Clinical Decision Making and Outcome in Routine Care for People with Severe Mental Illness (CEDAR): Study protocol

BMC Psychiatry

Volumn 10, Issue , 2010, Pages

  Puschner, Bernd ^a   Steffen, Sabine ^a   Slade, Mike ^b   Kaliniecka, Helena ^b   Maj, Mario ^c   Fiorillo, Andrea ^c   Munk Jørgensen, Povl ^d   Larsen, Jens I ^d   Égerházi, Anikó ^e   Nemes, Zoltan ^e   Rössler, Wulf ^f   Kawohl, Wolfram ^f   Becker, Thomas ^a  

^a UNIVERSITY OF ULM   (Germany)

^b KING'S COLLEGE LONDON   (United Kingdom)

^c SECOND UNIVERSITY OF NAPLES   (Italy)

^d AALBORG UNIVERSITY HOSPITAL   (Denmark)

^e UNIVERSITY OF DEBRECEN   (Hungary)

^f UNIVERSITY OF ZURICH   (Switzerland)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAMBERWELL ASSESSMENT OF NEED SHORT APPRAISAL SCHEDULE; CLIENT SOCIODEMOGRAPHIC AND SERVICE RECEIPT INVENTORY; CLINICAL DECISION MAKING; CLINICAL DECISION MAKING IN ROUTINE CARE SCALE; CLINICAL DECISION MAKING INVOLVEMENT AND SATISFACTION SCALE; CLINICAL DECISION MAKING STYLE SCALE; DENMARK; EUROPE; GERMANY; GLOBAL ASSESSMENT OF FUNCTIONING SCALE; HEALTH OF THE NATION OUTCOME SCALE; HELPING ALLIANCE SCALE; HUMAN; HUNGARY; ITALY; MANCHESTER SHORT ASSESSMENT OF QUALITY OF LIFE; MENTAL DISEASE; MENTAL HEALTH CARE; METHODOLOGY; OBSERVATIONAL STUDY; OUTCOME ASSESSMENT; OUTCOME QUESTIONNAIRE; PATIENT SATISFACTION; PROFESSIONAL PRACTICE; PROSPECTIVE STUDY; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; STAGES OF RECOVERY INSTRUMENT; STRUCTURED CLINICAL INTERVIEW FOR DSM DISORDERS; SWITZERLAND; THRESHOLD ASSESSMENT GRID; UNITED KINGDOM; ADOLESCENT; ADULT; CLINICAL PROTOCOL; COMPARATIVE STUDY; DECISION MAKING; EUROPEAN UNION; FEMALE; HEALTH CARE QUALITY; HOSPITALIZATION; HUMAN RELATION; MALE; MIDDLE AGED; ORGANIZATION AND MANAGEMENT; PATIENT PARTICIPATION; PSYCHOLOGICAL ASPECT; PSYCHOLOGICAL MODEL; STANDARD; TREATMENT OUTCOME;

ADOLESCENT; ADULT; CLINICAL PROTOCOLS; DECISION MAKING; EUROPE; EUROPEAN UNION; FEMALE; HUMANS; MALE; MENTAL DISORDERS; MIDDLE AGED; MODELS, PSYCHOLOGICAL; OUTCOME AND PROCESS ASSESSMENT (HEALTH CARE); PATIENT PARTICIPATION; PATIENT SATISFACTION; PROFESSIONAL-PATIENT RELATIONS; PROSPECTIVE STUDIES; QUALITY INDICATORS, HEALTH CARE; QUALITY OF LIFE; RESEARCH DESIGN; SEVERITY OF ILLNESS INDEX; TREATMENT OUTCOME;

EID: 78149237864     PISSN: None     EISSN: 1471244X     Source Type: Journal    
DOI: 10.1186/1471-244X-10-90     Document Type: Article

References (55)

1. The WHO World Mental Health Survey Consortium Prevalence, severity, and unmet need for treatment of mental disorders in the World Health Organization World Mental Health Surveys. J Am Med Assoc 2004, 291:2581-2590. The WHO World Mental Health Survey Consortium.
2. van Dulmen S. Patient-centredness. Patient Educ Counsel 2007, 51:195-196.
3. Lambert MJ, Hansen NB, Finch AE. Patient-focused research: using patient outcome data to enhance treatment effects. J Consult Clin Psychol 2001, 69:159-172. 10.1037/0022-006X.69.2.159, 11393594.
4. NIMH Bridging science and service: A report by the National Advisory Mental Health Council's Clinical Treatment and Services Research workgroup. accessed 11/18/10, NIMH., http://wwwapps.nimh.nih.gov/ecb/archives/nimhbridge.pdf
5. Wills CE, Holmes-Rovner M. Integrating decision making and mental health interventions research: research directions. Clin Psychol Sci Pract 2006, 13:9-25.
6. Coulter A. Partnerships with patients: the pros and cons of shared clinical decision making. J Health Serv Res Pol 1997, 2:112-121.
7. Ende J, Kazis L, Ash A, Moskowitz MA. Measuring patients' desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 1989, 4:23-30. 10.1007/BF02596485, 2644407.
8. Watt S. Clinical decision-making in the context of chronic illness. Health Expectations 2000, 3:6. 10.1046/j.1369-6513.2000.00076.x, 11281907.
9. Entwistle VA, Watt IS. Patient involvement in treatment decision-making: the case for a broader conceptual framework. Patient Educ Counsel 2006, 63:268-278.
10. Rothert M, Holmes-Rovner M, Rovner D, Kroll J, Breer L, Talaczyk G, Schmitt N, Padonu G, Wills CE. An educational intervention as decision support for menopausal women. Res Nurs Health 1997, 20:377-387. 10.1002/(SICI)1098-240X(199710)20:5<377::AID-NUR2>3.0.CO;2-L, 9334792.
11. Charles C, Gafni A, Whelan T. Shared decision making in the medical encounter: what does it mean? (Or: it takes at least two to tango). Soc Sci Med 1997, 44:681-692. 10.1016/S0277-9536(96)00221-3, 9032835.
12. Coulter A. The autonomous patient: ending paternalism in medical care 2003, London: The Nuffield Trust, TSO.
13. Laugharne R, Priebe S. Trust, choice and power in mental health. Soc Psychiatry Psychiatr Epidemiol 2006, 41:843-852. 10.1007/s00127-006-0123-6, 17072503.
14. Deyo RA. A key medical decision maker: the patient. Br Med J 2001, 323:466-467.
15. Feldman-Stewart D, Brundage MD. Challenges for designing and implementing decision aids. Patient Educ Counsel 2004, 54:265-273.
16. Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. Br Med J 2007, 335:24-27.
17. O'Connor AM, Stacey D, Entwistle VA, Llewellyn-Thomas H, Rovner D, Holmes-Rovner M, Tait V, Tetroe J, Barry M, Jones J. Decision aids for people facing health treatment or screening decisions (Review) 2003, John Wiley, Chicester: Cochrane Database of Systematic Reviews.
18. Pescosolido BA, Brooks Gardner C, Lubell KM. How people get into mental health services: Stories of choice, coercion and "muddling through" from "first-timers". Soc Sci Med 1998, 46:275-286. 10.1016/S0277-9536(97)00160-3, 9447648.
19. Hamann J, Cohen R, Leucht S, Busch R, Kissling W. Do patients with schizophrenia wish to be involved in decisions about their medical treatment?. Am J Psychiatry 2005, 162:2382-2384. 10.1176/appi.ajp.162.12.2382, 16330606.
20. Hill SA, Laugharne R. Decision making and information seeking preferences among psychiatric patients. J Ment Health 2006, 15:75-84.
21. Loh A, Simon D, Hennig K, Hennig B, Harter M, Elwyn G. The assessment of depressive patients' involvement in decision making in audio-taped primary care consultations. Patient Educ Counsel 2006, 63:314-318.
22. Hamann J, Langer B, Winkler V, Busch R, Cohen R, Leucht S, Kissling W. Shared decision making for in-patients with schizophrenia. Acta Psych Scand 2006, 114:265-273.
23. Rokke PD, Tomhave JA, Jocic Z. The role of client choice and target selection in self management therapy for depression in older adults. Psychol Aging 1999, 14:155-169. 10.1037/0882-7974.14.1.155, 10224639.
24. Dwight-Johnson M, Unnutzer J, Sherbourne C, Tang L, Wells KB. Can quality improvement programmes for depression in primary care address patient preferences for treatment. Med Care 2001, 39:934-944. 10.1097/00005650-200109000-00004, 11502951.
25. Sterling RC, Gottheil E, Glassman G, Weinstein SP, Serota RD. Patient treatment choice and compliance: data from a substance misuse program. Am J Addict 1997, 6:168-176.
26. Bedi N, Lee A, Harrison G, Chilvers C, Dewey M, Fielding K, Miller P, Gretton V, Williams I, Churchill R, et al. Assessing effectiveness of treatment of depression in primary care: partially randomised preference trial. Br J Psychiatry 2000, 177:312-318. 10.1192/bjp.177.4.312, 11116771.
27. Kissen B, Platz A, Su W. Selective factors in treatment choice and outcome in alcoholics. Recent advances in studies of alcoholism 1971, 781-802. Washington, D.C.: U.S. Government Printing Office, Mello N, Mendelson J.
28. Devine DA, Fernald PS. Outcomes effect of receiving a preferred, randomly assigned or nonpreferred therapy. J Consult Clin Psychol 1973, 41:104-107. 10.1037/h0035617, 4737768.
29. McCabe R, Heath C, Burns T, Priebe S, Skelton J. Engagement of patients with psychosis in the consultation: conversation analytic study. Br Med J 2002, 325:1148-1151.
30. Elwyn G, Edwards A, Mowle S, Wensing M, Wilkinson C, Kinnersley P, Grol R. Measuring the involvement of patients in shared decision-making: a systematic review of instruments. Patient Educ Counsel 2001, 43:5-22.
31. Simon D, Schorr G, Wirtz M, Vodermaier A, Caspari C, Neuner B, Spies C, Krones T, Keller H, Edwards A, et al. Development and first validation of the shared decision-making questionnaire (SDM-Q). Patient Educ Counsel 2006, 63:319-327.
32. Thornicroft G, Becker T, Knapp M, Knudsen HC, Schene A, Tansella M, Vázquez-Barquero JL. International outcome measures in mental health: quality of life, needs, service satisfaction, costs and impact on carers 2006, London: The Royal College of Psychiatrists (Gaskell).
33. Slade M, McCrone P, Kuipers E, Leese M, Cahill S, Parabiaghi A, Priebe S, Thornicroft G. Use of standardised outcome measures in adult mental health services: randomised controlled trial. Br J Psychiatry 2006, 189:330-336. 10.1192/bjp.bp.105.015412, 17012656.
34. Andersson G, Bergström J, Carlbring P, Lindefors N. The use of the Internet in the treatment of anxiety disorders. Curr Opin Psychiatr 2005, 18:73-77.
35. Bauer S, Golkaramnay V, Kordy H. E-Mental-Health: Neue Medien in der psychosozialen Versorgung [E-Mental-Health: the use of new technologies in psychosocial care]. Psychotherapeut 2005, 50:7-15.
36. Robinson S, Perkins S, Bauer S, Hammond N, Treasure J, Schmidt U. Aftercare intervention through text messaging in the treatment of Bulimia Nervosa - feasibility pilot. Int J Eat Disord 2006, 39:633-638. 10.1002/eat.20272, 16937381.
37. Buchanan T. Internet-based questionnaire assessment: appropriate use in clinical contexts. Cogn Behav Ther 2003, 32:100-109. 10.1080/16506070310000957, 16291542.
38. Hohmann AA, Shear MK. Community-based intervention research: coping with the "noise" of real life in study design. Am J Psychiatry 2002, 159:201-207. 10.1176/appi.ajp.159.2.201, 11823259.
39. Kitzinger J. Qualitative research. Introducing focus groups. Br Med J 1995, 311:299-302.
40. Wild D, Grove A, Martin M, Eremenco S, McElroy S, Verjee-Lorenz A, Erikson P. Principles of good practice for the translation and cultural adaptation process for patient-reported outcomes (PRO) measures: report of the ISPOR Task Force for Translation and Cultural Adaptation. Value Health 2005, 8:94-104. 10.1111/j.1524-4733.2005.04054.x, 15804318.
41. Raudenbush SW, Bryk AS. Hierarchical linear models: applications and data analysis methods 2001, Newbury Park, CA: Sage.
42. Edwards D. Introduction to Graphical Modelling 2000, New York: Springer.
43. Health and Consumer Protection Directorate-General Green Paper: Improving the mental health of the population: Towards a strategy on mental health for the European Union. accessed 9/15/07, Health and Consumer Protection Directorate-General., http://ec.europa.eu/health/ph_determinants/life_style/mental/green_paper/mental_gp_en.pdf
44. Commission European Work Programme 2007-2008 - Cooperation - Theme 1 - Health. 2007, accessed 8/31/10, Commission European., ftp://ftp.cordis.europa.eu/pub/fp7/docs/wp/cooperation/health/a_wp_200702_en.pdf
45. First MB, Spitzer RL, Gibbon M, Williams JBW. Structured Clinical Interviews for DSM-IV Axis I Disorders - Clinical Version (SCID-CV) 1997, Washington, DC: American Psychiatric Press.
46. Möller HJ, Jäger M, Riedel M, Obermeier M, Strauss A, Bottlender R. The Munich 15-year follow-up study (MUFSSAD) on first-hospitalized patients with schizophrenic or affective disorders: assessing courses, types and time stability of diagnostic classification. Eur Psychiatr 2010,
47. Slade M, Powell R, Rosen A, Strathdee G. Threshold Assessment Grid (TAG): the development of a valid and brief scale to assess the severity of mental illness. Soc Psychiatry Psychiatr Epidemiol 2000, 35:78-85. 10.1007/s001270050011, 10784370.
48. Slade M, Loftus L, Thornicroft G, Wykes T. Camberwell Assessment of Need 1999, London: Gaskell.
49. Trauer T, Tobias G, Slade M. Development and evaluation of a patient-rated version of the Camberwell Assessment of Need Short Appraisal Schedule (CANSAS-P). Community Ment Health J 2008, 44:113-124. 10.1007/s10597-007-9101-z, 17701455.
50. Priebe S, Huxley P, Knight S, Evans S. Application and results of the Manchester Short Assessment of Quality of Life (MANSA). Int J Soc Psychiatry 1999, 45:7-12. 10.1177/002076409904500102, 10443245.
51. Priebe S, Gruyters T. The role of the helping alliance in psychiatric community care. A prospective study. J Nerv Ment Dis 1993, 181:552-557. 10.1097/00005053-199309000-00004, 8245923.
52. Lambert MJ, Burlingame GM, Umphress V, Hansen NB, Vermeersch DA, Clouse CG, Yanchar SC. The reliability and validity of the Outcome Questionnaire. Clin Psychol Psychother 1996, 3:106-116.
53. Wing JK, Beevor AS, Curtis RH, Park SB, Hadden S, Burns A. Health of the Nation Outcome Scales (HoNOS). Research and development. Br J Psychiatry 1998, 172:11-18. 10.1192/bjp.172.1.11, 9534825.
54. Jones SH, Thornicroft G, Coffey M, Dunn G. A brief mental health outcome scale-reliability and validity of the Global Assessment of Functioning (GAF). Br J Psychiatry 1995, 166:654-659. 10.1192/bjp.166.5.654, 7620753.
55. Andresen R, Caputi P, Oades L. Stages of recovery instrument: development of a measure of recovery from serious mental illness. Aust N Z J Psychiatry 2006, 40:972-980.