Service support to people in Wales with severe intellectual disability and the most severe challenging behaviours: Processes, outcomes and costs

Journal of Intellectual Disability Research

Volumn 42, Issue 5, 1998, Pages 390-408

  Felce, D ^a,c   Lowe, K ^a   Perry, J ^a   Baxter, H ^a   Jones, E ^a   Hallam, A ^b   Beecham, J ^b  

^a CARDIFF UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF KENT   (United Kingdom)

^c Welsh Ctr for Learning Disabilities   (United Kingdom)

Author keywords

Challenging behaviour; Mental retardation; Service evaluation; Severe disability

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; BEHAVIOR; CAREGIVER; CLINICAL ARTICLE; COMMUNITY CARE; CONTROLLED STUDY; DISABILITY; FAMILY; FEMALE; HEALTH CARE COST; HEALTH CARE QUALITY; HOUSEHOLD; HUMAN; INTELLECTUAL IMPAIRMENT; JOB PERFORMANCE; LEARNING DISORDER; MALE; MENTAL HEALTH SERVICE; SOCIAL SUPPORT; SOCIAL WELFARE; TREATMENT OUTCOME; UNITED KINGDOM;

ADULT; BEHAVIOR THERAPY; COMMUNITY MENTAL HEALTH SERVICES; FEMALE; HEALTH CARE COSTS; HUMANS; MALE; MENTAL DISORDERS; MENTAL RETARDATION; MIDDLE AGED; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); SEVERITY OF ILLNESS INDEX; SOCIAL SUPPORT; WALES;

EID: 0031768117     PISSN: 09642633     EISSN: None     Source Type: Journal    
DOI: 10.1046/j.1365-2788.1998.00153.x     Document Type: Article

References (41)

1. Aman M. G. & Singh N. N. (1986) The Aberrant Behavior Checklist. Slosson Educational Publications, New York, NY.
2. Beecham J. & Knapp M. R. J. (1992) Costing psychiatric interventions. In: Measuring Mental Health Needs (eds G. J. Thornicroft, C. R. Brewin & J. K. Wing), pp. 163-83. Gaskell, London.
3. Emerson E., Beasley F., Offord G. & Mansell J. (1992) An evaluation of hospital-based specialised staffed housing for people with seriously challenging behaviours. Journal of Intellectual Disability Research 36, 291-307.
4. Emerson E. & Felce D. (1997) Hand held computer technologies for behavioural observation in residential settings. Paper given at the 30th Annual Gatlinburg Conference, Riverside, CA.
5. Emerson E. & Hatton C. (1994) Moving Out: Relocation from Hospital to Community. HMSO, London.
6. Felce D. (1986) Accommodating adults with severe and profound mental handicaps: Comparative revenue costs. Mental Handicap 14, 104-7.
7. Felce D. (1989) Staffed Housing for Adults with Severe and Profound Mental Handicaps: the Andover Project. BIMH Publications, Kidderminster.
8. Felce D. (1994) Costs, quality and staffing in services for people with severe learning disabilities. Journal of Mental Health 3, 495-506.
9. Felce D. (1996) The quality of support for ordinary living: staff:resident interactions and resident activity. In: Deinstitutionalization and Community Living: Intellectual Disability Services in Britain, Scandinavia and the USA (eds J. Mansell & K. Ericcson), pp. 117-33. Chapman and Hall, London.
10. Felce D. (1997) Defining and applying the concept of quality of life. Journal of Intellectual Disability Research 41, 126-43.
11. Felce D., Lowe K. & Blackman D. (1995) Resident behaviour and staff interaction with people with intellectual disabilities and seriously challenging behaviour in residential services. Mental Handicap Research 8, 272-95.
12. Felce D. & Perry J. (1995) The extent of support for ordinary living provided in staffed housing: the relationship between staffing levels, resident dependency, staff:resident interactions and resident activity patterns. Social Science and Medicine 40, 799-810.
13. H. M. Treasury (1989) Discount rates in the public sector. Press Office Circular 32/89, 5 April.
14. Hallam A. J. (1996) Costs and Outcomes for People with Special Psychiatric Needs. Mental Health Research Review 3. Personal Social Services Research Unit, University of Kent at Canterbury, Canterbury.
15. Harris P. & Russell O. (1989) The Prevalence of Aggressive Behaviour Among People with Learning Difficulties (Mental Handicap) in a Single Health District: Interim Report. Norah Fry Research Centre, University of Bristol, Bristol.
16. Hatton C., Emerson E., Robertson J., Henderson D. & Cooper J. (1995) An Evaluation of the Quality and Costs of Services for Adults with Severe Learning Disabilities and Sensory Impairments. Hester Adrian Research Centre, Manchester University, Manchester.
17. Holmes N., Shah A. & Wing L. (1982) The Disability Assessment Schedule: a brief screening device for use with the mentally retarded. Psychological Medicine 2, 879-90.
18. Knapp M. R. J. (1995) The economic perspective: framework and principles. In: The Economic Evaluation of Mental Health Care (ed. M. R. J. Knapp), pp. 1-26. Arena, Ashgate Publishing Ltd, Aldershot.
19. Knapp M. R. J., Beecham J. & Allen C. (1989) The methodology for costing community and hospital services used by clients of the care in the community demonstration programme. Discussion Paper 647, Personal Social Services Research Unit, University of Kent at Canterbury, Canterbury.
20. Knapp M., Cambridge P., Thomason C., Beecham J., Allen C. & Darton R. (1992) Care in the Community: Challenge and Demonstration. Ashgate, Aldershot.
21. Knapp M. & Mansell J. (1993) Assessing costs and benefits. In: Severe Learning Disabilities and Challenging Behaviours: Designing High Quality Services (eds E. Emerson, P. McGill & J. Mansell), pp. 282-96. Chapman and Hall, London,
22. Lowe K. & de Paiva S. (1991) NIMROD: An Overview. HMSO, London.
23. Lowe K., de Paiva S. & Felce D. (1993) Effects of a community-based service on adaptive and maladaptive behaviour: a longitudinal study. Journal of Intellectual Disability Research 37, 3-22.
24. Lowe K., Felce D. & Blackman D. (1995) People with learning disabilities and challenging behaviour: the characteristics of those referred and not referred to specialist teams. Psychological Medicine 25, 595-603.
25. Lowe K., Felce D. & Blackman D. (1996) Challenging behaviour: the effectiveness of specialist support teams. Journal of Intellectual Disability Research 40, 336-47.
26. Lowe K., Felce D., Perry J., Baxter H. & Jones E. (1998) The characteristics and residential situations of people with severe intellectual disability and the most severe challenging behaviour in Wales. Journal of Intellectual Disability Research 42, 375-89.
27. Mannion R., Smith K., Ferguson S., Hennessy S., Emerson E., Kiernan C. & Alborz A. (1997) The costs of packages of care for people with learning disabilities and challenging behaviour. In: Unit Costs of Health and Social Care (eds A. Netten & J. Dennett), pp. 100-2. Personal Social Services Research Unit, University of Kent at Canterbury, Canterbury.
28. Mencap London Division (1989) The Challenge: Research Into Services and Support for People Who Have a Severe Mental Handicap and a Severe Behaviour Disorder. Mencap, London.
29. Netten A. & Dennett J. (1996) Unit Costs of Health and Social Care 1996. Personal Social Services Research Unit, University of Kent at Canterbury, Canterbury.
30. Newman I. & Emerson E. (1991) Specialised treatment units for people with challenging behaviours. Mental Handicap 19, 113-19.
31. Nihira K., Leland H. & Lambert N. (1993) AAMR Adaptive Behaviour Scale - Residential and Community, 2nd edn. Pro-Ed, Austin, TX.
32. Oliver C., Murphy G. H. & Corbett J. A. (1987) Self-injurious behaviour in people with mental handicap: a total population study. Journal of Mental Deficiency Research 31, 147-62.
33. Perry J. & Felce D. (1994) Outcomes of ordinary housing services in Wales: objective indicators. Mental Handicap Research 7, 286-311.
34. Perry J. & Felce D. (1995) Objective indicators of the quality of life: How much do they agree with each other? Journal of Community Applied and Social Psychology 5, 1-19.
35. Raynes N., Wright K., Shiell A. & Pettipher C. (1994) The Cost and Quality of Community Residential Care. David Fulton Publishers, London.
36. Reeves D. (1994) Calculating Inter-Observer Agreement and Cohen's Kappa on Time-Based Observational Data Allowing for 'Natural' Measurement Error. Hester Adrian Research Centre, University of Manchester, Manchester.
37. Siegel S. (1956) Nonparametric Statistics for the Behavioral Sciences. McGraw-Hill Kogakusha, Tokyo.
38. Suen H. K. & Ary D. (1989) Analyzing Quantitative Behavioural Observation Data. Laurence Erlbaum Associates, Hillside, NJ.
39. Welsh Office (1983) All Wales Strategy for the Development of Services for Mentally Handicapped People. Welsh Office, Cardiff.
40. Welsh Office (1994) Health and Personal Social Services Statistics for Wales. Welsh Office, Cardiff.
41. Wing L. & Gould J. (1978) Systematic recording of behaviors and skills of retarded and psychotic children. Journal of Autism and Childhood Schizophrenia 8, 79-97.