Implementing shared decision making in routine mental health care

World Psychiatry

Volumn 16, Issue 2, 2017, Pages 146-153

  Slade, Mike ^a  

^a UNIVERSITY OF NOTTINGHAM   (United Kingdom)

Author keywords

ethics; implementation; mental health care; routine outcome monitoring; Shared decision making; social marketing

Indexed keywords

ARTICLE; BENEFICENCE; CULTURAL VALUE; DECISION SUPPORT SYSTEM; HEALTH CARE SYSTEM; HOSPITAL MANAGEMENT; HOSPITALITY INDUSTRY; HUMAN; INTEGRATION; JUSTICE; MENTAL HEALTH CARE; MENTAL HEALTH SERVICE; NON MALEFICENCE; PATIENT AUTONOMY; PRIORITY JOURNAL; SHARED DECISION MAKING; SOCIAL BEHAVIOR; SOCIAL MARKETING;

EID: 85019175101     PISSN: 17238617     EISSN: 20515545     Source Type: Journal    
DOI: 10.1002/wps.20412     Document Type: Article

References (110)

1. Karnieli-Miller O, Eisikovits Z. Physician as partner or salesman? Shared decision-making in real-time encounters. Soc Sci Med 2009;69:1-8.
2. Charles C, Gafni A, Whelan T. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999;49:651-61.
3. Coulter A, Collins A. Making shared decision-making a reality. No decision about me, without me. London: King's Fund, 2011.
4. Hamann J, Mendel R, Fink B et al. Patients’ and psychiatrists’ perceptions of clinical decisions during schizophrenia treatment. J Nerv Ment Dis 2008;196:329-32.
5. Freidl M, Konrad J, Pesola F et al. Effects of clinical decision topic on patients' involvement in and satisfaction with decisions and their subsequent implementation. Psychiatr Serv 2016;67:658-63.
6. Makoul G, Clayman ML. An integrative model of shared decision making in medical encounters. Patient Educ Couns 2006;60:301-12.
7. Legare F, Ratte S, Stacey D et al. Interventions for improving the adoption of shared decision making by healthcare professionals. Cochrane Database Syst Rev 2010;5:CD006732.
8. Schattner A, Bronstein A, Jellin N. Information and shared decision-making are top patients’ priorities. BMC Health Serv Res 2006;6:21.
9. Chewning B, Bylund CL, Shah B et al. Patient preferences for shared decisions: a systematic review. Patient Educ Couns 2012;86:9-18.
10. Health Foundation. Helping people share decision making. London: Health Foundation, 2012.
11. Anonymous. Taking shared decision making more seriously. Lancet 2011;377:784.
12. Wakefield P, Read S, Firth W et al. Clients’ perceptions of outcome following contact with a community mental health team. J Ment Health 1998;7:375-84.
13. Hamann J, Leucht S, Kissling W. Shared decision making in psychiatry. Acta Psychiatr Scand 2003;107:403-9.
14. Crumlish N, Kell B. How psychiatrists think. Adv Psychiatr Treat 2009;15:72-9.
15. Hamann J, Langer B, Winkler V et al. Shared decision making for in-patients with schizophrenia. Acta Psychiatr Scand 2006;114:265-73.
16. Elwyn G. Salzburg statement on shared decision making. BMJ 2011;342:d1745.
17. Del Piccolo L, Goss C. People-centred care: new research needs and methods in doctor-patient communication. Challenges in mental health. Epidemiol Psychiatr Sci 2012;21:145-9.
18. National Institute for Health and Clinical Excellence. Service user experience in adult mental health: improving the experience of care for people using adult NHS mental health services. CG136. London: National Institute for Health and Clinical Excellence, 2011.
19. Joosten EAG, de Jong CAJ, de Weert-van Oene GH et al. Shared decision-making reduces drug use and psychiatric severity in substance-dependent patients. Psychother Psychosom 2009;78:245-53.
20. Joosten E, De Jong C, de Weert-van Oene G et al. Shared decision making: increases autonomy in substance-dependent patients. Subst Use Misuse 2011;46:1037-8.
21. Duncan E, Best C, Hagen S. Shared decision making interventions for people with mental health conditions. Cochrane Database Syst Rev 2010;1:CD007297.
22. Hamann J, Cohen R, Leucht S et al. Shared decision making and long-term outcome in schizophrenia treatment. J Clin Psychiatry 2007;68:992-7.
23. Loh A, Simon D, Wills CE et al. The effects of a shared decision-making intervention in primary care of depression: a cluster-randomized controlled trial. Patient Educ Couns 2007;67:324-32.
24. Woltmann EM, Wilkniss SM, Teachout A et al. Trial of an electronic decision support system to facilitate shared decision making in community mental health. Psychiatr Serv 2011;62:54-60.
25. Joosten EA, DeFuentes-Merillas L, de Weert GH et al. Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychother Psychosom 2008;77:219-26.
26. Malm U, Ivarsson B, Allebeck P et al. Integrated care in schizophrenia: a 2-year randomized controlled study of two community-based treatment programs. Acta Psychiatr Scand 2003;107:415-23.
27. Ludman E, Katon W, Bush T et al. Behavioural factors associated with symptom outcomes in a primary care-based depression prevention intervention trial. Psychol Med 2003;33:1061-70.
28. Hauser K, Koerfer A, Kuhr K et al. Outcome-relevant effects of shared decision making. A systematic review. Dtsch Arztebl Int 2015;112:665-71.
29. Thompson L, McCabe R. The effect of clinician-patient alliance and communication on treatment adherence in mental health care: a systematic review. BMC Psychiatry 2012;12:87.
30. Hamann J, Cohen R, Leucht S et al. Do patients with schizophrenia wish to be involved in decisions about their medical treatment? Am J Psychiatry 2005;162:2382-4.
31. Clever S, Ford D, Rubenstein L et al. Primary care patients’ involvement in decision-making is associated with improvement in depression. Med Care 2006;44:398-405.
32. Stacey G, Felton A, Morgan A et al. A critical narrative analysis of shared decision-making in acute inpatient mental health care. J Interprof Care 2016;30:35-41.
33. Pilgrim D. ‘Recovery’ and current mental health policy. Chronic Illn 2008;4:295-304.
34. Quirk A, Chaplin R, Lelliott P et al. How pressure is applied in shared decisions about antipsychotic medication: a conversation analytic study of psychiatric outpatient consultations. Sociol Health Illn 2012;34:95-113.
35. Morant N, Kaminskiy E, Ramon S. Shared decision making for psychiatric medication management: beyond the micro-social. Health Expect 2016;19:1002-14.
36. Hamann J, Mendel R, Cohen R et al. Psychiatrists’ use of shared decision making in the treatment of schizophrenia: patient characteristics and decision topics. Psychiatr Serv 2009;60:1107-12.
37. Corrigan P. Lessons learned from unintended consequences about erasing the stigma of mental illness. World Psychiatry 2016;15:67-73.
38. Slade M, Amering M, Farkas M et al. Uses and abuses of recovery: implementing recovery-oriented practices in mental health systems. World Psychiatry 2014;13:12-20.
39. Daley S, Newton D, Slade M et al. Development of a framework for recovery in older people with mental disorder. Int J Geriatr Psychiatry 2013;28:522-9.
40. Drennan G, Alred D (eds). Secure recovery. Approaches to recovery in forensic mental health settings. Oxon: Willan, 2012.
41. Kidd S, McKenzie K, Virdee G. Mental health reform at a systems level: widening the lens on recovery-oriented care. Can J Psychiatry 2014;59:243-9.
42. Le Boutillier C, Chevalier A, Lawrence V et al. Staff understanding of recovery-orientated mental health practice: a systematic review and narrative synthesis. Implement Sci 2015;10:87.
43. Le Boutillier C, Slade M, Lawrence V et al. Competing priorities: staff perspectives on supporting recovery. Adm Policy Ment Health 2015;42:429-38.
44. Mental Health “Recovery” Study Working Group. Mental health “recovery”: users and refusers. Toronto: Wellesley Institute, 2009.
45. Harper D, Speed E. Uncovering recovery: the resistible rise of recovery and resilience. Stud Soc Justice 2012;6:9-25.
46. Watson DP. The evolving understanding of recovery: what the sociology of mental health has to offer. Humanity Soc 2012;36:290-308.
47. Care Quality Commission. 2015 community mental health survey. Statistical release. London: Care Quality Commission, 2015.
48. Care Quality Commission. CQC's response to the 2015 community mental health survey. London: Care Quality Commission, 2016.
49. De las Cuevas C, Peñate W, Perestelo-Pérez L et al. Shared decision making in psychiatric practice and the primary care setting is unique, as measured using a 9-item Shared Decision Making Questionnaire (SDM-Q-9). Neuropsychiatr Dis Treat 2013;9:1045-52.
50. Shepherd A, Shorthouse O, Gask L. Consultant psychiatrists’ experiences of and attitudes towards shared decision making in antipsychotic prescribing, a qualitative study. BMC Psychiatry 2014;14:127.
51. Fukui S, Matthias M, Salyers M. Core domains of shared decision-making during psychiatric visits: scientific and preference-based discussions. Adm Policy Ment Health 2015;42:40-6.
52. Center for Mental Health Services. Shared decision-making in mental health care: practice, research, and future directions. Rockville: Substance Abuse and Mental Health Services Administration, 2010.
53. Cornuz J, Kuenzi B, Krones T. Shared decision making development in Switzerland: room for improvement! Z Evid Fortbild Qual Gesundhwes 2011;105:296-9.
54. Moumjid N, Brémond A, Mignotte H et al. Shared decision-making in the physician-patient encounter in France: a general overview. Z Evid Fortbild Qual Gesundhwes 2007;101:223-8.
55. Perestelo-Perez L, Rivero-Santana A, Perez-Ramos J et al. Shared decision making in Spain: current state and future perspectives. Z Evid Fortbild Qual Gesundhwes 2011;105:289-95.
56. Holmes-Rovner M, Gruman J, Rovner D. Shared decision-making in the US – research & development outpaces delivery. Z Evid Fortbild Qual Gesundhwes 2007;101:254-8.
57. Puschner B, Steffen S, Slade M et al. Clinical decision making and outcome in routine care for people with severe mental illness (CEDAR): study protocol. BMC Psychiatry 2010;10:90.
58. Wild D, Grove A, Martin M et al. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health 2005;8:94-104.
59. Konrad J, Loos S, Neumann P et al. Content and implementation of clinical decisions in the routine care of people with severe mental illness. J Ment Health 2015;24:15-9.
60. Puschner B, Neumann P, Jordan H et al. Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS). BMC Psychiatry 2013;13:48.
61. First MB, Spitzer RL, Gibbon M et al. Structured Clinical Interviews for DSM-IV Axis I Disorders – Clinical Version (SCID-CV). Washington: American Psychiatric Association, 1997.
62. Slade M, Cahill S, Kelsey W et al. Threshold 4: an evaluation of the Threshold Assessment Grid as an aid to mental health referrals. Primary Care Ment Health 2003;1:45-54.
63. Puschner B, Becker T, Mayer B et al. Clinical decision making and outcome in the routine care of people with severe mental illness across Europe (CEDAR). Epidemiol Psychiatr Sci 2016;25:69-79.
64. Clarke E, Puschner B, Jordan H et al. Empowerment and satisfaction in a multinational study of routine clinical practice. Acta Psychiatr Scand 2015;131:369-78.
65. Hölzel L, Kriston L, Härter M. Patient preference for involvement, experienced involvement, decisional conflict, and satisfaction with physician: a structural equation model test. BMC Health Serv Res 2013;13:231.
66. Le Boutillier C, Leamy M, Bird VJ et al. What does recovery mean in practice? A qualitative analysis of international recovery-oriented practice guidance. Psychiatr Serv 2011;62:1470-6.
67. Slade M, Longden E. Empirical evidence about mental health and recovery. BMC Psychiatry 2015;15:285.
68. Zipursky R, Agid O. Recovery, not progressive deterioration, should be the expectation in schizophrenia. World Psychiatry 2015;14:94-6.
69. Davidson L, Bellamy C, Guy K et al. Peer support among persons with severe mental illnesses: a review of evidence and experience. World Psychiatry 2012;11:123-8.
70. Peters E, Ward T, Jackson M et al. Clinical, socio-demographic and psychological characteristics in individuals with persistent psychotic experiences with and without a “need for care”. World Psychiatry 2016;15:41-52.
71. Deegan PE. A web application to support recovery and shared decision making in psychiatric medication clinics. Psychiatr Rehabil J 2010;34:23-8.
72. Feldman-Stewart D, Brennenstuhl S, McIssac K et al. A systematic review of information in decision aids. Health Expect 2006;10:46-61.
73. Moher D, Schulz KF, Simera I et al. Guidance for developers of health research reporting guidelines. PLoS Med 2010;7:e1000217.
74. Bär Deucher A, Hengartner MP, Kawohl W et al. Participation in medical decision-making across Europe: an international longitudinal multicenter study. Eur Psychiatry 2016;35:39-46.
75. Coulter A, Jenkinson C. European patients’ views on the responsiveness of health systems and healthcare providers. Eur J Publ Health 2005;14:355-60.
76. Scholl I, Koelewijn-van Loon M, Sepucha K et al. Measurement of shared decision making – a review of instruments. Z Evid Fortbild Qual Gesundhwes 2011;105:313-24.
77. Henderson C, Farrelly S, Moran P et al. Joint crisis planning in mental health care: the challenge of implementation in randomized trials and in routine care. World Psychiatry 2015;14:281-3.
78. Campbell LA, Kisely SR. Advance treatment directives for people with severe mental illness. Cochrane Database Syst Rev 2009:CD005963.
79. Henderson C, Flood C, Leese M et al. Effect of joint crisis plans on use of compulsory treatment in psychiatry: single blind randomised controlled trial. BMJ 2004;329:136-40.
80. Thornicroft G, Farrelly S, Szmukler G et al. Clinical outcomes of Joint Crisis Plans to reduce compulsory treatment for people with psychosis: a randomised controlled trial. Lancet 2013;381:1334-41.
81. Farrelly S, Lester H, Rose D et al. Barriers to shared decision making in mental health care: qualitative study of the Joint Crisis Plan for psychosis. Health Expect 2015;19:448-58.
82. Thornicroft G, Slade M. New trends in assessing the outcomes of mental health interventions. World Psychiatry 2014;13:118-24.
83. Knaup C, Koesters M, Schoefer D et al. Effect of feedback of treatment outcome in specialist mental healthcare: meta-analysis. Br J Psychiatry 2009;195:15-22.
84. Metz M, Franx G, Veerbeek M et al. Shared decision making in mental health care using routine outcome monitoring as a source of information: a cluster randomised controlled trial. BMC Psychiatry 2015;15:313.
85. Hamann J, Maris N, Iosifidou P et al. Effects of a question prompt sheet on active patient behaviour: a randomized controlled trial with depressed outpatients. Int J Soc Psychiatry 2014;60:227-35.
86. Seale C, Chaplin R, Lelliott P et al. Sharing decisions in consultations involving anti-psychotic medication: a qualitative study of psychiatrists’ experiences. Soc Sci Med 2006;62:2861-73.
87. Eliacin J, Salyers M, Kukla M et al. Factors influencing patients’ preferences and perceived involvement in shared decision-making in mental health care. J Ment Health 2015;24:24-8.
88. Beauchamp T, Childress J. Principles of biomedical ethics. Oxford: Oxford University Press, 2001.
89. McGuire A, McCullough L, Weller S et al. Missed expectations? Physicians’ views of patients’ participation in medical decision-making. Med Care 2005;43:466-70.
90. Dixon L, Holoshitz Y, Nossel I. Treatment engagement of individuals experiencing mental illness: review and update. World Psychiatry 2016;15:13-20.
91. Hamann J, Heres S. Adapting shared decision making for individuals with severe mental illness. Psychiatr Serv 2014;65:1483-6.
92. Goffman E. Asylums: essays on the social situation of mental patients and other inmates. Harmondsworth: Penguin, 1968.
93. McCabe R, Heath C, Burns T et al. Engagement of patients with psychosis in the consultation. BMJ 2002;325:1148-51.
94. Kaminskiy E. The elephant in the room: a theoretical examination of power for shared decision making in psychiatric medication management. Intersectionalities 2015;4:19-38.
95. Razzouk D, Gregorio G, Antunes R et al. Lessons learned in developing community mental health care in Latin American and Caribbean countries. World Psychiatry 2012;11:191-5.
96. Ito H, Setoya Y, Suzuki Y. Lessons learned in developing community mental health care in East and South East Asia. World Psychiatry 2012;11:186-90.
97. McGeorge P. Lessons learned in developing community mental health care in Australasia and the South Pacific. World Psychiatry 2012;11:129-32.
98. Drake RE, Latimer E. Lessons learned in developing community mental health care in North America. World Psychiatry 2012;11:47-51.
99. Okasha A, Karam E, Okasha T. Mental health services in the Arab world. World Psychiatry 2012;11:52-4.
100. Semrau M, Barley EA, Law A et al. Lessons learned in developing community mental health care in Europe. World Psychiatry 2011;10:217-25.
101. Hanlon C, Wondimagegn D, Alem A. Lessons learned in developing community mental health care in Africa. World Psychiatry 2010;9:185-9.
102. Leamy M, Bird V, Le Boutillier C et al. A conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry 2011;199:445-52.
103. French J, Gordon R. Strategic social marketing. London: Sage, 2015.
104. Gordon O, Oades L. Social marketing of wellbeing. In: Slade M, Oades L, Jarden A (eds). Wellbeing, recovery and mental health. Cambridge: Cambridge University Press 2017:311-23.
105. Mead S. Intentional peer support: an alternative approach. Plainfield: Shery Mead Consulting, 2005.
106. McGregor J, Repper J, Brown H. “The college is so different from anything I have done”. A study of the characteristics of Nottingham Recovery College. J Ment Health Train Educ Pract 2014;9:3-15.
107. Mahlke C, Krämer U, Becker T et al. Peer support in mental health services. Curr Opin Psychiatry 2014;27:276-81.
108. Dibb S, Simkin L. Implementation rules to bridge the theory/practice divide in market segmentation. J Market Manag 2009;25:375-96.
109. Slade M. Personal recovery and mental illness. Cambridge: Cambridge University Press, 2009.
110. Galderisi S, Heinz A, Kastrup M et al. Toward a new definition of mental health. World Psychiatry 2015;14:231-3.