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1
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33745304974
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Deinstitutionalisation and community living: Progress, problems and priorities
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Although this paper does not present new data, it is a really useful analysis of the process and outcomes of deinstitutionalization and the priorities for the future development of community-based services from a broad international approach
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Mansell J. Deinstitutionalisation and community living: progress, problems and priorities. J Intellect Dev Disabil 2006; 31:65-76. Although this paper does not present new data, it is a really useful analysis of the process and outcomes of deinstitutionalization and the priorities for the future development of community-based services from a broad international approach.
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(2006)
J Intellect Dev Disabil
, vol.31
, pp. 65-76
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Mansell, J.1
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2
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19544367603
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State of the states in developmental disabilities: 2004
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Braddock D, Hemp R, Rizzolo MC. State of the states in developmental disabilities: 2004. Ment Retard 2004; 42:356-370.
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(2004)
Ment Retard
, vol.42
, pp. 356-370
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Braddock, D.1
Hemp, R.2
Rizzolo, M.C.3
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3
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33745981471
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Reductions continue in average daily populations of large state facilities: Nearly 70% decrease between 1980 and 2005
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This brief paper provides figures for the number of people still in large state facilities in the US and traces the trend towards deinstitutionalization across all US states
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Coucouvanis K, Lakin KC, Prouty R, Webster A. Reductions continue in average daily populations of large state facilities: nearly 70% decrease between 1980 and 2005. Ment Retard 2006; 44:235-238. This brief paper provides figures for the number of people still in large state facilities in the US and traces the trend towards deinstitutionalization across all US states.
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(2006)
Ment Retard
, vol.44
, pp. 235-238
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Coucouvanis, K.1
Lakin, K.C.2
Prouty, R.3
Webster, A.4
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4
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0034994466
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Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia
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Braddock D, Emerson E, Felce D, Stancliffe RJ. Living circumstances of children and adults with mental retardation or developmental disabilities in the United States, Canada, England and Wales, and Australia. Ment Retard Dev Disabil Res Rev 2001; 7:115-121.
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(2001)
Ment Retard Dev Disabil Res Rev
, vol.7
, pp. 115-121
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Braddock, D.1
Emerson, E.2
Felce, D.3
Stancliffe, R.J.4
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5
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33745306107
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Policy evaluation and national surveys of the living conditions of people with intellectual disabilities in Norway [abstract]
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Tøssebro J. Policy evaluation and national surveys of the living conditions of people with intellectual disabilities in Norway [abstract]. J Intellect Disabil Res 2004; 48:486.
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(2004)
J Intellect Disabil Res
, vol.48
, pp. 486
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Tøssebro, J.1
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6
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34548434236
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Close the institutions for the intellectually disabled: Everyone can live in the open society
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Grunewald K. Close the institutions for the intellectually disabled: everyone can live in the open society. Saltsjo-Duvnas; 2003.
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(2003)
Saltsjo-Duvnas
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Grunewald, K.1
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7
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26244466349
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Growth in residential services in Australia and the United States: 1997-2002
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Stancliffe R, Lakin C, Prouty R. Growth in residential services in Australia and the United States: 1997-2002. J Intellect Dev Disabil 2005; 30:181-184.
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(2005)
J Intellect Dev Disabil
, vol.30
, pp. 181-184
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Stancliffe, R.1
Lakin, C.2
Prouty, R.3
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8
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33645948757
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Adult persons with intellectual disabilities on the island of Ireland
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A study on the prevalence of intellectual disability in the Republic of Ireland and Northern Ireland, with some figures on residential arrangements and implications for service planning
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McConkey R, Mulvany F, Barron S. Adult persons with intellectual disabilities on the island of Ireland. J Intellect Disabil Res 2006; 50:227-236. A study on the prevalence of intellectual disability in the Republic of Ireland and Northern Ireland, with some figures on residential arrangements and implications for service planning.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 227-236
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McConkey, R.1
Mulvany, F.2
Barron, S.3
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9
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33846664824
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McConkey R, Abbott S, Noonan-Walsh P, et al. Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings. J Intellect Disabil Res 2007; 51:207-217. A quantitative study of the social inclusion and social competences of persons with intellectual disabilities using different types of residential services. As well as giving information on social inclusion it also provides useful figures on the types of services available in Ireland.
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McConkey R, Abbott S, Noonan-Walsh P, et al. Variations in the social inclusion of people with intellectual disabilities in supported living schemes and residential settings. J Intellect Disabil Res 2007; 51:207-217. A quantitative study of the social inclusion and social competences of persons with intellectual disabilities using different types of residential services. As well as giving information on social inclusion it also provides useful figures on the types of services available in Ireland.
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10
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33645903010
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European Intellectual Disability Research Network, Working papers. Tizard Centre, University of Kent at Canterbury;
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European Intellectual Disability Research Network. Intellectual disability in Europe. Working papers. Tizard Centre, University of Kent at Canterbury; 2003.
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(2003)
Intellectual disability in Europe
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11
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34548394395
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Mansell J, Beadle-Brown J, Clegg S. The situation of large residential institutions in Europe. In: Freyhoff G, Parker C, Coué M, Greig M, editors. Included in society: results and recommendations of the European research initiative on community-based residential alternatives for disabled people. Brussels: Inclusion Europe; 2004. pp. 28-56.
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Mansell J, Beadle-Brown J, Clegg S. The situation of large residential institutions in Europe. In: Freyhoff G, Parker C, Coué M, Greig M, editors. Included in society: results and recommendations of the European research initiative on community-based residential alternatives for disabled people. Brussels: Inclusion Europe; 2004. pp. 28-56.
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12
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33749462325
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From 'cage beds' to inclusion: The long road for individuals with intellectual disability in the Czech Republic
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A description of the characteristics and legacies of residential care systems in postcommunist transition countries and a review of progress towards community inclusion and deinstitutionalization in the Czech Republic
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Vann BH, Siska J. From 'cage beds' to inclusion: the long road for individuals with intellectual disability in the Czech Republic. Disabil Soc 2006; 21:425-439. A description of the characteristics and legacies of residential care systems in postcommunist transition countries and a review of progress towards community inclusion and deinstitutionalization in the Czech Republic.
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(2006)
Disabil Soc
, vol.21
, pp. 425-439
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Vann, B.H.1
Siska, J.2
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13
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34548427718
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Strategic plan 2006-2008
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European Coalition for Community Living
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European Coalition for Community Living. Strategic plan 2006-2008. Brussels: European Coalition for Community Living; 2006.
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(2006)
Brussels: European Coalition for Community Living
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14
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33846255712
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Chou YC, Schalock RL. Trends in residential policies and services for people with intellectual disabilities in Taiwan. J Intellect Disabil Res 2007; 51:135-141. A thorough review of trends in residential services for people with intellectual disabilities in Taiwan from 1982 to 2005 based on a postal survey with service providers.
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Chou YC, Schalock RL. Trends in residential policies and services for people with intellectual disabilities in Taiwan. J Intellect Disabil Res 2007; 51:135-141. A thorough review of trends in residential services for people with intellectual disabilities in Taiwan from 1982 to 2005 based on a postal survey with service providers.
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15
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29644432808
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Hubert J, Hollins S. Men with severe learning disabilities and challenging behaviour in long-stay hospital care: qualitative study. Br J Psychiatry 2006; 188:70-74. Qualitative study using ethnographic methods to describe the life of 20 men with severe learning disability and challenging behaviour in a locked hospital ward.
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Hubert J, Hollins S. Men with severe learning disabilities and challenging behaviour in long-stay hospital care: qualitative study. Br J Psychiatry 2006; 188:70-74. Qualitative study using ethnographic methods to describe the life of 20 men with severe learning disability and challenging behaviour in a locked hospital ward.
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16
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33645469402
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Living conditions of adults with intellectual disabilities from a gender perspective
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Survey of gender differences in the living conditions of people with learning disabilities and a comparison with differences observed in the general population in Sweden
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Umb-Carlsson O, Sonnander K. Living conditions of adults with intellectual disabilities from a gender perspective. J Intellect Disabil Res 2006; 50:326-334. Survey of gender differences in the living conditions of people with learning disabilities and a comparison with differences observed in the general population in Sweden.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 326-334
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Umb-Carlsson, O.1
Sonnander, K.2
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33845432514
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Stancliffe RJ, Lakin KC. Longitudinal frequency and stability of family contact in institutional and community living. Ment Retard 2006; 44:418-429. This article presents the results of a longitudinal study on the frequency and stability of family contacts of two groups of institutionalized persons, one of them relocating to community settings and the other staying in the institution. It is one of the few studies from the review period which actually reports the effects of deinstitutionalization.
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Stancliffe RJ, Lakin KC. Longitudinal frequency and stability of family contact in institutional and community living. Ment Retard 2006; 44:418-429. This article presents the results of a longitudinal study on the frequency and stability of family contacts of two groups of institutionalized persons, one of them relocating to community settings and the other staying in the institution. It is one of the few studies from the review period which actually reports the effects of deinstitutionalization.
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18
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33646719137
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Hall L, Hewson S. The community links of a sample of people with intellectual disabilities. J Appl Res Intellect Disabil 2006; 19:204-207. This brief report describes a study measuring the community inclusion and participation of people with intellectual disability living in residential homes in England in 1995 and 2002. Although a very simple study in design, it provides a clear illustration of the difficulties of achieving true deinstitutionalization.
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Hall L, Hewson S. The community links of a sample of people with intellectual disabilities. J Appl Res Intellect Disabil 2006; 19:204-207. This brief report describes a study measuring the community inclusion and participation of people with intellectual disability living in residential homes in England in 1995 and 2002. Although a very simple study in design, it provides a clear illustration of the difficulties of achieving true deinstitutionalization.
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19
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33751059717
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Forrester-Jones R, Carpenter J, Coolen-Schrijner P, et al. The social networks of people with intellectual disability living in the community 12 years after resettlement from long-stay hospitals. J Appl Res Intellect Disabil 2006; 19:285-295. This is a study of a cohort of over 100 individuals who moved to community settings from institutions. It explores the size and type of their social and support networks, and also compares these networks across different types of community settings.
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Forrester-Jones R, Carpenter J, Coolen-Schrijner P, et al. The social networks of people with intellectual disability living in the community 12 years after resettlement from long-stay hospitals. J Appl Res Intellect Disabil 2006; 19:285-295. This is a study of a cohort of over 100 individuals who moved to community settings from institutions. It explores the size and type of their social and support networks, and also compares these networks across different types of community settings.
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20
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0035375787
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Social networks of people with mental retardation in residential settings
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Robertson J, Emerson E, Gregory N, et al. Social networks of people with mental retardation in residential settings. Ment Retard 2001; 39:201-214.
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(2001)
Ment Retard
, vol.39
, pp. 201-214
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Robertson, J.1
Emerson, E.2
Gregory, N.3
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21
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0036724240
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Residential settings and outcomes for individuals with intellectual disabilities
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Heller T. Residential settings and outcomes for individuals with intellectual disabilities. Curr Opin Psychiatry 2002; 15:503-508.
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(2002)
Curr Opin Psychiatry
, vol.15
, pp. 503-508
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Heller, T.1
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33747296185
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Abott S, McConkey R. The barriers to social inclusion as perceived by people with intellectual disabilities. J Intellect Disabil 2006; 10:275-287. This article reports on a qualitative survey that investigated how people with learning disabilities perceive their social inclusion using focus groups with participants living in community settings in Northern Ireland. It is useful in that it illustrates the issues from the perspective of people with intellectual disabilities themselves and provides some solutions for improving social inclusion.
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Abott S, McConkey R. The barriers to social inclusion as perceived by people with intellectual disabilities. J Intellect Disabil 2006; 10:275-287. This article reports on a qualitative survey that investigated how people with learning disabilities perceive their social inclusion using focus groups with participants living in community settings in Northern Ireland. It is useful in that it illustrates the issues from the perspective of people with intellectual disabilities themselves and provides some solutions for improving social inclusion.
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24
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33749040914
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People with learning disabilities in 'out-of-area' residential placements. 2: Reasons for and effects of placement
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A quantitative study on the practices and impact of placing people with intellectual disabilities in residential services away from their home area in England
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Beadle-Brown J, Mansell JL, Whelton B, et al. People with learning disabilities in 'out-of-area' residential placements. 2: Reasons for and effects of placement. J Intellect Disabil Res 2006; 50:845-856. A quantitative study on the practices and impact of placing people with intellectual disabilities in residential services away from their home area in England.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 845-856
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Beadle-Brown, J.1
Mansell, J.L.2
Whelton, B.3
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25
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33751022486
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Service use and costs of support 12 years after leaving hospital
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This study investigates whether and how service-use patterns and costs have changed more than a decade after resettlement in the community. It is one of the few recent studies which focuses on the longer-term outcomes of deinstitutionalization
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Hallam A, Beecham J, Knapp M, et al. Service use and costs of support 12 years after leaving hospital. J Appl Res Intellect Disabil 2006; 19:296-308. This study investigates whether and how service-use patterns and costs have changed more than a decade after resettlement in the community. It is one of the few recent studies which focuses on the longer-term outcomes of deinstitutionalization.
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(2006)
J Appl Res Intellect Disabil
, vol.19
, pp. 296-308
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Hallam, A.1
Beecham, J.2
Knapp, M.3
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26
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33646252027
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Community and cluster centre residential services for adults with intellectual disability: Long-term results from an Australian-matched sample
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Young L. Community and cluster centre residential services for adults with intellectual disability: long-term results from an Australian-matched sample. J Intellect Disabil Res 2006; 50:419-431.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 419-431
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Young, L.1
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27
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33646727434
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Towards improving medical care for people with intellectual disability living in the community: Possibilities of integrated care
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A review of literature on integrated care for people with intellectual disabilities published between and highlighting some implications for the Netherlands
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Jansen D, Krol B, Groothoff JW, Post D. Towards improving medical care for people with intellectual disability living in the community: possibilities of integrated care. J Appl Res Intellect Disabil 2006; 19:214-218. A review of literature on integrated care for people with intellectual disabilities published between 1995 and 2003 highlighting some implications for the Netherlands.
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(1995)
J Appl Res Intellect Disabil 2006
, vol.19
, pp. 214-218
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Jansen, D.1
Krol, B.2
Groothoff, J.W.3
Post, D.4
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28
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33645931339
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The outcomes of an intervention study to reduce the barriers experienced by people with intellectual disabilities accessing primary healthcare services
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The evaluation of training interventions designed for primary healthcare professionals aiming to improve access to services for people with intellectual disabilities
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Melville CA, Cooper SA, Morrison J, et al. The outcomes of an intervention study to reduce the barriers experienced by people with intellectual disabilities accessing primary healthcare services. J Intellect Disabil Res 2006; 50:11-17. The evaluation of training interventions designed for primary healthcare professionals aiming to improve access to services for people with intellectual disabilities.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 11-17
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Melville, C.A.1
Cooper, S.A.2
Morrison, J.3
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33748340881
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Lennox N, Rey-Conde T, Cooling N. Comprehensive health assessments during de-institutionalization: an observational study. J Intellect Disabil Res 2006; 50:719-724. This study investigates the impact of a specifically designed, structured health review procedure, CHAP, on the health of people with intellectual disabilities during transition from institution to the community. Although a small-scale study, it provides a useful illustration of a potentially effective structure to improve healthcare access on the move to the community.
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Lennox N, Rey-Conde T, Cooling N. Comprehensive health assessments during de-institutionalization: an observational study. J Intellect Disabil Res 2006; 50:719-724. This study investigates the impact of a specifically designed, structured health review procedure, CHAP, on the health of people with intellectual disabilities during transition from institution to the community. Although a small-scale study, it provides a useful illustration of a potentially effective structure to improve healthcare access on the move to the community.
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33644698064
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Alexander RT, Crouch K, Halstead S, Piachaud J. Long-term outcome from a medium secure service for people with intellectual disability. J Intellect Disabil Res 2006; 50:305-315. A follow-up study of two cohorts of individuals discharged from medium-secure intellectual disability services between 1987-1993 and 1994-2000, reporting on the clinical and long-term outcomes.
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Alexander RT, Crouch K, Halstead S, Piachaud J. Long-term outcome from a medium secure service for people with intellectual disability. J Intellect Disabil Res 2006; 50:305-315. A follow-up study of two cohorts of individuals discharged from medium-secure intellectual disability services between 1987-1993 and 1994-2000, reporting on the clinical and long-term outcomes.
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31
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33745522526
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Craig LA, Stringer I, Moss T. Treating sexual offenders with learning disabilities in the community: a critical review. Int J Offender Ther Comp Criminol 2006; 50:369-390. A description and a critical review of a 7-month treatment programme for six persons with intellectual disability and a history of sexual offending.
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Craig LA, Stringer I, Moss T. Treating sexual offenders with learning disabilities in the community: a critical review. Int J Offender Ther Comp Criminol 2006; 50:369-390. A description and a critical review of a 7-month treatment programme for six persons with intellectual disability and a history of sexual offending.
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33745873469
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Working across boundaries: Clinical outcomes for an integrated mental health service for people with intellectual disabilities
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The study presents and compares the clinical outcomes of an inpatient and a community service unit of a specialist mental health service for people with intellectual disabilities with mental health needs
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Hall I, Parkes C, Samuels S, Hassiotis A. Working across boundaries: clinical outcomes for an integrated mental health service for people with intellectual disabilities. J Intellect Disabil Res 2006; 50:598-607. The study presents and compares the clinical outcomes of an inpatient and a community service unit of a specialist mental health service for people with intellectual disabilities with mental health needs.
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(2006)
J Intellect Disabil Res
, vol.50
, pp. 598-607
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Hall, I.1
Parkes, C.2
Samuels, S.3
Hassiotis, A.4
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33748590794
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Riches VC, Parmenter TR, Wiese M, Stancliffe RJ. Intellectual disability and mental illness in the NSW criminal justice system. Int J Law Psychiatry 2006; 29:386-396. This relatively small-scale study reports the results and experiences of a prisoner release project and a model provision project designed to support people with intellectual disability in the criminal justice system in Australia. It provides an illustration of how offenders with learning disabilities can be supported in the community.
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Riches VC, Parmenter TR, Wiese M, Stancliffe RJ. Intellectual disability and mental illness in the NSW criminal justice system. Int J Law Psychiatry 2006; 29:386-396. This relatively small-scale study reports the results and experiences of a prisoner release project and a model provision project designed to support people with intellectual disability in the criminal justice system in Australia. It provides an illustration of how offenders with learning disabilities can be supported in the community.
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29344448907
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The relationship between residence and the pharmacological management of challenging behavior in individuals with intellectual disability
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McGillivray J, McCabe MP. The relationship between residence and the pharmacological management of challenging behavior in individuals with intellectual disability. J Dev Phys Disabil 2005; 17:311-325.
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(2005)
J Dev Phys Disabil
, vol.17
, pp. 311-325
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McGillivray, J.1
McCabe, M.P.2
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Disabil Soc, Using two case studies from Australia, this study explores some of the latest policy challenges and dilemmas arising from the tension between closure of institutions and deinstitutionalization. It provides useful lessons to inform the process of deinstitutionalization in the future and in other countries
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Bigby C, Fyffe C. Tensions between institutional closure and deinstitutionalisation: what can be learned from Victoria's institutional redevelopment? Disabil Soc 2006; 21:567-581. Using two case studies from Australia, this study explores some of the latest policy challenges and dilemmas arising from the tension between closure of institutions and deinstitutionalization. It provides useful lessons to inform the process of deinstitutionalization in the future and in other countries.
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(2006)
Tensions between institutional closure and deinstitutionalisation: What can be learned from Victoria's institutional redevelopment
, vol.21
, pp. 567-581
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Bigby, C.1
Fyffe, C.2
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0033822216
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Community care and resettlement
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McConkey R. Community care and resettlement. Curr Opin Psychiatry 2000; 13:491-495.
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(2000)
Curr Opin Psychiatry
, vol.13
, pp. 491-495
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McConkey, R.1
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