Participation in medical decision-making across Europe: An international longitudinal multicenter study

European Psychiatry

Volumn 35, Issue , 2016, Pages 39-46

  Bar Deucher A ^a   Hengartner, M P ^b   Kawohl, Wolfram ⁱ   Konrad, Jana ⁱ   Puschner, Bernd ⁱ   Clarke, Elly ⁱ   Slade, Mike ⁱ   Del Vecchio, V ^e   Sampogna, Gaia ⁱ   Egerhazi A ^f   Suveges A ^f   Krogsgaard Bording, M ^g   Munk Jørgensen, Povl ⁱ   Rossler, Wulf ⁱ   Becker, Thomas ⁱ   Arnold, Katrin ⁱ   Ay, Esra ⁱ   Loos, Sabine ⁱ   Neumann, Petra ⁱ   Zentner, Nadja ⁱ   Jordan, Harriet ⁱ   Maj, Mario ⁱ   Fiorillo, Andrea ⁱ   Vecchio, Valeria Del ⁱ   Rosa, Corrado De ⁱ   Giacco, Domenico ⁱ   Luciano, Mario ⁱ   Gaudio, Lucia Del ⁱ   Cozzolino, Pasquale ⁱ   Del Vecchio, Heide Gret ⁱ   Salzano, Antonio ⁱ   Egerhazi, Aniko ⁱ   Ivanka, Tibor ⁱ   Nagy, Marietta ⁱ   Berencz, Roland ⁱ   Glaub, Teodora ⁱ   Suveges, Agnes ⁱ   Kovacs, Attila ⁱ   Magyar, Erzsebet ⁱ   Bording, Malene Krogsgaard ⁱ   Ostermark Sørensen, Helle ⁱ   Larsen, Jens Ivar ⁱ   Bar, Arlette ⁱ   Kromer, Susanne ⁱ   Mutschler, Jochen ⁱ   Obermann, Caitriona ⁱ   more..

^a UNIVERSITY HOSPITAL OF PSYCHIATRY   (Switzerland)

^b ZURICH UNIVERSITY OF APPLIED SCIENCES   (Switzerland)

^c UNIVERSITY OF ULM MEDICAL SCHOOL   (Germany)

^d KING'S COLLEGE LONDON   (United Kingdom)

^e SECOND UNIVERSITY OF NAPLES   (Italy)

^f UNIVERSITY OF DEBRECEN   (Hungary)

^g AALBORG UNIVERSITY HOSPITAL   (Denmark)

^h AARHUS UNIVERSITY HOSPITAL   (Denmark)

ⁱ NONE   (Denmark)

Author keywords

Clinical decision making; Multicenter study; Patient participation; Severe mental illness

Indexed keywords

ADULT; ARTICLE; DENMARK; FEMALE; GERMANY; HUMAN; HUNGARY; ITALY; LONGITUDINAL STUDY; MAJOR CLINICAL STUDY; MALE; MEDICAL DECISION MAKING; MENTAL DISEASE; MENTAL HEALTH CARE; MULTICENTER STUDY; OBSERVATIONAL STUDY; PATIENT PARTICIPATION; PRIORITY JOURNAL; SWITZERLAND; UNITED KINGDOM; CLINICAL DECISION MAKING; CLINICAL TRIAL; DECISION MAKING; DOCTOR PATIENT RELATION; EUROPE; HEALTH CARE QUALITY; MIDDLE AGED; PATIENT SATISFACTION; PSYCHOLOGY; SEVERITY OF ILLNESS INDEX; STATISTICS AND NUMERICAL DATA;

CLINICAL DECISION-MAKING; DECISION MAKING; EUROPE; FEMALE; HUMANS; LONGITUDINAL STUDIES; MALE; MENTAL DISORDERS; MIDDLE AGED; PATIENT PARTICIPATION; PATIENT SATISFACTION; PHYSICIAN-PATIENT RELATIONS; QUALITY INDICATORS, HEALTH CARE; SEVERITY OF ILLNESS INDEX;

EID: 84962477008     PISSN: 09249338     EISSN: 17783585     Source Type: Journal    
DOI: 10.1016/j.eurpsy.2016.02.001     Document Type: Article

References (47)

1. Ende J., Kazis L., Ash A., Moskowitz M.A. Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients. J Intern Med 1989, 4:23-30.
2. Nease R.F.Jr., Brooks W.B. Patient desire for information and decision-making in health care decisions: the Autonomy Preference Index and the Health Opinion Survey. J Intern Med 1995, 10:593-600.
3. Beauchamp T.L., Childress J.F. Principles of biomedical ethics 2009, Oxford University Press. 6th ed.
4. Gillet G. Autonomy and selfishness. Lancet 2008, 372:1214-1215.
5. Walker R.L. Medical ethics needs a new view of autonomy. J Med Philos 2009, 33:594-608.
6. Entwistle V.A., Watt I.S. Patient involvement in treatment decision-making: the case for a broader conceptual framework. Patient Educ Couns 2006, 63:268-278.
7. Farrel C. Patient and public involvement in health: the evidence for policy implementation in London 2004, Department of Health, [Product number 40119, Getway reference 2880].
8. Hamann J., Cohen R., Leucht S., Busch R., Kissling W. Do patients with schizophrenia wish to be involved in decisions about their medical treatment?. Am J Psychiatry 2005, 162:2382-2384.
9. Charles C., Gafni A., Whelan T., O'Brien M.A. Decision-making in the physician-patient encounter: revisiting the shared treatment decision-making model. Soc Sci Med 1999, 49:651-661.
10. Stokes T. NICE clinical guidelines: involving patients, sharing decision-making, considering cost effectiveness. Huisarts Wet 2010, 53:20-21.
11. Duncan E., Best C., Hagen S. Shared decision making interventions for people with mental health conditions (protocol). Cochrane Syst Rev 2010, (1):CD007297. 10.1002/14651858.CD007297.pub2.
12. Clever S.L., Ford D.E., Rubenstein L.V., Rost K.M., Meredith L.S., Sherbourne C.D., et al. Primary care patients' involvement in decision-making is associated with improvement in depression. Med Care 2006, 44:398-405.
13. Adams J.R., Darke R.E., Wolford G.L. Shared decision-making preferences of people with severe mental illness. Psychiatr Serv 2007, 58:1219-1221.
14. Hamann J., Mendel R., Reiter S., Cohen R., Bühner M., Schebitz M., et al. Why do some patients with schizophrenia want to be engaged in medical decision making and others do not?. J Clin Psychiatry 2011, 72:1636-1643.
15. Hamann J., Bieber Ch, Elwyn G., Wartner E., Hörlein E., Kissling W., et al. How do patients from eastern and western Germany compare with regard to their preferences for shared decision making?. Eur J Public Health 2011, 22:469-473.
16. Swanson K.A., Bastani R., Rubenstein L.V., Meredith L.S., Ford D.E. Effect of mental health care and shared decision making on patient satisfaction in a community sample of patients with depression. Med Care Res Rev 2007, 64:416-430.
17. Puschner B., Becker T., Mayer B., Jordan H., Maj M., Fiorillo A., et al. Clinical decision making and outcome in the routine care of people with severe mental illness across Europe (CEDAR). Epidemiol Psychiatr Sci 2016, 25:69-79. 10.1017/S204579601400078X.
18. Giacco D., Luciano M., Del Vecchio V., Sampogna G., Slade M., Clarke E., et al. Desire for information of people with severe mental illness. Soc Psychiatry Psychiatr Epidemiol 2014, 49:1883-1891. 10.1007/s00127-014-0901-5.
19. Chewning B., Bylund C.L., Shah B., et al. Patient preferences for shared decisions: a systematic review. Patient Educ Couns 2012, 86:9-18.
20. Say R., Murtagh M., Thomson R. Patients' preference for involvement in medical decision making: a narrative review. Patient Educ Couns 2006, 60:102-114.
21. Coulter A. Paternalism or partnership? Patients have grown up-and there's no going back. BMJ 1999, 319:719-720.
22. Gillespie R., Florin D., Gilliam S. Changing relationships: findings from the patient involvement project 2002, King's Fund, London.
23. Coulter A., Jenkinson C. European patients' views on the responsiveness of health systems and healthcare providers. Eur J Public Health 2005, 15:355-360.
24. Charles C., Gafni A., Whelan T., O'Brien M.A. Cultural influences on the physician-patient encounter. The case of shared treatment decision-making. Patient Educ Couns 2006, 63:262-267.
25. van den Brink R., Wiersma D., Wolters K., Bullenkamp J., Hansson L., Lauber C., et al. Non-uniform effectiveness of structured patient-clinician communication in community mental healthcare: an international comparison. Soc Psychiatry Psychiatr Epidemiol 2011, 46:685-693. 10.1007/s00127-010-0235-x.
26. Butow P.N., Maclean M., Dunn S.M., Tattersall M.H., Boyer M.J. The dynamics of change: cancer patients' preferences for information, involvement and support. Ann Oncol 1997, 8:857-863.
27. Puschner B., Steffen S., Slade M., Kaliniecka H., Maj M., Fiorillo A., et al. Clinical decision making and outcome in routine care for people with severe mental illness (CEDAR): study protocol. BMC Psychiatry 2010, 10:90. 10.1186/1471-244X-10-90.
28. First M.B., Spitzer R.L., Gibbon M., Williams J.B.W. Structured clinical interviews for DSM-IV Axis I Disorders - Clinical Version (SCID-CV) 1997, American Psychiatric Press.
29. Slade M., Powell R., Rosen A., Strathdee G. Threshold Assessment Grid (TAG): the development of a valid and brief scale to assess the severity of mental illness. Soc Psychiatry Psychiatr Epidemiol 2000, 35:78-85.
30. Puschner B., Neumann P., Jordan H., Slade M., Fiorillo A., Giacco D., et al. Development and psychometric properties of a five-language multiperspective instrument to assess clinical decision making style in the treatment of people with severe mental illness (CDMS). BMC Psychiatry 2013, 13:48. 10.1186/1471-244X-13-48.
31. Zeger S.L., Liang K.Y., Albert P.S. Models for longitudinal data: a generalized estimating equation approach. Biometrics 1988, 44:1049-1060.
32. Twisk J.W.R. Applied longitudinal data analysis for epidemiology: a practical guide 2003, Cambridge University Press.
33. Coulter A., Magee H. The European patient of the future 2003, Open University Press, Maidenhead.
34. O'Donnell M., Monz B., Hunskaar S. General preferences for involvement in treatment decision-making among European women with urinary inconsistence. Soc Sci Med 2007, 64:1914-1924.
35. Andreassen H.K., Bujnowska-Fedak M.M., Chronaki C.E., Dumitru R.C., Pudule I., Santana S., et al. European citizens' use of E-health services: a study of seven countries. BMC Public Health 2007, 7:53. 10.1186/1471-2458-7-53.
36. Coulter A., Parsons S., Askham J. Policy brief: where are the patients in decision-making about their own care?. WHO 2008 and WHO on behalf of the European Observatory on Health Systems and Policies 2008 2008, World Health Organisation, Denmark.
37. Mahone I.H. Shared decision making and serious mental illness. Arch Psychiatry Nurs 2008, 22(334):343. 10.1016/j.apnu.2007.11.002.
38. Patel S.R., Bakken S. Preferences for participation in decision making among ethnically diverse patients with anxiety and depression. Commun Ment Health J 2010, 46:466-473. 10.1007/s10597-010-9323-3.
39. Barry B., Henderson A. Nature of decision-making in the terminally ill patient. Cancer Nurs 1996, 19:384-391.
40. Caress A.L., Luker K., Woodcok A., Beaver K. A qualitative exploration of treatment decision-making role preference in adult asthma patients. Health Expect 2002, 5:223-235.
41. Lora A. An overview of mental health system in Italy. Ann Ist Super Sanita 2009, 45:5-16.
42. Neukirch S. 30 Jahre Psychiatriereform in Italien-ein Rückblick auf den Reformprozess und seine sozial- und gesundheitspolitischen Einflussfaktoren. Sozialpsychiatrische Informationen 2008, 4:2-11. [DZI-SOLIT, ID: dzi-solit-0175528].
43. Doyal L., Sheather J. Mental health legislation should respect decision making capacity. BMJ 2005, 7530:1467-1469.
44. Degner L.F., Sloan J.A. Decision making during serious illness: what role do patients really want to play?. J Clin Epidemiol 1992, 45:941-950.
45. Elwyn G., Edwards A. Evidence-based patient choice 2001, Oxford University Press, Oxford.
46. Leamy M., Bird V., Le Boutillier C., Williams J., Slade M. Conceptual framework for personal recovery in mental health: systematic review and narrative synthesis. Br J Psychiatry 2001, 199:445-452.
47. Slade M., Leamy M., Bacon F., Janosik M., Le Boutillier C., Williams J., et al. International differences in understanding recovery: systematic review. Epidemiol Psychiatr Sci 2012, 21:353-364. 10.1017/S2045796012000133.