-
2
-
-
0034639218
-
Human tissue research in the genomic era of medicine: Balancing individual and societal interests
-
Ashburn TT, Wilson SK, Eisenstein BI: Human tissue research in the genomic era of medicine: balancing individual and societal interests. Arch Intern Med 2000; 160: 3377-3384
-
(2000)
Arch Intern Med
, vol.160
, pp. 3377-3384
-
-
Ashburn, T.T.1
Wilson, S.K.2
Eisenstein, B.I.3
-
3
-
-
60149102137
-
Broadening consent-and diluting ethics?
-
Hofmann B: Broadening consent-and diluting ethics? J Med Ethics 2009; 35: 125-129
-
(2009)
J Med Ethics
, vol.35
, pp. 125-129
-
-
Hofmann, B.1
-
4
-
-
84928970051
-
The Lausanne Institutional Biobank: A new resource to catalyse research in personalised medicine and pharmaceutical sciences
-
Mooser V, Currat C: The Lausanne Institutional Biobank: a new resource to catalyse research in personalised medicine and pharmaceutical sciences. Swiss Med Wkly 2014; 144: w14033
-
(2014)
Swiss Med Wkly
, vol.144
, pp. w14033
-
-
Mooser, V.1
Currat, C.2
-
5
-
-
84874694607
-
Cancer patient perceptions on the ethical and legal issues related to biobanking
-
Master Z, Claudio JO, Rachul C, Wang JC, Minden MD, Caulfield T: Cancer patient perceptions on the ethical and legal issues related to biobanking. BMC Med Genomics 2013; 6: 8
-
(2013)
BMC Med Genomics
, vol.6
, pp. 8
-
-
Master, Z.1
Claudio, J.O.2
Rachul, C.3
Wang, J.C.4
Minden, M.D.5
Caulfield, T.6
-
6
-
-
84893609873
-
Public preferences regarding informed consent models for participation in population-based genomic research
-
Platt J, Bollinger J, Dvoskin R, Kardia SL, Kaufman D: Public preferences regarding informed consent models for participation in population-based genomic research. Genet Med 2014; 16: 11-18
-
(2014)
Genet Med
, vol.16
, pp. 11-18
-
-
Platt, J.1
Bollinger, J.2
Dvoskin, R.3
Kardia, S.L.4
Kaufman, D.5
-
7
-
-
69749089780
-
Researchers' preferences and attitudes on ethical aspects of genomics research: A comparative study between the USA and Spain
-
Ruiz-Canela M, Valle-Mansilla JI, Sulmasy DP: Researchers' preferences and attitudes on ethical aspects of genomics research: a comparative study between the USA and Spain. J Med Ethics 2009; 35: 251-257
-
(2009)
J Med Ethics
, vol.35
, pp. 251-257
-
-
Ruiz-Canela, M.1
Valle-Mansilla, J.I.2
Sulmasy, D.P.3
-
9
-
-
84873345553
-
Beliefs and attitudes towards participating in genetic research-A population based cross-sectional study
-
Kerath SM, Klein G, Kern M et al: Beliefs and attitudes towards participating in genetic research-A population based cross-sectional study. BMC Public Health 2013; 13: 114
-
(2013)
BMC Public Health
, vol.13
, pp. 114
-
-
Kerath, S.M.1
Klein, G.2
Kern, M.3
-
10
-
-
84892392181
-
Biobanking for research: A survey of patient population attitudes and understanding
-
Rahm AK, Wrenn M, Carroll NM, Feigelson HS: Biobanking for research: a survey of patient population attitudes and understanding. J Community Genet 2013; 4: 445-450
-
(2013)
J Community Genet
, vol.4
, pp. 445-450
-
-
Rahm, A.K.1
Wrenn, M.2
Carroll, N.M.3
Feigelson, H.S.4
-
11
-
-
40449089389
-
Ownership and uses of human tissue: What are the opinions of surgical in-patients?
-
Bryant RJ, Harrison RF, Start RD et al: Ownership and uses of human tissue: what are the opinions of surgical in-patients? J Clin Pathol 2008; 61: 322-326
-
(2008)
J Clin Pathol
, vol.61
, pp. 322-326
-
-
Bryant, R.J.1
Harrison, R.F.2
Start, R.D.3
-
12
-
-
84918508673
-
Factors that may influence the willingness of cancer patients to consent for biobanking
-
Pillai U, Phillips K, Wilkins G et al: Factors that may influence the willingness of cancer patients to consent for biobanking. Biopreserv Biobank 2014; 12: 409-414
-
(2014)
Biopreserv Biobank
, vol.12
, pp. 409-414
-
-
Pillai, U.1
Phillips, K.2
Wilkins, G.3
-
13
-
-
85013692545
-
A qualitative analysis of the attitudes of Irish patients towards participation in genetic-based research
-
McVeigh TP, Sweeney KJ, Kerin MJ, Gallagher DJ: A qualitative analysis of the attitudes of Irish patients towards participation in genetic-based research. Ir J Med Sci 23, 2015
-
(2015)
Ir J Med Sci
, pp. 23
-
-
McVeigh, T.P.1
Sweeney, K.J.2
Kerin, M.J.3
Gallagher, D.J.4
-
14
-
-
33748207767
-
Genetic research and donation of tissue samples to biobanks What do potential sample donors in the Swedish general public think?
-
Kettis-Lindblad A, Ring L, Viberth E, Hansson MG: Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think? Eur J Public Health 2006; 16: 433-440
-
(2006)
Eur J Public Health
, vol.16
, pp. 433-440
-
-
Kettis-Lindblad, A.1
Ring, L.2
Viberth, E.3
Hansson, M.G.4
-
15
-
-
33646163023
-
Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research
-
Nilstun T, Hermeren G: Human tissue samples and ethics-attitudes of the general public in Sweden to biobank research. Med Health Care Philos 2006; 9: 81-86
-
(2006)
Med Health Care Philos
, vol.9
, pp. 81-86
-
-
Nilstun, T.1
Hermeren, G.2
-
16
-
-
0034894941
-
Public attitudes regarding the donation and storage of blood specimens for genetic research
-
Wang SS, Fridinger F, Sheedy KM, Khoury MJ: Public attitudes regarding the donation and storage of blood specimens for genetic research. Community Genet 2001; 4: 18-26
-
(2001)
Community Genet
, vol.4
, pp. 18-26
-
-
Wang, S.S.1
Fridinger, F.2
Sheedy, K.M.3
Khoury, M.J.4
-
17
-
-
1642514698
-
Willingness to donate blood samples for genetic research: A survey from a community in Singapore
-
Wong ML, Chia KS, Yam WM, Teodoro GR, Lau KW: Willingness to donate blood samples for genetic research: a survey from a community in Singapore. Clin Gene 2004; 65: 45-51
-
(2004)
Clin Gene
, vol.65
, pp. 45-51
-
-
Wong, M.L.1
Chia, K.S.2
Yam, W.M.3
Teodoro, G.R.4
Lau, K.W.5
-
18
-
-
0033799887
-
Public attitudes regarding willingness to participate in medical research studies
-
Trauth JM, Musa D, Siminoff L, Jewell IK, Ricci E: Public attitudes regarding willingness to participate in medical research studies. J Health Soc Policy 2000; 12: 23-43
-
(2000)
J Health Soc Policy
, vol.12
, pp. 23-43
-
-
Trauth, J.M.1
Musa, D.2
Siminoff, L.3
Jewell, I.K.4
Ricci, E.5
-
19
-
-
84898477969
-
Understanding of informed consent by parents of children enrolled in a genetic biobank
-
Klima J, Fitzgerald-Butt SM, Kelleher KJ et al: Understanding of informed consent by parents of children enrolled in a genetic biobank. Genet Med 2014; 16: 141-148
-
(2014)
Genet Med
, vol.16
, pp. 141-148
-
-
Klima, J.1
Fitzgerald-Butt, S.M.2
Kelleher, K.J.3
-
20
-
-
84902302488
-
Intentions to donate to a biobank in a national sample of African Americans
-
McDonald JA, Vadaparampil S, Bowen D et al: Intentions to donate to a biobank in a national sample of African Americans. Public Health Genomics 2014; 17: 173-182
-
(2014)
Public Health Genomics
, vol.17
, pp. 173-182
-
-
McDonald, J.A.1
Vadaparampil, S.2
Bowen, D.3
-
21
-
-
84929470560
-
Oncology patients overwhelmingly support tissue banking
-
Bryant J, Sanson-Fisher R, Fradgley E, Regan T, Hobden B, Ackland SP: Oncology patients overwhelmingly support tissue banking. BMC Cancer 2015; 15: 413
-
(2015)
BMC Cancer
, vol.15
, pp. 413
-
-
Bryant, J.1
Sanson-Fisher, R.2
Fradgley, E.3
Regan, T.4
Hobden, B.5
Ackland, S.P.6
-
22
-
-
77958489649
-
Hypothetical and factual willingness to participate in biobank research
-
Johnsson L, Helgesson G, Rafnar T et al: Hypothetical and factual willingness to participate in biobank research. Eur J Hum Genet 2010; 18: 1261-1264
-
(2010)
Eur J Hum Genet
, vol.18
, pp. 1261-1264
-
-
Johnsson, L.1
Helgesson, G.2
Rafnar, T.3
-
23
-
-
59849085993
-
Assessing the understanding of biobank participants
-
Ormond KE, Cirino AL, Helenowski IB, Chisholm RL, Wolf WA: Assessing the understanding of biobank participants. Am J Med Genet 2009; 149: 188-198
-
(2009)
Am J Med Genet
, vol.149
, pp. 188-198
-
-
Ormond, K.E.1
Cirino, A.L.2
Helenowski, I.B.3
Chisholm, R.L.4
Wolf, W.A.5
-
24
-
-
80052573480
-
Active choice but not too active: Public perspectives on biobank consent models
-
Simon CM, L'Heureux J, Murray JC et al: Active choice but not too active: public perspectives on biobank consent models. Genet Med 2011; 13: 821-831
-
(2011)
Genet Med
, vol.13
, pp. 821-831
-
-
Simon, C.M.1
L'Heureux, J.2
Murray, J.C.3
-
25
-
-
84928489870
-
Demographic differences in willingness to provide broad and narrow consent for biobank research
-
Ewing AT, Erby LA, Bollinger J, Tetteyfio E, Ricks-Santi LJ, Kaufman D: Demographic differences in willingness to provide broad and narrow consent for biobank research. Biopreserv Biobank 2015; 13: 98-106
-
(2015)
Biopreserv Biobank
, vol.13
, pp. 98-106
-
-
Ewing, A.T.1
Erby, L.A.2
Bollinger, J.3
Tetteyfio, E.4
Ricks-Santi, L.J.5
Kaufman, D.6
-
26
-
-
84921777829
-
Moral concerns and the willingness to donate to a research biobank
-
Tomlinson T, De Vries R, Ryan K, Kim HM, Lehpamer N, Kim SY: Moral concerns and the willingness to donate to a research biobank. JAMA 2015; 313: 417-419
-
(2015)
JAMA
, vol.313
, pp. 417-419
-
-
Tomlinson, T.1
De Vries, R.2
Ryan, K.3
Kim, H.M.4
Lehpamer, N.5
Kim, S.Y.6
-
27
-
-
84878759050
-
Patients' willingness to participate in a breast cancer biobank at screening mammogram
-
Lee CI, Bassett LW, Leng M et al: Patients' willingness to participate in a breast cancer biobank at screening mammogram. Breast Cancer Res Treat 2012; 136: 899-906
-
(2012)
Breast Cancer Res Treat
, vol.136
, pp. 899-906
-
-
Lee, C.I.1
Bassett, L.W.2
Leng, M.3
-
28
-
-
84981311502
-
Potential bias in the bank: What distinguishes refusers, nonresponders and participants in a clinic-based biobank?
-
Ridgeway JL, Han LC, Olson JE et al: Potential bias in the bank: what distinguishes refusers, nonresponders and participants in a clinic-based biobank? Public Health Genomics 2013; 16: 118-126
-
(2013)
Public Health Genomics
, vol.16
, pp. 118-126
-
-
Ridgeway, J.L.1
Han, L.C.2
Olson, J.E.3
-
29
-
-
84869880549
-
Characteristics of Australian cohort study participants who do and do not take up an additional invitation to join a long-term biobank: The 45 and Up Study
-
Banks E, Herbert N, Mather T, Rogers K, Jorm L: Characteristics of Australian cohort study participants who do and do not take up an additional invitation to join a long-term biobank: The 45 and Up Study. BMC Res Notes 2012; 5: 655
-
(2012)
BMC Res Notes
, vol.5
, pp. 655
-
-
Banks, E.1
Herbert, N.2
Mather, T.3
Rogers, K.4
Jorm, L.5
-
30
-
-
84952311014
-
Public's attitudes on participation in a biobank for research: An Italian survey
-
Porteri C, Pasqualetti P, Togni E, Parker M: Public's attitudes on participation in a biobank for research: an Italian survey. BMC Med Ethics 2014; 15: 81
-
(2014)
BMC Med Ethics
, vol.15
, pp. 81
-
-
Porteri, C.1
Pasqualetti, P.2
Togni, E.3
Parker, M.4
-
31
-
-
79953836007
-
Public perception and attitude of saudis toward organ and tissue donation
-
Al-Jumah MA, Abolfotouh MA: Public perception and attitude of saudis toward organ and tissue donation. Biopreserv Biobank 2011; 9: 21-27
-
(2011)
Biopreserv Biobank
, vol.9
, pp. 21-27
-
-
Al-Jumah, M.A.1
Abolfotouh, M.A.2
-
32
-
-
77956320677
-
Genetic research in the blood bank: Acceptability to Northern California donors
-
Rice MS, Custer BS, Hindes DA et al: Genetic research in the blood bank: acceptability to Northern California donors. Transfusion 2010; 50: 1951-1958
-
(2010)
Transfusion
, vol.50
, pp. 1951-1958
-
-
Rice, M.S.1
Custer, B.S.2
Hindes, D.A.3
-
33
-
-
84879601453
-
Return of incidental findings in genomic medicine: Measuring what patients value-development of an instrument to measure preferences for information from next-generation testing (IMPRINT)
-
Bennette CS, Trinidad SB, Fullerton SM et al: Return of incidental findings in genomic medicine: measuring what patients value-development of an instrument to measure preferences for information from next-generation testing (IMPRINT). Genet Med 2013; 15: 873-881
-
(2013)
Genet Med
, vol.15
, pp. 873-881
-
-
Bennette, C.S.1
Trinidad, S.B.2
Fullerton, S.M.3
-
34
-
-
78349267947
-
Communication of biobanks' research results: What do (potential) participants want?
-
Meulenkamp TM, Gevers SK, Bovenberg JA, Koppelman GH, Hylckama Vlieg A, Smets EM: Communication of biobanks' research results: what do (potential) participants want? Am J Med Genet 2010; 152: 2482-2492
-
(2010)
Am J Med Genet
, vol.152
, pp. 2482-2492
-
-
Meulenkamp, T.M.1
Gevers, S.K.2
Bovenberg, J.A.3
Koppelman, G.H.4
Hylckama, V.A.5
Smets, E.M.6
-
35
-
-
84859608971
-
Public preferences regarding the return of individual genetic research results: Findings from a qualitative focus group study
-
Bollinger JM, Scott J, Dvoskin R, Kaufman D: Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study. Genet Med 2012; 14: 451-457
-
(2012)
Genet Med
, vol.14
, pp. 451-457
-
-
Bollinger, J.M.1
Scott, J.2
Dvoskin, R.3
Kaufman, D.4
-
36
-
-
84984945132
-
The Geisinger MyCode community health initiative: An electronic health record-linked biobank for precision medicine research
-
Carey DJ, Fetterolf SN, Davis FD et al: The Geisinger MyCode community health initiative: an electronic health record-linked biobank for precision medicine research. Genet Med 2016; 18: 906-913
-
(2016)
Genet Med
, vol.18
, pp. 906-913
-
-
Carey, D.J.1
Fetterolf, S.N.2
Davis, F.D.3
-
37
-
-
84871195411
-
Publics and biobanks: Pan-European diversity and the challenge of responsible innovation
-
Gaskell G, Gottweis H, Starkbaum J et al: Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. Eur J Hum Genet 2013; 21: 14-20
-
(2013)
Eur J Hum Genet
, vol.21
, pp. 14-20
-
-
Gaskell, G.1
Gottweis, H.2
Starkbaum, J.3
|