The quality and costs of community-based residential supports and residential campuses for people with severe and complex disabilities

Journal of Intellectual and Developmental Disability

Volumn 25, Issue 4, 2000, Pages 263-279

  Emerson, Eric ^a   Robertson, Janet ^a   Gregory, Nicky ^a   Kessissoglou, Sophia ^a   Hatton, Chris ^a   Hallam, Angela ^b   Knapp, Martin ^b   Järbrink, Krister ^b   Netten, Ann ^c   Linehan, Christine ^d  

^a LANCASTER UNIVERSITY   (United Kingdom)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c UNIVERSITY OF KENT   (United Kingdom)

^d UNIVERSITY COLLEGE DUBLIN   (Ireland)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CLINICAL ARTICLE; COMMUNITY CARE; COST BENEFIT ANALYSIS; DISABILITY; DISEASE SEVERITY; FEMALE; HEALTH CARE COST; HEALTH CARE PERSONNEL; HEALTH CARE QUALITY; HOUSING; HUMAN; MALE; QUALITY OF LIFE; RESIDENTIAL CARE;

EID: 0034536553     PISSN: 1326978X     EISSN: None     Source Type: Journal    
DOI: 10.1080/13668250020019575     Document Type: Article

References (57)

1. Aman, M.G., Burrow, W.H., & Wolford, P.L. (1995). The Aberrant Behavior Checklist-Community: Factor validity and effect of subject variables for adults in group homes. American Journal on Mental Retardation, 100, 283-292.
2. Beecham, J. (1995). Collecting and estimating costs. In M.R.J. Knapp (Ed.), The economic evaluation of mental health care. Aldershot: Arena.
3. Beecham, J., & Knapp, M.R.J. (1992). Costing psychiatric interventions. In G.J. Thornicroft, C.R. Brewin, & J.K. Wing (Eds.), Measuring mental health needs. London: Gaskell.
4. Blunden, R., & Evans, G. (1988). Long-term maintenance of staff and resident behaviour in a hospital ward for adults with mental handicaps: Report of a six-year follow-up. Mental Handicap Research, 1, 115-126.
5. Conneally, S., Boyle, G., & Smyth, F. (1992). An evaluation of the use of small group homes for adults with a severe and profound mental handicap. Mental Handicap Research, 5, 146-168.
6. Crisp, A.G., & Sturmey, P. (1988). The promotion of purposeful activity in micro-environments for people with a mental handicap. Advances in Behaviour Research and Therapy, 10, 7-23.
7. Cullen, C., Whoriskey, M., Mackenzie, K., Mitchell, W., Ralston, K., Shreeve, S., & Stanley, A. (1995). The effects of deinstitutionalization on adults with learning disabilities. Journal of Intellectual Disability Research, 39, 484-494.
8. de Kock, U., Saxby, H., Thomas, M., & Felce, D. (1988). Community and family contact: an evaluation of small community homes for adults with severe and profound mental handicaps. Mental Handicap Research, 1, 127-140.
9. Department of Health and Social Security (1984). Helping mentally handicapped people with special problems. London: Department of Health and Social Security.
10. Donnelly, M., McGilloway, S., Mays, N., Perry, S., Knapp, M., Kavanagh, S., Beecham, J., Fenyo, A., & Astin, J. (1994). Opening new doors: An evaluation of community care for people discharged from psychiatric and mental handicap hospitals. London: HMSO.
11. Emerson, E. (1999). Residential supports for people with intellectual disabilities: Questions and challenges from the UK. Journal of Intellectual & Developmental Disability, 24, 309-319.
12. Emerson, E., Alborz, A., Felce, D., & Lowe, K. (1995). Residential Services Setting Questionnaire. Hester Adrian Research Centre, University of Manchester: Manchester.
13. Emerson, E., Beasley, F., Offord, G., & Mansell, J. (1992). Hospital supported staffed housing for people with seriously challenging behaviours. Journal of Intellectual Disability Research, 36, 291-307.
14. Emerson, E., & Hatton, C. (1994). Moving out: The impact of relocation from hospital to community on the quality of life of people with learning disabilities. London: HMSO.
15. Emerson, E., & Hatton, C. (1996). Deinstitutionalization in the UK: Outcomes for service users. Journal of Intellectual & Developmental Disability, 21, 17-37.
16. Emerson, E., & Hatton, C. (1998). Residential provision for people with intellectual disabilities in England, Wales and Scotland. Journal of Applied Research in Intellectual Disabilities 11, 1-14.
17. Emerson, E., Robertson, J., Gregory, N., Halton, C., Kessissoglou, S., Hallam, A., Knapp, M., Järbrink, K., Netten, A., Walsh, P., Linehan, C., Hillery, J. & Durkan, J. (1999). Quality and costs of residential support for people with learning disabilities: A comparative analysis of quality and costs in village communities, residential campuses and dispersed housing schemes. Manchester, UK: University of Manchester, Hester Adrian Research Centre.
18. Emerson, E., Reeves, D., & Felce, D. (2000). Palm-top computer technologies for behavioral observation research. In T. Thompson, D. Felce & F. Symons (Eds.), Computer-assisted Behavioral Observation Methods for Developmental Disabilities. Baltimore: Paul H Brookes.
19. Emerson, E., Robertson, J., Gregory, N., Hatton, C., Kessissoglou, S., Hallam, A., Knapp, M., Järbrink, K., Netten, A., Walsh, P. , Linehan, C., Hillery, J., & Durkan, J. (2000a). Quality and costs of community-based residential supports, village communities and residential campuses in the UK. American Journal on Mental Retardation, 105, 81-102.
20. Felce, D. (1996). Quality of support for ordinary living. In J. Mansell & K. Ericsson (Eds.), Deinstitutionalisation and community living: Intellectual disability services in Britain, Scandinavia and the USA (pp. 117-133). London: Chapman and Hall.
21. Felce, D. (1998). The determinants of staff and resident activity in residential services for people with severe intellectual disability: Moving beyond size, building design, location and number of staff. Journal of Intellectual & Developmental Disability, 23, 103-119.
22. Felce, D., Bowley, C., Baxter, H., Jones, E., Lowe, C., & Emerson, E. (2000). The effectiveness of staff support: Evaluating active support training using a conditional probability approach. Research in Developmental Disabilities, 21, 243-255.
23. Felce, D., de Kock, U., & Repp, A.C. (1986). An eco-behavioral analysis of small community-based houses and traditional large hospitals for severely and profoundly mentally handicapped adults. Applied Research in Mental Retardation, 7, 393-408.
24. Felce, D., Lowe, K., & Emerson, E. (1995). Residential Services Working Practices Scale. Cardiff: Welsh Centre on Learning Disabilities Applied Research Unit.
25. Felce, D., Lowe, K., Perry, J., Jones, E., Baxter, H., & Bowley, C. (1999). The quality of residential and day services for adults with learning disabilities in eight local authorities in England: Objective data gained in support of a Social Services Inspectorate inspection. Unpublished report. Cardiff: Welsh Centre for Learning Disabilities.
26. Felce, D. & Perry, J. (1995). The extent of support for ordinary living provided in staffed housing: The relationship between staffing levels, resident dependency, staff:resident interactions and resident activity patterns. Social Science and Medicine, 40, 799-810.
27. Felce, D., Repp, A.C., Thomas, M., Ager, A., & Blunden, R. (1991). The relationship of staff:client ratios, interactions, and residential placement. Research in Developmental Disabilities, 12, 315-331.
28. Hatton, C., Emerson, E., Robertson, J., Henderson, D., & Cooper, J. (1995). The quality and costs of services for adults with multiple disabilities: A comparative evaluation. Research in Developmental Disabilities, 16, 439-460.
29. Hatton, C., Emerson, E., Robertson, J., Henderson, D., & Cooper, J. (1996). Factors associated with staff support and user lifestyle in services for people with multiple disabilities: A path analytic approach. Journal of Intellectual Disability Research, 40, 466-477.
30. Howlin, P. (1996). Autism Screening Questionnaire. London: St George's Medical School.
31. Jones, E., Perry, J., Lowe, K., Felce, D., Toogood, S., Dunstan, F., Allen, D., & Pagler, J. (1999). Opportunity and the promotion of activity among adults with severe intellectual disability living in community residences: The impact of training in active support. Journal of Intellectual Disability Research, 43, 164-178.
32. Kavanagh, S., & Opit, L. (1998). The cost of caring: The economics of providing for the intellectually disabled. London: Politeia.
33. Knapp, M., Cambridge, P., Thomason, C., Beecham, J., Allen, C., & Darton, R. (1992). Care in the community: Challenge and demonstration. Aldershot: Ashgate.
34. Larson, S., & Lakin, K.C. (1989). Deinstitutionalization of persons with mental retardation: Behavioral outcomes. Journal of the Association for Persons With Severe Handicaps, 14, 324-332.
35. Lister Brook, S. & Bowler, D.M. (1995). Community adjustment of mobile people with learning disabilities after total hospital closure: a preliminary report. Journal of Intellectual Disability Research, 38, 177-185.
36. Lowe, K., & de Paiva, S. (1991). NIMROD - An Overview. London: HMSO.
37. Mansell, J., Felce, D., de Kock, U., & Jenkins, J. (1982). Increasing purposeful activity of severely and profoundly mentally handicapped adults. Behaviour Research and Therapy, 20, 593-604.
38. Moss, S.C., Prosser, H., Costello, H., Simpson, N., & Patel, P. (1996) PAS-ADD Checklist. Manchester: Hester Adrian Research Centre, University of Manchester.
39. Moss, S.C., Prosser, H., Costello, H., Simpson, N., Patel, P., Rowe, S., Turner, S., & Hatton, C. (1998). Reliability and validity of the PAS-ADD Checklist for detecting psychiatric disorders in adults with intellectual disabilities. Journal of Intellectual Disability Research, 42, 173-183.
40. Netten, A., Dennett, J., & Knight, J. (1998). The Unit Costs of Health and Social Care. Canterbury: Personal Social Services Research Unit, University of Kent at Canterbury.
41. Newman, I., & Emerson, E. (1991). Specialised treatment units for people with challenging behaviours. Mental Handicap, 19, 113-119.
42. Nihira, K., Leland, H., & Lambert, N. (1993). Adaptive Behavior Scale - Residential and Community (2nd Edition). Pro-Ed: Austin, TX.
43. Orlowska, D., McGill, P., & Mansell, J. (1991). Staff-staff and staff-resident verbal interactions in a community-based group home for people with moderate and severe mental handicaps. Mental Handicap Research, 4, 3-19.
44. Perry, J., & Felce, D. (1994). Outcomes of ordinary housing services in Wales: Objective indicators. Mental Handicap Research, 7, 286-311.
45. Pratt, M.W., Luszcz, M.A., & Brown, M.E. (1980). Measuring the dimensions of the quality of care in small community residences. American Journal of Mental Deficiency, 85, 188-194.
46. Rawlings, S. (1985). Behaviour and skills of severely retarded adults in hospitals and small residential homes. British Journal of Psychiatry, 146, 358-366.
47. Raynes, N.V., & Sumpton, R.C. (1987). Differences in the quality of residential provision for mentally handicapped people. Psychological Medicine, 17, 999-1008.
48. Raynes, N.V., Sumpton, R.C., & Flynn, M.C. (1987). Homes for mentally handicapped people. London: Tavistock.
49. Raynes, N.V., Wright, K., Shiell, A., & Pettipher, C. (1994). The cost and quality of community residential care: An evaluation of the services for adults with learning disabilities. London: David Fulton Publishers.
50. Reeves, D. (1994). Calculating inter-observer agreement and Cohen's Kappa on time-based observational data allowing for 'natural 'measurement error. Manchester: Hester Adrian Research Centre, University of Manchester.
51. Stancliffe, R.J., & Lakin, K.C. (1998). Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities. American Journal on Mental Retardation, 102, 552-568.
52. Suen, H.K. & Ary, D. (1989). Analyzing Quantitative Behavioral Observation Data. Hillsdale, NJ: Lawrence Erlbaum Associates.
53. Thomas, M., Felce, D., de Kock, U., Saxby, H., & Repp, A. (1986). The activity of staff and severely and profoundly mentally handicapped adults in residential settings of different sizes. British Journal of Mental Subnormality, 32, 82-92.
54. Thompson, T., Robinson, J., Graff, M., & Ingenmey, R. (1990). Home-like architectural features of residential environments. American Journal on Mental Retardation, 95, 328-341.
55. Tracy, E.M., & Abell, N. (1994). Social network map: Some further refinements on administration. Social Work Research, 18, 56-60.
56. Tracy, E.M., & Whittaker, J.K. (1990). The Social Network Map: Assessing social support in clinical practice. Families in Society, 71, 461-470.
57. Young, I., Sigafoos, J., Suttie, J., Ashman, A., & Grevell, P. (1998). Deinstitutionalisation of persons with intellectual disabilities: A review of Australian studies. Journal of Intellectual & Developmental Disability, 23, 155-170.