal on Mental Retardation, 104, 143-147. (Pubitemid 29394895)
74. Shavelle, R., Strauss, D., & Day, S. (2005). Deinstitutionalization in California: Mortality of persons with developmental disabilities after transfer into community care, 1997-1999. Journal of Data Science, 3, 371-380.
75. Spreat, S., & Conroy, J. (2002). The impact of deinstitutionalization on family contact. Research in Developmental Disabilities, 23, 202-210.
76. Spreat, S., Conroy, J., & Fullerton, A. (2005). A cost-benefit analysis of community and institutional placements for persons with mental retardation in Oklahoma. Research in Developmental Disabilities, 26, 17-31. (Pubitemid 39601460)
77. Spreat, S., Conroy, J., & Rice, D. (1998). Improve quality in nursing homes or institute community placement? Implementation of OBRA for individuals with mental retardation. Research in Developmental Disabilities, 19, 507-518. (Pubitemid 28546044)
78. Stancliffe, R., & Abery, B. (1997). Longitudinal study of deinstitutionalization and the exercise of choice. Mental Retardation, 35, 159169.
79. Stancliffe, R., Abery, B., & Smith, J. (2000). Personal control and the ecology of community living settings: Beyond living-unit size and type. American Journal on Mental Retardation, 105, 431-454.
80. Stancliffe, R., Emerson, E., & Lakin, C. (2004). Residential supports. In E. Emerson, C. Hatton, T. Thompson, & T. Parmenter (Eds.), Applied research in intellectual disabilities (pp. 459-478). Chichester, W. Sussex, England: Wiley.
81. Stancliffe, R., Hayden, M., & Lakin, K. (1999). Interventions for challenging behavior in residential settings. American Journal on Mental Retardation, 104, 364-375.
82. Stancliffe, R., Hayden, M., Larson, S., & Lakin, K. (2002). Longitudinal study on the adaptive and challenging behaviors of deinstitutionalized adults with mental retardation. American Journal on Mental Retardation, 107, 302-320. (Pubitemid 34753651)
83. Stancliffe, R., Jones, E., Mansell, J., & Lowe, K. (2008). Active support: A critical review and commentary. Journal of Intellectual & Developmental Disability, 33, 196-214.
84. Stancliffe, R., & Keane, S. (2000). Outcomes and costs of community living: A matched comparison of group homes and semi-independent living. Journal of Intellectual & Developmental Disability, 25, 281-305. (Pubitemid 32003012)
85. Stancliffe, R., & Lakin, K. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal on Mental Retardation, 102, 552-568. (Pubitemid 28224435)
86. Stancliffe, R., & Lakin, K. (2006). Longitudinal frequency and stability of family contact in institutional and community living. Mental Retardation, 44, 418-429.
87. Stancliffe, R., Lakin, K., Doljanac, R., Byun, S., Taub, S., & Chiri, G. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities, 45, 380-390.
88. Strauss, D., Anderson, T. W., Shavelle, R., Sheridan, F., & Trenkle, S. (1998). Causes of death of persons with developmental disabilities: Comparison of institutional and community residents. Mental Retardation, 36, 386-391. (Pubitemid 128459448)
89. Strauss, D., Kastner, T. A., & Shavelle, R. (1998). Mortality of adults with developmental disabilities living in California institutions and community care, 1985-1994. Mental Retardation, 36, 360-371. (Pubitemid 128459445)
90. Strauss, D., Shavelle, R., Anderson, T. W., & Baumeister, A. (1998). External causes of death among persons with developmental disability: The effect of residential placement. American Journal of Epidemiology, 147, 855-862. (Pubitemid 28243458)
91. Strauss, D., Shavelle, R., Baumeister, A., & Anderson, T. W. (1998). Mortality in persons with developmental disabilities after transfer into community care. American Journal on Mental Retardation, 102, 569-581. (Pubitemid 28224436)
92. Sutherland, G., Couch M. A., & Iacono, T. (2002). Health issues for adults with developmental disability. Research in Developmental Disabilities, 23, 422-445. (Pubitemid 35300230)
93. Tossebro, J., & Lundeby, H. (2006). Family attitudes to deinstitutionalisation: Changes during and after reform years in a Scandinavian country. Journal of Intellectual& Developmental Disability, 31, 115-119. (Pubitemid 43932736)
94. Vann, B. H., & Šiška, J. (2006). From 'cage beds' to inclusion: The long road for individuals with intellectual disability in the Czech Republic. Disability & Society, 21, 425-439.
95. Verdugo, M., Schalock, R., Keith, K., & Stancliffe, R. (2005). Quality of life and its measurement: Important principles and guidelines. Journal of Intellectual Disability Research, 49, 707-717.
96. Walsh, K., & Kastner, T. (2006). The Hissom closure in Oklahoma: Errors and interpretation problems in Conroy et al. (2003). Mental Retardation, 44, 353-369.
97. Walsh, K., Kastner, T., & Green, R. (2003). Cost comparisons of community and institutional residential settings: Historical review of selected research. Mental Retardation, 41, 103-122. (Pubitemid 37500070)
98. Wehmeyer, M. L., & Bolding, N. (1999). Selfdetermination across living and working environments: A matched-samples study of adults with mental retardation. Mental Retardation, 37, 353-363.
99. Young, L. (2000). A preliminary report on the closure of the Challinor Centre. Journal of Intellectual & Developmental Disability, 25, 119-126.
100. Young, L. (2001). Closure of the Challinor Centre II: An extended report on 95 individuals after 12 months of community living. Journal of Intellectual & Developmental Disability, 26, 51-66.
101. Young, L. (2006). Community and cluster centre residential services for adults with intellectual disability: Long-term results from an Australian-matched sample. Journal of Intellectual Disability Research, 50, 419-431.
102. Young, L., & Ashman, A. F. (2004a). Deinstitutionalisation in Australia Part II: Results from a long-term study. British Journal of Developmental Disabilities, 50, 29-45. (Pubitemid 38155567)
103. Young, L., & Ashman, A. F. (2004b). Deinstitutionalization for older adults with severe mental retardation: Results from Australia. American Journal on Mental Retardation, 109, 397-412.
104. Young, L., Sigafoos, J., Suttie, J., Ashman, A., & Grevell, P. (1998). Deinstitutionalisation of persons with intellectual disabilities: A review of Australian studies. Journal of Intellectual & Developmental Disability, 23, 155-170. (Pubitemid 28339839)